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World Autism Awareness Day

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Managing Editor's Note: April is Autism Action Month and we consider it a month of somber observance and respectful thought on how to help our friends and family who are on the spectrum.  Awareness is not enough. Do we love, honor and congratulate success from the smallest whisper of sound to landing a good job or graduating from college? Of course. But "celebration" seems... callous in light of the very real problems facing people of all abilities with autism and Asperger's. 

By Anne Dachel

I received an email from Autism Speaks announcing that World Autism Awareness Day is April 2nd.  I was urged to “Light It Up Blue!”  I read, “Join Autism Speaks as we celebrate on April 2. Whether it’s your front porch or city hall, an office party or a banquet, the whole world is going blue to increase awareness about autism.”

“Last year, more than 70,000 people pledged to Light It Up Blue to shine a light on autism for World Autism Awareness Day.”

One link on their site showed scenes of famous places all around the world flooded with blue lights to add to the festivities. HERE

Here’s the list:

CN Tower Toronto CA

Bahrain World Trade Center, Manama,

Al Faisaliyah Center, Riyadh, Saudi Arabia,

Cairo Tower, Cairo, Egypt

Palacio de Bellas Artes, Mexico City

Big Brothers Big Sisters Building Grand Center, St

Paris Stock Exchange, France.

Al Anoud Tower , Riyadh, Saudi Arabia

Terminal Tower, Cleveland OH

Kingdom Tower, Riyadh, Saudi Arabia

Empire State Building, NY

Christ the Redeemer, Brazil

Great Buddha at Hyogo, Kobe, Japan

Rockefeller Center and Top of the Rock Observation Deck™, NY

Sydney Opera House, Australia

Niagara Falls, Ontario, Canada

Canton Tower, Guangzhou, China

Kobe Port Tower, Japan

Hungarian Parliament Building, Budapest, Hungary

New York Stock Exchange, NY

What more could the Autism Community ask for?

I also found a link to things I could do personally to add my touch of blue. HERE

They featured everything from yard signs, “Light It Up Blue” tee shirts, to “Light It Up Blue” pens. HERE

The email featured the photo of a smiling mother with an adorable little girl who was also smiling.

There wasn’t much explanation given on what exactly we have to celebrate and after reading countless autism stories in the news, I think a more appropriate color for the month would be black.

Here’s what’s out there, just in the past month:

March 20, 2012, the Salem News (OR) published a press release from the Canary Party HERE speculated on the possibility that the Centers for Disease Control and Prevention may actually get around to updating the autism rate from one in every 110 children to something much worse. No one is expecting officials to be really worried, no matter what the latest numbers are. For years they’ve watched the soaring increases in developmental disorders among our children with mild interest and no answers—except that their ever-expanding vaccination schedule couldn’t possibly be a factor.

While the CDC promotes the idea that it’s normal and acceptable to have hundreds of thousands of neurologically disabled children everywhere, for the rest of us, the nightmare continues.

March 8, 2012, the San Francisco Chronicle had the story, Sunnyvale mom kills autistic son, self, police say. HERE

The mother was of a 22 year old son with autism was described as “overwhelmed by caring for her adult autistic son” saw no other way out. We’re clearly a country totally unprepared for the tsunami of adults with autism about to hit our shores.

Stories of abuse of autistic students in schools are becoming all-too-common in the news.

March 20, 2012 Richmond, VA, NBC 12 Father of 12-year-old girl with autism talks about assault case HERE

March 13, 2012 The Oakland (CA) Tribune, Mother: Autistic son had to be hospitalized after alleged abuse by Redwood City teacher HERE

February 22, 2012 NY1 TV NY1 Exclusive: Mother Says Her Autistic Son Was Abused Twice In A Manhattan School HERE

March 21, 2012 ABC13 Houston TX Teacher disciplined for spraying water on student HERE

The growing concerns about the future makes the idea of celebrating autism a slap in the face to parents everywhere.

