Jenny McCarthy and Jim Carrey talked about the rally on Good Morning American before we hit the steamy streets of DC. Click HERE.
Jenny McCarthy and Jim Carrey talked about the rally on Good Morning American before we hit the steamy streets of DC. Click HERE.
Check this out from our sponsor TACA:
Big Wave Surfer Laird Hamilton and Steve & Barry's Launch
The Wonderwall™ Collection, A New Surf & Skate Apparel Line
Line Includes Unique Tee That Will Benefit Autism Awareness & Help for Families
The world’s greatest big wave surfer and epic waterman Laird Hamilton is teaming up with Steve & Barry’s to launch the WONDERWALL collection, a surf and skate apparel line for men that will debut May 15, 2008. A water sports pioneer with an unquenchable thirst for adrenaline, Hamilton is known for pushing the boundaries of water sports with awe-inspiring feats. He was the first to complete a 360-degree loop on a surfboard, created tow-in surfing to tackle huge waves such as massive 70-footers, and made marathon-like paddleboard journeys around the world. The WONDERWALL collection represents Hamilton’s first clothing line, inspired by his sense of style, attitude and overall approach to life.
Monday am: We've rearranged the sidebar elements. According to our blog host, this should help you download the site. Again, me know here or at kim stagliano at g mail dot com. Thanks for your patience.
We hear you! Consulting with blog platform company first thing Monday.
We've heard that some readers are having a difficult time opening Age of Autism since we installed the new look. The tech team at the blog company assures us that Internet Explore and Firefox should open the site fine.
If you've had problems with the site, please leave a comment and tell us what browser you're using. We'll look into the issue.
To find your browser go to: http://www.iwebtool.com/browser_details and you'll see all of the details of your computer.
This just in, Barry has been relieved of his job. Any word if the homeowner got her swingset approval, please let me know.
By Kim Stagliano
I contacted Mr. Barry Barnett about the Meadowood Lakes Homeowners Association report that a swingset for a child with autism was out of compliance with neighborhood rules, which do not allow outside play apparatus. Mr. Barnett was kind enough to send me this letter (below) to clarify the situation for our readers.
Autism brings with it myriad struggles and the Mom, Mrs. Chapek, who has CP, seems to have to bear more than most of us. Thank you, Mr. Barnett. We appreciate your work to help the Chapek family.
To whom it may concern;
As you may be aware, the undersigned serves as the managing agent for Meadow Lakes Homeowners Association, Inc. My responsibilities include keeping the residents of the property informed of the various rules of the community. These rules are aimed at promoting the health, safety, and general welfare of ALL residents.
Jenny McCarthy is on Fox News tonight at 10pm Eastern on Greta Van Susteren's, "On The Record," program. Read more HERE.
Barbara Fischkin has a powerful piece titled, Why An Older Autism Mom Marched With Robert Kennedy Jr., Jenny McCarthy And Jim Carrey At Green The Vaccines running HERE at Huffington Post.
Please leave her plenty of comments at HuffPo.
Here's a snippet:
Late last year we took our son to a doctor who treats environmental toxicity and slowly as he gets cleaned out he is making progress, taking new steps. Literal steps. We can ask him to go upstairs and get his shoes on and he does. We don't have to follow him to the closet to make sure he gets there and gets it done.
He used to have eight bowel movements a day. Since he started treatment he usually has one or two. He seems more focused. His pediatrician who has known him since he was diagnosed saw him earlier this month for his yearly check-up and pronounced him "a different child."
By Beth Clay
June 5, 2008
Yesterday, close to 10,000 families came to Washington, DC to join Jenny McCarthy, her son Evan and actor Jim Carey for the “Green Our Vaccines” Rally. Many of these families have children who developed an autism spectrum disorder subsequent to a vaccine injury. After marching from the Washington Monument to the Capitol grounds, these families participated in a rally to demand a safer vaccine supply and schedule. Many went on to meet with their elected officials to ask for their support on the issues.
Since the very first Congressional hearing looking at vaccine injuries, opponents to the vaccine safety discussion accused first Congressman Burton and then the families of the vaccine injured of being “Anti-Vaccine”. These families would better be portrayed as “Anti-Injury.”
There. That headline will torment Mr. Barry Barnett on his Google searches for a good long time. Are you tired of kids with autism getting the short end of the stick? Read this story....
