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Current Affairs

Video Modeling for IEP Meetings With Attorney and Advocate: Your Special Education Rights

Free ticketManaging Editor's Note:   There is a terrific new FREE service to assist families with IEP meetings from early intervention to adult services transition (see video below.) Based in Connecticut, I'm proud to say that I know Julie Swanson and Jen Laviano and how they have helped so many families with their special ed legal rights.  They use video modeling (sound familiar?) to show YOU what words to use in an IEP meeting and how to translate some of the "jargon" educators will use to avoid giving your child services.  Membership is FREE.  You can register at Your Special Education Rights.

What is YourSpecialEducationRights.com?

This site is the first and only video-based special education resource for parents and advocates. The site was developed by Special Education Attorney Jennifer Laviano, Disability Rights Advocate Julie Swanson and Mazzarella Media,one of the nation’s leading educational content providers. The site’s primary purpose is to empower parents with the knowledge and understanding they need to advocate for their child’s education through engaging video programs. Never before have parents had the ability to learn about their rights in such a practical, user-friendly format. Members have access to a continuously updated video library, blogs and community forums with other parents and experts.

 


Why did we create YSER?

“I’ve had so many parents tell me over the years that nobody at the school is listening to them,” says Julie Swanson, Special Education Advocate. “I know how intimidating it can be to attend an IEP meeting – you’re in a room full of people and feel completely outnumbered. We’re here to empower parents with information so they feel prepared for that next IEP meeting.”
 
“One of the hardest things for me to hear from parents is that their lack of knowledge has resulted in a lack of service for their child,” explained Jennifer Laviano, Special Education Attorney. “Julie and I are absolutely convinced that the outcomes for kids whose parents know their rights and are able to exert them, are far better than when they don’t, which is why we came up with this site.”
 
Bios (Click below the jump for two videos on adult transition.)

Continue reading "Video Modeling for IEP Meetings With Attorney and Advocate: Your Special Education Rights" »

Anne Dachel

Dachel Media Update: Teen on Highway on Trike, Diagnosis Changes

Online newsBy Anne Dachel

May 7, 2013, WISTV Columbia, SC:  More kids diagnosed with mental health disabilities

May 7, 2013, News 12 Yonkers, NY: Boy with autism from Ferncliff Manor founding riding tricycle on busy road

May 7, 2013, New York Times: Maurice Hilleman, M.M.R. Vaccine's Forgotten Hero

May 6, 2013, 14News, Evansville, IN: Major changes coming to way Autism is diagnosed


May 6, 2013,  CBS Philadelphia: Adults With Autism Look for Programs To Help Them Adjust To World

May 6, 2013, WCTV-TV Tallahassee, FL: Special Report: Our Kids & Autism

Continue reading "Dachel Media Update: Teen on Highway on Trike, Diagnosis Changes" »

Current Affairs

Autism Is Different Not Less like Equating a Broken Finger with Being a Quadriplegic

Monty_python_hg_002_black_knightManaging Editor's Note: James Terminiello has nailed the white washing that is Autism "Acceptance and Awareness" month in his editorial in New Jersey.com. What began as Leo Kanner's diagnosis of a whole body, thoroughly debilitating diagnosis has been broadened to include the quirky guy who doesn't talk much at parties - and this hurts those people with full blown autism - who are no longer the face of the diagnosis and who have the greatest needs.  I'm reminded of the Monty Python Black Knight scene, " It's just a flesh wound!" Except it's not at all funny.

By James Terminiello

Special to the Times

In 1991, a torpedo blasted the engine room of our little family when doctors confirmed that our 3-year old son Alex was autistic. They said: “The little boy you knew is dead, but a new one has come along whom you will also love.”

That rather oblique optimism was tempered with warnings that Alex might throttle his baby sister in her crib.

Fast forward to today. I recently saw a t-shirt that read “Autism, Different, Not Less.” Clearly, times have changed, and so has what we call autism. The definition of “autistic” has expanded beyond reasonable bounds, leaving those who truly suffer in the dust.

That clumsily worded t-shirt speaks directly to a rebranded autism. The media are full of stories of the “autistic” who writes plays, achieves marvels on the basketball court, or gets swindled by a used car dealer.

What do these items have in common? They have no bearing whatsoever with the experiences and suffering of those who must daily face what I can only call “autism prime.” Such people exist in a swirling, nearly impenetrable world of their own punctuated by violence, lack of articulate speech, weird obsessions, incredible indifference and a hundred other heart-breaking negatives.

When my son was born, autism was still a largely unknown, baffling condition that effectively destroyed the lives of three in 10,000 children. Today, autism has become a Hollywood-fueled, pop-culture phenomenon purportedly impacting as many as one in 95 kids. The attention it gets drives funds in the direction of research and has begotten programs that will give my son some semblance of a life after my wife and I are gone.

So, what’s the problem? It all sounds positive.

Yes, but really no. Today, autism seems to encompass individuals with personality quirks and slight disorders who otherwise carry on with their lives. That fastidious guy in the office who lines his pencils in size order and has no friends may be lightly tinged by autism. On the other hand, he holds a job, owns a car, pays rent and earns $75,000 a year. Should he really be placed on the autistic spectrum?  Read the full editorial Opinion: Expanded definition of 'autism' goes astray.

And thank you to James Terminiello.

Current Affairs

Rob Schneider Speaks Out on Vaccination Rights in Canadian Mag

Rob SchneiderManaging Editor's Note: You may recall that Rob Schneider, Hollywood actor and Canadian citizen spoke out against AB2109 in California last year.  Below, he speaks out against the forced medical procedure of vaccination in Vista Magazine. Can you imagine any American health magazine running this article - next to an ad for Gardasil, no doubt.  You can follow Rob on Twitter at www.twitter.com/RobSchneider.  Thank him for his bravery in speaking out. I'd wager that most of Hollywood does not follow the AAP/CDC pediatric vaccine schedule - but few have the gumption to speak out on behalf of others who might not have the same level of info.

From Vista:

“Robby! Rob-o. The Robinator…” So speaketh the Rob Schnieder of Saturday Night Live, circa early nineties “copy machine” skits. Along with colleagues Adam Sandler, Chris Rock, David Spade and Chris Farley, Schneider was a beloved cast member of the edgy comedy show for five funny years. (Anyone remember Sensitive Naked Guy?) The hilarious Schneider is probably most well known for his starring role in the infamous Deuce Bigalow, Male Gigolo and for his leads in The Hot Chick, The Animal and Grown Ups. If you’ve ever seen an Adam Sandler movie, Rob Schneider was probably in it. If you’ve ever seen a Rob Schneider movie, Adam Sandler was probably in it. The comedic duo have worked on 18 movies together over the course of their 25 year friendship and, as Schneider informs us, there is no end in sight.

Continue reading "Rob Schneider Speaks Out on Vaccination Rights in Canadian Mag" »

Current Affairs, Vaccine Safety

Autism One Congressional Panel To Feature Dan Burton

Burton“Throughout my decades in public service, I have strived to give consideration to those whose issues fall through the cracks of our government, and to those who become targets of government authorities for daring to deliver or seek alternative therapies.”

Congressman Dan Burton retired from Congress earlier this year. As many of you know, he was a champion for our children with autism, confronted the use of mercury in vaccines and fought to bring accountability and change to federal public health establishment. His leadership of the House Oversight and Government Reform Committee in the last decade focused our nation on mercury in vaccines for the first time.

As he leaves public service, Congressman Burton continues to urge his colleagues to focus on alternate and complementary medicine, the increase in autism, malfeasance at the CDC and stark injustice in the VICP. Congressman Burton also commented on the implications of Unanswered Questions from the National Vaccine Injury Compensation Program – the only member of the federal government to do so.

Please take a moment to read through Congressman Burton’s final message to his congressional colleagues in the Congressional Record. Mr. Burton will speak on a panel along with Congressman Bill Posey and retired Congressman Dave Weldon on Friday, May 24, at the Autism One/Generation Rescue Conference.  This session should be exciting. And it will be an opportunity for all of us to say “Thank you, Congressman.” 
Anne Dachel

Dachel Media Update: Rates, Definition, Help

Online newsBy Anne Dachel

Read Anne's comments after the jump.

May 5, 2013, Salem (OR) Statesman Journal: UO seminar offers facts on autism

May 5, 2013, NJ.com: Opinion: Expanded definition of 'autism' goes astray

May 5, 2013, Green Bay Press Gazette: Schools respond to growing number of autistic students

May 3, 2013, Canadian TV News: Public cry for help: Telford family not alone in dealing with autism challenges

May 3, 2013, National Post (Canada): Anti-vaccination fraud: Health officials get tough as dormant diseases returning

May 3, 2013, WBOY-TV, Morgantown, WV: State of Autism Pt. 4: The Road Ahead

May 3, 2013, Wall Street Journal: Studies Suggest Environmental Link to Autism

April 29, 2013, Bangor (ME) Daily News: Sanford lawmaker wants doctors to disclose vaccine ingredients

Continue reading "Dachel Media Update: Rates, Definition, Help" »

Dr. Andrew Wakefield

Andrew Wakefield on Vaccine Failure And Questions for Dr. Salisbury

Published on May 3, 2013

Dr. Wakefield talks about vaccine failure, the alleged corporate response, and poses further questions for Dr. Salisbury.  Please go to the YouTube page and click "like" and share the link with friends and family.  http://www.youtube.com/watch?v=BASKGep-CH0&feature=youtu.be


Vaccine Safety

Take Action: Ask Your Rep to Sponsor HR 1757 Vaccine Safety Study Act

Safety firstTake Action: Ask your Rep to Sponsor HR 1757   (Read the bill HERE.)

Take Action!


Requires large scale study of vax v. un-vax   
 
Please click on the Take Action Link above to send a message to your member of the House of Representatives asking him or her to co-sponsor House Resolution H.R.1757, The Vaccine Safety Study Act. This bill directs the National Institutes of Health to conduct a retrospective study of health outcomes, including autism, of vaccinated versus unvaccinated children. The NIH adamantly refuses to do any study that compares health outcomes in these two groups. You have to wonder why.

