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Gentile Calls for NY to Remove All Children From Rotenberg Shock Punishment School

Autistic_kidsGENTILE CALLS ON CHANCELLOR TO REMOVE ALL NYC CHILDREN FROM CONTROVERSIAL SCHOOL ONCE AND FOR ALL

CITY HALL In light of recent developments, Councilman Vincent J. Gentile, a long-time advocate for New York’s most vulnerable, is calling on New York City Department of Education Chancellor Dennis M. Walcott to remove all New York children from the infamous Judge Rotenberg Center in Canton, Massachusetts once and for all.

The Centers for Medicare & Medicaid Services (CMS) sent a letter to the Massachusetts Executive Office of Health and Human Services saying it would no longer allow federal Medicaid money to be used by anyone who lives at a facility that employs electric shock intervention, even if that person is not receiving the treatment themselves. Massachusetts has begun notifying the families of its students that they must either move to a new facility or unenroll from state benefits immediately.

“CMS made the right decision – no federal tax dollars should be going to an institution that uses these electric shock techniques on children. It’s time New York State and New York City to do the same – no city or state money should go to support an institution which subjects its students to these cruel and unusual forms of ‘behavior modification’. The Rotenberg Center in Massachusetts where 120 NYC developmentally disabled students currently attend, is in gross violation of the most fundamental standards of humane treatment of people with disabilities”, Councilman Gentile said.  “With CMS pulling its funding, we are one step closer to shutting down Rotenberg once and for all.”

As a New York State Senator, Councilman Gentile introduced legislation to mandate oversight and accountability when developmentally disabled students are sent out-of-state for education and treatment. Then, in late 2009, Councilman Gentile sponsored “Billy’s Law” which requires the Department of Education to provide the City Council with bi-annual reports monitoring all out-of-state residential facilities that house New York State children for specialized educational services – both pieces of legislation passed unanimously.

Continue reading "Gentile Calls for NY to Remove All Children From Rotenberg Shock Punishment School" »

Cathy Jameson

Slow Down

By  Slow Cathy Jameson

I’ve had a really hectic week.  Make that a really hectic month! We had multiple appointments almost every day for four weeks straight.  We even had appointments to get to on some weekends.  I’m not trying to get any sympathy, just stating the facts.  Last month was BUSY with a capital B.  It was also difficult.  Lately, I’ve been a little bit overwhelmed with my family’s very full schedule.  I know something’s got to give, but trying to eliminate one appointment or therapy visit isn’t the answer.  That won’t work because whatever we miss will likely have to be rescheduled for another day on another busy week.  That isn’t a relief and just prolongs the busy and the difficult. 

I’ve finally committed to remembering to take care of me after putting myself and my needs on the back burner for too many years.  After neglecting some of my own health needs, I carved out time to finally catch up.  I now have weekly appointments to schedule, to remember and to get to.  Trying to squeeze everyone’s stuff on our calendar takes careful planning.  Inevitably, everything we need to get to doesn’t fit.  I don’t like to be the one who has to chose who’s getting shoved to the bottom of our list.  In the past it used to be my stuff that had to go.  I’d be okay with that now if I were spending time doing activities that didn’t matter—like trips to the salon, meeting up with friends at the coffee shop or doing some retail therapy.  But, my appointments have become just as important as everyone else’s. 

Our entire family is so busy right now that I have had to schedule when I can get to the grocery store.  That happens in the only 2-hour time block I have open on Mondays.  I know at some point I need to slow down and open some more time on our calendar, but “slow” is not an accurate word to use to describe my five on-the-go children.  To keep track of everything we’ve got to do, I carry our schedule with me electronically.  It’s the only way I can make sure I know which child should be by my side, to remember where we need to go and to also know when we have to be there.  Using my cell phone, I check the calendar on it several times a day.  I do this to make sure I haven’t forgotten anyone or anything.  If I’m not picking up or dropping off one child one day I’m picking up and dropping off two children to back-to-back appointments another day.  Sometimes the appointment locations are close to each other, but other days I’m driving across town through traffic hoping to arrive at the next destination on time.  We usually get where we need to as close to on-time as possible, but we have had some tight squeezes. 

The clinic or groups we see are very aware of our situation and of how many things I’m currently juggling.  Thankfully they don’t fuss when we walk in late.  It helps that we’ve had a chance to create good relationships with all of our providers and with people I am advocating with in our community.  They all understand the pressure of raising kids and give me a simple nod and smile letting me know they get it, and to relax, Mom, it’ll all work out.  I appreciate that because I’ve messed up their schedule by being really late other times or when I’ve shown up to an appointment on the wrong day altogether.  For the first time ever last month, I triple booked myself!  I was truly embarrassed and disappointed that I messed up.  I quickly apologized to the two providers I had to cancel with and headed to what I considered to be the most important of those three appointments:   the one where I was interviewed about autism, vaccine injury and Ronan’s journey.   

Continue reading "Slow Down" »

Dan Olmsted, Dan Olmsted

Weekly Wrap: Adam Lanza, Feeling No Pain

AofA Red Logo Ayumi YamadaBy Dan Olmsted

Talking about the Newtown mass murderer, Adam Lanza,  is fraught with peril for people in the autism advocacy community, especially that part of the community which believes -- as I certainly do -- that vaccines have caused the epidemic of autism diagnoses now so apparent in schools across the country. The fact that two of the 20 dead children had ASDs just goes to show how prevalent such children are in classrooms everywhere.

Whether Lanza himself had an ASD is still an open question, despite second-hand reports that he had Asperger's. I'm proud of the way AOA responded to that story, starting with a statement that reads in part:

"Regardless of whether or not the shooter truly is on the autism spectrum, we wish to make it clear that autism spectrum disorders (ASDs) are in no way associated with criminal violence. More often than not, people with ASDs are the victims of such violence, not the people committing them." 

So while hard information on his ASD status is unknown, and, in any event, irrelevant as a primary cause, there is one diagnosis that was plausible from the start: Sensory integration disorder. From the Associated Press, just a couple of days after the shooting:

--

SOUTHBURY, Conn. — At Newtown High School, Adam Lanza had trouble relating to fellow students and teachers, but that was only part of his problem. He seemed not to feel physical or emotional pain in the same way as classmates.

Richard Novia, the school district's head of security until 2008, who also served as adviser for the school technology club, said Lanza clearly "had some disabilities."

"If that boy would've burned himself, he would not have known it or felt it physically," Novia told The Associated Press in a phone interview. "It was my job to pay close attention to that."

Continue reading "Weekly Wrap: Adam Lanza, Feeling No Pain" »

Anne Dachel

Dachel Media Update: Utah Scraps Autism Insurance

  Online news

Feb 28, 2013, Salt Lake Tribune: Bill requiring insurance coverage for autism scrapped

"A bill to mandate insurance coverage for autism treatment received a drastic makeover Thursday in the Utah Senate, disappointing hundreds of parents who hoped they could soon afford the necessary therapies for their children.

"In its original form, SB55 would have required insurance coverage for children diagnosed with autism spectrum disorder. About 18,000 such youth live in Utah, said the bill's sponsor, Sen. Brian Shiozawa, R-Cottonwood Heights.

"Realizing the measure lacked the votes to pass either legislative chamber, Shiozawa pared it back Thursday, nixing the insurance and confining it to expansion of a pilot program enacted last year. He is asking to double participants to 500 and raise the age limit to seven. The current pilot program tops out at age six."

"Mirella Petersen, mother of an autistic child and president of Utah Autism Coalition, praised Shiozawa for his tireless efforts, adding that thousands of parents were devastated to learn that SB55 could not advance in its original form."

Utah is going to help 500 children with autism in the state.  It seems that everyone else is out of luck.  I posted comments. 

 

Sponsor News

National Autism Association Announces "Marching Forward" Post Hope FaceBook Campaign

Post Hope
Managing Editor's Note:  While other so called autism advocates talk about what our kids do NOT deserve, we can always rely on our friends at National Autism Association to give families from coast to coast an active, meaningful, progressive set of tools to make Spring a season of true hope through action. Join their FaceBook page, become an NAA member, ask your family members to become members on behalf of your child(ren) and remember that no matter how dark the night before dawn, together we can wake up the world to the ongoing needs of the autism community. Thank you, NAA.  Here is their new "Post Hope" campaign.

Starting March 1, the National Autism Association is marching forward with initiatives that promote progress and hope. First up, our Post Hope campaign on Facebook. The goal? Make hope go viral in the autism community. It may sound small, but we believe sharing simple messages of hope will make a big impact.

What is Post Hope?

Post Hope is an initiative that provides share-friendly social media cards that contain messages of hope, support, and critical information, such as autism safety tips, autism facts, and early signs of autism.

Continue reading "National Autism Association Announces "Marching Forward" Post Hope FaceBook Campaign" »

Vaccine Safety

A Vaccine Injury Case Goes to the Supreme Court

Supreme courtEBCALA recently submitted an amicus brief to the U.S. Supreme Court in Sebelius v. Cloer. Nineteen other civil society organizations joined us to support petitioner Dr. Melissa Cloer in her quest that her lawyers receive payment for having brought her good faith, reasonable claim for injury compensation.

Dr. Cloer, an adult physician, petitioned the Vaccine Injury Compensation Program (VICP) in 2005 after she developed multiple sclerosis (MS) from hepatitis B vaccines in 1996 and 1997. Despite the earliest symptoms appearing only a month after her last vaccination, it was not until 2003 that Dr. Cloer received the diagnosis of MS. In 2004, she learned of the possible link between MS and the hepatitis B vaccine in the scientific literature and applied to the VICP.

After three proceedings on the matter, the Court of Appeals for the Federal Circuit ultimately ruled that Dr. Cloer’s claim, filed more than three years after her first MS symptom, was ineligible for compensation. While the Court of Appeals ruled her claim untimely, it did acknowledge that her attorneys had brought the case in good faith and on a reasonable basis, meeting the necessary criteria for them to receive legal fees.

