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2587 posts categorized "Current Affairs"

Winner A of A Contest: It's Hip Hop Baby DVDs

Hip hop kids 1 Congratulations to Wendy Crumley!
Kiss the Teletubbies "Bye Bye!"  It's Hip Hop, Baby!  We're happy to have two DVDs to give away from this fun series that engages kids with a beat Mom and Dad will enjoy too.  We have "All Your Child's Favorites" and "Things We Do Every Day." 

Click HERE to visit the It's Hip Hop, Baby site and listen to a sample.

Buy your DVDs at Amazon: HERE. Great for the Easter baskets!

Continue reading "Winner A of A Contest: It's Hip Hop Baby DVDs" »

A of A Contest: Angela Moore Autism Awareness Classic Bracelet!

Angela moore bracelet Our friends at Angela Moore have generously donated four items from their Autism Awareness Collection to Age of Autism.  We'll be giving away one item each week in April. The Angela Moore "Autism Awareness" collection was created to help increase awareness in the treatment and understanding of autism.  15% of the proceeds from this collection are donated to the Autism Society of America including The Rimland Center.

We begin with the gorgeous Classic bracelet, set on a crisp white background, this bracelet features puzzle pieces and a rainbow of ribbons in happy colors. Leave a comment to enter. (If you've any trouble commenting email kimstagliano@gmail.com)

MN Somalis Are Now Aware Of Autism. But Still No WHY From Authorities.

Question man By Kim Stagliano

From WQOW (cow?) in Eau Claire, Wisconsin.

MINNEAPOLIS (AP) - A new report confirms that Somali children in Minneapolis are in autism programs at a higher rate than non-Somali children.

But a long-awaited report from the Minnesota Health Department doesn't speculate on why.

The study finds the percentage of Somali children in the Minneapolis district's autism programs is two to seven times higher than for non-Somali children. It was for children ages 3 to 4 for three years starting in 2005.

Some Somali parents have speculated that the higher autism rates were related to vaccines, lead exposure or vitamin D deficiency.

The New York Times reports the story too.

We can assume that the epidemiologists, in an intense and costly effort to solve the mystery, will scour Minnesota Public Television, probe the age of parents and determine that the Somali parents' stress levels are higher than the average Minnesotan without a child with autism in the next decade. Meanwhile, mind the killer pistachios, everyone.

Kim Stagliano is Managing Editor of Age of Autism.

Dokedo Gluten Free Casein Free Play Putty is Great for Easter Baskets!

Dokedo 2 What is dokedo™ naturally scented play putty?

Dokedo™ naturally scented play putty is gluten free, casein free and naturally scented. It stretches, rolls, drips, bounces, breaks, twists, molds, textures, crackles, bubbles, bends, snaps and smells great! Dokedo™ is fun and relaxing for kids and adults.  Created by a Mom, and proceeds go to autism.
 
Dokedo  Click HERE to order yours today!

Fossil Fool’s Day & Moving Beyond Coal in Colorado

Wind Managing Editor's note: This is from our sponsor SafeMinds. Click HERE to see their flyer on coal plants.

Where: Heron Pond/North Side Park off 53rd Avenue and Franklin St (there’s a sign to turn off) in Denver
When: Wednesday April 1st, 11:30 AM - 12:30 PM
Why: Because spending your lunch break to create a renewable future Beyond Coal will more than fill your appetite. 
Event Contact:  Rebecca Sobel at rsobel@wildearthguardians.org

What are you doing this April 1st for Fossil Fool's Day?  SafeMinds is joining forces with WildEarth Guardians, Clean Energy Action, Sierra Club, Greenpeace, local neighborhood associations and community members for a press event and rally in front of Cherokee Power Plant in bringing attention to the dangers of coal in our community and asking Governor Ritter and Xcel Energy to lead the way toward a fully renewable economy.   Armed with banners, pinwheels, and other props illustrating the call to action to move beyond fossil fuels, attendees will be sending a clear message to our leadership that “Coal Can’t Fool Us” and calling for a “Cleaner Colorado.”

Continue reading "Fossil Fool’s Day & Moving Beyond Coal in Colorado" »

New (And Improved?) IOM Panel to Convene on Vaccines

Redux Editor’s note: The IOM is at it again. Julie Obradovic raises some important questions below about the role and accountability of one IOM staffer who has worked on previous vaccine safety reviews, reviews that have shown a greater concern for politics than the truth. (Dr. Stratton:...The point of no return, the line we will not cross in public policy is pull the vaccine, change the schedule. We could say it is time to revisit this, but we would never recommend that level. Even recommending research is recommendations for policy. We wouldn't say compensate, we wouldn't say pull the vaccine, we wouldn't say stop the program (p.74).)
Although it has branded itself as a kind of “science court” for controversial issues, the IOM’s performance as a trustworthy tribunal has been poor: when the rules of jurisprudence are unlikely to lead to the outcome the sponsors and the staffers have been looking for, the IOM changed the rules instead of taking the heat. In October 2006, a few members of the autism community met with IOM President Harvey Fineberg to share a blistering critique. A short version of the materials we presented is (HERE) and a longer version (HERE). Mark Blaxill

By Julie Obradovic
 
A New IOM Panel
 
On March 20, 2009 the Institute of Medicine officially notified the public of the provisional appointment of a new IOM Committee related to vaccines. The committee was contracted by HRSA to review epidemiological, clinical and biological evidence regarding adverse health events associated with specific vaccines covered by VICP (Vaccine Injury Compensation Program). Vaccines to be reviewed include Varicella Zoster, Influenza, Hepatitis B, and HPV; additional vaccines could be added to the review if more funding is secured.
 
The committee will author a consensus report with conclusions on the evidence bearing on causality and the evidence regarding the biological mechanisms that underlie specific theories for how a specific vaccine is related to a specific adverse event. The provisional appointments to the IOM's new Committee to Review Adverse Events to Vaccination have been posted on the Current Project System on the National Academies Website. There is a 20 day period for formal public comment beginning the day of this notice.
 
The project will be directed by Dr. Kathleen Stratton.
 
Who is Dr. Stratton?
 
If Dr. Stratton's name looks familiar it is because this is not the first time she has served on an IOM committee regarding vaccines.  In fact, Dr. Stratton has served on several IOM panels, most famously perhaps as project director for the panel that reviewed the role of Vaccines in Autism (2004). In this instance the panel she directed came to the conclusion the evidence favored rejection of a causal relationship; even more, her committee went so far as to suggest further study of the relationship wasn't warranted.

