Current Affairs Feed

AoA Contest: Saving Deets! A Brother's Tale of Autism Acceptance, Recovery and Making a Difference

Saving deets Cathy M. is our winner.  The contest is closed.

By Kim Stagliano

Zack Gonzalez is a 16 year old whose brother Ethan, aka "Deets" has autism. Countless siblings are dealing with the issues of having a brother or sister with autism. Few are able convey the gravity of that experience, their hope for some form of recovery, engage in charitable work and offer advice to families the way Zack has done so well in Saving Deets.

Continue reading "AoA Contest: Saving Deets! A Brother's Tale of Autism Acceptance, Recovery and Making a Difference" »


Age of Autism Comment of the Week 10/24

AOAFElizabeth is our commenter of the week. Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats! 

She commented on our IACC reminder post yesterday: I have been listening to this all morning (west coast) while doing my college homework and this is the most boring thing I have ever heard. It is like people having a meeting about a meeting about a meeting...ugh.  This isn't about autism, it's about the lack of continuity between ABA studies, the "panel", the "committee", the "issues", the "concerns", the "refinements", the "changes", the "clarifications", the "sub-committee meetings"...GOOD LORD GET TO THE POINT!!

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us on the PayPal form if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal. Click below to  to see the back of the shirt.

Continue reading "Age of Autism Comment of the Week 10/24" »


Junk Food for Autism?

Trix By Kim Stagliano

Autism Speaks has teamed up with Bachman, makers of the puzzle shaped pretzels and the neon orange snack called Jax, HERE to raise money for themselves. Artificial colors, flavors and MSG to raise money for autism? Fabulous. Careful not to get that orange stuff on your PECS!

Hey, does the Trix rabbit have autism? He sure does perseverate on that cereal. Never talks about anything else. Maybe they can team up with him next?

Jax Ingredients: Enriched Corn Meal [Contains Iron as Ferrous Sulfate, Niacin, Thiamine Mononitrate (Vitamin B1), Riboflavin (Vitamin B2)], Vegetable Oil (Contains One or More of the Following: Corn, Canola, or Sunflower Oil), Whey, Cheddar Cheese (Pasteurized Milk, Cheese Cultures, Salt, Enzymes), Salt, Maltodextrin, Buttermilk, Nonfat Milk, and Less Than 2% of the Following: Disodium Phosphate, Blue Cheese (Pasteurized Milk, Cheese Cultures, Salt, Enzymes), Color (Annatto Extract, Yellow No. 6, Turmeric Extract, Red No. 40, Caramel), Sodium Caseinate, Lactic Acid, Monosodium Glutamate, Citric Acid, Silicon Dioxide (Anti-Caking Agent), BHA (To Protect Flavor), Autolyzed Yeast Extract, Sodium Citrate, Soy Lecithin, Natural and Artificial Flavors, and Spices CONTAINS MILK AND SOY INGREDIENTS

Kim Stagliano is Managing Editor of Age of Autism.


Governor Paterson of NY Reverses H1N1 Vaccine Mandate

New york Rick Karlin reported last night in the CapitolTimes blog HERE that the Governor of NY has issued a press release reversing the Empire State's H1N1 vaccine mandate for healthcare workers in an effort to preserve limited supplies for at-risk populations.

Governor David A. Paterson today announced that State Health Commissioner Richard F. Daines, M.D., has suspended the mandatory influenza immunization requirement for New York health care workers so that the limited vaccine supplies can be used for populations most at risk of serious illness and death – especially pregnant women and children and young people between the ages of 6 months and 24 years.

“Over the last week, the Centers for Disease Control and Prevention (CDC) acknowledged that New York would only receive approximately 23 percent of its anticipated vaccine supply by the end of the month,” Governor Paterson said. “As a result, we need to be as resourceful as we can with the limited supplies of vaccine currently coming into the State and make sure that those who are at the highest risk for complications from the H1N1 flu receive the first vaccine being distributed right now in New York State...”


Age of Autism Contest: Episodes an Autism Memoir by Blaze Ginsberg

Episodes We posted Chantal's review of Blaze in August. Now we have a copy to give to one lucky reader.  Leave a comment to enter the contest.
By Chantal Sicile-Kira

Episodes: My Life as I See It
 
I love this book.  Disclaimer: I have known  Blaze Ginsberg for many years. In fact, he used to ride the special education school bus with my son, Jeremy. Blaze has always had a special place in my heart because of his  unique personality, and because of my friendship with his mom, best-selling author Debra Ginsberg, (she chronicled  Blaze’s early years in Raising Blaze). Debra and I used to meet once a week for coffee and discuss our trials and tribulations about our mutual ongoing struggles with the  school district.  Now we get together and discuss our trials and tribulations about our mutual ongoing struggles with life as a parent of a young adult on the spectrum.

Continue reading "Age of Autism Contest: Episodes an Autism Memoir by Blaze Ginsberg" »


IACC Meeting Webcast to Include ABA Presentation

Aba therapy(Managing Editor's Note: Why do the "experts on autism" require a tutorial on a basic therapy for autism that 99% of parents learn about in early intervention? And did we miss the presentations by Dr. Tim Buie of MGH on GI issues? Or Dr. Boyd Haley on Toxicology?)

IACC Full Committee Meeting
 
Date: Friday, October 23, 2009

Time: 9:00 a.m. to 5:00 p.m. ET

Agenda: Includes a presentation by a panel of parents of children with autism, a presentation on Applied Behavioral Analysis by Dr. Tony Charman, and discussion of recommendations for updating the IACC Strategic Plan for Autism Spectrum Disorders Research.

Place: The National Institutes of Health, Main Campus
The William H. Natcher Conference Center
45 Center Drive
Conference Rooms E1/E2
Bethesda, MD 20892
Webcast Live: http://videocast.nih.gov/

Conference Call: USA/Canada Phone Number: 888-455-2920
International Phone Number: 212-287-1838
Access code: 3132846
Registration: http://www.acclaroresearch.com/oarc/10-23-09_IACC

Continue reading "IACC Meeting Webcast to Include ABA Presentation" »


CBS Determines That CDC Can Not Provide Accurate H1N1 Stats

Counting t shirt By Kim Stagliano

CBS News asks CDC for hard stats on H1N1 numbers: "Your office has stopped communicating with us...."   Is anyone at CDC counting actual H1N1 case numbers to back up the statements that we have a medical epidemic?  Read the full article at CBS News HERE.

...If you've been diagnosed "probable" or "presumed" 2009 H1N1 or "swine flu" in recent months, you may be surprised to know this: odds are you didn’t have H1N1 flu.

In fact, you probably didn’t have flu at all. That's according to state-by-state test results obtained in a three-month-long CBS News investigation.

