With permission Age of Autism reproduces an edited letter by Christine MacVicar describing the continued persecution of her 53 year-old son by the psychiatric system in Scotland. This outrageous case comes at time when Scotland's politicians are in further danger of entrenching autism as a mental illness through misconceived legislation. Andrew’s case acquired public notoriety three years ago when Christine and Andrew temporarily removed to Spain.
My son is Sectioned again, as a direct result of being forced to take Risperidal .
You will remember that we absconded to Spain while Andrew was under a Community Treatment order. While in Spain, still on Risperidal, Andrew got ill again. It is characterised by really odd behaviour, moving things and very smelly urine. The doc in Spain had this analysed and Andrew had acidosis. We already knew this perhaps ten years ago after Ken Aitken suggested we test it. GP then would do nothing and, even when he has the classic Kaussmaul's breathing, he is refused care now.
In January 2014 we had Andrew at the Breakspear Hospital to see Prof Puri. The minute he saw the gasping, he had him on an ECG. The trace is suggestive of a pulmonary blockage. They were going to do bicarbonate IV, but had none in stock.
The letter to the GP from the Prof, states that Andrew would need this intervention in an emergency and gave a Diagnosis of mitochondrial dysfunction, acidosis, detoxification deficit as described by Dr Lathe and Prof St Clair and underlying infection, possibly bacterial.
This has been completely ignored in contravention of our Patient's charter and even after the instructions, he was again refused emergency treatment for the acidosis. He does not have diabetes, so this must be metabolic.
In early Spring, prof Puri agreed to try Andrew with helicobacter treatment, and after odd behaviour while taking the meds, was greatly improved. This lasted for five/ six weeks or so and then the panting came back. We have given up asking for help and try bicarbonates by mouth, charcoal etc. he has very smelly urine and he is very restless when he is like this and has pressured speech and says walking helps. If it is untreated, i believe it causes toxicity and brain inflammation. Andrew was being weaned off Risperidal and was better than he had been with it.
About 8/9 weeks ago, we had a return appointment to the cardiologist. Andrew was very hard to reach, sweating and his eyes were red. Doc advised A&E and Andrew was kept in. He was found to have a urine infection which was again treated with amoxicillin. His behaviour was really weird when we got him at discharge, but they just shrugged this off because of his ASD.
His face was like a marshmallow and when I gave him .5 of Risperidal, he collapsed on the floor.
He was unable to sleep and moved all the neighbours bikes, which are stored in a shed behind the building, to the new rack at the cycle track- a dozen bikes at five o'clock in the morning. The next morning he was pouring paint over his own bike at the same time, in the rain,
He had got it all over the paving slabs over our rented house. I had to ask Social Work for some help until this passed, which it did and the support was put back to the old level.
Then the psychiatrist arrived, not having seen my son since September 2013, and declared that he was ill because he lacked Risperidal. Andrew is a nightmare on even a small amount of this drug and it gives him the aggression, psychosis etc all reported as side effects. He was suicidal on high doses before we went to Spain.
A meeting was arranged and I thought, fine, he can see how good Andrew is. Andrew was ignored and I was taken into a room without a witness and threatened that Andrew would be Sectioned unless I gave him the Drug.
I did this and both Of Andrew's care workers saw the deterioration. On top of this the smelly urine was back. A new GP agreed to get his urine checked out. He urinates in public when he is like this and had come to the attention of the police before this. Sure enough, they appeared at my door a week last Sunday and I explained the fix we were in. By this time, having contacted a new MSP, we had the complaints people from our Health Board involved.
After hearing what Andrew had been doing, I locked him in with me and took him off the Risperidal, giving vit C, charcoal, enzymes, pectin, and loads of water. Gradually he was surfacing. On the Wednesday morning the psychiatrist appeared to Section Andrew, despite the fact that he had been given the drug - the police officer told him that I said that he was not taking the drug.
Without checking whether Risperidal is in his blood, Andrew was forcibly injected with twice the amount the manufacturers recommend for problem patients. His heart problem has been dismissed and and his breathing dismissed as a bad habit. The last time he was admitted they said it was anxiety!
He is in a terrible state and is now having Larazepam to cover up the mess the Risperidal is making.
We have Ros Waring's report, a forensic pharmacologist's report and the report mentioned by
Prof Puri, all warning of Andrew's very poor detox and these are being dismissed as no evidence.
At least it is not just me who saw all of this, as Andrew has support workers who have been aghast at what has happened.
Richard Lathe, who has until now been very supportive, has written that Andrew's condition is one in a million. That may be the case for his detox problem, but the Mercury, gut imbalance, glutathione and vitamin levels, just fits the scenario that Derrick McFabe describes http://www.drperlmutter.com/autism-fundamental-role-gut-bacteria/ . We even found HPHPA.
Both the psychiatrist and the GP both admitted that they do not understand the complex diagnosis, but insist that they are still capable of prescribing!
Andrew and I both agree that there is intent to damage him.