Continue reading "New (And Improved?) IOM Panel to Convene on Vaccines" »

Hope for Autism Training Conference & 2009 Int'l Vaccine Risk Symposium

Charleston Managing Editor's Note: David Kirby and Dr. Mayer Eisenstein ("Holistic MD Has 30,000 Patients – Zero With ASD, All Unvaccinated”) are featured presenters at this conference in Charleston, SC.  Visit www.hopeforautism.us to learn more!

Hope for Autism Training Conference &
2009 International Vaccine Risk Symposium
Developed for Patients, Families and Practitioners

Friday, Saturday & Sunday, May 15 - 17, 2009
Registration / Exhibits Begin at 7:00 am

The Charleston Marriott Hotel
170 Lockwood Boulevard
Charleston, South Carolina 29403 US
 
This exciting, two day conference offers something for everyone. 

Continue reading "Hope for Autism Training Conference & 2009 Int'l Vaccine Risk Symposium" »

Angela Moore Jewelry Supports The Rimland Center for Autism Treatment

Angela moore bracelet2 Managing Editor's Note:  I'm pleased to announce that Ms. Moore has generously donated four beautiful items from the Angela Moore Autism Awareness collection to Age of Autism, and we will be giving one away each week in April! See the collection HERE. 

Internationally-known jewelry designer Angela Moore will be in the Lynchburg, Virginia area on April 1 & 2 to recognize Autism Awareness month and benefit treatment scholarships to The Rimland Center, a general pediatric practice and autism treatment center founded by Elizabeth Mumper, MD, FAAP.

Continue reading "Angela Moore Jewelry Supports The Rimland Center for Autism Treatment" »

Autism the Scourge of the 21st Century (Somali Immigrants in Minneapolis and Autism – Epidemic or Statistical Fluke?)

The facts Managing Editor's Note: At the end of this magnficent post by Mr. Khalif are links to our past stories about the Somali/Autism epidemic in Minnesota, including J.B. Handley's article that so interested Mr. McNeil.

By Abdulkadir A. Khalif 
    
The story in the New York Times by Donald McNeil Jr. and datelined 03/16/2009 (HERE) has started a storm within the autism community, especially the victims of the scourge in Minneapolis. The author picked on a few unsuspecting Somali immigrant families who could understand neither the English language nor the motive of those chaperoning them for the ‘interviews’.

They were deliberately selected so as to appear as representative as possible (one of the kids was born outside the USA). I happened to know the families involved as well as some of the officials quoted. I have read and re-read the NYT story and I am still at a loss of what purpose it really served, or what the real motive of the author is. Mr. McNeil had no opinions of his own on the topic he chose, nor did he qualify any statements he extracted from the people he interviewed. He went to great lengths to quote people and then used others to unravel their arguments. He quoted from government officials and others from nonprofits, all of who are known to have been working together in their elaborate cover-up schemes. All those he met were officials who helped organize the infamous forum in Minneapolis last November. He excluded the Hmong community from the ravages of autism while showing prevalence of the scourge within Somali immigrants in Sweden. That way he was indirectly alluding to a vulnerable gene within the Somalis everywhere. 

Continue reading "Autism the Scourge of the 21st Century (Somali Immigrants in Minneapolis and Autism – Epidemic or Statistical Fluke?)" »

Brian Deer: Conflicted “Journalist", Industry Toady or Modern-Day Madame Defarge??

Deer By Jim Moody, Esq.

On February 25, 2004, self-styled “journalist” Brian Deer initiated the Complaint with the GMC that led to the hearing presently underway against Dr. Wakefield, and Professors Murch and Walker-Smith by “lay[ing] before” the GMC what he, Brian Deer, concluded was evidence of serious professional misconduct.  Documentary evidence produced during discovery and now presented at the hearing demonstrates that the key charges (unethical research, undisclosed participation in MMR litigation, and unauthorized recommendation of the monovalent components of the MMR as a temporary precaution until safety issues could be resolved) are completely without merit.  Key witnesses during the investigation knew the allegations lacked merit.  What, then, propelled the allegations by Deer into a full-blown fitness to practice hearing with possible risk to their medical licenses?  Deere has most recently taken credit for defeating the “test case” claims in the Omnibus Autism Proceeding. 

Who is Brian Deer, and why were his allegations, easily proven either false or irrelevant, taken so seriously?  Who funds his daily vigil at the GMC hearing, now in its 125th day?  

Continue reading "Brian Deer: Conflicted “Journalist", Industry Toady or Modern-Day Madame Defarge??" »

IACC: Ethical Disaster Zone

Mile high mizerManaging Editor's Note: I wonder if Ed Trevathan, Director of the National Center on Birth Defects and Developmental Disabilities at the CDC, was served a "Mile High Mixer" when he left the IACC meeting early, ostensibly to attend another meeting in DC... And was seen shortly thereafter on a flight to Atlanta, seated in First Class?  Katie Wright reveals the story below.

By Katie Wright

My phone would not stop ringing today. Parents everywhere were appalled by the behavior and actions of the IACC. And that is just the parents listening to the committee via phone lines. What people who attended IACC in person told me they observed shocked me.
 
Many of the committee members are directors of government institutes which conduct autism research. However, some of these directors are sorely lacking basic knowledge about autism. Dr. Story Landis actually asked what IMFAR was! Seriously she did. It was only downhill from there.
 
The discussion regarding public input was enlightening. Lyn Redwood is one of the very few public members who serve on autism national autism advocacy organizations. Redwood said that the public deserves to have more opportunities for input, such as a live town hall meeting.  IACC has not yet presented the finalized plan to the autism community. The public has had no opportunity to comment.  Della Hamm immediately rejected that idea stating that a public forum would involve far too much work. However, the work could easily be contracted out to an organization like the Keystone Group.

Continue reading "IACC: Ethical Disaster Zone" »

March, 24 is Autism Epidemic Day in New York State

New york AED!
Autism Epidemic Day!
Tuesday, March 24, 2009
11:00 AM
The State Capitol
Albany, New York

New York Autism Community: Have You Had Enough?

We have a few questions for our fellow New Yorkers who love someone with autism: 

Have you had enough of a State Education Department that repeats the big lie that there is no “real” increase in autism even though their own data shows an explosive increase over the past 15 years? 

Have you had enough of being told by politicians that your child’s special education needs are driving up property taxes?  Have you had enough of those politicians making claims like that without even talking to you? Have you had enough when they put those claims in a report to the Governor calling for the dismantling of autism special education regulations? Have you had enough when our Governor, himself a man who has overcome a disability, declares that the report on “Property Tax Relief” should become law?!