Remarkably, the Department of Health and Human Services (HHS) contested payment to Dr. Cloer’s attorneys and filed a petition in the Supreme Court. The Supreme Court agreed to hear the issue on March 19, 2013. The 1986 National Vaccine Injury Act, which established the VICP, provides no time restrictions on legal fees. The Act states only that claims must be in good faith and on a reasonable basis.

Simply put, the issue before the Supreme Court is, will the VICP pay Dr. Cloer’s lawyers for having brought Dr. Cloer’s legitimate vaccine injury claim? HHS argues that lawyers should not be paid for bringing a claim ultimately found to be late.

The outcome will have a tremendous impact. Due to the nature of vaccine injury and the often-murky onset of symptoms, issues of timeliness are common. If attorneys can’t be sure they will be paid for good faith, reasonable claims, families of the vaccine-injured will suffer. While untimeliness may be grounds not to compensate the petitioner, it does not justify failure to pay lawyers for legitimate work. If HHS wins, attorneys will likely turn down all but the most extreme cases of vaccine injury.

Continue reading "A Vaccine Injury Case Goes to the Supreme Court" »

Teresa Conrick

The Scientific and Basic Moral Reasons We Need an Autism Cure

Meg  immune  treatmentsBy Teresa Conrick

My beautiful daughter, Megan, will be 20 years old on March 2nd. The real heroes are the children, and now soon to be adults of this Autism Epidemic, who live each day in the shadow of pain. Meg is one of them. I write a lot about Autism, not to complain of my struggles, but to share the hope that we are turning the corner from the days of Autism being some type of "mental mystery," to its proper position --- an immune-mediated disease, that can present as neuropsychiatric and/or neurodegenerative. The "spectrum" that so many love to describe would be, in reality, a gauge of illness, of infection, and autoimmunity, and not some psycho-babble yardstick.

A recent article in the UK, Guardian, by Kristina Chew, a mother of a son with an Autism diagnosis, caught my eye recently, and also hammered in my head and heart, that there are definitely different opinions regarding Autism. While it is fine to have and share an opinion, it is another to add in questionable facts and information. From Ms. Chew:

"Do we really need a cure for autism? I've grappled with whether it's morally or medically right to talk about 'curing' autism.......Currently there is no known biomarker for autism, and the disorder is diagnosed based on observations by teams of experts. Most scientists agree that autism is of genetic origin and begins to develop while a child is in the womb. ......Autism is a lifelong disability that cannot be cured in a medical sense."

The link she provides for "autism is of genetic origin' will take you to the CDC website, with a hodge-podge of archaic gene/chromosome bullet points, put out by the same folks who walk the walk and talk the talk of the pharmaceutical/medical industry. Close your eyes and it is 1975, and we are hearing the defense of toxic leaded gasoline and the denial of environmental injury. I am not quite sure why CDC or Ms. Chew do not report this more recent study from Stanford regarding autism and genes:

Non-genetic factors play surprisingly large role in determining autism, says study by group: 

"A new Stanford University School of Medicine study of twins suggests that non-genetic factors play an unexpectedly large role in determining autism risk, turning upside down recent assumptions about the cause of this common, disabling developmental disorder......It found that genes account for 38 percent of autism risk, with environmental factors explaining the remaining 62 percent.

"It took me a bit by surprise that the heritability of autism was so much lower than previous studies calculated," said Joachim Hallmayer, MD, the first author of the new paper...

The finding that autism risk is strongly influenced by environmental factors should alert scientists to the need to study risk factors they haven't been considering, the researchers said. In recent years, autism research has been focusing more on genetics."

I think that is a better and more current analysis of where we are now concerning any genetic Meg pain biting connections in Autism. The focus does need to be on the environment, including vaccines, something we, here at Age of Autism, have been saying since our inception.

Do we need a cure for Autism? I think that is a disturbing question, kind of like saying do we need to stop pain and suffering? Do we need to stop Alzheimer's, Parkinson's or Cancer? Why yes, we do! There are thousands of children and young adults now, who wake each day in pain. Then the issue of morally, if we really look at what that means - decent, ethical, honest, honorable vs the opposite - dishonest, evil, unethical, wicked. Well, I'll take heaps and seconds on the former, as it seems morally reprehensible that these individuals should not be able to live and function in a body that feels good.

Continue reading "The Scientific and Basic Moral Reasons We Need an Autism Cure" »

Science

Science Summary: Higher levels of several toxic metals found in children with autism

Science post imageIn a recently published study in the journal Biological Trace Element Research, Arizona State University researchers report that children with autism had higher levels of several toxic metals in their blood and urine compared to typical children. The study involved 55 children with autism ages five to 16 years old compared to 44 controls of similar age and gender.

The autism group had significantly higher levels of lead in their red blood cells (+41 percent) and significantly higher urinary levels of lead (+74 percent), thallium (+77 percent), tin (+115 percent), and tungsten (+44 percent). Lead, thallium, tin, and tungsten are toxic metals that can impair brain development and function, and also interfere with the normal functioning of other body organs and systems.   Read the full study Toxicological Status of Children with Autism vs. Neurotypical Children and the Association with Autism Severity.

Autism Action Network: What Will the DSM5 Cost Your Child?

The-Name-GameFrom Autism Action Network.    Please like Autism Action Network on their FaceBook page to keep abreast of the latest alerts, news and info.

What Will the DSM5 Cost Your Child?   

Potentially Everything Says Leading Psychiatrist   
 
Will your child lose his or her health insurance, school placement, Medicaid or other services when the Diagnostic and Statistical Manual, Fifth Edition (DSM5) is published by the American Psychiatric Association in May? Dr. Allen Frances, the psychiatrist who headed the development of the current DSM4, thinks so.

Frances has led the criticism of the DSM5 for the last three years. And he puts his criticism in a nutshell in this recent article from Psychology Today:

There has been a heated controversy about the DSM-5 proposal to redefine autism. Will its dramatic changes in definition result in dramatic changes in who gets diagnosed and will this cause a big reduction in the overall rate of autism? The DSM-5 folks claim their changes will have minimal impact. My prediction has been that they will have a major impact.

Dr. Lynn Waterhouse, an autism researcher for more than thirty years, has weighed in on the issue in her recently published book, Rethinking Autism: Variation and Complexity. Dr. Waterhouse believes the DSM-5 criteria are seriously flawed and will reduce the number of diagnoses. She sent this email:

"Dr. Catherine Lord, head of the DSM-5 autism group, recently cited a data analysis she performed as conclusive evidence that DSM-5 criteria for Autism Spectrum Disorder (ASD) will "not change the number of children with clinical diagnoses."

I disagree. First off, Dr Lord did find that using the new DSM-5 criteria caused about a 10% reduction in ASD diagnoses. That's a lot of kids who will no longer qualify for the diagnosis and who will not get services.

And Dr Lord's 10% estimate is almost certainly way too low because two of her study's three data sets were not really representative of the typical children assessed for ASD. It is a very good bet that her results won't generalize very accurately to real world settings where a much larger percentage of kids would lose the diagnosis.

Continue reading "Autism Action Network: What Will the DSM5 Cost Your Child? " »

Current Affairs

Georgia No Peach for Kids with Autism

Soup naziParents from coast to coast are struggling to find and pay for services for their children with autism.  (NBC 11 Atlanta, Hundreds attend autism support day at capitol)

Meanwhile there are experts and advocates working day and night to make sure the general American public thinks that autism is "just another way of being" that requires no treatment. All we need is better understanding.Some job training.  And to change the way the world spins. And blue lit buildings. And ponies!

In Georgia, parents are speaking out at the Capitol for insurance coverage for basic, garden variety, run of the mill therapies. Nothing "crazy" mind you - just external therapy. 


"Solares has come with her husband and two children, all the way from Augusta. The couple's five year old son Arturo, was diagnosed with autism one year ago. Solares' husband is a surgeon and in the past year they've spent $100,000 for special therapies for Arturo. He has undergone a transformation. They head upstairs to search for their state senator.

Continue reading "Georgia No Peach for Kids with Autism" »

Dreams

Winner! Heart of An Angel Necklace From The Puzzling Place

Congrats to Daniella, our winner!

Thank you to Melissa at The Puzzling Piece for offering us a beautiful heart necklace for a lucky AofA reader.    Melissa started the "iPad Challenge" program for families to win an iPad in an easy sales contest.  It's almost Autism Action Month - a great time to join the Challenge. 


Puzzling Piece Commercial from Flying Pig Ranch Studios on Vimeo.

John Stone

HMS Brian Deer Holed Beneath the Waterline?

Ship sinks

Part II Deer’s hideous revenge

By John Stone

On Friday AoA reported that the journal Nature had been persuaded to remove from its on-line news service derogatory and misleading remarks by Brian Deer about whistleblowing scientist Dr David Lewis. The remarks had stood since 9 November 2011, posted under Eugenie Samuel Reich’s report  of Lewis’s rebuttal of Deer’s allegations against Andrew Wakefield in the British Medical Journal. While BMJ had refused to publish most of Lewis’s article in any form the Reich article contained serious admissions by Deer and BMJ editor Fiona Godlee.

Now Deer has republished the letter on his own website headed ‘Reprint Nature.com’ (with logo)  but fails to mention that the journal itself has removed it. Other title headings which accompany the letter, in the best academic style, are ‘Response to crank attack by David L Lewis’  and  ‘Dr David L Lewis: you couldn’t make it up’ to which , perhaps, the only answer is ‘But you did, Brian, didn’t you?’

This is obviously cutting edge stuff in the brave new world of Oxford and BMJ’s ‘Evidence Based Medicine’ 

Down, down, down…

John Stone is UK Editor for Age of Autism.

Kim Stagliano

Deflated

Deflated ballBy Kim Stagliano

Deep sigh.  Ever have a day where you just plain feel tired? It's not just physical fatigue, it's a bone deep exhaustion that sneaks up on me.  And my husband. And fellow autism parents. Yesterday was one of those days. Here's why.

