NOTE: The very idea that social media is "broken" because it allows those of us with vaccine injured children to have a conversation about the topic is laughable. Social media has changed the world - altered politics - tumbled careers - aaaahhhh, now I get it. This is in line with the current Oprah bashing going on after her "speak the truth" message at the Golden Globes. In America there is only one topic - ONE - that is verboten, and that's vaccination injury. You can be SWMSWFCBLGBTABCDEFGHIJKLMNOPQRSTUVWXYZ but you can NOT be someone who questions vaccines. Thanks to Thinking Moms Revolution for this terrific post excerpt.
This was written in response to an opinion piece published in the Washington Post entitled “The Anti-Vaccine Movement Shows Why Facebook Is Broken.”
I think it’s rather amusing that everyone in the mainstream media and medical community spends so much time (and wastes so much money) trying to analyze why we are the way we are, as opposed to just asking us. The idea that we have some secret network, where we share information and plot to destroy the world (all the while balancing caring for our special-needs children, navigating services, attending IEP meetings, and driving to therapies and medic appointments) is rather funny.
There is no code word for anti-vaxxers (or their groups). Some of us are against all vaccines, some against the corrupt science, some against one vaccine or ingredient, some who just believe in safer schedules or who fight for informed consent and most allow anyone to be a part (in fact wish everyone would stand up for a better system).
There are no secret documents. We share the same information available to you, that your doctor can access (although most will not bother). We testify publicly, in front of legislators, on television, and through our writing. We hide nothing, including making our lives public and sharing videos, pictures, and even medical records because we know that we have no means of influence other than the truth.
There is no funding, no lobby, no billion-dollar budget. We are lucky if we can take care of our families given the extent of care they need. We aren’t living in fear of some truth; no, most of us had to face the truth the moment our lives flipped upside down and we watched something happen to our children–the ones who seized before our eyes, the ones we held as they screamed for days, the ones who never took another breath. That is our truth. THAT is why we do what we do. Read more here.