Continue reading "March, 24 is Autism Epidemic Day in New York State" »

Age of Autism Contest: Leeann Whiffen's A Child's Journey Out of Autism

Whiffen Congrats to our five winners, Judy G, Valerie Carlson, Barbara Bucknam, Amy in Idaho and Garth Boyd.

The contest is now closed for Sourcebooks' new release by author Leeann Whiffen: A Child's Journey out of Autism. Visit LeeAnn's website to read more and to buy the book HERE. Sourcebooks has generously donated FIVE books to the contest!

From the publisher:

Told with the intensity of a medical thriller, the extraordinary story of how Clay Whiffen and his family conquered autism.

Continue reading "Age of Autism Contest: Leeann Whiffen's A Child's Journey Out of Autism" »

Young Woman Featured in Gardasil Media Attention Passes Away.

Pajamas_gates_2We've learned today that Jenny Tetlock passed away on Sunday. Her neurologists cited an unusual form of childhood ALS. Others point to Gardasil. Our sincere condolences to her family whose blog is HERE. Below is a post we ran last July.

By Kim Stagliano

This article on the paralysis of Miss Jenny Tetlock, perhaps from her Gardasil vaccination, is from US News and World Report, a bastion of mainstream, conservative reporting. 

Note that her father is a professor at a top university. We wish the Tetlock family, especially young Jenny, well. We wrote about her tragic situation HERE. Did blogs help move this story along? We hope so.

About a month after being vaccinated against the cervical cancer-causing HPV virus, 13-year-old Jenny Tetlock missed the lowest hurdle in gym class, the first hint of the degenerative muscle disease that, 15 months later, has left the previously healthy teenager nearly completely paralyzed. Did the vaccine, Gardasil, cause her condition? Her father, Philip Tetlock, a psychology professor at UC-Berkeley's Haas School of Business, has embarked on an odyssey to find out whether the vaccine or random coincidence is to blame.

Read the full article HERE.  Please visit the Tetlock's blog HERE for updates, and to share your support.

Thank you to Cox and Forkum for this fabulous image. Be sure to visit their site!

Kim Stagliano is Managing Editor of Age of Autism. (And back online!)

Experts Agree. Giant Bioengineered Crabs Pose No Threat.

Yes, yes. Trust the scientists. Take 2 minutes and 38 seconds to have a good laugh, courtesy of The Onion.

Panelists dismiss the notion that something could go wrong with the 75-foot-tall crabs that shoot acid from their mouths.

FOUND SAFE: Justin Bailey, Age 20, Autism, Missing in Utah

Justin bailey FOUND! He was found 500 yards from his home in a small shelter last night.

From CBS 2, KUTV in Utah.  Click HERE to read the original story and comment. Thank you to KUTV for the photo.

KUTV -- Authorities are asking for help finding a 20-year-old autistic man.

Justin Bailey walked away from his home in Kamas yesterday, and has not been seen since.

Justin is described as a 5'9" white male, 180 lbs., with brown hair and hazel eyes. He was last seen wearing blue jeans and a brown canvas coat.

Last June Bailey was found safely after going missing for several days in the same area. 

If you have any information regarding Justin's whereabouts, please contact the Summit County Sheriff's Office at (435) 615-3500

Ball State's Truth Movement Seeks Thimerosal Advocate to Share Stage with Dr. Boyd Haley

Challenge Managing Editor's Note: Paging Dr. Paul Offit!  Paging Dr. Nancy Snyderman! Paging the AAP's Dr. David Tayloe!  Paging Dr. Harvey Karp!  Paging Dr. Max Wiznitzer!  Here's your chance to debate the pros and cons of mercury with Dr. Boyd Haley. To reserve your seat, or accept the challenge to share the stage with Dr. Haley, email Tony Farmer at BSU.

MUNCIE, IN (3/9/09) – The Ball State Truth Movement is pleased to announce it will be hosting Dr. Boyd Haley at Ball State’s Pruis Hall on April 20th at 8 p.m.

Haley is a former University of Kentucky professor and Chemistry Department Chair (1996-2005) who has given lectures on the toxic effects of mercury at conferences around the world. Haley, a mercury toxicity expert, has testified before numerous government agencies on the effects of mercury toxicity with regards to neurological diseases and supports the efforts of the Ball State Truth Movement to remove thimerosal-containing vaccines from Ball State’s campus.

Continue reading "Ball State's Truth Movement Seeks Thimerosal Advocate to Share Stage with Dr. Boyd Haley" »

Can Autism Insurance Reform Come to the Insurance Capitol?

Hartford Managing Editor's Note: There's a saying that has served me well, "Don't punish progress."  I live in CT. And while this bill is lacking in including our child in real medical treatment, if we can get coverage for therapies, that will free up money for other avenues of recovery. And perhaps many of the scrips our DAN! docs write can be included in "medications." That remains to be seen. Kim

By Shannon Knall

For years now, Hartford, Connecticut has been known as the Insurance Capitol of the World.  By the same token, the rate of autism’s occurrence in the state of Connecticut is one in 123, higher than the national average of one in 150.  Yet given these higher than average rates, Connecticut’s legislature has failed to mandate insurance coverage for autism spectrum disorders, despite the fact that insurance mandates in Connecticut are among the highest in the nation.

In the 2007 Legislative session, House Bill 5696 was introduced to the Insurance and Real Estate Committee.  HB 5696 garnered impassioned public testimony from parents incurring the financial wrath of autism, but yet was stripped of it’s “meat” coming out of committee.  Meaning, coverage for ABA, psychological evaluation/diagnosis and medications were removed, and only speech, occupational and physical therapy remained, among insurance lobbyist claims that the cost to implement the FULL legislation would cause insurance premiums to skyrocket.

Continue reading "Can Autism Insurance Reform Come to the Insurance Capitol?" »

Dr. Jon Poling: I Cannot Fathom Turning My Back on a Child Nor Science To Avoid Inconvenient Questions"

AJC This morning, The Atlanta Journal Constitution is running an editorial by Dr. Jon Poling, father of Hannah Poling.  To see the editorial at AJC click HERE. It doesn't seem that AJC has set up room for comments.

For the million plus American families touched by autism, like mine, there is real urgency to find scientific answers to help loved ones and prevent future victims. Unfortunately, some doctors still fail to even accept the increasing autism rate as real, rather than their own better diagnosis.

The collateral damage of “better diagnosis,” the idea that we are simply better at detecting autism, is the abandonment of families coping with autism by the medical establishment, government and private insurance companies.

Beyond the high emotional toll autism takes on a family, many have been financially ruined. Public school systems are drowning in the red ink of educating increasing numbers of special-needs students.

