Offit and His Critics: Part 1

Be well informed
NOTE: We're bringing you this series, re-crafted for 2017,  by Richard P. Milner of Public Affairs Media during Autism Action Month. Dr. Paul Offit has led the charge against any and all in our community, doctors, scientists, parents, educators, film makers, who question vaccine safety.

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RM offitPaul Offit
has for many years been the go-to-guy whenever the mainstream media looks for a sound bite on vaccination.  By presenting him with no counter, they give the impression that he has no critics beyond a few “hysterical parents.”  However, in our research and investigation we found that he has many.

We interviewed Paul at his Children’s Hospital of Philadelphia office.  Then transcribed the interview, and sent it out to a few of his critics, whose credentials and comments on his statements follow below.

We also made a video, “Haley vs Offit: A Virtual Debate About Vaccines, The Greatest Medical Controversy Of Our Time,” viewable at publicaffairsmediainc.blogspot.com. 

At the site, we have studies supporting Haley, and a list of over 180 more studies showing the extreme dangers of Mercury, especially when combined with Aluminum, as in shots, and other heavy metals, such as Lead or Cadmium from the general environment.

We could find no credible studies in support of Offit.

We also have available “Haley vs Offit” subtitled in Spanish at YouTube.

Public Affairs Media Inc. is a non-profit 501(c)(3) news organization.  Please support our work by making a donation at publicaffairsmediainc.blogspot.com.

Dr. Paul Offit, MD, is the Maurice R. Hilleman Professor of Vaccinology and Professor of Pediatrics at the University of Pennsylvania, a chair funded by Merck & Co. He is also the Chief of the Division of Infectious Disease and Director of the Vaccine Information Center at the Children’s Hospital of Philadelphia. Offit is a successful vaccine technician and an accomplished vaccine promoter.  His vaccine for diarrhea, RotaTeq is manufactured and distributed by Merck & Co., and its affiliates worldwide. 

Continue reading "Offit and His Critics: Part 1" »


Autism, PTSD and Community Support

Woman-can-i-helpNOTE: We accept submissions year round at Age of Autism. In April, we especially welcome new voices to share their autism stories.  Send me your submission to KimStagliano@gmail.com with SUBMISSION in the subject for review.  Write from your heart and gut and readers will respond.  Thanks.

By Candice Edwards

I remember vividly a conversation I had with my friend exactly this time last year. This isn't verbatim, but its pretty darn close.

Me: I don’t know what to do. I just feel like things are falling apart, I feel like I am failing at everything *crying*

Friend: Aww hun, whats wrong?

Me: I just feel like I don’t exist, he won’t look at me, literally its like I’m invisible. He doesn’t want to be touched, anything I try to do with him he shuts me out, literally turns away from me. Sometimes he gets very violent with me and I don’t know how to handle it. I am feeling so lost because that connection we are meant to have isn't there, it was there, but its gone.

Friend: Wow…I’m lost of words, how long has this been going on?

Me: When I think about it, its been gradual since Ollie was born but 4 months was when things really changed, but its getting worse. I just feel like something else is going on, I can feel it in my gut.
Friend: He doesn’t show you any affection? He doesn’t look at you at all? and this has been going on for months?

Me: Yes

Friend: Why didn’t you tell me sooner?

Me: Because I thought I was crazy, that this was just normal and things would get better
Friend: You need to listen to me. We all need to feel loved, acknowledged and important.You can’t stay in a relationship like that hun, you might want to think about leaving him especially before Oliver gets older. No one deserves to be treated like that, whats the point if he acts like you don’t exist? After a while it becomes abuse, you don’t serve that! Do you think its another woman?

Me: I’m not talking about Jay, I’m talking about my son!

My friends face dropped.

This conversation made me think long and hard. This relationship is completely different than all others. This life I grew inside of me was not something I could or would ever walk away from, and for that reason it was that much more intense. When marriages get tough, they can end. You don’t like your job? You can change it…but you have a child that won’t connect with you and your fighting to connect with them….what do you do? You look for help.

Continue reading "Autism, PTSD and Community Support" »


Summer Camps!! Autism...

Bowling
You get the email and your eyes light up! "SPECIAL NEEDS SUMMER CAMP!"

Sigh...   Few camps accept kids with the intense needs and behaviors many of our children present. I know of a camp in my state for girls on the spectrum. I have 3 girls on the spectrum!! When you read the requirements you realize, they want girls who are nothing like my three girls.

What do you have in mind for the summer break?

Kim


Del Bigtree Speaking at National Press Club on Vaccine Policy

VaxxedBy Anne Dachel

Thanks to Josh Coleman, I am getting the individual talks by the speakers at the National Press Club presentation in Washington, D.C. on March 31, 2017, and I'm going to transcribe them all.

These will all be published on Age of Autism. Please note that the paltry mention that this event received from the media didn't include actual quotations by the speakers, but Age of Autism will have them all. This event was ignored by news outlets that refuse to honestly cover this controversy, but the truth will get out, and the mainstream press will become even more irrelevant.

Del is impassioned. He is emphatic: WE ARE WINNING! It was inspiring to listen to him and feel his dedication to protecting children from dangerous vaccines. Del speaks about the lack of vaccine science to support our claims, and he's right, BUT ALSO THEY HAVE NO REAL PROOF. Population studies are not scientifici proof.

THE MISSING PIECE OF SCIENCE IS AN OFFICIAL COMPARISON STUDY OF FULLY VACCINATED/NEVER VACCINATED KIDS. Unless and until such research is done, the question is open. There is no proof that vaccines are safe, unless we look at children who were never vaccinated. AND NO OFFICIAL WANTS TO SEE THIS STUDY DONE. We all need to ask why.

Notice what Del said about the obligation of a doctor to know what ingredients are in the vaccines they're injecting into our children.

He's absolutely right. And doctors don't know. They simpy trust. They parrot the claims of the pharmaceutical reps in their waiting rooms.

This brought to mind the story from a friend of mine. This is a man who became very well-educated on vaccine safety concerns on his own, and when he went to his physician and asked him if he knew what was vaccines, he received this stunning response from the doctor:

"I DON'T KNOW, AND I DON'T WANT TO KNOW." That pretty much says it all. (My friend no longer has this person as his doctor.)

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March 31, 2017, Revolution for Truth—Del Bigtree

‘Vaxxed’ producer, Del Bigtree was introduced as the “Emmy Award winning producer from the daytime talk show, The Doctors.”

Del: “Tomorrow is April 1st, which means we opened ‘Vaxxed’ exactly one year ago tomorrow. And what a year I’m having! There’s really nothing left to say after some of the greatest minds in this movement were speaking to you all day. I could really say ditto and walk off the stage.

“I want to talk about what this year has been, what has got us here, and what has happened right now in all of our lives.

“First of all, I have got to give a shout-out to my partners in this film Andy Wakefield, Polly Tommey, and Brian Borrows. The simple fact of the matter, we are not here, in this moment, without these powerful, dedicated people that I had the opportunity to spend a year with while making ‘Vaxxed.’

“Andy, wherever you are—I think you’re in Germany right now—we all owe you such a debt of gratitude.”

Del described an encounter with a reporter described by Robert Kennedy, Jr. as “doing a hit piece on Andy.” 

Continue reading "Del Bigtree Speaking at National Press Club on Vaccine Policy " »


White House Lights Up Blue: 4 Days and A Few Dollars Short

Blue sand timerNOTE: There is a softer side to this story by Anne Dachel. Our wonderful contributor Katie Wright lost her Mom Suzanne to cancer last year.  Bob Wright asked President Trump to honor World Autism Day in her memory. And we are certainly behind that.  According to Katie, her Mom tried IN VAIN many times to get Mrs. Obama to acknowledge the autism epidemic and to act. She never did.  So, thank you to President Trump for his work so far. But know that this press  announcement seems in part to have been left over from the last administration....  It straddles the worlds of neurodiversity and tougher talk.  We won't punish progress, but I need to see real progress. Kim

WORLD AUTISM AWARENESS DAY, 2017
 
- - - - - - - 
 
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
 
A PROCLAMATION

On World Autism Awareness Day, we highlight the importance of addressing the causes and improving the treatments for autism spectrum disorders (ASDs).  We also recognize the importance of identifying ASDs early in a child's life and of understanding the obstacles faced by people living on the autism spectrum.  Together, we celebrate the many ways individuals with ASDs enhance our daily lives and make priceless contributions to our schools, workplaces, and communities. 


 
Autism spectrum disorders affect an estimated one out of every 68 children in America.  Individuals and families living with autism come from diverse backgrounds.  These families face enormous challenges in assisting their loved ones over the course of their lifetimes.  As those with ASDs reach early adulthood, families are often faced with even greater obstacles than during childhood, including planning for the successful transition into adulthood and independent life.  
 
We are hopeful that our Nation's efforts will result in significant advancements related to autism diagnosis and treatments in the months and years ahead.  Ongoing efforts to scan the human genome carry significant potential to better manage the disorder and, ultimately, find a cure.  My Administration will continue to work with the Congress to implement the 21st Century Cures Act and help to clear the way for breakthroughs in medical science.  Together, we will turn scientific discoveries into real solutions for people with complex health issues like autism.  
 
Cutting edge therapies and lifelong treatments can impose enormous burdens and expenses on the families of people with autism spectrum disorders.  I applaud the efforts by Members of Congress to enact tax-free savings vehicles for families of people with disabilities and ASDs.  I also encourage the ongoing public-private efforts to develop new technologies to prevent wandering and keep individuals with ASDs safe.  
 
For generations, men and women living on the autism spectrum have made extraordinary contributions in the fields of science, technology, art, literature, business, politics, and many other professions. 

Kim eye Roll
Um....... ^^^




Yet the world still has a great deal to learn about ASDs.  We must continue our research to improve early identification and intervention, strengthen our comprehension of the disorder, and open opportunities for every member of our society to live independently and live the American Dream.  My Administration is committed to promoting greater knowledge of ASDs and encouraging innovation that will lead to new treatments and cures for autism. 

Kim Girls 2015
Yes, we need a cure!




NOW, THEREFORE, I, Donald J. Trump, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim Sunday, April 2, 2017, as World Autism Awareness Day.  I invite all Americans to Light it Up Blue, which Melania and I will do at the White House.  I call upon all Americans to  learn more about the signs of autism to improve early diagnosis, understand the challenges faced by those with autism spectrum disorders, and to do what they can to support individuals with autism spectrum disorders and their families. 
 
IN WITNESS WHEREOF, I have hereunto set my hand this
thirty-first day of March, in the year of our Lord two thousand seventeen, and of the Independence of the United States of America the two hundred and forty-first.

DONALD J. TRUMP

Continue reading "White House Lights Up Blue: 4 Days and A Few Dollars Short" »


Saving Zero: "Dead Presidents' Cash Box"

TV antBy Dan Burns

Here’s a teaser the TV sitcom series I’m writing, “Saving Zero.” My writing partners are Sandra Williams, theater director and Artist in Residence with the Oklahoma Arts Council, and Robert Reynolds from the Actors Studio, NYC.  We’ve outlined a full-season series of 22-minute episodes and are scripting three episodes on spec.  We’re looking for a producer.

