Court Rejects Wakefield Appeal

Texas judges reject Andy's appeal, won't allow his defamation suit against Brian Deer and the BMJ to go forward. Sad, but not terribly surprising. Court also orders him to pay all costs. Nasty. -0- Comment from David Foster on CDC's...

How Mercury Triggered The Age of Autism

Conversation with the Authors of Plague

Autism Public Service Announcement

Canary Party Vaccine Court Video

A Glimpse into Autism

Meet Our Advertisers


Olmsted's Original UPI Series

  • The Age of Autism Tag

« Prevent Restraint & Seclusion Parent's Guide "Shouldn't Schools Be Safe?" | Main | Scientists and Drug Companies Scheme to Avoid FDA Scrutiny and Exploit US Vaccine Programme Immunity Against the Public Interest »

Spend Two Minutes with Autism: Is THIS The New Normal?

015 Reprinted with permission from the Gaia Health Blog. And that's a real crapisode in the photo. Take a look at normal...  and now read about the truth for countless families. KS

By Lisa Joyce Goes

Today is Sunday, May 15th. My husband Dave took our daughter Mads to the museum in Springfield with my in-laws. I stayed home to potty train my 4 year old son with Autism, Noah, and my 3 year old neurotypical son, Liam.

It's grey and miserably cold for May in Chicago so our frequent trips for breaks outside are not an option. I set out to take them both to the bathroom every half hour. This is a huge battle since our son Liam, while entirely capable of using the toilet, chooses not to because his big brother Noah, "not go". So both scream, have a fit and cry, everytime I take them to the commode.

Liam sees Noah behaving this way, and while he is completely verbal and actually says, "Poop yuck. Change me," he conforms his behavior to that of his older brother. I am thankful he was not with me in therapy last week when Noah humped an 11 year old girl while I tried to talk to his speech pathologist, or when he open-hand slapped my lovely neighbor across the face, who was guilty only of trying to keep him from running into the street.

Between potty breaks, I tried to get a jump on dinner for this evening. This was when Noah decided he had to use the bathroom. He went into the toliet area to take off his diaper and stripped off his clothes. (Putting his diaper and clothing back on after he has removed them is something we do up to 37 times a day.)

He then headed for my daughter's room, where he promptly defecated all over her bed. He has been on an organic gluten-free/casein-free diet for a month, so his stools are strange, frequent, and always the consistency of liquid or oatmeal. This one was the latter and could have filled a quart-sized jar—a shocking quanitity, since he'd had three previous bowel movements already this morning. He took this foul smelling detritous and threw it on the ceiling, smeared it all over his face, the walls, and her shag carpeting.

He then ran into our room, with a lump of it on his leg, and rolled around in our white sheets and all over the bedspread. He dragged his poop-smeared hands along the walls and finished his tour-de-shit by smearing the last turds on his toy chest and books.

Noah then ran down the stairs and tackled his little brother Liam in a fit of laughter. This entire episode took less that 2 minutes, the time my PTS autism mom mind allows me to go before I shout throughout our 5,000 square foot, shit smeared house, "Where is Noah?"

2 minutes.



My friend Ginger's son got out of their house last week and was 2 blocks down before he was discovered.

2 minutes.

I'm not gonna sugar coat it, our son Liam—he is going to have issues. This 2 minutes, I don't know, it just...the vastness of the destruction, the amount of feces I clean on a daily basis, and Noah's absolute inability to understand how truly disgusting it all is and the work that would be required to sanitize. Where to start? The shit in his mouth, his hair, or his sisters room? I dropped to my knees and just started sobbing. I mean, sobbing.

I have a really solid relationship with God, as I have been deathly sick and truly poor, two human conditions that get you on a first name basis with the almighty real quick. But this time, instead of my usual prayer for peace, "God, please be with me, this too shall pass, all things in time, I give this service up to you with a glad and grateful heart."...This time I stared right up at the ceiling with my shit-covered clothes and cleaning supplies and I screamed, screamed!)
 
Fucking fix this! Fucking fix him damn it! Fix this! Fix it now! Fix this fucking house and fix this child because I am not enough and I cannot do it! What do you want from me? I can't do this anymore!
 

Noah was still running around like a wild man walking through feces and spreading it all over the catwalk and the railing. I bent over, my face hitting a piece of carpet smeared with [you guessed it[ and just let it all go. Liam crawled out of his crib. (I put him in there in times like these to keep him safe and as poop free as possible.) He came over to me, patted my back and said, "It's okay momma, it's okay."

