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2396 posts categorized "Current Affairs"

Presidential Politics Autism Style

White_houseClick HERE for a good laugh featuring a dear member of our community during this Presidential political season. Hint: There's no McCain, no Palin, no Obama and no Biden. Those folks are best discussed elsewhere.

I'm sure many of you will enlighten those who are unfamiliar with the candidate in the comments section. You can make your own version at the end of the 2 minute clip.

Front and Center: Follow-Up on Rep. Maloney’s Autism-Vaccine Briefing

FollowupManaging Editor's Note: Many people worked hard to make this post possible. Thank you to David Kirby and Mark Blaxill, Kelli Ann Davis of Generation Rescue, John Gilmore of Autism Action Network and several others. Please read the post carefully, there's a call to action. It requires some thought and will take some time. Our kids are worth it.

By Jeanne Cantkier, Pamela Felice, Lisa Rudley and Angela Warner.

Warrior Help Is Needed and Necessary!

On September 24, 2008 our community experienced a monumental and potentially game changing moment. Thanks to the organized efforts of our dedicated community, there was standing room only at the Autism-Vaccine Briefing hosted by Rep. Maloney and presented by David Kirby and Mark Blaxill.

As a community, it is absolutely imperative that we follow-up now with our legislators to keep the Autism-Vaccine issue front and center. Getting all those people in the room together was just the first step. They have listened, and now we need to let them know what they can do to help our children. Remember, they work for us, the people!

Regardless of whether you initially contacted your Representative or Senator about the Autism-Vaccine briefing, we need you to RALLY NOW to follow up. Contact information to participate in the follow-up and a list of the Senate and House members who attended or sent staff can be found at the end of this post.

Here’s What You Can Do:

Continue reading "Front and Center: Follow-Up on Rep. Maloney’s Autism-Vaccine Briefing" »

Any Ideas for Jacob Hood, Scourge of Evil Science?

Tv_producerEditor's note: I was flipping through the Washington Post TV insert and saw that a new show debuts tonight. It's called Eleventh Hour, and it stars Jacob Hood as "a brilliant scientist ... whose passion is tracking down those who use science for evil instead of good." Each week, the show "delves into topical and science-based mysteries." So I was just wondering -- do any of you have script ideas we could suggest to CBS? You know, any situation in which science is used for evil instead of good? Any dramatic plot lines in which the truth comes out  and justice prevails? Gosh, I can't. But if you can, please post them as comments and next week we'll send them off to the show's producers. -- Dan Olmsted

KOMU's Ashley Reynolds Wins Emmy for Autism Series

Ashley_with_emmy_3Congratulations to Ashley Reynolds, our Age of Autism Best Media winner for 2006 (HERE) on winning a coveted Emmy!

For the Mid-America EMMY Awards, KOMU TV 8's Ashley Reynolds from Missouri, won the student category for the Combating Autism From Within Series. 

"It's an amazing honor to win such a prestigious award from the National Academy of Television Arts and Sciences at the 2008 Emmy Awards.  It's a great feeling to be recognized by the academy for our hard work. It was privileged to be among hundreds of the best journalists in the Midwest.  This would not have been possible without input from the autism community. 

Continue reading "KOMU's Ashley Reynolds Wins Emmy for Autism Series" »

Leather Meets Lace Fundraiser for Generation Rescue at Playboy Mansion

Leather_meets_laceOn October 4th members of the Motorcycle Charity Associates will host the 2nd Annual Hollywood Leather Meets Lace Ride.  The event begins at 9:00 am PT on Hollywood Boulevard's Walk of Fame.  Motorcycle enthusiasts and celebrities will join together to ride for Generation Rescue to support families and children with autism. 

Later that evening, the event will move to the famed Playboy Mansion where Jenny McCarthy, board member, spokesperson and mother warrior for Generation Rescue will host the 2nd Annual Leather Meets Lace event. Full details on the event are at the Generation Rescue events page.

Continue reading "Leather Meets Lace Fundraiser for Generation Rescue at Playboy Mansion" »

First National Public Opinion Survey: Americans’ Knowledge and Understanding of Autism, 2008

FitSchool of Psychology
Florida Institute of Technology
Melbourne, Florida

The first national survey of the public’s knowledge and understanding of autism was conducted for the School of Psychology at Florida Institute of Technology, Melbourne, Florida.  The survey includes responses from 1000 men and women, 21 years old or older, randomly selected from throughout the nation. The poll has a plus or minus 3.1% confidence interval at a 95% level of confidence.  The telephone interviews were conducted between August 1 and August 29 by GDA Education Research, Mount Pleasant, SC.