March 15, 2012 Florida Times Union Jacksonville mother feels the pain of caring for 20-year-old autistic son HERE

This was about a mother whose adult son is “profoundly autistic,” in diapers, and prone to violence. We get a glimpse at the incredible stuggle she faces each day.

I didn’t even include the stories about parents going bankrupt paying for services, state legislatures fighting over insurance coverage for autism, and of course the daily news reports reminding us that, while expects don’t know anything for sure about autism (and that includes the fact that they’re still trying to come a definition of it for the DSM5), never fear, STUDIES WILL ALWAYS SHOW NO LINK TO THEIR VACCINES.

Maybe the people Autism Speaks is referring to when they talk about “celebrating” autism are those in the drug industry.

March 9, 2012 this announcement came out: Unprecedented academic-industry collaboration seeks new drugs and novel treatments for autism HERE

“An international consortium of scientists, led by Roche, King’s College London, and Autism Speaks, is collaborating on one of the largest ever academic-industry research projects to find new methods for the development of drugs for autism spectrum disorder (ASD).”

“The project, which will take place over the next five years, brings together top scientists from universities around the world, experts from Autism Speaks – the world’s leading autism science and advocacy organization – as well as major global drug companies from the European Federation of Pharmaceutical Industry Associations (EFPIA) including Roche, Eli Lilly, Servier, Janssen Pharmaceutica, Pfizer and Vifor Pharma.”

With more and more children now victims of the worst epidemic in our history, I can only imagine the excitement over the potential market pharma is looking at. These companies would have plenty of reasons to deck themselves out in blue.

For countless parents across this country, there’s no reason to be happy about autism.

It’s been another year where things only got worse.

There are thousands of additional children with autism.

There are no answers.

Millions of dollars have been wasted on dead-end research.

There’s no hope.

No help.

Asking us to just accept this nightmare and announce it with blue lights will be seen by history as the ultimate insanity.

Anne Dachel is Media Editor for Age of Autism. Subscribe to her news feed at AnneDachel.com

 

Comments

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The celebration is about vaccine producers and their CDC/FDA accomplices generating millions of extremely sick children, who now can be drugged with poisonous psychotrops for the benefit of pharma, FDA and CDC.

http://www.youtube.com/watch?v=UDlH9sV0lHU&feature=related

what are we celebrating why I'll tell you!!!!!

1. Diarrhea
2. Constipation
3. C. Dificil
4. Monthly IVIGs
5. Marriage counseling
6. Practically Going Broke from doing ABA for our son
7. Having a Child on ADHD medication at the age of 5
8. 13 Food allergies in my son
9. Kidney problems(due to food allergies) with my son
10. Knowing all about the Sheriff's Project Lifesaver and having their number on speed dial JUST IN CASE he wonders away
11. NEVER going to the store without daughter(who is also on the spectrum)having a screaming fit that starts with "YOUR HURTING ME"
12 Being kicked out of college for being on the spectrum
13. Being UNEMPLOYED
14. ANTIFUNGALS
15. Immune Deficiency.

So go right ahead and celebrate but I think I'll go buy some coconut ice cream and cry....for myself, my children, my marriage, and my husband.

Instead of 'lighting it up blue' it'd be more appropriate if they encouraged the world to simply turn the lights out entirely...in honor of Autism Speaks (and their partners in crime)'s efforts to keep the public in the dark about the true cause of this epidemic.

Anne, thanks as always for speaking up. Yes, autism is being caused by something, and vaccinations must be investigated. However, the brain disorder in autism could have been recognized long ago, and measures put in place to prevent the damage.

I went back to school in 1969 because I was so angry with medical professionals who were determined to have me accept their reassurances that autism is hereditary, and not caused by traumatic birth. Then the October 1969 issue of Scientific American arrived in my mailbox, with an article by William Windle on brain damage caused by asphyxia at birth.

