By Teresa Conrick
I have been doing a lot of thinking lately. Megan regressed into illness and then received an Autism diagnosis 18 years ago this coming September. The memories of her infancy, vaccines, chronic infections, and then the DSM Autism diagnosis, play over and over in my mind ---- and in my heart. Back then, I was mostly alone. A marriage teetering and hidden family. Nobody had a clue on how to help or what was really happening. It was hell. I didn't know all that I know now.
Things are quite different today as Autism is epidemic, yet still many people don't know how to help. I thought of that while driving recently on a 7 hour trip to Wisconsin and back in one day. More on that trip another time but nothing like blue skies, puffy white clouds and meandering cows to relax me. But then there it was! A black SUV with the bumper sticker - "AUTISM AWARENESS." I began driving directly behind it for miles and kept thinking how the heck could no one be aware? I decided to pass that SUV and let them see my bumper stickers -- "Think Autism, Think Cure", "Age of Autism.com Supporter," "Callous Disregard-I Support Dr. Wakefield," and "The Canary Party." -- hoping for a toot or a friendly wave. All I saw was a man and woman-- tired and barely talking. There was no toot and it made me sad that they maybe were just starting this journey, with little knowledge and maybe little hope. They exited off the highway, on to a different destination than me.
I am astonished that parents are still looking for AWARENESS and ACCEPTANCE when they could be looking for HOPE and TREATMENTS. My solution -- I try to educate them, their families, friends, neighbors, at the store, at the park, through a mutual friend, etc. and especially here, at Age of Autism
. The truth is, I have been having a fantasy about this for awhile, that I need to share. Maybe many of you have had it? I want to win the lottery and I mean BIG! Actually I need to win the lottery and here's why.
I need to win millions of dollars. It's not for me, no,no-- though I would use it for the care of my daughters. The fantasy is, I would quit my job for starters so I could take this money and really make an impact on this epidemic.
I would open hospitals, MEDICAL hospitals, not mental, to treat Autism and also PANDAS/PANS, as they are so related. Immune treatments, diet, pain management, etc. Too many of those diagnosed live daily in pain. Meg has been one and I so empathize with other parents. Our kids are very ill.
Next, adult housing, for ALL symptoms and levels of functioning. No more just for those who are able to work, in a city environment. How about beautiful, in the country condos too, with organic farming and stores? Post- age 21 classes on all different courses - all abilities. Day programs and residential communities that are safe havens and where parents can retire as well? If you are ill in bed with arthritis pain or mitochondrial exhaustion and seizures, you are cared for and not dumped because you are not working up to capacity. No fear. No abuse.
Prevention of Autism -- a must! Studies on why and how a body diagnosed with autism is different than a healthy peer. Immune, neurological, gastrointestinal, mitochondrial injuries to be explored and how vaccination and environmental insults would cause them. Dr. Andrew Wakefield to head the teams.
Treatments for those injured and affected. MAPS doctors
would multiply as fear and litigation becomes a thing of the past. Compounding pharmacies could open in all cities. Classes would be held for continuing education for doctors on treatments for Autism. Research and studies on safe foods - non-gmo, pesticide free, organic - would be welcomed. I would make sure that TACA and The Autism Team had money to travel extensively and help people around the globe. Medical Schools would add classes in specializing on acute care for Autism -- and then long-term help so that severely affected children or adults in pain, like Alex Spourdalakis, have a treatment facility to aid them and their families. Social workers would be on call 24/7 to help anguished parents and guide them to one of our medical care units. Suicides and homicides in families would become extinct.
An institute on vaccine research. REAL research to see if all of these vaccines are necessary. Could we go back to the 1970's when autism was rare, and use that vaccine schedule -- or do we need to go back to the start .....before 1938 and Kanner's first glimpse
? On top of that, how much mercury in the environment plays into an autism diagnosis and how can that be stopped?
The research would continue to come in showing that Autism is not a genetic glitch but for most, an assault on a vulnerable immune system. Vaccines, invented to prevent death were found to cause damage to so many children. Those never vaccinated would be found to have more robust immune systems and much less chronic health conditions -- especially Autism -- than those vaccinated. Honest people, moral and right judges, and a government for the people and by the people, could then transform our world.
I'm buying my lottery tickets with that hope -- and -- that we can finally get rid of every damn "Autism Awareness" bumper sticker!