Mr. Barry Barnett is the head of Barnett Management, of Beachwood, Ohio. Barnett Management runs a neighborhood association for MEADOW LAKES in North Ridgeville, Ohio. Mr. Barnett is trying make a mother who has cerebral palsy take down her autistic son's swingset because "play apparatus" is not allowed in the neighborhood according to the association rules. Mom had gotten a verbal "go ahead" from a previous board. Mom is unable to drive her son to the park.
Ginger Taylor posted 140 amazing photos from the rally at her blog Adventures in Autism. You can find them HERE. Thank you, Ginger.
Surely the ADA and AAP are having a confab today on how to spin this news that (shock of all shocks) drilling mercury into human heads may cause neurological damage. By the way, did your dentist ever tell you that the "silver" fillings were made from mercury? Of course not. Just as your pediatrician never told you he was injecting mercury into your infant. Nor does your OB tell you he is injecting mercury into you and your fetus. Hide. Deny. Spin. Lie. Oh, and first do no harm.
WASHINGTON (Reuters) - Silver-colored metal dental fillings contain mercury that may cause health problems in pregnant women, children and fetuses, the Food and Drug Administration said on Wednesday after settling a related lawsuit.
By Kim Stagliano
Perez Hilton blogged the rally. See the gal in white sunglasses to the left of Jenny? That's me as I followed Jenny and Jim to live blog. It's kind of fun to be on Perez, as long as I'm clothed, sober, not flashing anything at the camera and not on my way to rehab....
If you have a report and/or photos please send them to me at Kim Stagliano. Thanks!
Watch the CNN VIDEO of both Jim Carrey and Jenny McCarthy at today's rally. It's four minutes long, and the last 30 seconds are of rally participants holding up photos of their children.
Jenny and Jim were inspiring!! Photos to follow.
RFK Jr. calls Dr. Paul Offit of CHOP the biggest "BIOSTITUTE" in the country. Good word, yes?
Darn it's hot out here!
Kim Stagliano your live blogger.
By Kim Stagliano
Just one day until Jenny McCarthy and Jim Carrey's GREEN OUR VACCINES rally! Click HERE to learn all about it! Please click over to one of our founding sponsors, GENERATION RESCUE, to learn more about autism and how to treat it.
How does a mother of three kids (me) with autism get out of town? Twice in two weeks no less (Autism One was just a week ago.) Very carefully. I have one daughter (Miss Bella) home with a stomach bug, two who have had the bug and might be over it and a husband who is going to have a VERY good Father's day for holding down the fort while I'm gone!
See you in DC friends. I'll be blogging as much as I can live from the march. Not sure if we can use cell phones during the march.
(PS) Do you like our new Age of Autism look? More to follow!
Log onto AUTISM ONE RADIO tomorrow for a live broadcast from the GREEN OUR VACCINES rally.
8:45 am - 12:30 ET
Autism One Special Edition
THE GREEN OUR VACCINES RALLY!!!
LIVE FROM WASHINGTON, DC
Join thousands at this historic event spearheaded by Jenny McCarthy and Jim Carrey Organized by TACA, Moms Against Mercury, and others.
Hosts: Teri Arranga, Manette Loudon, Rob & Deb Sidell
Feel free to make reservations for dinner (Sequoia seats about 700) or just mingle in the bar areas with friends both old and new as you get ready to march!
Sequoia is located at 3000 K Street NW Washington, DC 20007 Tel: 202.944.4200
Please RSVP at www.safevaccines.org and put “Meet and Greet” in the comments line.
Click HERE for contact information for the restaurant and a picture of the inside seating area.
*No host means that you meet and mingle among yourselves, there's no formal host.
(PS) If you attend, please send me digital photos (with captions) that I can run on Age of Autism. Send them to me at Kim Stagliano.
Compiled By Generation Rescue, June 2008
* In the 1980s, children received 10 vaccines by the age of 5. Today, they receive 36.
* Vaccines have never been tested in combination, meaning that adverse events that may happen from receiving too many vaccines at once are unknown.
* CBS News recently reported the U.S. government has paid more than 1,300 brain injury claims in vaccine court since 1988.
You know the response is coming.
For anyone watching the news for the last two months, the “other side” (aka, The Vaccine Lobby) has been getting annihilated in the press, online, in the coffee shops, schools, watercoolers, and, of course, on Larry King Live.
There’s too much power, profits, and prestige at stake for the other side not to fight back, at least a little.