On a side note, those who may feel I am dishonoring my son in some way by relaying these stories—the slapping and humping—it is imperative you understand those behaviors are not my Noah. Those actions are the product of a severely vaccine damaged neurological and central nervous system. He cannot and will not be held responsible for those actions. Just as we do not shout after veterans who've lost their legs in war, "Hey, Dude, can't you walk straight?"

Don't you dare consider telling my son to "mind." He cannot. His mind has been destroyed. I simply care for what was left behind, the beautiful, delightful, and extraordinary soul of a little boy trapped in a body at war with itself.

I willingly and enthusiastically gave his thinking mind to Merck, Sanofi Pasteur and Wyeth without knowing they did not test their vaccines for combined effect. Noah is not to blame for my poor judgement and willingness to let those in white coats do my thinking for me.

Friends, you are about to see a whole slew of reports, data, and information that is designed to make you think autism has always been around. You are about to hear about all the promising new "treatments"—that is, drugs—that are in the works to help our kids.

I am guessing you are also going to see oodles and oodles of feel good stories about high functioning kids with autism—kids who can fly planes, drive firetrucks, give speechs and win marathons. These stories are wonderful and I applaud these children for their accomplishments. However, all of this is meant to keep you from thinking we have a real problem, a real epidemic on our hands.

I guarantee these children were not shitting themselves up to 9 times a day because of the measles in their gut. Then again, I don't know. Maybe they were, but their parents got them to the right doctors and got them recovered. I guarantee you will not hear that part of the "feel good" story.

My son was irrevocably harmed by vaccines. I will fight for his recovery until my last breath, but God...God! I do not want this to happen to you.

Do not accept what archaic, out of touch institutions are trying to sell you in an effort to stay in business. Without you, they cannot exist. Every educator I meet tells me they have never seen so much autism or neurological dsyfunction. They lament systems incapable of handling the vast amounts of services these children require. Our doctors and nurses are getting it too. They have been opening their eyes...because it has begun to affect them and their families.

Please, as you review the information that will be pushed at you via popular news outlets, think about moms like me, who do not get paid to do this. And think about the commercials you see between news segments. Think about your trips for well-baby visits and the posters you see on the walls. And think about me, crying out to God, swearing like a sailor, trying with all my might just to make it through another day. I don't want your pity. I want you to educate yourself and take action.

My Noah and all our kids will benefit immensely from you taking your healthcare and your children's healthcare into your own hands. Do what is right for your family and never ever let someone else make important medical decisions like vaccination for you and your children.

Best, LJ Goes

LJ Goes is Managing Partner of The Misuta Project, LLC, an autism media company in search of the truth, in support of those pursuing it. She is a writer and autism advocate and mom to three children, Madeleine, Noah and Liam., which focuses on misrepresentations about autism.

Lisa is behind the video, Street Corner Autism Debate—a brilliant take-down of the pathetic arguments routinely spewed out to belittle autism and pretend it's not the result of vaccines. Take a look:

Comments

Feed You can follow this conversation by subscribing to the comment feed for this post.

Teresa Conrick:
I have seen you blog at other places, and I know your not a bully. You have always responded calm and reasonable - where as if I responded ---I would have to either strangle myself or use bad words brcause there are a lot of bullies out there.
Kim thanks for not allowing some of these comments in - we have to put up with them in real life, with all psych, most doctors, some nurses, and all of the other blogs .It is nice to feel free here.

There is nothing worse that telling a doctor, or writing on a blog something like this:

I saw my kid thirty minutes after a DPT shot pass out and gasp for air, or I saw my kid a few hours after a DPT shot have a stroke, he had to relearn to walk and talk again and now has seizures, and autism.

In response to this they either come back and tell me I did not see what I thought I saw????!!!!! or I am totally ignored like it never happened, or I am really one of these rare cases and that is just too bad, but it has nothing to do the rise in autism or anything else it is just an event all to itself and means nothing.

We are all here as we have sick children- autism, adhd, seizures/tics, allergies, asthma, immune/mitochondrial dysfunction and cancer. It has been reported just this week here http://www.sciencedirect.com/science/article/pii/S1876285910002500 that over half of the childhood population suffers with serious illness. Suffers......eating, sleeping,
breathing,communicating,toileting,focusing.....living. That is reality and I just find it hard to believe that some posters here are able to ignore that and instead call me a bully? Please look at the children and those yet to be born -- they are also why we fight.