The most prominent damage is to nuclei in the brainstem auditory pathway. What do children need most to learn to speak? I published two articles in 1975 and 1976 based on my own dissertation research, but during my first year of postdoctoral research was rebuffed in efforts to obtain funding for research on auditory evoked potentials. I had preliminary findings on responses to sounds out-of-phase at the two ears being different in autism. I quit and went back to my former profession of software engineering. After that all I could get published were letters-to-the-editor. Trying to engage in discussions with Autism Speaks or the IACC only increased my frustration.

A year ago I started publishing books on Barnes and Noble's Pubit, a series called Autism and the Inferior Colliculus, in case anyone might be interested. Currently I am re-working Book 2, now that I have Apple's Pages to epub export capability, but am also working on Book 6, and all available for 99 cents (including books 1 and 2 after revision). See
http://www.barnesandnoble.com/s/autism-colliculus?keyword=autism+colliculus&store=nookstore

To celebrate human tragedy is by itself extremely sick. It looks that Autism Speaks is run by psychopaths who aligns themselves with p-harma criminals, who bribe the politicians and bureaucrats to relentlessly push vaccine poisons on innocent babies.

Of course Autism Speaks wants to celebrate here come the dollars rolling in!!
It makes me sick.


MORE ON AUTISM SPEAKS AND DRUGS FOR AUTISM:
http://gaia-health.com/gaia-blog/2012-03-23/new-autism-research-program-big-pharma-profit-center-with-taxpayers-help/
The European Union has partnered with pharmaceutical corporations and Autism Speaks for the sole purpose of developing drugs to cram down the throats of autistics. Rather than doing honest research into the causes of this devastating condition, money is being poured into finding ways to suppress its symptoms.

A new organization, European Autism Interventions - A Multicentre Study for Developing New Medications (EU-AIMS), has been formed to benefit Big Pharma's bottom line at the expense of autistics. The plan is to simply accept that autism is here, in spite of its nonexistence or near nonexistence a few decades ago. The organization has no interest in autism prevention. . . .

Why is Autism Speaks so supportive of a pharmaceutical approach to autism? It starts with the fact that they completely deny any connection between vaccinations and autism, in spite of the fact that no decent research has ever demonstrated that claim. But, let's quote Dan Olmstead of the Age of Autism in The Awful Truth About Autism Speaks to describe the organization:

Autism Speaks is The Man's favorite autism org, preaching treacle and hogging the spotlight while doing nothing useful and letting the epidemic roll on. It is a leech upon the autism community, sucking resources and walk-a-thon energy away from cash-strapped families struggling to cope. If there was any value in its "awareness" campaign, it has been achieved; AS has no apparent further reason for being. It's delaying progress, deflecting attention from the truth. It's job, like any other business (or malignancy), is to grow. As Boyd Haley said of another such entity, "Bureaucracies don't have a heart or a soul, but they do have a survival instinct." AS is in survival mode and it will swat down or swallow anyone or anything that threatens it.

The simple fact is that Autism Speaks would suffer if vaccines were admitted to be the cause. As long as there are autistics, they can grow, especially if they align themselves with Big Pharma's profit-making juggernaut of vaccinations and drugs to treat the conditions they cause.

The simple fact is that autism is being caused by something, and the only thing that appears to make any sense as the cause is vaccinations. To spend millions on finding ways to suppress its symptoms, rather than curing and preventing it, is criminal. But that doesn't benefit Big Pharma, and the researchers are aligning themselves with the sources of money-which are consistently manipulated by the ultimate profiteers, pharmaceutical corporations.

They want to celebrate constantly increasing number of autistic children, because it means billion $ profits for p-harma cartels. First these cartels created autism by injuring children with toxic vaccines, now they are preparing new poisons (called medications) to drug these children and injure them further. This is a reason to celebrate future profits.

The people at Autism Speaks and their fans must have missed our story......

Many parents, instead of celebrating for the next month are going to be thinking about the inevitable impossible choice that many parents have to make.