My girls are now in middle school and high school. Our elementary days are behind us, for which I am grateful. No more red dye soaked school parties for starters. And the girls are on the same bus schedule, a small but important bit of continuity for my day. By 7:20am I am seated quietly at my desk working with my twelfth cup of coffee in hand. It's good.

Back to yesterday. Each year, a top rated prep school in our area hosts a wonderful basketball tournament for Special Olympics. Local middle and high schools field teams from the adaptive PE classes. A sports writer celeb is the MC and the entire prep school seems to turn out with smiles and manners and exuberance to volunteer and to cheer on the players.  Many of the players march into the gym like gladiators, albeit really happy warriors, faces beaming at the attention, eating up the cheers and whoops like a big bowl of ice cream.  They high five and thumbs up and you can't help but grin from ear to ear as you watch them. It's the true meaning of Special Olympics sports.  By all typical measurements, the event is a success. Except....

If you landed on earth in 2013 from a planet that had never heard of autism, you would have been able to point your long, green finger at a group of players  who stood differently, who participated differently, if at all.    Their faces were beautiful. Their bodies lithe and intact - no wheelchairs, no signs of disability even from the top of the bleachers. But you'd know.  These are the players with autism. And the event simply isn't designed to accommodate their special-squared needs. 

The teams waited for 30 minutes in the stairwell before entering the gym for the dramatic and emotional entrance ceremony.   For some of the kids with autism, this induced tremendous stress. And behaviors.   All I could think of was Temple Grandin talking about cattle chutes.

The National Anthem was so loud Roseann Barr would have clapped her hands over her ears.  More stress.

Continue reading "Deflated" »

Dan Olmsted, Dan Olmsted , Jake Crosby

Jake Crosby: "SafeMinds Ignores Major Allegations While Replying Dishonestly to Other Charges"

Capitol

Editor's note: I declined to run Contributing Editor Jake Crosby's original article on this topic for reasons outlined here. Since then, it appeared elsewhere and generated a great deal of comment within our community (and without). We subsequently ran a statement from SafeMinds, the object of the original piece. Now Jake has asked us to run this follow-up. Given that the subject is on the table, and that this article would presumably appear elsewhere in any event, I decided to run it, unedited. -- Dan Olmsted.

(PS: After a thorough airing of views, the comment thread is now closed. Go in peace for all mankind.)

By Jake Crosby

On November 29th, SafeMinds hijacked the Dan Burton Congressional Hearing on autism and vaccines by pretending to represent autism parent and scientist Dr. Brian Hooker, and by changing the topic away from vaccines - thus opening the door to autism epidemic denialists among other vaccine program apologists. On its website and on Age of Autism, SafeMinds responded to my Bolen Report article “SafeMinds Steals The Show, Literally…” claiming that what I wrote about the organization were “false allegations.” However, they provided no proof that any of them were false, completely ignoring some of the more serious allegations.

Instead, SafeMinds’ response was a hodgepodge of outright falsehoods, obfuscation, and straw man arguments. The organization claimed to have developed a “professional relationship” with the House Committee on Oversight and Government Reform (COGR). Who knows what they mean by that? What SafeMinds never addressed, however, was the fact that no one from the organization was present when COGR Chair Darrell Issa committed to holding hearings on autism causation and the vaccine program in a May 18, 2012 meeting with other congressmen, congressional staffers and Dr. Brian Hooker.

The following claim by SafeMinds is completely false:

“When SafeMinds became aware of allegations our organization inappropriately represented ourselves or used undue or untoward influence with congressional staff at the COGR to create desired outcomes, we immediately began an investigation.”

Within my own article, I quote Dr. Brian Hooker when he brought this issue up to SafeMinds' Executive Director Eric Uram on December 18th:

“I tried to explain this to Eric Uram, but he used a lot of double-speak on the phone to deny it.”

This is hardly an immediate investigation.

Continue reading "Jake Crosby: "SafeMinds Ignores Major Allegations While Replying Dishonestly to Other Charges"" »

Anne Dachel

Dachel Media Update: Newtown Child, Genetic Test, Who Needs Cure?

Online news

Feb 24, 2013, Boston Globe: Parents of girl killed in Newtown talk about life with, and without, their daughter, Joey Gay

Feb 24, 2013, Fox13 Salt Lake City: New genetic test may improve autism diagnosis

Feb 24, 2013, Seacoastonline.com: Helping autistic children Portsmouth, NH

Feb 23, 2013, Boston Globe: Schools seek budget increase

Feb 23, 2013, ABC Local, Brentwood, CA: Brentwood school district suspends Superintendent

Feb 22, 2013, My Fox Detroit: Oakland University hosts autism summit

Feb 22, 2013, UK Guardian: Kristina Chew asks "Do we really need a cure for autism?" 

Boston Globe

"It was Joey who took up the most room in the family of five. She was autistic and did not speak. She had apraxia, a central nervous system disorder that impaired her movement. She sometimes struggled with balance, and would often trip and fall. But she was affectionate, sweet, and funny, and communicated in her own way."

Too sad for words.

Fox13 

"A new genetic test may lead to a more accurate diagnosis for individuals with autism spectrum disorder by looking at key genetic markers.

"Geneticists say that a more accurate diagnosis leads to better treatment and support because families know more about what they're dealing with. The new test is a product of a Utah company called Lineagan."

"Michael Paul, Lineagan, said genetic testing makes sense for autism and related conditions.

"'Autism at its base is highly genetic in nature,' he said. 'Some studies have estimated that up to 70 to 80 percent of autism is genetic in nature. That doesn't mean there's not environmental component."'

I guess these people didn't heard about study of  400 twins in 2011 that showed genetics was only about 37 percent of the risk factor.  No matter, it's more people making a living off of the autism disaster.

Seacoastonline.com 

"A sudden regression is one common sign of autism. While Elijah seems to be developing nicely, his parents are watching closely for signs of backsliding."

'For unknown reasons, ASDs are almost five times more common among boys than girls. It can be hereditary but it also appears in families where there is no history of the disorder."

More of the mystery of autism.  Sudden regression.  Loss of speech.  That 's just the way it is.  I did post comments.  They haven't appeared yet.

Continue reading "Dachel Media Update: Newtown Child, Genetic Test, Who Needs Cure?" »

Cathy Jameson

Setback Step-Up

Upset over a setbackBy Cathy Jameson

Mid-week last week I got a phone call from the nurse at Ronan’s school.  It hadn’t been more than half an hour since I’d dropped Ronan off when I saw the school’s phone number flash across my caller ID.  The worst emotion comes over me when I see that phone number: heart-pounding, drop-dead dread.  

Of course, I shouldn’t think the worst.  It could be Ronan’s teacher calling to ask me to pick up snacks for Ronan while I’m out shopping.  Or it could be a reminder about an upcoming IEP meeting.  But, I always know when it’s the school nurse.  And, I can always tell when something awful just happened.

Barely audible, I answered, “H-e-l-l-o?” 

Please don’t be anything wrong.  Please don’t be anything bad.  Please not an accident.  Or a seizure.

“Hi, Cathy.  It’s the school nurse.”

I braced myself, my body shrinking as I unconsciously curled up waiting for her to continue. 

I pressed the phone as close to my ear as possible, “Yes?”

I already knew in my heart what happened, but I still prayed. Please, oh please, oh please!  Please don’t let it be serious.

“Ronan’s just had a seizure….”

In my mind, I’ve already put the car in drive, have raced to the school and am holding Ronan in my arms.

“Oh, no!” I exhaled.  As I release the air I’ve trapped inside, new emotions fill me—sadness, fear and worry. 

“I’ll be right there.”

As I drove toward the school, the nurse shared more.  She described the duration of the seizure, what Ronan did before, during and after, who was with him and how he’s responding now.  Thankfully, Ronan is okay, but I still need to see him.  To hug him.  To tell him that I love him.  And to say how sorry I am that he had another seizure.  I asked the nurse to tell Ronan that I was on my way and that I’d be taking him home for the rest of the day. 

The closer I got to Ronan’s school, the harder it was to keep from crying.  This wasn’t his first seizure or the first seizure at school.  I’ve gotten calls like this before and go through a mix of emotions.  Sometimes I manage to hold it together until hours later, and other times I silently cry while the nurse is still on the phone with me. 

As scared as I am when I get these calls, this one had me worried, but, I still didn’t cry right away.  I could have easily burst into tears the second the nurse told me what happened. Or while she described how this seizure seemed different than the last one Ronan had.  Or while I pictured Ronan’s teachers gathering around him to help him through it.  Or how I imaged how they stayed very close to him afterward.  Thinking about Ronan did after this seizure is what started the tears.

Ronan is usually either confused after a seizure or jumps right back into whatever he was doing prior to it.  This time, immediately afterward Ronan was able to sign that he wasn’t feeling good.  He signed his response which is something Ronan’s never done with me after a seizure.  When he was asked if he was okay, he was able to tell someone that no, he wasn’t.   So, when I imagined Ronan and his teachers who asked, “Ronan, are you okay?” and he signed, “No,” I was overcome.  Not only did he respond quickly, but when they asked him a few minutes later if he was okay he again signed, “No”.  He knew, and he was able to express himself clearly.  This was a first, and was also a breakthrough in his communication. 

As I approached the school grounds, through the tears I wondered why.  Why Ronan?  Why now?  Why, after these last few weeks?  He’s made some really neat progress, and he’s been happier.  He’s been willing and able to do more.  Why?  Why after frequent successful school reports and after advancements at therapy.  Why now?  And, why again? 

Continue reading "Setback Step-Up" »

Anne Dachel

Thinking Mom: "How I Gave My Son Autism"

Stories for thinkingThe Thinking Moms' Revolution website put out an amazing piece on Feb 20, 2013. (And seriously, the mothers in the autism community are the smartest women around since they're dealing with a disaster that the world has yet to recognize.) 

It's by someone named only as "Mountain Mama."  The title is heartbreaking.  She calls it, How I Gave My Son Autism. 