Continue reading "CBS Determines That CDC Can Not Provide Accurate H1N1 Stats" »


NIH Director Francis Collins Blames Resignation of Top Health Official from Autism Panel on “Tension and Lack of Trust

BlameGame_cover_2x3 Managing Editor's Note: David has added significant info at the end of this post.

By David Kirby

On Saturday, Story Landis, PhD, director of the National Institute of Neurodevelopmental Disorders and Stroke, an agency of the National Institutes of Health, abruptly resigned from the federal government’s premiere autism research panel – the Interagency Autism Coordinating Committee (IACC) – citing embarrassing notes she had left behind at a recent meeting.
 
But now, the Director of the NIH, Francis Collins, has come forth to blame “tension and a lack of trust,” (presumably among autism parents) for forcing Dr. Landis’s resignation.

Dr. Landis resigned from the powerful panel on Saturday after the Age of Autism blog published handwritten notes – assumed to be written by Dr. Landis – speculating on the motives of an autism mother and IACC member, Lyn Redwood – who wanted research into autism as a multisystem biological disorder, as opposed to a purely mental health disorder.

For more details on Dr. Landis’s resignation from the IACC, please see HERE.

Meanwhile, Dr, Francis Collins, head of the NIH, has spoken out on the resignation of Dr. Landis from the IACC, in a video clip posted by the Simons Foundation Autism Research Initiative: HERE.

Dr. Collins called autism a “disease” (as opposed to a disorder) that “ravages” children with autism, and that parents have “understandably” been left frustrated and impatient. He also rightly stated that we need to “poke around in every possible way” and not assume that there is just “one path” to solving the riddle that is autism.

But, some parents also wonder, was the NIH Director admonishing them for making Dr. Landis feel it was “necessary” for her to resign from the IACC? Was Collins also demanding that parents “step back?”

Continue reading "NIH Director Francis Collins Blames Resignation of Top Health Official from Autism Panel on “Tension and Lack of Trust" »


Autism Chair Thomas Insel Refuses to Ride in an Elevator With an Autistic Child

Thank you to Ginger Taylor of Adventures in Autism  for sharing this post.
"I'm not riding up with them" - Dr. Thomas Insel

On April 17, 2007, Holly Bortfeld attended an autism hearing in the Senate Appropriations Subcommittee run by Senator Tom Harkin. At that hearing Dr. Thomas Insel, Director of the National Institute of Mental Health, now current head of the Interagency Autism Coordinating Committee, was there to testify.

Beforehand, Ms. Bortfeld, was waiting with her 11 year old son Max, who has autism, at an elevator on the way up to the hearing. When the doors opened they got on.  After they did, Thomas Insel and a female companion approached and entered the elevator just before the doors closed. Ms. Bortfeld reports that once they were on the elevator together...

"...Max stimmed. Insel looked at him, looked at me (yes, he had his little name tag on, so he knew that I knew he was) then he hit the open door button and ushered his coworker off. As the doors were closing, he said "I'm not riding up with them", looking at my son."

The head of the National Institutes of Mental Health refused to ride an elevator with a child with mental health issues.

...again for clarity and perspective on this episode...

The chair of the Interagency Autism Coordinating Committee will not share an elevator with a child with autism, on the way into an autism hearing.

This odious behavior is not one of a healer committed to the well being of the disadvantaged or disabled, it is the behavior of a bigot.

It is just one more example of the pattern of astonishing contempt that Insel shows towards the autism community, as he routinely leaves IACC meetings early, dismisses the input of the autism community, and chairs an autism committee with some completely inappropriate appointments, like...

Continue reading "Autism Chair Thomas Insel Refuses to Ride in an Elevator With an Autistic Child" »


Vaccine Injury Isn't Just for Babies: The Desiree Jennings Flu Shot Story

Des1 Managing Editor's Note: As part of their vaccine safety and injury outreach initiative, Generation Rescue brings us the story of Desiree Jennings. Click (HERE) to learn how you can get involved. A Dr. Vincour, from the U. of Maryland has called Ms. Jennings's symptoms, "psychogenic," which means originating in the mind, not in true physiological illness. In fact, they are going to use her case to teach students about crazy women who think a vaccine could injure them. Psychogenic is akin to the word, "hysteria" which comes from the Greek word, "hyster" for uterus. Hysteria is a female disease. Psychogenic too, in this case, according to the "experts."

My name is Desiree Jennings and I am twenty-five years old. I work full-time as a Marketing Communications Manager for a major Internet company. I am currently working to finish my bachelor's degree in Finance and Economics this fall and hope to continue on to a Masters in Economics in 2010.

In my spare time, I enjoy running and training for races from 5Ks to marathons. I also lead a local run club, training beginning runners for 5K and 10K races. I am training for the National Marathon in DC in March and recently became a member of the Washington Redskins Cheerleader Ambassador team. That was the life that I used to know.


On August 23, 2009, I received a seasonal flu vaccine at a local grocery store that drastically, and potentially irreversibly, altered my future. In a matter of a few short weeks I lost the ability to walk, talk normally, and focus on more than one stimuli at a time. Whenever I eat I know, without fail, that my body will soon go into uncontrollable convulsions coupled with periods of blacking out. 

Continue reading "Vaccine Injury Isn't Just for Babies: The Desiree Jennings Flu Shot Story" »


Dear Jon: An Open Letter to America’s Favorite Hypochondriac.

Jon Stewart hypochondriacBy Adriana Gamondes

Dear Jon,

You don’t know me, but we may be breaking up. I don’t actually have time to watch your show, so you won’t be losing a viewer—maybe just an occasional Youtube-clip-watcher, but an avid one. Like so many, I’d once held you up as a sort of icon of independent media in a sea of embedded shills— even if you were once led into “by puppets making prank phone calls” as you put it (oh such good times we had—sigh).

But recent events have left me wondering—are you…could you be… somebody’s monkey after all? And do you dance? Or are you really truly squarely scout’s honor a wincing, cringing, emotionally crippled hypochondriac? Please let it be the latter, Jon, for then there is hope. 

After seeing your recent interview with Homeland Security Chief Janet Napolitano (HERE) which came off like a giggling plug for Sanofi Pasteur, my heart sank. I’m an autism parent and laughter is like a tourniquet to someone who just lost an arm in a wood chipper. In my case, both arms: my once healthy boy-girl twins began disappearing after flu shots at one year of age. It’s laugh or die for parents like me, but I’m no longer sure if you’re the kind of man I can click on in times of need. 

I’ve had to think it through. On the one hand, if I myself were a clever pundit making umpty millions on cable and my parent network, which happened to have pharm-friendly ties, was hinting that I should make nice about flu shots in the midst of a marketing frenzy (and my extraordinary survival barometer was telling me that if I made the wrong noises in this instance, even if I didn’t jump on a couch or subscribe to an alternative church and was careful to never repeat my “mochachino” quip in earshot of a women’s basketball team*,  something else I did or said could easily be turned into an excuse to make things far worse for me than all the other times I’d “bucked the pressure” combined),  I might take a vague dislike of having people spray snot in my face and whip it into a full blown case of hypochondria in my own mind if it made me feel better about “assuming the position”. On the other hand, I might be Monk.