Continue reading "Dr. Jon Poling: I Cannot Fathom Turning My Back on a Child Nor Science To Avoid Inconvenient Questions"" »

Are You Concerned About Vaccine Safety Research? Take Action Now!

Action alert2 TAKE ACTION NOW – Submit your comments at the National Vaccine Advisory Committee Meeting on March 16th!

The National Vaccine Advisory Committee (NVAC) is holding their next stakeholder meeting this coming Monday, March 16th and is seeking public input into the scientific research agenda (HERE) being developed by the Centers for Disease Control and Prevention's (CDC) Immunization Safety Office (ISO).   The meeting will address the CDC’s draft research agenda and broader issues regarding the national vaccine safety program. 

Members of the autism community were represented in a writing group meeting last month in Salt Lake City to identify gaps in research and prioritization criteria.  The group has published a draft joint statement (HERE),  draft documents on Gaps in the Research Agenda (HERE) and Criteria for Assessing ISO Research (HERE) addressing questions around vaccination of special populations, specific diseases which might be caused by vaccines, and the health effects of vaccination practices.  They also acknowledged the public’s strong desire to study total health outcomes as they relate to the full vaccination schedule, recommending that an independent expert panel be convened to review the feasibility of researching  vaccinated vs. unvaccinated populations. 

Continue reading "Are You Concerned About Vaccine Safety Research? Take Action Now!" »

From the UK: The Betrayal of a Nation's Children

British flag By Martin Walker

Two weeks ago, the Director of vaccine policy at the UK Department of Health, Professor David Salisbury, moved to stifle all criticism of himself and the Department's policies by letters warning of writs for defamation, against a number of vaccine damage campaign websites. These legal letters asked that websites take down Martin Walker's last essay, To Encourage the Others. In the writ Salisbury tried to distance himself from the Joint Committee on Vaccination and Immunisation (JCVI).
 
In two weeks time, in April of this year, vaccination policy in Britain will change radically when it is handed over to a committee appointed by a quango that consists almost entirely of drug company insiders. In this new statute, it will become compulsory for the government to enact the wishes of the Joint Committee on Vaccination and Immunisation (JCVI). From April onwards the New Labour government will abdicate all responsibility for vaccine policy, mass vaccination programmes, licensing, deaths and adverse reactions to the pharmaceutical industry.

Continue reading "From the UK: The Betrayal of a Nation's Children" »

Generation Rescue, Autism Action Network, Illinois Biomedical Kids

Action alert ACTION ALERT – PART 3
THE WHITE HOUSE

For far too long, medical organizations such as the American Academy of Pediatrics and governmental health agencies have disregarded the accounts of thousands of family members of children with autism, rejecting their personal experiences of regression, presence of other medical conditions often occurring with autism and the treatments they have seen to be most promising.

Many scientific studies have found that children with autism often suffer from multiple medical conditions including gastrointestinal, immunological, mitochondrial and other underlying pathologies. When appropriately diagnosed and treated with the help of dedicated physicians; thousands of children are improving and some are even recovering to the extent they no longer meet the diagnostic criteria of autism.

Continue reading "Generation Rescue, Autism Action Network, Illinois Biomedical Kids " »

Your Baby's Bath: Gentle! Pure! Formaldehyde?

Dead duck Our friends in the Wackosphere will remind us that formaldehyde is naturally produced in the human body. So is poop, but we don't bath in it or inject it into ourselves now do we?

California Baby products are available at Target. I'm looking at a bottle of their Body Wash which reads, "No formaldehyde or formaldehyde donors, non solvent and non genotoxic. No parabens, sodium benzoate, benzoic acid, benzyl alcohol or phenoxyethanol."  www.californiababy.com. Trader Joe's also sells non-toxic personal care products at good prices.  Kim

Campaign for Safe Cosmetics Press Advisory

Contacts: Stacy Malkan, 202-321-6963; stacy@safecosmetics.org
Jovana Ruzicic, 202-667-6982; jovana@ewg.org
Stephenie Hendrix, 415-258-9151; stephdh@earthlink.net

New Product Tests: Kids’ Bath Products Contaminated with Formaldehyde, 1,4 Dioxane. Chemicals Not Listed on Labels Due to Weak Regulatory Standards

Washington D.C., March 12, 2009 -- Despite marketing claims like “gentle” and “pure,” dozens of popular children’s bath products are contaminated with the cancer-causing chemicals formaldehyde and 1,4-dioxane, according to new product tests released today by the Campaign for Safe Cosmetics. The chemicals were not listed on product labels. 

This is the first report to document the widespread presence of formaldehyde and 1,4-dioxane in bath products for children. Many products tested for the study contained both chemicals, including top-selling baby shampoos, bubble baths and baby lotions.

Continue reading "Your Baby's Bath: Gentle! Pure! Formaldehyde?" »

Age of Autism Contest: Teach Toileting by Deborah Bialer

Toilet 003 CONGRATS TO THE WINNER: CINDYPDX!

Deborah Bialer is a consultant in Cleveland, Ohio with over thirty years' experience working with special needs children. She has created a toilet training program that works with kids on the spectrum.  We're giving away a copy of her book. Even better? Ms. Bialer is offering a free phone consultation to the winner!

The book is easy to read and the program is spelled out in detail for you. You can visit her website www.teachtoileting.com to order a copy and to learn more. Good luck!

The contest is closed.

It’s Official: Pediatricians + Autism = Clueless

Clueless no excuse By Kelli Ann Davis

According to a current article in Pediatrics, “Medical Homes for Children With Autism: A Physician Survey” (HERE), most pediatricians report a “lack of self-perceived competency” in treating children with autism; yet ironically, the premise of the article states “primary care physicians can enhance the health and quality of life of children with autism by providing high-quality and comprehensive primary care.”  [Question:  How the hell can that be possible if they don’t know what they’re doing?]  

Of course as most of you know by now, the term “medical home” is a key component in a “bill” poised to be introduced by Senators Durbin and Casey (HERE).  What you may not know is the AAP will get to determine what constitutes a “comprehensive approach to care and coordination” for children with autism:

Definitions: (8) MEDICAL HOME.—The term ‘‘medical home’’ means a concept or model of care delivery that includes an ongoing relationship between a provider and a patient, around-the-clock access to medical consultation, respect for a patient’s cultural and religious beliefs, and a comprehensive approach to care and coordination of care through providers and community services, as defined by the American Academy of Pediatrics.

Continue reading "It’s Official: Pediatricians + Autism = Clueless " »

Autism Mothers Unite in The Autism File World Autism Day April 2, 2009

Autism-mothers WORLD AUTISM AWARENESS DAY April 2, 2009.

