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2543 posts categorized "Current Affairs"

Roni Piterman, CEO of Your Dinner Secret, Selected for 40 Under 40 Award

Dinner secret Woodland Hills, CA, February 6, 2009…. The San Fernando Valley Business Journal has awarded Roni Piterman, CEO of Your Dinner Secret, a "40 Under 40" award for leadership in business. This is an annual award presented to 40 young leaders, under the age of 40, in the San Fernando Valley.

Roni and her sister Ari Kosmal started Your Dinner Secret in January of 2007. The company started out as an independent meal assembly business, but quickly morphed into the premiere supplier in the country of frozen, ready-to-cook, gluten-free, casein-free entrees, sides and baked goods, shipped directly to your door.

They market their food under the gfMeals™ brand name. It can be ordered at the website www.gfMeals.com , or directly from their retail store in Woodland Hills, CA.

The primary markets for this delicious food are: people with celiac disease; families recovering children with autism, aspergers, ADHD and other autoimmune disorders; and people who lead a healthy gluten-free lifestyle.

Generation Rescue and Autism Action Network ALERT! on Healthcare Legislation

Action alert2 Click HERE to read and participate in the Autism Action Alert from Generation Rescue and AAN.
 
The bill has problems and the true stakeholders have an alternative ,,,,
 
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model." This legislation would grant treatment authority for children with autism to private organizations.
 
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.

Everything's Bigger In Texas, Including the Austin Statesman's Distortions

Rodeo clownThe Austin Statesman, in Austin Texas, home of Thoughtful House has no idea that they are home to one of a handful of comprehensive, medically based treatment centers for autism. Apparently, having the "Mayo Clinic" of autism is lost on them. Clowns.

Even the lies are bigger in Texas. The writer of this editorial can take his "boundless compassion" for people with autism and stick it where the yellow roses don't grow.

Please read the full editorial HERE and comment in support of Drs Wakefield, Krigsman and the caring staff at TH.

Physicians at Austin's Thoughtful House blasted by judges ruling agains their theory that measles vaccine causes autism.

No one has anything but the deepest sympathy for children who have autism and for their parents. The search for causes and cures of this crippling brain disorder has been long and futile.

After a study published a decade ago linked the onset of autism to vaccines used to inoculate children against measles, many families sued the government and began to campaign against vaccinations. It was a misguided effort based on faulty science, and three federal judges said just that in rulings late last week...

Melanie Phillips in Spectator UK: A Deer in the Headlights

Fing deerManaging Editor's Note: The headline I wanted to create was profane. Alas, we are a family site. (Insert eye roll here.) The photo tells you the headline in my mind. Two words. Verb first. Got it?

Eleven days ago, Brian Deer renewed his onslaught against Andrew Wakefield in the Sunday Times. I wrote about it here and made the point that, since Deer’s allegations sparked the General Medical Council case against Wakefield which would not have occurred without his involvement, he was effectively a principal player in the story he was reporting — a clear conflict of interest and breach of journalistic standards.

Continue reading "Melanie Phillips in Spectator UK: A Deer in the Headlights" »

Voting Himself Rich: CDC Vaccine Adviser Made $29 Million Or More After Using Role to Create Market

Thirty pieces of silver By Dan Olmsted and Mark Blaxill

Dr. Paul Offit of the Children’s Hospital of Philadelphia (CHOP) took home a fortune of at least $29 million as part of a $182 million sale by CHOP of its worldwide royalty interest in the Merck Rotateq vaccine to Royalty Pharma in April of last year, according to an investigation by Age of Autism. Based on an analysis of current CHOP administrative policies, the amount of income distributed to Offit could be as high as $46 million.

There is nothing improper about receiving compensation for a patented innovation; but the extraordinary valuation placed on CHOP’s patents raises concerns over Offit’s use of his former position on the CDC’s Advisory Committee on Immunization Practices to help create the market for rotavirus vaccine -- to effectively vote himself rich.

Offit has steadfastly refused to say how much he made from the vaccine. Based on the income distribution guidelines set forth in CHOP’s current administrative policy manual (HERE) entitled “Patent and Intellectual Property Policy,” Offit’s share of this transaction -- the “inventor’s share of net income” -- would have earned him a personal distribution of 30%. In a Moody’s report dated June 2008, CHOP reported net proceeds from the Rotateq transaction of $153 million, a deal basis that would put the value of Offit’s 30% share at $45.9 million.
 
Although the royalty transaction amounts and current CHOP inventor shares are publicly known, several factors complicate a precise calculation of Offit’s income. Royalty Pharma paid $182 million for the Rotateq royalty stream, but CHOP reported proceeds of only $153 million. Since most universities calculate income based on net royalties, the lower number might more closely reflect the basis for calculating Offit’s income. If CHOP applied an inventor share of 30% to a transaction value of $153 million they would have then been required to distribute $45.9 million to Offit.

Continue reading "Voting Himself Rich: CDC Vaccine Adviser Made $29 Million Or More After Using Role to Create Market" »

UK's Sunday Times Journalist Challenged Over Role in US MMR Cases

Sunday times The Sunday Times UK journalist Brian Deer is being challenged to explain his role in assisting George Bush’s US Departments of Justice and Health and Human Services, leading to  the failure in the USA last week of three lead cases of over 4500 pending cases of injured US children.  The journalist was identified last week as complainant in the UK General Medical Council proceedings against Dr Andrew Wakefield over the alleged link between MMR vaccine, autism and bowel disease in children.  The journalist has reported extensively in The Sunday Times, London on his allegations which are now the subject of the UK GMC proceedings and was also previously a defendant in a law suit brought by Dr Wakefield. Challenges to his new denials of involvement with the UK GMC case are being made as are demands for the journalist to publish his complaints and other correspondence with the UK’s GMC and to explain his relationship with them.