Continue reading "Dear Jon: An Open Letter to America’s Favorite Hypochondriac. " »


Doug Flutie Speaks out on Autism and Insurance Coverage

Flutie Doug Flutie speaks out on the travesty that is autism insurance coverage. Read the full editorial at Boston.com HERE. Thank you, Doug.

...Parents will learn that, with early intervention, children with autism can make significant strides - a fact backed up by extensive studies. They’ll find that their pediatricians and neurologists will prescribe intense one-on-one speech, occupational, physical, and behavioral therapies. And then they’ll be dismayed to discover that, though they’ve always paid their health care premiums, their health plans will not cover these services.

Why don’t health plans cover treatments for the fastest-growing health threat to children? There is a contradiction between the role of schools versus that of medicine and health plans. Federal law stipulates that schools provide services necessary to allow all children to “access the curriculum.’’ While critical to helping children with autism excel in the classroom, this in no way replaces their need for therapy to improve long-term brain functioning - not only to get through an average day, but to lay the foundation for the rest of their lives...


FTC Issues Warning Letter To Dr. Weil for H1N1 Products

Cut it out Tsk, tsk, how dare Dr. Weil promote natural treatments for H1N1 instead of vaccination? He's been issued a warning letter by the FTC.

HERE to see the warning letter.

Weil Lifestyle LLC 10/15/09

UNITED STATES OF AMERICA
FEDERAL TRADE COMMISSION
BUREAU OF CONSUMER PROTECTION
WASHINGTON, D.C. 20580 DEPARTMENT OF HEALTH
AND HUMAN SERVICES
FOOD AND DRUG ADMINISTRATION
WASHINGTON, D.C. 20740

TO: ebenjamin@drweil.com
www.drweil.com

FROM: The Food and Drug Administration and the Federal Trade Commission

RE: Unapproved/Uncleared/Unauthorized Products Related to the H1N1 Flu Virus; and

Notice of Potential Illegal Marketing of Products to Prevent, Treat or Cure the H1N1 Virus

DATE: October 15, 2009

WARNING LETTER

This is to advise you that the United States Food and Drug Administration ("FDA") and the United States Federal Trade Commission ("FTC") reviewed your website at the Internet address www.drweil.com on October 13, 2009. The FDA has determined that your website offers a product for sale that is intended to diagnose, mitigate, prevent, treat or cure the H1N1 Flu Virus in people. This product has not been approved, cleared, or otherwise authorized by FDA for use in the diagnosis, mitigation, prevention, treatment, or cure of the H1N1 Flu Virus.

Continue reading "FTC Issues Warning Letter To Dr. Weil for H1N1 Products" »


Age of Autism Comment of the Week

AOAF Laura Kay Berry is our commenter of the week. Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats! She commented on our Saving Deets book contest. Just last week my 11 year old daughter had a classmate at school making fun of an autistic high school kid who had visited her house. She called him retarded and made fun of everything he did and everything he said. My daughter didn't even know how to respond. Her 9 year old brother scripts constantly, can speak only in short rehearsed sentences and still wears a diaper; but is cute, funny and intelligent and she adores him and accepts him completely. As parents we often think we are shouldering the burdern alone, but autism affects every member of the family. Kudos to Zack for sharing his story so that other siblings will know they are not alone!

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us on the PayPal form if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal. Click below to  to see the back of the shirt.

Continue reading "Age of Autism Comment of the Week" »


The Atlantic on Flu Vaccination

Atlantic Managing Editor's Note: Shannon Brownlee was just on MSNBC talking about the need for vax/unvax studies, to which the interviewer asked, "Why aren't these studies done?" Why indeed.

Whether this season’s swine flu turns out to be deadly or mild, most experts agree that it’s only a matter of time before we’re hit by a truly devastating flu pandemic—one that might kill more people worldwide than have died of the plague and aids combined. In the U.S., the main lines of defense are pharmaceutical—vaccines and antiviral drugs to limit the spread of flu and prevent people from dying from it. Yet now some flu experts are challenging the medical orthodoxy and arguing that for those most in need of protection, flu shots and antiviral drugs may provide little to none. So where does that leave us if a bad pandemic strikes?

By Shannon Brownlee and Jeanne Lenzer (Shannon Brownlee is a senior research fellow at the New America Foundation and the author of Overtreated (2007). Jeanne Lenzer is an investigative journalist and a frequent contributor to the British medical journal BMJ.)

Does the Vaccine Matter?

Read the full article in The Atlantic
HERE.  You can buy Ms. Brownlee's book, Overtreated: Why Too Much Medicine is Making Us Sicker and Poorer HERE.


But There's Mercury in the H1N1 Vaccine! Curiouser and Curiouser.

Madhatter Tom Insel Thank you to the very talented AoA contributor Adriana Gamondes for this photo and the link to the National Institutes of Health's "Mad as a Hatter" campaign HERE.

As you may already know, the majority of the new H1N1 injectible vaccines contain mercury.  In fact, the recommendation to remove mercury from childhood vaccines has been put on hiatus for the H1N1 pandemic vaccination campaign. Is there no "satisfactory alternative" to the mercury laden vaccine? (See below.) Perhaps someone from the NIH mercury free campaign can enlighten us. Dr. Insel? From the NIH site:
 
The Mad as a Hatter Campaign is a voluntary pollution prevention initiative intended to improve awareness of mercury hazards and eliminate unnecessary uses of mercury at all NIH facilities.

This effort builds on the successful mercury reduction campaign in the mid - 1990's conducted by the Warren G. Magnuson Clinical Center (CC) at the NIH. John E. Porter past chairman of the House Subcommittee on Labor, Health and Human Services, and Education Appropriations, noted that the CC Campaign was an example of the leadership that NIH was taking in reducing the use of environmentally damaging chemicals and that such efforts should pervade the entire research community.

Paris Glendening, past governor of Maryland cited the campaign as setting "a high standard for environmental outreach and education."

We invite all members of that community, within and outside NIH, to join us in this effort.

What do we mean by "mercury-free"?

There are some uses of mercury in biomedical research, medicine and facility infrastructure for which there are presently no satisfactory alternatives. The intent of this campaign is to eliminate all unnecessary uses of mercury and reduce human exposure to potential releases of mercury to the environment from unavoidable uses to the lowest level that can be reasonably be achieved.

Mercury is a dangerous, often unrecognized hazard, commonly found at work, home and schools. The Campaign for a Mercury Free NIH seeks to eliminate all unnecessary uses of mercury in the NIH facilities; encourage use of safer alternatives in biomedical research; increase general awareness of mercury hazards; and prevent mercury spills and pollution.