With that as backdrop I was delighted to get an email from a friend with a link to a new, curious website called Voices4Vaccines.
The website is under construction, but the home page opens with this noble goal:
“Voices for Vaccines has only one goal to provide science-based, accessible, and clear information about the benefits and risks of vaccines and vaccine-preventable diseases. Our leadership consists of scientists and concerned individuals who are totally committed to supporting continued efforts to eradicate vaccine-preventable diseases.”
This new organization also makes a veiled reference to you-know-who and our movement in general:
“But we also know that the loud voices and famous faces are not necessarily giving the best information.”
Autism Speaks, the nation’s leading non-profit organization dedicated to autism is championing an effort and encouraging race fans to cheer for a special goal at this weekend’s NASCAR Sprint Cup Series race at the Dover International Speedway. This goal will extend far beyond the racecars crossing the finish line by bringing the NASCAR community a unique "Goal Line" dedicated to Autism Speaks.
Read more HERE. Ladies and gentlemen, start your engines.
Managing Editor's Note: We will be live blogging from the rally. Find me to get your picture on the blog! I'll be wearing a green t-shirt... KS
NEW YORK, May 27, 2008 /PRNewswire via COMTEX/ ----Jenny McCarthy and Jim Carrey will lead the Green Our Vaccines march, rally and press conference on Wednesday June, 4th at the Capitol Building, West Capitol Grounds in Washington, DC. The sponsored event has been organized by Talk About Curing Autism (TACA), Generation Rescue, Healing Every Autistic Life, and Moms Against Mercury.
From The Baltimore Sun
By Tyeesha Dixon | Sun reporter
3:24 PM EDT, May 28, 2008
Howard County police are searching for a missing teenager who family members believe walked away from the apartment where he lives yesterday morning.
Howard Davenport McGill, 17, who has autism, was reported missing by his family last night, police said. He lives in the 5700 block of Stevens Forest Road in Columbia.
May 28 Update. The teacher, Wendy Portillo, has been reassigned.
PORT ST. LUCIE, Fla. — A kindergarten teacher has been reassigned after she allowed her students to oust a fellow 5-year-old from the classroom because of his disciplinary problems. Read the article HERE.
It's been a tough week for people with autism. Particularly children. In this story, a Kindergarten teacher created a perverse show and tell, at the expense of a student. They ought to call this town Port St. Lucifer.
PORT ST. LUCIE — Melissa Barton said she is considering legal action after her son's kindergarten teacher led his classmates to vote him out of class.
After each classmate was allowed to say what they didn't like about Barton's 5-year-old son, Alex, his Morningside Elementary teacher Wendy Portillo said they were going to take a vote, Barton said.
By a 14 to 2 margin, the students voted Alex — who is in the process of being diagnosed with autism — out of the class.
Read the full article HERE. And add your comments on their site. There are over 375 already.
Well, it's not quite the Methodists decrying the use of mercury in our children, but it looks like autism is now on The Pope's radar screen, after the restraining order was issued against a family with a Catholic autistic child in Minnesota.
Autism campaigners are now calling on Pope Bendedict to issue guidelines to Roman Catholic churches on how to deal with children and adults with disabilities like autism and Asperger's Syndrome. Other Church leaders around the world have been urged to do the same.
Read the full article here HERE.
By Kim Stagliano
Every so often I'll read on a blog or non-autism list, "Well autism isn't life threatening like cancer. You can't compare them." To which I say, "horsepucky." (Thanks, for that word, JB.)
Here are two tragic stories about recent deaths of children with autism. Forget the crazy mother or aunt who kills a child, that's another horror altogether. I'm talking about the "gift" of autism so impacting a child's ability to sense danger, to understand consequences, to ask for help, the the world simply swallows him (or her) whole. Leaving an unfillable hole in a family's heart.
Happy Memorial Day to all of our readers. And thank you to those of you in the military or retired military.
Don't forget to go over to AUTISM SALUTES! to learn about the great work Angela Warner is doing to get insurance coverage for Tricare families.
8:00am Central time: Dr. Jon Poling and his wife Terry received a standing ovation. As did this man just seconds ago; Dr. Andrew Wakefield. He's about to begin his presentation called, "The Lesser Truth."
8:30am Central time: I just snuck out of the presentation to get ready for the media panel. Dr. Wakefield's, "Lesser Truth" is a missing X-Files episode about what he has gone through since the mid-late 1990's in a quest to help our children. I'm certain he will earn another standing ovation at the end of his talk. And several women may just faint.