Read the full piece at the Child Health Safety blog HERE.

Did the Department Of Justice Tip-Off Brian Deer?

Divulge By J.B. Handley
 
OK, let me be honest, I only have the vaguest understanding of who this Brian Deer character is. I love Andy Wakefield as much as the other several hundred thousand parents who love him, and I knew Brain Deer was some sketchy reporter in the UK, but I really didn't (and still don't) know much about him or his motivations. If you are in the UK, please use the comments sections to educate me.
 
That said, I found it rather odd that Brian Deer torpedoed Andy over the weekend with a seemingly made-up outrage piece, only days before the judges ruled in the Vaccine Court. The timing struck me as odd. I ran this by a couple of people, and most figured it was probably just coincidence, until I read this post just made by Mr. Deer himself. You be the judge:
 
You have it about right there. I'm proud of my work investigating Wakefield. Unlike Kirby, I am not a campaigner, have never advocated any pharmaceutical product, and have never made statements on whether or not any vaccine may or may not cause any medical condition. If there are any editorial changes in any of my published work to that effect, I don't know of them. I'm a reporter, and have simply sought out the facts on Wakefield's research.

Continue reading "Did the Department Of Justice Tip-Off Brian Deer?" »

The Cedillo Decision

Closed mind By Kent Heckenlively, Esq.

I’d thought that even if the case went against us that I’d be able to understand the court’s opinion.  After all, we know how incredibly well-funded the pharmaceutical companies are and the positive research they can generate.  It can be difficult for a person who does not live our lives to understand what we have witnessed, and the holocaust we see in this current generation of children.

But I must say that Special Master George Hastings will forever occupy a special place in history for those who lack intellectual curiosity. 

Continue reading "The Cedillo Decision" »

The Hazlehurst Decision

Big gun By Kent Heckenlively, Esq.

There’s a line in the movie, “The Right Stuff” in which an astronaut explains to an engineer the truth about funding by saying, “If there’s no bucks, there’s no Buck Rogers” and subsequently no space program.

The polite fiction maintained by this court is that those questioning vaccine safety have been listened to and substantial financial resources were directed to researching those claims.  Nothing could be further from the truth, and it forms a necessary backdrop to a discussion of the Hazlehurst case. 

Special Master Patricia Campbell-Smith begins by noting that this trial “does not and cannot offer a determinative explanation” for what causes autism.  She then goes onto notes the number of articles submitted and the parade of experts and their qualifications, before finally noting that the government’s witnesses were more persuasive than the witnesses for the families.

Continue reading "The Hazlehurst Decision" »

National Autism Association Response to Autism Omnibus Court Decision

National Autism Assoc Managing Editor's Note: Here is the response from our sponsor National Autism Association including a link to NAA President Wendy Fournier on ABC News 6 in Providence, Rhode Island HERE.

PARENTS AND ADVOCATES LA BEL TODAY’S VACCINE COURT RULINGS AS INSINCERE AND POLITICALLY DRIVEN, SAYS NATIONAL AUTISM ASSOCIATION

Government Conceded One Year Ago that Vaccines Caused Autism; Today’s Ruling Demonstrates Backpedaling

Nixa, MO -  Today’s ruling in vaccine court has thousands of families outraged at the federal government’s broken promise of medical care following a vaccine injury.
Last February, the government conceded that a child’s vaccinations led to her autism.  Today, however, the government ruled in favor of itself in three cases filed in the National Vaccine Injury Compensation Program (NVICP) claiming vaccinations led to regressive autism.   Advocates say they are disappointed in today’s rulings, but not surprised.

Continue reading "National Autism Association Response to Autism Omnibus Court Decision" »

SafeMinds' Response to Autism Omnibus Court Decision

Safeminds currentManaging Editor's Note: Below is a response from our sponsor SafeMinds

Washington, D.C. - February 12, 2009 - Autism advocacy organization SafeMinds regrets today's ruling by the U.S Court of Federal Claims against three families who argued that vaccination contributed to their child's autism.  The denial of reasonable compensation to families was based on inadequate vaccine safety science available to the court. The Department of Health and Human Services (HHS) is the defendant in vaccine injury cases and is also responsible for carrying out the very vaccine safety research that should be integral to court decisions. This conflict of interest means the deck is stacked against families when they enter "vaccine court" and is yet one more reason for parents to doubt the integrity of the National Immunization Program.
 
"The government has its thumb on the scales of justice," said Jim Moody, director of SafeMinds and an advisor to the Petitioners Steering Committee of the U.S Federal Court of Claims. "The Vaccine Injury Compensation Act passed by Congress in 1986 gave immunity to vaccine manufacturers and removed the incentive to create safer products. Meanwhile, the law only gives the illusion that parents will have their day in court. The process is dysfunctional and many families will not see justice done."

Continue reading "SafeMinds' Response to Autism Omnibus Court Decision" »

TACA's Response to Autism Omnibus Court Decision

Tacalogo full (2)

Managing Editor's Note: Thank you to our sponsor TACA for their response to the court cases today. Here it is.

What happened February 12, 2009 in Washington, DC?

More than a year-and-a-half has passed since the first Autism Omnibus Proceeding test case was heard to address claims of vaccine injury filed by parents of children with autism.  Families who believe their children’s autism was caused by vaccines have anticipated this day for a long time. Today we have the first three verdicts. To date, more than 5300 claims have been filed in the program with the cases still waiting to be heard.

What were the verdicts?