I’m writing this based on my experience as a co-founder and fundraiser for a group home in Austin, Texas.  In my sitcom, Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. But Zero, a new arrival at Hope Ranch, has no intention of working. He intends to sabotage the ranch and pursue his destiny.

Maybe you’ve seen “Speechless,” comedy series about a mom on a mission who will do anything for JJ, her eldest son with cerebral palsy.  Like Speechless, my series focuses on the struggles facing staff and ASD residents at the Ranch.

Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. In this scene Josh takes on a charismatic and possibly pathological teen. 

SAVING ZERO: DEAD PRESIDENTS’ CASH BOX

EXT. GRAVEL PARKING AREA BEHIND STAGE – DAY

A Pontiac GTO hardtop gas-guzzling muscle car ROARS into the gravel parking lot and pulls up beside JOSH. HOLD ON the driver, DR. BUCK SANDERS -- bolo, goatee, straw cowboy hat. Beside him is LULU, a bored teen, LIPSTICK in one hand, CELL PHONE in the other. The DEAD PRESIDENT’S CASH BOX is between her knees. Sander’s hand is on her leg.

BUCK (to Josh): Are you in charge here?

JOSH: About as in charge as I’m gonna get. (extending his hand) I’m Josh Jackson. Chief Fundraiser.

BUCK: A good man.

JOSH: You are . . .?

BUCK: Dr. Buck Sanders, Professor of Agronomy, Small Grains.

ZERO (from the back seat, unseen): He makes wice have sex.

BUCK: Will you shut up? I’m trying to have an adult conversation.

JOSH: What’s the problem?

Continue reading "Saving Zero: "Dead Presidents' Cash Box"" »


My April Wish

Pink wishesBy Dara Berger

I walked through the long spacious corridor feeling like each one of my senses was being violated.  The music was pumping around me so loud like I was in a nightclub.  I started to feel that tense welling up feeling like I was about to cry just after I discovered how little has changed in 10 years.  I remember going to this mall when Dylan was a baby when he had the entire world ahead of him.  He used to look at me, smile, practically beg for my attention.  Then I remembered the last time I took Dylan here about 10 years ago was when he was just starting to unravel into the abyss of autism.  That day he ran through the mall laughing, not responding to his name and he kept running away for me.  I remember being perplexed by the marked change in his behavior.  I had no idea what was happening.  Now I am in this same mall killing time while I wait to go pick him up my twelve year old at his special needs school that is 45 minutes from my home in New York City.  We had to abruptly transfer to this school mid-year.

As I walked out the double doors and the smell of perfume and makeup started to dissipate into a faint memory the tears came flooding down my face just as the rain was also pouring down on me with such force.

Finally I made my way across the expansive parking lot to my car and got out of the of the rain.  I let out a huge exhale as my body abruptly hit the leather seat, which seem to release enough of the tension with my emotions that I wouldn't keep crying.  I sat there and waited a few minutes in my car and just watched the rain pound down on the windshield.  I kept waiting till I had the will to get back to the reality of my life.  It's a very different reality than the one I thought I would have.

Continue reading "My April Wish" »


M.I.A. in April

1938
By Julie Obradovic

It was April of 1943 when Dr. Leo Kanner, arguably the leading childhood psychiatrist of the day, wrote the words in the journal The Nervous Child that changed the rest of us, and the month of April, forever.

“Since 1938, there have come to my attention a number of children whose condition differs so markedly and uniquely from anything reported so far, that each case merits – and I hope, eventually receives – a detailed examination of its fascinating peculiarities.”

At that time, Dr. Kanner was an immigrant who had lived on two continents in multiple countries; was fluent in two languages; and had just written the authoritative and exhaustive guide on all things related to childhood psychiatry in 1935. Because of his research, he was the premier expert in the country that the first 11 families of children later diagnosed with autism ever came to for help and why.

The fact that he had just written and published a book on the subject only 8 years prior to making this extraordinary statement; that he was almost 50 years old and had lived on two continents when he did; and that he was announcing to the world in fancy academic language,

“Hey everyone, there’s something NEW here…and PECULIAR… and FASCINATING…. and I’VE NEVER SEEN IT BEFORE…. and I’m an authority on this stuff… and I’m going to give it its own name because of it…”

MATTERS.

Because, as our beloved Dan Olmsted and so many others have said for over a decade now, if he was right and autism was new, it cannot be genetic. Something in the 1930’s in two very specific parts of the world actually, the United States and Austria, changed. And that’s really only a handful of things.

And likewise, if he was wrong, he simply gave a name to a human condition that’s always been with us. In other words, he was expert enough to get to name it something new that we still call it, but too ignorant to realize it wasn’t. (Think about how ridiculous that logic is. Never mind. Don’t. It hurts.)

A condition that nobody, including himself, bothered to name, discuss, or identify prior.

That isn’t expressly written about anywhere in medical or folk literature beforehand.

That no one over the age of 40 today ever heard of until the late 1980’s.

Because it was new, but not new, don’t you know?

We just didn’t call it that for 70 years even though it had a name.

Because doctors were incompetent.

Like every school and every teacher.

And every parent.

So we didn’t diagnose it.

And then we misdiagnosed it.

And now we over-diagnose it.

And hordes of misdiagnosed folks were institutionalized.

While they also worked for NASA.

And got married.

And then they died.

(Oh, God, it did make my head hurt. Damn it.)

There’s a word for this kind of rationalizing. It’s called “DENIAL”. And each and every one of us has experienced it at least once in our lives. I can think of at least 3 times in my own life, the regression of my daughter being the first instance that comes to mind.

Denial has a certain sound and a certain language all of its own. It makes things complicated that aren’t complicated. It insists there is an exception to the rule. It speaks in circles and contradictions. It cloaks itself in mystery and layered explanations.

Continue reading "M.I.A. in April" »


Estate Planning and Autism

Piggy bankNOTE: We're often approached by sites to link to their content. And usually we say, "No thanks," as the content isn't in keeping with our mission and we're not here to make other people money. However, this request looked like it might be valuable to our readers, so we're sharing, despite its commercial provenance.   Ageing and finances are a topic of angst for most everyone - but with a kiddo on the spectrum? Oy. We're often far poorer than we would have been had we not had to pay the autism penalty, and many of us are just plain broke.  But there are families with money (God bless you) and managing it for our kids is important.

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As people grow older, especially parents, they begin to think about the future, and how their children will be provided for after they’re gone. For parents of children without developmental disabilities, this is easier, as those children can typically provide for themselves.

Continue reading "Estate Planning and Autism" »


A Review of Alycia Halladay's "Let's Focus on the Real Environmental Factors Linked to Autism"

Thumbs downBy Katie Wright

Alycia Halladay, PhD, recently posted an essay on the “STAT” website entitled “Let’s Focus on the Real Environmental Factors Linked to Autism.”

Dr. Hallyday made myriad factual errors in her post. Thimerosal was never “exonerated.” Ethylmercury is not harmless. Thimerosal can and DOES accumulate in some people’s brains. Many people, especially boys with a family history of immune disorders cannot efficiently excrete ethyl mercury / Thimerosal. This subset of boys have highly sensitive central nervous systems (Herbert, Deth) poor methylation abilities and suboptimal immune systems. Tragically this subset of children are unusually intelligent (Deth) and are robbed of this gift via Thimerosal induced brain damage. This cohort falls under the umbrella of regressive autism. These are infants and toddlers who reached all milestones on time, but usually ahead of schedule, yet experienced a catastrophic loss of skills and speech after a severe adverse vaccine reaction.

Essentially no one, except a fool, would knowingly and willingly allow their child, especially their infant (pre 2004 all newborns injected w Thimerosal via the pointless and dangerous Hep B vaccine), to be injected Thimerosal. Like many parents, I assumed all the Hg was taken out of vaccines in 2000, big mistake, it wasn’t. As far as Hallyday’s grossly erroneous claim: “there is no evidence Thimerosal is dangerous” please take a peek at the following THIRTY studies. There are about thirty more I could have included, but you get the point.

 A final caveat before you read the list. It is about 100x harder to get a study criticizing a vaccine published, than a study claiming Thimerosal is safe, published. The double standard is beyond belief. One might have an “I love Hg!” study rife with financial conflicts of interest, substitution errors, type I and type II errors and even basic arithmetic mistakes but almost any journal will publish it. One might have a study critical of thimersol that is perfection, checked, double checked, case controlled, blinded, extensively footnoted and still maybe one in 20 journals might have the courage to publish it. All of the published peer reviewed research listed below had to meet the the highest possible scientific bar in order to make it to print.

“Autistic child and unaffected sibling exhibit hypersensitivity to Thimerosal, “ Baskin D et al, 2013.

“Prenatal exposure to Thimerosal persistently impairs the serotonergic and dopaminergic systems in the rat brain,” Narita, M, et al, 2012.

“Suppression by Thimerosal of ex vivo CD4 T cell response to flu vaccine  and induction of apoptosis in primary T cells,” Gourgeon, M, et al, 2014.

Continue reading "A Review of Alycia Halladay's "Let's Focus on the Real Environmental Factors Linked to Autism"" »


Dachel Wake Up: Newsweek Covers DC Vaccine Event

Dachel Morning Wake UoBy Anne Dachel

This is far better than most Newsweek coverage of vaccine safety in the past.  They actually mentioned William Thompson by name and said that research may have been altered. 

Sadly, Jessica Wapner and Newsweek fail to tell us ANYTHING about what actually went on at the National Press Club meeting.  If there were fifteen speakers, including Robert Kennedy, Jr., shouldn’t we hear something that they had to say?

(The video did nothing to add to the story.)

Shouldn’t Newsweek have covered the event, not just the rally outside?

The one statement that said volumes was this: “The stated purpose of the event is to protest the biased media coverage, exploitation by the pharmaceutical industry…”

That charge of “biased media coverage” would of course include Newsweek and all the other mainstream news outlets who’ve never honestly and thoroughly covered this controversy.

Vaccine skeptics rally in D.C. today at a protest headlined by Robert F. Kennedy Jr.

By Jessica Wapner

Vaccine fears are on display today in Washington, D.C. A group called Revolution for Truth is leading an anti-vaccine event that includes a rally outside the National Press Club and talks by at least 15 speakers. The day will culminate with a speech by Robert F. Kennedy Jr., an outspoken opponent to vaccines and founder of the World Mercury Project. The stated purpose of the event is to protest the biased media coverage, exploitation by the pharmaceutical industry and government protection that, the group says, perpetuate the use of what it says are dangerous inoculations.