Mothers who understand the real reasons behind that autism epidemic will easily identify with what's written here. 

"I am admitting here for all the world to see: I gave my son Autism. I did it. Me. And no one can ever take that away."

Mountain Mama continues,

"So . . . how did I give my son autism? I wish I could say it was one thing - one thing that I could take back that would make things neat and easy, but it wasn't. It was mistake after mistake, assault after assault. The following are the biggest mistakes I made to which I attribute my son's descent into autism. I'm going to provide links that are easily readable and understandable that contain links to the research rather than providing links to the research itself. A simple Google search about any one of these topics will provide more information than you could ever want. Here goes . . ."

Then she lists the recommended products, medical procedures, and drugs that are harming the health of children.  This is a list of items familiar to lots of moms.  They trusted.  They believed they were doing the best for their kids.  They believed these things were safe. 

Our children are more fragile than ever.  Our schools are filled with kids on behavior meds for ASD, ADD, ADHD, and more, kids with asthma, allergies, diabetes, seizure disorders and the list goes on and on.  Health forms take up several pages now because there are so many things wrong with kids today.  While health officials and mainstream medicine have yet to notice all the sick kids everywhere, moms know the truth.

Anne Dachel is Media Editor for Age of Autism.

John Stone

HMS Brian Deer holed beneath the waterline?

John Stone

On the ninth anniversary of the publication Brian Deer’s original allegations against Andrew Wakefield in the Sunday Times (22 February 2004) the journal Nature has been forced to remove derogatory and misleading comments from the web by Deer about whistleblowing scientist Dr David Lewis, which have stood since November 2011. Deer’s insinuations against Lewis were provoked by Lewis’s defence of the research integrity of Wakefield’s controversial paper ‘Ileal-lymphoid-nodular-hyperplasia, non-specific colitis and pervasive development disorder in children’  against the reformulated allegations of Brian Deer against Wakefield in BMJ in January 2011.  While the British MedicalJournal refused to publish Lewis’s report except in a highly censored format, it commenced the unravelling of Deer’s account, first of all with the report of Eugenie Samuel Reich in Nature, and then in 2012 with the High Court exoneration of  Wakefield's colleague Prof John Walker-Smith and the decision of University College London not to investigate the Wakefield affair further on the advice on the United Kingdom Research Integrity Office (UKRIO) . 

The removal follows on a letter – shortly to be published on-line  - from Dr Lewis’s attorney, F Edwin Hallman Jr, to British Medical Journal where a more elaborate version of Deer’s allegations appear. An earlier letter in a similar vein was written on behalf of Dr Lewis to by Stephen Kohn to La Crosse, University of Wisconsin, where Mr Deer was invited to give talks last October.

The question arises how much longer the British establishment can go on supporting Deer’s allegations? It is clear that they began to get cold feet before the General Medical Council hearing againstAndrew Wakefield and colleagues in 2005-6, taking their cue from an article Ben Goldacre in the Guardian newspaper, which was followed by editorials in the Independent, New Scientist, Spiked-online and BMJ calling for the prosecution to be called off , and that bad feeling has existed between Deer and Goldacre since . Now, what the present writer once dubbed “the Boseley problem” looms large:

“The almost unavoidable conclusion is that large sections of the British media have always known that the “Wakefield” prosecution was based on an imposture, and have been holding their silence in contempt of fair reporting and of the public at large, and that these people are much more concerned about their own backs than they are about our children”.

Anne Dachel

Dachel Media Update: Autism Gap, Schools, Flu Vaccine

Online newsFeb 22, 2013, WXIA-TV Atlanta, GA: The Autism Gap: What Works

Feb 21, 2013, MI NBC: Lt. Gov. Calley: autism insurance reform will help families

Feb 21, 2013, Albany (NY) Times Union: Needs for School-Based Education Services Increase as Autism Rate Rises

Feb 21, 2013, NBC News: Flu vaccine barely worked in seniors

Feb 20, 2013, LifeHealthPro: HHS leaves autism hot potato in state hands

Continue reading "Dachel Media Update: Autism Gap, Schools, Flu Vaccine" »

Anne Dachel

Dachel Media Update: Recovery, Females Protected, Schools

Online news

Feb 20, 2013, Rocky Mount, Virginia--Franklin News Post: School board to review comprehensive autism plan

Feb 19, 2013, San Jose Mercury News: Recovery from autism

Feb 19, 2013, Montreal Gazette: Opinion: The tragic myths about vaccines

Feb 19, 2013, Boston Globe: Girls may be protected against autism, new study finds

Continue reading "Dachel Media Update: Recovery, Females Protected, Schools" »

Dr. Andrew Wakefield

Banned Wakefield Films From British TV Emerge on Youtube After Nearly a Decade

Dreamstime_55921591Three controversial television films suppressed as part of the continued persecution of Andrew Wakefield are now available to watch on YouTube. The drama ‘Hear the Silence’ starring Hugh Bonneville as Andrew Wakefield and Juliet Stevenson as a mother trying to find the truth about what happened to her child was seen once on British television in December 2003 and then disappeared. Two months later the allegations of Brian Deer began to appear in the media. It has now been posted on the web by ‘ScienceIsrael’ in the original English with Hebrew subtitles.



http://www.youtube.com/watch?feature=player_embedded&v=rT-2S7L-N9c

Recently Kathleen Yazbak recalled her involvement in the film:

“Our family's autism journey has been challenging and humbling, like that of the many who have tread the same path. We were fortunate to have the ear of an amazing screenwriter [Tim Prager] who also dug deep with his own independent research of the situation and engaged countless others so this story could be told and the movie created. It is our hope that parents and grandparents try to make a difference in the dialogue about autism.”

When it was first screened the British radical investigative journalist, Paul Foot, wrote in the Guardian:

“Last week's Channel Five programme Hear the Silence about the MMR controversy was one of the best dramas I have seen. It was not just a moving true story, beautifully acted. It was also a shocking indictment of the medical establishment. A group of parents were confronted with the fear that their children had become autistic after having the triple vaccine for measles, mumps and rubella. A responsible authority should surely take such fears seriously and deploy the full extent of scientific research to testing the fears, if only to allay them. The reaction of the authorities was exactly the opposite.

"The one senior doctor who took the parents seriously, Andrew Wakefield, had his research stopped and was effectively banished to the US. Despite his record as an often published scientist, he was widely smeared. Legal aid for the parents to sue the government was cut off.

"On the programme, the two sides confronted each other. On the parents' side there was anguished concern, backed by sober science from Wakefield. On the other was outraged impatience, led by two slightly fanatical GPs, including Evan Harris, the Liberal Democrat MP for Oxford West. He insisted there was no link between autism and MMR, and loudly failed to prove that this was so. Instead, he went some way to proving the time-honoured medical principle that doctors know everything, and patients nothing."

Continue reading "Banned Wakefield Films From British TV Emerge on Youtube After Nearly a Decade" »

Current Affairs

The Canary Kids Film Project: How to Stop the Autism Epidemic in Its Tracks

  Canary kids logo
By Beth Lambert

I believe that we have the power to stop the autism epidemic in its tracks.  In order to do this, we must increase the number of people who understand the root causes of the epidemic.  We must increase the number of people who understand that we are all touched by this epidemic.  So how do we increase the number of parents and citizens in this country who understand what is happening to our children? How do we accelerate their learning?

We live in a media age.  It is time for a big media solution.  It is time for a ground-breaking, paradigm-shifting film, made by an award-winning director, that will raise awareness in a meaningful and powerful way.  A film that connects the dots for people.  A film that shows how all children in this country are a part of the autism epidemic.  A film that can be seen in theaters across the country.

I present to you, Canary Kids:  A Film For Our ChildrenThis is a documentary film that is being funded by us, the parents, the scientists, the writers, the advocates, the people who “get it,” who want everyone else to “get it” too.  But we need your help.

 

A New Age, A New Solution

In 2012 The Norman Lear Center at USC Annenberg, a top research and policy institution focusing on the impact of entertainment and media on society, released a research study that answered the following question: Do movies have the ability to change people’s behaviors?  By using the documentary film, Food, Inc. as a case study, the answer they found was a resounding: Yes. They did a controlled study and found that after people watched Food Inc. they were significantly more likely to:

  • encourage their friends, family & colleagues to learn more about food safety
  • shop at their local farmers market 
  • eat healthy food 
  • consistently buy organic or sustainable food[1]

So imagine the statistics coming out upon the release of Canary Kids:

People who watched Canary Kids were more likely to:

Continue reading "The Canary Kids Film Project: How to Stop the Autism Epidemic in Its Tracks" »

Anne Dachel

Dachel Media Update: CT Vet In Doghouse over Vaccines, Isolation Rooms, Kyle's Law

Online news

MARCH 2013, Chicago Magazine: When Autistic Children Are Children No More

Feb 18, 2013, WFTV-Orlando FL: Autism Answers: A Married Couples' Mission

Feb 18, 2013, KTAR-TV Phoenix, AZ: Lawmaker wants parental consent for isolation room use

Feb 17, 2013, CBS-MN: Abuse Report At Rochester HS May Not Have Followed Kyle's Law

 Feb 16, 2013, Stamford Advocate: Stamford vet at center of vaccination debate

Continue reading "Dachel Media Update: CT Vet In Doghouse over Vaccines, Isolation Rooms, Kyle's Law" »

Julie Obradovic

The Recovery Room: Why Recovery Matters

And-then-whatBy Julie Obradovic

Sitting in the waiting area of the barbershop, I grabbed the March issue of Chicago Magazine to read. The cover boasts a list of the top 100 most powerful Chicagoans with Mayor Rahm Emanuel on the front. My husband just had a luncheon with the mayor last week (along with several hundred other people), so I thought I’d take a look to see who else made the list and ask him if they were there too.

I never saw it.

Not a few pages in, I came across a feature titled “When Autistic Children are Children No More” that stopped me from flipping further. It was a lengthy profile of the plight of three Chicago area families now trying desperately to provide services for their children with autism aging out of the school system.