From our post:

"We have simply given up fixing our walls and do not replace broken furniture. It pains me to say this, but sometimes it feels like I have allowed TJ to break my spirit. Not because he ever intended to do so nor did I ever think that was where I was heading; I simply find myself questioning how long we will be able to continue to keep him in our home. Jane is brought to tears thinking about letting him go. I am brought to tears thinking about keeping him home. This makes for a very interesting family dynamic to be dealing with on a day to day basis."

Please read this and try to think about "celebrating Autism".

Part 1 The Greatest Challenge: Autism and an Out of Home Placement
http://www.ageofautism.com/2011/08/part-1-the-greatest-challenge-autism-and-an-out-of-home-placement.html


Part 2 The Greatest Challenge: Autism and an Out of Home Placement
http://www.ageofautism.com/2011/08/part-two-autism-out-of-home-placement.html

As Kim so perfectly said, of course we celebrate our children and their wonderful qualities and successes for instance after only 3 years of treating his bowel disease effectively our son is now about 90% toilet trained at 15 yrs old.

Yeah for Autism? No - Yeah for the brave doctors out there that will actually treat our children and not push all the psych drugs that will make Autism Speaks into the most powerful but worthless organization in the world.

It is time to put vaccines on the table.

On 3/30, the CDC will announce updated autism prevalence #s and we're hearing 1 in 88 children (1 in 50 boys). Our so-called leaders in govt, industry, medicine, and their friendly non-governmental partner Autism Speaks have presided over a pediatric health care catastrophe. All the while, they have declared their precious childhood vaccine program off limits, they have persecuted and destroyed Dr. Andrew Wakefield for asking questions about vaccine safety, and they have shown nothing but contempt for parents with legitimate concerns. We have seen ever more vaccines recommended and mandated. We are seeing a shocking erosion of parental and individual rights, state by state.

And now they ask us to celebrate autism awareness?

There is no reason to use celebration and autism in the same sentence.

Thank you, Anne Dachel.

Could all those who "know or have concerns" for an Autistic child simply use their headlights ALL DAY LONG on April 2nd ??

Sort of an AoA light it up...

This would go well with my "Speak NOW to Walk on Autism Speaks" bumper sticker...

How I feel your words...painful, poignent, and true.
At times the lack of sleep, constant stress and worry, endless research and financial burdens lead me to question...everything.
I am comforted to know that I am not alone in my concern for the future, for our children, for how history will judge this as a disgraceful and cruel period.
We can do better, we must do more,
Thank you.

Brenda, Thank you for the perfect symbol for the reality of autism in America
http://asdqueenbee.blogspot.com/2012/03/light-it-up-black.html
"No, I will not light it up blue. I will light it up BLACK (as suggested by Anne Dachel of Age of Autism). I will be mourning the precious lives of the children who passed away due to wandering or vaccine injury. I will be mourning the precious babies that regressed into autism but that were born perfectly normal (like my own son). I will keep screaming at the top of my lungs that enough is not being done to fight this."

@ Stop big Harma

“Join Autism Speaks as we celebrate on April 2."

"I think this is an honest assessment of how a corporation with non-profit status regards a month that will bring it worldwide free advertising and therefore increased revenues. They have to meet payroll, you know. That's about $16 million per year. C'mon - give it up for Autism Speaks!"

I couldn't have said it better myself. Autism Speaks seems to "celebrating" its OWN success.

What no Tidy Bowl Man? I've been saying the same thing for three years, if I were any more aware of autism, I'd be dead. Light it up blue - for what? For the blue circles under Nick's eyes? For my blue mood when I think about what our kids are going through and how it all could have been prevented? No. No Lighting it up blue. No celebrating. Just more hard work for the parents and suffering for our children - a day or month like any other.

I celebrate "Age of Autism" because it exists, and I can read the heroic stories of families afflicted by this terrible and unnecessary plague. My hope is that more people will visit this site and wake up in the month of April to what is happening to a generation of children.