Today we learned yet another government system has failed the families affected by autism. All three cases:  Cedillo, Hazelhurst, and Synder were ruled against the families and they were found not entitled to a program award for their children for the vaccine autism link.  The problem with the rulings is the judges indicated that the petitioners has fallen short of demonstrating such a link. And at the same time they did not dispel it either.

Continue reading "TACA's Response to Autism Omnibus Court Decision" »

Autism Speaks Responds to Autism Omnibus Court Decision

Autism speaks Managing Editor's Note: Here is Autism Speaks' statement.

Today the National Vaccine Injury Compensation Program ruled that the combination MMR vaccine -- with and without the preservative thimerosal -- did not contribute to three particular children's autism. These latest rulings are limited, and do not mitigate the need for further scientific investigation.

Continue reading "Autism Speaks Responds to Autism Omnibus Court Decision" »

On Autism One Radio

Autism one From our friends at Autism One. Please scroll down to see some of their upcoming programming at www.autismone.org/radio.

Thursday, February 12
2:00 PM - 2:30 ET
Shauna Layton: WE Are Together In Autism
Guest: D.J. Svoboda

Topic:  Living With Autism - Advocacy & Imagifriends
Twenty-four-year-old Daniel John Svoboda was diagnosed at the age of three with Autism Spectrum Disorder with Psychomotor Retardation. During DJ's school years, he went through some very difficult times and was often picked on and made fun of.

Continue reading "On Autism One Radio" »

David Kirby on HuffPo: Keith Olbermann

Shattered Good news from David Kirby on Huffington Post HERE. Please watch Keith Olbermann's Countdown on MSNBC tonight. Then send Keith a nice note at countdown@msnbc.com

For Keith Olbermann

By Kim Stagliano

Last night, Keith Olbermann pronounced Dr. Andrew Wakefield, "The worst person in the world."  There is a full PR campaign running against Dr. Wakefield and anyone else who speaks out against the safety and efficacy of vaccinations. I doubt Mr. Olbermann had spent more than a moment on the vaccine topic prior to last night. He got a press release, or a whisper in his ear. This is for you Keith.

Kim Stagliano is Managing Editor of Age of Autism.

Katie Wright on IACC, aka "Team Can't Do"

Bomb clock By Katie Wright

The IACC committee makes an incredibly persuasive case for direct democracy.

IACC’s unelected leader and unelected government officials have repeatedly acted only in their own self interest rather than in the public’s. Interesting, because that is why we have the autism epidemic in the first place.

Tom Insel is a man clearly trying to run out the clock. His boss, Mike Leavitt is gone and Insel is taking full advantage of his power in pursuit of his own agenda- stopping vaccine research. The committee voted to spend a miniscule  2% of the CAA budget for independent vaccine research. Insel, apparently panicked at that prospect, held a surprise “re-vote” at the next meeting. Anti- vaccine research committee members were told about the re-vote in advance but members who stand for honesty, transparency and the public interest were not.

Continue reading "Katie Wright on IACC, aka "Team Can't Do"" »

Columbia University Press and Dr. Paul Offit Sued for Autism's False Prophets

DR. PAUL OFFIT SUED FOR INVASION OF PRIVACY
IN THE CIRCUIT COURT OF THE STATE OF OREGON FOR THE COUNTY OF MULTNOMAH
PLAINTIFF, an individual,
Plaintiff,
v.
COLUMBIA UNIVERSITY PRESS, a New York corporation, and PAUL A. OFFIT, M.D., an individual, Defendants.

Plaintiff alleges as follows:

1.         Nature of Action This is an action brought by Plaintiff against Columbia University Press ("the Press") and Paul A. Offit, M.D. ("Offit") (collectively, "Defendants") for false light invasion of privacy arising from a fictionalized online "conversation" between Plaintiff and Kathleen Seidel.  The fictionalized conversation appears in Autism's False Prophets:  Bad Science, Risky Medicine, and the Search for a Cure, a book authored by Offit and published by the Press.  Offit fabricated the online conversation to portray Plaintiff, a respected spokesperson and advocate for biomedical treatment of autism, as responding unreasonably and in a threatening manner to a "plea" by Seidel, a supporter of Offit's pro-vaccination views.  In truth, as a simple inspection of the relevant websites reveals no such "plea" was ever made by Seidel, and the response attributed to Plaintiff never occurred as stated by Offit.  Offit simply made up the exchange because it suited his purpose of villainizing Plaintiff in the community of parents, volunteers, and members of the public concerned about the link between vaccines and autism. 

Continue reading "Columbia University Press and Dr. Paul Offit Sued for Autism's False Prophets" »

Sunshine is the Best Disinfectant

Disinfectant TRENTON, N.J. -- Pfizer Inc., the world's biggest drugmaker, said today it will begin disclosing all sizable payments it makes to doctors, including those who test experimental drugs in people, a first for the industry.

The disclosures would begin early next year and are planned to include all payments to a doctor or other prescriber exceeding $500 in a year, the New York-based company told The Associated Press.

The move comes after introduction last month of legislation to require such disclosures, and revelations of astronomical payments to some doctors that were not revealed to universities and hospitals that employed them.

Read the full article in the LA Times HERE.

Gill Hornby of UK's Telegraph: There's more to the pain of autism than the MMR debate

Gastro_childPlease click HERE to comment on Gill Hornby's piece at the Telegraph UK site. Here's an excerpt:

It is sad that Dr Andrew Wakefield's research on a gut condition linked to autism has been lost along with his reputation, says Gill Hornby.