A summary of the story is provided on the Chicago Magazine website.

When Autistic Children Are Children No More - Across the country, an estimated 300,000 kids with autism will hit adulthood in the next decade. It’s a social crisis in the making, with few resources currently available to help autistic adults become self-sufficient after they age out of government-funded services. Only about 6 percent of adults with autism work full-time and many lack the skills to live alone, so the burden falls on parents and grandparents to find adequate support services for their loved ones. We look at three pioneering Chicago-area families who are rolling up their sleeves to create a better future for developmentally disabled adults.

Not only was it remarkable to see this kind of reporting, it was also remarkable to read the way the problem was being described, “a social crisis” and “looming tsunami” being a few. It’s unusual for a mainstream magazine to refer to the impending catastrophe as such; for a while, I kept checking that Anne Dachel wasn’t quoted somewhere within it. She very well could have been the author.

Most profound, I believe, was the large table provided for the reader entitled, “A Looming Tsunami”. Going back a few decades and forward one more, it demonstrates irrefutably what the past, present, and future look like in terms of people with autism needing services. Suffice it to say it’s startling, and even more startling perhaps, that the author warns the reader these aren’t even the real numbers. Children in private school settings were not included.

Continue reading "The Recovery Room: Why Recovery Matters" »

Anne Dachel

Dachel Media Update: Cure, Folic Acid, Flu Shots

Online news

Feb 17, 2013 Ottawa Citizen: Autism's New Frontiers PART 2: 'The bridge to nowhere'

Feb 16, 2013, Calgary Herald: Autism: The race to discover a cure

Feb 16, 2013, WSAZ-TV Charleston, WV: Research on Autism Drug Taking Place in Charleston

Feb 15, 2013, PBS: Can Folic Acid Reduce the Risk of Autism?

Feb 14, 2013, The Reflector (U of MS): Flu vaccine needed to stay healthy

Feb 14, 2013, Somerset, PA: More info on vaccines

Feb 12, 2013, NBC Nightly News: Folic acid in pregnancy may reduce autism risk

Continue reading "Dachel Media Update: Cure, Folic Acid, Flu Shots" »

Teresa Conrick

Cuckoo for Coconut Oil

CoconutBy Teresa Conrick

While channel checking one recent night, I became interested in a story about a man who seemed to have had a slowing down of his Alzheimer's symptoms by adding coconut oil into his daily diet. Many doctors who work with patients who have an autism diagnosis and immune dysfunction, have been recommending coconut oil for a number of years and it is also helping in other immune system disorders. It was this video that over five million viewers watched:

"Out of all the videos viewed on our CBN News website last year, the most popular by far showed how coconut oil helps some Alzheimer's patients. More than 5 million people watched it.

Now, some heavy-hitters within the Alzheimer's medical establishment are also taking notice.
The video told the story of Steve Newport, whose Alzheimer's symptoms reversed after he started taking coconut oil.

His wife, Dr. Mary Newport, a Florida neonatologist, documented her husband's astounding progress in her book, Alzheimer's Disease: What If There Was A Cure?

......Here's how it appears the coconut oil works. In patients with Alzheimer's, insulin resistance prevents their brain cells from accepting glucose, their primary fuel. Without it, the cells die.
But there is an alternate fuel known as ketones, which cells easily accept. Ketones are metabolized in the liver after eating coconut oil..........Insulin resistance doesn't just affect people with Alzheimer's but also folks with dementia, multiple sclerosis, diabetes, Parkinson's, ALS, even autism."

That sounds interesting and promising but the insulin/ketone connection seemed to me, to be just the tip of the iceberg. It appears that coconut oil could be helping in other ways. The ketone connection seems to help through this mechanism:

"Dietary protocols that increase serum levels of ketones, such as calorie restriction and the ketogenic diet, offer robust protection against a multitude of acute and chronic neurological diseases. The underlying mechanisms, however, remain unclear. Previous studies have suggested that the ketogenic diet may reduce free radical levels in the brain. Thus, one possibility is that ketones may mediate neuroprotection through antioxidant activity....Ketones also significantly decreased mitochondrial production of reactive oxygen species and the associated excitotoxic changes by increasing NADH oxidation in the mitochondrial respiratory chain.... ketones reduce glutamate-induced free radical formation by increasing the NAD+/NADH ratio and enhancing mitochondrial respiration in neocortical neurons. This mechanism may, in part, contribute to the neuroprotective activity of ketones by restoring normal bioenergetic function in the face of oxidative stress."

Continue reading "Cuckoo for Coconut Oil" »

Cathy Jameson

Tea for Two

Precious moments teaBy Cathy Jameson

One of my favorite t-shirt I had when I was younger was light pink with a Precious Moments character.  It had this saying on it: Tea for Two, Two for Tea.  One for you, One for Me.  I loved that shirt and wore it until it was too small for me.  I was reminded of it while waiting for an appointment to start one morning.   Ronan and his two little sisters were with me that day.  Since Izzy and Lil Sis are all too familiar with waiting rooms, which they frequent while Ronan goes from one specialist to the next, they knew it could be awhile before we were called back.  They found the waiting room toys quickly and began to play.  Ronan, who isn’t yet fully interested in toys or playing, used the dry erase board in another corner of the room.  I wrote some words Ronan knew and asked him to write some also.  After he’d signed the words I asked him to identify, Ronan finger spelled words that he wanted me to write.  Not too long into our activity we were interrupted by Izzy when she called to me, “Mom!  We’re ready (giggle giggle); you sit here (pointing to a spot on the rug).  We’re having a tea party!”  The girls had set up a cozy tea party right behind me and now expected my full participation.

Since Ronan’s attention span is still short I planted myself where Ronan could continue to write, where I could keep my eye on him and where I could have a “bite” of the tasty treats my little girls had set before me.  Well, before I had fully settled at this tiny feast on the rug, Ronan came over and sat in my lap.  He looked at the spread of plastic bowls, colorful plates and miniature food pieces and grabbed a plastic chicken leg.  I was curious to see what Ronan would do with it and was then shocked as he lifted the chicken leg to my mouth as if asking me to take a bite of it.  I said thanks and tried to grab it from his hand thinking he was giving it to me.  Ronan wouldn’t let go but instead put the chicken leg right at my lips.  He kept it there and waited.  I tried to say thank you and reach for it again, but Ronan wouldn’t let go of that chicken leg.  What was he doing?  Sitting there so close to me waiting very intently, it took me just another second before I realized ohmygoodness!  He wants me to “eat” it!  I pretended to take a bite while reaching for the chicken leg to put it back on a plate.  Nope, that wasn’t it.  Ronan left that chicken leg hovering in the air. 

My pretend eating was not enough.  Ronan kept the chicken leg poised at my mouth now moving it gently closer to me.  Ronan insisted I do more, but what?  Staring straight into my eyes, I looked right back at him.  Wishing that intense stare had directions with it, I thought, “Tell me, little boy.  Tell me what to do.  You know Mommy would do anything for you.”  I opened my mouth and pretended to take an even bigger bite, but still, Ronan’s reaction, or lack of one, told me there was something more he wanted me to do.  My mind was doing cartwheels at this pretend cooperative play and his focused interest.  Think!  What am I supposed to do?  Normally I’m the one waiting for Ronan to respond.  This time, I was being tasked with something that felt impossible. 

Not wanting to disappoint, or to ruin the wonderful pretend play Ronan was finally interested in, I leaned forward toward the chicken leg that Ronan was holding tightly to.  Still staring at me, his eyes pierced mine.  Oh!  “Yum,” I blurted out.  “Thanks, Ronan. YUM! YUM!!!”  Finally satisfied, Ronan took the plastic chicken leg away and put it back on the plate. 

Continue reading "Tea for Two" »

Kim Stagliano

Old Timers and ARI

ARI logo FebBy Kim Stagliano

If you aren't subscribed to the ARI newsletter, we have a preview for you below. For many of us old timers, ARI was our first and best course of hope for our kids.  We whispered in Yahoo groups, "What is a DAN! doctor and how do I find one?"  My girls' first biomed doc was an elderly allergist who knew Dr. Bernie Rimland personally.  Today, many young autism parents might not even know the name Dr. Rimland. He's the doctor who dispelled the refrigerator theory and searched for medical treatments for his own son, thus creating ARI for all of our kids. He also founded The Autism Society of America.  His death in 2006 was a stunning blow to the community.

As the years have rolled on, it's easy to forget our community's roots. And to ignore the accomplishments of the people who used a machete in the rain forest to create a trail for us to follow.  The moms and dads, men and women, and doctors who put their careers, personal lives and asses on the line day after day because their kids, your kids, my kids came first - enduring political and media beatings over and over.  Accepting an inch, going back into the trenches for a mile.  These folks were working long before I first sat in front a computer in a Yahoo group that introduced me to other parents like me.

Thank you to ARI, to all of our friends and colleagues in the autism community from coast to coast and around the world, working in their own niche - the autism life is not an Emily Post sponsored event. That's OK.  I tuck in three kids with autism every night.  You probably tuck in one or two of your own. That makes us bedfellows.  The cliche stands - Rome wasn't built in a day. But neither did Rome fall in a day.  Or a decade.

Subscribe to the ARI newsletter HERE.

From Steve Edelson:

I hope subscribers living in the northeast are safe and warm after last weekend's blizzard. Our thoughts are with you.

Much is happening at the Autism Research Institute (ARI) these days. We just published the book Nutritional Supplement Use for Autistic Spectrum Disorder, written by Dr. Jon Pangborn. In addition, last week Carnie Wilson raised awareness about autism as well as funds for ARI on the Food Network show, Guy vs. Rachel: Celebrity Cook-Off. See articles below.

Continue reading "Old Timers and ARI" »

Anne Dachel

New Movie The United States of Autism Coming Soon

By Anne Dachel

I've used the phrase, the United States of Autism, a number of times, usually because I'm frustrated over all the passive acceptance of autism.  The stories in the news are endless.  Autism is talked about as if we don't dare to ask where all the disabled kids are coming from--autism is now just a way of life in this country.

