Hanover (PA) Evening Sun: Autism: Red tape can tie families in knots
"The parents of three autistic children, the Browns have been fully immersed in the world of autism for more than a decade. It was about 10 years ago when their twin sons, Josh and Chris, were first diagnosed with the disorder. Their younger son, Andrew, has also since been diagnosed.
"'Acceptance isn't something ever received,' Angela said. As their kids get older and older, she added, they will have to come to terms with their diagnoses over and over again....
"Despite their community-activist exteriors, Steve and Angela Brown are still struggling to navigate their way through the struggles that go along with raising children with autism. Starting with the 172-page Pennsylvania autism services guide, the one that Steve couldn't help but drag all around the house, finding any of the necessary services for their children is daunting.
"The guide is supposed to help parents of autistic children apply for a range of services offered by the state government and was actually designed to make the process of applying for them easier and simpler. But despite its original intentions, the packet in its final form stretches to what could more fittingly be called a book and is filled with an alphabet soup of organizations and page after page of complicated instructions."
Notice that this is about caring for children with autism. We're not yet overwhelmed caring for adults with the disorder, but that will soon be changing. Three siblings---all with autism. So why don't we ever hear about three people in their 50s from the same family? Where are the middle aged and elderly with the same rate of autism we see in our children? News 12 Yonkers, NY
WHITE PLAINS - A new autism center was unveiled today in White Plains.
"Hundreds gathered for a ribbon-cutting ceremony at New York Presbyterian Center for Autism and the Developing Brain in White Plains. The 11,000-square-foot facility will serve children and adults with autism.
"Statistics show one in every 88 children across the U.S. has autism."
It's great to see a new facility for autism opening, but it's hard to watch a ribbon-cutting where "hundreds gathered" and cheered the new "one stop shop for autism."
Just a minute. This is a disorder that strikes one in every 50 children. No one is alarmed about one more kid with autism. No one sees anything wrong.
Catherine Lord is featured saying they'll take care of everything! I would love to ask Dr. Lord about the capacity of the Center for Autism and the Developing Brain. How many kids can they handle compared to the number of kids in New York State with autism? And furthermore, I'd love to ask Lord what's going to happen when they become adults since we really don't have autistic adults right now. I posted a comment.