John Stone: "It's the Culture"

"But if we had scientific method we would be meticulously following up the adverse consequences: instead we have an aggressive culture of assertion and denial in which the reality is that products are inevitably neither as effective or as safe...

How Mercury Triggered The Age of Autism

Autism Public Service Announcement

Canary Party Vaccine Court Video

A Glimpse into Autism

Meet Our Advertisers


Olmsted's Original UPI Series

  • The Age of Autism Tag

« Conference, Congressional Initiatives About Choices For Adults with Autism & ID | Main | Dachel Media Review: No Housing Funding CT Autism »

A Friend's Ear

Take What you NeedBy Tim Welsh

(Note: I was not on drugs  when I wrote this, Just a little sleep deprived this week.)

There is Fantasy, Reality Show Reality, Getting By and Truth. Since Tanner's diagnosis with profound regressive Autism and Epilepsy, my two heart attacks at 38 and the dawning of the social media age, we have lived much of our lives in that Fantasy / Reality Show Reality world. Today I am blessed to have the opportunity to peel back a few of the layers and expose a little about our situation in the Getting By and Truth categories.

There is a multitude of reasons why most of us reside in the first two. It is easier, more comfortable, less stressful and politically correct. Many of us live in the fear of losing a job or being embarrassed by admitting what is really going on behind our castle walls. This sleep walking and defensive shields are both coping mechanisms and a way of keeping the masses in line. If we compare notes and rise up, the powers that be would have to address our situations.

Part of my fantasy world is the dream of one day being a well respected Author, Journalist, Advocate, Health and Freedom Fighter. To that end, I have studied journalism and tried to get into it with the uniform (hat, worn out notebook and big bold Press pass). I quickly learned to be a "Professional Journalist" the reports must be detached and distant from our current situation. Absolutely, I found out the reports cannot be about myself.

Many times I have put pen to paper, writing in my humble opinion that pompous third person billowing about things as though I have an omnipotent eye. Well sorry, I can't do that. The closest I came was a blog I had prepared about the juxtaposition of a huge mansion and party versus the impending foreclosure and eviction of the family. It really was surreal attending one of the most glamorous events in the largest house I had ever been too. All the while everybody was whispering about the Sherif's notice being processed right as the DJ fired up the lights and music. This is an example of living in the fantasy world for both home owner and this reporter.

Over the years of avidly studying mainstream media, news and entertainment, I have witnessed many slips. I have been rebuked, berated, blocked and even suspended from social media accounts because I called attention to reporters, entertainers and anchors. There have been mentions of Nieces, Nephews, Sons and Daughters on the autism spectrum or dealing with special needs issues. There are so many of us fighting a good, but for most a very private fight. We must dispel the myth that going it alone is the best course of action.

 I write this in another first week after a job loss. In some respects this gives me the total freedom to do and write what I want to.  I admit I do have a difficult time with the filter thing.

This is the first time I have said publicly how close to the edge I have been on several occasions. The first lesson in the handbook of torture is sleep deprivation and system stress. Well our first lesson here is tell folks when you are not getting sleep. It is absolutely true that you can't burn the candle at both ends and the middle. Get the rest and support you know you need.

Many of us will if pressured move out of the first two categories and into a placating "I am getting by." Most people do not want to know the gory details of our lives. So just blowing past the questions suffice the masses. You will not be labeled a whiner or negative person if you are that "trooper" that caries the weight of the world on your shoulder but keeps moving forward.

I guess what I took the long winded way again to get to with this blog is... look after yourself. That advice is not always practical. Many times we need to bend a friend's ear. We need to find those that will tell us when we get over tired. Force us to take respite breaks and rescue us if they are thinking about locking us up.

I am still a little nervous about revealing the dates, times, and details of my entire life on the edge. Truth is really scary.  I just want to say thank you to those that have rescued me in my various stages of self destruction. It feels good to admit I am human. In our roles as public figures sometimes we are put on unrealistic pedestals. I do not do everything right. I am not a perfect man. I am definitely not worthy of Father of the year and do not have the answers.

What I do have is a decade of survival. Debt to many. Wisdom of experience. So once again cheers and thank you to my friends. Prayers for your families. Take time and protect yourself. We say this often. You must look after yourself, so you can look after your loved ones. Carry on Warriors.


Tim Welsher TannerTim Welsh, is one of the most active and influential Parent Advocates for Autism. Avid Speaker, blogger, and Tweeter (@TannersDad). Tim works to build unity within the Autism community, Gain Insurance coverage reform, End Restraint & Seclusion, Advocate for services, prevent wandering and much more. Tim & his wife Cheri have one son Tanner (16).

Favorite tweet…
“I have a son he has autism, but, I also have dream. I dare dream of a world where profound regressive autism is not only treatable, but is also preventable”



Comments

Feed You can follow this conversation by subscribing to the comment feed for this post.

Tim, Your post made me think about a lot of things, especially filters. I think the more we've been through in life the less filtering we tend to do. I also think that's normal, probably because of a primitive survival mechanism for our species. We're supposed to, we have an innate drive to, warn each other of danger. The anecdote is probably one of the most important reasons for human survival. It is ironic and dangerous that the modern club who call themselves scientists together with those in power are trying to have exclusive rights to the narrative and shut down the instinctive drive and sense of responsibility in the rest of us.


Been wanting to type something all day, actually something since another post way back. All I can put in words is I'm praying for your peace and progress gained from your many efforts to move some of the mountains in our way. And add that in anyone of those efforts you must have moved what would have been a mountain or two (or several) for me just to embark.

Peace & encouragement to all.

http://www.iamsecond.com/seconds/scott-hamilton/

Being squeezed here too
Electric bill is sky high - if I had known that Obama/EPA/Al Gore was coming down the pipes with carbon dioxide is going to be a big deal - I would have just dug a cave for a home.

Health insurance -- I did not know I would be paying not only my health insurance in my old age but my adult children' too.

I feel the edge.

In our family, we've gotten so used to changing personal courses of living to support our now adult son, that it's now second nature. The taking care of ourselves is a struggle....the monumental stresses are very real. The debt is becoming legendary and with the seemingly faster movement of time, at least time running out, moving forward is paramount. Can't we just rest for a minute? (Whiney voice over). No. Not an option.....back to walking in the headwinds of Autism.

Tim,

Yes, it takes its toll - the legions of forgotten people. In the UK the BBC might run a TV documentary on it once decade at an unpopular hour.

John

Verify your Comment

Previewing your Comment

This is only a preview. Your comment has not yet been posted.

Working...
Your comment could not be posted. Error type:
Your comment has been saved. Comments are moderated and will not appear until approved by the author. Post another comment

The letters and numbers you entered did not match the image. Please try again.

As a final step before posting your comment, enter the letters and numbers you see in the image below. This prevents automated programs from posting comments.

Having trouble reading this image? View an alternate.

Working...

Post a comment

Comments are moderated, and will not appear until the author has approved them.

@AgeofAutism Tweets

follow me on Twitter

SPONSORS

  • Health Choice Square
  • Canary final logo
  • active healing
  • VOR logo sidebar
  • Safeminds 2014 Logo
Age of Autism's Facebook Page