Continue reading "But There's Mercury in the H1N1 Vaccine! Curiouser and Curiouser." »


IACC Conference Call Thurdsay, 10/15

Participate TODAY!! 

The Interagency Autism Coordinating Committee (IACC) Subcommittee for Planning the Annual Strategic Planning Process will be holding a conference call from 2:00 PM – 4:00 PM ET on Thursday, October 15th, 2009.

The agenda for the conference call is to discuss the outcome of the IACC Scientific Workshop that took place on September 30 and October 1, 2009 in Bethesda, MD. 

The Planning Subcommittee meeting will be conducted as a telephone conference call and is open to the public. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. 

Conference call access:
Phone number: 1-888-455-2920
Access code: 1050786

This conference call may end prior to or later than 4:00 PM ET, depending on the needs of the subcommittee.   The latest information about this call can be found HERE. For more information about the IACC, please visit http://iacc.hhs.gov/.  The IACC also can now be found on Twitter (www.twitter.com/IACC_Autism).


Generation Rescue and Autism One Kickoff The Stay At Home Moms March in NJ

Moving-forward CALLING ALL WARRIOR MOMS & DADS!
THE STAY-AT-HOME MOMS MARCH
TAKES TO THE STREETS
BEGINNING FRIDAY, OCTOBER 16!
 
NEW JERSEY VACCINATION CHOICE RALLY & STAY-AT-HOME-MOMS MARCH  

Autism One  and Generation Rescue are delighted to join with you to begin a new era of autism advocacy that takes to the streets - your streets - to bring our message directly to the people who are causing - and profiting from - the epidemic.

The Stay-At-Home-Moms March is the start of the biggest autism uprising ever. The March begins with the "New Jersey Rallies for Choice" event on Friday, October 16 . . . There is no end date - we are not going away. The March is a campaign that will continue as long as necessary to end the epidemic, find justice for our children, and hold those accountable responsible for their actions.

Autism is the number one pediatric health crisis in the world today. Our community has waited and waited and waited for those in positions of power to protect the health of our children as the rates of autism and other chronic childhood diseases go up and up and up. We are not waiting any longer.

Welcome to the kickoff event of the Stay-at-Home Moms March. This Friday, October 16, starting at 4:00 pm in Wayne, New Jersey, at William Paterson University, Life Health Choices and the NJ Coalition for Vaccination Choice conjunction with Generation Rescue and AutismOne takes to the streets.

Continue reading "Generation Rescue and Autism One Kickoff The Stay At Home Moms March in NJ" »


NJ Rallies Again For Vaccination Choice at William Paterson U. on 10/16

NJ vaccine choice Large Numbers of Concerned Voters Gather at Governor’s Debate in Wayne

Middletown, October 13, 2009 - Life Health Choices and the New Jersey Coalition for Vaccination Choice (NJCVC) announce a public rally at William Paterson University in Wayne, NJ on October 16, starting at 4:00 pm, just a few hours prior to Friday’s televised gubernatorial debate.

With pandemic swine flu headlines dominating the press, and half of all adults refusing to get the controversial new H1N1 vaccine, there is heightened awareness about the importance of vaccination choice.  The entire New Jersey Assembly is up for re-election or retirement in November.  Candidates and incumbents are expected to join other speakers in sending a pointed message to the three leading candidates vying for New Jersey’s chief executive slot, and to the large number of media outlets who will be on site covering the debate.

Hundreds of voters, parents, health care workers, students and concerned citizens are expected to gather outside the Shea Performing Arts Center this Friday afternoon at the site of the governor’s second debate on William Paterson University’s campus. 

Continue reading "NJ Rallies Again For Vaccination Choice at William Paterson U. on 10/16" »


Dress Up in a HazMat Suit to Dress Down the CDC on Flu Vaccine Safety

BioHazardRally Tired of all the lies about how safe the Flu Shot is?  Tired of the lies of its toxicity?  Like to play dress up? Then we have just the rally for you! Moms Against Mercury, National Autism Association, and SafeMinds , invite you to join us on Wednesday, October 21st, in Atlanta, GA, at the CDC. 

We will all be dressed in mock Haz-Mat suits to show the world just how toxic the flu shot is and how it needs to be handled as bio-hazardous waste.

Mock Haz-Mat Suits will be provided to you at no cost.** 

You must register for the rally to receive your complimentary Haz-Mat attire. To register for the rally and obtain more information, please visit Moms Against Mercury.

**Haz-Mats suits provided are the only attire of Haz-Mat approved by Homeland Security for this rally.  No other Haz-Mat attire is allowed.  Suits will be handed out the morning of the rally.

**While we always welcome children, because of the rally attire and the location is on a very busy highway, please consider the safety of your children first before you decide to bring them.**


Age of Autism Comment of the Week

AOAFRobert Krakow is our commenter of the week.  Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats!

Robert, an attorney who works tirelessly for our loved ones, commented on Katie Wright's post on Dr. Janvier of the IACC (HERE)Thanks for this note about Yvette Janvier. She has shown us the true colors of the AAP. Just as the AAP and IACC have turned their backs on our sick kids we should turn our backs on the IACC. I opposed the Combating Autism Act because I believed that its IACC and other bureaucratic creations would function just as they have. They have functioned as an obstacle to the welfare of our children. Rather than enabling them we should disable them through political action. It is enough already. We should turn our back on IACC. We should no longer participate in this charade. My son is ten years old now - he cannot speak and his GI problems persist despite improvement through various interventions. We can no longer tolerate the ignorance of individuals like Dr. Janvier. I think we need to escalate and intensify our opposition to the sham that the IACC has become. That is not to say that the efforts of many parents at the IACC has not been meaningful. At this point, however, it is clear that the IACC is a dead end vehicle to obtain meaningful intervention for our sick children. Robert J. Krakow. 

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us on the PayPal form if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal. Click below to  to see the back of the shirt.

Continue reading "Age of Autism Comment of the Week" »


NYT Reports Natural Immunity to H1N1 and Fewer Cases than Expected

TV Ad smiling man How much money has our tapped out government spent on the H1N1 vaccination program that they are now promoting like The George Foreman grill in all major media? "Take your H1N1 shots now and we'll throw in a seasonal flu shot with another 25 mcg of mercury for FREE!"  According to the New York Times, Public health officials are seeing a high level of natural immunity. That's good news. No one wants to see Americans die from this flu or any other, or experience problems from a vaccine which may turn out to be unneccesary.

Click HERE to read the full story in the New York Times.

While concern over the spread of the H1N1 virus sweeps the country, epidemiologists in New York and a few other cities that were awash in swine flu last spring are detecting very little evidence of a resurgence  ...New York City health officials now believe that while only 10 percent to 20 percent of New Yorkers were reported ill with flu last spring, as many as 20 percent to 40 percent may have been exposed to the disease and developed immunity that has prevented it from spreading. Although it is too early to be sure, they said, the high level of immunity may mean that the second wave of swine flu infection ends up being far less extensive than expected.