• With autism now the fastest-growing developmental disability in the United States, more than 80% of survey respondents say every state should have an early intervention program for children from birth to age three. An even larger percentage (83%) thought that finding a cure for autism should be a national priority. This at a time when the Centers for Disease Control reports that autism affects one in 150 children born in the United States.

• Nearly one in four (24%) respondents said that because vaccines may cause autism it was safer not to have children vaccinated at all. Another 19% were not sure.

Continue reading "First National Public Opinion Survey: Americans’ Knowledge and Understanding of Autism, 2008" »

Caddy Day is Over at Age Of Autism

Many of you have expressed surprise that we had the equivalent of "Caddy Day" in the comments section today on the "Jenny Vote" post.  It seems the folks at Science Blogs enjoyed their time here, doesn't it? Ecorazzi, a gossip site, announced that they'd "poll mobbed" the site. We simply repeated that. And in they came in droves to show us their best cannonballs on the topic of vaccines and autism. But don't worry. They're gone now. Back to their hidey holes, pharmaceutical companies (waving to Merck) and blogs.  We now return to a clean pool. 

Amanda Peet, How Much Are They Paying You?

Hooker_takes_moneyBy J.B. Handley

I hadn't really been paying attention, until an alert AoA reader pointed out a sentence buried in the VaccinateYourBaby website (that features Amanda Peet as the campaign spokesperson):

"Every Child By Two's Vaccinate Your Baby campaign is made possible through an unrestricted, educational grant from sanofi pasteur."

For those of you new to this debate, "sanofi pasteur" (why did they put it in small caps?) is a vaccine company. I guess "educational grant" is intended to throw people of the scent that Sanofi is paying someone to endorse a product from which they profit immensely. We already know that Every Child By Two is largely funded by Wyeth, another vaccine company. (Read "ECBT: A Front Group for Wyeth" HERE.)

Continue reading "Amanda Peet, How Much Are They Paying You?" »

Strange Bedfellows

Peta_got_autism

From PETA about drinking milk. Thoughts?

Reminder - This is Your Chance to Influence Federal Autism Spending - Comments Due Tuesday

BillionsBy Jim Moody, Esq.

If you don’t like the way your tax dollars are being spent, or not spent, on autism research, this is your chance to speak up and take action.  The strategic plan (SP) for autism research will guide federal spending on autism research for the next five years, subject to annual updates.  The draft plan (HERE) was released for comment August 20 (HERE)

Comments are due by Tuesday, September 30, and should be emailed to iacc@mail.nih.gov.  There is a suggested limitation of two pages.  See the above request for further details.  A few thoughts on possible subjects for comment are summarized below.

Continue reading "Reminder - This is Your Chance to Influence Federal Autism Spending - Comments Due Tuesday" »

MySpace: Ask The Candidates

CandidatesWhat Questions Would You Ask The Presidential Candidates? MySpace has an "My Debates" forum where you can post your question to Obama and McCain.

DEADLINE For Comments: Tuesday, September, 30, 2008

You can submit your question HERE.   

Capitol Hill Briefing on Autism Transcript

David_speaksManaging Editor's Note: The following provides a transcription of David Kirby's presentation to members of the Senate and Congress at Representative Carolyn Maloney's meeting on Wednesday, September 24, 2008. The audio was spotty in places, the transcription is as close as was possible under the circumstances.

Capitol Hill Briefing on Autism -- Wednesday, September 24, 2008
Slide Presentation by David Kirby - Rush transcription by Nancy Hokkanen
(Power Point Slides are viewable at www.evidenceofharm.com and HERE.

SLIDE 1: INTRODUCTION

Thank you very much, and I thank you all for coming here today. I know there’s a lot going on in Washington this week, but I think the turnout speaks to the fact that this is a very, very serious issue.

We have people from the left and the right and center representing offices in this room. Autism, of course, is a nonpartisan issues, quite a bit like the financial crisis that we’re all trying to deal with right now. And the parallels go beyond nonpartisanship: The financial crisis is a real threat to our country, and so is the autism crisis. And I hope you will go back to your various offices and talk about ways that Congress can respond even better than it has so far to this crisis.

This is a national emergency.

Continue reading "Capitol Hill Briefing on Autism Transcript" »

Long Island NY: Hearings on Vaccines and Autism

By Louise Kuo Habakus

Nassau and Suffolk County Legislators and Asm Marc Alessi
Demand Answers For Our Children
Health Committee Hearings on Vaccines and Autism
September 25, 2008

Last night was my eighth wedding anniversary.  We had a romantic evening, wading through my two-hour parent vaccine choices presentation to pick the slides for my ten-minute testimony before the Health and Social Services Committee of the Nassau County Legislature today.  Ain't love grand?