Go to www.autismfile.com to learn how you and five Autism Mom friends can create your own smashing photo!

Polly Tommey, mother of a child with autism, editor-in-chief of The Autism File magazine, and founder of the UK registered charity The Autism Trust, has launched a national media campaign across the UK, USA, and Canada to coincide with World Autism Awareness Day.

Continue reading "Autism Mothers Unite in The Autism File World Autism Day April 2, 2009" »

Autism and a Clean House? Join Joe Hutchinson of The Conductors on "Clean House" Tonight!

Smokestack_Joe_Hutchinson_with_Lisa_Arch,_Matt_Iseman,_HT_BackBeater_&_Gigi_Hutchinson[1] Managing Editor's Note: Tune into Joe and Gigi Hutchinson on Style Network's "Clean House" tonight at 11pm Eastern/10pm Central. Scroll to the bottom of the post for more details and how to download The Conductors music - loved by kids on and off the spectrum alike!

By "Smokestack Joe" Hutchinson of the musical group The Conductors

When our friend Sophia told us that she “turned us in” to the Style Network’s Clean House show, my wife Gigi and I were both mortified and relieved!
 
You see, our oldest son Drayke (7) has Autism, and the challenges we face in our home environment are slightly different than your average working family. Nonetheless, there were certainly rooms and sore spots that needed addressing, but would the producers of Clean House want to work with a special needs family? 
 
Well, to our surprise they not only wanted to help us, but they were excited about sending a positive message and spreading awareness about Autism to the diverse millions of viewers that make up their audience.
 
The producers embraced every aspect of our family’s uniqueness, and I was floored when they asked my kids music group The Conductors to perform during the yard sale segment and provide the soundtrack to the episode.  How exciting! 

Continue reading "Autism and a Clean House? Join Joe Hutchinson of The Conductors on "Clean House" Tonight!" »

Run Your Autism Awareness Month Event on the Schafer Autism Calendar

Schafer Managing Editor's Note: If you subscribe to Lenny Schafer's SARNET (Schafer Autism Report) then you know about the Autism Calendar that advertises events across the country and around the world.  Make sure your April event is on the calendar!

The Autism Calendar™ (HERE) is the most complete compilation of Autism Events for April, and for the rest of the year, too.

Be sure to add your event - small meeting, fundraiser or large conference  
(HERE) here - no charge.

Deadline for April calendar is March 25.

The Autism Calendar is distributed to 20,000 readers worldwide by email and is reader supported. Please forward this message to autism event organizers you know.

Harvard Med School: The Best Money Can Buy...

Drugs and money Managing Editor's Note: Students at the nation's most "esteemed" med school learn that many doctors are no longer healers - they are dealers. Remember though, vaccines don't count. A doctor can ride into the med school parking lot on a solid gold syringe with the Merck logo on the plunger and The Times will take no notice. No ethics issues there. Nope.

BOSTON — In a first-year pharmacology class at Harvard Medical School, Matt Zerden grew wary as the professor promoted the benefits of cholesterol drugs and seemed to belittle a student who asked about side effects.

Mr. Zerden later discovered something by searching online that he began sharing with his classmates. The professor was not only a full-time member of the Harvard Medical faculty, but a paid consultant to 10 drug companies, including five makers of cholesterol treatments.

“I felt really violated,” Mr. Zerden, now a fourth-year student, recently recalled. “Here we have 160 open minds trying to learn the basics in a protected space, and the information he was giving wasn’t as pure as I think it should be.” Read the full article in The New York Times HERE.

 

Generation Rescue Action Alert: Stop The Calls, They've Heard You!

StopBy Kelli Ann Davis

UPDATE ON GENERATION RESCUE AND AUTISM ACTION NETWORK ACTION ALERT -- STOP THE CALLS – THEY’VE HEARD US!

Senator Durbin's office called me today:

1.) They have heard from our community and asked us to halt the "Alerts" until we can see the revised draft bill which they are still in the process of writing;

2.) They initially planned on introducing the bill in February, but because of our concerns (Translation: Action Alerts) they have decided to take the extra time to make changes to the bill based on information from us and others;

Continue reading "Generation Rescue Action Alert: Stop The Calls, They've Heard You!" »

David Kirby: US Health Officials Back Study Idea on Vaccinated vs. Unvaccinated Children – Will Media Take Note?

Do it now By David Kirby

It is not accurate for members of the media to report that the link between vaccines has been “disproven.” This is especially true in light of recent news from the National Vaccine Advisory Committee, and a series of news items from the Federal Court of Claims, Federal health agencies, leading universities and top autism researchers around the country. There are now many reasons why the media should continue its coverage of this serious and ongoing debate:

THE NATIONAL VACCINE ADVISORY COMMITTEE (NVAC)

On Friday, February 27, a special group convened by The Keystone Center on behalf of the Department of Health and Human Services’ National Vaccine Advisory Committee Vaccine Safety Working Group (NVAC VSWG) recommended appointing a panel of experts to explore the strengths and weaknesses of conducting studies on health outcomes in vaccinated vs. unvaccinated populations. The group, known as the “Salt Lake City Writing Group,” said it was “desirable” to include autism as one such health outcome.

As they stated in a draft “consensus statement”:

“(There is) a strong desire to study the health impact of the immunization schedule, potentially through a ‘vaccinated vs. unvaccinated study’. Outcomes to assess include biomarkers of immunity and metabolism, and outcomes including but not limited to neurodevelopmental outcomes, allergies, asthma, immune-mediated diseases, and learning disabilities. The inclusion of autism as an outcome is desired”

The Writing Group supported a recommendation to “charge an expert panel with evaluating study designs for research on the impact of the standard schedule of vaccination on an array of health outcomes of significant public interest. This draft charge is responsive to issues raised at community meetings in Alabama, Oregon, and Indiana as well as the Interagency Autism Coordinating Committee request for collaboration with the National Vaccine Program Office.”

Continue reading "David Kirby: US Health Officials Back Study Idea on Vaccinated vs. Unvaccinated Children – Will Media Take Note?" »

Play The Age of Autism Irony Game!

Irony rustoleum Come one! Come all! Find the irony and win a prize! (To be determined at a later date. How do you feel about a box of GFCF cookies, mostly crumbled?)

There's an article in Pediatric News that is actually quite encouraging. It was sent to us by "a friend of ours who says, "The attached is an interesting column out today in the “Pediatric News” - promotes the concept of honest dialogue for pediatricians.  I don’t agree with all of it – but Dr. Barbara Howard is a major voice in the AAP, and it’s encouraging to see her stating things like:

“If the family has been traumatized by a diagnosis of autism that coincided with timing of the vaccine schedule, discuss the option of a customized vaccine schedule to avoid the peak diagnostic age for autism spectrum disorders.”