Govt Official Talks Flu Pandemic & Vaccines on Huffington Post: Readers Balk

Pass Hop over to HuffPo to read this post "by" Rep. Adolphus Towns, Chairman of the House Oversight and Government Reform Committee, titled, Are We Ready for a Flu Pandemic?  Rep. Towns is from the great state of New York, where healthcare workers are fighting a mandate requiring H1N1 vaccinations. What a coincidence.

Read and comment at HuffPo HERE.

With the height of the flu season quickly approaching and our children heading back into the classroom, I recently led a full Committee hearing to examine the Obama Administration's Flu Vaccine program. I wanted to hear from the individuals who are responsible for implementing the vaccine plan about its likely effectiveness in the event of an outbreak...

 


Autism Embargo Imbroglio

Embargo_backwards_is_o_grab_me_tshirt-p235648959065315005t5hl_400 Managing Editor's Note: Read this article from the Asssociation of Healthcare Journalists site about the Pediatrics 1 in 100 study which was embargoed until 12:01am on Monday. We adhered to the embargo. However, we ran the information from the HHS phone call on Friday afternoon HERE, as did David Kirby on Huffington Post HERE. When you click into the full post at the Healthcare Journalists site, scroll down to see some friends of ours mentioned including Ginger Taylor, Teresa Conrick, K. Fuller and Tanner's Dad. Not to mention David, Kirby, Dan Olmsted and AoA.

Mark Blaxill wrote to Andrew Van Dam. You can read his letter at the end of this post.

Autism news raises question: When is an embargo not an embargo?

Oct. 6th, 2009 by Andrew Van Dam

Filed under: Government, Health journalism, Hot Health Headline, Public records, Studies
Are embargoes yet another quaint tradition that, like so many before them, has been pushed into obsolescence by the weight of the Internet? Do so many people have access to so much information they can share so easily that artificial restrictions on publication are meaningless?

Consider: In a Friday press conference, the Department of Health and Human Services discussed, under embargo, highly newsworthy data indicating a much higher than expected prevalence of autism in the United States. HHS didn’t mention, however, that in an earlier call it had already given the most newsworthy part of that information to members of the “autism community,” and had not restricted them from publishing the info. The incident raises serious questions about giving special interests privileged access to data at the expense of major media outlets, as well as the validity of embargoes in an era of increasing media fluidity. Read the full post
HERE.

Here's Mark's letter to Mr. Van Dam.

Dear Andrew,

I am Editor-at-Large at Age of Autism. Your post on the “recent autism news” was just forwarded to me.

Please forgive me for being blunt, but just exactly what problem do you think you are trying to solve? Are you accusing Age of Autism, David Kirby and/or Dan Olmsted of unethical conduct (apparently not, since you are forced to acknowledge that the only blog that “broke the embargo” is About.com, which is owned by The New York Times)? Are you accusing HHS of breaking the rules of engagement by speaking directly to the autism community about an important new autism publication before they spoke to reporters (perhaps you’d like to, but strictly speaking you can’t because you recognize that what Sebelius and Insel discussed with the community was not the embargoed HRSA report, but rather the exploding rate of autism)? Or are you simply channeling some unspoken annoyance that communications around the official message on the autism crisis somehow got confused and was not neatly packaged and tightly controlled by the CDC and its compliant collective of nearly bankrupt newspapers? Like it usually is.

Continue reading "Autism Embargo Imbroglio" »


The Dallas DAN Conference’s Saturday Night Dinner … Texas Style!

Hatandboot As you pack for the October ARI/DAN conference in Dallas on October 8-12, 2009, don’t forget to throw in your Stetson cowboy hat and western boots. This year we are having a Western-themed Gala Dinner, Auction and Dancing on Saturday night October 10, 2009. The dress for the evening will be western attire.

This year we are enhancing our Saturday Evening dinner at the Fairmont Hotel Dallas to include more food, drinks, events and entertainment. This evening is always a favorite for our conference attendees. It allows everyone time to come together in a social and relaxed setting for a wonderful dinner as well as an opportunity to connect with other parents, medical professionals, and specialists. We all need to “kick up our boots” and have some fun.

Continue reading "The Dallas DAN Conference’s Saturday Night Dinner … Texas Style! " »


ARI Calls for an Immediate Federal Response to the New Autism Figures Released by NSCH

ARI new logo Yesterday the Maternal & Child Health Bureau of Health Resources and Services Administration (HRSA), US Department of Health and Human Services released a study evaluating the number of children in the U.S. who currently have an Autism Spectrum Disorder (ASD) diagnosis, The Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder among Children in the United States, 2007, published in Pediatrics.

The study evaluated data from a National Survey of Children's Health (NSCH) in which 78,000 U.S. households were surveyed to estimate the prevalence of autism spectrum disorders.  The households were queried if their child (ages 3-17) "currently has autism, Asperger's Disorder, pervasive development disorder, or other autism spectrum disorder." Go to NSCH to view the latest data – use the search term “autism” to see the data HERE.

Findings:

The NSCH survey estimated the prevalence rate of ASD to currently be 110 per 10,000 which equates to 1 in 91 children ( 1 in 57 boys)  between the ages of 3 and 17.
Previous prevalence data from the Center for Disease Control and Prevention's Autism and Developmental Disabilities Monitoring (ADDM) Network reported the average rate of autism among eight-year-olds was 67-per-10,000 in 2000 (the 1992 birth cohort), and 66-per-10,000 in 2002 (the 1994 birth cohort). Data from the NCHS was from the birth cohort born from 1990 to 2004.

For the first time the health survey also asked if the child who was diagnosed with ASD currently has the disorder, and nearly 40% ( 38.2%) responded NO.  This finding supports recent research that children diagnosed with autism can recover from the disorder with appropriate interventions, both medical and behavioral.

Continue reading "ARI Calls for an Immediate Federal Response to the New Autism Figures Released by NSCH" »


Adventures in Autism Blog on the Sebelius Insel Call

Fish on bike Ginger Taylor tells it like it is over at her blog, Adventures in Autism. Read the full post at her AinA.

Today in a conference call with Kathleen Sebelius and Thomas Insel, HHS told a small circle of autism groups that they would be releasing the new 1 in 100 autism rate on Monday.

They cautioned however, that they didn't know if the increase was a real increase or whether greater awareness... changes in measurement methods... better diagnosis... blah blah blah... because apparently our government doesn't even read their own publications.

The whole thing was so predictable that I could have written it for them yesterday...