PoseyThe bill was introduced several days ago by Rep. Bill Posey (R-FL) and is co-sponsored Cm_photoby Rep. Carolyn Maloney (D-NY), who has long championed this cause. As a bi-partisan effort, we are optimistic that H.R. 1757 can move the House in a positive direction, if we make a strong effort to support this bill.

Now many of you are probably thinking, “Why would we expect the NIH to do an honest study?” That is an excellent question. But at the very least supporting this bill will help educate the house on the shoddy methods that are standard operating procedures in the vaccine industry.

Please share this message with friends and family and please post to Facebook and other social networks. And if you support the work of the Autism Action Network please like us on Facebook.

 
 
 

Vaccine Safety

Trumped Up March UK Measles "Epidemic": 1 Lab Confirmed Case in 183

FearAn important post from Child Health Safety in the UK - the gov't and media trumped up an epidemic for no other purpose other than than to further damage Andrew Wakefield's reputation and ramp up fear among parents to force more MMR jabs.

[ED: CHECK OUT COMMENTS AT END FOR LATEST FIGURES FOR APRIL AND DISCUSSION - ADDED 4 May 2013 @ 10:30 UTC/05:30 EST/11:30 GMT]

Big Headline – but a very short posting to the links to the official figures just published by Public Health Wales.  You will not believe your eyes – so download them and see for yourself. Links to the full official statistics reports below from Public Health Wales.

If you take any notice of the British press you will know that the “epicenter” of this British epidemic of epic earthquake proportions – is Swansea in Wales UK.  That is where all the fuss is about.
Guess how many cases of measles there really were – no – not the huge numbers  the British media reported.

There was just ONE laboratory confirmed case out of 183 notified cases in March – that is 18,200% over-diagnosed – or put another way – 0.005 of notified measles cases were really measles.  And hey, lots of them have not been vaccinated and they still have not caught measles.  How about that.

Read the full blog post and statistics at Child Health Safety.
Cathy Jameson

Autism - Picture This

By Cathy Jameson

I was listening to a radio news station a few weeks ago when a story about pedestrian safety was being discussed.  Citing an increase in outdoor activity, longer days and potential bicycle, pedestrian and traffic accidents, the Street Smart project kicked off in early April.  Images on the posters that would adorn bus stops, the sides of city busses and kiosks in the metro Washington, D.C. area is part of the in-your-face advertising.  Literally.

Street Smart
 

Traffic safety with a hint of reality.   It’s pretty clever.

What if we had our own autism-vaccine-injury smart campaign?  Not that we have to ask permission to post the thoughts, images and documented proof of what our severely affected children deal with.  But can the general public stomach the “smart” side of autism that the mainstream news doesn’t show?  Could they tolerate looking at the poop smears?   Would they be able to watch the seizures parents videotape to prove that their child seizes?  Can the unaffected handle what affected parents work through, manage and battle day in and day out? 

We‘re already outspoken.  We’ve revealed the truth forthrightly.  But our speaking truth to the public has not gotten us results we want.

Maybe ‘shock and awe’ would be more useful.   The Street Smart campaign has taken common sense, added a side of powerful imagery and voila!  Responsibility, accountability and compassion are evoked.  Human lives are at stake with autism also; arousing images can put a human face on autism, the difficult, too often hidden devastation that strikes our kids.

Continue reading "Autism - Picture This" »

Dan Olmsted, Dan Olmsted

Weekly Wrap: 1 in 25

AofA Red Logo Ayumi YamadaBy Dan Olmsted

Last weekend I had the good fortune to attend two talks by Andy Wakefield a stone's throw from my home in Northern Virginia. One, a fund-raiser, included talks by David Lewis and Patrick Tierney, two friends of our community who know a thing or two about the suppression of unpleasant science.

The other was a public event, at which Josie Nelson and Louise Kuo Habakus also spoke. Louise has the most polished, impressive presentation of how to take responsibility for your own vaccine choices that I've ever heard. I hope she is called on to share it far and wide (and I'm reminded why AOA named her Person of the Year a few years back).

There were a couple of families in the crowd with adorable infants, and if anyone could help them understand the issues, it was Louise.

Andy updated everyone on his defamation suit against Brian Deer and the BMJ, which now awaits a jurisdictional appeal in Texas. One thing Andy said that really struck me: The autism rate is now 1 in 25. It's happening, it's set in stone, nothing will change it in this cohort of kids.

He didn't elaborate, but he didn't really need to. At the rate of increase, how could it not hit 1 in 25? Only the manipulations of the DSM and the CDC will change it, absent a clear-eyed look at the real cause. (Speaking of which, how about Rep. Posey's speech? He is going to be a must-see at Autism One.)

One in 25 -- that's a rate of one autistic child in every homeroom. Just like the old days.

Josie Nelson gave a wonderful intro, a ringing defense of free speech and independent thinking when it comes to vaccine safety. I asked her to share it with me so I could share it with you:

"Last fall, I said to Brooke Potthast and a room of about…oh twelve other people…that one of my goals for 2013 was to help create an educational event around vaccine exemption rights for our local community.  I don’t think any of us imagined we’d be standing with Louise Habakus and Dr. Andrew Wakefield just a few short months later.  What a treat!  

"And why, might you ask, would any sane person choose to talk about this subject in the first place?  While increasing numbers of parents, scientists, and health practitioners have questions about the size of the CDC recommended vaccine schedule, the signs and symptoms of vaccine injury, and conflicts of interest in the vaccine industry, to be curious about these issues is an easy route to hearing oneself labeled: threat to public health, unscientific, emotional, and even anti-vaccine.  As a consequence, conversations about this important topic tend to take place with pointed fingers and with raised voices, or behind closed doors and in hushed tones; and sometimes, sadly, they don’t take place at all.

Continue reading "Weekly Wrap: 1 in 25" »

Current Affairs

Autism One: 5 days, 100 Lectures for $50 by May 6


Act now

THE BEST AUTISMONE YET!  DON’T MISS ONLINE PRE-REGISTRATION! CLOSES 11:59 PM CENTRAL TIME ON MAY 6TH!

STILL ONLY $50 FOR MEMBERSHIP THROUGH MAY 6TH, WHICH INCLUDES 5-DAY CONFERENCE WITH 100+ LECTURES!

RFK JR. KEYNOTE

CONGRESSIONAL KEYNOTE PANEL

CELEBRITY KEYNOTE PANEL

GROUND-BREAKING NEW RESEARCH & TREATMENT INFO

GROUND-BREAKING NEW ADVOCACY INFO 

Membership on-site May 22-May 26 at the InterContinental Chicago O’Hare will be $100.

And don’t forget special events! 

Salon Night and Karaoke Night are sold out, but the new and exciting Casino Night still has space!  Don’t gamble on losing your spot. 

Dad’s Night Out is at the really fun KINGS Lanes Rosemont!  Read the AoA article here!

Anne Dachel, Nightmares

Heartbreaking Story: Adult Son with Autism Left to State

Broken heartManaging Editor's Note: Below is a sobering look at the future for many familes as exhaustion of mind, body and savings in conjunction with intense care for an autistic adult child becomes untenable. The moderate to severe autism population has few options in our current disability systems.  Competitive employment might be a stretch, day programs are often "daybysitting" at best, and housing options are limited, if available at all. The media is starting to wake up to the flood of children headed toward age 22 and the ramifications for state and Federal budgets alike. Not to mention the very real human toll of pain, heartache and worry.

"I'm no longer able to provide supervision."  Listen to this Mother - she is decribing the autism so often overlooked - intentionally - by organizations and the media alike.   Really listen to her - she is knowledgeable, up to date on how to care for her son and broken hearted. She is us.

Light it up true. 

By Anne Dachel

A Tragic story out of Canada
 
It started with this story on April 26, 2013, Canadian TV: Decision to drop off autistic son gut wrenching says Ottawa couple.
 
Watch the video here:  Exclusive: Couple leaves autistic son in care of the state
(Her adult son with autism functions on the level of a two year old.)
 
"Decision to drop off autistic adult son 'gut-wrenching', says Ottawa couple:


Watchi this video and listen to the mother talk about how Philippe recently wandered away. He is in need of constant supervision.
 
"Philippe requires nursing care for his diabetes as well as his bathing, toileting and personal care. His food intake also has to be strictly managed because of his diabetes."
 
"Parents of autistic adult son not alone in their desperation, say advocates"

Continue reading "Heartbreaking Story: Adult Son with Autism Left to State" »

Autism One To Feature Congressional Panel: Dan Burton, Bill Posey, Dave Weldon

Congressional Panel Burton Weldon Posey1


Congressional Panel: Congressmen Dan Burton, Dave Weldon, MD, and Bill Posey  

During his 30 years in Congress, many of them as Chairman of the Committee on Government Reform, Burton was involved in over 20 hearings on autism. Burton’s grandson developed autism after receiving 9 vaccines on the same day. His pursuit of truth and passionate leadership helped define and inspire the modern autism movement.

Dr. Weldon retired after 14 years in Congress, where he was a founding member of the Congressional Autism Caucus. He spent years working with leaders in the autism community to discover any factors that contribute to its occurrence as well as explore all available research into its prevention, including removing thimerosal from vaccines.Currently, in his third term, Congressman Bill Posey’s political career has been defined by a “take-charge attitude,” according to the Washington Post. In the November 2012 Congressional hearing on the rise in autism, Posey’s take-charge attitude is evident. Dr. Weldon endorsed Posey to succeed him.

Learn more about the Congressional Panel at the Autism One Conference Site.
Dr. Andrew Wakefield, John Stone

David Aaronovitch Loses Exchange About Wakefield & MMR: Then it is Deleted

AaronovitchNewly appointed Index-on-Censorship chairman David Aaronovitch loses on-line exchange about Wakefield and MMR in the London Times: then  it is deleted.

By John Stone

With British journalists running relays to resuscitate the dead story of the Swansea measles epidemic  the former Communist Party activist, David Aaronovitch – newly appointed chairman of the “human-rights” organisation Index-on-Censorship  -  has come off worse in an exchange with me about Andrew Wakefield and MMR in The Times of London, which was after some hours deleted.

