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2699 posts categorized "Current Affairs"

VoiceAmerica on Restraint and Seclusion of Special Ed Students

Handcuff Autism One: A Conversation of Hope
Tuesday, August 25, 12:00 noon Eastern Time
Host: Teri Arranga on the VoiceAmerica Health & Wellness Channel HERE.

Who will teach our children?  From alphabets to abuse, with Dr. Roy Leonardi and Lori McIlwain.

On July 7, we talked with Lori McIlwain of the National Autism Association about restraint and seclusion of special ed students in schools.  An NAA release cited that, in May of 2009, a government report listed 19 state governments that have yet to regulate the practices of restraint and seclusion in schools.  The report also cited multiple cases of improper restraint and seclusion resulting in death, injury, and emotional trauma of children with varying disabilities.  Lori returns with Dr. Roy Leonardi, Assistant Professor in the School of Education & Professional Studies, Department of Special Education, at Central Connecticut State University.  How can we protect our children?  How can we teach our teachers well?

Please see also www.nationalautismassociation.org/abuse.php

Age of Autism Comment of the Week

AOAFScott Laster is our commenter of the week on the  When Vaccine Development is the Family Business post by Dan and Mark.

At the NAA Conference in Atlanta in Nov 2007, two items stood out to me about Tom Insel's presentation:  1) his comment at the beginning of his presentation that "what we really need is a vaccine for autism" and 2) his strident defense of the Hib vaccine (he asked the audience to raise hands if they'd seen a child die of Hib). 

I chalked the 'vaccine for autism' statement up to an adherence to the traditional orthodoxy of public health officials, but was puzzled by the stridency in which he defended the Hib vaccine.  It seemed to me to go far beyond the standard public health viewpoint ... now it makes sense what was driving this in the background. 

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal. 

Continue reading "Age of Autism Comment of the Week" »

Action Alert: Reminder - Comments Due Today on IACC Strategic Plan for Autism Research

Action alert2 Take Action Today: The Interagency Autism Coordinating Committee (IACC) is requesting public comment on year two of the strategic plan for autism research and budget.  The annually updated plan is the heart of the Combating Autism Act and was designed to improve transparency, accountability, and the expansion of research aimed at finding the cause (so that new cases could be prevented) and effective treatments for autism. 

The request for information can be found HERE.  The web-based form for comments can be found HERE.  The form has space for input on six separate questions.  Question 3 relates to cause, and question 4 relates to treatment.  The current version of the plan can be found here HERE.

The most important areas for comment on questions 3 and 4 are that these areas are dramatically under-funded, especially on the question of environmental cause.  Although there is a strong consensus in the scientific literature that autism is caused by environmental triggers in genetically susceptible individuals, most of the “cause” money is devote to searching for the elusive “autism gene” and not for the environmental triggers that might actually lead to prevention.

Continue reading "Action Alert: Reminder - Comments Due Today on IACC Strategic Plan for Autism Research" »

Final Day to Comment on IACC Shortcomings

Iacc REVISION: There's a webform to use. Please click HERE, scroll down to "continue" and you'll get the form.  The webform has 6 questions - in question 3, "What caused this to happen and can this be prevented?" you can ask to have the vax/unvax study returned to the docket, for instance.

Tomorrow is the final day to provide public comment on the proceedings of the IACC. Let them know what you think of the progress and staffing of this committee.

The Angel in the Engine: Reports of Restraint, Seclusion and “Special Treatment” in Special Ed

Circle-timev3 Managing Editor's Note:  Click to enlarge and read the photo, an ad from our sponsor NAA. This is a thoughtful, two part post by Adriana Gamondes. Last week we read of a young man with autism who had bleach thrown in his eyes for a toileting accident. As the numbers of student with autism grows (1 in 38 boys?) and the adult population soars, what can we expect for our loved ones?  The post follows the poem. Grab a coffee, spend some time with this one and share it with friends, family and educators, won't you?

Special Ed—Part 1

By Adriana Gamondes

The Angel in the Engine

It starts with just a little tap
A little jolt
A little rap
They swore the thing was stripped for scrap
But wound in weeds it lay in wait
The angel in the engine
Is whispering your name
And warns you of forgotten freight
 
It starts with just a little cry
Anesthetized
It barely breathes
Gears grind with such a distant grief
Then bear down at the speed of crime
The angel in the engine
Is whispering your name
And tells you it will run on time

It starts with just a little mark
Just for the charts
If memory serves (they like it, see)
But memory fails (then so do we)
It’s only rust on every rail
And loving hands to help them sleep
The angel in the engine
Is whispering your name
And tells you how they spit their teeth

Continue reading "The Angel in the Engine: Reports of Restraint, Seclusion and “Special Treatment” in Special Ed " »

Live Webinar from "Rethink Autism" on At Home ABA Programming

Rethink autism Many biomed families also use ABA for their children. Rethink Autism offers a web-based platform for at home ABA. WPIX TV's Jim Watkins (who has a son with autism),  (HERE) Ch. 11 in NYC says: “In a small office in midtown Manhattan, a revolution is taking place in the field of autism education.” 
 
Live Webinar: Wednesday, August 19, 2009 7:00 PM - 8:00 PM EDT
Registration is required @ HERE.

Participants in this Live Webinar will learn how they can:

•Dramatically reduce the costs of your autism education program
•Start and manage an evidence-based approach to autism
•Monitor outcomes for students with autism

The mission of rethink autism is offering parents and professionals immediate access to effective and affordable Applied Behavior Analysis-based treatment tools for the growing population affected by autism spectrum disorders.  Our web-based platform includes a comprehensive curriculum that can be linked to your state standards, hundreds of dynamic instructional videos of teaching interactions, step-by-step training modules, and progress tracking features to measure student outcomes.  Our Senior Clinical Advisor, Dr. Bridget Taylor, personally reviews each of the lesson and training videos accompanying our curriculum, ensuring clinical integrity and the portrayal of research-based teaching strategies.  We have also engaged well-respected leaders in the field of autism to guide our future development through the Scientific Advisory Board (see full list HERE).

You can also check out a recent piece that aired on CBS News about Rethink Autism: HERE.



 

Where Does the Money Go?

Nice work if you can get it. Aw, go ahead and click it. Hint, it's a tax form.

Galen Kirkland, NY State Division of Human Rights, on Eunice Kennedy Shriver

Eunice_Kennedy_Shriver By Galen D. Kirkland, Commissioner, New York Division of Human Rights

The world lost one of the great champions of human rights with the passing of Eunice Kennedy Shriver.

Born to privilege, she focused her life on the aspirations and dignity of those less fortunate. She was a woman who changed the world for the better.