Now, click open the file HERE to see the article and then report in the comments section on the bitter lemon sucking, pickle juice puckering irony that you see. No cheating by peeking at the comments first! 

(And yes, you all nailed it. If it weren't so pathetic, it would be amusing, wouldn't it?)

Why is the Media Ignoring the Bailey Banks Autism Vaccine Decision?

Violet beauregardeUpdate: Alison just added broadcast media contacts. I've included them below.  I've also added the full text of the decision that you can copy and send, saving the reporters the strenuous effort of a Google search.

Warrior Mom Alison MacNeil compiled this list of mainstream media contacts who have, so far, ignored the Bailey Banks vaccine court decision (HERE.) Perhaps you'd like to email each of them, politely of course, to ask when their stories will run informing parents that the "door" is still very much open regarding vaccines and PDD's.  Let's keep demanding coverage until we're blue in.... well, you get the point, right?  Feel free to add more contacts in the comments. Thanks. (PS) Anyone got any gum?

CBS
hoodm@cbsnews.com  -mary Hood, health producer
ckx@cbsnews.com - craig katz, news assignment editor

NBC
brian.williams@nbc.com
patricia.martell@nbcuni.com  -assignment editor
jennifer.sizemore@msnbc.com -exec prod. news
nightly@nbc.com

MSNBC
kolbermann@msnbc.com
ted.savaglio@msncb.com -breaking news editor
jonel.aleccia@msnbc.com- health reporter

CNN
shahreen.abedin@turner.com - medical producer
rick.martin@turner.com -assignment editor
ann.curley@turner.com -medical news unit editor
saundra.young@turner.com - health editor

FOX
roger.ailes@foxtv.com -CEO, Chairman
jessica.mulvihill@foxnews.com-health producer
housecall@foxnews.com

Continue reading "Why is the Media Ignoring the Bailey Banks Autism Vaccine Decision?" »

Best of A of A: More Bullshit from the Apparatchiks

BullshitalertbuttonlManaging Editor's Note: We thought this piece deserved a second run - Mark wrote it after the Hannah Poling decision last year when the press referred to Miss Poling as having "autism like symptoms." 

By Mark Blaxill

Some people get a little squeamish when others use the word bullshit to describe a certain kind of bureaucratic doublespeak. Not me.  I like to remind the squeamish among us that bullshit is a precise term in the philosophy of science and it’s entirely respectable to use the word in polite company. To support my case, I point friends to Harry Frankfurt, emeritus Professor of Philosophy at my alma mater, Princeton University, who elaborated on the relevant philosophical concepts at some length in his wildly popular essay, On Bullshit, in which he famously distinguished bullshit from lying.

Bullshitting is not exactly lying, and bullshit remains bullshit whether it's true or false. The difference lies in the bullshitter's complete disregard for whether what he's saying corresponds to facts in the physical world: he does not reject the authority of the truth, as the liar does, and oppose himself to it. He pays no attention to it at all. By virtue of this, bullshit is a greater enemy of the truth than lies are.

Continue reading "Best of A of A: More Bullshit from the Apparatchiks" »

Autism. What's in a name?

Genie_in_a_Bottle_by_phuzzypanda By Kim Stagliano

As expected, the mainstream media outlets who couldn't wait to announce that the Vaccine Court Special Masters found against three cases earlier this month, thus, "closing the door on the autism/vaccine debate forever" have said little to nothing about the current case, by the same court, which awarded a large judgement to a family for their child's vaccine-induced autism.

The diagnosis code selection is subjective.  A PDD-NOS diagnosis can be a function of a doctor trying to soften the blow of "the A word" for a parent. It can also be based on geographic differences in terminology use, I've found. Not to mention the skill and experience of the diagnosing doctor and the honesty of the parents explaining their child's life at home. For those who say, "Oh Bailey Banks had PDD-NOS, that's not autism," here are a few definitions to review. Go ahead and submit a PDD-NOS code to your insurance company. See if they tell you, "That's not autism, so we'll cover the charges."  What was your diagnosis experience like?

FROM AUTISM SOCIETY OF AMERICA

What is the difference between autism and PDD?

Continue reading "Autism. What's in a name?" »

Age of Autism Contest: Frank Nappi's The Legend of Mickey Tussler

Mickey cussler

WINNER: ANGELO NATOLI! The contest is closed as of 2/26/09. You can buy a copy at Amazon. We'll have another contest on Sunday. Hint, toilet training!


Imagine what would happen if God combined the baseball prowess of Roy Hobbs from The Natural and the unique temperment and aspergers of Christopher Boone from The Curious Incident of the Dog in the Night-time. This fictional experiment is the inspiration behind my novel, The Legend of Mickey Tussler, a story that chronicles the rise of 17 year old Mickey Tussler to local baseball stardom, despite his aspergers and a vocal faction of heartless critics.

The book, which highlights the remarkable achievements of this special young man, has been celebrated by many parents of autistic children as a "victory for special needs kids everywhere," for it portrays the boundless possibilities of these amazing individuals while indicting those ignorant people who would still like to ignore their very existence.

Continue reading "Age of Autism Contest: Frank Nappi's The Legend of Mickey Tussler" »

How Victims of Childhood Vaccines became Villains

Groundhog By Julie Obradovic
 
The month of February has not been easy. Talk about a whirlwind. The one-two punch of Brian Deer's old news being presented as new news several days before the Vaccine Court ruling heard round the world has left many of us out of breath. At least for me, the punch in was painful.
 
It was hard to ignore the flood of media coverage that began immediately following. It never ceases to amaze me how difficult it is to get coverage of stories that point the finger at vaccines, versus those that validate their innocence, worthiness and necessity. Yesterday's story by David Kirby and Robert F. Kennedy, Jr. is a perfect example.

Continue reading "How Victims of Childhood Vaccines became Villains" »

Generation Rescue Ad in USA Today: Court Again Concedes Vaccines Cause Autism

GR adThis ad from our sponsor Generation Rescue is running in USA Today, today, February 25, 2009.  Click the photo to see a larger size.  Click HERE for a .pdf of the ad.

Thank you to Generation Rescue, Jenny McCarthy, Jim Carrey, Stan Kurtz and GR co-founder J.B. Handley for always putting our children first. Always.