My dear nephew, Danny, is autistic. He is at the more severe end of the autistic spectrum: he has only a few words and gets locked into repetitive behaviour. Now 15, he has been cheerfully watching the same episodes of Pingu since he was one. And yet, at the moment, autism is not Danny's biggest problem. He is a sunny, gentle soul, lovely to have around, benign. He goes, with great enthusiasm, to a brilliant school and he demonstrably loves his mum and dad.

The real blight on Danny's life is a disorder in his gut which is so severe it has him bellowing with the pain, harming himself, banging his head against the wall. He cannot describe it because he cannot speak. He can't warn of an attack, but if one strikes when he is in the park, or on a bus, it is a nightmare.

Nobody knows if this gut condition is linked to his autism. Nobody knows how many autistic children suffer from it. Anecdotally, it is common but there has been no systematic exploration of it, and there are no statistics. The only doctors who have shown any interest are those at the Royal Free Hospital. They had started to research it. Then Dr Andrew Wakefield published his paper linking the MMR jab, bowel disease and autism, and the world went mad.

Florida Autism Dad Writes to NIMH's Dr. Tom Insel

Fatherhood Managing Editor's Note: Here's a fine example of a parent/patient advocate (aka, a father warrior) educating the leadership to exact positive change.  Dr. Tom Insel is the Director of NIMH.

By Brian Scott

Dear Dr. Insel,

I am writing to you in hopes of convincing you that there is much to be learned by evaluating the possible relationship between a more aggressive vaccination schedule and the apparent increase in autism diagnosis.

In the last few years, there have been a series of articles published in widely respected journals that unquestionably point towards the presence of an ongoing inflammatory process in children with autism; and in some cases, specifically, in the brains of people with autism.  Considering these findings, I believe it is prudent that we find a way to determine if the artificial stimulations of our infants immune systems at an early age may be related to what has been observed at a diagnostic level. 

Specific examples of an ongoing inflammatory process in the brain and CNS of people with autism have been observed in at least three studies in the past four years:

Continue reading "Florida Autism Dad Writes to NIMH's Dr. Tom Insel" »

Update: British Bulldog Attacks Dr. Wakefield Again

Brit bulldog Sunday Evening Update: Dr. Wakefield will be providing a rebuttal to Mr. Deer's piece. In addition, parents in the UK may also chime in. Stay tuned.  HuffPo picked up the Deer story this evening (HERE.)  

UK journalist Brian Deer continues to attack Dr. Andrew Wakefield in his latest piece. You can view the full Times Online article HERE. Below is the introduction:

On a Monday morning in February 1997, a taxi left the Royal Free hospital, in Hampstead , northwest London. It turned out of the car park and headed to the renowned Institute of Cancer Research, six miles southwest in Fulham.

In the back of the cab sat a California businessman, whose commercial interests lay in electroplating, but whose personal crusade was autism. On his lap was a plastic pot, in which snips of human tissue floated in protective formalin.

The snips were biopsies taken from the gut of the man’s five-year-old son, then a patient on the hospital’s Malcolm ward. The boy, Child Eleven, as he is known to protect his privacy, had been enrolled in a programme to investigate alleged risks of the three-in-one measles, mumps and rubella (MMR) vaccine.

You can read a response from the Child Health Safety blog HERE. Here's the intro:

Another World Exclusive

The reputation of The Sunday Times of London takes another nose dive today in yet more junk journalism by an unethical unprofessional freelance journalist to revive a seemingly flagging career [more of which below].

The new accusations appear in The Sunday Times today...

For Autism Awareness Month: Autism Research Institute's Puzzle Piece Challenge

ARI puzzle pieceThere's still time to order your puzzle pieces for Autism Awareness Month in April!  How many Shamrocks for Jerry's Kids have you bought at the grocery store? Here's a chance to support the fine work of our sponsor, Autism Research Institute.   Did you know Dr. Bernard Rimland founded the Autism Society of America and ARI?

You buy a stack of puzzle pieces and take them to your school, local grocery store, gym, hair salon, swim club - anyplace YOU support. They sell the puzzle pieces for a dollar apiece. You pick up the money, send it to ARI and when enough of us participate we won't need to depend on the kindness of government strangers, if you get my drift.

Order a pack. Order two or more.  We'll announce who sell the most puzzle pieces and offer a fine prize to the winner. (Dan, do we have any fine prizes?) 

Click HERE to get started!

Parents of 6 Year Old with Autism Work to Offer Affordable Alternative for Parents

Lund ALPHARETTA, Ga.,  Feb. 3, 2009 -- Parents of children with autism often face a daunting task of paying for the prescribed hours of ABA (Applied Behavior Analysis) therapy for their children. With the rate of autism listed at 1 in every 150 children, and the average yearly cost of ABA therapy between $20,000 and $50,000, more families than ever are facing an uphill battle to pay for services. Only a handful of states mandate insurance companies to pay for ABA and for those that can't afford therapy, there is little available.

In an effort to provide every family with a chance to help their children, Maximum Potential Group (http://www.maximumpotentialkids.com) of Alpharetta, GA has released an ABA training course that provides parents with an opportunity to learn the principles of ABA. The program gives parents, school systems and caregivers everything they need to make a difference in the lives of their children and students, at a fraction of the cost of traditional therapy options.

Continue reading "Parents of 6 Year Old with Autism Work to Offer Affordable Alternative for Parents" »

Today: Interagency Autism Coordinating Committee Meeting

Listen Click HERE to tune into today's IACC meeting via webinar. Wednesday, February 4, 2009 9:00 AM - 4:00 PM EST 
 
To discuss the Strategic Plan for Autism Spectrum Disorder Research and its updating, and to discuss recent autism-related Federal activities.