There is a rather grim introduction to this article on insuring children with autism in Florida. Note the phrase, "...could force many large insurance plans to cover...."
Oh, and if you are with a smaller plan or self-insured, no coverage for you. And there's a $200,000 lifetime max. Which sounds like a lot of money to someone outside of the autism world. But with therapy hours costing upwards of $150 an hour and an early intervention recommendation of 30 hours of therapy a week, $200,000 will last you 44 and one half weeks. Hardly a lifetime.
TALLAHASSEE, Fla. -- With the hope that early diagnosis and treatment of autism will lead to better lives for thousands of children and families, Gov. Charlie Crist signed legislation Tuesday that could force many large insurance plans to cover the increasingly diagnosed condition.
Read more HERE.
GENERATION RESCUE TO TARGET PREVENTION AND TREATMENT-BASED RESEARCH FOR AUTISM AND ADHD – JENNY McCARTHY, DEIRDRE IMUS, AND KATIE WRIGHT JOIN BOARD.
Los Angeles, CA: Generation Rescue, a non-profit organization focused on prevention and recovery from Autism, ADHD and chronic illness, today announced the expansion of the organization through three major steps:
1. Jenny McCarthy, Deirdre Imus and Katie Wright have joined the Board of Directors.
Ms. McCarthy is a best-selling author, actress, activist, and mother who recovered her son Evan from autism. Her latest book, Louder than Words, profiled her own son’s journey of recovery. She is also the co-founder of Teach2Talk , which produces a DVD educational series that targets core speech, language, play and social skills through video modeling. “Generation Rescue was there for me when I was trying to figure out how to help my son, and now I’m looking forward to enabling Generation Rescue to help families everywhere,” said Ms. McCarthy.
FOR IMMEDIATE RELEASE
Contact: Senator Jay Paul Gumm
State Capitol: (405) 521-5586
Durant: (580) 924-2221
Mobile: (580) 920-6990
Editorial Support Building for “Nick’s Law”
There is Still Time for Oklahoma’s Autistic Children and Families, Gumm Says
OKLAHOMA CITY – Yogi Berra’s words – “It ain’t over until it’s over” – still has a slim chance of ringing true for families fighting for autism insurance, according to the bill’s sponsor.
Monday (May 19), two newspapers – both in predominantly Republican communities – published editorials in support of “Nick’s Law,” a measure by Senator Jay Paul Gumm that would require health insurance policies cover diagnosis and treatment for autistic children.
Huffington Post picked up the MSNBC story about the priest who issued a restraining order against a boy with autism. You can read the story and add your comments HERE.
By: Angela Warner
In my mind I see thousands of our uniformed service men and women, their spouses, and our children with autism saluting YOU Congressman Joseph Sestak! Congressman Sestak, you are a great American!
For the past (almost) three years, 95% of our military dependent children with autism have gone without any treatment for their autism spectrum disorder due to the failures of the TRICARE Extended Care Health Option (ECHO) program. This program segregated our children’s treatment and defined teaching our children the most basic living skills as special education. ECHO policy also put an arbitrary monthly dollar amount cap of $2,500 on our children’s treatment. You can read more about that HERE.
A Catholic priest has taken out a restraining order on a 13 year old with autism.
Glimpse the future. Today's cute 4,5 and 6 year olds with autism will be tomorrow's teenaged boys with autism. Some, like the boy in this story below, will be over 6 feet tall and 200 pounds. That turns a meltdown into a potentially dangerous situation for anyone in the vicinity. Bolting could mean mowing down an elderly person on her way to Communion. And could involve the police.
Dr. Paul Offit goes after the Poling decision in The New England Journal of Medicine. Dr. Offit makes money from vaccines. His career is predicated on vaccines. In the article, he says:
Unfortunately, in recent years the VICP seems to have turned its back on science.
Like the Werderitsh decision, the VICP's concession to Hannah Poling was poorly reasoned. First, whereas it is clear that natural infections can exacerbate symptoms of encephalopathy in patients with mitochondrial enzyme deficiencies, no clear evidence exists that vaccines cause similar exacerbations. Indeed, because children with such deficiencies are particularly susceptible to infections, it is recommended that they receive all vaccines.
Read the full the article HERE.
The following is an unauthorized transcript of IMUS interview with CBS reporter Sharyl Attkisson.