Continue reading "Dachel Wake Up: Newsweek Covers DC Vaccine Event" »


My Brother Has Autism: A World Autism Day Reality Check

Ronan sitting
By Cathy Jameson

Today is April 2nd.  For our family, it’s not a day we celebrate.  For us, it’s just another typical day in April.  Typical days in our house include taking turns keeping a watchful eye on Ronan.  He’s 14-years old, non-verbal, and severely delayed.  Each day, we make sure Ronan doesn’t wander, we make sure when his diaper is full that it is immediately changed, and we make sure he doesn’t have any seizures.  If he does have seizures, like he did several times last week,  we make sure we’re ready to administer emergency medicine to make them stop.  It’s challenging, but we do everything we can to keep Ronan safe.  We also do what we can to educate others on how debilitating regressive autism can be.  Some people close to us appreciate how very difficult life is for Ronan and for us.  For that, we are so incredibly grateful!  For those who have zero understanding and who chose to insult families like mine instead, which has happened, no amount of awareness will help them understand just how debilitating autism can be.

--

As soon as Ronan’s little brother got in the car, he said, “Mom, I need to tell you something that happened at school today.”

“Sure, buddy. What is it?” I asked.

He said, “I don’t want to say it in front of the girls.”

A sinking feeling came over me.  My usual upbeat kid was visibly shaken.  “Okay.  Let’s get home and then we can talk.”

While Ronan’s little girls chatted in the backseat, Willem and I sat in silence.  Half-way home, he spoke up, “Mom?”

“Yeah, honey?” I said.

“I guess I can tell you now,” Willem replied.

“Are you sure?  We can wait until we’re home if you want,” I offered.

“No, I think they should hear it too,” he answered.

“I was in class and we were playing a game where we had to go up to the board and write the answer to a question the teacher asked.  It wasn’t my turn, so I was sitting in my chair when another kid walked past me on his way up to the board.  He came up to me and pushed me hard.  He didn’t say anything, just pushed me.  After he wrote the answer on the board, he started to walk back to his seat.  He walked near me again on his way back, so I asked him, ‘Why did you do that?’  He didn’t say why he shoved me but he said, ‘Well at least I don’t have a brother with autism.’  Mom, why would he say something like that?”

Dumbfounded, I couldn’t answer.

Taking a minute to process what I’d just heard, I asked, “So you didn’t provoke him?”

He said, “No.”

Easily I could’ve been filled with rage.  But what came over me was sheer sadness.  Then tears.  Then more sadness. 

I needed more information, so I wiped my eyes and quietly said, “Go on.  What happened next?”

Willem said, “I got really sad.”

“I bet you did,” I replied. 

I then asked, “Where was the teacher during all of this?”

Willem gave me more details.

“The teacher had his back turned when I got pushed, and he didn’t hear what the other student said to me.  My friends in the class saw that I was upset and asked me what happened.  Since they’ve known Ronan a long time, they were just as shocked as I was to hear this other classmate say something like that.  That class was almost over, so as soon as it ended, I talked to the teacher.  I cried a little bit when I told him what happened.”

Oh, my heart.  It ached. 

Continue reading "My Brother Has Autism: A World Autism Day Reality Check" »


"Its Not A Perfect World But I'll Take It!" Free from Skyhorse Publishing For Autism Action Month

Skyhorse Free EBookAge of Autism and Skyhorse Publishing are thrilled to offer a FREE e-book of It’s Not a Perfect World But I’ll Take It for a limited time! This is a $12.99 value!  Jennifer Rose is a 20 year old woman with autism - her insight is fantastic!

Click here and use the codeaoa-perfect” to claim your copy today!  Enjoy the book, and thanks to Tony Lyons and everyone at Skyhorse!


It's Heeeeeeeeeeere.

Groundhogday
Aaaaaaaaaaaaaaaand it's 2017. "Y'all ready for this?" I want to do a reverse Punxatawny Phil and crawl INTO my den for the month. Kim

###

Aaaaand it's 2015.

Managing Editor's Note: We ran this post from Cathy Jameson last April -  2013.   I wish it were out of date.  366 days later and it still works...

By Cathy Jameson

Let me embrace thee, sour adversity, for wise men say it is the wisest course.
--Shakespeare

It’s that time of year.  We’ve flipped a calendar page to a new month:  the month of April.  The month when autism groups, who make money off of our kids’ diagnoses, go into full-fledge fundraising mode.  From walking around in circles promoting awareness to slapping a puzzle piece on every-day household products, this type of fundraising saddens me.  While our children’s needs are used for another’s gain, these money-making tactics suck the life out of me. 

Continue reading "It's Heeeeeeeeeeere." »


Light It Up Pink for Autism with Kim Stagliano

Pink lightbulbI wrote this back in 2011. Not much has changed beyond my girls growing older and my dear Dad passing away in February at 94.  Share your thoughts on April - and what you would like to see that would help not only you, but others outside the community (are there any people left not affected in some way?)

By Kim Stagliano

I'm aware. I get it. I have 3 girls with autism. I am bludgeoned about the head, shoulders and heart every day. Awareness - it's only a word. It's passive. If I am aware that you are hungry and I don't ask if you have any food, then find you food and help you to eat, what the hell good does it do for anyone to say, "Oh, that Mary Pat is STARVING over there on Main Street and I feel uber-special helpful since I know it."

Of course most people aren't so callous about awareness - and there's a ton of great work being done not only this month, but day in and day out. Teachers, therapists, researchers with a death wish (snark alert) parents, friends, family - it's wonderful to see the outpouring of support and thought about autism. However, I'm tired, just came off a week of 3 kids with strep and have a head cold. So I'm feeling very snarky.

A month of "light it up blue?" I guess it's like Coke red. Fine. If you have the budget, you can brand anything you want. Hell, why not come up with a jingle too? Let's see.... Try singing this? "Autism was 1 in 10000 not long ago millions spent on genetics and the numbers oh they just groooooowwwww!" (That sounds best when sung out of tune sort of to the old "A sprinkle a day" Shower to Shower powder jingle, by the way.)

A month of puzzle shaped bright blue cupcake toppers? I saw those online and got so annoyed it was if I'd eaten a vat of blue die. Instant behavior problems. Whoop-dee-gluten-filled doo. Puzzles are a child's toy for God's sake not the mark of a national and growing worldwide epidemic. Let's see, colon cancer. Intestines. Maybe they get a slinky as their "logo." I told you I was snarky.

I'm tired of symbols and awareness and acceptance as "enough" for us all. I want action. I want to protect kids from death by wandering. I want adults n the spectrum to find meaningful work. I want kids with Asperger's not to be bullied into suicide or rage. I want more things than Veruca Salt could ever have demanded on her very best day. And while I know in my head that there's a lot of great progress taking place - it's never fast enough for my heart when I'm in the thick of the chaos.

Continue reading "Light It Up Pink for Autism with Kim Stagliano " »


"Employable Me" Casting In USA for Series

Casting blurb
I received an email from Joe Pinzone of Optomen Productions in New York asking if we'd share a casting call for a program that's been a BBC Series and is now coming to the USA called "Employable Me." The program is about the great difficulty people with mental health and brain "differences" have in finding work.  As our kids age up and out of school into full adulthood, gainful employment may or may not be an option. For instance, my 22 year old daughter is in a day program with volunteer opportunities (she delivers Meals on Wheels). Others who have higher functioning levels work at paid employment.  While our readership tends to have pretty severely affected children, there are plenty of you whose kids may be able to have full employment. And boy, do we wish that for you - for them.  If you're interested in casting for this program, please contact Joe Pinzone <joe.pinzone@optomenusa.com>.


Sesame Street's Julia Arrives For April

SesameStr_20YearsAndCountinNOTE:   It's interesting how many media outlets have picked up the Sesame Street story just in time for April. Surely the launch of a cute Muppet with autism weeks before Autism Awareness month begins was carefully planned. Many of us struggle with the celebratory tone of the month.  At AofA we look at the month as a chance to commemorate the very real struggles people with autism of all ages face, along with their families. I hope the program will educate parents at least a bit.  Me? I'm 22 years, and still counting.... Kim

By Anne Dachel

Time to “normalize autism”………. the message is everywhere.

I’ve written a lot lately about Julia, the new character on Sesame Street who’s getting a lot of media attention because she has autism. She’s cute, friendly, and shows us the milder side of autism. Julia is part of a bigger issue here. It’s the push now to NORMALIZE AUTISM.

At the same time Robert Kennedy, Jr. is out warning us about the dangers of injecting mercury into babies and pregnant women, and the movie “Vaxxed” is crisscrossing the county educating viewers about the government’s cover-up of research findings of a link between the MMR vaccine and autism, the mainstream media is telling us just the opposite. We’re supposed to believe that having a child on the autism spectrum is just something that happens. Doctors can’t explain why; it’s just the way some people are. If we can all just accept AUTISM as a fact of life, we could move on from the blame game and stop talking about vaccines.

Continue reading "Sesame Street's Julia Arrives For April" »


The Greatest Health Debate of the 21st Century? Truth About Vaccines Series Starts 4/12

Ttav-banner-ad-160X600-prelaunch-1NOTE:  Age of Autism is pleased to share with our readers the pre-launch of "The Truth About Vaccines," a video seminar series that begins on April 12.   TTAV features in depth interviews with some of the most trusted medical health experts in America many of whom are close"FOO" you might say "(Friends of Ours) many of whom are MDs, some of whom are nationally known health advocates. This is breath of fresh air as we enter the April silly season of hulla-blue. 

From Ty Bollinger of TTAV:

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The greatest health debate of the 21st century?

You need to see this…

Vaccines for kids (The conversation we MUST have…)

Sick kids / Healthy kids - You Decide

We’re about to witness the greatest health debate of the 21st century, and you’re definitely going to want to have a front row seat for this.

It’s a topic that lights a fire under smart people on both sides of the issue.

Some say they’re mandatory, and some say they’re dangerous.

Tensions are rising from both camps, and our children are the ones caught in the middle.

The topic?

Vaccines.

No matter where you fall on the spectrum of whether you think vaccines are helpful or harmful… the reality is that it’s become one of THE hot-button issues of our time.

People are truly passionate about their positions, and that… my friends is a HUGE part of the problem.

When emotion interferes with facts, the truth gets lost in the shuffle.

But there’s a new face leading the fight into the fray to try and separate fact from fiction and find the middle ground, where we can have an honest conversation about this…

Continue reading "The Greatest Health Debate of the 21st Century? Truth About Vaccines Series Starts 4/12" »


Laura Hayes being interviewed live today

Link for live streaming at:

 
 
I will come on shortly after 12:05pm PST.
 
