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To Infinity And Beyond: Best of Ringling 2016 from Autism Sibling Natalie Palumbo

Nat_Autism_BalloonsBy Natalie Palumbo

I'm 22, a rising Motion Design senior at Ringling College of Art and Design, and my older brother Anthony has low-verbal autism.

My test animation for Concept Development class made it into "Best Of Ringling 2016", as well as being included in Ringling's Motion Design demo reel shown at PromaxBDA in New York.

https://www.youtube.com/watch?v=hCTqufjAdBw

My final project for Animation class was an analysis of "MadMapper" projection mapping software, which I'm using for senior thesis. My teacher loved it, and suggested I send it to the developers at MadMapper. They were so pleased by it, they requested that I do an analysis of their new beta features. They promoted both of my projects, and so did the Motion Design department at Ringling. 

https://www.youtube.com/watch?v=cNeAjlYKq1A

https://www.youtube.com/watch?v=qQFeA9kmdNE

Back in April, I took part in an Autism Awareness event for Sarasota County where I painted two murals to promote riding therapy and weighted Miracle Belts developed by Matt Bruback, who coordinated the event. I was featured by Suncoast News Network twice for my participation, and was invited to attend the Mint Juleps and Roses Derby. They called me up on stage to thank me for my mural work. I was unbelievably honored to be a part of this.

https://www.youtube.com/watch?v=_rZzMmAayEk


 

https://www.youtube.com/watch?v=mmvKej1N_ps

 

https://www.youtube.com/watch?v=tUSZBM0kDeo

I recently came across an article from Laughlin, Nevada entitled "Man Left Daughter With Autism To Ant_Nat_LaptopsDie In Hot RV". She was 25, the same age as my brother. When I read the article, I was enraged and sick to my stomach at the thought that this father left his daughter to die alone with her twin sister, which the article inferred also had challenges.

It made me think of my life as a sibling, and how I could never leave my brother alone for any reason. He's low verbal, and wouldn't be able to adequately get help for himself. He doesn't need constant supervision, but does not have enough communication to be left home alone. If he were to get hurt, he wouldn't be able to tell us what happened. It made me reflect on how different my sibling experience was from other people, and how Anthony's autism changed my world view.

One of Anthony's favorite films is "Toy Story". My mom and I were chatting once about films that changed for us after living with autism. There was an autism mom that said "Dumbo" reminded her of having a child with special needs, and the rejection from other moms. Once she said that, my mother said she couldn't watch "Dumbo" the same way ever again. It was a sad story to watch regardless, but with the added association, certain scenes were emotionally crushing.

I mentioned how the scenes in Sid's room during "Toy Story" always bothered me. My mother presumed it was because the toys looked different and were feared, thus teaching a lesson of tolerance and kindness. I immediately said no. What bothered me was that Sid's toys, which were altered against their will, were the only toys that didn't talk. My mom began to cry. She never noticed they were the only toys not to talk until I mentioned it.

The toys in Sid's room reminded me of Anthony's classmates when he was in school. They were all very sweet and banded together, and they all had different strengths. Most people in my high school kept their distance unless volunteering. Seeing Anthony's classmates was a regular part of my life. I would sit in frustration hearing casual callous remarks from peers, and would occasionally speak up to point out their intolerance. Sometimes it would shame them into silence, or they'd walk away. Sometimes they would defend their callous remark with a worse one. I learned to share my life with only a select few. 

From the first time I saw "Toy Story", I saw myself as being like Woody, and Anthony being like Buzz Ant_Nat_GraduationLightyear. In a sense, I had to direct him constantly because I was aware of society and it's demands, and Anthony blissfully had his own agenda. Buzz, when he first arrives, really thinks he's a space ranger, and treats the other toys as "unusual life forms".

This pretty much defines our family life. Anthony is agreeable, good natured, and very attractive. However, his language is limited, and brings his electronics with him wherever we go. This means we need to make allowances for Anthony's needs whenever we're planning any outing. Anthony is fearless, but being low-verbal, he needs to be accompanied in public at all times. I always identified with Woody, who tries to keep Buzz safe from danger while he fearlessly lives in his own little world.

Andy represented the outside world to me as a sibling. Woody was aware of the real world, but he lived amongst the world of toys. He was able to bridge both worlds and understand reality as well as the hidden world inside Andy's room. That's how it felt as a sibling. "Typical" surrounded me, and I had to interact with it, but I always came home to the hidden world of Anthony and his autism. As a sibling, you have to function seamlessly in both worlds, and deal with the compromises of both. You are everywhere and nowhere.

On a funnier and sweeter note...

Buzz and his stilted dialogue about being a space ranger always reminded me of Anthony and how he must view the world. My mom says the internet is his life support, and everything looks better from Google Earth. As much as I love Anthony, some of his OCD and big brother tendencies to take over activities (and the remote control) can have me fussing at him like Woody. I will be exasparated, and he will smile at me as if to say, "You are a sad and strange little sister, and I pity you. Farewell!" That is usually how most conflicts end between us. He will be adorably Anthony, and I will give in out of sheer amusement. I suspect it will be this way until I'm 90 years old and he's 93. I plan to have my own remote.

Natalie Palumbo is Contributing Editor to Age of Autism.

Comments

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Nora

Natalie has your family ever tried RPM (rapid prompting method) with your brother?
We started this year with my grandson and it opened the door to communication. I now think of my grandson like Stephen Hawkings, mind intact, but his body is unable to cooperate with his mind.
I have been following several non speaking boys and girls who used this method and it has changed their lives.
I witnessed a 20
Year old using the method for the first time it was amazing. He spelled out things his family had never known he understood.
We are in the infancy with this method, but it is clear it is a life changer for my grandson.
It took 2 years for my grandson to learn to ride a bike,but he did it. RPM also will take time to master, but it is amazing and gives me great hope.

angus files

well done Natalie very arty and always a joy to see fantastic art being created with aplomb,and your big bro looks approving as well.

MMR RIP

Shannon

You go girl!!

Jeannette Bishop

Natalie, thank you! Your posts are always inspiring in multiple ways.

MelissaD

Beautiful murals from a beautiful person. The time lapse of your painting was really cool! Really enjoyed your essay and had never thought about the "Toy Story" characters that way.

John Stone

Natalie

Thank you for you beautiful artwork and uplifting message.

I have always been disturbed by the ethos of those early Disney films. It is long time since I saw Dumbo but what I recall is that it did not really offer any criticism of the creatures tormenting him: all he does is find some some humiliating way of fitting in - which is held out as a triumph (or perhaps I haven't remembered correctly), and was pretty much like Fascism in action. You couldn't really say that was true of Toy Story but they are terribly bleak films about the disposibility of these surrogate humans. But then I always felt bad as a child about not liking my toys as much as I should...

Gayle

Natalie-You are a gifted writer and have described your family life in a way that reflects our own family life. I laughed and cried when I read your insights into the world of autism that, again, reflect our family life with an adult son on the spectrum. Anthony is blessed to have you as his "big sister." We are all part of the same autism family. Keep writing for Age of Autism!

Diane Andrew

Wow! Natalee I knew you were a highly gifted artist but this very poignant and insightful essay showcases your talents in writing as well.

Matt

You and your brother are both amazing! To Infinity and Beyond! :). See you when you get back. Have an amazing summer!

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