I had written under his article:

It is very unclear that Wakefield cheated bearing in mind the complete exoneration in the High Court last [year] of the senior author and clinician in the Lancet paper Prof John Walker-Smith, who unlike Wakefield was funded to appeal. Walker-Smith was equally responsible for [the] paper and it’s reporting, and more responsible for any clinical decisions regarding the patients in it. The GMC findings, which were based on Brian Deer's allegations, cannot be considered reliable: indeed were highly flawed.

However, an over-riding problem with MMR is that irrespective of Wakefield it is used despite any scientific certainty as to safety. The conclusion in abstract of the Cochrane review of MMR in both 2005 and 2012 is:

"The design and reporting of safety outcomes in MMR vaccine studies, both pre- and post-marketing, are largely inadequate. The evidence of adverse events following immunisation with MMR cannot be separated from its role in preventing the target diseases."

http://www.ncbi.nlm.nih.gov/pubmed/16235361
http://www.ncbi.nlm.nih.gov/pubmed/22336803

Perhaps by some Orwellian sleight of hand "largely inadequate" for the professional has become "adequate" for the layman, but in my opinion being lulled to sleep by official truths is not being a good journalist.

To which Aaronovitch responded:

@John Stone You have a dog in this fight, John. Brian Deer's "allegations" as you call them concerned Wakefield's methods, his undeclared financial interest in single vaccinations and role as paid expert to anti-vaccination litigation, his doctoring of case histories and the ethics of his research on his subjects. And obscure the facts as much as you will, you cannot come up with credible evidence of an autism link to MMR, either correlative or causal. It would have been much better for those dealing with autism had this whole MMR farrago not distracted from the business of research into causes and help to parents.

For those who want it here is the link to Brian Deer's website…

Continue reading "David Aaronovitch Loses Exchange About Wakefield & MMR: Then it is Deleted" »

Anne Dachel

Dachel Media Update: Big Babies and More Brains

Online newsBy Anne Dachel

May 1, 2013, UK Daily Mail: Babies born weighing more than 9lb 14oz or under 5lb 5oz have a higher of developing autism

May 1, 2013, Boston Globe: New autism brain bank to help replace samples lost in McLean Hospital freezer malfunction

Continue reading "Dachel Media Update: Big Babies and More Brains" »

Dreams, Sponsor News, Treatment, Treatment

Autism Action is Year Round: Generation Rescue Grant Success

Ao Holland
We've finally left April and its namby pamby feel good (not that we don't like feel good stories at AofA) blue lit "awareness" behind. It's fitting that May first was MAY DAY - the call of distress. Here's a story from Generation Rescue, our sponsor, and provider of the Rescue Family Grant. This grant program puts dollars into familes' hands and medical treatment.  And it is quietly changing lives for the better. Thank you to Jenny McCarthy, Candace MacDonald and the entire GR team.   You can meet Jenny and bask in the GenRescue Lounge at the Autism One Generation Rescue conference in Chicago later this month.  The cost is just $50 for a five day conference if you register by May 6.

Listen to what a Mom said about what the grant has done for her son:

Less than a month into starting biomedical treatment, the Generation Rescue grant recipients are making amazing progress!

"P's teachers were thrilled today when I came to pick him up from school. They said it was the best day he's had in a long time. P's expressive and receptive language is just taking off. He is able to express anything he wants. We're over the moon! Seeing these positive changes makes us so grateful for this opportunity."

-V, Mom to P

To find out more about the Generation Rescue Family Grant program and to apply to start treatment, please visit Gen Rescue.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Natalie Palumbo

"Like" to Vote For Natalie Palumbo's Film Le Ballon Bleu

NP bleu
Photo only, Live link to movie at end of post.


By Natalie Palumbo

I’m 18, a senior in high school, an art student, and the younger sister of a 22 year old brother with low-verbal autism. I am a finalist in the South Carolina Young Filmmaker’s competition for 2013. We were to create a 2 minute film showcasing the beauty of one of South Carolina’s state parks.
Starting April 29th, the SCYoungFilmmakers launched a YouTube page to post the finalist’s films for people to view and “LIKE” for approximately two weeks.  You can "like" a video using a Gmail account if you don't have a YouTube account. Google owns YouTube.

Click the thumbs up LIKE button to place a vote on my film.

The top 3 winners will be chosen based on the Judge’s scores and YouTube ‘LIKES’.  Please go see my film!   I was accepted into Ringling College of Art and Design as a Motion Design major for the fall, and I hope to create visual effects in film and animation.  As much as I love my art, I love my brother more.  Anthony is my inspiration to tell stories visually, and I strive to succeed for both of us.  

I hope you enjoy my film…and if you do, please please please LIKE and SHARE! 

http://www.youtube.com/watch?v=KI6Kn8WJKXQ




Anne Dachel

Dachel Media Update: Swell of Autistic Preschoolers, Nothing for Young Adults

Online newsBy Anne Dachel

April 30, 2013, ABC News: Children With Autism 'Fall Off the Cliff' After Graduation

April 28, 2013, PARADE Magazine: Your Autism Questions-Answered!

April 27, 2013, Express Tribune, Karachi, Pakistan: Measles outbreak: City hospitals continue to receive new cases

April 25, 2013, Provo (UT) Daily Herald: Special preschools take in swell of autistic students

Continue reading "Dachel Media Update: Swell of Autistic Preschoolers, Nothing for Young Adults" »

Current Affairs

Representative Bill Posey's Remarks: Moving From Autism Awareness to Action

Bill PoseyFrom The Congressional Record

APRIL IS AUTISM AWARENESS MONTH--MOVING FROM AWARENESS TO ACTION
                            
HON. BILL POSEY of Florida in the house of representatives
Friday, April 26, 2013

Mr. POSEY. Mr. Speaker, I rise today to draw the attention of the Congress and the American people to the Autism epidemic that is tragically ravaging too many of America's children.

April is Autism Awareness Month, and I am pleased to join with parents, siblings, grandparents, special education school teachers, medical care providers, and interventionists to draw attention to the rapidly expanding autism community.

When I was young, autism was virtually unheard of. In the 1980s rarely did you meet someone who knew someone with autism. Yet, in the 1990s there was an explosion of autism. Indeed, in the course of just my lifetime, Autism Spectrum Disorder has grown from a very rare condition to--according to the Centers for Disease Control--a developmental disorder affecting 1-in-50 school aged children. And, tragically, the rate for school aged boys is a disturbing 1-in-31.

On December 19, 2006, the effort to address this epidemic took a major step forward as President Bush signed into law the bipartisan Combating Autism Act. I look forward to working with my colleagues and the Autism community to reauthorize this program next year. Though the Interagency Autism Coordinating Committee each year produces a strategic plan to address Autism, the billion-dollar allocation of resources to autism has not been evenly invested among genetic, epigenetic, and environmental factors. I must concur with the experts who have been willing to speak out, that the epidemic increase in the rates of autism are not a 'genetic' epidemic. Indeed, you don't have genetic epidemics. While there is likely a genetic component to many who have been diagnosed with Autism, we must seriously consider that there are likely several key factors in autism.

Also, so some who have suggested that the increase in Autism is due to better diagnosis, you don't go from 1 in 1,000 to 1 in 80 in three decades due to better diagnosis alone. And, if that were the case, where are the tens of thousands of autistic adults in their 40s, 50s and 60s. While better diagnosis may be a factor, common sense says there is a real increase and something is causing it.

While some may be borne with Autism, there are many parents who testify to the fact and present cases where their children were progressing normally but something triggered a regression where they lost speech, abilities, and regressed from developmental milestones that they had earlier met. Was that regression due to external factors such as medical injury, exposure to environmental toxins such as lead or mercury, or was it adverse reactions to medications that lead to high fevers, brain inflammation or seizures? We must get answers to these questions.

Continue reading "Representative Bill Posey's Remarks: Moving From Autism Awareness to Action" »

May Day! May Day! The End of Autism "Acceptance" Month.

Autism poseBy Anne Dachel

Let me state at the beginning that I would do anything to make sure that kids with ASD get all the recognition and help they so rightfully deserve. 
 
April, National Autism Awareness Month is over and I've tried to add comments to the endless stories out there in order to raise AWARENESS about the AUTISM EPIDEMIC and how seriously children are affected and the impact this disabled generation is having on families and schools.  I'm also trying to wake people up to the future cost of autism that we can't even begin to imagine right now.
 
I find so many reports that present autism as some kind of alternate lifestyle for kids.  There are some that even refer to April as AUTISM ACCEPTANCE Month. 
 
April 8, 2013, Western IL University Courier: Autism needs awareness and acceptance

"April is National Autism Awareness Month. Throughout the month, organizations across the country hold events to bring autism awareness to the general public. Though these events provide information on all different forms of autism, too often it is just information and not enough about acceptance.

"In my opinion, acceptance and awareness should be equally important. Instead of April being Autism Awareness Month, I think it should be Autism Acceptance Month."

Continue reading "May Day! May Day! The End of Autism "Acceptance" Month." »

LJ Goes

My Two Dreams

DreamBy L.J. Goes

Dream One

A crowded hotel.  An airport?  It’s impossible to tell because the hustle and bustle, the mood of the place--it’s exactly the same.  Transient. Interesting. Modern and clean.

I look down at myself and discover I’m clad in a suit!  Vintage Chanel (please oh please)?  Maybe Anne Klein. Not sure. It’s been so long.   Realizing the clout my suit carries provokes me to stand tall as if I am about to shake the hand of a new business acquaintance. Pain shoots through my leg as I correct my posture...damn stilettos!  What?!  Are those my old school Ferragamos? I cannot believe I crammed my mom feet into these babies!
This is not my cooking all morning-going-to-therapy-to-IEP meeting-to-doctor’s appointment-to labs-to-the-post office to mail labs-to the grocery store-and do car pool outfit.

Why am I rushing?  I should be savoring this.  Order.  There is order here.  Things make sense. People going places with a purpose.  God, I remember how good it feels to get results.  Go somewhere, do something and be done with it.  Execution of plans.  Meeting deadlines.  Achieving goals. 

Why am I here?

