By Lisa Goes
On November 28, 2011, my son's physician, Dr. Anju Usman, will appear before a judge from the Illinois State Medical Disciplinary Board to schedule a hearing for crimes unknown. You can read the latest in a string of strange and accusatory articles that detail a father's quest to punish his ex wife by destroying Dr.Usman and denying the origin of his son's illness, at The Trib here.
Like most stories about autism that make the headlines, you'll soon gather this sensationalized drama is not about Dr. Usman at all. It's about Mr. Conan and his personal problems. It is about our medical community's inability to embrace any departure from the lucrative foundation of group think, and the media's financial need to maintain an archaic and incomplete belief system whose origins resemble religious fanaticism more than scientific research. Lucky for Mr. Conan, those in power have a vested interest in keeping the work and research of Dr. Usman and her colleagues as far away from the general population as possible. She and her contemporaries are starting to have a tragic effect on the bottom line. If you are wondering what that elusive bottom line is, and you have been indoctrinated into the well-you-know-they-don't-really-make-any-money-off vaccines-anyway school of thought, let's just put that to bed right now. Take a good long look. Couple that pure profit with unchecked legislative freedom and unethical business practices and you have what is known as the perfect crime. Which is what it is. A CRIME. Because these folks, who are ethically appalled that my doctor may give your child an enzyme with some vitamin A, do not pay their taxes, (HERE). Mr. Conan is nothing more than an angry man with an ax to grind who is in the right place at the right time.
Whew. Now that we've got those pesky facts out of the way (something my well-paid journalist contemporaries fail to check) I would like to get to the heart of the matter. The loss of the American media. Where'd they go? Anybody know? Our reporters, our chase that story/just the facts Lois Lanes have all retired to Boca and they've been replaced with dictation-takers. Play it safe, establishment-loving, approval-craving dictation-takers. My friends and I, busy concerned moms with incredibly sick kids, we are the new media. If that seems like a bold assertion for a suburban housewife to make it might behoove you to know that real reporting is not all that glamorous. Mostly because of all the annoying, necessary fact checking. For instance, how do you think I got access to all the links I just provided for you? Do you think I called the CDC and they said, "Why Mrs. Goes, we would be delighted to sit down with you and talk about all our secret and lucrative deals with pharma. Oh, I can hear the little ones in the background. You must be terribly busy. Tell us, when is a good time for you? We'll make ourselves available." No, that's how it works for the dictation takers. Read, Evidence of Harm, by David Kirby, if you'd like to know how the government treats concerned parents who attempt to educate themselves about westernized preventative medicine. God, what I would have given to have had someone gift me with that eye-opening chronicle of Sally Bernard et al., before the birth of our precious Noah. The discovery process in the medical world of immune system and neurological damage is like waking up each new day to a sucker punch. It's not autism at all. At...all.
Our media, like our doctors, have become lazy. They've stopped thinking for themselves. And gosh darn, if they don't value comfort over the truth. Even if it is just the illusion of comfort. Still better that we are all sitting around agreeing to believe the lie rather than confronting it. Yeah, there's a wild 90 lbs kid spitting, jumping in people's laps, hitting himself and taking off his pants right in front of us all. But if nobody looks, maybe he will go away. Really. He might. This hope personifies the group think mentality of our media and our medical and scientific communities. Sprinkle in a few feel good stories about a kid with autism winning a race or giving a speech, make sad faces at the camera when covering wandering deaths, and put the finishing touches on with a "new cutting edge study". Maybe the old reliable standby about enlarged heads in infants with autism or the preemies get autism theory, and everyone can just keep cruising along like it's the good old days when you only got "the cancer" if you worked at a power plant or smoked a pack a day.
When I entered the world of autism activism in 2009 I was told by several of my colleagues to steer clear of the author of this series of articles about Dr. Usman. I was warned she was repeatedly presented with the real science, she was given a multitude of opportunities to speak with recovered kids and their families, but she chose not to listen. Apparently she's made the most intelligent among us sound like blathering idiots. People have actually used the word "dangerous" to describe her. Over the weekend she had a rather civil discourse with my husband regarding her most recent article. Of the many paragraphs they exchanged via email, I found these comments most vexing:
"...I think we agree at least on the most basic thing - that these kids deserve the best treatments. One thing I hear over and over from parents is the vivid sense that they are not getting that from mainstream medicine, that science has, at bottom, let them down.
I totally agree that a few individuals are not the best way to sort out good from bad. I think people - all of us - are really really terrible at determining that with our intuition and gut. I think thousands of years of history proves that. Over and over, we have been fooled into thinking treatments work and are safe only to find out they do not and are not. Our gut, our intuition, our "clinical sense" has proven to be unreliable.