Eileen, it has been a vaccine heavy year as the mainstream media came out with a couple of books last year/winter that specifically were meant to undermine attempts at vaccine safety. We have lots of categories - vaccine safety is one - and we have so many parents of vaccine injured kids here, it's the one safe place to congregate and we try to keep it that way. The mainstream media will tell you about every case of whooping cough in the nation, but never mention the VAERS. You know how lopsided it is - we've been active on the topic in part as a reaction to the onslaught of stories designed to frighten and cajole and rather brainwash parents across the country in major dailies.

We believe we have to turn off the spigot while working toward better treatment - it's a no brainer. Otherwise, let's just buy ambulances for the maimed kids rather than putting a fence around the school yard.

Hospice isn't enough for cancer research nor autism research.

We can always agree to disagree - and we can even get angry at each other - we're not saints nor children. We're parents of very sick kids trying to do our best for them in our own unique styles.

KS

Eileen,

"I want to help my kids NOW, not just prevent future cases of autism. Therefore, I reject the myopic tyranny of anti-vaccine fanatics. There is more to the world of autism than that."

Agreed. You said it perfectly. There's SO much more to autism than vaccines and that's why the more voices (such as yours) there are in this discussion, the better. I also agree that the bullying and insults have to stop. That kind of unproductive behavior will eventually be the undoing of all the efforts to secure education, support, and eventually a cure for our kids. A lot of people in positions to help already don't listen. Will the backbiting and insults somehow persuade them to listen? And what about the few and far-between who do listen? How long will they take seriously a disjointed community that's fully engaged in a civil war over whether it's the vaccines or not? We come off as crackpots to the majority of those who are in a position to help. And it's not because of the science. The science is solid. Yes, there's room for debate on both sides and both sides have questions that should be persued in the spirit of solving the problem rather than proving who's right. But by and large, the science is solid. The reason those in a position to help don't listen to the solid science is that the community presenting it, our community, is not a united front. We scream and we holler and we hurl insults and are generally viewed as petulant whiners engaged in an on-going temper tantrum. Yes, we are angry and frustrated and upset and we sure as hell have every right to be. However, succumbing to that anger such that we turn on ourselves and each other will not accomplish the goals of the autism community. It will shatter those goals. I'm not saying to give up, far from it. I'm saying that we need to stick together and present a strong and steady front and we need to keep the world's attention focused on the science. I think it's the only fighting chance our kids have.

I am not passive aggressive, just frustrated that the entire autism conversation in the media is always about vaccines, and your site seems to contribute greatly to that. I see so much that needs to happen in schools and in the community. I have been on here trying to understand where you are all coming from, and I still don't get it. Nor do I get why you become so upset when anyone questions you. And it isn't just me. Dadvocate was smart, knowledgeable and deferential, and he was still attacked as the enemy.

Eileen, you are a common variety here, the passive aggressive AofA reader. And yet you keep coming back to poke the bear with a velvet stick. It's not bear season right now though.

Kim

How predictable that the one post of mine that makes it out there is the one where I am upset. Not the one where I offered sympathy to the writer of the article, or mentioned the potentially helpful story of my friend's son who stopped "smearing" when his anxiety was lessened by a low dose SSRI. You really do frame people on here. You decide where someone stands on vaccinations and then obliterate any posts that are positive or thoughtful, wait for them to become frustrated, and then post that. You also avoid posts that ask hard questions. I have probably submitted 20 comments on here over the past few weeks, and only about 5 have made it on. You really do your site a disservice. It quickly becomes apparent that there is no quest for truth here. The world is flat, and that is that.

Eileen, nobody is presuming anything about how hard you work for your child. Nobody knows how difficult your life is nor how the level of difficulty compares with anyone else’s life. Teresa is not a bully, and her focus is not negative and angry. Your focus, on the other hand, is negative and angry. Your comments focus on maligning others as well as feeling insulted when nobody is insulting you.

We all want to help our kids now.

If you don’t like this blog, why do you read it? Go read some other blog where they don’t write about vaccine injury.

I still find it amazing that as I am blocked from ever commenting when I have two daughters with ASD. And Teresa is a bully. And please don't presume she works any harder for her child than I do for mine, or that her life is any more difficult. If it is, maybe it is because her focus is so negative and angry. I completely agree with Dadvocate...I want to help my kids NOW, not just prevent future cases of autism. Therefore, I reject the myopic tyranny of anti-vaccine fanatics. There is more to the world of autism than that. But, of course, you won't post this, but at least I got it out.