Louise Kuo Habakus


This morning (Thursday), I made it to Mineola, NY from Middletown, NJ without getting lost once.  It did take me three tours around the Theodore Roosevelt Executive & Legislative Building before I chose to ignore the "wrong way" and "do not enter" signs into the parking lot, however. 

John Gilmore, Bob Krakow, Rita Palma, Evelyn Ain, Alan Scherr and I were there to tell the truth about vaccines and autism. 

Continue reading "Long Island NY: Hearings on Vaccines and Autism" »

Discovery Health Presents: The Kirtons, Autism x6

Autismx6_2Meet The Kirtons. Wednesday, October 1st of Discovery Health. Check your local listings. You can visit the Kirton's blog HERE.

SILVER SPRING, Md., Sept. 4 /PRNewswire/ -- When John and Robin Kirton first married, they knew they wanted to have a large family -- but like many couples, they had no idea what they were in for. Today, the Kirtons are the parents of six children -- each of whom has been diagnosed with autism.
Discovery Health presents an intimate view of life with multiple autistic children in AUTISM x6, an hour-long special premiering Wednesday, October 1, at 8 PM (ET/PT). Read more HERE.

Mark Blaxill: The Feeling in the Room

FatherManaging Editor's Note: Mark Blaxill is one of the original Father Warriors in our autism community. I'm proud to be his colleague here at Age of Autism.  KS

By Mark F. Blaxill

My reaction to the Maloney briefing surprised me (for those who missed it, thanks to an invitation from Rep. Carolyn Maloney, David Kirby and I gave presentations on the autism epidemic and on the connection to vaccines on Wednesday to a standing room audience in the Cannon House Office Building). For a moment, and mind you it may be a brief moment, I felt a renewed faith in the power of American democracy. One reason I am feeling hopeful is because of all of you here at Age of Autism. You made this happen.

Because of the work you all did in reaching out, calling your representatives and giving them a strong reason to attend, we had a great session. So I’d like to say thank you to the readers of Age of Autism. Thank you for providing a small little civics lesson for how democracy can work, and should work more often. And as part of my thank you, I’d like to report back here and give you more details about what so many of you have asked. What was the feeling in the room? But first, let me tell you why my own feelings surprised me.

Continue reading "Mark Blaxill: The Feeling in the Room" »

Father Warrior on the Maloney Vaccine Meeting

Warrior_father_silhouetteManaging Editor's Note: There are plenty of Warrior Fathers in the autism community. Meet one below:

By Louis Conte

I must admit that lately I have been in awe of many members of our community.  Since March of this year when John Gilmore introduced the Polings to CNN and the world, I have been overwhelmed by the courage of so many to simply tell the truth about autism and vaccines and what has happened to our children. A recent example was Katie Wright’s post here about her son and everything she and he had gone through while just trying to take a simple family vacation. Ms. Wright’s post should be required reading for any medical professional who minimizes the suffering that autism brings.

On September 24, 2008 David Kirby and Mark Blaxill delivered some of that same courage and truth to Washington and informed our nation’s leaders about what has really caused the autism epidemic.

Continue reading "Father Warrior on the Maloney Vaccine Meeting" »

"A Change in Attitude Toward Our Community"

AchampManaging Editor's Note: It's a day for Mother Warriors.  Here, A-Champ's Bobbie Manning talks about yesterday's meeting in DC.

Hi everyone,

Wanted to offer my impressions of yesterday's briefing.

First, David and Mark's presentations were terrific... as they always are.

I was very, very impressed with staff attendance at the briefing and the attention they paid to the speakers. It was standing room only and actually exceeded my expectations given the current financial crisis going on.

I observed a lot of notes being taken. A staffer from Sen. Lautenburg's office was next to me and had five pages of notes.

Continue reading ""A Change in Attitude Toward Our Community"" »

What David Kirby Told Congress

David_speaks_2HERE is David Kirby's slide presentation from the Vaccine/Autism meeting in DC yesterday.

What Age of Autism's Mark Blaxill Told Congress

Mark_blaxillMark Blaxill, Age of Autism Editor at Large and SafeMinds director, described the urgency of the autism epidemic and how Congress can address it during Wednesday's standing-room-only briefing on Capitol Hill. HERE are slides from his presentation, titled, Why the Autism Crisis Has Become So Controversial and Why Families Need Your Help.