System Requirements
PC-based attendees
Required: Windows® 2000, XP Home, XP Pro, 2003 Server, Vista
 
Macintosh®-based attendees
Required: Mac OS® X 10.3.9 (Panther®) or newer
 
 
 

Listen or Attend IOM Meeting to Review National Vaccine Plan

Participate Further Opportunities for Public Participation
Government to Kids - “More Vaccines . . . Sooner!”

 A committee of the Institute of Medicine will hold the third in a series of meetings (HERE) to review the draft National Vaccine Plan on Monday, February 2, 500 5th Street NW, Washington, DC., 8:30-5:30.  This meeting will be audio webcast in real-time. 

To listen to the webcast, visit http://nationalacademies.org/ and click “LIVE WEBCAST” (top-center of the webpage) on Monday, February 2nd.  The link will be activated at 8 a.m. EST and will be available until the meeting is adjourned at 5:30 p.m.  This is yet another of several ongoing opportunities to personally participate in decisions relating to vaccines and vaccine safety.  There are three other meetings crucial to vaccine safety this week:

1.  National Vaccine Advisory Committee Vaccine Safety Working Group, Wednesday, 8-12:30, telecase on 888.469.2187, participant passcode 2973732.  Webcast and other information can be found at HERE.

Continue reading "Listen or Attend IOM Meeting to Review National Vaccine Plan" »

Autism Not Genetic –Says Expert Professor Simon Baron-Cohen

Double helix By Clifford Miller

In responding to John Stone’s Age of Autism article ‘Simon Baron-Cohen: Thinking Differently About Autism’ on One Click News, Prof Baron-Cohen not only firmly conceded that autism is in part environmental  -  contradicting the Offit doctrine beloved of health officials on both sides of the Atlantic  – he seems to have offered a further hostage to fortune. The point is taken up now by Clifford Miller on the ChildHealthSafety website HERE, who demonstrates that Baron-Cohen offered a fallacious proof that some cases of autism were “genetic”, based on instances of autism in identical twins. Yet, less than three weeks ago Baron-Cohen was kite-flying the idea that genetic screening for autism might soon be possible.  As usual there seems to be some confusion as to what Prof Baron-Cohen really thinks. The case continues to unravel... HERE.

Clifford Miller is a practising UK lawyer, and graduate physicist of Imperial College, London. In 2007 he organized the successful defence and exoneration of London GP Jayne Donegan HERE against charges of giving misleading evidence on vaccine safety and effectiveness.


 

Continue the Protest of Federal Autism Committee’s Deceitful Reversal on Vaccine-Autism Research

Action alert Managing Editor's Note: The easiest way to participate is to click HERE and read the info on the Autism Action Coalition site.  We've copied the info below, but please, go to their site for details and to particpate in this action alert!

Autism Telephone Call Action Alert! Your Response to Our Email Message Alert Was Overwhelming – tens of thousands of Messages Were Sent. Now it's Time to Call Congress!

“The bureaucrats responsible for this scandal are on the wrong side of history…”
- Robert F. Kennedy, Jr. and David Kirby, Huffington Post 1/27/09

Last week The Autism Action Coalition asked the autism community to send letters to key government decision-makers objecting to the inexcusable actions of the Federal members of the Interagency Autism Coordinating Committee (IACC) in retracting vaccine-autism studies. Your response was overwhelming and thousands of letters were sent!

We’re asking for your help again before the next IACC meeting takes place – less than a week away! We are asking you to call 3 key legislators who are critical in making sure that autism research addresses the mounting health crisis of people with ASD.

Call Senator Edward Kennedy at (202) 224-4543

Call Senator Mike Enzi at (202) 224-3424

Call Representative Chris Smith at (202) 225-3765

Continue reading "Continue the Protest of Federal Autism Committee’s Deceitful Reversal on Vaccine-Autism Research" »

Paula Crossfield on HuffPo: "A Friend of Our Kids"

Huffpo Paula Crossfield is a HuffPo blogger (she writes about food, see her site, Civil Eats) who draws the conclusion that maybe, just maybe, mercury really is a problem for our kids.  Click HERE to read and comment please.

Until now, parents of children with autism who have spoken up about their fears that their child's disorder came on the heels of vaccination have been given the status of heretic. But it turns out that the increase in autism we have been witnessing over the last few decades could be a result of the over-all increase in the body burden caused by mercury in our air and water, and by proxy the fish we eat, our vaccines and dental fillings, and now, in our high fructose corn syrup, a substance marketed and consumed most often by those most at risk: children...

 

The Politics and Commerce of Autism

FamilyAndEugenics2 Managing Editor's Note: To learn more about the One Click Group, click HERE. 

Curves and Swerves Tricks used by Professor Baron-Cohen and the British government to avoid what is staring them in the face in autism.

By Lisa Blakemore Brown
Psychologist

Over the last few years, given the frightening epidemic of autism and the appalling suffering of so many, I have been bewildered by the choice of research undertaken by those who have been able to get funding from the UK Government. It has become increasingly obvious that the elephant in the room – vaccines linked to autism, cot death and other conditions – is being ignored as are those who have suffered, unless of course they are blamed. Blame theories (such as Munchausen by Proxy) form another elephant that people have turned a blind eye to and if you read this article you will see that MSBP is intertwined with vaccines issues.

Meanwhile extraordinarily obscure theories are given funding, presumably because they will usefully distract attention from the real issues. However, the recent stories in the media about Simon Baron-Cohen’s research on prenatal bio-markers have led us up the dark path of eugenics.

Continue reading "The Politics and Commerce of Autism " »

Il Mercurio and the AAP

Fudge By David Kirby

The new thimerosal study published in Pediatrics leaves a lot of open questions. So does the response to the study by the Editor-in-Chief of the journal, Dr. Lewis First.

