Medwatcher Japan "Joint Statement 2018 for the Victims of HPV Vaccines"
Dog Gone It! Vaccines Do Not Cause Autism!

Autism’s 1 in 59: From Breaking News to Heartbreak

Breaking newsBy Cathy Jameson

My day started early Thursday morning.  Up and out the door and on the go from before 7am to almost 2pm, I finally had time to sit down mid-afternoon.  After reheating some leftovers for a late lunch, I opened the usual websites - my email, AofA, and Facebook.  Within minutes of sitting down, I started getting emails.  Have you seen the new numbers??  New numbers?  The autism numbers!  Oh, that's right.  Usually published in early April, I, like many other parents, had been waiting for them to be shared.  Go look, but be prepared.  It’s not good.  Scared to find out, I jumped over to a few news sites.  There they were.  Considered breaking news, the new autism rate had been announced that morning: 1 in 59.

Cj 4 28 1

Image:  Twitter

The ‘new’ numbers aren’t so new though.  Based on data from years ago, and from only a handful children in only a handful of states, a more accurate rate is likely much higher. 

Cj 4 28 2

Image:  Talk About Curing Autism

Those numbers – they really don’t add up.  I know that.  Other parents like me know that.  But the general public doesn’t.  Unless they go looking for the information themselves, they won’t know how tragic it was for me to hear that newly published rate.  Too tired and sad to do anything fruitful, I looked for other stories to read.  Closing the news websites down, I kept the internet open for a few more minutes.  Having less than an hour before I had to leave the house again, I made sure to read stories that were completely unrelated to autism. 

When I picked up my younger kids from school later that afternoon, they asked how Ronan’s day was.  They were happy to hear that he had a really good day.  Next, they asked me how my day was.  I told them it was going pretty well until I read the news.  Curious about what story changed my attitude, I said, “Well, the new numbers came out today.”  Knowing which numbers I was referring too, Ronan’s younger brother said, “And??”

“1 in 59.” 

His eyes widened, “Wow.  That’s a lot.”

“It sure is,” I said, “But it’s even higher.” 


Confused, Willem asked, “What do you mean?” 

“Remember that the CDC uses data from years ago.  For some reason, they can’t, or won’t, count all the kids who have autism today.  Younger kids are not included in the stats, so it’s got to be more than what was just reported,” I explained. 

Curious, he asked, “Why won’t they count everyone?” 

I told him, “Good question.  I have some theories – they’re afraid to, they’re told not to, they’re too lazy to…”

He interrupted, “Can you imagine if people really knew how many kids really had autism??”

Smiling at how quickly he understood, I said, “Bingo.  I cannot even wrap my head around it.  People at the CDC are called the experts and should know everything about diseases and disorders that affect kids in the US.  They claim they are in charge of prevention, too.  (The full name is Center for Disease Control and Prevention.)  But even they are left scratching their heads wondering why the incredible increase in autism cases over the years.”


Willem matter-of-factly added, “Well, we know what causes autism.” 

Glancing back at his brother, I said, “Yep.  We do,” and then added, “And you know what, Willem?” 


“What, mom?” he asked.

“You know a heck of a lot more than some adults do,” I said proudly. 

He said, “That’s good…but that’s kinda sad too, you know.”

“I know,” I told him.  “It’s actually a little pathetic.  Not about you knowing more – that’s going to help as you and brother get older.  But the other people?  It’s ridiculous how they’ve mislead the public about the rise in autism and what we know to be a cause of it.” 


Looking back at his sisters, he said, “Yeah, they’d rather we celebrate it than make it stop.”

“Yep.  That’s called turning a blind eye,” I said, “and I have a feeling that’ll continue to happen.”      

He agreed. 

Cj 4 28 3

                                                                                       Image:  USA Today


Willem’s an insider looking out at what the world refuses to see—that vaccines can result in autism and that autism is here to stay.  Since he knows that and since he sees the real-live struggle his brother lives through daily because of autism, he has every right to feel as frustrated as I do. 