In 1960 a woman told Mrs. Shriver that she couldn’t find a summer camp for her developmentally disabled—what was then called “retarded”—child. Regular camps wouldn’t take such a child.

“Enough,” Eunice said.

And with that word, she changed the world. Two years later she opened Timberland, her family farm in Maryland to 50 of these challenged children. She paired them with 50 high school students, including her son, Tim. Skeptics, and even many of the counselors, said she was wasting her time, these children weren’t teachable, they said.  

The world was wrong and Mrs. Shriver was right: The children thrived: they played ball, they rode horses they swam and had fun.

Continue reading "Galen Kirkland, NY State Division of Human Rights, on Eunice Kennedy Shriver" »

Age of Autism Comment of the Week

AOAFRichard is our commenter of the week on David Kirby's Autism in 1 in 100 post. Richard, send me an email HERE with your size and mailing address please. Congrats and thanks for reading AoA.

If 1 in 38 boys were being born blind, do ya think it would cause folks to get serious about what the cause is ?

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L or XL and include your mailing  address in the comments box at PayPal. 

Continue reading "Age of Autism Comment of the Week" »

National Autism Association Conference in Florida 11/12 - 15

Hyatt Managing Editor's Note: Fall is conference time! We told you about the DAN! Conference  in Dallas in early October. Here's info on the  National Autism Association Conference at the Hyatt Regency Bonaventure Conference Center and Spa in Weston, Florida. 

How do you choose a conference? Some folks start with the speakers. Perhaps there's a particular doc you want to hear. Others look at travel distance and hotel costs for financial reasons. Whether you choose DAN! or NAC or any of the other conferences coming this Fall, learning how to help your child with autism is always good for the mind, body and soul. And from what I hear, the Hyatt Bonaventure is particularly good at pampering all three.

From our friends at NAA:

Relaxing, informative, hopeful, casual, laid-back, rejuvenating, affordable, tropical, FUN...are we talking about a conference?  Absolutely!

If you're an autism parent, this conference is for YOU!  The NAC features the world's leading experts on autism in a relaxed, environmentally-friendly tropical resort setting.  The schedule is designed to keep you from running frantically from one presentation to another - take some time to dip your toes in the pool or do some shopping in the exhibit hall.  Sleep in! - There's nothing on your agenda before 9 am! 

Continue reading "National Autism Association Conference in Florida 11/12 - 15" »

CDC's 10 Public Engagement Meetings on H1N1 Swine Flu and Vaccination Occuring in August

Citizen power Thanks to Ginger Taylor of Adventures in Autism for this link to Flu Wiki. I don't know who runs this site, or who drd1106 is, but the info is worth sharing so you can attend a meeting in your area. KS.

This is an international website intended to remain accessible to as many people as possible. The opinions expressed here are those of the individual posters who remain solely responsible for the content of their messages.

The use of good judgement during the discussion of controversial issues would be greatly appreciated. 

CDC's 10 Public Engagement Meetings Set
by: drd1106
Sat Aug 01, 2009 at 10:53:56 AM EDT
 
I first heard about these meetings on the NVAC conference call on Monday, but the meetings had not been set.  They are now and you can get more information at
http://www.keystone.org/H1N1.  YOU MUST REGISTER NOW TO ATTEND.  Go to the website to register.

The meeting schedule is:

Denver, Colorado, Saturday, August 8

Continue reading "CDC's 10 Public Engagement Meetings on H1N1 Swine Flu and Vaccination Occuring in August" »

Age of Autism Comment of the Week

AOAFAnna is our commenter of the week on the United We Stand post. Anna, I'm glad our readers could help you.

Thanks everyone for the support and links. I will go thru them tomorrow. I am exhausted and just got the little one to fall back to sleep after his seizure. This has been a devastating day for us. I feel like someone has repeatedly kicked me in the ribs. I just want to give up.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your mailing  address in the comments box at PayPal. 

Continue reading "Age of Autism Comment of the Week" »

Autism One Radio Senate Appropriations Committee Follow Up

Listen Friday on Linderman LIVE!
11:00 am ET
www.autismone.org
(click the radio icon)

Join guest Dana Halverson and hosts Curt and Kim Linderman for this heated discussion about the Senate Appropriations Committee meeting on autism with Senator Harkin that took place on 8/5/09.  Dana was there in the midst of yet another attempt by National Institutes of Mental Health Director Dr. Thomas Insel to thwart effective research for our kids.  Pull up a cup of coffee and a tub of Tums for this one.

Winner: Signed Movie Poster from "Adam" Featuring Asperger's

ADAM_One-Sheet-1 Have you seen Adam? Leave us a comment sharing your thoughts!

Congrats to JC Capurso who has won a signed movie poster. The contest is closed.

ADAM, a romance featuring a title character with Asperger's Syndrome, opens July 29, 2009.  You can see an advance screening Catch a screening before the 29th! The screenings are open to the public. Find your city and get a sitter! CLICK HERE to find a screening. Watch the trailer below the jump.

Romance can be risky, perplexing and filled with the perils of miscommunication - and that's if you aren't ADAM, for whom life itself is this way. In this heartfelt romantic comedy, Hugh Dancy (THE JANE AUSTEN BOOK CLUB, CONFESSIONS OF A SHOPAHOLIC) stars as Adam, a handsome but intriguing young man who has all his life led a sheltered existence - until he meets his new neighbor, Beth (Rose Byrne, "Damages," 28 WEEKS LATER, KNOWING), a beautiful, cosmopolitan young woman who pulls him into the outside world, with funny, touching and entirely unexpected results. Their implausible and enigmatic relationship reveals just how far two people from different realities can stretch in search of an extraordinary connection.

Continue reading "Winner: Signed Movie Poster from "Adam" Featuring Asperger's" »

IACC Conference Call Today to Discuss Autism Research Strategic Plan

Call now The Interagency Autism Coordinating Committee (IACC) will hold a conference call today, Wednesday, 2-4 pm EDT, to discuss plans for updating the autism research strategic plan.  To access the conference call: USA/Canada Phone Number: 888-455-2920.  Access code: 1050786.
 
This plan is the heart of the Combating Autism Act and must be updated every year, including a research budget.  The current draft can be found here HERE

The existing draft is quite deficient in cause and treatment research.  A comprehensive program of vaccine research was included in the first plan but deleted in a controversial meeting last January over the objection of most of the community members (except Alison Singer, who did vote to delete vaccine research). 

Public meetings to discuss the current state and needed research will take place in Washington Sept. 30 and Oct. 1.  Public comments on the current and updated plan are due August 21.