Autism at 1 in 91 Children: SafeMinds calls for Thimerosal Ban from Seasonal & H1N1 Flu Vaccine

Banned Autism Prevalence Now At  1 in 91 Children, 1 in 58 Boys
SafeMinds Calls For A Ban on Thimerosal from Seasonal and H1N1 Flu Vaccines In Pregnant Women and Young Children

Monday, October 5, 2009, Reston, VA - Today the Maternal & Child Health Bureau of Health Resources and Services Administration (HRSA), US Department of Health and Human Services released a study evaluating the number of children in the U.S. who currently have a Autism Spectrum Disorder (ASD) diagnosis, The Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder among Children in the United States, 2007. The Study evaluated data from a national Survey of Children’s Health and found that 1 in 91 children between the ages of 3 and 17 currently carry an ASD diagnosis -1 in 58 boys.

Even more alarming, for the subset of children between ages 6 and 14 immunized during the 1990’s the prevalence is actually 1 in 71 children with an autism diagnosis. This age group represents children in the U.S. with the highest exposure to thimerosal, the mercury preservative routinely used until CDC, AAP and industry recommended its removal "as soon as possible" from all childhood vaccines.  Despite this recommendation, mercury, one of the most neurotoxic substances on the planet, is still used in most seasonal and H1N1 vaccines.

Continue reading "Autism at 1 in 91 Children: SafeMinds calls for Thimerosal Ban from Seasonal & H1N1 Flu Vaccine" »


Advocacy Groups Ask President Obama to Order Suspension of Hepatitis B Vaccine Birth Dose

Obama8 Washington, DC – National Vaccine Information Center and Talk About Curing Autism are calling on President Obama to order the immediate suspension of the Centers for Disease Control and Prevention recommendation of the birth dose of the Hepatitis B vaccine after two recent studies linking the Hepatitis B vaccine to functional brain damage in U.S. male newborns and infant primates.  In a related development today, the United States Department of Health and Human Services, including the Health Resources and Services Administration and Centers for Disease Control and Prevention,  announced that 1 in every 91 children are now diagnosed with an autism spectrum disorder as reported in the November 2009 issue of Pediatrics. Previous data released by the CDC indicated a prevalence of 1 in every 150 children affected by the disorder. (Managing Editor's Note: Pediatrics does not appear to have the study on their site as of this time, click HERE to check their home page. We'll add it the link as soon as it's available.)
 
Considering a demonstrated 50% increase in autism prevalence, combined with two recent studies indicating a potential role of the Hepatitis B vaccine as a factor in the development of autism, the following advocacy groups urge President Obama to order the immediate suspension of the recommendation and administration of the birth dose of Hepatitis B vaccine for all newborns – with the exception of rare cases where the mother tests positive for Hepatitis B.

Researchers from Stony Brook University published a research abstract (HERE) for an epidemiological study in the September 2009 issue of Annals of Epidemiology which revealed findings suggesting that U.S. male newborns vaccinated with Hepatitis B vaccine had a three-fold greater risk of autism spectrum disorders.  Additionally, a collaboration of several institutes including the University of Pittsburgh - School of Medicine, the University of Kentucky and Thoughtful House Center for Children in Austin, Texas published research findings in the October 2009 issue of Neurotoxicology revealing evidence of substantial functional brain damage in infant primates who received the birth dose of Hepatitis B Vaccine. (HERE) 

Continue reading "Advocacy Groups Ask President Obama to Order Suspension of Hepatitis B Vaccine Birth Dose" »


GFCF Classic American Cuisine Contest Winners

Classic American Cuisine

The contest is now closed. Congrats to Sparrow Jones and Lady Snow!

Didn't win? You can order this book and learn more at Stephanie's website, Autism Mom Cooks GFCF. 

Gluten-Free Casein-Free food that is inexpensive, easy to prepare and utterly delicious!

You shouldn't have to sacrifice taste or your family's grocery budget to enjoy (yes.....enjoy!) a GF/CF diet.  Those on the GF/CF Diet because of Autism Spectrum Disorders, Celiac Disease or severe allergies, no longer have to settle for unappealing food.  The days of crumbly, dry bread or gritty, odd-tasting cookies are over.

The Autism Mom Cooks Gluten-Free Casein-Free Cookbook Series is dedicated to providing simple, cost effective and delicious recipes that the whole family will enjoy.

All recipes are taste-tested on individuals who not on any sort of restrictive diets, those on GF/CF diets and finally...... some of the pickiest kids out there.


Age of Autism Comment of the Week

AOAF"N" is our commenter of the week.  Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats! N commented on Dan Olmsted's Crimson at Harvard. If autism were bad parenting in the 50's my parents would have had 7 very autistic kids.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal.

Continue reading "Age of Autism Comment of the Week" »


AlterNet's Joshua Holland on Swine Flu "Hysteria"

Alternet

Click HERE to read and comment on the story at AlterNet. From the site: "AlterNet is an award-winning news magazine and online community that creates original journalism and amplifies the best of hundreds of other independent media sources. AlterNet's aim is to inspire action and advocacy on the environment, human rights and civil liberties, social justice, media, health care issues, and more. Since its inception in 1998, AlterNet.org has grown dramatically to keep pace with the public demand for independent news. We provide free online content to millions of readers, serving as a reliable filter, keeping our vast audience well-informed and engaged, helping them to navigate a culture of information overload and providing an alternative to the commercial media onslaught. Our aim is to stimulate, inform, and instigate."

With the media pumping out story after fevered story of a unique and "deadly" new strain of influenza sweeping the globe -- tossing words like "pandemic" around with little in the way of context -- you'd have to be a Vulcan not to experience just a touch of panic. But is this flu really so scary?

Continue reading "AlterNet's Joshua Holland on Swine Flu "Hysteria"" »


Autism Rate Now 1 in 100, Federal Government Says

Panic buttonIn a conference call, the government just confirmed that 1 in 100 American children has an autistic spectrum diagnosis. They're still saying they don't know why, or whether the increase is real. And HHS Secretary Sebelius showed where the government is still going wrong by talking about "more research in the genes underlying autism." The rest was bureaucratic blah-blah-blah. -- Dan Olmsted


Age of Autism Wrap Up. What a Week!

Proud-momBy Kim Stagliano

Like a proud Mama, I took a look at our lineup of posts this week and thought, "Wow." 

J.B. Handley kicked off the week with his post, Autism Not Really On The Rise. 96.7% Impossible. 

On Tuesday, Katie Wright wrote, IACC: They Had To Have it Their Way.

On Wednesday, Mark Blaxill ran, Blockbuster Primate Study Shows Significant Harm From One Birth Dose of a Mercury Containing Vaccine.

And on Thursday, Dan Olmsted turned his laser focus toward Hah-vud in, Crimson At Harvard.

Thanks to everyone who read and commented on the posts. Don't forget to forward our links, send them to FaceBook and Tweet them. We appreciate your support. This weekend we have our commenter of the week, cookbook contest winner, Kent Heckenlively and more.