My 13 year-old has more of a clue than our paid government ‘experts’ do.  If they ever fully understood just how much of a crisis autism is, I’d hope that the public would begin to pitch in a little bit more than know to do now.  I really can’t expect them to do too much yet.  That’s because those who could and should be guiding us about the autism epidemic are spoon-feeding the public only bits and pieces of what they feel is important.  I know that some people in the autism field prefer not to use that word crisis as a description of the disorder, but when you think of how many children are diagnosed with it, and when you realize how costly autism is, and also factor in how paralyzing it can be to families, it is a crisis.  It’s abysmal and has been allowed to be normalized. 

Had groups, like the CDC, used their influence to curb its prevalence instead of ignore it, maybe we wouldn’t be here with 1 in 59 with autism.  But, here we are in 2018 with 1 in 59 and rising

Cj 4 28 4

Image:  SafeMinds

In keeping vocal about some of the negatives that autism can bring – seizures, loss of speech, loss of typical development, and loss of the chance to be independent – I don't fight just for my child.  I fight for other children and for their families, too.  It isn’t easy to fight for someone else, but with grace and more hope than I think our government agencies will ever offer autism families, I will continue to do that.  It can be emotionally draining, but I do it so that no other child has to experience a childhood like my son has had to.  I do it so that the siblings can be relieved of the trauma that’s been brought to their lives, too. 

With the help of an army of parents, many of them members of autism support groups, I’ve been able to keep going forward.  Run by parents, and often funded by friends and families, you won’t see the kind of dedication these groups offer from our government or its agencies.  Why would you when what’s happened to our children means nothing to those agencies?  If in the future you find yourself needing support for a disorder that hasn’t been given the attention it should, do check out the groups* who do recognize that people need real help right now.  They get it.  They got the connection a long time ago.  Over the years as the rate keep climbed higher and higher, they never backed down from helping families.  They want to help.  So, find them.  Lean on them.  Use their resources.  They’ll help.  Autism is heartbreaking, but with the right people by your side, you don’t have to go it alone. 

Cathy Jameson is a Contributing Editor for Age of Autism.

https://www.youtube.com/watch?v=SCnsEy0tpbw

* There are quite a few to check out, but Cat’s go-to groups for autism resources are:  Generation Rescue  and TACA

Comments

Feed You can follow this conversation by subscribing to the comment feed for this post.

Richard

I am an adult in my 30s who was diagnosed with Asperger's when I was five. I am opposed to the neurodiversity movement. I also rarely mention my Asperger's diagnosis to anyone outside of online settings, because I like people to know me how I am and not to look at me through the lens of their preconceptions of someone with Asperger's. I know the neurodiversity movement thinks it's about increasing acceptance of autism and making it less likely people such as myself wouldn't want share their diagnosis in public, but to me it has the opposite effect, people associate "Aspies" with the behavior of the neurodiversity movement which I want no part of.

I know I'm lucky that I am able to do this, I know the majority of autistics can't pass for neurotypical as I can. I can only because of various natural remedies and paying close attention to what I put into my body, including limiting EMF exposure, most people just know me as just a bit weird, mostly introverted, and a bit obsessive about what I put into my body. I was in a much worse state ten years ago before starting to figure this stuff out.

For me personally, I'd never be able to buy into the neurodiversity movement's core ideas, because as far back as I can remember, it always felt like "something wasn't right". For me, recognizing that has been key, I'm not cured but have been able to make things a lot closer to right than they would be if I was in denial. Organizations focused on other causes manage to raise awareness without trying to say there's no problem, imagine if an organizations of diabetics suddenly started saying that efforts to prevent or cure diabetes were an insult to diabetics, etc.

As I see it, autism is only the tip of the iceberg. Americans (and people in many other places) are getting sicker and sicker largely because of the toxic mess we're living in. Of course supports and services are good, but the truth is it's only possible to maintain supports and services for those with issues if there's enough healthy people left in society to do the extra needed to lend a hgelping hand to those who struggle, and I think we're seriously getting closer and closer the point where there won't be enough healthy people left.

