Public Invited to Attend Interagency Autism Coordinating Committee Meeting July 10

The United States government Department of Health and Human Services cordially invites you to participate/listen via webcast and/or attend this public meeting of the IACC tomorrow. 

IACC Full Committee Meeting Agenda

Tuesday, July 10, 2012
9:00 a.m. to 5:00 p.m. Eastern

L'Enfant Plaza Hotel
408 L'Enfant Plaza, SW
Washington, DC 20024

The registration desk opens at 8:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live videocast and conference call.

Agenda below:

9:00 a.m.	Call to Order and Opening Remarks Thomas Insel, M.D. Director National Institute of Mental Health and Chair, IACC Welcome Recognition of Former IACC Members Introduction of New IACC Members
10:00	The Honorable Kathleen Sebelius Secretary, U.S. Department of Health and Human Services
10:30	The Honorable Michael Doyle U.S. House of Representatives 14th District of Pennsylvania
10:40	The Honorable Christopher Smith U.S. House of Representatives 4th District of New Jersey
10:50	Kareem Dale, J.D., M.B.A. Associate Director White House Office of Public Engagement & Special Assistant to the President for Disability Policy
11:00	Michael Strautmanis, J.D. Deputy Assistant to the President and Counselor for Strategic Engagement to the Senior Advisor Executive Office of the President
11:10	Alexa Posny, Ph.D. Assistant Secretary of Special Education and Rehabilitative Services U.S. Department of Education
11:20	Francis Collins, M.D., Ph.D. Director National Institutes of Health
11:30	Morning Wrap-Up Thomas Insel, M.D. Director National Institute of Mental Health, and IACC, Chair
11:45 a.m.	Lunch
1:00 p.m.	Public Comments
1:30	ASD Science Update Thomas Insel, M.D. Director, National Institute of Mental Health and Chair, IACC
1:45	Administration for Community Living Henry Claypool Principal Deputy Administrator, ACL
2:00	Update on Restraint and Seclusion Larry Wexler, Ed.D. Director, Research to Practice Division Office of Special Education Programs U.S. Department of Education
2:15	Update on the DSM-5 Criteria for Autism Spectrum Disorders Susan E. Swedo, M.D. Chief Pediatrics & Developmental Neuroscience Branch, NIMH Chair, The SDM-5 Neurodevelopmental Disorders Workgroup, American Psychiatric Association
2:30	Recent Developments in Insurance Coverage for Individuals with Autism Spectrum Disorders Stuart Spielman, J.D. Senior Policy Advisor and Counsel, Autism Speaks Peter Bell, M.B.A. Executive Vice President of Programs and Services, Autism Speaks
2:40	Autism and Epilepsy: Clinical Profile across the Lifespan Geraldine Dawson, Ph.D. Chief Science Officer, Autism Speaks
2:50	Update on NIH/Autism Speaks/CURE Meeting on Epilepsy and Autism Deborah Hirtz, M.D. Program Director, Office of Clinical Research National Institute of Neurological Disorders and Stroke
3:00	Break
3:15	IACC Business Susan A. Daniels, Ph.D. Acting Director, Office of Autism Research Coordination and Executive Secretary, IACC OARC/IACC Updates – New Document and Web Releases 2011 IACC Summary of Advances 2010 IACC ASD Research Portfolio Analysis Report IACC/OARC Portfolio Analysis Web Tool IACC/OARC ASD Research Publications Analysis Planning Future Committee Activities IACC Subcommittees and Workgroups 2012/2013 IACC Strategic Plan Update 2012 IACC Summary of Advances 2011 IACC Portfolio Analysis IACC Workshop
4:30	Public Comments Discussion Period
5:00	Closing Comments and Adjournment

Comments

[CCC]

BTW will these live event be archived on the net?

Thank you

[CCC]

I just heard the comment from a minority mom on services and i can say i got told that the bad parents get services. Why is that? If they are such bad parents why keep throwing supports at some while shortchanging the rest of us trying to work and keep our kids off medicaid etc? I think it is time to create a better national strategy for funding and services from dr, providers and the like. Each state has a haphazard process and some are better than others. I did my research and moved and i found 2 states did a better job than others. Stop doing just medical research on the DNA but the other medical issues that we now know exist and provide supports in the home. Please!!! Some drs are now refusing to treat autistic adults creating a need for us to go to the Er and that is not working and costing to much.

[Anne McElroy Dachel]

I can't wait to hear Thomas Insel's opening remarks. Is he going to say the same things he said at NIH in 2010? https://webmeeting.nih.gov/p53171631/

There he said,
"Eighty percent of the people with a diagnosis of autism [in the U.S.] are under the age of eighteen." Insel described it as "a huge wave that is moving through the system."

He also shrugged his shoulders and admitted having no answers about what's causing the exponential increase.
"What's probably more striking here is what we don't know."

Incredibly, he carefully avoided actually describing autism as a crisis.
“We have responded to this AS IF IT'S A CRISIS. WE SEE THIS AS AN ENORMOUS PUBLIC HEALTH CHALLENGE. If you look at those numbers, the increase and recognize how many of those kids will become adults, we ...also need to be thinking about how we prepare the nation for a million people who may need significant amounts of services as they are no longer cared for by their parents or as their parents are no longer around."

Or is he going admit that after years of running the IACC he's no closer to knowing anything for sure about autism. We’ve lost a generation of children to autism under his watch. Maybe he should just hand in his resignation and quietly exit the side door.

Anne Dachel, Media

[Benedetta]

Peter Bell, M.B.A.
Executive Vice President of Programs and Services, Autism Speaks

Is he going to talk about epilespy?

They are having a big conference in Chicago - I keep getting emails about new findings, there is excitment in the emails, they are discussing inflammation.

I wish the would get some of the doctors/scientist from that Chicago conference to come in and report.

I don't know why a M.B.A. even if Bell is really smart would deliver this?

Well we will see what kind of job he will do tomorrow.