Dadvocate, this is how I sometimes feel these days:

On the one hand, there are those of us who believe that vaccines are one of the major causes of autism – probably the main cause of the huge increase in autism over the past 25 or so years. The reluctance of our government and mainstream medicine to admit to this has resulted in failure to address root causes and to find effective treatments. Some children are being recovered from autism with alternative biomedical treatments, yet these treatments are ridiculed instead of studied. Among the vaccine/biomedical community there is, understandably, a lot of anger. Sometimes this anger spills over in ways that IMO are not constructive, and are alienating to some people who might possibly be willing to listen.

On the other hand, there are autism parents who don’t believe in vaccine causation or biomedical treatments. I’m not talking about villains like Dr. Offit and Orac, but about good hard working parents who love their children, advocate for the very best education and therapies and recreation, and are now becoming involved in advocating for adult services, employment, living situations. I don’t understand why these wonderful people are so close minded when it comes to vaccines and biomedical treatments. I have total respect for someone who has tried the GFCF diet and found it did not help their child; but I can’t understand someone whose child has GI and behavioral issues and has never tried dietary intervention. I can’t understand Autism Speaks not getting involved in study and advocacy in relation to vaccine issues. Sometimes I imagine a huge wall – either a glossy smooth blank white wall as hard as stone, or a marble wall. No matter how much anyone throws themselves against that wall, there is no dent, no response. Just a hard, cold wall.

Lately I hear people say that we should focus on common ground. Someone said that the federal government wants us to get along and present a united front instead of infighting. I responded that the federal government has the responsibility and obligation to address problems in the vaccine program, to make that program as safe as possible, regardless of whether the autism community is united or fractured. Focusing on common ground is indeed a wonderful goal, except that the implication often seems to be that we simply drop the vaccine/biomedical issues so that we can focus on advocating for services.

One of the problems with that is that if we continue on the present course, with autism, ADHD, bipolar, and a host of immune system disorders constantly increasing, we won’t have enough employed taxpayers to fund all those services, no matter how much we advocate.

And the vaccine issue should not be compartmentalized into some separate dimension. It is related to so much else. Recently a study claimed to have found signs of autism in babies aged 6 to 12 months. This was celebrated as a way to identify babies in need of early intervention and start early intervention even earlier. It seems to me that what should also be looked at in relation to these babies is whether they have shown signs of vaccine reactions, whether they should consider an alternative schedule or moratorium, certainly approach vaccines with great care. And, do they have medical issues which should be addressed? GI, mitochondrial, oxidative stress, inflammation…?

When you, Dadvocate, point out the parts of AutismOne that are interesting to you, and completely ignore the biomedical topics which are so central to, for example, Teresa, you think that you are being friendly and sharing, but you are actually being like that hard blank wall. That is the context of your comments. I don’t think Teresa was attacking you when she said “silly you forgot all the medical issues being discussed...” and “Turning your head and being such a good sport about kids being injured by vaccines seems to be a freaky skill that you have.” I think she was saying in a straightforward and reasonable way that you can’t just ignore her reality (which is shared by so many others too) and expect to get a positive response. Have you read her daughter’s life story, and all the issues that Teresa deals with including seizures? You can’t expect her to react calmly when you present that wall. She has worked so hard, studied so much, to better understand her daughter's severe health issues, of which mainstream medicine has barely scratched the surface.

You are to be commended for your advocacy for adult services and research. It takes all kinds to make the world go around – there are many kinds of important work to do – not everyone has to be involved in biomedical and vaccine advocacy – we all come to different conclusions and need to respect each other’s differences. Still, you need to acknowledge that many parents have experienced their children’s vaccine injuries and ongoing physical health issues which in many cases have been treated more successfully with alternative medicine than by mainstream medicine. That may not be your reality with your child, yet it is real.

ConcernedMom said, “We don't really know who is right because a cure hasn't been found yet. Once a cure has been found, then we will know who's right. Until then, the discussion must continue with different comments, contributions, ideas, and approaches because the more we have, the better the chance of finding the cure.” I don’t think we will ever find “a” cure for autism – not one single cure that works for everyone. But there are some people with autism who have recovered with treatments. So “cure” for some people with autism has indeed been found already. I know kids who have recovered from autism. Dr. Robert Sears says in the Afterword to “The Autism Book” that among children with autism who receive comprehensive biomedical treatments and behavioral therapies, about:
- 5% will lose the autism diagnosis, become neurotypical, and not require ongoing specialized treatments to maintain recovery,
- 25% will reach this same level of recovery but will require ongoing treatment to maintain it,
- 30% will show dramatic improvement but will still be autistic
- 20% will show modest improvement, and
- 20% will not seem to respond to treatment at all.