Tim Lundeen

@Hans Litten

Yes, I think the true rate of autism for boys born this year will be about 20%, if we follow the historical pattern and see rates double every 6 years. In 2006, the rate was 1/21 (DSM-5), so today, 12 years later, it will be 4x that, or about 20% -- 1 in 5. Even if we don't get that high an autism rate, the percentage of seriously injured boys will be much higher.

We continue to increase the poisons we give our kids, most noticeably today by vaccinating pregnant mothers. Glyphosate residues in food/meat are increasing as well.

Hans Litten

See vaccines at work - & their true function :

https://dailytimes.com.pk/234311/polio-vaccine-allegedly-kills-3-infants/

PESHAWAR: Three infants died on Monday after allegedly receiving Inactivated Polio Vaccine (IPV) in Peshawar.

According to the family members, the health of 12-month-old Rehan, 4-month-old Shehram and 1-month-old Aliyan deteriorated after they were injected polio vaccination which eventually caused their death.

The Health Ministry, however, rejected the family’s claims saying that the only reaction caused by IPV is anaphylaxis but it happens soon after injection.

“The chance of this child getting anaphylaxis is minimal because he received IPV previously during routine immunisation,” the ministry said in a statement.

The family has also requested the government to take notice of the incident, while the health ministry has formed a committee to probe into the matter and present a report over the incident within 48-hours.

Aimee Doyle

@Carolyn M - "The high functioning types who want to normalize autism but still want funding for services tend to be the NDs (neurodiverse). Commenters should probably refer to those individuals as NDs, in order not to alienate those high functioning individuals (and their families) who do not believe that autism is a "gift" or a "superpower".

You make a good point. I realize that not everyone who has Asperger's or High Functioning Autism is a neurodiversity proponent. And I certainly don't wish to alienate anyone. However, I do wish individuals on the spectrum, who do want a cure, would make their voices heard - to the ND movement, to the media, and to parents of children on the spectrum. With a couple of exceptions (e.g. Jonathan Mitchell), I never hear from individuals with autism who are opposed to the ND movement. And I follow autism issues very closely.

Hans Litten

It certainly is not due to better diagnosis.
The doctors who gave my child her diagnosis couldn't have managed to hit a barn door with a banjo.
The doctors all know what is happening, and none of the criminals speak out.
And the doctors are ducking the vaccines for themselves and their own children.
Autism is unmistakable & blatantly obvious.
Look at the ingredient list of any single vaccine and its pretty obvious these concoctions are harming every recipient , every single time. And then additionally we have hidden nanoparticles (lets call them the Gatti ingredients for simplicity).

I suspect the Seneff projection is coming true.

2008 1 in 50 (autism projections rising in increments of 9 - guess_estimate)
2010 1 in 41
2012 1 in 32
2014 1 in 23
2016 1 in 14
2018 1 in 5 Could this be the true level of vaccine damage today ?


pharmster

it is more than 1 in 59. the rates are now high enough that they need to start covering them up.

instead we are being told how deadly the flu is.

@Mark and Gtfr

I have recently met a child who is labelled as autistic. In other professional's opinion, he does not have autism, so much as severe OCD and possibly ADHD. He is 12. I believe there are some misdiagnosed children.

Jeannette Bishop

@Carolyn, thank you for the link to Dr. Lyons-Welier's post! Apparently the CDC didn't like the DSM 5 changes either, nor, if I'm reading this right, are they finding the DSM IV entirely adequate for their needs ...

"(2) They had a committee of experts review the cases of people at the 11 monitoring sites – any ONE of the members of the committee could rule OUT a case of ASD if they thought the DSM-IV criteria did not apply, or if other diagnoses better explained the child’s condition. I review the importance of understanding the difference between co-occurrence and co-morbidity in 'The Environmental and Genetic Causes of Autism'. A child with Down’s syndrome, for example, could also have an autism diagnosis. ASD can occur to any human brain with other recognizable conditions. In some cases, where biological pathways overlap (e.g., seizures), the co-occurrence is true co-morbidity, but seizure disorder would not replace a diagnosis of ASD They did not review all non-ASD diagnoses to allow anyone ONE member of the committee to RULE IN non-ASD diagnoses and false negative diagnoses of ASD.