Attendance at Rep. Maloney's Autism-Vaccine Meeting

Veni_vidi_viciSIGN IN SHEET AT MALONEY BRIEFING (Subject to updates)

Zach Wamp (R-TN)  - Attended in person, plus staffer
John Barrow (D-GA) – Attended in person, plus staffer

The following Representatives sent staff members (Note: Rep Maloney, a member of the House Financial Services Committee, was at a hearing with the US Treasury Secretary on the economic crisis).

Continue reading "Attendance at Rep. Maloney's Autism-Vaccine Meeting" »

Libby Rupp is a Warrior Mother

Warrior_mom_photoManaging Editor's Note: I wrote the headline. Libby wrote this post. And take 8 minutes to watch the decline, fall and RISE of Libby's beautiful daughter, Miss Isabella.

By Libby Rupp

The mitochondrial disorder specialist that diagnosed Hannah Poling (HERE) and co-authored the study “Developmental regression and mitochondrial dysfunction in a child with autism” based on her case, last week told a group of parents in Minnesota that despite increased risk of complications, he supports a regular vaccine schedule and that he would never recommend chelation therapy to any of his patients.

In an address Sept. 12 to the Minneapolis-St. Paul chapter of the United Mitochondrial Disorder Foundation, Dr. John Schoffner said chelation is dangerous and that there are no studies showing that chelation benefits children or adults. He was unfazed when told that there are no studies, period, and that it is unfair to state there are no studies on the “benefits” when there are no studies on either side of the debate.

Continue reading "Libby Rupp is a Warrior Mother" »

Katie Wright: One of Jenny McCarthy's "Mother Warriors"

Warrior_mothersBy Katie Wright

Like millions of moms and dads of autistic kids I absolutely adore Jenny McCarthy. Jenny had the courage to share her own devastating experience with autism with the world and inspire and empower parents in the process. No one in the public eye was talking about hope for our kids beyond early intervention until Jenny. Jenny McCarthy traveled around the country listening to parents and shared their struggles with the mainstream autism world that had been dismissing our stories, minimizing children's pain and ignoring successful biomedical interventions. We watched on "Larry King" as the president of AAP claimed he had never had seen one bad vaccine reaction in his practice and that injecting anti-freeze or aluminum into babies was as safe as "breathing air." The president of the AAP was so soundly out-debated by Jenny in their last "Larry King" appearance it was almost embarrassing to watch.

Continue reading "Katie Wright: One of Jenny McCarthy's "Mother Warriors"" »

Standing Room Only at Maloney Meeting

Live from Washington, DC. Representative Carolyn Maloney's autism/vaccine briefing. David is speaking live now. 

Follow up: David presented a truncated version of his presentation, hitting on the salient points for brevity.  Mark Blaxill then introduced himself as the parent of a child who had regressed into autism and spoke about the need for research. Both are excellent speakers and bring a gravitas, knowledge and sincerity to the ever present questions of vaccine safety.

STATS (sent by David who is on the train back to NYC.)

Summary - 135 people in room for 80
2 US Reps in person
58 Reps sent staffers
30 Senators sent staffers
Some of those who sent staff - Obama, Kennedy, McConnell, Byrd, Feingold, Kerry, Hatch, Waxman, Murtha, Pallone
Also present - AAP AMA CDC FDA Autism Speaks - America's Health Insurance Plans - AHIP!

Maloney

David_speaks

Is Your Sen. or Rep. Attending Rep. Maloney's Vaccine-Autism Meeting?

RsvpTune into Autism One Radio TODAY at 1:50pm Eastern for a Curt Linderman's interview with David Kirby before the meeting. And then listen to the meeting live. www.autismone.org/radio. - details to follow at their site.

The following provides a running tally of the Senators and Representatives who have RSVP'd in some fashion for Representative Carolyn Maloney's (D-NY) vaccine-autism meeting on Wednesday, September 24th at 2:00pm. Click HERE for details. Are your government officials on the list yet?  We've learned that you need to ask for the email address of the "Scheduler" for your Congressperson.  Send that person an email.

THERE ARE NOW 137 CONGRESSIONAL OFFICES THAT WILL BE REPRESENTED AT THE BRIEFING ON CAPITOL HILL – WHAT ABOUT YOURS?