Thoughtful House Center for Children on Court Ruling: MMR Causes Autistic Disorder

Thoughtful house 2 Court Rules MMR Vaccine Causes Autistic Disorder

Decision Contradicts Findings in Controversial Cedillo Case

(Austin, Texas) – The controversial Feb. 12 decision by the US vaccine court that there was no link between MMR (measles-mumps-rubella) vaccines and autism contradicts a ruling issued by the same court in June of 2007. In addition, just days after its announcement denying the vaccine-autism link in the Cedillo case, the court awarded an estimated $3 million dollars to the family of 10 year-old Bailey Banks  on Friday, February 20, 2009, and confirmed that the child’s acute brain damage was a result of the MMR vaccine, which led to his autism spectrum disorder (ASD).

Continue reading "Thoughtful House Center for Children on Court Ruling: MMR Causes Autistic Disorder" »

Government Again Concedes Vaccines Cause Autism

Vaccine silouuette Mysterious Vaccine Court created in 1986 by Congress and the pharmaceutical industry rules in favor of Bailey Banks against HHS.

Los Angeles - February 23, 2009 - Generation Rescue, Jenny McCarthy and Jim Carrey’s Los Angeles-based non-profit autism organization, today announced that the United States Government has once again conceded that vaccines cause autism.  The announcement comes on the heels of the recently discovered court case of Bailey Banks vs. HHS, reported on the Huffington Post.  The ruling states, “The Court found that Bailey would not have suffered this delay but for the administration of the MMR vaccine…a proximate sequence of cause and effect leading inexorably from vaccination to PDD [Autism].”

Continue reading "Government Again Concedes Vaccines Cause Autism" »

Robert F. Kennedy, Jr. and David Kirby on HuffPo: Vaccine Court Autism Debate Continues

Davidkirby Rfk2 Managing Editor's Note: Robert F. Kennedy, Jr. and David Kirby have teamed up on Huffington Post.  Click HERE to read and comment on ANOTHER AUTISM CASE WINS IN VACCINE COURT at Huffington Post. Here's a preview:

On February 12, the federal "Vaccine Court" in Washington issued a sweeping ruling in three highly touted "test cases" against families who claimed that their childrens' autism had been caused by vaccines. The Special Masters in those three cases found that Petitioners failed to establish causation between MMR vaccines, the mercury-laced vaccine preservative thimerosal, and autism (the court decision, which is under appeal, deferred any finding on a thimerosal-only theory of causation). The rulings could have a significant precedential impact on some 5,000 families who opted to bring their cases in the Omnibus Autism Proceedings (OAP) hoping that the vaccine court would officially hold that that the MMR vaccine or thimerosal had caused autism in their children.

The New York Times joined the government Health Agency (HRSA) and its big pharma allies hailing the decisions as proof that the scientific doubts about vaccine safety had finally been "demolished." The US Department of Health and Human services said the rulings should "help reassure parents that vaccines do not cause autism." The Times, which has made itself a blind mouthpiece for HRSA and a leading defender of vaccine safety, joined crowing government and vaccine industry flacks applauding the decisions like giddy cheerleaders, rooting for the same court that many of these same voices viscously derided just one year ago, after Hannah Poling won compensation for her vaccine induced autism.

But last week, the parents of yet another child with autism spectrum disorder (ASD) were awarded a lump sum of more than $810,000 (plus an estimated $30-40,000 per year for autism services and care) in compensation by the Court, which ruled that the measels-mumps-rubella (MMR) vaccine had caused acute brain damage that led to his autism spectrum disorder.

Prozac Study Fails to Show Effective Reduction of Autism Behaviors

Band aid By Kim Stagliano

Those of us in the autism treatment community seem to know instinctively that you can not simply "drug away" (mask) the behaviors associated with autism.  It was disappointing to read Autism Speaks' Peter Bell's statement about "treating the core symptoms" of autism. No. We need to determine what is causing the symptoms.  It's time for autism to be treated as a true medical diagnosis and get it OUT of the psychology-psychiatric-behavioral ghetto. We've done that in the treatment community. Come on, Autism Speaks. Join us.

Autism Speaks Announces Results Reported for the Study of Fluoxetine in Autism (SOFIA)  First Industry-Sponsored Trial for the Autism Clinical Trials Network (ACTN)

NEW YORK, N.Y. (February 18, 2009) – Autism Speaks today announced initial results reported for the first industry-sponsored trial of the Autism Clinical Trials Network (ACTN), the Study of Fluoxetine in Autism (SOFIA). These results showed that fluoxetine was not effective for reducing repetitive behaviors in children and adolescents with Autistic Disorder as compared to placebo (non-medicinal sugar pill).

Continue reading "Prozac Study Fails to Show Effective Reduction of Autism Behaviors" »

Behind the Vaccine Court: Zero Accountability

Immunity Editor's Note: This article from The Wall Street Journal, "Vaccine Makers Enjoy Immunity," is a good primer on the Vaccine Court, which has turned into such a roadblock to vaccine safety and to justice for families affected by vaccine-induced autism. Here is a quote that is the heart of the problem:

"Vaccines are products that are completely different from any others. We need to encourage companies to develop vaccines in order to protect the public health," said Rep. Henry Waxman. No, vaccines are NOT completely different -- they are pharmaceutical products approved by the FDA and they need to be safe as well as effective. When people start talking about something being "completely different," it reminds us of the notion that "9/11 changed everything" and similar claims. That kind of talk is cover for the worst excesses -- for the ends justifying the means -- and we see the consequences every day now. -- Dan Olmsted.

By AVERY JOHNSON

One of the little-noticed reasons that Wyeth was attractive enough to command a $68 billion price for rival Pfizer Inc.'s planned takeover sits in a building catty-corner from the White House across Pennsylvania Avenue. That is where a special "vaccines court" hears cases brought by parents who claim their children have been harmed by routine vaccinations.

The court -- and the law that established it more than two decades ago -- buffers Wyeth and other makers of childhood-disease vaccines from much of the litigation risk that dogs traditional pill manufacturers and is an important reason why the vaccine business has been transformed from a risky, low-profit venture in the 1970s to one of the pharmaceutical industry's most attractive product lines today.

(Read the full article in the Wall Street Journal HERE. Of course, the WSJ requires a paid subscription. The excerpt above gives you the jist of the article. Vaccines are not subject to product liability lawsuits like "drugs" because they have been placed in a parallel, protected universe where every shot is safe for every human on the planet.  More on that big, fat lie later tonight and tomorrow. Stay tuned.  Kim)

Barbara Fischkin: Bad Justice, Bad Journalism, A Maligned Doctor And A Dead Mother

Heart Managing Editor's Note: Only our friend Barbara Fischkin could connect the dots between the vaccine court, the media coverage and the death of an autism Mom in Ohio with such razor sharp insight.