IACC Deaf on Critical Vaccine Research as Request for Public Comment is Issued

Speak out stand up By Theresa Wrangham

The National Institutes of Health (NIH) Interagency Autism Coordinating Committee (IACC) issued a Request for Information (RFI) as they begin to Update their Strategic Plan for Autism Spectrum Disorder (ASD) Research (HERE) while failing at their recent joint meeting with the National Vaccine Advisory Committee (NVAC) on July 15th to take on statutorily required autism research.

While the purpose of the RFI is to solicit input from ASD stakeholders to inform the next update of the Strategic Plan, the IACC ignored stakeholders and many autism organizations request to conduct vaccine safety research that was vetted through their own science workshops and strategic planning workgroups as needed in the first iteration of the Strategic Plan (HERE) issued in January.   Public comment will be web-based (HERE) and responses must be received by August 21st. 

Continue reading "IACC Deaf on Critical Vaccine Research as Request for Public Comment is Issued " »

Volunteer Opportunities with SafeMinds

Volunteer SafeMinds is currently looking for volunteers to help out with a variety of tasks.  Please contact us eksafeminds@gmail.com if you are interested in helping in any of the ways described below or if you have another idea of how you can help.

• Can you write and analyze scientific data? 

• SafeMinds has active volunteer committees in the areas of Research, Government Affairs, Fundraising and Marketing, and Environmental Mercury.  If you have expertise you would like to share in any of these areas, we would love your help!

• Would you like to help out with administrative, clerical and data entry support?

• Are you a graphic designer who would like to share your talent?

Continue reading "Volunteer Opportunities with SafeMinds" »

My Name Is Tanner

Tim welsh Read the full article about our friend and Father Warrior "Tanner's Dad" Tim Welsh and his family HERE. I tear up every time I read about Tanner's final words before he slipped into autism. "My name is Tanner."

CATLIN – When their only son, Tanner, got the last of his pre-kindergarten vaccines at age 4 1/2, Tim and Cheri Welsh held their breath.

The Catlin couple had delayed those immunizations a bit, worried about the rare, potential reactions they'd heard some children have. But they also knew vaccines protect kids from nasty diseases like measles and mumps, so they eventually decided to proceed.

Two days after he got two shots containing five vaccines, Tanner went running up to his dad and spoke his last sentence: "My name is Tanner, my name is Tanner."

IACC Request For Information Due 8/21

By Kim Stagliano

Below is info on a Request for Information from the IACC. Meanwhile, enjoy the tune. Comment if you get the joke. I couldn't find one more specific to the phrase. Thank your lucky stars.  KS

--- On Wed, 7/29/09, NIMH IACCPublicInquiries (NIH/NIMH) <iaccpublicinquiries@mail.nih.gov> wrote:

From: NIMH IACCPublicInquiries (NIH/NIMH) <iaccpublicinquiries@mail.nih.gov>

Subject: Interagency Autism Coordinating Committee (IACC) Requests Public Comment

To: "NIMH IACCPublicInquiries (NIH/NIMH)" <iaccpublicinquiries@mail.nih.gov>

Date: Wednesday, July 29, 2009, 2:16 PM

Request for Information (RFI): ) Updating the Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder (ASD) Research  

On behalf of the Interagency Autism Coordinating Committee (IACC), the Nation Institute of Mental Health is seeking comments to inform the annual update of the IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research, as required by the Combating Autism Act of 2006 (P.L. 109-416).

The purpose of this RFI is to solicit input from ASD stakeholders to inform the next update of the Strategic Plan.   In the RFI form, there will be an opportunity to provide input on each section of the IACC Strategic Plan.  Please include suggestions regarding missing or underrepresented knowledge areas, new opportunities needed for advancing research and knowledge about ASD, and suggestions for prioritizing research objectives.

Continue reading "IACC Request For Information Due 8/21" »

Overview of SafeMinds Swine Flu Concerns

Safety first From our sponsor SafeMinds..

In light of the many unknowns concerning the possible Swine Flu Pandemic, SafeMinds is providing the following updates for informational purposes and to raise awareness regarding possible vaccine safety issues, policy decisions and facts regarding the production and possible use of the novel H1N1 vaccine currently being developed.

Our primary goal in raising these concerns it is to promote the production of the safest vaccine possible as our nation develops its strategy with regard to a possible pandemic.  Given past safety failures and vaccine injuries resulting from the 1976 Swine Flu Immunization Program, we believe that lessons from those failures, as documented by Institute of Medicine President Harvey Fineberg, MD, PhD, as well as the draft recommendations made by the National Vaccine Advisory Committee, H1N1 Vaccine Safety Subgroup, must be integrated into the current effort to improve protection for all individuals.  Life is precious and safety a priority in assuring the health of every man, woman and child.  Please visit often for updates and subscribe to our newsletter for current information.

Swine Flu Update - July 23rd

During the FDA's Vaccine and Related Biologic Products Advisory Committee (VRBPAC) meeting of July 23rd convened to address the possible swine flu pandemic, it was revealed that some of the novel (pandemic) H1N1 inactivated vaccine would contain thimerosal (a vaccine preservative containing mercury) – ten years after the vaccine industry was asked by public health agencies and organizations to remove it (see statement at end of page). It was also reported that most manufacturers were having difficulty growing the novel H1N1 virus, suggesting that an adjuvant may be needed to “spare antigen” and to increase vaccine production.  Additionally, the CDC’s ferret studies suggest that the novel H1N1 virus is not as contagious as has been reported. 

Continue reading "Overview of SafeMinds Swine Flu Concerns" »

Age of Autism on The Interagency Autism Coordinating Committee

Money spiral Since we've run several posts about the IACC recently, We thought we'd provide you with an "at a glance" of many of our posts on the topic over the last year. (Remember, we have a Google search engine on the right sidebar below our ads.)

GRINKER'S STINKER: HIS WIFE RUNS THE IACC
Jan 15, 2008
By JB Handley
Who is Joyce Chung, MD?

According to the National Institutes of Mental Health, she’s the new “Autism Coordinator” and the Executive Secretary of the IACC. Let’s take a quick step back: when you read the acronym “IACC”, if you are anything like me, you wonder, “what the hell is that?”

NIMH Flip-Flops on Pivotal IACC Workgroup Meeting
Aug 25, 2008
By Kelli Ann Davis

Earlier this year, a “closed door” notice in the Federal Register announced an upcoming meeting of “four science workshops” tasked by the Interagency Autism Coordinating Committee (IACC) “to generate research priorities for the Strategic Plan” (SP). (Published by the Office of the Federal Register, National Archives and Records Administration (NARA), the Federal Register is the official daily publication for rules, proposed rules, and notices of Federal agencies and organizations, as well as executive orders and other presidential documents. It is updated daily by 6 a.m. and is published Monday through Friday, except Federal holidays.)