Kim


LifeHealthChoices Reports on Albany NY Vaccination Choice Rally

Albany11 If you haven't added the LifeHealthChoices website to your list of favorites, now would be a fine time to do so. It's a terrific site to forward to friends and relatives who have questions about vaccine safety and choice, launched by our colleague Louise Kuo Habakus.

Louise attended the Albany, NY rally for vaccination choice earlier this week. NY is mandating a seasonal flu vaccine for all healthcare workers. The H1N1 vaccine may be next on the mandated list. Click HERE to read about the event.

An estimated 700 health care workers, activists, and concerned citizens gathered on the steps of the state house at East Capitol Park on Tuesday, September 29, 2009, starting at 10:00 am for a peaceful but passionate three-hour rally to protest the recent Executive Order from the New York State Department of Health requiring seasonal flu and H1N1 vaccination of all health care and related workers in New York State. 


The Albany Vaccine Choice Rally

Albany2a By Sabeeha Rehman

Vaccine Choice Rally - Albany, NY September 29, 2009

One Voice

“Stop the Shots!”
“Stop the Shots!”
“Stop the Shots!”

The crowd chanted, making their voices heard, raising their banners.  At the steps of the East Capitol, they gathered – parents, families affected by autism, advocates, lawyers, doctors, nurses, therapists, scientists, leaders, followers...

They came - to the steps of the East Capitol – from Upstate New York, from Downstate New York, from New Jersey, from North Carolina, from where they came, it didn’t matter.
They spoke with one voice, rallying to the cause of Freedom of Choice.

Freedom from forced vaccinations. Freedom of informed consent. Freedom to choose what is injected in your bodies.

The Rallying Point

This historic gathering of over 700 healthcare workers, advocates, and families affected by autism spectrum disorders was sparked by an unprecedented regulation promulgated by Health Commissioner Daines to invoke the Emergency Preparation Act 2009.  This act requires healthcare workers and pregnant women to be vaccinated with the seasonal flu vaccine and the H1N1 vaccine by November 30, or risk losing their jobs.  Under this regulation, there is limited to no recourse for vaccine injuries or death sustained as a result of these mandated vaccines.

This rally was organized by Heather Walker, activist and healthcare student, We the People, Albany chapter organization, with help from the Autism Action Network, Life Health Choices, and many New York state nurses.

Continue reading "The Albany Vaccine Choice Rally" »


Jim Moore on Huffington Post: Why We Worry About Vaccines

Worry Please pop over and comment on Why We Worry About Vaccinations, Jim Moore’s Huffington Post piece about the Thoughtful House Hep B Study. If you missed Mark Blaxill's insightful analysis of the study which has been published by the journal Neurotoxicology, click HERE.

From the HuffPo post:

Even as doctors try to reassure the public, and TV news anchors get their swine flu shots on the morning news, there remains a great unease about vaccinations in the US. People hesitant to take the needle are marginalized as anti-vaccine nuts, regardless of the many justifiable reasons to distrust giant pharmaceutical producers and government regulators. Money can easily trump morality and the five drug companies contracted with the U.S. government to produce the H1N1 vaccines will be paid from $250 to $690 million each for mass production.

Profits are not evil, of course, and making money does not mean a company lacks principle. There are, however, causes for concern...


From SafeMinds: Action Alert – Help Needed to Eliminate a Major Source of Mercury Pollution

Oceana

As written previously HERE, SafeMinds  supports the effort lead by the environmental group Oceana to phase out the use of mercury in chlorine and caustic soda production by 2012.  The Mercury Pollution Reduction Act (H.R. 2190) will be considered by the House Committee on Energy and Commerce Wednesday, September 30th at 10 AM and amendments have been proposed to weaken the bill, including a proposed delay of the phase out until 2018. 

We need your help to contact Representatives on the House Committee on Energy and Commerce Wednesday morning to oppose any weakening amendments to H.R. 2190.  To get more information and take action, go to the Oceana Take Action site HERE.


Educating Arne and ARRA

Wringing out dollar

Managing Editor's Note:  Arne Duncan is Secretary of the US Dept. of Ed.  Alison's post below indicates a need for better oversight of funds spent on education.

By Alison Davis

I'm waiting for my school system’s Board of Education meeting in October to find out how they are spending the American Recovery and Revitalization Act’s (ARRA) IDEA Part B Stimulus funds.  Towards the end of last school year, Schafer Autism Report had an article on this that caught my eye.  How much did your school system get?  We got almost $8M.  And I want to know where it’s going.

Guidelines to spending, transparency, and accountability appear muddled from every level of federal, state, and local Education agencies.  It’s time for some- what I like to call- Little Red Hen Actions (“’Then I’ll do it myself’, Said the Little Red Hen.  And she did.”).

Here are some questions you may want to ask your children’s Special Education Director:

1. How are we obtaining assistive technology devices (PDAs, Smartboards, alphasmarts, netbooks, etc.) and providing funding for training teachers in assistive technology to aid Special Education students?

2. How many Special Education teaching jobs are we saving?  How many are we creating?

3. What new Special Education professional development will take place to improve:

  • Early learning?
  • Inclusion of Special Ed. students?
  • Transitions, including preparation for college? (Are we hiring transition coordinators/coaches and job developers?)
  • Training school staff to partner with families by supporting parent trainings, family nights, and home visits?

4. How are we spending these funds to introduce reliable data collection and assessments for students with disabilities?

5. What new evidence-based curriculums with instructional materials and imbedded assessments are we purchasing for Special Ed. students?

6. Are we using funds for extended learning time for Special Ed. students (after school/summer programs)?

7. How are we measuring the effectiveness of our use of the allotment?

Alison Davis lives in Durham, NC with her husband (thank God!) and her three boys with autism.  She sincerely hopes that No Child Left Behind does not mean if it’s meant to be it’s up to me.  Additionally, it’s her fervent wish that IDEIA no longer means if you don’t know your rights you don’t have any.


Defend American Freedom: Albany NY Forced Vaccination Rally

American Freedom

Rally to Stop Forced Vaccinations
East Capitol Park, Albany, NY
Tuesday, September 29, 2009, 10 am - Noon

New York State has issued an illegal order forcing all healthcare workers in the state to get seasonal flu shots by November 30 or face termination. The State has already announced that the experimental H1N1 shot will be next.

Every state health department in the United States is carefully watching what happens in New York. If they get away with is here, your state will be next.
 
The stakes are getting higher all the time. Come fight for Vacccine Choice.

Followed by visits to your legislators, the Governor's Office,
the Department of Health
 
Speakers include Mayer Eisenstein, MD, JD, MPH, Sue Fields, RN, Ralph Fucetola, JD, John Gilmore, Louise Kuo Habakus, MA, HHP, Gary Null, PhD, Alan Phillips, JD and Heather Walker
 
What You Can Do if you can't get to the rally:
 
Email, Click on THIS LINK to send email messages to your State Senator, your Assemblymember, Commissioner of Health Richard Daines, and his boss, Governor David Paterson, and demand that this illegal action stop immediately.