What a shame that so far we don’t know more about which treatments will work for particular children, yet amazing that some effective treatments are known.

I agree that “discussion must continue with different comments, contributions, ideas, and approaches”. I feel that often the non-biomedical side of the autism community is so convinced that they are right that they don’t listen and don't even want to discuss. Cooperation involves more than finding common ground. It also involves understanding what is most important to the other side.

I don’t know whether I am being clear or whether this all seems like it is just meandering...

I guess what it comes down to is that a hard blank wall is not better than anger, and vaccine injury is a terrible problem which must not be ignored.

John - I do advocate for AS on certain issues, but don't blindly trust or wholly agree with any large organization so I'm not suggesting that anyone else ought to either, whether on AoA or anywhere else. However, large organizations with clout can be very effective tools to leverage key issue, many of which were largely ignored by policy makers in years past. While most at AoA are focused on vaccine related issues, which I believe are very important, there are many many issues and I believe that ASA or ARI or TACA or AS can agree on while agreeing to disagree on others. I did duck commenting on the Kim study because I still don't know much about the whole thing.

Dadvocate-

Well, it appears you have missed the boat....using your fly fishing analogy. You comment here, a post about GI issues, vaccines, family trauma and the epidemic numbers of autism cases yet you bring up "a drain in the bathroom floor"...? What was the point of that except to detour the conversation back off of the huge issues of vaccines causing autism?

You are taking the tragedy of autism ie vaccine injuries and are ignoring major components and I would say in a denying and obtuse fashion .."I am not familiar with much in the way of glee regarding autism." Glee?

Of course housing is an issue but posting about drains in the bathrooms of severely ill children who have been vaccine injured is an insult to all of the families dealing with this unbelievable and painful world for their children. Your lack of understanding that those "fellow travellers"..... "OCD anxiety depression rage etc"...are being incorrectly classified as "comorbid psychiatric" when they are part of a whole package of medical illness and for most readers here and many of the children with an autism diagnosis, are direct hits from vaccines.

Lastly, I'm not sure why you are calling me "T". I don't see you doing it to any other posters so respect my full name.

I just remembered something important. My son is very verbal. At age 5, he did the smearing only a few times, but it caused great despair. I thought I had my own priave Long Kesh.

I asked him why. He said "it was stuck mommy I was getting it out". THen I said why did he smear . "I wanted to get it off my hands".

Anyhow, I then by the grace of God found a google that said someone's child only smeared when he had eaten corn on the cob. This had been true with my son, and I never gave it to him again. And he never did it again. Wanted to pass it on in case it helped. ONce again a 'crazy autistic behavior' had a logical cause if we knew it. Imagine the confusion in already upset bowels to feel something was 'stuck'. . .

And yet, I still can't convince him, now 10, to poop in the toilet instead of underpants in the bathroom. And yet, the underpants in the bathroom is nothing compared to the past, and so I don't think its so bad . . .

Dadvocate

I have I think two linked points here. I have taken it as your long term concern that AoA readers have greater trust for Autism Speaks, and of course I too would love to think that we had a great and powerful organisation like that genuinely committed to our children's interests. This is why when I doubt its motives I address the question to you, I would actually like AS to address them, and since you often act as advocate for them (however unofficial) you may be the next best thing. And as it is I see you have passed on the publicity given to the Kim study.

While also accept the imaginative possibility that psychotropic drugs could help a great with autism (and without high levels of risk) I have to admit I would like to know a lot more about it before abandoning my caution and my scepticism.

Dadvocate, your comments are very much appreciated by a lot of people. I'm sorry you were attacked here. I don't know why others feel the need to attack. It happens a lot here and on other autism websites. Of course, parents are upset, frightened, exhausted, at their wits end so that explains most of it. Still, it's hurtful and only adds to the unproductive divisiveness that is already rampant in the autism community. I send my thanks to you for your comments and contributions and I send my thanks to all the others who have made comments and contributions, whether I agree with them or not. Just because I don't agree with someone's comment or contribution doesn't mean I'm right. We don't really know who is right because a cure hasn't been found yet. Once a cure has been found, then we will know who's right. Until then, the discussion must continue with different comments, contributions, ideas, and approaches because the more we have, the better the chance of finding the cure. And if we can continue that discussion without tearing each others' throats out, the whole autism community would greatly benefit.