Autism Community Consensus Letter
Dec 11, 2008
By Jim Moody, Esq.The federal Interagency Autism Coordinating Committee (IACC) will meet this Friday, 9-4 at the Neurosciences Center (home of NIMH) in Rockville, Maryland.  This is a continuation of the November 21 meeting because there was not enough time to go through the substantial edits and additions (most of which were submitted by IACC member Lyn Redwood, Safeminds, and broadly supported by the community) required to finalize the Strategic Plan for autism research required by the Combating Autism Act. 

Continue reading "Age of Autism on The Interagency Autism Coordinating Committee" »

A Mother Delivers When the IACC Fails

Alex Swartz Last week, Katie Wright wrote about the IACC meeting that ended early, cutting off a young man with autism named Alex and his mother Elizabeth from presenting their comments. (Katie's post is below the jump, as a reminder.) The committee required public comments be presented prior to the meeting. The photo is of Alex holding the mic, as his mom had prepped him, helped him wait for several hours and she made sure he got his chance, even if it was only to appear in front of an empty room; the participants having decided to leave early, before Alex had his chance. Here is Elizabeth's letter and in .pdf. Thank you, Elizabeth. And most of all, thank you Alex.

July 13, 2009

Interagency Autism Coordinating Committee (IACC)
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Room 8200
Rockville, MD 20852

Dear Committee Members,

The following are the scheduled remarks for Elizabeth Emken, Vice President of Government Relations, Autism Speaks, for the July 15, 2009 IACC meeting:

Hello. I am Elizabeth Emken, I’m Vice President of Government Relations at Autism Speaks. This is my son, Alex Swartz. He has autism spectrum disorder.

We are here today to show the committee another example of a person living with autism. We all know that autism is a spectrum disorder, but in meetings like these, that are very orderly with scheduled speakers and tented name cards, the environment is best suited to those on the spectrum that can express themselves. Alex Swartz, my son, is on a different part of the spectrum—and he represents a significant number of individuals living with autism. Most individuals with autism cannot walk up to this microphone and tell you what’s on their minds. Most can’t talk about how they feel, and discuss their
hopes and dreams with you. Many couldn’t be here, in this room, for more than a few moments.

Continue reading "A Mother Delivers When the IACC Fails" »

Generation Rescue and Autism One Join Forces to Help Children

Astaire and rogers Managing Editor's Note: Ed and Stan, you can decide who's Astaire and who's Rogers. I think GR and AO makes for a great dance. KS

LOS ANGELES, C.A.

Generation Rescue and Autism One are delighted to announce their partnership to better meet the needs of the autism community in order to help children and educate parents and medical professionals. Based on shared values and each organization’s expertise the alliance will provide creative and innovative solutions to many of the autism, ADHD and chronic illness community’s most pressing problems.
 
Ed Arranga, executive director of AutismOne said “The possibilities are endless. We need a dream team to win and Generation Rescue’s crucial mix of education, analysis, outreach and inspiration immediately impacts the debate. Their commitment and passion provides the critical mass to help change everything.”
 
Stan Kurtz, president of Generation Rescue, echoes the sentiment. “I have always admired AutismOne.  We both advocate for child safety and share a common vision of care, treatment, recovery, and prevention. Together we will arm parents and professionals with the latest techniques on living a healthy lifestyle and educate how autism, ADHD and chronic illness are preventable and reversible.” 

Continue reading "Generation Rescue and Autism One Join Forces to Help Children" »

Age of Autism Comment of the Week

AOAFCongrats to Kevin Barry for the comment of the week on the H1N1 pandemic. 6,772,357,798 people on Earth, 429 deaths, from 94,512 cases, worldwide. How is this a pandemic?

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your address in the comments box at PayPal. 

AOAB

Age of Autism Comment of the Week

AOAF Congrats to our friend Lenny Schafer of The Schafer Autism Report who commented on Jake Crosby's post HERE on "what is disability?"

"Disability" is not a literary term open to subjective interpretation.  It is a forensic, legal term defined in documents like the DSM-IV for the parsing of government entitlements and insurance compensations.  Asperger Syndrome is not defined as a disability.  Those with Aspergers do not get Social Security Disability benefits.  They are not entitled to most state entitlement disability programs and are not qualified to park in disabled parking zones. Those with Aspergers ARE disadvantaged and deserve support and our advocacy for them, but not at the same levels for the disabled. Let us stop interchanging the term "disability" with "disadvantage".

Continue reading "Age of Autism Comment of the Week" »

Speaker Pelosi: Please Include Autism!

Gold star Yes, it's Friday in the middle of summer - but we're giving you an assignment, OK? Please call and fax Speaker Nancy Pelosi imploring her to include autism in the H.R. 3200 healthcare bill. Leave a comment here when you're assignment is complete and we'll give you a gold star. FREE -T-shirt to ONE COMMENTER.
 
"Health reform that does not stop autism insurance discrimination is unacceptable."
 
CALL 202-225-0100. And call. And call. And call.
 
FAX 202-225-4188 with the message and a photo of your child.  Don't have a fax machine handy?  Autism Votes (www.autismvotes.org) has a form makes it easy just like sending an email.  A fax machine is not required but once you press send a fax will be on its way to her office.  

Podcast on Autism One Radio: David Kirby and Mark Blaxill At DC Autism Briefing Today

Click HERE for the podcast on Autism One Radio.

The first photo is of David presenting, Mark is seated facing the attendees. The second photo is of Mark presenting. Waiting for updates from today's briefing by Reps. Carolyn Maloney (D-NY) and Christopher Smith (R-NJ) all week.  You can view the PowerPoint presentation in full HERE. The podcast will be available after the event at Autism One Radio.

Maloney presentation

Mark DC

Continue reading "Podcast on Autism One Radio: David Kirby and Mark Blaxill At DC Autism Briefing Today" »

UPDATE House & Senate RSVP List for Maloney Smith Autism Research Briefing

Rsvp Below is the updated list of 70 attendees for the Maloney/Smith autism briefing. We've included which members are part of the Coalition for Autism Research & Education.

Friday, July 17 at 9:30 AM 210 Cannon House Office Building, Washington, DC. Thanks for your calls, they worked!

Rep. Carolyn Maloney (D-NY) and Rep. Christopher Smith (R-NJ) are hosting a special briefing for Members of Congress and their Staff to discuss issues related to autism research and treatment. We hope that you will attend the briefing to learn about the changing dynamics of the autism debate, as you will find many in government and science believe this debate is far from settled.
(Details below the jump.)

*Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus = 19
 
*^Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus - who also sent staff to Sept. briefing = 12
 
**Co-Chairs – Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus

Are your representatives on the list? If not, please call them. White House Switchboard: 202-456-1414, Senate Directory Here, Congress Directory by State Here.  

SENATE
Sen. Tom Coburn (R-OK) – Will attend in person (?)
Sen. Orrin Hatch (R-UT) – Will send staff member

Continue reading "UPDATE House & Senate RSVP List for Maloney Smith Autism Research Briefing" »

Why Are Only 39 of 158 C.A.R.E Members Attending the Maloney Smith Autism Briefing?

Absent If you were a member of the Congressional Coalition for Autism Research and Education, wouldn't you make learning about the most recent developments in autism research, policy and treatment a priority? See briefing details HERE.

Please contact C.A.R.E. members from your state and ask them to attend personally or at least send a senior legislative staffer. White House Switchboard: 202-456-1414, Senate Directory Here, Congress Directory by State Here. Friday, July 17 at 9:30 AM 210 Cannon House Office Building, Washington, DC.

C.A.R.E. Member Attended '08 or RSVP '09 

Brady, Robert (PA) 08 
Castle, Michael (DE) 08/09 
Doggett, Lloyd (TX) 08 
Green, Gene (TX) 08 
Kline, John (MN) 08/09 

Continue reading "Why Are Only 39 of 158 C.A.R.E Members Attending the Maloney Smith Autism Briefing?" »

Unacceptable! Autism Excluded from H.R. 3200 Healthcare Bill! Call Speaker Pelosi Now.

Excluded By Shelley Hendrix Reynolds and Nan Cale

Whatever your thoughts are with regard to the national health reform discussion, whatever your party politics are, I want you to think about this.  Children with autism deserve appropriate health care coverage for their medical condition.  Some children in some places have access to that.  Most children with autism in most places do not. 

The health reform ship has sailed and autism insurance reform is not on it.

H.R. 3200 is currently in mark up and our hope of achieving autism insurance reform as part of the larger health reform initiative will require an amendment.  We can get that if we can be loud and generate thousands of phone calls into Speaker Pelosi's office over the next couple of hours.
 Here is how you can help:

1. CALL Speaker Nancy Pelosi's office at 202-225-0100 and tell her office that health insurance reform that does not stop autism insurance discrimination is unacceptable.

Continue reading "Unacceptable! Autism Excluded from H.R. 3200 Healthcare Bill! Call Speaker Pelosi Now." »

Fair Hearing Victory in California while Managed Care Organizations try and Deny Therapy (as usual)

Opportunity By K. Paul Stoller, MD, FACHM

The day after I testified in Sacramento at a “Fair Hearing,” because one of the Regional Centers was trying to deny services to a 9 year old boy with autism, a consumer watchdog group has filed a lawsuit against the California Department of Managed Health Care (7/1/09). The group alleges state regulators wrongfully allowed insurance companies to deny certain treatments for children with autism.

Now, in the case I testified, the Regional Center tried to convince the Hearing Officer that the boy they were denying services to had Tourette’s Syndrome because he had an occasional tic – never mind a renowned neuropyschologist said he had autism and that he has no social awareness or ability to interact with peers (symptoms that have nothing to do with Tourette’s Syndrome).

Tourette’s Syndrome does not qualify children for assistance from the Regional Centers.

Continue reading "Fair Hearing Victory in California while Managed Care Organizations try and Deny Therapy (as usual)" »

Drop the Donuts, We Ordered Size Medium Ts!

AOAF We just re-ordered the Age of Autism T-shirts and added size Medium and XXL. So you can either drop the donuts or pick up a couple of dozen depending which size you want!  If you're waiting for a T now, we should have our order in within 2 weeks.

Taking a page from public television, we'll happily send you a t-shirt as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? If you've made a donation and have not received a T-shirt, please email me KimStagliano@gmail.com with your mailing address and size, M - 2XL.

And we're giving one shirt away each week to our "commenter of the week" - make sure you use your proper email address on your comment so I can contact you. Click past the jump to see the back of the t-shirt.

Continue reading "Drop the Donuts, We Ordered Size Medium Ts!" »

Age of Autism Comment of the Week

AOAF Congrats to DIANE who commented on
THIS post on Gov. Jay Nixon of Missouri:

I love his passion. I love that he tells it like it is about the insurance companies' position. (I just KNOW there's a special place in hell for the insurance executives - acutally I could name a few). But i still wanna hear someone in government talk about medical treatments for our kids' medical issues. From my personal experience, glutathione ivs are far more effective than a "therapist" with 3 hours of ABA training feeding my kid m & m's when she touched her nose upon command.

Diane, email me at KimStagliano@gmail.com with your address and if you want M, L or XL.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult M, L, XL or 2XL and include your address in the comments box at PayPal. 

Continue reading "Age of Autism Comment of the Week" »

The Insurance Industry Doesn't Want It!" Gov. Jay Nixon on Insurance for Autism

Watch this six minute video on Governor Jay Nixon of Missouri present angrily and eloquently on the failure of the autism insurance bill passage in his state. Paraphrasing, "We have coverage for Alzheimers..."  "The industry has survived other mandates. Mammograms, prostate screening."  If the video doesn't download on AoA for you, click HERE to go to You Tube. 

Thank you, Governor. And thanks for keeping the insurance industry and weak politician's feet to the fire.  Thank him yourself HERE.

Thoughtful House Responds: Sunday Times Defies Press Complaints Decision on MMR Autism Stories

Sunday times Managing Editor's Note: Scroll down to read email correspondence as well.

Sunday Times Defies Press Complaints Commission

Paper Notifies Media Oversight Agency that it Will Not Remove from its Website False Stories about MMR and Dr. Andrew Wakefield  
 
(Austin, Texas) – The Sunday Times of London, a Rupert Murdoch News Corporation paper, has defied direction from the UK’s Press Complaints Commission (PCC) to remove from its web site controversial stories it has failed to substantiate, which allege Dr. Andrew Wakefield “fixed” data relating to the MMR vaccine.  The reports by correspondent Brian Deer are the subject of an extensive complaint filed with the PCC by Wakefield.

The PCC last week issued an unpublished directive that the stories be removed (see below).  They were taken down immediately, unannounced, but the Sunday Times has now defied the PCC by putting the stories back online after complaining Dr. Wakefield publicly announced the PCC’s directive. 