Continue reading "Is Your Sen. or Rep. Attending Rep. Maloney's Vaccine-Autism Meeting?" »

Every Child By Two Accuses Us of "Sidetracking" Research

Temper_tantrumManaging Editor's Note: The full court press to convince the American public that vaccinations are safe spills over into your government.  This one sounds more like a temper tantrum. Below is the letter sent by Amy Pisani of Every Child By Two telling your government officials why Representative Carolyn Maloney's briefing is irrelevant: "There is no debate..." She uses Dr. Paul Offit's book as her backup.  And she has the GALL to accuse us of sidetracking research away from finding the true causes(s) of autism and treating children...   

Today you have been invited to attend a briefing to provide "updates on the recent autism-vaccines debate".  While I recognize that most of you will likely be dealing with other priorities and will not attend the Maloney briefing, I write to you this morning because I feel it is critical to clarify that there is no debate among the scientific community regarding vaccines and autism.  Instead, the debate rages on in the media due to the efforts of those who wish to sidetrack critical research away from finding the true cause(s) of autism and treating children and their families struggling with this condition.

Continue reading "Every Child By Two Accuses Us of "Sidetracking" Research" »

Jenny McCarthy on Oprah: Sneak Peek for Age of Autism!

LucyBy Kim Stagliano

I got a welcome surprise tonight! An email with three clips from the folks at Oprah and permission to show them to you before the Jenny program airs tomorrow!  You'll need Apple Quicktime to run the clips.  If you can't open them here, they are up in video format on my Kim blog (blogger is a bit kinder than our platform here) at www.kimstagliano.blogspot.com Enjoy! Kim

Jenny walks with a Mom
Oprah is exuberant 
Jim Carrey

Autism One Radio Airs Maloney Autism Vaccine Meeting

ListenTune into to www.autismone.org/radio WEDNESDAY 9/24 at 1:50pm Eastern to listen to Rep. Maloney's 2:00pm meeting, prefaced by an interview with David Kirby.

Dr. Rahul K. Parikh, I Am Becoming Embarrassed For You

Misinformed_sourcesBy David Kirby

Some Pediatricians are thoughtful. Others are just plain, (well, let's be polite) "belatedly informed."

To wit: The recent book review by Rahul K. Parikh, M.D, in Salon: (HERE)

In his overly simplistic way, this pediatrician from Northern California, who has repeatedly ignored third-party invitations to debate me in an open forum, praises Dr. Paul Offit for his attacks on groups like DAN! and Generation Rescue, while holding up Autism Speaks as a bastion of rational scientific thinking, one that does not succumb to what this doctor calls the "slanted science" of thimerosal research:

Continue reading "Dr. Rahul K. Parikh, I Am Becoming Embarrassed For You" »

Extra! Read All About it! Autism & Vaccines in the News this Wednesday!

Julie_gerberding_2Jenny_profile_2Oprah_3Davidkirby_2Mark_blaxill







Even amid the wars, elections, debates and economic meltdowns that are currently grabbing the headlines, the vaccine-autism debate is still attracting attention. To that end, Wednesday, Sept, 24 promises to be a big day, indeed.

Continue reading "Extra! Read All About it! Autism & Vaccines in the News this Wednesday!" »

Email C-Span to Broadcast Maloney Briefing!

EmailInvite C-Span to cover Rep. Maloney's meeting. Just copy and send this post to: online@c-span.org. Be sure to copy the entire post, not just this intro.

Dear C-Span:  Please send a team to cover Rep. Carolyn's Maloney's (D-NY) special briefing on the vaccine autism debate.

Her meeting is on Wednesday, September 24 at 2:00 PM
210 Cannon House Office Building
Independence Avenue, Washington, DC.

Continue reading "Email C-Span to Broadcast Maloney Briefing!" »

Win a Free Copy of Jenny McCarthy's "Mother Warriors"

Warrior_mothers_2The winners are Julia Myers, Rhonda Gatewood, and Kimberly Muniz.

Our sponsor OurKidsASD is giving away three copies of Jenny McCarthy's new book, "Mother Warriors." Enter at www.ourkidsasd.com/motherwarriors.  Hurry! Contest ends Monday at noon.

If you don't win, you can buy the book now at OurKidsASD HERE for just $13.50. Good luck! (Comments are closed for this post.)

A-Champ Advocates Nationally for Autism Issues

Achamp_2We rarely ask our community for help, but we need your help now. ACHAMP has launched a fundraising effort in conjunction with Autism United to support our highly effective online advocacy efforts. Your donation to the ACHAMP team participating in Autism United's Hope Walk '08 will go directly to defray the cost of our online advocacy efforts, and it will be 100% tax-deductible.

We are all volunteers and we have a tiny budget, none-the-less this is just some of what we accomplished and worked on in the last year alone:

1) We were the only Autism group able to get autism and vaccine
safety questionnaires answered by most of the presidential
candidates. We are working to get more in depth commitments from the
remaining two major party candidates.