Continue reading "Defend American Freedom: Albany NY Forced Vaccination Rally" »


Hot for Teacher? How About Jail for Teacher?

Tabasco

Read the full story from WPTV in Florida HERE. Thanks to "NR" for sending us the link.

MIAMI, FL-- A Miami-Dade County jury has found a special needs teacher guilty of abuse after authorities say she put hot sauce in a student's soda.
  
Sylvia Tagle was convicted of abuse Tuesday.
  
Authorities say she gave the soda with hot sauce mixture to an autistic student to teach him a lesson. But Tagle says the boy grabbed the soda from her desk when she was with other students...


Age of Autism Comment of the Week

AOAFLinda is our commenter of the week.  Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats! Linda commented on our coookbook contest. I would really like to have the book as i am trying my best to learn all i can before starting my autistic 20 yr. son in hopes &prayers that when i get something that is easy for a 54 yr. old mom to understand.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal.

Continue reading "Age of Autism Comment of the Week" »


UK's NHS Report Suggests Autism Increase Due to Oversight?

Survey says

London, UK

NHS Autism Report suggests the increase in autism in recent years was all down to an oversight …

Polly Tommey is the mother of a thirteen year old son with autism.She is also the Editor of www.autismfile.com. In both roles, as a mother speaking with other parents day in, day out, and as a journalist dealing withconstantly increasing numbers of calls describing personal crises for the lastten years, she has had direct experience of the increasing pressure being causedby the numbers of people dealing with autism.

Polly, like many others, has also attended conferences, seminars and workshopsworldwide for the last decade and has heard endless research reports and debates on what is the cause of the increase in the prevalence of autism in countriesacross the world.Statistics citing 5 in 10,000 with autism in 1990 increasing to 1 in 100 today have been used bymany from all backgrounds. However it ‘appears’ that it was all now a mistake and that there has been no increase at all … the apparent 95% step up was simply down to an oversight, a lack of awareness and non-diagnosis.Autism isn’t a new problem at all, we’ve had the same level all along – and perhaps, if the data is critiqued, it is actually in decline!

Scepticism surrounds the interpretation of this new report … “Why on earth did this ‘ground-breaking’ news get forced up the news bulletins in the way that it did on Monday evening here in the UK?”, asks Polly, “Are we really able to believe all that we hear on such important subjects, or is there a stronger hand with adifferent agenda behind it?”

A review of the detail behind the headlines will enable any objective reader to draw their own conclusions …

Continue reading "UK's NHS Report Suggests Autism Increase Due to Oversight?" »


AoA Contest: Classic American Cuisine for the GFCF Diet

Classic American Cuisine

Stephanie Hemenway has given us two copies of The Autism Mom Cooks Gluten-Free Casein-Free Classic American Cuisine for a contest.  Leave a comment with your email address in the email field to enter. If you have trouble commenting send me an email at kimstagliano@gmail.com.

You can order this book and learn more at Stephanie's website, Autism Mom Cooks GFCF. Stephanie sent me a batch of the brownies and a loaf of the white bread. Both were delicious and few would ever guess they were GFCF. I really think my kids would have liked the brownies...  ;)

Gluten-Free Casein-Free food that is inexpensive, easy to prepare and utterly delicious!

You shouldn't have to sacrifice taste or your family's grocery budget to enjoy (yes.....enjoy!) a GF/CF diet.  Those on the GF/CF Diet because of Autism Spectrum Disorders, Celiac Disease or severe allergies, no longer have to settle for unappealing food.  The days of crumbly, dry bread or gritty, odd-tasting cookies are over.

The Autism Mom Cooks Gluten-Free Casein-Free Cookbook Series is dedicated to providing simple, cost effective and delicious recipes that the whole family will enjoy.

All recipes are taste-tested on individuals who not on any sort of restrictive diets, those on GF/CF diets and finally...... some of the pickiest kids out there.


AoA Contest Winners for Saving Ben: A Father's Story of Autism

Saving ben CONGRATULATIONS JULIE BROWN AND JASON VOLK. The contest is closed. We'll have another contest on Wednesday.

If you didn't win, you can order a copy at a 30% discount by clicking, HERE, select "add to cart" and use discount code 3B. You can also order the book at . Visit Dan's website at SavingBenBook. Here's a letter from the author. 

Hi Age of Autism Reader,
 
I’d like to tell you about my book, Saving Ben: A Father’s Story of Autism.  People Magazine called it “A wonderful read that will make parents look at their own children, disabled or not—and find so much to cherish”  (Sept 14, 2009).
 
Other reviewers had this to say:

  • “Powerful and inspirational, filled with and tragedy and triumph, it’s the story of one father's journey to hell to rescue his son from the grips of autism. I could not put this book down.” Nancy Master, AoA reader and mother of a formerly autistic child.
  • “A great read, and inspirational, teaching us that we can overcome obstacles with faith, hope and determination.” AoA reader Lisa Hunter Ryden of the NAA Central Texas Chapter.

Continue reading "AoA Contest Winners for Saving Ben: A Father's Story of Autism" »


Age of Autism Comment of the Week

AOAFLisa Ackerman of TACA is our commenter of the week.  Please email me at KimStagliano@gmail.com with your T-shirt size (M-XL) and mailing address. Congrats! Lisa commented on: Autism On the SnorePath.

This quote "accepted, supported and valued..." struck me as well.

Speaking out for those who cannot speak or have trouble communicating is the ultimate way to support our children. Their silence and the silence of the issue all around this is unacceptable to me.

Accepting and loving these kids today is what many parents do every day. Helping them to get to the next level is a standard parent responsilbity. No one has a child so they can be institutionalized which is a "standard" set by many doctors for our kids futures. I won't accept that as a future my my son or anyone else's child who is given a "no hope, no treatment" prognosis. That is wrong for anyone to set expectations when they do not know the future.

Valuing our kids is an understatement. I worship both my kids and my husband. I am human and consider this a common characteristic. My goal is that people value the thought of recovery for those on the spectrum so that they can lead the lives they were meant to lead AND CAN lead. They have a future of value.

What I don't accept:
- pain
- suffering
- discrimination
- jeers & negative comments
- lack of support in every category under the sun

For parents who wish to wait or just accept, value & support what is today - I encourage them to leap forward. Hope is real and something to behold. Leap forward to help your child anytime you are ready as their are many to support your efforts. The window never closes.(I know I am speaking/writing the choir here.)

As a parent these statements are something I won't settle for. As a member of our community - I will work to change for the better. What's wrong with that? Isn't that the ultimate example of caring?


Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal.

Continue reading "Age of Autism Comment of the Week" »