Continue reading "Thoughtful House Responds: Sunday Times Defies Press Complaints Decision on MMR Autism Stories " »

Autism Speaks: Call Speaker Pelosi to End Autism Insurance Discrimination

Autism votes Senator Reid's mailbox is full and all lines are busy, I'm on hold right now (11:36am, Kim)  Keep Calling!

Managing Editor's Note: Click HERE to see the new TV ad campaign from Autism Speaks calling for an end to insurance discrimination for autism. Below is an action alert from AS asking you to please call and email Speaker Pelosi and Majority Leader Reid.  Sample script included. Please act now.  KS

Today, Autism Speaks has launched its first national television advocacy campaign. 
 
Our ad, entitled “Neighbors,” depicts the consequences of insurance company discrimination against individuals with autism and calls on the American public to urge Senate Majority Leader Harry Reid (D-NV) and House Speaker Nancy Pelosi (D-CA) to end autism insurance discrimination in the upcoming health reform legislation.

We need YOUR help to make this a reality!  “Neighbors” will be broadcast on CNN, MSNBC and CNBC, reaching millions of informed and politically active Americans.  Watch our TV Ad. Then, ensure your voice is heard by calling Majority Leader Reid and Speaker Pelosi today! HERE IS HOW YOU CAN HELP!

1. CALL SPEAKER OF THE HOUSE NANCY PELOSI & SENATE MAJORITY LEADER HARRY REID AT THE PHONE NUMBERS BELOW!

Speaker Pelosi: (202) 225-0100

Majority Leader Reid: (202) 224-3542

Continue reading "Autism Speaks: Call Speaker Pelosi to End Autism Insurance Discrimination" »

Restraint and Seclusion of Special Ed Students in Schools: End the Abuse

Listen Tuesday, July 7 at 12:00 noon ET

Autism One: A Conversation of Hope
Host: Teri Arranga
On the VoiceAmerica Health and Wellness Channel Click HERE.

Restraint and Seclusion of Special Ed Students in Schools: End the Abuse

From a National Autism Association release:  "In May of 2009, a government report listed 19 state governments that have yet to regulate the practices of restraint and seclusion in schools.  The report also cited multiple cases of improper restraint and seclusion resulting in death, injury, and emotional trauma of children with varying disabilities."  Lori McIlwain, NAA chairperson of the board, Phyllis Musumeci, founder of Families Against Restraint and Seclusion, and Sharon Boyd, founder of Parents in Action, join Teri for this discussion about the scope of the situation and what you can do.  Please see also the NAA site HERE.

Videos of the Maine CDC Autism Conference

MaineCDC  By Ginger Taylor

In May, I told AoA's readers [HERE] about the Maine CDC's Autism Conference where GI treatment, and environmental causes, including vaccination, were discussed.  The videos of the conference were due to be posted on the Maine CDC's web site by the end of June; however, after the conference Maine CDC discovered that a new state law had been passed that prevented them from being made available on the state's site before being closed captioned so that they were ADA compliant. 

As they had not budgeted for close captioning, it took some time to find the funding and some more time to actually get the job done, and well... I got impatient.

So this week I posted the videos to Adventures In Autism in six parts:

  • Welcome and introduction by Dora Ann Mills, MD, MPH, Director, Maine Center for Disease Control and Prevention, State Health Officer, featuring Becky Grant-Widen, board member of the National Autism Association. [HERE]
  • Autism 101, and overview of autism and diagnostic measures by several Maine developmental pediatricians. [HERE]
  • Gastrointestinal and Nutritional Co-Morbidities in Autism by Tim Buie, MD, Pediatric Gastrointerologist, Massachusetts General Hospital, Harvard Medical School [HERE]

Continue reading "Videos of the Maine CDC Autism Conference" »

Winner: Nourishing Hope

NourishingHopeCoverShadow Congratulations to Katie, 21 with autism and interested in the book, according to her comment.  THE CONTEST IS CLOSED.

Katie send an email to kimstagliano@gmail.com with your mailing address.

About Nourishing Hope for Autism: Biomedical intervention is one of the most promising areas parents have to find hope for recovery. It begins with diet. Autism is treatable.

Nourishing Hope for Autism is an autism diet book for parents that provides the scientific explanations for why and how autism diets work to help recover children from symptoms of autism. It shows how to successfully implement diets and cook creatively for families - even picky eaters! Used by parents and autism physicians, this book gives practical steps for dietary intervention, a roadmap for getting started as well as evolving and customizing the varied approaches.

Nourishing Hope is:

1. The first biomedical autism diet intervention guide for parents and physicians
2. A practical application of diets and cooking instruction
3. In depth research and science backed literature
4. The first and only autism cooking class DVD on the market
5. A book and DVD specifically created by a veteran Defeat Autism Now! (DAN!) Practitioner

Learn about the critical connection between the nutrients that go into the digestive system of the child with autism and the impact they have on the child's brain. Parents are using this teaching today to bring about real recovery results:

* Improved digestion

* Reduced gastrointestinal pain

* Less rash or eczema

* Physical pain relieved

* Aggressive behavior ceases

* More language

* Ability to focus

* Sleeping through the night

* Making eye contact

* Easier toilet training

About the author: Julie Matthews is a leading US autism nutrition expert and Defeat Autism Now! (DAN!) Practitioner helping parents worldwide find hope and healing for their children on the spectrum.

As demonstrated by pediatricians, scientific data, and parental experience, autism diets can help relieve some of the symptoms of autism. Julie has educated over 10,000 parents and clinicians at leading autism conferences about autism diet, nutrition, supplementation, enzymes, probiotics, meal planning and healthful cooking. She effectively guides parents as they apply autism diet and nutrition intervention for their child as a complement to behavioral and other conventional treatments. Through her autism nutrition practice, Julie provides one-on-one parent counseling, an online resource center, and autism diet intervention tools. She welcomes families from diverse backgrounds from cities, suburbs, towns and rural areas in the US and abroad. Visit http://www.nourishinghope.com/.

Age of Autism Comment of the Week

AOAF Congrats to "Apple Bottom Genes", our commenter of the week.  (S)he commented on THIS post: Maybe the problem is that genes are a shortcut for discussing molecular biology in detail.  The fact of the matter is that genes do nothing - absolutely nothing.  They are a string of nucleotide base pairs that sit there and do zilch.  Ribosomes have to come along and translate that string of nucleotides into a linear strand of amino acids.  When that line of amino acids folds up into a three-dimensional form, well then you've got something - a protein.  Proteins do everything.  Genes do nothing.