2) We are fighting to pass the `Kid-Safe Chemical Act" in
Washington DC.

3) We fought threaten mass arrests in Maryland of parents of
children who did not have mandated vaccines.

4) We fought threatened mass expulsions of school children in
New York who did not have all mandated vaccines.

Continue reading "A-Champ Advocates Nationally for Autism Issues" »

Health Care and Autism Debt

Michele and Ralph Iallonardi discussed medical-related debt on a panel with CNN's Roland Martin. As always, Michele and Ralph did a terrific job explaining what we in the autism world deal with in terms of insurance and debt.  They're TV stars!

WINNERS! The Conductors CD Featuring "Smokestack" Joe Hutchinson

ConductorsOur winners are Nancy Smith, "Anne" and Kathryn Johanson.  Please email me your address at KimStagliano at gmail.com. Congrats!

Didn't win? Go to
www.TheConductorsUSA.com to learn more and to buy copies in time for the holidays! 

All aboard for fun!  Win a copy of The Conductors' "Navigating The Spectrum" CD featuring autism Dad and Indie Rocker "Smokestack" Joe Hutchinson. We have THREE copies to give away, just leave a comment with your name.

Continue reading "WINNERS! The Conductors CD Featuring "Smokestack" Joe Hutchinson" »

CNN's Roland Martin Discusses Autism Debt

IllonardiRalph and Michele Iallonardi of NY will be on "What They're Not Saying...About your Money" with Roland Martin on CNN Saturday night at 8pm. The show will air again at 8pm on Sunday as well.

The Iallonardi's, whom you'll remember from Lauren Thierry's "Autism Every Day" documentary are on a panel, and the discussion is about healthcare.  It is a financial show, and their segment will focus on how insurance does not always pay for necessary treatments, which in turn can put a family in to serious debt.  Michele says their contribution is likely to be brief, but we still appreciate their speaking out of behalf of our situation!

MMR Vaccine Injured Aidan Quinn's Daughter

Aidan_quinnManaging Editor's Note: We report this story with no joy. Although the story clearly bolsters our dedication to continuing to speak out about the lack of vaccine safety. We're not going away. You can write books that call us "fringe" kooks, you can blog that my hair is ugly or that Dan Olmsted is (insert insult here) or that our readers are "desperate." That's a load of crap. Children are being vaccine injured every day, and have been for a long time. Here's another. God bless her.

 
Irish Voice, NY  IRISH American actor Aidan Quinn

Ava Quinn has, however, been a joy to her parents, Aidan and his wife Elizabeth Bracco (sister of Lorraine Bracco of Sopranos fame.) But it surely hasn't been easy for the family, which also includes a 10-year-old girl. Ava was, according to her dad, a perfectly normal baby, until she got vaccinated.

Continue reading "MMR Vaccine Injured Aidan Quinn's Daughter" »

FDA Says Bisphenol A is Safe. JAMA Studies Say Otherwise.

Who_caresHow is it that the FDA is telling Americans that Bisphenol A is still safe when studies are proving otherwise? Yet again, our health takes a backseat to commercial interests.

Association of Urinary Bisphenol A Concentration With Medical Disorders and Laboratory Abnormalities in Adults
        Iain A. Lang, PhD et al
        JAMA. 2008;300(11):(doi:10.1001/jama.300.11.1303).

Read the article HERE.

Bisphenol A and Risk of Metabolic Disorders
        Frederick S. vom Saal and John Peterson Myers
        JAMA. 2008;0(2008):300111353-1355.

Read the article HERE.

US Government Requires Gardasil For Immigrants

WelcometoamericaThe US government is planning to add Merck's Gardasil to the list of required vaccinations for immigrants. Boy, if that's not a reason to sneak in under the radar, I don't know what is.

Gardasil is not proven safe, has caused death and injury and even the NYT, the newspaper that never met a vaccine it didn't love, has questioned its use. The Journal of American Medicine urges "caution" (HERE.)

In order to become a permanent, legal resident of the U.S., immigrants now must receive a vaccine that is not required of U.S. citizens.

The Human Papillomavirus (HPV) vaccine -- known as Gardasil -- is one of five the U.S. Citizenship and Immigration Services recently added to the required list. The vaccine works to prevent cervical cancer, the leading cause of cancer death in women worldwide.

Ginky-Lee Torres, an immigration lawyer, questions the government's decision to impose requirements on immigrants that go above and beyond those on citizens.

Read more HERE.