But science isn't. With well-designed trials, replicated to get rid of chance results, or results from some mistake or bias, we can get a solid idea of what works and what doesn't. Otherwise, we are just guessing.
I am not coming at these treatments from the position they do not work. I don't know that. Nobody does. But nobody knows for sure they work either. Because the right studies have not been done. My position is that nobody knows if they work or if they are safe."
She admits the studies have not been done. I find this disturbing because the mantra of the establishment she defends repeatedly asserts "the studies have been done". Which stance is true? She falsely states that she is taking an unbiased position on whether or not the treatments work. She actually believes real science is being practiced in pharmaceutical research facilities. Friends, these are not the words of a dangerous journalist. These are the words of a fearful woman who has probably made some poor decisions in her life. It's just easier and better to let someone else ferret it all out...someone who is real smart and understands all this medical stuff. She forgets that perfect science is executed by imperfect scientists with mortgages to pay, families to support and reputations to uphold. Their reputations are no longer about their character, but rather their ability to bring a product to market. Greed is the new honor. This reporter has zero understanding of the science of which she speaks and it's sociopolitical roots. Who better to write about it? Folks who do not understand but infinitely respect the notion of unbiased pharmaceutical science make great reporters, especially when they are uninterested in investigating the claims of parents. In all honestly, who, among the unaffected wants to break this story? If what we say is true, this is a dangerous, dangerous world. Our children are being harmed by their healers. It's too sick to fathom. So...don't! Instead, just follow. Like a good soldier--an obedient child. This reporter's need for safety overrides her common sense time and time again. Thousands of parents will tell you their child became ill and withdrew socially after their immunizations. Thousands. But because the actual decline was not documented in a clinical environment, it was not wordsmith-ed in a press release, it is impossible for journalists to believe. The person, the individual, simply does not have a voice because they cannot prove they were damaged in a laboratory setting. Labs cost money, just like newspapers do. Pharmaceutical dollars fund them both.
I get it, I really do. If kids weren't dropping like flies around me and I didn't attend children's parties where more than half the attendees were medicated or wearing pressure vests I would be cruising along in la la land right beside her. I do not have that luxury. My eyes have been opened. I have an obligation to act. Unlike this reporter and her contemporaries, I choose to see the real world around me instead of justifying it's corruption under the guise of the ever popular notion of the "herd".
Dr. Usman is one of the many doctors on the team of world renown research physicians who have helped heal my friend's child. I cannot name names because her daughter's case is one of the few left standing in the VICP. This friend prohibits me from using the "r" word in reference to her child because as she would say, "LJ, she's held together with many many medical band-aids." Her daughter has been and continues to be treated for adverse reactions that resulted from excessive stimulation to her fragile and underdeveloped immune system. She is now in a mainstream classroom without an aide. Sometimes she talks too loud. She is charming, affable, completely present, spontaneous and social. She and Noah have many things in common. Neurological and intestinal inflammation, mitochondrial disease and bowel disease to name just a few. You would never know this child ever had autism. Have we all been "...fooled into thinking treatments work and are safe only to find out they do not and are not?" She had autism. She no longer has autism. Noah has autism, is in a special classroom, is not potty trained, and still cannot sit in a chair unassisted. Are we "just guessing" that she is better and Noah is not? My friend didn't heal her daughter by trusting her gut or her "intuition," she did it by researching and pursuing treatment for her from the best physicians in the country--real MDs who are treating "immune compromise" and mitochondrial dysfunction. This family is two years ahead of us on this journey. If given the chance to speak with them I imagine this reporter would surmise that their daughter was probably mistakenly diagnosed and never had autism in the first place. Because that's what we are told when we drain our 401K's, sell our houses and our cars and live paycheck to paycheck to get our kids better. It's what everyone needs to believe. Thousands upon thousands of us just made it all up. No matter how many more seemingly healthy kids get sick. And die.
Ms. Reporter, I hope you are listening. You were right. Mainstream science has indeed let us down and our kids do deserve the best. Our kids deserve Dr. Usman and her colleagues. The elite, sought after, forward thinking researchers who've risen to the top amidst an endless sea of unquestioning medical mediocrity. My friends and I are available to help educate you at your convenience about the devastating medical illnesses that have been mislabeled as autism. If you would like to speak with us we will be there supporting Dr. Usman November 28th. We look forward to your intelligent and informed questions.
Lisa Joyce Goes is Managing Partner of The Misuta Project, Contributing Editor for Age of Autism, and Executive Board Member of the IllinoisCanary Party