Others are using the phrase in a real attention-getting way, as the title of a new movie about the face of autism across America.  I saw this report on the film on Feb 11, 2013, on KMEG-TV Sioux City, IA.    This coverage featured dedicated autism activist, Lin Wessels and her son, Sam, from Rock Rapids, IA.    

The website for the movie gives us an idea of what it's all about. 

Director Richard Everts and his crew covered 10,000 miles talking to families and individuals living with autism.  It sounds like a very personal view from those directly affected.  It also sounds like people with a lot of different opinions on autism will be allowed to speak. 

I can't wait to see this movie. 

Trailer: http://www.youtube.com/watch?v=td1pxNXNjjU

Anne Dachel

Dachel Media Update: Prenatal Vitamins, ABA "Unproven" To Avoid Insurance

Online news

Feb 14, 2013, Salt Lake City Tribune: New Utah state senator brings medical expertise 

Feb 12, 2013, Forbes: More Prenatal Vitamins Could Mean Less Autism, Study Says 

Feb 12, 2013, Minneapolis Star Tribune: Minnesota urged to cover unproven autism care

Continue reading "Dachel Media Update: Prenatal Vitamins, ABA "Unproven" To Avoid Insurance" »

Current Affairs

Win a Heart of An Angel Necklace from The Puzzling Piece!

Heart of an angel purpleToday is the day for love. Lord knows, everything we do is about our love for our kids and our committment to helping them. 

Are you eating some special candy today?  Making a favoritedinner or dessert? Got a date with your significant other? Doing laundry and preparing GF foods for the kids? (Raises hand.) 

Thank you to Melissa at The Puzzling Piece for offering us a beautiful heart necklace for a lucky AofA reader.  Leave a comment to enter the contest.   Good luck and Happy Valentines Day, friends. 

Current Affairs

You'll Love This Couples' Deal for Autism One!

Autism One Valentine

Great opportunit for Mom and Dad, best friends, travel mates!  Learn more and register AutismOne.org.
Anne Dachel

Dachel Media Update: Autism and Schizophrenia, Georgia Coverage

Online news;;  Feb 12, 2013, TIME: Autism and Schizophrenia May Develop During Short Period of Time in Infancy

Feb 11, 2013, WJBF-TV Augusta GA: Local Representative Fights for Autism Coverage

Continue reading "Dachel Media Update: Autism and Schizophrenia, Georgia Coverage" »

Sponsor News

SafeMinds & the House Committee on Oversight and Government Reform

Safeminds againHuntington Beach, CA 2/13/2013

February 12, 2013 – A few bloggers from inside and outside the autism community recently took potshots at efforts by SafeMinds to increase awareness in Congress of the causes of the autism epidemic including the role of vaccines.  SafeMinds offers the following response to these divisive comments. We are proud of our record and accomplishments working with Congress in the past 12 years and our refusal to back off from uncomfortable topics like vaccines.

Over the years, SafeMinds has established a professional relationship with the House Committee on Oversight and Government Reform (COGR) due to its ongoing interest in autism.  Since 2000, six SafeMinds board members have testified before COGR, its precursors or subcommittees, in hearings regarding mercury, vaccines and the autism epidemic. The most recent hearing took place on November 29, 2012. SafeMinds was asked to testify and Mark Blaxill represented us. We consider this hearing to be a positive step forward. The feedback on the hearing that we received both publicly and privately was overwhelmingly positive and supportive. Due to the efforts of parents who brought their injured children to the hearing room, Committee members got a firsthand look at the devastation impacting hundreds of thousands. Several Representatives commented on how many constituent families had been in touch with them about the hearing – many of them mentioning vaccine injury specifically.  Members were able to see for themselves how ineffectual Federal agencies have been. Vaccines and autism were linked repeatedly in the congressional record.

Still, critical comments have surfaced about SafeMinds and this hearing. Those which deserve a response have come from Dr. Brian Hooker and Jake Cosby, two members of the autism community whose long-standing contributions to critiquing the government's response to autism's causes have been valued and important. When SafeMinds became aware of their allegations that our organization inappropriately represented ourselves and used undue influence with congressional staff at the COGR to create desired outcomes for this hearing, we immediately began an investigation. 

Brian spoke to us directly and expressed his concern that we maneuvered to block him from testifying, which we did not do. SafeMinds spoke directly with the Congressional staff responsible for organizing the recent autism hearing to ensure that there had been no misunderstanding. Our contact there assured us that nothing undue or untoward occurred in conversations between the Committee and SafeMinds.  He concurred with our internal view of events that at no time did SafeMinds misrepresent our organizational affiliations to congressional staff, nor did we or any of our affiliates seek the recision of Brian Hooker’s invitation to testify before the COGR. We did make a request that SafeMinds be allowed to testify on the panel. 

Jake has criticized us for going light on the vaccine issue. Mark covered vaccines in his written testimony[1] hammered the government on its denial of the epidemic in his oral testimony and reintroduced these issues pointedly during the questioning by Committee members, calling them the “Great Unmentionables, vaccines and mercury, as causation factors”.[2]  Committee members had been briefed by many members of the community including SafeMinds and Brian, so they knew what to ask. Members did an incredible job and we thank them. 

Continue reading "SafeMinds & the House Committee on Oversight and Government Reform" »

Current Affairs

Ask Belisa Balaban and Evan Shapiro of Participant Productions To Add Autism Reality Program

Go Talk PleaseMove over Honey Boo Boo - we bring you, Honey Poo Poo and The Autism Team.

If you're like me, you're tired of the media portrayal of autism as a Swiss army knife of gifts wrapped in designer clothing none of us can afford and gently bathed in a  blue light.  It's disrespectful to our children who are severely impaired, and it has meant far less real attention to the plight of families crushed by the impact of autism.  Children with every type/severity of autism deserve to be acknowledged and families need to know that help and treatment are real.  It's great to show all the things kids with autism can do - but we need a full inclusive picture of how we can help impaired kids move forward.

We can bring Autism Reality TV to the nation.     Autism Media Channel has created a reality television show that needs a home on every TV in the nation.  Heck, around the globe. Participant Productions, known for it's willingness to tackle tough subjects, is launching a cable channel - we invite you to help ask them to include Autism Team TV in their programming.

1)  Go to Participant Productions HERE.

2) Fill in your details in the right hand panel.

3) Write a brief message, specifically to Belisa Balaban and Evan Shapiro saying why Participant's new cable channel - due to launch in Summer 2013 -  should run The Autism Team series. Please tell Participant what it is like living with autism or how autism has affected you. Please emphasize how The Autism Team can help. Participant wants to screen issues that are important to society, that, "move the needle." Autism is that issue!


 

Anne Dachel

Dachel Media Update: Brain Surgery, Free Autism Screenings

Online newsFeb 11, 2013,  KMEG-TV Sioux City, IA: The United States of Autism: Film Debut Features Iowa Family

Feb 11, 2013, NY Daily News: Include autism in medical curriculum: Health minister

Feb 10, 2013, NJ.com: Children's Specialized Hospital to offer free screenings this week

Feb 10, 2012, West-info.eu: Brain surgery to treat autism

Continue reading "Dachel Media Update: Brain Surgery, Free Autism Screenings" »

Natalie Palumbo

PSA Natalie Palumbo Autism Sibling "I am the 88 My Brother is the 1."

NP Ant  Nat Ferris WheelManaging Editor's Note: "I am the 88, my brother is the 1."  A powerful Public Service Announcement by Natalie Palumbo that should run on every TV channel, FB page and Twitter account in the country. It serves as a reminder of why we get out of bed every day and put on our game faces. For our "1" - even if we have 3.  Please share this post widely.

By Natalie Palumbo

I am 18, a senior in high school, and the sibling of an older brother with low verbal autism.  I am a visual arts student planning a career in visual effects and computer animation.  This Public Service Announcement was made as an assignment for my Media Arts class.  We were allowed to choose our subject, so I chose the one most personal to me.   My teacher loved it, and encouraged me to share it here.  I am grateful to Age of Autism for the information they share, and the opportunity to share my sibling voice on behalf of my brother. 

Sponsor News, Treatment, Treatment

Leucovorin Study for Autism

Lee SIlsbyManaging Editor's Note:  We are proud to share with you that  Lee Silsby Compounding Pharmacy in Cleveland, Ohio, is supplying the Leucovorin for this study below. Alan Israel, lead pharmacist, has been a leader in our community to ensure safe, effective biomedical treatments for our children. On a personal note, Lee Silsby was the first pharmacy I ever used for girls' back in 2001 and I've never forgotten their customer care and attention.  Thank you, Alan and the staff at LS.  KRS

A Folinic acid intervention for ASD

Dr. Richard Frye is conducting an exciting study on the impact of a daily treatment of folinic acid on ASD-related symptoms. The hypothesis is that an folinic acid will improve folate metabolism in the brain, oxidative stress and mitochondrial function in children with autism, resulting in specific health improvements for patients with autism, a discovery that would be very welcome by the autism community.

Lee Silsby Compounding Pharmacy has been selected as the sole supplier of Leucovorin (folinic acid) for the study. Alan Israel, R. Ph., the lead pharmacist at Lee Silsby, stated that the biomedical community can benefit greatly from more research and that he is willing to help out as much as possible. To his credit, Lee Silsby Compounding Pharmacy has agreed to provide folinic acid for both the double-blind placebo-controlled portion of the trial as well as the open-label portion of the trial at no cost to the patients in the trial.

Dr. Frye’s current proposal can potentially provide strong evidence for a folinic acid intervention and will provide insight into the subgroups of children with ASD who would benefit from folinic acid.  The primary goal is to improve language for those with ASD (which is measured by the receptive and expressive CELF language index). Preliminary studies have suggested that a folinic acid intervention is associated with receptive and expressive language improvements. For example, in a case-series of 44 children with ASD and the folate receptor alpha autoantibody, treatment with high-dose folinic acid (2 mg/kg/day divided twice a day; maximum dose 50mg / day) improved communication, attention, and stereotypical behavior in many children with ASD.