In his blog introducing the study, Dr. First wrote that, "You'll be reassured that the results show essentially no differences between groups who did or did not get thimerosal in their vaccines-and you'll want to know this information when talking with parents of your patients about the safety and benefits of vaccines."
http://pediatricsblog.blogspot.com/

But that made no sense. The study clearly stated that all children received thimerosal in the first year of life - some got 62.5 micrograms and the rest got 137.5 mcg. But there were no children who "did not get thimerosal," as Dr. First urged America's pediatricians to tell parents.

I thought I would write to AAP and clear things up, and see if a correction would be run. Officials there were (and have been) courteous, respectful and professional. So I sent the following email to the press office of the Academy:

Continue reading "Il Mercurio and the AAP" »

Ray Salomone Fitness Tips for Parents


Ray head shot Managing Editor's Note: We're pleased to provide a second workout routine from fitness expert Ray Salomone (who is also a proud new Daddy! His son was born in December.)
His WARRIORS AND GODDESSES WORKOUT PLAN is free for the asking, just
send him an email through his website  www.GrecoRomanWellness.com

By Ray Salomone

Hi Everyone,

Thanks so much for welcoming me back. The last workout I posted was a quick blast that worked the entire body. (HERE)

 
This time I want to focus on legs. Many reports have shown that leg
strength, or lack of, is a great predictor of longevity and quality
of life as we get older. So my thought is: Strong legs and the rest
will follow.

Group One is if you have a staircase in your home. Group Two if not.

Continue reading "Ray Salomone Fitness Tips for Parents" »

We're Fruc'ted.

Children_corn_isaac Study finds high fructose corn syrup contains mercury. Read the Washington Post article HERE.  Note the sentence below, "Mercury is toxic in all it's forms." Except vaccines, we've been assured by AAP, CDC and O-F-F-I-T.

"Mercury is toxic in all its forms. Given how much high-fructose corn syrup is consumed by children, it could be a significant additional source of mercury never before considered. We are calling for immediate changes by industry and the [U.S. Food and Drug Administration] to help stop this avoidable mercury contamination of the food supply," said the Institute for Agriculture and Trade Policy's Dr. David Wallinga, a co-author of both studies.

(Dr. Wallinga is a graduate of The U. of Minnesota medical school and holds a Masters from Princeton University (alma mater of our own Mark Blaxill.)

Protest Federal Autism Committee’s Deceitful Reversal on Vaccine-Autism Research

Action alert2 Autism Action Alert: Click HERE to send your letter!

The inexcusable actions of the Federal members of the Interagency Autism Coordinating Committee (IACC) in retracting vaccine-autism studies must be stopped. Sound science must move forward, not thwarted by Federal agencies with vested interests in on-going vaccine-autism injury litigation.

The autism advocacy organizations listed below implore parents of children with autism - and all those who care about the burgeoning rate of autism and its toll on the health of our children - to take immediate action.

We are asking you to write a letter of disapproval to key government decision-makers on autism. Your letter will be sent to President Obama, your Senators and Representatives,  HHS Secretary Tom Daschle, the Senate HELP Committee, Senators Christopher Dodd, Joe Lieberman, and Edward Kennedy, and Congressmen Chris Smith and Joe Barton.

Your letters are needed NOW.  The next IACC meeting is Wednesday, February 4, 2009 - less than two weeks away!

Autism Action Alert: Click HERE to send your letter!

Continue reading "Protest Federal Autism Committee’s Deceitful Reversal on Vaccine-Autism Research" »

Mitochondrial Disease Foundation Letter to President Obama Includes Autism

Usmdf The United States Mitochondrial Disease Foundation has written a letter to President Obama. In it they state their request for more research into their area of science.

Of note to our community, they include this sentence: There is also new evidence that mitochondrial dysfunction plays a role in some children's autism.

Read a PDF of the letter HERE.

The Convention on Modern Liberty: Where Lies, Hypocrisy and State Bullying Remain Acceptable

Tower of london prison Managing Editor's Note: Thanks to John Stone for providing us with info from The UK.

By John Stone

Last weekend the noted Observer journalist and polemicist on civil liberties, Henry Porter, announced a national event to take place in London in a month’s time, an open conference on the dire state of civil liberties in Britain and called ‘The Convention on Modern Liberty’, to which an as yet incomplete list of speakers from many walks of life were invited. The title of his article was ‘Let the war on hypocrisy begin’ (HERE.)

I posted the following comment:

“One place we can begin the war on hypocrisy is to stop believing in the blanket state denial over vaccine damage. This week the information commissioner ruled that MMR vaccine files which the government have fought tooth and nail to remain hidden must be opened. An account of the lengths to which the British establishment and state have gone to to keep this matter under wraps can be found HERE.

Continue reading "The Convention on Modern Liberty: Where Lies, Hypocrisy and State Bullying Remain Acceptable" »

Will President Obama Address FDA Concerns?

Fda titanic Managing Editor's Note: Our Anne Dachel posted several articles about problems in the FDA in a post we ran yesterday HERE.

WASHINGTON – In an unusually blunt letter, a group of federal scientists is complaining to the Obama transition team of widespread managerial misconduct in a division of the Food and Drug Administration.

"The purpose of this letter is to inform you that the scientific review process for medical devices at the FDA has been corrupted and distorted by current FDA managers, thereby placing the American people at risk," said the letter, dated Wednesday and written on the agency's Center for Devices and Radiological Health letterhead.

Read the full article HERE.