John - I'm a fly fisherman so know not to rise to the bait, but, since I think your heart is in the right place, here you go...I am not familiar with much in the way of glee regarding autism but welcome pharmacological research (and therapies)because some (many?) people on the spectrum suffer greatly from often debilitating conditions like OCD, depression, uncontrollable rage, self injury, injuring others, etc. Helping these people (who are our kids, brothes, sisters, cousins) achieve a better quality of life doesn't mean research in other areas to help prevent more people from being affected by ASD can't take place. Ignoring their obvious needs in a single minded quest for a cure isn't in my DNA. I don't believe in writing a generation off.

As for the Kim study, I don't know much about it and pay little attention to individual studies anyway, especially "incidence" studies. If you think AS is using it as a marketing tool that's their business and you're free to protest loudly and widely.

T - You may want to go a bit lighter on the ad hominems and inflammatory language like "silly" and "freaky". They tend to undercut your arguments and irritate people like me who helped fund (more than a decade ago) a large population longitudal study that for the first time identified eeg abnormalities, seizures, and epilepsy in 60% of the ASD population. It was ignored at the time but is always cited now. It appears that a few folks are finally jumping on the bandwagon which is I guess OK. I hope it leads to more widespread use of 24 (not 3 or 8 hr) eegs, which, while still dismissed by a lot of mainstream types are stongly recommended by Autism Speaks, as are GI investigation and treatment, when suspected.

I spend most of my time now focusing on transition and adult issues so pointed out what I thought were a couple of interesting sessions at AutismOne in that category. You know the 50+ years that come after the first 20 with those "nuisance kids". I thought you and fellow readers would appreciate the comment...but apparently I was wrong.

Dadvocate

I notice you did not respond to my comment below:

"I think at the very least we do not know enough about these initiatives to welcome them. The prospect of another wave of psychotropic drugs to control symptoms rather than address causes does not exactly fill the heart with glee. I also protest against the blatant manipulation of opinion in the press launch of the Kim study. It doesn't deserve to lead to trust."

Christianson;
I do not know how old you are, but I remember when you could walk across a few rivers, the Great Lakes were dead, esp Lake Erie. Chemical companies, sewer of cities, and who knows who else thought nothing of using water ways to get rid of their waste. Cars now have platinium (most expensive stuff in the world, even more than gold) in catalitic converters, and there are tall chimneys that give plenty of time for smoke particles to fall back down as they cool. They now additionial have scrubbers in tall chimneys of coal burning electric companies, so all that gets out is carbon dioxide the same stuff you and I breath out.
Chemical companies that make pesticides are regulated by the EPA. All chemical companies have environmental labs and they test the pesticides before using them on at least seven if not more generations of rats, mice, rabbits, chickens, rainbow trout fish. They also test different concentrations of the pesticide or what ever on these different spiecies too. They test live speicmens neurologically, and take blood samples. They then at a certian time kill these animals seperate all their organs and all their body parts, and put them in jars to keep them till the moon turns to blood, and Jesus Christ comes back to claim his throne on Earth.
Landfills, is a science unto itself. They look for areas that have natural non-porous clay bottoms, always away from streams, they now lay layers upon layers of other materials down before they accept trash. They burn what they can, they spread it thin, put dirt on top of each layer, and stick pipes in so methane can escape. None of this they had when I was a child by the way, but when they started cleaning up the rivers, the lakes, the air, the dirt, the country - then we started seeing rises in autism???

That does not make sense?

I told the NIH, CDC, the doctors, my Congressmen, the people who teach at the medical universities, who ever I could write to or would listen as far back as 1987 what I observed, and that was both of my kids running 105 temperatures, passing out, gasping for air, having strokes, having inflammed heart valves, Kawasakis, right after a DPT shot. But that was just my two kids and nobody elses so why listen to me.

If we are not careful---- they will - because they are wanting to, looking to do it, squirming like a bunch of snakes to get out of trouble - look for every environmental thing under the sun including cow farts, and human being sighs --- untill about the same time the environmental labs of chemical companies throw out their specimen jars - which will be about the time Christ comes back.