Folate is an essential B vitamin required for normal neurodevelopment.  Defects in folate metabolism can cause secondary physiological abnormalities, some of which have been associated with ASD.  In this study, Dr. Frye and his team aim to study several physiological mechanisms associated with folate abnormalities in children with ASD: the folate receptor alpha autoantibody that reduce folate transport across the blood-brain barrier, low glutathione redox status, mitochondrial dysfunction and genetic polymorphisms. Most importantly, ASD patients with these physiological mechanisms have shown improvement in ASD symptoms with a folinic acid intervention.

Continue reading "Leucovorin Study for Autism " »

Dachel Media Update: Autism Fetal Scans, Eating, Rising Numbers

Online news 

Feb 10, 2013, IBTimes UK: Health Babies Scanned in Womb Unlock Secrets of the Brain UK

Feb 10, 2013, Wisconsin State Journal: Waisman Center's four decades of research changes lives

Feb 9, 2013, Toronto MetroNews: Rising numbers of children with autism prompts Ontario review | Metro

Feb 9. 2013, Washington Times: Childhood vaccines safe, says Institute of Medicine 

Feb 9, 2013,  US News: Don't Overlook Eating Issues Tied to Autism, Study Warns

Feb 9, 2013, Philadelphia Inquirer: New Calif rule would get toxins out of our couches

Feb 9, 2013, Worcester Telegram: Jenny McCarthy debuts VH1 show 

Feb 8, 2013, New York Daily News: South east Asian nations to discuss autism

Feb 8, 2013, Health Day: Infants' Inattentiveness Might Signal Later Autism, Study Says

Feb 8, 2013. NBC News: Flu shot ingredient eyed for narcolepsy link

Continue reading "Dachel Media Update: Autism Fetal Scans, Eating, Rising Numbers" »

Kim Stagliano

If CDC Were In Charge of Snow Removal

Deck snow'By Kim Stagliano

On Friday a blizzard struck the Northeast with outrageous force. Think "Hurricane Sandy" during the throes of her worst PMS with no chocolate in the house while in a freezer. That.

I live in Fairfield County, CT. We can see Long Island across the Sound.  New York city is a commuter train away. We are considered civilization on most maps.  However, this storm packed 34.5" of snow and hobbled snow removal efforts.  As of Sunday afternoon, much of the town remained unplowed, including my street. That said, we're warm and dry, never lost power and have enough baking supplies to rival the Keebler Elves' Hollow Tree - so we're good.

Our town Facebook pages are full of angry citizens though - shaking their cyberfists at the town that has not miraculously cleared out this snow fast enough. One woman went so far as to say, "I have to get to New Jersey tomorrrow! We're going on a cruise!"  I sent up a prayer she got out, and that an iceberg was developing in the Atlantic.

Like many of us who read AofA, I have a child with autism. Three as you well know. I suppose that the trials and tribulations of life in the autism trenches for so long as made me brush off petty inconveniences like being trapped in my house for 3+ days with snow drifts taller than my husband.   At one point I got a bit delusional though - perhaps after listening the the Barney Theme Song for the 99th time on YouTube.  And I went into a reverie - what if the CDC were in charge of snow removal in my town....



Kim: "Hello, town? I have an emergency.  I'd like to report 34.5 inches of snow on my street and ask you to remove it, please."

Town: "Why? What's wrong?"

Kim: "Um, there are 34.5 inches of snow on the street. You know, where we are supposed to drive Snow yardstickour cars?"

Town: "Yes we know."

Continue reading "If CDC Were In Charge of Snow Removal" »

Cathy Jameson

Look It Up

Mom at computerBy Cathy Jameson

Something’s been bothering me for a long time now.  It shouldn’t because many of us would be lost without it.  Parents get ripped a new one for using it.  But, lots of us, not just autism parents, continue to rely on it.  What is this thing I’m talking about? 

The Internet. 

Now, before some of you who lurk on this page have the chance to roll your eyes, please consider how much you yourself use the internet. 

Do you shop online? 

Do you download music for your iPod or add books to your Kindle? 

Do you order stamps, check on deliveries or schedule appointments on the Internet? 

Do you do your banking or pay your bills with secure web browsers? 

Do you communicate on message boards or Twitter? 

Are your circle of friends on Facebook, Google+ or Pinterest? 

How many of you keep up with your home team checking the latest stats on the team website?  Who’s made financial gains after buying stocks via an e-trading company?  What about your taxes?  Did you e-file last year or get a direct deposit of your return to your savings account?  Have you ever checked in for travel on an airline’s site?  Isn’t it amazing in that with just one click of the mouse a getaway trip is confirmed and a jet awaits you at the airport? 

The Internet is host to anything and really, just about everything.  Just about everything can now be blogged, posted, shared and pinned.  Both good news and bad news can be found while cruising the net—from joyous life moments like birth announcements, engagements and holiday adventures to creating memorial pages or charitable trusts for a lost family member.  I think it goes without saying, and that many will agree, that the Internet has a great many uses and makes life a lot easier, not just for a few, but for millions across the globe.  So, why is it okay for some people to use the Internet to research or promote their thoughts and agendas, but it’s perceived as practically sinful when others, like parents of vaccine-injured children, use it for the same purpose?

Websites provide answers.  They list information that would be incredibly difficult to find elsewhere.  From mindless entertainment to state-of-the-art advancements, websites reveal a multitude of facts, data, medical breakthroughs and more.   It truly is incredible.  Within nanoseconds what can be looked up on the internet has helped someone make a life-saving decision or given peace of mind.  Who doesn’t appreciate that kind of immediate information and gratification? 

I know that some people don’t appreciate what’s accessible on the web, especially when an autism parent finds it and begins to cite it.  Those answers, that research, these numbers, that cover up.  The information is there as plain as day, but we’re told how foolish we are for looking it.  It’s as if we’ve stumbled upon a national secret.   Heaven forbid parents take that information and think it beneficial in their search for help!  And, they better not share that information with anyone, especially with that doctor who won’t admit he’s got less knowledge than that answer-wielding parent!

Continue reading "Look It Up" »

Science

Toxic Metal Burdens May Epigenetically Play Principal Roles as Environmental Factors in Autistic Disorders

  Science post image Estimation of autistic children by metallomics analysis

Scientific Reports 3, Article number: 1199 doi:10.1038/srep01199
Clarification of the pathogenesis and treatment of autism spectrum disorders is one of the challenges today. In this study, we examine scalp hair concentrations of 26 trace elements for 1,967 children with autistic disorders (1,553 males and 414 females). Five-hundred and eighty-four (29.7%), 347 (17.6%) and 114 (5.8%) subjects was found deficient in zinc, magnesium and calcium, respectively, and 2.0% or less in the other essential metals. The incidence rate of mineral deficiency was highly observed in infants aged 0-3 year-old. In contrast, 339 (17.2%), 168 (8.5%) and 94 (4.8%) individuals was found suffering from high burden of aluminium, cadmium and lead, and 2.8% or less from mercury and arsenic burden.

These findings suggest that infantile zinc- and magnesium-deficiency and/or toxic metal burdens may epigenetically play principal roles as environmental factors in autistic disorders and that metallomics approach may lead to early screening and prevention of the neurodevelopment disorders.
Dan Olmsted, Dan Olmsted

From the Bolen Report: Jake Crosby on Congressional Autism Hearings

Keep Calm Write OnNot long ago, Jake Crosby, one of our Contributing Editors, submitted an article about the background of the Congressional hearing on autism late last year. I rejected the article because, as I told Jake, it did not meet the standards that I try to apply to everything submitted to Age of Autism. Jake then submitted the piece to The Bolen Report, which, adding to the strangeness of this situation, posted it but did not technically "publish" it, according to Tim Bolen (see my "Tough Tim Bolen" satire below). Some of our worst critics have now had plenty of time to relish its attacks on our friends while the rest of us could only watch in distress.

Now Bolen says he will publish it, which is certainly his right. So, as a reader service, here is the link.

Jake is someone I have long admired for his autism advocacy and writing for Age of Autism. He remains a Contributing Editor. However, this article does not stand up to scrutiny on a number of levels. The invasion of privacy of a number of SafeMinds board members here is unconscionable and, really, inexplicable given the far less-than-critical issues involved. Furthermore, based on preliminary inquiries, the facts do not seem to be as described in this article; certainly, SafeMinds has denied them vigorously. It's bad journalism, glaringly unsourced and without giving the "targets" an opportunity to give their version of events. I stand by the choices I've made in dealing with this unfortunate situation, and will be following up in the near future. -- Dan Olmsted

 

Dan Olmsted, Dan Olmsted

SATIRE: Who is Tough Tim Bolen and Why is He Threatening l'il ol' Age of Autism?

Yosemite samBy Dan Olmsted

There's a tough talkin gun totin fella outta the Wild West, Tim Bolen by name, who's a ridden in to Autismtown like a new sheriff and is here to tell ya, don't a be messin wif him and his posse cuz he's ornery as a stray cat that ain't a had nuffin ta eat in quite a spell.

Pardner.

Tim's been a takin out after the sarsaparilla-sippin rascals over at-a  Safeminds and a hookin up with a bunch of nouveau tough guys who think we all a been a bunch of pansy-asses in never sayin that there therisomil, or however you say it back east, is a causin this here autism, and that other shot too. (Even though Safminds done cooked up that therismole idea in the first darn place!) He's a got a new artical that already kinda got out the barn door on them twitters and facialbooks, but now he's gonna run it for real, like, even though some desperado named Orac already done had a field day with it. Now the rest of us cowhands can gather round the campfire and hear the tale.

Who talks like this? "As you know, it was I, Tim Bolen, who made the arrangements for an
alliance between the North American Health Freedom Movement and the Autism world by, first, arranging for a west coast conference for AutismOne in conjunction with my friends at the Health Freedom Expo at Long Beach, California." And on and on. And on.