Continue reading "My Two Dreams" »

Teresa Conrick

Searching For Autism's Virginia

 

Rosewoodfrontweedscrackedcement
The Rosewood State Training School, Owings Mills, MD Stuart Dahne Photography


By Teresa Conrick

It was a very warm September night in 2008 when I first met with Dan Olmsted. I had first seen Dan in a large auditorium at an autism conference a few years earlier. He had been up on the stage in a plaid shirt, talking about mercury, seeds, and Ceresan. With glasses and a laid back way about him, he seemed like Richard Dreyfuss as Hooper in Jaws, ready, willing, and able to take on Autism's menacing monster -- MERCURY.

 I didn't understand why this "lumberjack guy" was talking to all of us parents about trees, Lignasan, and ethylmercury. My daughter became sickly and regressed in skills after vaccines -- many with the vaccine mercury called thimerosal. Bacterial and viral infections were then to be constant unwanted parasites in her life as her immune system took a direct hit. Meg was diagnosed with autism shortly after and just recently has been diagnosed with an autoimmune disorder. Dan seemed to me to be on the wrong trail. It took me a while to connect the research and see that these clues Dan, along with Mark Blaxill, had been discussing and writing about for quite some time were the first "puzzle" pieces to autism.

So on that September night, I was grateful and excited to finally meet with Dan. He had contacted me as he was coming into town to visit his sister, and wanted to know if I could meet them for dinner. I had become entranced with those children of the 1930s, those first canaries in the debut of mercury-containing vaccines, who were subsequently declared to have "Autistic Disturbances of Affective Contact". I had e-mailed Dan and Mark over the years as they researched their book, The Age of Autism -- Mercury, Medicine and a Man-made Epidemic. My father had been an ophthalmologist and surgeon from the 1940s until the 1980s, and thimerosal, the ethylmercury preservative, was a heavily used medical product in that field, too, and in his own office. 

Over dinner, after we shared stories and tears about my daughter's descent into illness after vaccines and the ultimate reality of severe autism, Dan pulled out a crisply, folded copy from his jacket pocket of Leo Kanner's 1971 paper, "Follow-up Study of Eleven Autistic Children Originally Reported in 1943" . Dan and his sister, Rosie, were both so encouraging as he invited me to make history and help trace the roots of autism. It was an easy answer for me, "Yes!" Dan and Mark had already found some of the "original 11," so I knew it could be done and I was ready for the challenge.

Kanner follow-up

Finding the clues to how autism first appeared was like trying to hit a bullseye; slowly, we got closer and closer. To find the cause, we had to go back -- back to the start.

--

Dan also shared about GPI, General Paralysis of the Insane, a horrific neurodegenerative disease that had quite an interesting story. GPI historically was seen as the end result of the sexually transmitted disease syphilis, a sly spirochete bacteria very similar to the spirochete of Lyme bacteria today, sickening the brain and rendering its victim slowly insane, finally losing the ability to talk, walk or recognize anyone. Yet Dan and Mark's research showed that GPI only seemed to occur in syphilis patients who had been treated with mercury, a standard of care for centuries up to the era of antibiotics that arrived with penicillin in the 1940s. Like acrodynia in childhood, a disease connected to mercury  in teething powders, GPI began to disappear when antibiotics took over as the treatment of choice. It seemed to be a possible interaction between the microbe of syphilis and mercury  that sparked GPI. State mental institutions around the country had thousands of GPI patients, often for years, as their insanity whittled them down to a shell of their former selves.

Continue reading "Searching For Autism's Virginia" »

Anne Dachel

Dachel Media Update: Goodbye April

Online newsBy Anne Dachel

Read Anne's comments after the jump.

April 29, 2013, ABC7 Chicago: For Your Family: Autism Awareness

April 28, 2013, Augusta (GA) Chronicle: Autism month was mixed

April 28, 2013, NY Daily News: Genetic research is on its way to unlocking the remaining mysteries of autism

April 28, 2013, UPI: Parents noticing toddler regressive behavior, check for autism

April 28, 2013, 1011-TV Lincoln, NE: Group to Celebrate Autism Awareness Month at Children's Zoo

April 28, 2013, Providence (RI) Journal: Record-setting autism walk at Goddard Park

April 28, 2013, NorthJersey.com: Spreading the word: Memorial Middle School shares autism awareness

April 28, 2013, KCRG-TV9 Cedar Rapids, IA: Autism Walk 2013: Hundreds Take Action for Autism 

April 28, 2013,  Eugene (OR) Register-Guard: New options emerge for young students with autism

April 27, 2013, Fox 11 Green Bay, WI: Thousands join in on Walk for Autism

April 27, 2013, Madison.com: Autism on rise for school-age children in Erie (PA) 

April 27, 2013, UK Daily Mail: Children at private schools face greatest risk from measles epidemic, warns leading doctor


April 27, 2013, Madison.com: Autism on rise for school-age children in Erie

April 26, 2013, Boston Globe: Red Sox lend a hand for autism awareness

April 26, 2013, TACA: Dr. David Berger on A Vaccine for Autism?

April 26, 2013, San Luis Obispo (CA) Tribune: UCLA to test drugs for autism in weeks not years

April 22, 2013, CNN Money:

Continue reading "Dachel Media Update: Goodbye April" »

Dan Olmsted, Dan Olmsted , Mark Blaxill, Teresa Conrick

AOA EXCLUSIVE -- Her Name Was Vivian: Clues From the Age of Autism’s First-Born Child

Vivian ancestry

By Teresa Conrick, Dan Olmsted and Mark Blaxill
 
We found her.
 
Eight years after setting out to identify the 11 children in the first medical report of autism, we have found “Virginia S.”, the eldest child in that landmark paper -- and thus the first-born child of the Age of Autism.

Her real name: Vivian Ann Murdock. Born in 1931, Vivian was placed in a Maryland institution at age 6 and died in a state-run home in 1987, age 56. She was the daughter of a prominent Baltimore psychiatrist, Harry M. Murdock, and his wife, Margaret.

Rosewood2
The Rosewood State Training School, Owings Mills, MD Stuart Dahne Photography

The key to finding her real name was the recent online publication of the 1940 U.S. Census – allowing one of us (Teresa) to test her hunch about the institution to which"Virginia" had been committed as a child: The Rosewood School in Owings Mills. The hunch was correct; the Census listed an "Inmate" there named Vivian Murdock, age 8 in 1940, who we conclusively identified as "Virginia S."

In Dan and Mark's The Age of Autism – Mercury, Medicine, and a Man-made Epidemic, published in 2010, we described the seven children we'd identified to that point, and wrote of “Virginia”: “We continue to search for this eldest child of the Age of Autism and whatever clues her identity may hold.”
 
Now, having spoken with family members, and pored over countless records and archives, we believe her identity does offer important clues, ones remarkably consistent with the other cases in that first report -- exposure to new mercury compounds in their families. 
 
Vivian was directly in the path of at least three mercury vectors:

-- the first use of mercury-preserved vaccines in Baltimore -- a drive to vaccinate every infant with those shots began the month she was born;

-- her parents' avocation of orchid growing and breeding, which required intensive application of chemicals including mercury;

-- and her father’s psychiatric career, which brought him – and probably his family through second-hand exposure – in contact with mercury treatments for a common form of insanity.

Mercury is no longer used in agriculture or mental health treatment. But each year, 100 million children worldwide get vaccines containing thimerosal, the ethylmercury preservative first used in those shots in Baltimore. In the United States, flu shots, most of which contain mercury, are recommended for pregnant women and for infants beginning at 6 months of age.

Our research on Vivian and the other first cases of autism suggests that is a very bad idea. 

Vivian’s identity also offers insight into how the damaging idea of “refrigerator parents” – supposedly cold and neglectful mothers and fathers responsible for causing their children's disorder -- got its start. We will explain these clues and conclusions in detail, but first the basics about the discovery of Vivian Murdock.

--

Seventy years ago this month, in April 1943, a psychiatry journal called The Nervous Child published an article titled “Autistic Disturbances of Affective Contact.” Written by Leo Kanner, a Johns Hopkins child psychiatrist who is widely considered the founder of the field, it begins:
 
“SINCE 1938, there have come to our attention a number of children whose condition differs so markedly and uniquely from anything reported so far, that each case merits -- and, I hope, will eventually receive -- a detailed consideration of its fascinating peculiarities.” Elsewhere, he called it "a behavior pattern not known to me or anyone else theretofore."
 
The three of us have always found those words remarkable, coming as they did from an acknowledged authority who eight years earlier had catalogued every known childhood mental disability in his landmark 500-page book  “Child Psychiatry.” Those pages contained not a whisper of autism, or anything that in retrospect looks similar.
 
Our own research convinced us the autism rate before 1930 was effectively zero (it is now 1 in 50). A handful of cases over several centuries might conceivably qualify, but there was nothing approaching the cluster of children whose worried parents brought them to see Leo Kanner in the years between 1938 and 1943.
 
Curious whether the family backgrounds of those first 11 cases might point to common environmental exposures, we began trying to identify them in 2005. The eight boys and three girls were described in the paper only by a first name and last initial. But because Kanner gave birth years for each child, we knew that “Virginia S.” was the oldest; her birthday was listed as September 13, 1931. Even as the number of autistic children seen by Kanner rose in later years, none appears to have been born earlier. (In a 1955 update, Kanner revisited his first 42 cases. The oldest autistic person at that point was 24 -- born in 1931 and presumably Virginia S.)

 We began our hunt with Kanner’s original 1943 "Autistic Disturbances" report and a follow-up paper he wrote in 1971. (In the latter paper, he slipped once and referred to “Virginia S.” by what we now know is her real first name, Vivian.) In “Autistic Disturbances,” he quoted a psychologist noting that Virginia “could respond to sounds, the calling of her name, and the command, ‘Look!’

 “She pays no attention to what is said to her,” the psychologist said, “but quickly comprehends whatever is expected. Her performance reflects discrimination, care, and precision. … She is quiet, solemn, composed. Not once have I seen her smile. She retires within herself, segregating herself from others. She seems to be in a world of her own …”

Continue reading "AOA EXCLUSIVE -- Her Name Was Vivian: Clues From the Age of Autism’s First-Born Child" »

Cathy Jameson

Are We Done Yet?