Dadvocate-

We will definitely enjoy Autism One as we learn about new treatments and research to help our very sick kids. Silly you forgot all about the medical issues being discussed- seizures, bacterial infections ie - intestinal clostridia, strep, Desulfovibrio (you know, that one that they are finding in many autistic kids' stools...the one that appears in the environment when there's a lot of mercury around), viruses like measles that tend to linger on a bit too long in the intestines and brain-- and who can forget the GI issues- inflammation, colitis,constipation, diarrhea,and then those pesky glutamate receptors wreaking havoc and causing inflammation, pain and the behaviors they bring like biting, head banging -- yes..those nuisance kids and their big swollen bellies and brains..

Turning your head and being such a good sport about kids being injured by vaccines seems to be a freaky skill that you have.

I would like to add that though vaccines could very well be responsible for autism, we need to look at the countless other dangerous chemicals we encounter every day in our electronics, car interiors, carpet, mattresses, plastics and other petrochemical products, and household cleaning products. If people understood the magnitude and breadth of what we are exposed to DAILY, the conversation would include more than just vaccines but a whole approach to how we shop and from where.

My son with autism is about to turn 30 years old. I remember times like the one you describe. I can laugh now, but was in frustrated tears then.

Take a deep breath (outside) and keep going. It should get better soon.

Kathy Henley
Portland Oregon

T - There is much to agree on! I've attended AutismOne in the past but can't make it this year (Memorial Day weekend is always tough). I am glad to see that they have the First Responder training again this year with Dennis Debbaudt and Stephen Shore. Lowering and mitigating risk is an issue with broad consensus that the whole community needs to be aware of, not just first responders. Wendy Fournier's talk on wandering is a critical component of managing risk for some.

The Adult/Adolescence Track and Think Tank with David Holmes, Stephen Shore (he's everywhere!), etc. should be very good too. Sorry I can't make it this year. Enjoy.

Dadvocate-

We at least agree on the rural adult housing issue. Are you attending Autism One by chance?

This story needs to be told. Thank you. I don't even think I could write our version of it. I'm in awe of you being able to do it. Thank you.

Thank you so much for sharing this experience, Lisa. I hope you have found some comfort in the heartfelt responses from so many parents who have also experienced terrible "crapisodes".

Our son went through a poop smearing phase when he was about two. I would try to keep him in coveralls with a couple of layers to make access more difficult, but he was like Houdini. We would listen for the sound of him waking up from his nap so that we could rush in before he did his mischief, but often to no avail. What finally ended it was that my husband lost his cool and yelled at him really really hard. I felt terrible at the time and reproached my husband, but our son never smeared poop again. I certainly don't recommend yelling, and I certainly don't believe yelling would work for everyone, just sharing our experience. Later when I would hear about complex behavioral management programs, I would remember how our son was cured of poop smearing and it struck me as humorous, in a dark way. We rarely yell at our kids, but this was one occasion that drew forth that very loud decibel, probably hurting his hypersenstive ears, poor thing. So glad those poop smearing and diaper changing days are behind us. Someday, one way or another, they will be over for you too, I am sure. In the meantime, good for you for cleaning and writing and screaming a little and persevering. Things will be better.

This is the kind of behavior that used to go unnoticed 30+ years ago because we didn't have the heightened awareness that we have today. Yes, children used to smear poop all over the house, but nobody even noticed. Alas for the awareness campaigns, without which we would not even care about the smell.

Those without special needs kids, just can't possibly imagine. I somehow trained myself to keep my children within my sight every second. How is this possible? I don't know, but it just had to be this way. I used to be only able to spend 20 seconds in the bathroom because anything longer would allow time for a catastrophe. I don't know how I managed. It was a struggle to get through every second. I didn't even have time to cry.

Such an emotionally wrenching article, which brought me to tears. Sad, too, is that so many families can relate -- as many of these letters attest. But thank you, L.J. and all, for sharing your stories. The larger public needs to know what's going on, hidden in our homes.

Our family had more than a year of diapers filled with soupy brown goo, with no help from the pediatricians except "he'll grow out of it." Well, sort of... the pendulum swung in the opposite direction of low motility, which has improved with L-carnitine and magnesium.

It's obscene that the medical professionals helping our sick children have been subjected to witch hunts. Compassion shouldn't be viewed by medical trade unions as a zero-sum initiative.

Please go to thoughtfulhouse. This is very similar (though worse) to days in our lives with our now HFA child (who at 10, still won't poop in the potty but it only takes about 5 minutes and at least he goes in his underwear)

But it is so much better now. Our life was hell and I think it is a PTSD thing. He had been GFCF for years. Helped. But not enough.