Jeanie is an excellent interviewer, and very knowledgeable regarding vaccine-related issues (and much more!).  In case you missed my previous interviews with Jeanie, here are the links:
 
https://youtu.be/2yFC86tlZaE   (TV interview with Jeanie Keltner, Sept., 2015)
 
https://youtu.be/0WeBVp9Rcts  (1st Radio interview with Jeanie Keltner, which was actually done a few wks. before the TV interview, Aug. 2015)
 
https://www.youtube.com/watch?v=tMcZUf8KWaE&feature=youtu.be  (2nd Radio interview with Jeanie Keltner, 1-27-16)
 
https://youtu.be/bOGTUSSUs2E  (3rd Radio interview with Jeanie Keltner, 4-6-16)

Saving Zero: "Climb Every Mountain"

TV antBy Dan Burns

Here’s the teaser from the pilot episode of the TV sitcom series I’m writing, “Saving Zero.” My writing partners are Sandra Williams, theater director and Artist in Residence with the Oklahoma Arts Council, and Robert Reynolds from the Actors Studio, NYC.  We’ve outlined a full-season series of 22-minute episodes and are scripting three episodes on spec.  We’re looking for a producer.

I’m writing this based on my experience as a co-founder and fundraiser for a group home in Austin, Texas.  In my sitcom, Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. But Zero, a new arrival at Hope Ranch, has no intention of working. He intends to sabotage the ranch and pursue his destiny. 

Maybe you’ve seen “Speechless,” comedy series about a mom on a mission who will do anything for JJ, her eldest son with cerebral palsy.  Like Speechless, my series focuses on the struggles facing staff and ASD residents at the Ranch. 

EXT. DRONE SHOT TEXAS HILL COUNTRY

EPISODE TITLE: CLIMB EVERY MOUNTAIN

FADE IN:

WOODED ROLLING HILLS west of Austin. Below us, among the cedars and live oaks, a pattern of intersecting farm to market roads, and a RED HONDA CRV in the distance, driving toward us, sun roof open. We’re moving toward the red CRV and descending, enjoying the rugged beauty of the landscape. Over the CHOP-CHOP of the helicopter we HEAR the VOICE OF JOSH, early sixties. We follow, follow, follow …

VOICE OF JOSH: To me, Hope Ranch is a magical place. The mountain cedars and live oaks of the Balconies Canyonlands spill through the Texas Hill Country to our back door.

We’re a little lower now, the RED CRV closer.

VOICE OF JOSH: Beneath us, the Edwards Aquifer, an underground river, rolling below the range of human hearing but tangible as a heartbeat, the rush of blood.

Along a rutted dirt and gravel driveway, a BATTERED BLUE PICKUP TRUCK, its railing up around the truck bed, bounces toward us, right angle to the CRV. We’re low enough to make out the cargo area loaded with A DOG AND HALF A DOZEN MIDDLE AND HIGH SCHOOL ASD KIDS hanging on for dear life. A CANVAS SIGN on the side of the truck flaps in the breeze.

VOICE OF JOSH: “Build it and they will come.” And they came. Autism Spectrum Disorder families, aides, supporters, seekers, believers, drawn to HOPE RANCH, a future for young people with autism.

Continue reading "Saving Zero: "Climb Every Mountain" " »


April Addition: Microbiome Awareness Month

MicrobiomeBy Teresa Conrick

As we get ready to enter April, with it's surreal blue glow on Autism acceptance, we need to not forget the thousands of children and young adults who are on the side of the Autism Spectrum that seems to be forgotten by too many.  They are the majority, who have significant language impairments or NO language; immune and autoimmune diseases; a multitude of health issues (ear infections, chronic viral illnesses, diarrhea, constipation, reflux and more); physical pain; debilitating OCD and/or tics; life-threatening seizures;  horrific allergies;  and self-injurious behavior from GI disease, too often disregarded as "AUTISM BEHAVIORS." I continue to follow the research on the MICROBIOME.  It is the most important discovery not only for Autism but many similar diseases.  Here is a recent study that caught my eye as some of the parallels to the Autism Microbiome is evident. More and more research is showing us that the bacterial and viral issues of the gut play a big part in disease.  CHEMICALS can negativley impact the MICROBIOME, as I keep reporting. Follow the study below:    CHEMICAL EXPOSURE >> MICROBIOME INJURY >> BRAIN INJURY >> DISEASE SYMPTOMS

Altered gut microbiome in a mouse model of Gulf War Illness causes neuroinflammation and intestinal injury via leaky gut and TLR4 activation

Many of the symptoms of Gulf War Illness (GWI) that include neurological abnormalities, neuroinflammation, chronic fatigue and gastrointestinal disturbances have been traced to Gulf War chemical exposure. Though the association and subsequent evidences are strong, the mechanisms that connect exposure to intestinal and neurological abnormalities remain unclear. Using an established rodent model of Gulf War Illness, we show that chemical exposure caused significant dysbiosis in the gut that included increased abundance of phylum Firmicutes and Tenericutes, and decreased abundance of Bacteroidetes. Several gram negative bacterial genera were enriched in the GWI-model that included Allobaculum sp. Altered microbiome caused significant decrease in tight junction protein Occludin with a concomitant increase in Claudin-2, a signature of a leaky gut. Resultant leaching of gut caused portal endotoxemia that led to upregulation of toll like receptor 4 (TLR4) activation in the small intestine and the brain. TLR4 knock out mice and mice that had gut decontamination showed significant decrease in tyrosine nitration and inflammatory mediators IL1β and MCP-1 in both the small intestine and frontal cortex. These events signified that gut dysbiosis with simultaneous leaky gut and systemic endotoxemia-induced TLR4 activation contributes to GW chemical-induced neuroinflammation and gastrointestinal disturbances.

These comments from the full study seem important: 

Continue reading "April Addition: Microbiome Awareness Month" »


Autism Recovery Progress Story From Generation Rescue

GR faceNOTE: I don't mean to toot my own horn, but I'm quite pleased that what was a simple introduction a few years ago, has turned into meaningful progress toward recovery for so many families through Generation Rescue.  My dear friend Sarge Goodchild of Active Healing told me about the IonCleanse system and how he was seeing great results in his practice in Massachusetts. I introduced Glenn Wilhelm to Candace McDonald and well, read the rest for yourself! We need hope and progress as we head into April and the IonCleanse water is ANYTHING but BLUE, as those of you who've used it know!  KIM

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Last December, we hosted our annual 12 Days of Giving campaign, where we teamed up with many of our partners to offer autism families access to vital treatments and therapies they might not have otherwise been able to afford.

One of our lucky winners was Dave Borden, who won an IonCleanse detoxification system for his son. We checked in with Dave to see how their family was liking the system. Here’s what he had to report:

My 10-year-old son with autism seems to be responding well to the IonCleanse by AMD. Surprisingly, Ethan had no hesitation when we started. He put his feet right in the water, and he still really loves doing his footbaths. In fact, he’ll put his feet in the water before we are able to even turn on the system.

Communication is Getting Better

After 45 days, we have definitely seen some positive improvements. His receptive language appears to be getting a little better, and he is trying to communicate more. Instead of screaming, he has been walking out of his room, and saying to us, “find the mote.” The mote means remote. This is Ethan’s way of saying I want to watch a movie, and it’s a big improvement from the typical shouting from his room.

Initiating Play

Continue reading "Autism Recovery Progress Story From Generation Rescue" »


Join The Revolution For Truth This Friday in Washington DC

Rev Truth DC
Thank you to Autism Action Network for this alert:

From our friends at Revolution for Truth:

OUR CIVIL LIBERTIES AND PARENTAL RIGHTS ARE UNDER ATTACK IN AMERICA

On Friday, March 31, 2017, concerned individuals from across America will join with health care professionals in Washington D.C. to defend parental rights and civil liberties, including freedom of thought, speech and conscience. We are uniting to call out the corporatized mainstream media for manufacturing “fake news” that distorts the truth about environmental toxins, unsafe food and vaccine risks, which endangers our right to know and freedom to choose how we protect our health.

We are Taking a Stand for Truth and Freedom in Washington D.C.

To protest the corporatized mainstream media’s biased coverage and demonization of anyone who advocates for safer vaccines or defends the legal right to make informed, voluntary vaccine choices.

To protest the exploitation of the people by the chemical and pharmaceutical industries that have poisoned our environment and compromised our health for profit.

Continue reading "Join The Revolution For Truth This Friday in Washington DC" »


Dachel Wake Up: Robert F. Kennedy Jr. to Lead Vaccine Safety Rally

Rev Truth DCBy Anne Dachel

Below is media coverage of the March on Friday:

By Gary Greenberg, NewsMax

Robert F. Kennedy Jr. to Lead Vaccine Safety Rally

 Robert F. Kennedy Jr. will deliver the keynote address March 31 at the Revolution for Truth rally in Washington, D.C., organized by the Vaccination Injury Awareness League to call for more transparency in the research and government approval process of an ever-expanding schedule of vaccines.

Kennedy has said that he is “pro-vaccine,” but he believes more research should be done to investigate potential health risks and is critical of the Centers for Disease Control and Prevention’s handling of the issue. …

Continue reading "Dachel Wake Up: Robert F. Kennedy Jr. to Lead Vaccine Safety Rally" »


Shaking The Blind Faith in Merck Shingles Vaccine

Zostavax
By Anne Dachel

I recently wrote about the news of a suit against Merck over damage from the shingles vaccine.  There are claims of serious side effects, including death associated with this vaccine.

The Zostavax vaccine is recommended for every adult “fifty years of age and older” in the Merck TV ad, yet the CDC says people 60 years of age or older should get shingles vaccine.”

On the CDC website it also states that the shingles vaccine is safe. “No serious problems have been identified with shingles vaccine.”

Despite the CDC’s claim that the shingles vaccine carries no real risks, the FDA wrote to Merck in February 2016 telling them to add, Eye Disorders: necrotizing retinitis (patients on immunosuppressive therapy)’ to their product information.'

KP Stoller, a physician in San Francisco and author of the book, Incurable Me (Skyhorse 2016), is a strong critic of the current vaccine program because of its lack of safety science and oversight.

  1. Dr. Stoller, what concerns do you have about the way this vaccine is being sold to the public, especially with regard to what Merck says about it in their product information sheet?
  2. A. There is ZERO credible safety data on "vaccines" [defined as (adjuvants etc. + antigen)] where no saline vs. vaccine comparisons have been done. Vaccines are not tested for safety against a saline placebo, they are tested against a solution that contains all the adjuvants, metals, DNA, and other toxins etc. but just minus the infectious disease antigen itself - in this case the varicella virus. So, the safety data and adverse event data Merck cites in their package insert does not have a lot of meaning.

It would be the same as if Monsanto tested RoundUp for safety and compared it not to water but to RoundUp sans Glyphosate (the reported active ingredient). Even without Glyphosate, RoundUp is very toxic... one of the ingredients is 10,000 times more toxic than Glyphosate itself. Would comparing those two substances RoundUp with Glyphosate vs RoundUp without Glyphosate be a fair comparison for safety purposes?

Yet that is exactly what the vaccine manufacturers are allowed to pass off as an adequate safety comparison. RoundUp without Glyphosate isn't anymore a placebo than the varicella vaccine without the varicella.