"So the rates to report for 2014 prevalence (reported in 2018) are at least' 1 in 59 (DSM-IV), and 'at least' 1 in 29 (DSM-5)."

4Bobby

I was sad to see the new numbers were still being spun with the “It may be due to better diagnosing.” Still using that line after all these years.

Carolyn M

I have not completely read the prevalence report yet, but here is an interesting column concerning that report:

www.jameslyonsweiler.com/2018/04/27/us-cdc-autism-rate-at-least-1-in-29-dsm-v-1-in-59-dsm-iv/

Carolyn M

Granny Blue, I believe you - nothing about autism is easy, no matter where that individual is "on the spectrum". I know people with high functioning autism also have challenges. I hope things improve for your grandson.

The high functioning types who want to normalize autism but still want funding for services tend to be the NDs (neurodiverse). Commenters should probably refer to those individuals as NDs, in order not to alienate those high functioning individuals (and their families) who do not believe that autism is a "gift" or a "superpower".

Shelley Tzorfas

For those of you who believe that "High Functioning Kids" aren't really Autistic, you do not see how hard it is for them to function, many come home from their jobs and vomit all over the house, some scream and cry. Some go into a man-cave and cannot step foot outside for 2-3 days. Many get perpetually fired even though they have a job coach and the company knew in advance that they were Autistic when hired. Most are unemployed and Underemployed. Most will not be able to live on their own, marry or have a family. Many cannot drive a car or even take public transportation and are hugely dependent on their Aging Parents.

For those who believe Autism is over diagnosed, it is quite the Opposite. The DSM 5 siphoned off much of the features of Autism to create Social and speech categories. Parents were relieved to get a Speech or Social Diagnosis rather than anASD one. The parent will go on to say that her child can only eat 4 foods, throws fits in stores, cannot be exposed to certain lights or sounds, doesn't come when his name is called, is unable to keep or have a friend, has violent tantrums in the house. Too bad for the parents that did not get the proper diagnosis because if they had the correct one-there would have been a great amount of early interventions and therapies that might have resulted in the child no longer being diagnosed with Autism as they grew up. I have read that 1 in 3 toddlers have Speech therapy, Occupational, or Physical therapy-just to walk or talk!

Aimee Doyle

@Granny Blue -

I empathize with your grandson's struggles, and I do realize that those who are higher-functioning have needs as well. I certainly don't think those with Asperger's or high-functioning autism should be "drummed out of the corp". I don't want to negate your grandson's struggles, and I wouldn't say his autism "is nothing" compared to my son's experience. And I certainly care about your comments and your experience and want you to continue to participate in the AoA community.

But I have become bitter about the neurodiversity movement, who seem to have cut my son and those with severe autism out of the larger autism community. In my experience, at autism events, my profoundly affected son is ignored by those with Asperger's and HFA, even when he has tried hard to engage them. I have never heard of anyone higher on the spectrum who spends time helping or advising those families who struggle with severe autism (even though neurodiversity advocates claim they are the ONLY ones who understand autism). Due to neurodiversity influence, not a single major autism organization is still searching for a cure. Even research into treatment and therapy seems to have flatlined. It's all about supports and services, which I agree matter, but are not the only thing that matters.

I don't know if you agree with the neurodiversity position or the anti-cure, pro "supports and services" position. If you don't agree with the neurodiversity position, I do wish that you and your grandson would become a voice in the neurodiversity movement - they need to know that not all adults on the spectrum are anti-cure or anti-treatment.