Autism United Coalition Meeting for NY Agenda

Save date Save the Date!  On Saturday, January 31st, the Autism United Coalition is sponsoring a second meeting to work on our state-wide agenda for the 2009 legislative session at . The meeting will be held at The Clarion Hotel in Albany - 3 Watervliet Extension.  Registration is at 10:00am and the formal meeting starting at 11:00am and running until 4:00pm. 
 
This is an open invitation to leaders and activists within the autism community in New York who are interested in bringing positive change to people and families with autism.  We welcome all input and ideas - particularly those regarding minimizing the impact of state budget cuts.

If you are unable to attend, but would like to work on these issues with us, please forward your full contact information and the names of your local legislators.  Please also extend this invitation to anyone you know may be interested.  We are hoping to have local contact people in every legislative district.
 
Please email Lisa Rudley at lisarudley@yahoo.com to RSVP or for further information.

Autism File Magazine January Issue

US30_AF 1 In response to the information coming over from the UK recently, we would like to let readers know that the January 2009 issue of The Autism File USA, which starts reaching stores on January 29, includes Martin Walker's article titled "Vaccine Damage Denial and the British Press." This includes information about the Urabe strain MMR vaccine and obstructionism in the press. Other articles in this issue include:  

"My Daughter, Hannah Poling: Personal Perspectives & Clues to a Larger Puzzle" by Terry Poling, RN, JD; and "Moving Toward a Multi-Treatment Approach to Autism" by Jonathan Alderson, EdM.
 
For these and more than thirty additional informative articles on education, treatment, advocacy, and more, please visit a bookstore that stocks The Autism File USA or visit www.autismfile.com to subscribe.
 

Whose American Life?

Bad apple By Becky Estepp

The December 19th episode of “This American Life” on Chicago Public radio was titled “Bad Apples.”  You can hear the broadcast HERE.

The following is the description of this episode off of the “This American Life” website:
Ruining It for the Rest of Us

Stories of people who ruin things for everyone else...or who are accused of that.  Like the San Diego parents who didn't vaccinate their child for measles.  When their seven-year-old caught the disease on an overseas trip, this decision became a whole community's problem.  The outbreak infected 11 children and endangered many others.

Continue reading "Whose American Life?" »

IACC Insanity

Straight jacket By Katie Wright

Is IACC a serious autism research committee or a daytime drama? I’m confused. This would be funny if so much were not at stake. The machinations, backstabbing, covert agendas, and secret confabs are reminiscent of 2000 Florida re-count. Sometimes rules and laws apply, other times they do not, secret phone calls, secret meetings, anonymous votes, mysterious re-votes on already settled business, broken promises, probably broken laws…

Parents all over this country who worked so hard to see the CAA passed were listening to Wednesday’s goings on thinking, “What the hell, Tom!” When my parents should have been down in Florida with their pals, playing golf and generally being retired, they were pounding the halls the Congress and the Senate working hard to procure this money for autism research. I went with them only a few times, but I never saw Tom Insel or Ed Trevathan there. Now, Tom and his cronies seem to think it is their prerogative to re-write the Combatting Autism Act. Enzi, Kennedy and Dodd, clearly and unequivocally said on the Senate floor that the CAA must finance independent vaccine research. Not, “independent vaccine research- pending the approval Tom Insel and Alison Singer.”

Continue reading "IACC Insanity" »

TACA Receives $300,000 Grant for Autism Progams from Pacific Life Foundation

Pac life Managing Editor's Note:  Congratulations to our sponsor TACA on a "whale" of a grant!  TACA will put this money where it's heart is - with the children.

TALK ABOUT CURING AUTISM RECEIVES $300,000 GRANT FROM PACIFIC LIFE FOUNDATION TO PROVIDE SERVICES FOR FAMILIES AFFECTED BY AUTISM IN ORANGE COUNTY

Costa Mesa, CA - January 21, 2009 -Talk About Curing Autism (TACA) is thrilled to announce the receipt of a $300,000 multi-year grant from the Newport Beach based Pacific Life Foundation.  As a direct result of this generous contribution, TACA will launch three new programs for Orange County, California for families including a Spanish-language program, the addition of an in house advocate to provide education, training and support for families, and scholarships that would allow families to procure independent assessments for their children.  All of these programs are offered at no charge to families affected by autism. 

Continue reading "TACA Receives $300,000 Grant for Autism Progams from Pacific Life Foundation " »

Simon Baron-Cohen Fails to Deliver For Common Humanity

Cat got tongue Managing Editor's Note: You can listen to an interview with Professor Simon Baron-Cohen on Autism One Radio HERE.  (When the show time is highlighted in blue that means it's archived. Click it to to an audio player.)

Simon Baron-Cohen has responded to John Stone's Age of Autism article 'Simon Baron-Cohen: Thinking different about autism' (HERE) which was re-published on One Click News with the header 'Malefic Idiot Psychologist'. The exchange of letters between Prof Baron-Cohen and John Stone can be read HERE.

In it Baron-Cohen concedes a vital point: that environmental factors in autism are as important as genetic. So, why is it that the medical establishment across the Atlantic - including Baron-Cohen - have sought to marginalise environmental factors such as vaccine from the debate for the past two decades amid innumerable reports and expressions of parental anguish? Why is it also that professionals showing concern in the UK such as Andrew Wakefield, Lisa Blakemore-Brown and Jayne Donegan have been persecuted?

Where was Baron-Cohen's voice when this happened?

But pehaps most curious of all in the current context is the question: what was Baron-Cohen's purpose, only two weeks ago, in trying to initiate a debate on autism screening when he seems to agree here that the a purely gene based theory of autism is unsustainable, and that therefore the issue really does not arise?