  1. What is the connection between the live virus chicken pox vaccine, now universally recommended for every child, and shingles in the adult population, which Merck claims will affect one in three adults in their lifetime.?
  2. It has been two decades since the USA implemented Universal Varicella (Chicken Pox) vaccination. And we now know a whole lot more information about what this program has caused because what happened when children are no longer circulating wild Chicken pox virus (varicella or VZV) in the population is that adults who once had VZV as children but were unable to eradicate the virus completely from their bodies are no longer exposed to the wild virus and their own immunity drops.

Continue reading "Shaking The Blind Faith in Merck Shingles Vaccine" »


An Autism Parent’s Vows

Love You ForeverBy Cathy Jameson

The high school spring sports season just started, so Fiona’s not getting home until almost 7pm.  As soon as dinner is over, the rest of her evening is devoted to studying.  Ronan’s big sister works hard both in the classroom and on the field, so when I found out she didn’t have school on Friday, in the midst of some errands I had to get done, I planned a girls’ day out for just the two of us.  We weren’t going to do too much, especially after we found out that the coach set up a last-minute practice session for the team, but we were going to make the most of the few quiet hours we had together. 

All was going as planned on Friday until Ronan had a seizure.  It wasn’t a big one, but no matter the intensity or the duration, seizures don’t just stop Ronan in his tracks; they have a way of stopping me in my tracks as well.

The seizure was quick, and within a few seconds, it was over.  Right before it happened, one of Ronan’s therapists arrived to the house.  She and another young therapist had a full day of activities planned for Ronan.  Instead of confidently walking out of the house like I usually do when these women arrive, I contemplated staying home.  Assuring me that they were able to do “seizure watch” for me – which includes knowing when to administer emergency meds should they be required, I tiptoed out of the house. 

As we drove away, Fiona asked, “They know what to do, right?” 

“Yes, honey,” I replied.  “They know.”

One of the young women has a sibling with epilepsy.  Having witnessed the havoc they wreak on her own family, seizures were not new and not scary to her.  The other young woman has been with us long enough to recognize not just behavioral changes but the physical changes that sometimes accompany Ronan’s seizure activity.  I told Fiona that I trusted our staff and that we could still go out.  Even though he was in good hands, I felt guilty leaving Ronan.  As tough as it was to walk away, that’s exactly what I did. 

Continue reading "An Autism Parent’s Vows" »


March Madness Leads into April Sadness: The Muppetization of Autism

Autistic muppet age of autism
By Anne Dachel

Winnipeg Free Press and Sesame Street are soft-selling us autism.

April, National Autism Awareness Month has turned from creating awareness of the autism epidemic to promoting autism as a neurological difference to be accepted and accommodated. This March 22 article about the new Sesame Street autistic character from the Winnipeg Free Press does just that. The video clip shows Julia (who has autism) singing with Sesame Street's "fairy in training," Abby Cadabby, "Everything's A-Okay..." Reporter Jen Zoratti doesn't tell us that two percent of our children now have this disorder, but she does mention that she has a brother with Asperger's.

And that is the message for April, and it's diabolically deceptive because it doesn't just advocate for compassion for the disabled, it's telling us that autism is only a neurological difference. Since Julia is a character with features of autism that don't severely impact her life (she flaps her hands and is sensitive to noise), it doesn't seem like such a bad thing. Julia interacts with others and seems pretty typical.

Winnipeg Free Press: Muppet with autism is just the latest in a long list of progressive Sesame Street characters

The newest member of the Sesame Street gang is already poised to be an icon —and she hasn’t even been on TV yet. 

Julia, a four-year-old with bright red hair and big green eyes, is the first Muppet to have autism. She’ll make her official debut on April 11, but social media is already buzzing about her thanks to a 60 Minutes special that aired on Sunday. Through Julia and her interactions with other characters, Sesame Street aims to promote understanding and acceptance of neurodiversity.

In the first episode, the characters will get to know Julia. Sometimes she doesn’t make eye contact or answer a question right away, and sometimes she flaps her arms. She doesn’t like loud noises, and she might repeat herself.

When Big Bird introduces himself to Julia, she ignores him and keeps colouring. Later, he learns not to take it personally, she just does things a little differently. "In a Julia sort of way."...

But many kids will see themselves in her, and they will see her being treated with kindness, acceptance and compassion. They will see that it’s OK for Julia to do things in a Julia sort of way. ...

It’s not just children who could benefit from such an education. There are adults out there who use the word "Asperger’s" when they mean "awkward." There are adults out there who believe vaccines cause autism, and that autism is a fate worse than death. There are adults who bully and isolate neurodivergent people at work. 

Sesame Street and Julia won’t singlehandedly raise a more accepting and empathetic generation.

But they will change lives. 

Notice that people who claim there's a link between vaccines and autism are included in the same paragraph with those who bully and discriminate against those with autism.

Continue reading "March Madness Leads into April Sadness: The Muppetization of Autism" »


ACTION ALERT: Demand Healthcare Reform that Includes Medical & Therapeutic Autism Treatments

Include autismFrom our friends at Autism Action Network.     CLICK HERE to take action!

Right now Washington is battling over the fate of the Affordable Care Act, also known as Obamacare. Some sort of change is inevitable and we think that families affected by autism need to try and influence the outcome. The House may vote later today on a healthcare reform bill but the debate will continue in the Senate. We believe that following are the minimum goals that any national healthcare law must achieve to be acceptable to the autism community. The House

Please click on the Take Action link to send a message to your member of the House and US Senators asking for these policy goals. And of course you can always modify the message to reflect your desires and experience.

  • Pre-existing conditions must be covered, which is part of current law,
  • People with autism and development disabilities must be covered either through affordable private insurance or Medicaid,
  • Allow children to remain on parents' policies until 26, which is part of current law,

Continue reading "ACTION ALERT: Demand Healthcare Reform that Includes Medical & Therapeutic Autism Treatments" »


Safeminds Presents an Interview with Autistic Autism Advocate James Williams

Listen to usNOTE: We're pleased to share this interview from our sponsor Safeminds. While many of our own children can not self-advocate, and the term has become tarnished by many in the Neurodiversity movement, it's important and we welcome those with autism who can help our kids to do so. Thanks, Lisa Wiederlight of Safeminds and James. Please visit the Safeminds site here.

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An Interview with James Williams, Autistic Advocate, SafeMinds Communications Committee Member

Last year, SafeMinds Executive Director Lisa Wiederlight, had the privilege of interviewing James Williams, a 27 year-old man with autism. James is a bright, highly-intelligent advocate for and representative of the autism community. The text of the interview follows.

Please tell us about yourself, and provide some information on your background.

I am an adult with autism, age 27, who has lived with autism all of my life. Though my official diagnosis of autism was at the age of three, in 1991, I was filmed extensively as an infant as part of a research project to showcase "normal" child development, and this footage has revealed that my autism emerged at birth.

My diagnosis at the age of three was the product of two things--an "explosion" of autism symptoms that increased at 18-months that included a digression of language, and my parent's belief that my digression was a product of the "terrible two's," a belief that had to be discarded when I turned three and the behavior did not change.

I underwent many therapies and interventions growing up--physical therapy, occupational therapy, theraplay, auditory integration training, and speech therapy--you name it, I had it, with two notable exceptions--ABA therapy and psychotropic drugs. My parents did not believe in ABA or drugs, and refused to give me such interventions.

After a highly-successful early intervention where I regained full language, I began my presenting career at the age of 11, answering questions after a presentation by parent advocate Annabel Stehli that was organized by auditory therapist Terrie Silverman. This led to a full-time career as a traveling presenter that I continue today. I am also the author of three books, Out to Get Jack, The H.A.L. Experiment, When Gary Comes to Play. I have served on the leadership team for Camp R.O.C.K.S., a summer camp for individuals with autism, from 2007 to 2012, and also a professional musician who plays the recorder.

Continue reading "Safeminds Presents an Interview with Autistic Autism Advocate James Williams" »


Dachel Wake Up: Two Stories from the San Francisco Chronicle: Robert F. Kennedy, Jr./Vaccines

Dachel Morning Wake UoTwo Stories from the San Francisco Chronicle: Robert F. Kennedy, Jr./Vaccines

March 22, 2017, Keep perspective on Trump pick of Robert F. Kennedy Jr. for vaccine safety panel 

By Leah Durant

“President Trump recently selected Robert F. Kennedy Jr., a prominent vaccine skeptic who believes that shots may cause autism, to chair a panel on the safety of vaccines.

“The appointment has provoked howls of outrage from public health officials, who correctly point out that medical experts have repeatedly debunked any link between vaccines and autism. Unfortunately, in their zeal to defend the benefits of vaccines, these advocates have pushed a narrative that vaccines are without risk. ...

“Established in 1986, the vaccine program is one of the rare federal initiatives that promotes economic growth and protects consumers. It does so by granting vaccine makers and doctors immunity from lawsuits. That immunity gives drug companies full confidence to fund continued research and development of new vaccines, and gives doctors and nurses full confidence to administer them.

“Instead of seeking compensation from drugmakers, vaccine-injured patients can file a claim with the U.S. Court of Federal Claims. The program has awarded 5,269 victims more than $3.5 billion to date out of 17, 935 petitions filed.”

In the first story, D.C. attorney Leah Durant defends vaccines (there’s no link to autism) but also warns that vaccines are not without risk.  She handles injury lawsuits in the NVICP. She makes it sound like this program is a success.

Continue reading "Dachel Wake Up: Two Stories from the San Francisco Chronicle: Robert F. Kennedy, Jr./Vaccines" »


I'd Rather Have A Child With Autism Than A Dead One: The Latest Science

Autism is not a giftObjectives. To examine epidemiological patterns of injury fatalities in individuals with a diagnosis of autism.

Methods. We identified individuals with a diagnosis of autism who died between 1999 and 2014 by screening causes of death in the multiple cause-of-death data files in the National Vital Statistics System based on the International Classification of Diseases, 10th Revision, code F84.0. We used the general US population as the reference to calculate proportionate mortality ratios (PMRs) and 95% confidence intervals (CIs).

Results. During the study period, 1367 deaths (1043 males and 324 females) in individuals with autism were recorded in the United States. The mean age at death for individuals with autism was 36.2 years (SD = 20.9 years), compared with 72.0 years (SD = 19.2 years) for the general population. Of the deaths in individuals with autism, 381 (27.9%) were attributed to injury (PMR = 2.93; 95% CI = 2.64, 3.24), with suffocation (n = 90; PMR = 31.93; 95% CI = 25.69, 39.24) being the leading cause of injury mortality, followed by asphyxiation (n = 78; PMR = 13.50; 95% CI = 10.68, 16.85) and drowning (n = 74; PMR = 39.89; 95% CI = 31.34, 50.06).

Conclusions. Individuals with autism appear to be at substantially heightened risk for death from injury. (Am J Public Health. Published online ahead of print March 21, 2017: e1–e3. doi:10.2105/AJPH.2017.303696)

Read More: http://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2017.303696

By Ashlyn Washington

Tuesday, the American Journal of Public Health published a study showing children with autism are 40 times more likely to die from injury than their typically developing peers. The average life expectancy for those with autism is just 36 years, a shocking contrast to the typical life expectancy of 72 years for the general public [1].