Granny Blue

My husband and I provide care for our 34-year-old grandson with HIGH FUNCTIONING autism. His single mom has not been able to do that due to several issues. He was diagnosed at age 14 with a battery of tests performed at a world-renown center for diagnosis and support of people with autism.
He is able to do a lot of things that typically-developing people do.. But I can't tell you how many ways he struggles and how much support he needs to accomplish the things he does, how small his victories are compared to the victories of "regular" folks out there. And how helpful it is for my support to follow Age of Autism and other sources. It hurts find on this lovely Sunday morning that some folks who live the horrific tragedy of having their child struck for life with severe autism drum me and my grandson drummed out of the corp on the pages of Age of Autism. I know my grandson's autism is nothing compared with yours. But it's real. And it counts. And we need the help and support and the sharing companionship of Age of Autism. Please!

Gayle

Thanks for another good article Cathy. We are in a major autism epidemic-a major medical pandemic and the numbers will continue to grow while the CDC and NIH ignore this tragedy. How many more lives will be affected by autism as the numbers keep climbing every year. We need real scientific research into how to reverse this and save an entire generation from a senseless condition.

Mark Wax

I think that 1 in 59 may be over diagnosis or the intended failure of DSM newly combined categories. This book is commonly called the "Merck Manual." So you can be sure the authors tilt the bias towards whatever best serves the interests of big Pharma. I am suspicious enough of these criminals that they want the diagnosis rate to go UP so they can distance themselves from the distinction that used to appropriately be made ( to a professional's best ability) of "Asperger's" as a definable entity. I have two sons, each diagnosed carefully. One with "Asperger's" the other first with PDD-NOS" then "moderate autism." I am confident that each was vaccine injured and mercury poisoned. Pharma stands a better chance of escaping responsibility from Government and the Courts if the crime is BIGGER. They already know that if you pit interest groups against each other, the less likely they will unify and fight them. We already see societal efforts to "normalize" autism. Even by high functioning types who seek funding for their special needs. Sadly, those with low functioning are going to be discarded as worthless. That is what they did to our children.

bob moffit

@ Gtfr

"My child is severe but I never meet other severe kids".

Sorry to hear your child is severe .. as is my just turned 18 year old grandson .. and .. my wife and I have been visiting his "spec ed" school for 14 years ... to attend the his school's annual Thanksgiving day parade.

Every year .. this annual parade seems to grow in numbers .. especially noticeable the older young adults in their early twenties .. who will soon "age out" .. having grown accustomed to the fact they will easily be replaced by the growing numbers that are following in their footsteps.

How is it possible for the annual parade to NEVER shrink in numbers .. in fact appear to grow in numbers .. over the 14 years we have witnessed this phenomenon? Admittedly it is just ONE school .. but .. kind of hard understanding why we never see these severely affected children/adults in our communities?

Aimee Doyle

@Gtfr -

One reason that you may not meet other severe kids is because kids who have major issues -- self-injury, aggression, tantrums, profound sensory sensitivity, a tendency to elope or destroy property -- these kids rarely go out in public.

I know a family who has to triple lock all their doors and windows so their son won't elope. Nonetheless he has successfully managed to escape a number of times and was once lost for almost a day.

susan welch

Excellent post, Cathy. Thank you

Gtfr

My child is severe but I never meet other severe kids. I do feel like 1/59 is over diagnosis. The kids I meet who are diagnosed nowadays are just regular kids who like science. The teens I see are independent and doing great. They have friends and often jobs. There is nothing different or special about them. I don't understand why they are labelled with autism.

Verify your Comment

Previewing your Comment

This is only a preview. Your comment has not yet been posted.

Working...
Your comment could not be posted. Error type:
Your comment has been saved. Comments are moderated and will not appear until approved by the author. Post another comment

The letters and numbers you entered did not match the image. Please try again.

As a final step before posting your comment, enter the letters and numbers you see in the image below. This prevents automated programs from posting comments.

Having trouble reading this image? View an alternate.

Working...

Post a comment

Comments are moderated, and will not appear until the author has approved them.

Your Information

(Name and email address are required. Email address will not be displayed with the comment.)