Chelation Study Cancelled

Who_done_itSo who canned the NIMH chelation study as "too dangerous?" Children are given huge doses of chemotherapy and radiation in a desperate effort to save them from cancer - fully knowing the side effects themselves can be deadly.  It's a fair risk most parents are willing to take to help a sick child.

If your child is full of lead, the doctor will chelate him as a standard protocol. (Children.WebMD.) If removing the source of lead and balancing nutrition do not reduce lead levels, or if the blood lead level is very high, chelation therapy may be used. Chelation therapy is a process that rapidly reduces the amount of lead stored in the body. Drugs called chelating agents cause metals like lead to bind to them, and then they are eliminated from the body through urine. Because chelating agents increase the absorption of lead and other metals, it is essential that sources of lead exposure be removed before a person is treated.

But if your child is full of mercury, too bad.  The mainstream docs won't chelate him. After all, he might just get better and then all the people who've railed against autism treatments and screamed at us that our kids are "uncurable!" would be wrong. 

Read the blip HERE.

The Illinois Autism Coverage that Almost Was

Illinois_politicsBy Julie Obradovic

What do you do if you have a health crisis unparalleled to any other affecting children in your state that isn’t being properly covered by insurance?

Well, if you’re certain Illinois legislators, the answer is simple:  Put politics first.

Continue reading "The Illinois Autism Coverage that Almost Was" »

Obama Campaign Accepts Autism Mom's Info

Notebook By Allison Chapman

Earlier this month, Claudine Liss posted of her encounter with Senator Barack Obama… “Last Friday evening, September 5, 2008, I had the opportunity to ask Senator Barack Obama about childhood vaccine safety/choice.  His response, “I am not for selective vaccination, I believe that it will bring back deadly diseases, like polio.”

I don’t think even Claudine knew what kind of reaction this would create in a community where so many of us watched our children regress immediately following vaccines.  I know when I read those words my heart sank.  I thought; we have failed to give him the proper amount of information, does he really know what the magnitude of this question was, etc.  As a personal lifelong lefty as well as an A-CHAMP/ACC non partisan district leader, I felt I had failed in some way to make sure he was receiving the information our community so desperately needed him to have. 

Continue reading "Obama Campaign Accepts Autism Mom's Info" »

Autism Insurance Bill Fails in Illinois

Drown_in_debtManaging Editor's Note:  An autism/insurance bill passed in my state of Connecticut this year, effective January, 2009. Since my husband's company's insurance is "self-funded" they are exempt from including my girls. So even with a law (touted here as a huge success) I can count three children with autism who will NOT get their services covered. 

CBS 2 Political Editor Mike Flannery reports that 5-year-old Brianna Di Cianni talks now. That is amazing to those who remember how silent she was when diagnosed two years ago with autism. Her mother and father have so far spent more than $70,000 to get Brianna the best treatment, none of it covered by insurance.

A proposal that would have mandated such insurance coverage was killed last night in the Illinois House.

"This was our fourth shot at getting this bill passed and I can't believe that we didn't get it," said Peter Di Cianni, Brianna's father. Click HERE to read more.

The Autism File Magazine Now in Bookstores!

Autism_file_3The Autism File: International Autism Magazine Now Available in Bookstores in US & Canada

A North American edition of The Autism File, the longest running international autism magazine, has been released for distribution to 2000 bookstores in the United States and Canada. The Autism File, published in the UK for over 10 years, is also available in Spain (in Spanish) and Australia. The Autism File’s Scientific and Editorial Advisory Boards are made up of leading autism experts and advocates from around the world.

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Autism One Organizes Illinois Advocacy Program

Autism_oneTHE ILLINOIS "STAY AT HOME" MOM MARCH: Bringing change home.

We are proud to announce the Illinois Stay at Home Mom March. This January, parents, grandparents, family members and friends will meet with state senators and representatives to enlist their support of legislation to help end the autism epidemic.   

While we might not be able to travel long distances, be away for more than a few hours, spend money that is needed on a thousand and one other expenses, or get ourselves arrested, we can still advocate locally and effectively. This "march," the marchers are "staying home" to bring the message to the Illinois State Legislature, one parent and one legislator at a time.

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Governor Corzine Signs Bill to Assist Autism Community

Star_ledgerFrom the New Jersey Star Ledger on two new bills, one devoted to autism safety. Our little boys and girls are growing into young men and women who will live and work in our communities. Best our safety forces know how to help them when they meet.

The other bill signed by Corzine yesterday requires the state to establish an autism awareness training course for emergency medical technicians, firefighters and police officers.