These grim statistics are no surprise for millions of parents who struggle to keep their children with autism safe each day. Those not personally impacted by autism tend to entirely ignore the fact that autism is associated with risks. Parents of children with autism, especially those who stop vaccinating following regression, are often barraged with comments that dismiss the dangers their children face.

-I’d rather have a child with autism than a dead one!

-I’d rather my child have autism than the measles!

-You don’t have the right to put my child at risk by refusing to vaccinate yours!

These statements are usually paired with a haughty mention that unlike the autism parent, the commenter is actually pro-science. If we actually look at the science, we see that Tylenol has killed 500 times more people in the United States over the past decade than measles, mumps, rubella, diphtheria and wild polio combined [2, 3]. We average one measles death per decade in the United States despite poor vaccination compliance among American adults. Greater than 100 million Americans aren’t up to date on their tetanus vaccine, yet only one in three million of them will be infected with tetanus this year [4]. Fewer than two of the 100 million Americans not up to date on their diphtheria vaccine can expect to be infected in an average year. [5] Meanwhile, 3.5 million Americans are living with autism. Assuming their trajectory is similar to those in the American Journal of Public Health study, nearly one million of them will die prematurely due to injury.

Continue reading "I'd Rather Have A Child With Autism Than A Dead One: The Latest Science" »


Blood Test that Predicts Autism has Implications for Treatment and Prevention.

TACA actionNOTE: We excerpted this article by Lisa Ackerman of TACA. Please visit and bookmark TACA as a top resource for your loved one with autism's well being, growth, safety and success.

A recent study demonstrated that a blood test might be able to differentiate children with autism spectrum disorder (ASD) from typically developing children.1 The study examined one carbon metabolism and its related pathways. These pathways are of the upmost importance in ASD and are essential for many critical processes in the cells of the body, including methylation which regulates turning genes on and off, producing the precursors to genetic material and producing the major antioxidant in the body known as glutathione.2

This news is not really new, however the dataset’s potential predictive ability is intriguing. Over a decade ago, Dr. Jill James, demonstrated that children with ASD have abnormal one carbon metabolism and suggested that these metabolic markers define an endophenotype (subgroup) of children with ASD.3  Furthermore, Dr. James demonstrated that several common variations in genes which provide the instructions for cellular proteins and enzymes result in an increase in the risk of developing ASD with these variations interacting in complex ways.3  This suggests several “kinks” in these metabolic pathways may add up to predispose a child to develop ASD.

Continue reading "Blood Test that Predicts Autism has Implications for Treatment and Prevention." »


"Saving Zero" Episode 3 Excerpt Dark Knight Rising

TV antBy Dan burns

Here's another excerpt from my TV sitcom series, “Saving Zero." My writing partners are Sandra Williams, theater director and Artist in Residence with the Oklahoma Arts Council, and Robert Reynolds from the Actors Studio, NYC.  We’ve outlined a full-season series of 22-minute episodes and are scripting three episodes on spec.  We’re looking for a producer.

I’m writing this based on my experience as a co-founder and fundraiser for a group home in Austin, Texas.  In my sitcom, Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. But Zero, a new arrival at Hope Ranch, has no intention of working. He intends to sabotage the ranch and pursue his destiny. 

Maybe you’ve seen “Speechless,” comedy series about a mom on a mission who will do anything for JJ, her eldest son with cerebral palsy.  Like Speechless, my series focuses on the struggles facing staff and ASD residents at the Ranch. 

This excerpt is from Episode 3, "Zero’s Path."  As the scene opens, Josh and Zero have left the Texas Capitol building and are walking south on Congress Avenue  toward the Paramount Theater.  Enjoy! 

DARK KNIGHT RISING

FADE IN:

EXT. PARAMOUNT THEATER - DAY

The marquee displays "Dark Knight Rising." Under the marquee, a Girl Scout cookie table has been turned over and the GIRL SCOUTS are on their hands and knees on the sidewalk picking up cookies. A trail of crumbs and box parts leads from there to a parked police car. The GIRL SCOUT MOTHER is glaring at the OFFICER (female, about 30) holding Benjy in a wrist lock, preparing to handcuff him. Josh and Zero rush toward scene, Josh in the lead. Benjy is twisting and turning.

JOSH: Ben!

BENJY: Da!

OFFICER: Step back.

Josh is agitated, keeping it together.

JOSH: He’s mine. Please, this is my son.  He has autism.

Officer secures the handcuffs.

OFFICER: Got some ID?

JOSH: Yes. 

Josh reaches for his billfold. It’s gone.

Continue reading ""Saving Zero" Episode 3 Excerpt Dark Knight Rising" »


Ha ha! Infectious Disease "Specialist" Now Attacks "Anti-science left"

Offit_blogBy Kim Stagliano

Honest to God, what does this man do all day except pretend he's Tweedledee and Tweedledum's other brother: TweedleDOOM. Contrariwise is his mantra.   Paul Offit is now attacking the gluten free diet and healthy, chemical free food choices. Did I mention he's an infectious disease doctor at Children's of Philly? He's devoted much of his life to attacking autism families - most of us here at AofA know that. He does this to protect vaccinations as a whole - and as his livelihood.  Now he's going after food and the "anti-science left" that is fighting for SAFER, chemical free food.  Mon-san-t-OH MY GOD.  (Google Age of Autism Paul Offit for a whole lot of articles on his vaccine patents and shameful attacks on autism families over the last decade+.)

WHAT-ever.....

War On Science: Gluten-Free Madness Needs to End

Trump appointees to head the Department of Energy and the Environmental Protection Agency to the contrary, the war on science isn’t limited to conservatives. Liberals have their own anti-science biases. Where conservatives often reject science based on their literal interpretation of the Bible or due to an abhorrence of federal regulations, liberals appear to be motivated by a belief that all things natural are good, anything with a chemical name is bad, and everything that profits an industry is really bad (unless that industry makes dietary supplements).

If you don’t believe in the existence of the anti-science left, just walk into a Whole Foods store. At Whole Foods, you can buy products guaranteed to be free of: (1) one of the most important scientific advances in the 20th century (“GMO-free”); (2) a chemical resin that the Food and Drug Administration as well as every other regulatory agency that has weighed in on this subject has declared safe (“BPA-free”); and (3) a component of wheat that causes a disease that affects about 1 percent of the American population (“gluten-free”).

The gluten-free is probably the saddest fallacy—and the most destructive.






From Sunny Day to Blue Day: Sesame Street Debuts Female Muppet with Autism

Grover desk
Mia's Desk at age 21


NOTE:  I've been a Sesame Street fan since I watched the first episode in 1969. My children adored the program until it left PBS to move to HBO for first run episodes. We don't have HBO and it was time to say goodbye when the Surgeon General teamed up with Elmo to promote vaccinations.  Preschoolers pick their noses, not their friends.  I can promise the parents who think that Sesame Street will make a long term difference that it will not - and I'm sorry to say that. By middle school the gap is a chasm, by high school it's a canyon and after high school, it's another continent. At least for those with moderate to severe autism like my own girls. Boys are affected 4:1 over girls, so I don't understand the female muppet. I do know that Sesame Street has struggled to have female characters - Abby Cadabby was supposed to add to Zoe and Rosita. I hope Julia does indeed help start a conversation, although I'm afraid it will go like this, "Gee, that doesn't look anything like what Chase at school has, Mom...."   Kim

By Anne Dachel

Julia is a Sesame Street character with autism. Big Bird and the other characters on the show are learning how to understand her. Julia is meant to teach children how to get along with someone with the disorder. Julia is proof that autism will never be a crisis for this country. Somehow we're going to have adjust to a significant population that has recognizable symptoms and special needs. From the tone of the discussion on 60 Minutes, we understand that having a child with autism is now normal and acceptable. (The Pfizer ad on this video is a not-to-subtle reminder that pharmaceutical is a controlling influence over what 60 Minutes will cover.)  View video here.

http://www.cbsnews.com/news/julia-sesame-street-new-muppet-autism/ 

Christine Ferraro: I think the big discussion right at the start was, “How do we do this? How do we talk about autism?”

Christine Ferraro has been a writer at Sesame Street for 25 years, during which time the frequency of autism diagnoses has multiplied. 

Lesley Stahl: The chances of a little kid two, three, four years old having some kind of a relationship with another kid with autism is pretty high.

Christine Ferraro: Exactly. Especially once they hit school age, because they’ll be in their classrooms.

Abby: Julia, you’re so creative!

Julia: [laughs and flaps]

But how to portray autism?

Continue reading "From Sunny Day to Blue Day: Sesame Street Debuts Female Muppet with Autism" »


Jennifer Rose: 20 Year Old College Student with Autism Pens "Perfect" Autism Help Book!

Jennifer Rose bookNOTE: Here's a terrifically hopeful story we're happy to share.  Jennifer is the daughter of AofA contributors Jonathan Rose and Gayle DeLong.  Her book will help so many families and young adults with autism.  We encourage you to purchase a copy today.

###

HANOVER - Drew University student Jennifer Rose is like many 20-year-olds, sweating out class assignments, socializing with friends and participating in activities like an anime club and the campus newspaper.

But in other ways, she is one of the more unique students at Drew — still learning to cope with autism, she recently became a published author.

The Morris Township native, now living on the Drew campus in Madison, spoke to the Morris County Special Needs Parents Group on Thursday during their regular meeting at the Morris County Library, telling them about her difficult journey, her inspiring progress and, of course, her book — “It’s Not a Perfect World, But I’ll Take It: 50 Life Lessons for Teens Like Me Who are Kind Of (You Know) Autistic.”

“Throughout college, I’ve had some really busy days,” she wrote in Lesson 35. “What I’ve learned from them is that I can’t always adjust life; sometimes I need to adjust myself to life instead and make sure to include the things that will help me deal with the stress.”

Both in writing the book and speaking to the group, Rose was honest about the challenges she still deals with. She still has difficulty focusing and tends to obsess, and her condition also makes it difficult to navigate around campus.

Continue reading "Jennifer Rose: 20 Year Old College Student with Autism Pens "Perfect" Autism Help Book!" »


Robert Kennedy Jr on The Jenny McCarthy Show

WMPNOTE: Skyhorse Publishing's Tony Lyons is hosting a fundraiser for Robert Kennedy's organization, World Mercury Project on April 18th in New York City. The original date was snowed out in our wacky blizzard last week here in the Northeast.  All proceeds to go staffing (great people we know and trust) and the work to get mercury OUT of Americans' lives.  Tickets are a bit dear by most of our standards, we realize, at $250.  Just like AofA - small donations add up quickly and mean as much, if you care to donate.

Jenny and her husband Donnie Wahlberg are planning to attend (schedules permitting) and Mr. De Niro may also attend. We have some powerful people working on behalf of our kids. Let's thank them in any way possible - even with a kind comment. Below is an interview -  let's face it, neither Robert nor Jenny need the incredible grief that comes with this fight - but they never quit on us, do they?  Hope to see you at the event - for information email Kirsten Kim at Kkim@skyhorsepublishing.com. The event is April 18th, 6:30 - 8:30pm at Tony's home on the Upper West Side. 