Thanks for the inspiration AOA! I wrote a new blog entry about this: http://asdqueenbee.blogspot.com/2012/03/light-it-up-black.html

Question: are there any psychologists out there who might know just how many or what percentage of people must be afflicted by a malady in order for it to be considered an emergency or even a serious problem? There are many things out there which are serious but have become part of the backround of our lives (e.g,automobile fatalities and iatrogenic deaths). Years ago, Dr. Barbara Starfield revealed that medical care was the third-leading cause of death in the USA with no noticeable impact on medical practices (she thought they had gotten worse since the publication of her paper). How bad does something have to be to defeat such complacency?

Anne--I had someone contact me this week about "celebrating" autism awareness month with a bracelet that I could sell at our school and have some of the money go to Autism Speaks. I said to this person who was a perfect stranger--"what are we celebrating? The hell that all families with ASD experience--and btw Autism Speaks is a worthless organization".
I felt kind of bad later to have been so abrupt but I find it extremely insulting to use the word
celebration in this context.
Thanks for all your work and wonderful writing on our behalf. I often send your work on to friends and family.
Brooke Potthast

Another year of "pop Autism" with Autism Speaks. "Light it up Blue / We have not a Clue"

Are there "polio celebrations" in countries where that disease is still active ??? Autism is nearly 25 times more common than polio and I don't recall celebrations in the 1950's while they "searched for a cure" ( for 15 or 20 years ??? )

I believe they have only 7 or 8 more years until the AS funded intellects have completed their 15 year search for the "Autism gene." Of course, once the gene is located, the "glorious treatment for that genetic fault" would be similar to the termination used for Down's syndrome children in the womb.

The "color blue" is used as Autism is 4 to 1 boys to girls. That "mystery" was solved by Dr. Body Haley years ago.


Research by Dr. Haley showed Thimerosal to be toxic to brain cells at nanomolar concentrations, and accelerated by male hormones, which could account for the 4 to 1 boy / girl ratios.


Part 1 Military vaccinations / Autism / mercury / vaccines / Gulf war syndrome /
2000 IOM Conference / Research funding corruption at 2004 IOM Conference / NIH

http://video.google.com/videoplay?docid=4115912987954370615&q=Boyd+Haley


"I hated the blue light thing. Oh how I hated it. What did blue lights have to do with Autism? I was sick of seeing "Support Autism Awareness" everywhere, too. We are pretty aware at my house, that was enough for me. I hated caring what neurotypicals thought about Autism and for a while stopped caring all together -- their lives had very little impact on my life or my family's or any of my friends. Or so I thought."

http://www.teachingtheboy.blogspot.com/2012/03/blue-lights.html

Judging by the pessimism posted here and my own reality. There's nothing really to celebrate.

Let's analyze: Education has gotten worse not better, Insurance is worse not better, police/EMT does not have enough training to recognize autism, adults with autism have received no change in services, medical knowledge as far as a known cause is no where, medical knowledge as far as treatment is nil, I could go on.

So in the last 10 years, what's changed?

Sorry for my pessimism, but it's hard to be celebrating right now.

I did not know of any of these festivities or even that it was autism day. It seems that the birds will get more from these festivities than ASD kids and their families.

“Join Autism Speaks as we celebrate on April 2."

I think this is an honest assessment of how a corporation with non-profit status regards a month that will bring it worldwide free advertising and therefore increased revenues. They have to meet payroll, you know. That's about $16 million per year. C'mon - give it up for Autism Speaks!

I like Anne's idea - light it up black! Or better yet - light it up red! - for the color of the blood on Autism Speaks' hands for aiding in the international cover-up of vaccine injury leading to brain damage known as "autism."

"...celebrate"??? What exactly do they think there is to celebrate?

Harold, me too. It was in the fall of 2002 and I read about a doctor that mentioned "autistic entercolitis". Pretty sure his name was Wakefield.

Anne Dachel, thank you for speaking honestly about autism disorders.

Once upon a time, long, long ago, in a galaxy far far away I was optimistic about the state of autism research. I thought we were on the cusp of an Autism Knowledge Revolution.

I was wrong.

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