And why not? It's time for Tim and his posse to be a callin the shots around here and takin over the town. Autism One? Pansies too. They'll be a run right outta that hoity Chicgao, or a workin for a differen sheriff, namely thisun, befur the sun a come up 365 more times in the West (namely, Orange County, home of fantasyland). Come on a Autism One, you be seein it!

Just a few sunrises ago, sheriff Bolen done took out after this here humble internets place called age of autism, and said, Pardner, I'd a be a careful if I was you. You better a think on whos a gonna be a butterin your skillet cornbread after we get a done with this here sissy factory. Don't a be asking any questions Tim and his posse might not be a likin about that there artical they might be a runnin and kinda already done did. Don't be a calling the pansy ass big shots and so called press spokesmens in Washington to be a tryin to get ackshul facts, that ain't a none of your job. You and your little pansy ass friends might a pushing up digital daisies by a time we a be a done with a you.

Here be somefin called a e-mail -- don't need no stamps! -- that Tough Tim done sent to this here blog warnin' us of more trouble than a porcupine wrestlin with a cactus.

Got it, Pardner.

--

 -----Original Message-----

From: Dan Olmsted [mailto:olmsted.dan@gmail.com
Sent: Tuesday, February 05, 2013 8:45 AM
To: tim bolen
Subject: Re: The SafeMinds issue - up to date
hi tim, thanks for these comments. just trying to understand on the question
of publishing jake's piece - you say "if i [tim] do do this," meaning publish his
piece, i think. but you HAVE published it, haven't you?
just trying to get my bearings here. if i write about it, it's correct to
say you published it, right? again, i don't have an issue with you
publishing it...
best,
dan
--
On Feb 5, 2013, at 12:45 PM, "tim bolen" <jurimed2@earthlink.net> wrote:
Dan:
No, that's not true.  I haven't published it.  Notice that it was
intentionally not dated.  I put it in a hidden place where certain key
people could see it to comment on it.  It was supposed to be private. ...
So far, I can't guess how many people have seen it, but if I do the teaser,
and hit the send key, roughly 285,000 subscribers will get it seconds later.
Then, it gets picked up by our network and rebroadcast to even much larger
readership.
Dan, were I you, I'd be very careful about what you do with this.  Rumor has
it that 50% of AoA's income is dependent on either Mark Blaxill or
SafeMinds.  Were I you, I wouldn't even touch this.  You might be just
betting the farm.  The last thing you want to be, right now, is a part of
the problem.  You were right not to touch it in the first place.
Perhaps this is a good time to wet your finger and see from which direction
the wind is blowing in the Autism world.
 
Tim Bolen
--
Dan Olmsted is Editor of Age of Autism.

Anne Dachel

Dachel Media Update: A New Genetic Approach

Online news

Feb 7, 2013, Fox Columbia SC: "Autism: A New Genetic Approach"  

Continue reading "Dachel Media Update: A New Genetic Approach" »

Katie Wright

Katie Wright on IACC. Zero. Point. Zero.


By Katie Wright

OK, last IACC meeting of the year (rescheduled because of Hurricane Sandy.) Where to begin? Where to begin?

I just have to go with the CDC and the Somali study.

In 2008 The “Minneapolis Star” reported that there was an explosion of autism among Somali children. Indeed they cited preliminary data of 360 per 10,000 or 1 in 28 Somali kids in Minneapolis have autism. That is 5x the national rate! Astounding right? One would think that the CDC and the NIEHS would find this information compelling and immediately prepare to study the causes of this ASD cluster.

But no.

When there is an E. coli food poisoning cluster the CDC positively springs into action, leaving no stone unturned until they find the cause. The CDC immediately maps out a strategy, holds daily press conferences, and travels by helicopter to and from potential sources of the infections.

Even when there isn’t really isn’t an urgent public health crisis the CDC can be fast on their feet. Remember the avian flu outbreak in Asia? Again the CDC launched into action putting an emergency team together, sparing no expense. We all knew then and we know now that it is impossible for a human to catch avian flu unless a person literally slathers themselves in bird feces. Yet still the CDC found the money for a brand new avian flu wing in the CDC building.

However, when there is a gigantic and sudden explosion of autism in a major American city the CDC does nothing.  That’s right, n-o-t-h-i-n-g. The CDC did want not to count the Somali autistic kids in the Minneapolis and they surely do not want to find the cause of the autism cluster.

OK, let’s go back to 2008. The Minneapolis Dept of Health and then Senator Norm Coleman, the Somali families and the entire autism community were urging the CDC to investigate the causes of the autism cluster. Guess what the CDC does? Nothing.

Continue reading "Katie Wright on IACC. Zero. Point. Zero." »

John Stone

Brian Deer Fantasist: ‘Taking on the Establishment’

Brian Deer LaCrosse Oct 5 2012By John Stone

Brian Deer's forthcoming presentation at the BMJ/Oxford conference is entitled 'Taking on the establishment - investigative journalism'. In this regard it may be helpful in documenting just how fanciful this claim is to revisit my letter to BMJ published after a two week tussle with them in February 2010. And just to consider the great champion of the ordinary citizen against the over-powerful is still at top table in Oxford in 2013!

........................................

Trisha Greenhalgh's competing interests  

Prof Greenhalgh [1] does not disclose any competing interests. She has, however, contributed a controversial article [2,3] attacking the 1998 paper [4] to journalist Brian Deer's website. Although not disclosed here by Greenhalgh or in the accompanying article by Deer [5], Deer was named as a complainant against Andrew Wakefield in the High Court by Mr Justice Eady, who stated [6]:

"Well before the programme was broadcast [Mr Deer] had made a complaint to the GMC about the Claimant. His communications were made on 25 February, 12 March and 1 July 2004. In due course, on 27 August of the same year, the GMC sent the Claimant a letter notifying him of the information against him."

Since 2003 Greenhalgh has benefitted from more than £1.4m in research grants from the Department of Health [7]. When Deer's original allegations were published in the Sunday Times in February 2004 he was supported by the then Prime Minister, Tony Blair, who told ITV [8]:

"There is absolutely no evidence to support this link between MMR and autism. If there was, I can assure you that any government would be looking at it and trying to act on it. I hope, now that people see that the situation is somewhat different to what they were led to believe, they will have the triple jab because it is important to do it."

and by Chief Medical Officer, Sir Liam Donaldson, who told the BBC [8]:

"I don't think that spin and science mix. If they are mixed, it is a very unfavourable position for children's health. Now a darker side of this work has shown through, with the ethical conduct of the research and this is something that has to be looked at."

and Jeremy Laurance reported in the Independent [9]:

"At the Department of Health, which has striven for the past six years to bolster public confidence in the vaccine, joy is unconfined at the discrediting of Andrew Wakefield, as the researcher responsible for the scare."

Meanwhile, Health Secretary John Reid asked the GMC to investigate [10].

I express concern that conflicts that go up to the highest ranks of government are still conflicts, that the government itself is not a disinterested player, and has not behaved like one. At the same time Prof Greenhalgh's research has benefitted hansomely from its largesse. I believe there should be an inquiry.

[1] Trisha Greenhalgh, Why did the Lancet take so long? BMJ 2010; 340: c644

Continue reading "Brian Deer Fantasist: ‘Taking on the Establishment’" »

Anne Dachel

Dachel Media Update: War on Vaccines, Insurance for Autism, Prevention

Online news

Feb 6, 2013, Wall St. Journal: Rolling Back the War on Vaccines--How did one of medicine's greatest achievements become a lightning rod for controversy? 

Feb 5, 2013, KFOR-TV Oklahoma City: Teen boy with autism dies at treatment facility

Feb 5, 2013, AL.com: With Alabama outpacing nation in autism cases, state coordinator seeks more funding for care and support

Feb 5, 2013, Fox News: Preventing Autism

Feb 5, 2013, KAAL-TV Rochester, MN: Group Looks To Build Autism Charter School in Rochester 

Feb 5, 2013, Kansas City Star: Insurance payments for autism services rise in Missouri

Continue reading "Dachel Media Update: War on Vaccines, Insurance for Autism, Prevention" »

Anne Dachel

Leslie Manookian on Idaho's Proposed Immunization Database

By Anne Dachel

On Jan 31, 2013, MagicValley.com from Twin Falls, ID, published the story, Proposed Immunization Database Change Prompts Privacy Concerns.

The article was about proposed changes to the state’s immunization database and controversy over medical records and individual rights that had been ignited.  We were told about an Idaho Senate Health and Welfare Committee hearing that had been held the previous day, Jan 30.  Leslie Manookian, the co-creator of the award-winning film, The Greater Good, a documentary about vaccine safety.

Leslie is a resident of Idaho and she attended the state hearing to voice her opinion on vaccine surveillance.  I interviewed Leslie about what happened.

From the story on MagicValley.com:  

Currently, Idaho’s Immunization Reminder Information System, or IRIS, tracks immunization information of anyone who receives an immunization in the state. The system is voluntary, though it automatically records patient information and immunization records unless they or their parents choose to opt-out.”

Anne: Leslie, the Times-News reported that immunizations are currently being tracked in Idaho.  How many people are aware that this registry is being kept?  Is there a requirement that those receiving immunizations be told about this surveillance?

Continue reading "Leslie Manookian on Idaho's Proposed Immunization Database" »

Anne Dachel

Dachel Media Update: Flu Shot Injury, Chemicals, Diabetes

Online news Feb 4, 2013, New Times Miami: Miami Man Contracts Guillain-Barré Syndrome, Nearly Dies After Getting Flu Shot

Feb 4, 2013, Forbes: New Reports Reveal Need for Regulation of Chemicals in Infant Products

Feb 4, 2013, Yahoo! News: Insulin-requiring diabetes up in young children: study |

Continue reading "Dachel Media Update: Flu Shot Injury, Chemicals, Diabetes" »

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