"Autism is an invisible disability one that is not always immediately recognized," Corzine said. "That's why it's important that we supply our emergency responders with accurate information on how to treat and work with these special needs individuals."

(Thanks to Ray for sending us the link.)

SafeMinds Reminds: IACC Budget Meeting Wed., Sept. 10

Public_invitedNIH Seeks Public Comment on Strategic Plan for Autism Research Public Comment on Strategic Plan Ends September 30th, next Budget Meeting September 10th

Public commentary on the Strategic Plan has begun and budgetary materials are available on request (download 8/8/08 meeting slides HERE and cost estimates HERE.) SafeMinds will issue an analysis of the continued disparity regarding the continued heavy funding of genetic/genomic studies and the lack of funding for environmental factor X gene interaction, vaccine specific research and the associated lack of expertise in the strategic planning process early next week. It is important that the public is aware of the opportunity to provide feedback to NIH and SafeMinds strongly encourages participation in this crucial stage of the process.

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Obama Leads the Pharma Donor Pack

Open_secretsEditor's note: Despite the sensitivities of some -- who seem to believe that offering aggressive and nonpartisan coverage of autism as an election issue will somehow confuse our fragile readers and cause them to vote The Wrong Way -- Age of Autism will continue to be the go-to place for blow-by-blow developments. Here is the latest tally of Big Pharma bucks and who they're flowing to. Hey, we don't write the checks, we just report the numbers. -- Dan Olmsted

Managing Editor's note: If you work for Merck and you donate more than $200 to a campaign, you are a "pharma" donor. This doesn't mean the check came from Merck itself: METHODOLOGY: The totals on these charts are calculated from PAC contributions and contributions from individuals giving more than $200, as reported to the Federal Election Commission. Individual contributions are generally categorized based on the donor's occupation/employer, although individuals may be classified instead as ideological donors if they've given more than $200 to an ideological PAC.

According to Open Secrets: Obama has received: $915,696 and McCain has received: $442,042.

Now that Palin has energized the McCain campaign, it will be interesting to watch donations from this point forward, to see if the smaller donations amount was a function of lack of confidence in McCain's chances in the election. Will pharma and its employees shift their dollars now that the race has picked up?

See the pretty chart from Open Secrets on all the candidates who were in the race HERE.

Alaska Autism Mom to Barack Obama: Will You Listen

Speak_outManaging Editor's Note: You can call the Obama campaign at 866-675-2008. It might take two or three tries to reach a person. Tell them you read about Obama's "Vaccination Selection" opinion on Age of Autism. Or email them at http://my.barackobama.com/page/s/contact2.

By Jill Nordtvedt Lenhard

After reading Claudine Liss' piece on Senator Obama's stance on selective vaccination, I was inspired to write to him as one more voice in this complex debate.  Posted here is the letter I just sent. 

September 9, 2008

Dear Senator Obama,

I am the mother of a 5 year old son with autism, and I am depending on you to be a leader in defeating this health crisis by finding out what is causing this terrible condition.  I am inspired by your stance on many issues, and especially your desire to end the divisive nature of politics in our country.  I have been registered as a nonpartisan voter in Alaska for 20 years, but this year I changed my party affiliation to Democrat in order to cast my vote for you in our statewide caucus last winter.  Alaskans supported you overwhelmingly in that vote. 

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Obama: "I am not for selective vaccination."

Choice_2By Claudine Liss

Last Friday evening, September 5, 2008, I had the opportunity to ask Senator Barack Obama about childhood vaccine safety/choice.  His response, “I am not for selective vaccination, I believe that it will bring back deadly diseases, like polio.” 

He went onto say in so many words that he is for more science and the funding of more science if it’s needed.  (His science response is fuzzy, as his first response stunned me for a second). I previously gave his staffer a folder of information on vaccines. The Senator promised me that he would take a look at it. 

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NJ Obama Corzine Autism Vaccine Rally

Obama_be_the_voiceBy Louise Kuo Habakus

It was Friday before Labor Day weekend.  Desperate celebration was in the air as the end of summer loomed before us.  There was a thick envelope in my mailbox.  The flyers and contribution applications were accompanied by a kind note from my neighbors, inviting us to join them and apologizing in advance for any inconvenience their event might cause.

Corzine, Bon Jovi and DNC Finance Chair Phil Murphy were inviting me to a fundraising reception with Senator Obama, benefiting the Obama Victory Fund.  Reception and Photo Line - $2300 per person.

His historic, highly anticipated acceptance speech was that very evening.  And in one week, Obama was going to be two houses away.

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