If you're a girl, is it because you have XX chromosomes?  No.  You're a girl if you had early exposure to XX gene products AND you lacked exposure to other proteins (namely the Y gene products).  As proof (and this experiment has been done) if you take an XX mammalian zygote and allow it to develop in the presence of testosterone, the embryo becomes a boy.  You can't tell the XX zygote is a boy by looking at its DNA.  You also can't determine how it became a boy by looking at its DNA.  You'd have to understand the environmental factors to know what happened and why (i.e. that someone added testosterone to the developing embryo).

Continue reading "Age of Autism Comment of the Week" »

Blast from the Past Post: MESSAGE BOARD BUZZ. Autism Speaks Selects Eric London?

SleestakManaging Editor's Note:  I wrote this post on August 17, 2007 (before we launched AoA) about Eric London and Autism Speaks. And now he's joining his colleagues at ASF. Mazel Tov and mind the Sleestaks. My condolences to the Jackson family. Kim

Scenario A) Mrs. Smith? My name is Michael Jackson. Oh, that's so lovely. Thank you! Yes, I'm so glad you enjoyed my songs in the 1980's. Well, you see, the thing is, speaking of "Beat It" I'm soooooo excited to tell you that I will be Johnny's cubby scout leader this year, and our first trip is to Neverland Ranch to study the night time habits of the habitual bed sharer!

(So we at Rescue Post ask, are you nervous, Mrs. Smith? Oops! Careful not to pull Johnny's arm out of its socket as you yank him away from Mr. Jackson and drag him home to safety!)

Scenario B) "Like, um, hi! I'm, um, Lindsay Lohan. Welcome to the DARE 2007 Just Say No (sniff, sniff, anyone got a tissue?) conference."

(Feeling confident, Mom and Dad? You'd better hide your twenty dollar bills.....)  Now try this one on for size:

Scenario C) Eric London, psychiatrist and founder of NAAR, is about to be put in charge of alternative treatment research for Autism Speaks. 

Sorry, but that one just might be true.

Continue reading "Blast from the Past Post: MESSAGE BOARD BUZZ. Autism Speaks Selects Eric London?" »

A "Refrigerator Mother" Adult with Autism Speaks Out

Open refrigerator Managing Editor's Note: It has been my pleasure to get to know Roger Kulp, an adult with autism. Here he tell us in his own words what autism has meant and done to him. If you can offer a referral to a primary care physician (Albuquerque area) who would assist him, one who understands that autism is not simply a behavioral diagnosis and can manage his care and help him get to The Cleveland Clinic, please do so in the comments.  Thank you readers. And thank you, Roger. 

By Roger Kulp

Kim,

I have been interested in trying to contact you for quite a while. If you want to  publish this email at AoA I give you permission to do so.Actually this is more of a cry for help than anything else.

There is a lot that I don't like about AoA,but what bugs me the most is the fact you concentrate exclusively on children.There is this whole mindset that there were no autistic children who ever had severe biomedical issues, mitochondrial disease, inflammatory disease,what have you before there was thimerosol,or the current vaccine schedule in the late 1980s.When there were always autistics who had these problems, we just didn't recognize them.

As we have discovered that these diseases exist alongside autism,and may even cause it,the response should have been "Yes,let's take care of the children,but let's try to find out how many  AUTISTIC ADULTS  are out there,who have been suffering with these diseases for years,but have never been diagnosed."

Especially ,since we now know,that in many cases,it isn't so much what is  in  the vaccines,but what the shock of receiving so many vaccines so early does to the children,and that the same sort of shock can occur in unvaccinated children,who have suffered acute infection,as infants or toddlers.

This is vaccines,but it is a universe removed from mercury and thimerosol.Babies were always getting acute infections,and a lot of those who did not die developed autism.Only now do we know this.

I had acute bacterial meningitis with pulmonary complications,at five months of age.

Continue reading "A "Refrigerator Mother" Adult with Autism Speaks Out" »

Legislation Introduced to Require First Comparative Study of Vaccinated vs. Unvaccinated Populations

Knowledge is power

EDITOR'S NOTE: Rep. Carolyn Maloney of New York, one of the best friends autism families have in Washington, has just reintroduced the bill to authorize a study of health outcomes in vaccinated vs. never-vaccinated Americans. We at Age of Autism have a particular interest in this bill, which is sometimes called the Amish Bill for the reporting we've done on the apparently low incidence of autism in less-vaccinated populations like the Amish (HERE). The list of co-sponsors appears to be growing, and includes a Kennedy and the Chair of the House Science and Technology Committee. Stay tuned, and keep up the pressure. -- Dan Olmsted

WASHINGTON, DC – MALONEY REINTRODUCES BILL TO STUDY NEVER-VACCINATED

Reps. Carolyn Maloney (D-NY) and Christopher Smith (R-NJ) have introduced the “Comprehensive Comparative Study of Vaccinated and Unvaccinated Populations Act of 2009,” HR 3069, (HERE) legislation that would require the Secretary of Health and Human Services to conduct a comprehensive, peer-reviewed, comparative study of vaccinated and unvaccinated populations, which has never before been completed.

“Vaccines have been instrumental in reducing the incidence of many once-common diseases, but we owe it to parents and children to study and resolve the questions that have arisen over the possible link between vaccines and neurological disorders,” said Maloney.  “What is ultimately needed to resolve this issue is a comprehensive national study comparing outcomes between vaccinated and unvaccinated children.  As the most scientifically advanced country in the world, we should be jumping at the chance to resolve the questions that have been raised.  Parents deserve answers, and children deserve no less than absolute certainty and safety.” 

Continue reading "Legislation Introduced to Require First Comparative Study of Vaccinated vs. Unvaccinated Populations" »

Dan Mulvaney, Adult with Autism, Graduates (New York Times)

Dan mulvaney Congratulations to our dear friend and contributor Barbara Fischkin, her husband Jim Mulvaney and to recent high school graduate Dan Mulvaney. Read the full article in the NYT HERE.

The invitation for Dan Mulvaney’s graduation Sunday showed a burly young man with a hipster’s goatee wearing a graduation cap (courtesy of Photoshop) and holding a real striped bass he caught in the bay behind Long Beach High School.

It read: “ ’Twas said that by teaching a man to fish you feed him for a lifetime.

“Dan Mulvaney has learned to fish, learned to cook and accomplished many things. Dan is ready to take on the world. Join us in celebration of his graduation, with honor, from Long Beach High School.”

It concluded: “Casual cuisine, beach-friendly dress code, indescribable pride.”