And you'll find me co-hosting with Jenny next month.

KIM


Kenny Woodd-Cahusac: Autistic Man Age 61, Wanders, Drowns

Kenny WooddNOTE: A sad story to begin the week from The Greenwich Times, Greenwich, CT.  Our kids (hopefully) have a long life ahead of them, despite their autism. Try to teach them to swim. Try to get a modicum of safety awareness into them. And consider a wandering device if they are either prone to wandering, or have enough independence to be out and about on their own.  Brita Darany Von Regensburg, founder of Friends of Autistic People in Greenwich wrote on her FB page:

The autism community family are mourning the passing of a gentle soul in Greenwich, Kenneth Woodd-Cahusac. Kenny was an adult who had a very light form of autism. He lived independently and everyone whom he passed by on his daily rounds along the Post Road and in Riverside loved to see and wave to him. He was found drowned in a shallow area of the Mianus River last Thursday.His sister and I have been in touch from the early days of FAP when we had begun advocating and raising awareness of autism. She and her daughter generously gave of their time volunteering at a FAP event. She mentioned that her brother was a good swimmer but that he did NOT have that fascination with water that many individuals with autism have and generally did not go to the water on his walks. She was very kind in thanking me for having made the entire community including the police more knowledgeable and autism friendly and she praised the police for noticeably doing a wonderful job in how they are dealing now with autism issues. Thank you! And we will miss Kenny!

###

"Police are investigating the untimely death of Kenneth Woodd-Cahusac after the 61-year-old man’s body was found Thursday evening on the shoreline of the Mianus River.

Woodd-Cahusac, described as autistic by authorities, disappeared over the weekend and was the subject of repeated searches by police officers and a bloodhound after he was reported missing on Monday.

“The body was located in the shallows near a small private boat dock,” said Greenwich police spokesman Lt. Kraig Gray.

The location is a short distance from where Woodd-Cahusac lived on Cary Road in Riverside."

The Greenwich Police Department Dive Team, along with an investigator from the state Medical Examiner’s Office, retrieved the man’s body.

“The body was recovered safely and respectfully,” said police Capt. Robert Berry. A cause of death — whether by drowning, hypothermia or some other factor — was not released pending further study by the ME’s office.

The body has been positively identified as Woodd-Cahusac, who was partially deaf.


Dachel Wake Up: PA Letter To Editor NO on Mandatory Vaccines

Dachel Morning Wake UoBy Anne Dachel

March 19, 2017, PennLive.com: The Top 5 Letters to the Editor of the week

Pa. Senate should vote no on mandatory vaccines

Pennsylvania Senate Bill 217 requires mandatory vaccines for your school children. No exception. When I was a youth, just a handful of vaccinations were typical. Current CDC recommendations are 40 doses of 14 vaccines by age 6 and 69 doses of 16 vaccines by age 18. The vaccine market is estimated to have ballooned to a $24 billion dollar industry with total legal immunity from being sued. What a deal.

Continue reading "Dachel Wake Up: PA Letter To Editor NO on Mandatory Vaccines" »


Alike But Different

Empty giftBy Cathy Jameson

Some people try to tell us that our children’s diagnosis is a gift.  They think it’s something we should treasure.  Forgetting just how very complex it is, some people try to simplify it.  That happens when they say that autism isn’t much more than a different way of thinking. 

If only that were really the case.

For many, including for my child, autism is medical.  It’s loss of acquired skills.  It’s the onset of seizures.  It’s problems with the gastrointestinal tract.  It’s the inability to speak.  It’s cognitive deficits and lack of independence.  That kind of autism exists, but mainstream news tends to show only bright and shiny ‘fee good’ autism stories.  I love to see those heart-warming stories, but rarely do I get to see ones that represent my son. 

Thinking that it may just be a US trend to highlight only happier tales, I looked on some international Parents who Creatednews pages to see what sort of autism stories they were sharing.  While scrolling through a few of the featured stories on the BBC last week, I came across a few ‘feel good’ piece.  The title of one caught my eye.  The fact that it was medical in nature made me even more curious.  The story wasn’t about autism, but I had to find out more. 

I much prefer to read my news than watch it, but the accompanying clip was too good to pass up.

Imagine.  A devastating diagnosis x 2!  With nowhere to turn.  With no one able to help.  The parents research on their own.  Yes, research.  It proves promising.  It has the potential to help their children.  The parents find a team, a TEAM of medical providers to help them.  The research, the hard work, the never quit attitude and the unique drug that the parents create yields results – good ones!  The girls are improving.  They are gaining skills.  They have a better quality of life.  The family hasn’t found a cure…yet, but everything these parents have done is promising.  With the potential to help other children.  With the desire to reach other parents.  With love, determination and support, the parents have moved mountains.  Others recognize that.  They reach out to the parents.  The parents make themselves available.  How very exciting! 

So why did I feel a twinge of jealousy as the news story ended?

Continue reading "Alike But Different" »


Dan Olmsted: Columbo, Hero, Friend

Dan Obit HeadshotBy Teresa Conrick

Dear Dan,  

I miss you.

Dan Olmsted was a hero to me and so many others who have children and young adults diagnosed as, "AUTISTIC."  His Columbo investigations about the FIRST CASES of Autism, convinced me, beyond a shadow of a doubt, that there was an epicenter to Autism and exposure to certain toxins -- Mercury and Vaccines -- seemed to be a huge trigger to increasing numbers of children being diagnosed. The search for cause and then treatments became a passion of mine, as well.  Dan's support and frequent emails helped me through many a rough day, as well as his encouraging me to keep on investigating how Megan, and so many others who regressed into Autism, became so ill.  Dan told me how much he was learning about the MICROBIOME from all of the articles I had posted over these past years on Age of Autism and told me -- "keep going as nobody is tying it together like you." He cut out an article from the NYT when they were finally mentioning "viral and bacterial issues of the gut" and gave it to me one night at dinner.  I have it on my fridge always as a pledge of not giving up on the research (or Megan and so many others!) and also of how motivating an influence Dan was in my life.  I could not attend Dan's Memorial today in Virginia but wanted to share how fortunate I was to know Dan and be involved in the investigations regarding the Age of Autism:

It was a very warm, September night in 2008, when I first met with Dan Olmsted. I had first seen Dan in a large auditorium at an autism conference a few years earlier. He had been up on the stage in a plaid shirt, talking about mercury, seeds, and Ceresan. With glasses and a laid back way about him, he seemed like Richard Dreyfuss as Hooper in Jaws, ready, willing, and able to take on Autism's menacing monster -- MERCURY.

I didn't understand why this "lumberjack guy" was talking to all of us parents about trees, Lignasan, and ethylmercury. My daughter became sickly and regressed in skills after vaccines -- many with the vaccine mercury called thimerosal. Bacterial and viral infections were then to be constant unwanted parasites in her life as her immune system took a direct hit. Meg was diagnosed with autism shortly after and just recently has been diagnosed with an autoimmune disorder. Dan seemed to me to be on the wrong trail. It took me a while to connect the research and see that these clues Dan, along with Mark Blaxill, had been discussing and writing about for quite some time were the first "puzzle" pieces to Autism.

I shared Dan and Mark's passion about the origin of AUTISM.  MERCURY, both environmentally and in pharmaceuticals, like VACCINES, has been, and continues to be a significant culprit in the damage being seen in both the BRAIN and the MICROBIOME

Continue reading "Dan Olmsted: Columbo, Hero, Friend" »


Happy St. Patrick's Day from Kim Rossi Stagliano!

St pat smaller
NOTE: This is just the type of post that would have earned me an email from Dan Olmsted, "Kimbo, you add the right touch at the right time, thank you..." or something kind and reassuring like that.  Goodness I miss him. His memorial is tomorrow in Falls Church, Virginia.

2:00pm at Fairfax Memorial Funeral Home
9902 Braddock Road
Fairfax, VAUS22032

Readers are invited.

By Kim Rossi Stagliano

Happy St. Patrick's Day! 

This is how we Rossis (Staglianos) roll. When I lived with my parents in 2005 - long story, really, you should read about it (insert eye roll) Bella made this fabulous Leprechaun hat with beard. So, we donned it, laughed our McArse's off and took photos. Mom, Dad (2 weeks gone this week at 94, his mother was a Sullivan) the girls and me.

My family was always blessed with laughter - we make jokes, tease each other, find joy in the simplest things and smile even when there's a potato famine and the Guinness has run out. Laughter = love.

Today - St. Patrick's Day - was my Dad's sister's b-day. She'd have been 98 I believe. She lived past 90. She met my girls when she was 88 or so and just "got them." Auntie Gert (nee Asunta Rossi) lost a son to violent crime, my handsome cousin Stephen. She knew what it felt like to have a child wounded, hurt, a Mother's pain. She got me. I loved her very much. My girls went to her 90th birthday party. No one in the Rossi family batted an eye - they offered a helping hand. All of them. That's family. Some are blood. Some are not. Some are gold. Others are pyrite - shining on the outside but rotten on the inside - "Fool's Gold" as pyrite is known.

Happy St. Patrick's Day. May the road rise to meet you. Always.

Love, Kim



New Study: Many Cases of Infantile Autism may Actually be Induced by Acetaminophen exposure shortly after birth

Infant tylenolNOTE: Can you think of a product more fraught with injury? From the poisoning scandal decades ago, to heavy metal pieces found in the product, to the actual usage causing a cascade of chemical changes linked to autism.  One day, Tylenol will be viewed like Thalidomide. Soon, we hope.

Jennifer Margulis, co-author of The Vaccine Friendly Plan with Dr. Paul Thomas posted this on Vaccine Friendly PlanFacebook: 

Breaking news: A team of researchers from Duke University School of Medicine and Harvard University have just this morning published a comprehensive review article in the peer-reviewed JOURNAL OF INTERNATIONAL MEDICINE showing scientifically how acetaminophen is a MAJOR FACTOR in DAMAGING CHILDREN'S BRAINS.

"The use of acetaminophen in babies and young children may be much more strongly associated with autism than its use during pregnancy, perhaps because of well-known deficiencies in the metabolic breakdown of pharmaceuticals during early development. Thus, one explanation for the increased prevalence of autism is that increased exposure to acetaminophen, exacerbated by inflammation and oxidative stress, is neurotoxic in babies and small children. This view mandates extreme urgency in probing the long-term effects of acetaminophen use in babies and the possibility that many cases of infantile autism may actually be induced by acetaminophen exposure shortly after birth," the 9 scientists write.