Blue doorBy Cathy Jameson

As we draw a close to another autism awareness month, I’ll admit I am not sad that this month is over.  Why?  While looking up the history of the autism awareness campaign and when it started, I discovered that the campaign began in the 1970s.  When I did my first search, I thought I had discovered a typo.  Surely they meant the 90s.  Nope.  Not a typo.  Someone was trying to get people to notice autism two decades earlier.

Lots of us are doing a lot more than notice autism now.  We’ve been sounding alarms about the autism rates and what the disorder has done to our children for what we feel is an eternity.  Obviously awareness hasn’t been enough.  Look at that old rate again.  The rate from 40 years ago.  When it was 1 in 25,000.  Look at all those zeros in that number! Twenty five THOUSAND.  That’s the population of a small town.  It was likely that one person out of an entire community was diagnosed with autism 40 years ago.   That’s not so today; we’re able to pick out a handful of affected kids on one play ground!  

Since the earlier campaigns, I think it’s safe to point out that having awareness didn’t slow, curb or end the autism epidemic.  Proof is in the new numbers.  The autism rates skyrocket as this month’s awareness campaign kicked off.  Just days before April began, the CDC revealed a new rate.  An even higher rate.  Another jaw-dropping-rate-but-let’s-do-nothing-about-it rate.  Granted, we’re being told a different formula and strategy were used to calculate this current number, but the number still screams, “THE AUTISM EPIDEMIC IS GROWING, AND IT’S GROWING AT AN ALARMING RATE.”  What response did we get in reply? 

Ho hum, it’s just autism.

This autism awareness month, which other groups chose to celebrate and embrace, saw an announcement that autism is affecting 1 in 50 school-age children.  1 out of 50.  1 out of 50 who struggle with speech, social skills or personal care.  1 out of 50 who are dependent on another human to be fed, clothed and bathed.  1 out of 50 who require intense intervention and therapy that insurance companies refuse to cover.  1 out of 50 who may never live on their own or feel independence as previous generations have.   I find nothing to celebrate, nor embrace in these numbers and what it means for so many children’s futures.

Continue reading "Are We Done Yet?" »

Dan Olmsted, Dan Olmsted

Weekly Wrap: Autism Science, Doing Autopsies on Plane-Crash Victims

AofA Red Logo Ayumi YamadaBy Dan Olmsted

When the mainstream media and medical establishment talk about autism long enough, they end up babbling incoherent nostrums about early detection, greater awareness, the joys of disability and, finally, pure noise. The "news" product that gets extruded through the tube becomes stupider and stupider and older and older.

That's where we are in Autism Awareness Month, limping to the finish line with the last embers of empathy all but extinguished.  I just read as "new" the idea that valproate can cause autism. Yes, we know. And the most delectable morsel had to be the comment in the Times this week, regarding the wrinkled placenta theory of autism, that one researcher had sent another "Milky Way bar-size sections of 217 placentas."

Yum! Allow me to quote from one of our valued commenters, "Barry," in response to someone touting their scientific credentials on AOA:

"It's little wonder that you arrogant, overeducated buffoons have wasted so much time ... and have yet to accomplish anything! What you 'scientists' are doing, is roughly the equivalent of an air crash investigator completing autopsies on all the plane crash victims ... to try and figure out what caused them all to die!

"These vaccine injured children that you prefer to call autistic, have one big thing in common. They all have severely dysfunctional immune systems, which in most cases are relentlessly attacking their own bodies. Hmmmmn... severely disabled immune systems, that have suddenly become rampant in the most vaccinated generation in the history of mankind. Is it really that hard for you 'scientists' to connect the dots on this?"

Yes, it is hard, when rather than listening to parents or calling for vax-unvax data stat or drawing the logical conclusions about the neurotoxicity of ethylmercury, you are shipping Milky Way bar-size portions of placentas to each other.

--

Speaking of listening to parents, Joan Campbell told me this week that her site followingvaccinations.com now has 1771 comments from more than 150 countries all saying the same thing -- that injury, including autism, and even death followed directly and swiftly after vaccinations. When I wrote about it just a couple of years ago it had half as many.

As I said at the time, this is one of the most important documents ever assembled regarding children's health and, among other things, a standing reproach to the glib assertions that things like autism just kinda sorta happen around kinda the time when kids get some shots or sumthin' like that.

Let's just take the first entry:

"Ana Maria Abba  I believe my son's issues stem from the two flu vaccines I was strongly advised to take during pregnancy. I did an alternative vaccine schedule. He developed normally until 9 months when he started to get sick a lot. I looked and it seemed to be around when he got the polio shot. I believe he had mild autism at 2 yrs (I didn't know that then but was starting to be suspicious) then I gave him the Hep B shot since I had just moved to Malaysia and was freaked out about the 3rd world country thing. Anyway after that shot he developed a bad fever. He also lost his strength which was visual learning. He stopped reading his books. He really went downhill after that. He was diagnosed about that same time. Polio and others in Littleton, CO Hep B Kuala Lumpur, Malaysia"

And one from the Z's:

"Dustin Zeimet  Our son was administered hib and the flu vaccine in Cedar Rapids, Iowa. Within 3 days we started seeing headbanging, hitting and many more meltdowns than usual.  He is almost 4 now and his regression of skills into autism started between 13 and 15 mo."

Now that's the kind of autism awareness we need a lot more of.

--
Dan Olmsted is Editor of Age of Autism.
Anne Dachel

Dachel Media Update: More Awareness, Services, MMR

Online newsBy Anne Dachel

Read Anne's commentary after the jump.
 
April 25, 2013, The Province: YouDocs: Absolutely no link between vaccines and autism, so get you and your children inoculated

April 25, 2013, NBC 6 South Florida: Miami-Dade County Public Schools Throw Massive Prom for Students With Autism

April 25, 2013, Union (SC) Times: Creating awareness of Autism


April 25, 2013, WHEC Rochester, NY: Autism Awareness Month


April 25, 2013, UK Telegraph: Mother of autistic boy still fears MMR vaccine


April 24, 2013, Boston Globe: Parents applaud autism study recommendations Autism study suggests new model for providing services

Continue reading "Dachel Media Update: More Awareness, Services, MMR" »

Katie Wright

Nancy Snyderman's Latest Panic: It's a Cin-namon.

CinnamonBy Katie Wright

According to the new issue of “Pediatrics” there is a terrifying new health crisis gripping American teens: “The Cinnamon Challenge!” Thank God for Dr. Nancy Synderman for alerting parents like me of this pediatric crisis sweeping the nation.

Cue the ominous music! The Synderman segment on “The Today Show,” began with Dr. Nancy “sounding the alarm on the Cinnamon Challenge!” Evidently some dim-witted teens are uploading videos onto the Internet of themselves trying to swallow a tablespoon of cinnamon. Apparently, according to Dr. Nancy, ingesting large amounts of cinnamon CAN be dangerous.




You are very welcome. I know how many parents out there are there are so grateful to me for sharing Dr. Nancy’s message. That’s right, swallowing large amounts of cinnamon (and maybe paprika and coriander too!) is dangerous. If you are doing this STOP! You are setting a bad example for your impressionable teens! Consider putting a lock on your spice drawer. It is up to you to protect your family and potentially save your child’s life!

The Dr. Synderman segment cut to petrifying video of coughing cinnamon covered teens. It may not be appropriate footage for all to see, so you are forewarned. Synderman informs us that the true danger of “The Cinnamon Challenge” is that the ingestion of cinnamon triggers a gag reflex. This phenomena is artfully illustrated in a video of a coughing teen spewing cinnamon all over his clothes shouting, “Oh my God!” Oh my God indeed! Then- yes it gets worse- there is footage and audio of an ambulance blaring down the street, supposedly taking this cinnamon injured teen to the hospital. I only hope this boy survives…

Dr. Nancy interviewed a pediatrics professor  who informed the viewer that the “Cinnamon Challenge” is on the rise and has serious consequences. The pediatrician warns us that the “Cinnamon Challenge” can lead to inflammation and pain! Hmmmm…inflammation and pain….where have I heard that before? My son’s autism is a direct result of brain and body inflammation, which causes tremendous pain…but Dr. Nancy doesn’t report on that….and I have yet to see one “Pediatrics” article which really addresses the kind of brain and body inflammation autism which affects a million kids.

Continue reading "Nancy Snyderman's Latest Panic: It's a Cin-namon." »

Current Affairs

April 27 Health Freedom and Vaccination Exemption Rights Event McLean, VA

Center for personal rights
Celebrating Health Freedom in DC, MD & VA

Vaccine Exemption Rights, Parent Observations, Informed Consent with special guest, internationally renowned academic gastroenterologist Dr. Andrew Wakefield

Saturday April 27th
1:00-3:00 p.m.
McLean Community Center
1234 Ingleside Avenue McLean, Virginia 22101
Suggested donation of $15 at the door*

When the Vaccine Schedule Doesn’t Quite Fit: Parents Making Choices

Many parents today have questions about the CDC recommended vaccine schedule, some choosing to spread out or delay required vaccines; others choosing to skip individual vaccines or even to avoid vaccination altogether. In Virginia, Maryland, and the District of Columbia, parents have a legal right to exemption from vaccines for religious or medical reasons. Vaccine Epidemic lead editor and executive director of the Center for Personal Rights, Louise Kuo Habakus, will review these laws and their application for school, camp and daycare entry, and take questions from the audience.

The MMR Story, Eighteen Years Later: Parent Observations Matter

Continue reading "April 27 Health Freedom and Vaccination Exemption Rights Event McLean, VA" »

Anne Dachel

Dachel Media Update: Placenta and Pills

Online newsBy Anne Dachel

Two stories are interesting.  One is the Fox News report on detecting the risk for autism in a child by examining the placenta at birth.  The other is from the Wall Street Journal.  It's on research to find markers for autism in a child's blood.  Put those stories along side the New York Times piece on drug companies seeking to come up with drugs to treat autism, and it's pretty clear, autism is here to stay and we are adjusting to the disorder.  Imagine the possibilities for investments in methods for detecting autism and medicating those with the disorder---for life.  The stories about using the placenta and blood to detect autism reinforce the claim that children are born with autism.  In the end, it's always going to blamed on the parents.
 