Age of Autism Comment of the Week

AOAF Congrats to "Linda", our commenter of the week.  She commented on THIS  post: When my son was about 13 months old he was given the measles vaccine, within days he had diarrhoea, which went on until he was 13 years old!!  I was told I was neurotic by our doctor until eventually, after 12 years, the Children's hospital (who had been treating Adam for 'tummy ache') did tests and found out he had Crohn's disease!!  I didn't like the treatment we had had, or the steroids Adam was taking, and I found a Kinesiologist (by sheer fluke) who treated Adam for 3 months, changed his diet, weaned him from his steroids & miraculously my son was back!! He grew 13 inches and gained 30lbs in 4 months & now fitted in with his peer group. He is now 26 years old and loves life!!!My point is: Vaccines in babies cause untold problems. Wait until they are a little older and maybe their immune systems are better equipped to deal with what doctors insist will keep them healthy!Our Kinesiologist was adamant that Autism could be safely treated with Kinesiology.Best regards. A mother who would do things so differently if I could go back in tim.

Linda, email me at KimStagliano@gmail.com with your address and if you want L or XL.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult large or x-large and include your address in the comments box at PayPal. 

Click past the jump to see the back of the t-shirt.

Continue reading "Age of Autism Comment of the Week" »

Toxic Toys... Not Child's Play!

Toxic toys By Lisa Hunter Ryden

Last year, I discovered an interesting website which lists the toxic chemicals for various toys, and was able to do my holiday shopping for nontoxic toys using this website. In early December, I read a newspaper article that captured my interest because one in three of the children's toys tested were found to have significant levels of toxic chemicals including lead, flame retardants, and arsenic. The article went on to say that some of the toys on store shelves this holiday season would be illegal to sell by early next year. This left me feeling angry, so I posted this article far and wide to all my yahoo groups. Having a son who has previously tested positive for seven metals in his urine toxicology screen, with the highest being lead and mercury, I was even more outraged.

One of the toys which he has used for hours, and takes with him everywhere is the Leapster Learning Game System by LeapFrog. We found that the carry case and the toy both contained high levels of toxic metals.  I first tried to return them to Target.  While the store was understanding, they said that the best I could do was exchange them for another Leapster because I had no receipt and they are several months old.  So, I decided to send the company a letter.  Here is what I wrote:

Dear LeapFrog Customer Service,

We have successfully used your products with both of our sons, ages 4 and 8.  Recently, however we discovered the Leapster 2 toys and carry cases were contaminated with high levels of lead, arsenic, mercury, bromine, and chromium.
 

Continue reading "Toxic Toys... Not Child's Play!" »

A of A Contest: Win a Copy of Nourishing Hope For Autism by Julie Matthews

NourishingHopeCoverShadow We have a copy of Nourishing Hope for Autism Nutrition Intervention for Healing our ChildrenTo enter, leave a comment with your email address in the email field.

If you have trouble commenting, send an email to kimstagliano@gmail.com.  Good luck!

About Nourishing Hope for Autism: Biomedical intervention is one of the most promising areas parents have to find hope for recovery. It begins with diet. Autism is treatable.

Nourishing Hope for Autism is an autism diet book for parents that provides the scientific explanations for why and how autism diets work to help recover children from symptoms of autism. It shows how to successfully implement diets and cook creatively for families - even picky eaters! Used by parents and autism physicians, this book gives practical steps for dietary intervention, a roadmap for getting started as well as evolving and customizing the varied approaches.

Nourishing Hope is:

1. The first biomedical autism diet intervention guide for parents and physicians
2. A practical application of diets and cooking instruction
3. In depth research and science backed literature
4. The first and only autism cooking class DVD on the market
5. A book and DVD specifically created by a veteran Defeat Autism Now! (DAN!) Practitioner

Learn about the critical connection between the nutrients that go into the digestive system of the child with autism and the impact they have on the child's brain. Parents are using this teaching today to bring about real recovery results:

* Improved digestion

* Reduced gastrointestinal pain

* Less rash or eczema

* Physical pain relieved

* Aggressive behavior ceases

* More language

* Ability to focus

* Sleeping through the night

* Making eye contact

* Easier toilet training

About the author: Julie Matthews is a leading US autism nutrition expert and Defeat Autism Now! (DAN!) Practitioner helping parents worldwide find hope and healing for their children on the spectrum.

As demonstrated by pediatricians, scientific data, and parental experience, autism diets can help relieve some of the symptoms of autism. Julie has educated over 10,000 parents and clinicians at leading autism conferences about autism diet, nutrition, supplementation, enzymes, probiotics, meal planning and healthful cooking. She effectively guides parents as they apply autism diet and nutrition intervention for their child as a complement to behavioral and other conventional treatments. Through her autism nutrition practice, Julie provides one-on-one parent counseling, an online resource center, and autism diet intervention tools. She welcomes families from diverse backgrounds from cities, suburbs, towns and rural areas in the US and abroad. Visit http://www.nourishinghope.com/.

Age of Autism Commenter of the Week

AOAF Congrats to "Sarah", our commenter of the week.  She commented on THIS post: Does it strike anyone else as ironic the lengths that school systems go to protect a child who is deathly allergic to peanuts but at the same are quick to jump on the drug-the-kids bandwagon even though these drugs can be just as toxic? yet this is acceptable? ...it's just so insane

Sarah, please email me at kimstagliano@gmail.com with your address and if you want L or XL.

Didn't win but still want a T-shirt? Taking a page from public television, we'll happily send you one as our thank you for making a donation to A of A via our PayPal donate button.  You choose the donation amount. OK? Please tell us if you want an adult large or x-large and include your address in the comments box at PayPal. 

Click past the jump to see the back of the t-shirt.

Continue reading "Age of Autism Commenter of the Week" »

CHOP Reports Many Flu Deaths Actually Bacterial Infection Deaths

Bac pneumonia Read the full article from Philly.com HERE.

With four major books devoted to the topic in the last decade, most people have now heard of the 1918 flu pandemic, which killed nearly 50 million people around the world.

What they may not know, however, is that very few of those victims died of the flu itself.

Continue reading "CHOP Reports Many Flu Deaths Actually Bacterial Infection Deaths" »

So Much for the Dream Gene-y

Geneie From the New York Times:

One of the most celebrated findings in modern psychiatry — that a single gene helps determine one’s risk of depression in response to a divorce, a lost job or another serious reversal — has not held up to scientific scrutiny, researchers reported Tuesday.

The original finding, published in 2003, created a sensation among scientists and the public because it offered the first specific, plausible explanation of why some people bounce back after a stressful life event while others plunge into lasting despair.

The new report, by several of the most prominent researchers in the field, does not imply that interactions between genes and life experience are trivial; they are almost certainly fundamental, experts agree...