IMUS: Let's go to Sharyl Attkisson, CBS News, who had a report last night with Dr. Bernadine Healy about the possible link between thimerosal, a mercury based preservative, still in some vaccines, flu vaccines....and autism. Good morning Ms. Attkisson
Watch the interview here:
SHARYL: Good Morning.
IMUS: I had Dr. Healy on about an hour ago. The question I had for her is why did she want to get involved in this?
SHARYL: What did she say?
Click HERE to post your comments on the CBS News BLOG about the story by Sharyl Attkisson of Dr. Healy's thoughts on autism and vaccines, won't you?
And please leave a COMMENT HERE that will go directly to CBS NEWS to tell them how much you appreciate Sharyl's work! We need to support the journalists who stick their necks out on behalf of our children.
CBS was tipped off to cases as far back as 1991 where the gov't is paying families for brain damage for vaccine cases - the gov't is not tracking which of them would be called autism. Healy was shocked.
Tune in this morning to www.abcradio.com to listen to Don Imus live. He is having Dr. Bernadine Healy and Sheryl Atkisson from CBS on to discuss vaccines. Tentative time is 7:30am.
Points brought up right now live by Dr. Healy:
The Poling case is so important.
The principle of herd immunity drives vaccine thinking because of that there's a fear in public health community that people will stop getting vaccines.
Public Health officials feel: We are challenging something too important let's not do the studies or the science."
Sounds like Bill Clinton was talking to JB Handley while stumping for his wife in the Pacific Northwest. Click HERE.
The point is that Bill Clinton is in Oregon and uttered the word autism. Nothing more. Certainly nothing related to Bill Clinton using the term "born with..." which to him may have little difference from "diagnosed with" in terms of his knowledge of autism.
President Bill Clinton on KTVZ in Central Oregon: You do not want to bring your children into the world where we go on with the number of children who are born with autism tripling every 20 years, and nobody knows why," he said.
We'd like to see how the Offits, Tayloes and Gerberdings attempt to impugn "loudmouth" Dr. Bernadine Healy who says, "the government has been too quick to dismiss the possibility of a vaccine-autism link" in THIS CBS report by correspondent Sharyl Attkisson.
Today, a second round of autism test cases begins in federal vaccine court. Tonight on the CBS Evening News, we'll have exclusive interviews with the two families who are bringing the cases: two of nearly 5,000 autism cases that have been filed in this special court. The government and many scientists have consistently maintained for more than a decade that there is no link between vaccines and autism. The Institute of Medicine issued a report in 2004 that was intended to put the controversy to rest, saying that the weight of the body of scientific evidence does not show a causal link between vaccines and autism. However, other scientists and parents disagree.
For our report, we interviewed Dr. Bernadine Healy, the former head of the National Institutes of Health and a member of the Institute of Medicine who breaks with her colleagues in this exclusive CBS News interview: Dr. Healy says the government has been too quick to dismiss the possibility of a vaccine-autism link, and that it should be explored with renewed vigor.
By Kim Stagliano
Most of you know that Autism Speaks has partnered with a snack company to sell puzzle shaped pretzels. Isn't that clever? Rumor has it Hershey is coming out with a candy bar for Juvenile Diabetes too.
Guess the fund raisers/publicity pros at Autism Selfpromotes don't fully understand the impact of the GFCF diet. Here AS team, read and watch THIS. From the CBS report:
Dr. Seshagiri Rao specializes in treating autistic children. He said that a gluten/cassein-free diet is useful in about one third of his patients who receive an early diagnosis, an alternative diet, a daily regime of vitamins in large doses, behavioral therapy and physical therapy. "Some children can recover completely," Rao said. "Other children can recover to a large extent."
Kim Stagliano is Managing Editor of Age of Autism. She just made her 23,434,099 GFCF meal for her children. Hold the pretzels.
By Jack Russell
Given that politicians are as hungry for votes as big pharma is for dollars I keep waiting for the day when either the Republicans or the Democrats seize hold of our issue and run with it. After all, we’re becoming not an insignificant portion of the electoral. As the stakes get higher and higher with each election cycle, I would expect someone to want to grab for our demographic and pick up some loyal voters. Sure, we’ve seen some courageous politicians put forth our issues and we’ve seen encouraging signs from the remaining candidates for president. But we have yet to see either party promote itself as the champion for vaccine safety and/or autism biomedical research.