Commenting Issues on Age of Autism

Many readers have emailed us that they can not comment on the site.  The blog software has changed and commenting was affected.  A wily reader solved the problem. We suggest you type your comment, then hand type your entire screen name and your complete email address in full, DO NOT USE AUTOFILL (that's where you type the first letter and the computer remembers and adds the rest.)  That should make the gray "post" button flip over to black.  We're sorry for any inconvenience.  KS

Simon Baron Cohen on Autism One Radio January 20

Autism one radio Special on Autism One Radio
www.autismone.org/radio
Tuesday, January 20
1:00 pm ET

Polly Tommey presents: Autism Issues Around the World
Guest:  Simon Baron-Cohen, PhD, MPhil
Topic:  Prof. Simon Baron-Cohen's testosterone theory, his view on what he found, what he is seeing, and how he was misrepresented by the British press.

Join The Autism File magazine editor-in-chief, Polly Tommey, as she talks with Prof. Simon Baron-Cohen. According to Polly Tommey: "Simon Baron-Cohen asserts that he was grossly misrepresented by the British press, he is horrified with the Guardian article, and says this has absolutely nothing to do with terminating pregnancies." Polly continued talking about the British press: "The press is just crap. They grossly misprint anything to do with autism over here. They are stopping all the science...everything in this country, and you can't move forward due to the British press."

For additional background on the obstructionism of the British press and the influences behind it, please see the upcoming article in the January 2009 edition of The Autism File magazine titled  "Vaccine Damage Denial and the British Press" by Martin J. Walker.  Visit www.autismfile.com


 

Participants Requested for Autism Treatment Stories

Canada Lea and Litsa are in Canada and seeking stories about how ABA and/or biomedical treatments have helped your child.

By Lea Schizas & Litsa Kamateros

Follow and participate in the journey of our upcoming book: Autism Epidemic: Shaking the System.  We need your voice to be heard and validated through our book to the systems that have the capability to hear us and make necesary changes to benefit one and all.  Autism knows no boundaries, and we welcome input from everyone, no matter where you are situated around the world.  Visit our blog Shaking the System.
 
We are seeking Personal Success Stories from parents/guardians who have seen a remarkable improvement in their children using ABA and/or a biomedical therapy. The more stories we collect the more proof we have that ABA and/or biomedical treatments to help children with autism. Governments claim there is no cure for autism but if we can present to them remarkable recovery stories perhaps they will begin to be open and hear us out.

Send your personal success stories to us at: autismepidemic@yahoo.com.

Talk About Curing Autism Faith, Hope & Recovery Project

Ryan-scheckler TACA  is blessed to have friends and supporters who are celebrities and professional athletes, and who care deeply about people with autism and the TACA mission. Many times they asked us how they could help. In response to that question, the FAITH, HOPE & RECOVERY PROJECT was born.

The Hope, Faith & Recovery Project consists of artwork developed by TACA special friends along the theme of three very important words for families living with autism - HOPE, FAITH and RECOVERY. Each artist has been asked to be inspired by infusing hope for families affected by autism and for the finished project to have a child like flare.

Continue reading "Talk About Curing Autism Faith, Hope & Recovery Project" »

National Autism Association on IACC Removal of Vaccine Safety Research

NAA150wideManaging Editor's Note: This press release is from our sponsor National Autism Association.

Feds Rescind Congressionally Mandated Vaccine Research
Advocates Demand Conflict-Free Vaccine Safety Studies

Washington, DC – In an unprecedented move on Wednesday, the Interagency Autism Coordinating Committee (IACC) removed previously approved vaccine safety research from the Strategic Plan for Autism Research objectives. With apparent backing from the Centers for Disease Control and Prevention (CDC) representation, Committee chair and NIMH director Tom Insel implied that vaccine research conducted by the National Institutes of Health (NIH) would constitute a conflict given the involvement of Health and Human Services with ongoing autism cases filed in federal vaccine court. The committee's action is in direct opposition to the majority of its public members who support vaccine research, and to the Congressional directive of the Combating Autism Act of 2006 (CAA) which specifically called for research into “potential links between vaccines, vaccine components, and autism spectrum disorder.”

Continue reading "National Autism Association on IACC Removal of Vaccine Safety Research" »

Alison Singer Feeds the Hungry Lie – Twice

2 pigs By J.B. Handley
 
I thought I'd seen everything.
 
I work in corporate America, and I have never before seen an employee with a managed termination (a nice word for getting fired) issue their own press release announcing their "resignation" from a job, five minutes before their employer does the same thing.
 
And yet, that's what Alison Singer did – she issued her own press release announcing her termination (in so many words). Go figure.

Continue reading " Alison Singer Feeds the Hungry Lie – Twice" »

TACA: IACC Rescinds Vaccine Research Initiatives

TACA 160 Managing Editor's Note: The following is from our sponsor TACA.

The Inter-Agency Autism Coordinating Committee Meeting Rescinds Vaccine Research Initiatives from the Strategic Plan of Combating Autism Act

Statement prepared by TACA's Rebecca Estepp
January 16, 2009

What happened Wednesday January 14, 2009 in Bethesda, Maryland?

In a dramatic turn of events, the National Institute of Mental Health Director Thomas Insel, MD Chairman of the Interagency Autism Coordinating Committee (IACC) called for a vote on a previously voted-on and approved decision to the Strategic Plan of the Combating Autism Act of 2006. December 2008, IACC approved two studies to address vaccine safety as it pertains to autism.  The vote to reverse this previous decision was a surprise to the public members of IACC. It was not listed on the meeting’s agenda. 

Who is IACC and what do they do?

Continue reading "TACA: IACC Rescinds Vaccine Research Initiatives" »