As an Autism Mom, I spent last week with my head spinning. Ultimately though, I could see that the events - in a conflicted American court, a decimated American home and a misguided British newspaper - were all connected, albeit in a deep, unsettling manner. But one that also illuminates that the debate is far from over.

In America last week, our Vaccine Court very curiously threw a hearty dose of cold water over the widely reported connection between autism and vaccines. I use this phrase -- widely reported-- to emphasize that the connection between autism and vaccines has been spotted by multitudes of front line participants and observers -- parents and physicians who have seen children and patients fall apart after being vaccinated. Ignoring these eyewitness accounts is akin to dismissing testimonies from soldiers until those testimonies are "peer reviewed" by scientists who may have no first hand experience in war zones.

Read Barbara's full post and comment at the Spectrum Magazine blog HERE. (If you don't get Spectrum Magazine, we highly recommend you treat yourself to a subscription.)

Roni Piterman, CEO of Your Dinner Secret, Selected for 40 Under 40 Award

Dinner secret Woodland Hills, CA, February 6, 2009…. The San Fernando Valley Business Journal has awarded Roni Piterman, CEO of Your Dinner Secret, a "40 Under 40" award for leadership in business. This is an annual award presented to 40 young leaders, under the age of 40, in the San Fernando Valley.

Roni and her sister Ari Kosmal started Your Dinner Secret in January of 2007. The company started out as an independent meal assembly business, but quickly morphed into the premiere supplier in the country of frozen, ready-to-cook, gluten-free, casein-free entrees, sides and baked goods, shipped directly to your door.

They market their food under the gfMeals™ brand name. It can be ordered at the website www.gfMeals.com , or directly from their retail store in Woodland Hills, CA.

The primary markets for this delicious food are: people with celiac disease; families recovering children with autism, aspergers, ADHD and other autoimmune disorders; and people who lead a healthy gluten-free lifestyle.

Generation Rescue and Autism Action Network ALERT! on Healthcare Legislation

Action alert2 Click HERE to read and participate in the Autism Action Alert from Generation Rescue and AAN.
 
The bill has problems and the true stakeholders have an alternative ,,,,
 
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model." This legislation would grant treatment authority for children with autism to private organizations.
 
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.

Everything's Bigger In Texas, Including the Austin Statesman's Distortions

Rodeo clownThe Austin Statesman, in Austin Texas, home of Thoughtful House has no idea that they are home to one of a handful of comprehensive, medically based treatment centers for autism. Apparently, having the "Mayo Clinic" of autism is lost on them. Clowns.

Even the lies are bigger in Texas. The writer of this editorial can take his "boundless compassion" for people with autism and stick it where the yellow roses don't grow.

Please read the full editorial HERE and comment in support of Drs Wakefield, Krigsman and the caring staff at TH.

Physicians at Austin's Thoughtful House blasted by judges ruling agains their theory that measles vaccine causes autism.

No one has anything but the deepest sympathy for children who have autism and for their parents. The search for causes and cures of this crippling brain disorder has been long and futile.

After a study published a decade ago linked the onset of autism to vaccines used to inoculate children against measles, many families sued the government and began to campaign against vaccinations. It was a misguided effort based on faulty science, and three federal judges said just that in rulings late last week...

Melanie Phillips in Spectator UK: A Deer in the Headlights

Fing deerManaging Editor's Note: The headline I wanted to create was profane. Alas, we are a family site. (Insert eye roll here.) The photo tells you the headline in my mind. Two words. Verb first. Got it?

Eleven days ago, Brian Deer renewed his onslaught against Andrew Wakefield in the Sunday Times. I wrote about it here and made the point that, since Deer’s allegations sparked the General Medical Council case against Wakefield which would not have occurred without his involvement, he was effectively a principal player in the story he was reporting — a clear conflict of interest and breach of journalistic standards.

Continue reading "Melanie Phillips in Spectator UK: A Deer in the Headlights" »

Voting Himself Rich: CDC Vaccine Adviser Made $29 Million Or More After Using Role to Create Market

Thirty pieces of silver By Dan Olmsted and Mark Blaxill

Dr. Paul Offit of the Children’s Hospital of Philadelphia (CHOP) took home a fortune of at least $29 million as part of a $182 million sale by CHOP of its worldwide royalty interest in the Merck Rotateq vaccine to Royalty Pharma in April of last year, according to an investigation by Age of Autism. Based on an analysis of current CHOP administrative policies, the amount of income distributed to Offit could be as high as $46 million.

There is nothing improper about receiving compensation for a patented innovation; but the extraordinary valuation placed on CHOP’s patents raises concerns over Offit’s use of his former position on the CDC’s Advisory Committee on Immunization Practices to help create the market for rotavirus vaccine -- to effectively vote himself rich.

Offit has steadfastly refused to say how much he made from the vaccine. Based on the income distribution guidelines set forth in CHOP’s current administrative policy manual (HERE) entitled “Patent and Intellectual Property Policy,” Offit’s share of this transaction -- the “inventor’s share of net income” -- would have earned him a personal distribution of 30%. In a Moody’s report dated June 2008, CHOP reported net proceeds from the Rotateq transaction of $153 million, a deal basis that would put the value of Offit’s 30% share at $45.9 million.
 
Although the royalty transaction amounts and current CHOP inventor shares are publicly known, several factors complicate a precise calculation of Offit’s income. Royalty Pharma paid $182 million for the Rotateq royalty stream, but CHOP reported proceeds of only $153 million. Since most universities calculate income based on net royalties, the lower number might more closely reflect the basis for calculating Offit’s income. If CHOP applied an inventor share of 30% to a transaction value of $153 million they would have then been required to distribute $45.9 million to Offit.

Continue reading "Voting Himself Rich: CDC Vaccine Adviser Made $29 Million Or More After Using Role to Create Market" »

UK's Sunday Times Journalist Challenged Over Role in US MMR Cases

Sunday times The Sunday Times UK journalist Brian Deer is being challenged to explain his role in assisting George Bush’s US Departments of Justice and Health and Human Services, leading to  the failure in the USA last week of three lead cases of over 4500 pending cases of injured US children.  The journalist was identified last week as complainant in the UK General Medical Council proceedings against Dr Andrew Wakefield over the alleged link between MMR vaccine, autism and bowel disease in children.  The journalist has reported extensively in The Sunday Times, London on his allegations which are now the subject of the UK GMC proceedings and was also previously a defendant in a law suit brought by Dr Wakefield. Challenges to his new denials of involvement with the UK GMC case are being made as are demands for the journalist to publish his complaints and other correspondence with the UK’s GMC and to explain his relationship with them.

Read the full piece at the Child Health Safety blog HERE.