April 25, 2013, Fox News: Abnormal placenta may reveal newborn's autism risk

April 25, 2013, New York Times: Public-Private Effort Seeks to Expedite Discovery of Autism Drugs -

April 24, 2013, Madison.com (WI): Dr. Zorba Paster: Link between shots and autism is a myth : 77-square

April 24, 2013, CBS Baltimore: Roar For Autism Event Will Be This Sunday

April 23, 2013, The Oregonian: Portland-area pediatricians split ranks over vaccine skeptics |

 April 23, 2013, Wall Street Journal: Blood Test Aims to Detect Autism

 

Continue reading "Dachel Media Update: Placenta and Pills" »

Anne Dachel

A Vaccine to Treat Vaccine Damage

Irony rustoleumBy Anne Dachel

From Science Daily.

"A first-ever vaccine created by University of Guelph researchers for gut bacteria common in autistic children may also help control some autism symptoms.  The groundbreaking study by Brittany Pequegnat and Guelph chemistry professor Mario Monteiro appears this month in the journal Vaccine.

"They developed a carbohydrate-based vaccine against the gut bug Clostridium bolteae.
"C. bolteae is known to play a role in gastrointestinal disorders, and it often shows up in higher numbers in the GI tracts of autistic children than in those of healthy kids.

"More than 90 per cent of children with autism spectrum disorders suffer from chronic, severe gastrointestinal symptoms. Of those, about 75 per cent suffer from diarrhea, according to current literature. Little is known about the factors that predispose autistic children to C. bolteae,' said Monteiro. Although most infections are handled by some antibiotics, he said, a vaccine would improve current treatment.

"'This is the first vaccine designed to control constipation and diarrhea caused by C. bolteae and perhaps control autism-related symptoms associated with this microbe,' he said. 

"Autism cases have increased almost sixfold over the past 20 years, and scientists don't know why. Although many experts point to environmental factors, others have focused on the human gut.

"Some researchers believe toxins and/or metabolites produced by gut bacteria, including C. bolteae, may be associated with symptoms and severity of autism, especially regressive autism."

So I guess all those experts at the Mayo Clinic and at the AAP who just four years ago said , there is no association between bowel disease and autism have egg all over their faces.

Continue reading "A Vaccine to Treat Vaccine Damage" »

Current Affairs, Dreams

Brilliance of Autism Exhibit, AutismOne

From Natalie's children's art book


Brilliance of Autism Exhibit, AutismOne, May 22-26, Intercontinental

Many artists on the spectrum will share their beauty and talent with attendees at AutismOne, May 22-26.  There will be an art reception in the hotel lobby art gallery on Wednesday, May 22, followed by days of art display and exhibits. 

Natalie Totire, whose lovely artwork is featured with this article, is just one of the artists who will be represented. As a child, Natalie only drew flowers. Later she would include animals in her drawings. Not until many years later did she start feeling comfortable drawing people. “My art isn’t just a hobby or a career. I have to use it to think and remember. If I don’t draw it or write something down, I barely remember it.”

For more information about the artists, please visit the Autism One Generation Rescue Conference site.
Anne Dachel

Dachel Media Update: Drugs and Autism

Online newsBy Anne Dachel

April 24, 2013, KARE-TV Minneapolis MN: Raising autism awareness in Minnesota

April 23, 2013, Chicago Tribune: Epilepsy drug valproate may lead to autism in infant

April 23, 2013, Fox 6 TV (Waukesha, WI): Students at Horning Middle School "go blue" for autism awareness

April 23, 2013, (MA) Commonwealth: Doctor: Possible Links Between Antidepressants, Pregnancy And Autism


 

Continue reading "Dachel Media Update: Drugs and Autism" »

Current Affairs

Guardian UK This Comment Removed By A Moderator

Anne"Anne Dachel
22 April 2013 6:28pm
This comment was removed by a moderator because it didn't abide by our community standards. Replies may also be deleted."
 
Here is the comment that was published and then removed.
The essence of Ms Chew's article is that autism is a genetic disorder that is inevitable.

There is no evidence that children are born with autism. My son wasn't. He didn't stop talking, stop looking at me and start showing all the signs of autism until he was vaccinated into his disability. Thousands upon thousands of parents say the same thing: theirs was a child that was born healthy and was developing normally until they received certain routine vaccinations.

This piece asks a question that isn't relevant because no official can tell us the cause of autism. The scary fact is that a once rare disorder is now so common we all know someone with an autistic child and we are being brainwashed into autism acceptance. This makes no sense.

Autism is an epidemic and there's never been a genetic epidemic in human history. Something is affecting the normal development of a generation of children and we have to stop covering up the truth.Anne Dachel, Media editor: Age of Autism
Kristina Chew, the mother of a son with ASD and an outspoken member of the autism community, published an article in the Guardian in the the UK on April 22, 2013. The title was sobering, Would you abort a disabled child?
 
And while the headline referred only to "a disabled child," a great deal of the focus was on children with autism.  Chew started the article by asking, "If you found out the baby you're expecting would be autistic, what would you do?"
 
She continued:
 
"Currently there is no prenatal genetic test for autism, the neurological developmental disorder that numerous children - 1 in 88 or even 1 in 50 - are being diagnosed with. Such prenatal tests exist for other conditions such as Down's syndrome. On learning their fetus could have this intellectual disability, between 70 and 85% of pregnant women in the US choose abortion, writes Amy Julia Becker, whose 7-year-old daughter Penny has Down's syndrome, in The Atlantic." 
 
Chew went on to talk about autism as a genetic disorder. She described what autism is like for her son.

"Scientists have been making gradual but continued progress in finding genes linked to autism, so the prospect of a prenatal text is not out of the question and it is often forced me to ask myself the tough question: would I have aborted my disabled child?

If I had known before Charlie was born that he would be severely autistic, I would still have decided to have him. I remember my OB-GYN finishing her explanation of amniocentesis by saying that "you just need to know your options" in case something "was wrong". I had long felt Charlie moving inside me. With memories from my college days advocating for a woman's right to control her body echoing in my head, I said to myself, Charlie's not even born, but I can't imagine life without him.

Continue reading "Guardian UK This Comment Removed By A Moderator" »

Current Affairs, Sponsor News

Autism Community Action Alert for Rep Darrell Issa

Action alertAs Autism Awareness Month winds down, let’s ask for some action in Canary squareCongress. 

Please contact Congressman Darrell Issa, chairman of the House Committee on Oversight and Government Reform, with the following messages:

1)    Thank him for holding a great hearing on November 29th, 2012. Let him know that you strongly support his investigation.  Last month, the CDC's latest parent survey reported a shocking 1 in 50 school-aged children with autism spectrum disorders - that's 1 in 31 boys - creating even greater urgency in answering the issues he and other members of the committee began to identify during that hearing.

2)    Ask Chairman Issa when the responses provided by CDC (Dr. Coleen Boyle) and NIH (Dr. Alan Guttmacher) will be made publicly available. Not only did Guttmacher and Boyle leave the hearing early, they took over four months to provide answers to the committee's important questions. The public deserves to see these responses in the exact context in which they were submitted to the OGR committee - including cover letters, references, and attachments.

3)    Chairman Issa stated there is nothing that is off-limits for what the OGR committee will continue to explore.  Ask him to promptly schedule the next hearing to investigate government malfeasance in covering up the vaccine/autism connection including, as examples, the following areas:

•    Evidence in the National Vaccine Injury Compensation Program  showing clearly that vaccines can and do cause autism

•    CDC's cover-up of the thimerosal/autism connection

•    CDC's suppression of evidence of the autism epidemic

Four ways to contact Congressman Issa:

1)    Call the office of the committee here -  202-225-5074
2)    Call his office in Washington, D.C. – 202-225-3906
3)    Fax his office in Washington, D.C. – 202-225-3303
4)    Send a Facebook message to the Committee’s page

Let’s take action to ensure more hearings move forward.

Kim Stagliano

April's Autism Images

Gianna High School


By Kim Stagliano

Autism awareness month has been overshadowed by recent news events. The blue glow of landmarks and skyscrapers has faded away for most Americans. Even those of us touched by autism have put aside the month's label for the day-to-day reality of caring for, helping, loving our children. 

Last week was our April vacation here in our Connecticut town. That meant long days of Count_von_countdowntime, which is always difficult for my girls, who depend our their routine. Bella, my youngest, kept handing me her purple knapsack. And off we'd go to look at the calendar and re-count the days until school was back in session. Cue Sesame Street's Count Von Count, a Stagliano entertainment staple, "That's three! Three more days until school starts! Ah! Ah! AAAAAAAAAH!"

My husband and I have tallied 37 cumulative years of caring for kids with autism in our home, if we use age 3 as the starting age for each of our girls.  37 years of facilitating, guiding, dressing, undressing, feeding, cutting food, bathing, toileting (that's mostly completed I'm thrilled to report) micromanaging virtually every aspect of the girls' lives - not because we are helicopter parents - it's simply what's required to keep them alive. I wish I could tell parents of younger children on the spectrum that life gets easier as the kids grow up - but for us and for most of the families I know with high school age children - it's getting a whole lot harder. The gaps of early elementary school turned into chasms in middle school and then canyons in high school and in "adult life?" The current programs available expect my kids to live in a parallel universe of managed care as if they leaped from childhood to advanced old age in the blink of an eye.  (Won't happen.) It's a harsh reality rarely spotlighted by blue lights.

But....   all is not lost. Never.  That photo at the top of the post? That's the showcase at the entrance to our public high school. And that pretty girl holding the Martha Speaks book? That is my beautiful daughter Gianna. She is 16 and considered a sophomore. The book she is holding is for a third grader. But take a look - our high school is saying,"Hey! This terrific kid is a member of our community and we are as proud of her as we are of our honors student who is going to Harvard in the Fall."

When Gianna's teacher sent me the photo, I just sat for second and took in the huge message it sent to her classmates, her schoolmates, the teachers, staff, everyone who walks by. I'm proud of our high school for honoring Gianna where she is - and for who she is.  