Please take the time to READ this study and SHARE it with your doctor, nurse practitioner, hospital worker, or other healthcare provider. And please tag any JOURNALISTS you know and encourage them to write about it: http://journals.sagepub.com/doi/pdf/10.1177/0300060517693423

ABSTRACT

The wide range of factors associated with the induction of autism is invariably linked with either inflammation or oxidative stress, and sometimes both. The use of acetaminophen in babies and young children may be much more strongly associated with autism than its use during pregnancy, perhaps because of well-known deficiencies in the metabolic breakdown of pharmaceuticals during early development. Thus, one explanation for the increased prevalence of autism is that increased exposure to acetaminophen, exacerbated by inflammation and oxidative stress, is neurotoxic in babies and small children. This view mandates extreme urgency in probing the long-term effects of acetaminophen use in babies and the possibility that many cases of infantile autism may actually be induced by acetaminophen exposure shortly after birth


Dachel Wake Up: Lawyers Hanging Out Their Shingles for Shingles Vax Lawsuits

Dachel Morning Wake UoNOTE: Merck, accustomed to causing injury to babies via MMR, then teens via Gardasil, has set its sights on the elderly population! 

By Anne Dachel

March 14, 2017, Zostavax patients sue Merck, claiming shingles shot caused injuries and death

Merck & Co. could have a growing Zostavax problem on its hands. After several plaintiffs filed lawsuits claiming the drugmaker’s shingles vaccine caused serious injury and death, attorneys say more cases are on the way.

Plaintiffs have sued in state and federal courts in Pennsylvania alleging that Merck’s Zostavax—used to prevent shingles, the painful complication of varicella infection—caused serious side effects, including death.

“I think Merck has failed terribly … to warn about the very serious side effects and the failure of the vaccine to do what they claim it does,” attorney Marc Bern told FiercePharma.

Continue reading "Dachel Wake Up: Lawyers Hanging Out Their Shingles for Shingles Vax Lawsuits" »


Autism, Mitochondrial Dysfunction and Anesthesia: A Deadly Dental Combination

DentistMost of us in the biomed autism community know that our kids often can not process anesthesia like children who do not have autism.  Our kids need accommodations everywhere. Autism is a new breed of disability. Routine cleanings often require extensive behavioral training and even full sedation. Fillings? Hospital day admission.  From this I know.  My three daughters with autism have been blessed with strong teeth and a Mother whose Dad was a dentist.  They drink only water. No sugary juices or sodas. They eat no sticky snacks. "They" (I and their Dad) brush with a special three sided brush twice a day.  We've had only one cavity between them. They are 22, 20 and 16. But that cavity required a hospital day procedure admission with a full surgical team. Imagine the cost? Covered by Medicaid (for now) but still - most 12 year olds would have sat in the dental chair and gutted it out. My daughter would have had the drill through her skull... And we see a GREAT practice that uses PECS for autism and has fully welcomed the autistic. 

Below this FOX article about the death of a youngster, is a reprint of an article in Autism File Magazine by Sym Rankin, RN and autism parent about autism and anesthesia. An important article to read and share.  Autism Speaks has a dental toolkit, unfortunately it tells the dentist nothing about the differences that could make a visit a tragedy.

Mykel was given "an extra dose" of Ketamine according to this article below. HE WAS FOUR.  Read this article about Ketamine:  Oral Ketamine for the Management of Combative Autistic Adult.

To the Editor:- Anesthetic management of uncooperative patients often is difficult, particularly when they are violent or incapable of understanding instruction. These patients may be impaired because of mental or neurologic disease. One such situation is autism. Although use of oral Ketamine as a premedication is well described in children, its use in the management of violent or uncooperative adults is not. I report these two cases because of the unique situation these autistic patients presented for an anesthetic.

Kim

Our condolences to the Curry family on Mykel's death.   From Fox News:

A Washington family is seeking answers after their 4-year-old son died Friday during a seemingly routine dental procedure that reportedly involved a shot of anesthesia. Mykel Peterson, who was a patient at Must Love Kids dental practice in Vancouver, was on the autism spectrum and had trouble keeping his mouth open during appointments, KGW8 reported. 

“He wouldn’t keep his mouth open so they can actually see what’s going on,” Thmeka Curry, Mykel’s  mother, told the news outlet. 

The dental practice specializes in treating children with developmental issues and uses a board-certified anesthesiologist. Mykel reportedly was given a shot of Ketamine, a common anesthesia drug, so that he would be sedated while the dentist checked to see if he needed a filling or crown, KGW8 reported. 

“The dentist was telling me everything she did with his teeth, and she was going to check to see if he was awake yet,” Curry told KGW8. 

Curry told KATU that the anesthesiologist said Mykel was given an extra dose to ensure he did not wake during the procedure.   Read more here.

Anesthesia and the Autistic Child

By Sym C. Rankin, RN, CRNA

Sym C. Rankin, RN, CRNA, is a graduate of the University of Southwestern Louisiana and the Charity Hospital School of Nurse Anesthesia (New Orleans). As a practicing anesthetist for over 25 years, she has witnessed an alarming increase in chronic and autoimmune diseases. Those observations became less academic and more personal after her son was diagnosed with autism. Her son’s journey of recovery led to Sym’s realization that mainstream medicine is far more interested in merely treating symptoms than in asking the difficult questions of why those symptoms exist. She recently joined the practice at True Health Medical Center in Naperville, Illinois, and hopes that she can help other families on the same journey.

This article represents my educated observations as an experienced nurse anesthetist who also happens to be the mother of a child on the road to recovery from an autism spectrum disorder (ASD). I am also a practitioner taking care of autistic children, so I look at these issues from a different perspective than my peers. The following observations suggest a need to heed issues that might have an impact on the delivery of anesthesia in individual cases, and also suggest a need for rigorous study of the potential problems autistic individuals might have when undergoing anesthesia.

Continue reading "Autism, Mitochondrial Dysfunction and Anesthesia: A Deadly Dental Combination" »


Dr. Oz Talks about Robert Kennedy Jr. and the $100,000 Challenge

Dr OzNOTE: If YOU would like to speak to Robert Kennedy, Jr. about the $100,00 challenge, you're invited to an event in NYC on April 18th from 6:30 - 8:30pm. Perhaps Dr. Oz will attend?

This is a fund raiser for World Mercury Project, which is sponsoring the challenge.  We know the price is dear for most of us - but perhaps a family member would help you buy a ticket  as an Easter or Passover or Autism Action month treat?  I know of one close friend whose brother - an AofA supporter - bought her a ticket. (Thanks, Nick Z!)  The event is at Tony Lyons' (Skyhorse Publishing's chief) home in New York City.

For details and to buy a ticket email Kirsten Kim Kkim@skyhorsepublishing.com

By Anne Dachel

On March 13, 2017, the Idaho Statesman published, Does your child’s doctor check on these important issues? by Michael Roizen and Mehmet Oz, MD.

Dr. Oz’s well-known name immediately caught my eye.

The article was about what your doctor should be covering at your “well-child checkup.”  Roizen and Oz included suggestions from the American Academy of Pediatrics.

So what should doctors be doing at these visits?

The AAP advises: “It should cover everything from how much you read to your child, the risk of lead paint contamination in your home, hearing, dental care, physical and cognitive development to potential familial health problems such as elevated LDL (lousy) cholesterol.”

Roizen and Oz added more things doctors should talk to parents about:  pool safety, laundry pods, guns, obesity, and vaccines.

This was included at the end of the piece.

To do: Robert Kennedy Jr. and Robert De Niro promised $100,000 if you prove vaccines are safe. We spent a month reviewing every study on vaccine safety and interviewing 150 experts on all sides of the issue. Our conclusion: Vaccines aren’t perfectly safe, but the chance of significant disease-preventing benefit is more than 40,000 times the risk. That’s a pretty impressive degree of safety. That research is out there for everyone to look at and is summarized in our book “YOU: Raising a Child.” If you win the prize, please make a donation jointly in our and your names to the American Academy of Pediatrics!

This article bothered me for a lot of reasons. First of all, why was there no specific advice that parents and doctors look for the warning signs of AUTISM, something which affects one in every 68 children, one in every 42 boys?

Roizen and Oz purported to have spent a month “reviewing every study on vaccine safety.” Not only that, they also talked to “150 experts on all sides of the issue.”

Seriously?

Continue reading "Dr. Oz Talks about Robert Kennedy Jr. and the $100,000 Challenge" »


Tell This Grieving Dad Vaccine Injury Isn't Real

Father's loveNOTE: I'm so grateful to Ted Kuntz for sharing this letter to his son (who was vaccine injured) and who passed away last month.   Ted has been a valued contributor to Age of Autism.   We will not stand as the scapegoat of America, we are not the lowest of the low in some sick pecking order of healthcare. We will not allow our loved ones to be ridiculed and diminished.  We too are a "minority group" worthy of respect and change.

Here is Joshua's obituary from last month.  

KUNTZ, Joshua Anthony July 25, 1984 - February 16, 2017 Joshua Kuntz was a gentle soul that touched many hearts during his thirty-two years. In his soft and quiet way he engaged people with the sparkle in his eyes, his radiant smile, and his invitation to hold hands. Josh lived with significant challenges due to an uncontrolled seizure disorder that began with his vaccine shot at five months of age. In spite of his health challenges and physical limitations, Josh enriched the lives of many with his courageous way of being in the world. Josh deeply loved his mother, Cathy Anthony; his father, Ted Kuntz; and his sister Lani (Virgil) Belo. He was warmly embraced by his extended family of Darlene Fletcher, Natalie Cahill, Nicole Mullin, Grant Fletcher, and their families. During the last four years Josh lived with a beautiful life share family - Parker and Naomi Henderson, Jayla, Parker Jr., Koby, Daysha, Tyra and Cheryn, all who loved him as their own. Ted Kuntz is a member of the Kuntz family of Kitchener. His loss is shared by his family - Kathy and Rick Pope, Jean and Tom Gutoski, Tom and Pam Kuntz, Dan and Christine Kuntz, Jim and Jo-Ann Kuntz, Caroline Getman, and their families. Dolores and Larry Finnegan, now deceased, were wonderful grandparents to Josh. A Celebration of Josh will be held in Burnaby, BC in April. Donations in honour of Joshua can be made to: Planned Lifetime Advocacy Network Society- www.plan.ca Vaccine Choice Canada - vaccinechoicecanada.org

Ted, we are so very sorry.  KIM

In Memory of Joshua Anthony Kuntz

July 25, 1984 – February 16, 2017

Dear Josh,

Thank you for blessing my life with your presence. You were such a gift to me. You touched my heart deeply with your simple acts of love - holding hands, your smile, and the eagerness in your voice when you saw me.

I miss you already.

I know there is joy for you in being released from the constraints and limitation of that body. I know your spirit is soaring and that you are once again reunited with 'all that is'. Nevertheless, my heart aches knowing I will not see you again in this life, hold your hand, or lie next to you.

You made me a better person and a better father. It wasn't always easy, was it! I was angry, afraid, resentful, even in despair at times. It was hard for me to accept your disabilities, your suffering with the ongoing seizures, and the loss of the life you didn't get to live.

Yet, in many ways, you lived an even more remarkable life.

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