I suppose the showcase is about acceptance, a word I usually abhor. Today? I accept it. Now to turn Martha Speaks into, "People with autism speak."

CoverKim Stagliano is Managing Editor of Age of Autism. Her novel,  House of Cards; A All I Can Handle 50 pixel Kat Cavicchio romantic suspense is available from Amazon in all e-formats now. Her memoir, All I Can Handle I'm No Mother Teresa is available in hardcover, paperback and e-book.

 

 




 

Vaccine Safety

SaneVax: How Gardasil Changed My Life

Kirstie-2Managing Editor's Note: Below is the story of Kirstie, who became "one less" at the age of 12, and whose life was changed. Kirstie, a young woman who reminds me of our own Natalie Palumbo with her spirit, positive attitude and ability to use a trauma as a springboard to a bright future, write about her experience with the genital wart virus that was first sold to American females as a "cancer" vaccine meant to reduce worry. Thank you to Kirstie for sharing her story. And thank you to SaneVax for continuing to educate the American public about the reality of teen and young adult vaccination.

In 2007, Gardasil was a new vaccine which was supposed to make you one less girl who had to worry about cervical cancer. My parents thought it would be a wonderful way to protect me as I grew up. How could we have known the first injection would set off a chain of events that would alter my life forever?

At 12 years old, sports were a huge part of my life. Basketball, soccer, softball, dodge-ball, lacrosse – you name it. If it involved outdoor recreation, you could probably find me there.

I got my first Gardasil shot on the 23rd of April 2007. Shortly after, I started getting strange bruises on my arms and legs. No one thought much of it because we all assumed I had been injured playing the sports I so dearly loved. None of us thought it might be connected to the vaccine I had recently received.

May 29, 2007, I received the second injection. The unusual bruising got worse. Over the weekend of June 29th and 30th I hemorrhaged for two hours during each day. When I went to the doctor on Monday, they immediately sent me to the hospital to meet with a pediatric hematologist. I left the hospital with a diagnosis of Idiopathic Thrombocytopenic Purpura (ITP).

According to the Mayo Clinic, Idiopathic thrombocytopenic purpura (ITP), also called immune thrombocytopenic purpura, is a blood-clotting disorder that can lead to easy or excessive bruising and bleeding. ITP results from unusually low levels of platelets — the cells that help your blood clot.

Because of my low platelet count, I could not play any of the sports I loved for over a year. This was very hard for me to understand and accept. It made me very sad not to be able to participate in the activities that I loved. It was difficult to watch everyone else playing and having fun, while my activities were being limited.

Looking back, I can see how when one door closes, another opens. Because I couldn’t play sports, I had extra time to do other things. I discovered a passion for music and began to take private voice lessons and a musical theater class. Since I was unable to play sports, I began to focus on singing and performing.

In the past few years, I have become a very successful classical singer. I have won some prestigious awards and have been accepted into some excellent colleges for vocal performance with a concentration in music education, or music therapy. Had it not been for the extra time I had, I may have never have discovered my musical talent. Now, I focus most of my energy on singing and the performing arts. I am not sure that would have happened if my life had not been changed by ITP. My career path has definitely been influenced by the diagnosis which set me on a path that I am pleased to be on...   Read the full post at SaneVax.

Dr. Andrew Wakefield

Andrew Wakefield: More Questions for David Salisbury



Direct YouTube Link "Dr. Andrew Wakefield More Questions For David Salisbury"
Anne Dachel

Dachel Media Update: Bursting the April Bubble

Online newsBy Anne Dachel

Read Anne's commentary below the jump.

April 22, 2013, Cedar Falls (IA) Patch: Autism Speaks: An Interview with an Autism Expert

April 22, 2013, NPR: Young Adults With Autism Can Thrive In High-Tech Jobs


April 22, 2013, NJ.com: Union students blow bubbles for autism awareness


April 21, 2013, Miami Healthy Living: Some doctors choose not vaccinate their children


April 21, 2013, UK Sunday Times: Clinic fuels false MMR fears

April 20, 2013, Phillies: Phillies recognize Autism Awareness Month, invite autistic children to Saturday's game


April 20, 2013, UK Guardian: Totally untrue facts about Andrew Wakefield


April 20, 2013, NJ.com: Autism Awareness Month -- Treating Autism takes a community


April 19, 2013, MS Press: Mississippi needs better ideas for comprehensive autism services


April 19, 2013, UPI: Up to 10 percent of the population is affected by specific learning disabilities such as dyslexia and autism, British researchers say.


April 19, 2013, UK Telegraph: Measles epidemic claims first death

April 18, 2013, Milwaukee Journal-Sentinel: Alderman rips health officials over vaccination grant proposal

Continue reading "Dachel Media Update: Bursting the April Bubble" »

Teresa Conrick

Moleculera: New Lab Testing to Help Immune Issues Including Autism

MoleculeraLogoBy Teresa Conrick

It's official.  According to a press release, today April 22nd, Moleculera Lab's website will be live, to start sharing information about testing for Pandas/Pans. I have been writing about PANDAS and PANS for the past few years as they seem related to Autism, and for many of our children, much suffering.

From their website - What is PANDAS and PANS, and now--- CANS?:

"PANDAS is an acronym for "Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococci". PANDAS was first reported over a decade ago by Dr. Susan Swedo at the NIH, and affects children abruptly after streptococcal infections.  Childhood Acute Neuropsychiatric Symptoms (CANS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) are proposed as a new, broader classification that would expand both the etiological infectious agents and the clinical manifestations, to the current description of PANDAS. This is an important development since there are reported cases of patients fulfilling the clinical criteria of PANDAS but laboratory studies are negative for a recent group A streptococcal infection. Published reports have postulated that stress  as well as other types of infections can result in neuropsychiatric conditions, which include Borrelia burgdorferi (Lyme disease), Mycoplasma pneumonia, herpes simplex, common cold and varicella viruses."

How will testing help PANDAS/PANS/CANS and many childen also with an AUTISM diagnosis?

"Moleculera Labs provides personalized clinical testing services for individuals suspected of suffering from PANDAS/PANS, which are treatable neurologic conditions that may be associated with motor tics, obsessive compulsive disorders (OCD) and sometimes Autism Spectrum Disorders. This perplexing neurologic condition is believed to be associated with an autoimmune response triggered by commonly occurring infections which result in a patient’s antibodies targeting neurologic receptors in the body.."

This is very good news, and I am very thankful to Dr. Cunningham and her lab. Since Megan has an Autism diagnosis, an autoimmune diagnosis, and has had symptoms of PANDAS/PANS over the years, it is significant to finally be able to connect the many children and young adults who have tics, ocd, issues with eating, food and GI pain, rashes, agitation, aggression, sleep issues, enuresis, anxiety, hallucinations, regression in behaviors, regression in academics, and the gut wrenching effect of all of this on the families. Real medical treatments are essential.

Continue reading "Moleculera: New Lab Testing to Help Immune Issues Including Autism" »

Current Affairs

Dads Unite at Autism One

Super dadManaging Editor's Note:  Autism One reaches out in a special way to autism Dads.  Men bear a heavy burden in the autism community and are often left out of the conversations. Not at Autism One. Thanks to Cody Jordan, who has written for us in the past,  for sharing this preview of what's in store to help fathers connect and recharge their batteries.

By Cody Jordan

The Generation Rescue/AutismOne conference is just around the corner, and I’m making a call out to all the dads out there who are able to attend.  I’ve been going to this conference for a number of years, and the thing that I really enjoyed, other than learning more and more about recovering my son, is the camaraderie between all the dads.  I’m not so naïve as to think we’re wired the same as our spouses because we’re not, and sometimes we need to gather together to share “war” stories in our own unique way about our fight against autism.  And there’s plenty to do to which we can relate.
   
The first one I’ve always attended is a parent mixer on Thursday night.  It’s a good way to start the entire weekend, and one thing I notice is that once a few couples start talking, the wives and husbands separately gravitate towards each other.  And that’s just the beginning.
   
There are a few presentations that I, as a dad, have either attended before or something similar, the first being a presentation by David Geslak of Exercise Connection.  What I like about this is that you get and moving during much of the presentation, and that’s one of David’s main points about our children.  We need to start by getting them up and moving.  And some of the things I’ve learned gave me an excuse to go to the hardware store to buy building materials for makeshift pieces of exercise equipment for my son.  I even tried to include my son in the building process, and then he even got to use the equipment he helped make.  It’s an overall great presentation that gave me many ideas on how to get more involved with my son.

Continue reading "Dads Unite at Autism One" »

Current Affairs

Autism One Spotlight: Congressional Panel, RFK Jr. and More

Robert F Kennedy Jr 3Visit the Autism One website to register and learn about the array of presentations coming in May.

Friday, May 24  Robert F. Kennedy, Jr. will present the keynote speech.

Robert F. Kennedy Jr. has long been a stout defender of our environment, our democracy, and our American values. Mr. Kennedy serves as Vice Chair and Chief Prosecuting Attorney for Riverkeeper and Chairman of Waterkeeper Alliance. He is also a Clinical Professor and Supervising Attorney at a Pace University School of Law’s Environmental Litigation Clinic, Senior Attorney for the Natural Resources Defense Council, and earlier in his career he served as Assistant District Attorney in New York City.

In the area of vaccines Mr. Kenney was instrumental in the publication of Unanswered Questions, a peer-reviewed investigation of compensated cases of vaccine-induced brain injury. He is the author of the article Deadly Immunity, which documented the government’s efforts to conceal alarming data about the dangers of vaccines.    

Mr. Kennedy is a graduate of Harvard University. He studied at the London School of Economics and received his law degree from the University of Virginia Law School. Following graduation he attended Pace University School of Law, where he was awarded a Masters Degree in Environmental Law. 


CONGRESSIONAL KEYNOTE PANEL!

Congressman Dan Burton, Congressman Dave Weldon, MD, and Congressman Bill Posey are presenting Friday, May 24th.

Continue reading "Autism One Spotlight: Congressional Panel, RFK Jr. and More" »

Cathy Jameson

Autism and Vaccine Injury: It's a Mad Mad Mad Mad Lib World

MadLibsThis week Cathy Jameson shared her post as "Mamacita" from the Thinking Moms' Revolution.  It's a "Mad Libs" take on well visits.  Remember Mad Libs? The small flip over story books where one person asked another for a verb, noun, adjective - and inserted them into a story. The results were always funny, sometimes even naughty.  But never so ________ (adjective) as this post from Cathy.

Everywhere. Every state. Every race. Across many ethnicities, neighborhoods and communities. We Thinkers hear it: All. The. Time. It’s the same story. Different kid. Different doctor’s office. Same regressions and unexpected journey. Surely you, too, have heard it before. It goes something like this:

I took my brand new baby to the ___________ (adjective) pediatrician’s office for the second time. The first “well-baby” visit didn’t go very well at all. The __________ (adjective) nurse told me quite ___________ (adverb ending in -ly) that she wanted to stick __________ (#between 1-15) vaccines into my child. “_____(same #)! __________(exclamation)”, I balked. I looked around the exam room and wondered what my Thinking Moms friends would say about this ___________ (adjective) plan.

**Here’s where things can change for the better. What if more parents realized they had more of a say in their child’s health care? Back in the exam room: I looked around the exam room and wondered what my Thinking Mom friends would say about this ____________ (adjective) plan.

Read the full post at Thinking Moms' Revolution.
Dan Olmsted, Dan Olmsted

Weekly Wrap: Yes, Blame Government For the Return of Measles

AofA Red Logo Ayumi YamadaBy Dan Olmsted Dr. Andrew Wakefield suit headshot

The British media and medical establishment can't get over Andy Wakefield's gall when he claimed, in a post published here, that an outbreak of measles in Wales is squarely the fault of British health officials. Has the man no decency? At long last, has he no decency?

Well, I certainly agree with Andy that the blame for the measles outbreak rests squarely with the public health establishment. Separate measles, mumps, and rubella vaccines were available when Andy was asked, and gave his honest view, that parents should avail themselves of that choice until more research was done. A few months afterward, the government got rid of those shots, and parents were left with all or nothing -- the MMR, about which quite reasonable concerns persisted, or no shot at all.

Many chose nothing, no shot at all, making the quite reasonable calculation that the risk of those diseeases was better than a 1-in-50 shot at getting autism (actually, of the three, the only good case is for the rubella vaccine, to prevent congenital rubella syndrome in babies). The same dynamic has played itself out in the United States, where separate shots were available, then they weren't, then they were going be, but then they weren't -- and still aren't.

The British establishment would like to paint Andy as a uniquely hubristic satanic fraudster -- who else would engender concerns about the safety of vaccines, and then blame the authorities when parents don't get them in the prescribed way?

Well, Jon Poling, for one. In 2008, Hannah's father wrote a column for the Atlanta Journal-Constitution in the wake of his daughter's multi-million-dollar award in vaccine court for, yes, vaccine-induced autism: 

 "The current vaccine schedule, co-sponsored by the CDC and the American Academy of Pediatrics, injures a small but significant minority of children, my daughter unfortunately being one of those victims. Every day, more parents and some pediatricians reject the current vaccine schedule. In an abundance of caution, meaningful reform must be performed urgently to prevent the re-emergence of serious diseases like polio or measles.

"As a neurologist, I have cared for those afflicted with SSPE (a rare but dreaded neurological complication of measles), paralytic polio and tetanus. If these serious vaccine-preventable diseases again become commonplace, the fault will rest solely on the shoulders of public health leaders and policymakers who have failed to heed the writing on the wall (scribbled by my 9-year old daughter)."

To repeat, the return of measles would rest solely on the shoulders of public health leaders, according to the father of a child compensated for vaccine-induced autism. 

As I wrote at the time, Dr, Poling is the real deal, educated at Johns Hopkins, devoted both to his daughter and his patients, tempered by reality. He's mild-mannered. He's mainstream. He's credible. And he says that if a disease like measles emerges again, "the fault will rest solely on the shoulders of public health leaders and policymakers."

As I wrote then, "I'm starting to think we should rename the CDC the Centers for Disease Contagion. You've all seen the news that there are suddenly more measles cases in the United States and the CDC is blaming it in part on the increasing reluctance of parents to vaccinate their kids.

"But it's the CDC's fault, and no other. ...  Right now they're triggering a measles outbreak, and that may just be the start of the havoc they're going to cause unless Congress or the (next) president reminds them who's REALLY in control around here."

Oh, and by the way, vaccines  including the MMR are the cause of the autism epidemic. More and more parents, families, and ordinary people know it. Andy Wakefield and Jon Poling are stating the obvious -- parents have lost trust in governments that say otherwise.

--

Dan Olmsted is Editor of Age of Autism.

 

Dan Burns

What Happens When You're Gone? Aging Out – ASD Adults & Their Parents Need Solutions for the Future

Tombstone-your-name-here


By Dan Burns

Our ASD kids turn 21 or 22 and the school bus stops coming, “student services” are gone and social services dwindle to a trickle, but life goes on for them. How independent will your adult child be? And what happens to our kids after you and I leave the planet? The good news: creative residential options are springing up around the country. Here are some ideas for creating live/work/play situations and environments that go beyond traditional group homes and could outlast us and our at-home care.

Diane Belnavis. Buy an abandoned house on a cul-de-sac and rehab it. Rent bedrooms to your ASD friends, who pay out of their SSI/SSDI and housing choice (Section 8) vouchers. If vouchers are not available, share with a housemate to offset costs. Your renters hire their own support staff as needed, so you’re off the hook. Your job is to provide vocational opportunities and extra income through home-based microenterprises, horticulture, or job carving. For example, you might grow vegetables and share a stall at a farmer’s market, or partner with a retirement village to provide painting, maintenance, or lawn care service – a job that is often done at cash-strapped senior centers by prisoners – in exchange for cash stipends for your guys. Enrich your day program by holding weekly pot-luck lunch get togethers – or a get together plus Bingo. Invite other DD folks in the area to join you for lunch and bring their support staff as guests. Service clubs and church groups typically come loaded with ideas for educating, employing, and entertaining your guys. For more enrichment, partner with local charities, sororities, and fraternities for outings to parks, nearby cities, and recreational centers. Properly nurtured, your unlicensed “not-a-group-home” can evolve into an attractive, vibrant, mutually supportive community. To spice things up, buy and rehab another house on the same street, and create a microboard to run it when you enter your dotage. You’re not licensed and not accepting Medicaid, so Olmstead restrictions don’t apply. For a shining KISS (Keep It Simple) example, see www.juniperhillfarms.org

Inspired by Cathy Boyle. At age 18, enroll your child on the waiting list for food stamps, a Section 8 rent voucher, and a Medicaid waiver. Use a portion of your child’s SSI/SSDI to offset your own income, which you invest until your child pops to the top of the wait list. Use your investment to make a down payment on a house ($400/month for a ten year wait = about $50K plus return on investment). Lease the house to a service provider who will bring in more ASD guys. Their rent pays the lease which pays the mortgage and most of the cost of services, so your monthly out-of-pocket costs are minimal. Because you’re the owner, you’re the boss, which is the way you want it for your child. For more ideas, go to http://www.autismhousingpathways.net/

Continue reading "What Happens When You're Gone? Aging Out – ASD Adults & Their Parents Need Solutions for the Future" »

Anne Dachel

Dachel Media Update: Wales Measles

Online newsNEWS VIDEOS FROM WALES---Coverage on the measles outbreaks.

ITV made an attempt at covering both sides of the MMR controversy, although it's clearly NOT BALANCED. Here a mother, seen with her severely autistic son, refuses to vaccinate her youngest child because of the vaccine damage she witnessed in her son, Eddie.

Mother's autism fears despite debunked MMR theory - ITV News

Up against what the mother said is everything else from ITV.

Endless reports from the press in Wales have one strong message: measles has reached an epidemic level because parents didn't vaccinate over fears about side effects.

Continue reading "Dachel Media Update: Wales Measles" »

Current Affairs, Dreams

Book Review: The Thinking Moms' Revolution

Tmr bookBy Anne Dachel

After reading the Thinking Moms’ Revolution, I know one thing: this is our book.  The twenty-three moms and one dad included in TMR tell all our stories to some degree.  And they are THINKING.  They question, they research, they dispute, and they discover.  The title is a perfect one for what these people do.
 
As we all know, no two autistic children are exactly alike and neither are their parents’ experiences.  There are however, lots of common threads revealed in the book.  There are the accounts of the bubbling excitement and great expectations parents had when their children were born and the disbelief and fear in the face of regression and developmental stops.  There are the doctors who failed to understand what autism is doing to our children or to provide real help to parents.
 
TMR is also about hope and success.  It’s moms who struck out on their own to find answers and did it.  It was the Internet that was their lifeline. There they found resources and support groups like the Thinking Moms, the National Autism Association, Age of Autism, and Talk About Curing Autism.  Most of all, they made connections with other parents that empowered and informed them.  The computer provided the education they needed.  Moms learned about homeopathy, organic food, supplements and special diets. 
 
“Homeopathy brought speech, receptive language, cognitive gains and increased awareness.” 
p.16.

Continue reading "Book Review: The Thinking Moms' Revolution" »

Sponsor News

SafeMinds Congressional Autism Educational Forum Video

SafeMindslogo_colCoalition of SafeMinds Hosted a Congressional Autism Educational Forum on April 12, 2013 in Washington, DC. The topic Was Environmental Factors - What are They and What Do They Matter? Goal for Congress is to move from Autism Awareness to Autism Action. Eric Uram opens the briefing. Slides and materials available at safeminds.org


Anne Dachel

Dachel Media Update: April Continues

Online newsBy Anne Dachel

Read Anne's commentary after the jump.

April 17, 2013, East
Central IL News Gazette: Learning to 'embrace the challenge' of autism

April 16, 2013, CBS
Pittsburgh: New Study Focuses On Environment & Autism

April 15, 2013, American
Medical News: Study debunks a common autism worry about vaccines

Continue reading "Dachel Media Update: April Continues" »