We took him to thoughtfulhouse, had him scoped, did SCD, did LDN, did meds with Dr. Krigsman, (did not do propylene glycol for cleanout though) did all the typical things, everything BUT chelation. the bottom line is, he finaly mostly healed. When relatives can't believe I'm not freaked out by his pooping in his undies, I simply can't explain. but now I'll send them your story and say "I'm not freaked because it used to be like this". I went through a box of clorox wipes and 80 kid wipes a day cleaning up the bathroom. He only splattered all over the bathroom not the rest of the house, by the grace of God. He splattered DESPITE his undies because it was explosive and awful. I too had moments of total total despair. Despair so terrible I gave up having despair. It was useless. I didn't fully feel this until it is now almost just a bad memory. I lived in a fog of denial or I would have had to jump off a bridge. Denial a good thing. We didn't even have to deal with other rooms like you did, or a second child witnessing this hell . . . our perfectly healthy chidlren developed alzheimers. that's all you need to know if you've ever dealt with alzheimers which also causes hideous bowel issues in some . . . The only saving grace is it can be reveresed with some of our kids. . . . for mine he is now doing very well and you would almost not know he used to be sent home evry day from kindergarten for banging himself against walls (pain in his abdomen that was called a behavior) and for running around like crazy (I think after playdough and he was GFCF but I ran out of energy begging the school to get rid of it because he never slept so neither did I). My heart goes out to you. Please try to find a gi doctor who will listen if you have any time to think straight.
This story is why Dr. Wakefield is my hero. His research saved my son. My name is not posted here due to my son's fathers wishes but if you write the editor, she has my permission to give my email to anyone who thinks I might be helpful. There was also a story by a woman at one of the autism events about how SCD saved her from jumping off a bridge with her autistic son who was about to be institutionalized . . . . he was in severe pain. but it's so so hard to do sometihng as drastic as that diet if you are dealing with a child who auses laundry and health issues all day. If only this were accepted medical practice as it should be you could get help from the community with the meals. But I will bet you are practically a shut-in, right? When my son was in this mode, I could rarely leave the home. Isolating. Depressing. Overwhelming.

LIsa, there can never be enough thank-you's to you and to the other autism parents who were brave enough to buck the MDs and write about what REALLy goes on.

Reading books and articles by parents like you is what helped us save our son. We would never have known what was wrong had we listened to the doctors.

Our son is recovered, and we owe it to those who wrote the truth about vaccines, gluten, mercury, vitamin deficiencies, etc.

The best I can do is try to pass the information on--to doctors, to parents who have never heard of gluten (met one last night at a school board meeting), to anyone who will listen!

Shana, if you don't want your baby to receive the hep B at birth, DON'T LET HIM OUT OF YOUR ARMS ATTHE HOSPITAL ONCE HE IS BORN.

My second child was given the hep B while in the nursery while I was in the shower--against my clear written instructions, and without my consent. Our pediatrician (who supported my wishes) was not in the hospital at the time; the nurses took it upon themselves to vax him.

If misery loves company...and if it helps in some small way to know that others have been there...I think many of us have gone through this!!! with our son it lasted for YEARS (the putrid diarrhea that got smeared over EVERYTHING) until his gut was healed (hopefully???) and his digestion normalized. BUT we had to move out of our house (I have 6 children!) and tear up all the carpets on BOTH floors, and replace with hardwood. I have scatter rugs, but now he pees on everything (at least it's not #2 anymore!!!) and currently I have 5 rugs sitting on my back porch in the rain, waiting to be scrubbed and sanitized. and this too, shall pass...

Lisa,

Good job cashing a reality check in large bills on the autism epidemic. I'd be scare to death for the arrival of our next baby this july if I didn't have every confidence that autism is a diease of toxicity usually compounded by a deficient diet. Therefore a lot can be done to prevent it and a host of other problems. The peds docs need to get a spine and start questioning what they've been told. Anyone who'll do that I'll stand behind you and won't blame you for what you didn't know. Eyes see more clearly when they've been washed with tears.

Dadvocate

I think at the very least we do not know enough about these initiatives to welcome them. The prospect of another wave of psychotropic drugs to control symptoms rather than address causes does not exactly fill the heart with glee. I also protest against the blatant manipulation of opinion in the press launch of the Kim study. It doesn't deserve to lead to trust.

T - Don't know Ring but am OK with the AS translational research initiative. There are way too many people with ASD who have no where to turn when dealing with fellow travellers like OCD anxiety depression rage etc. If this guy can help drug companies focus on providing better pharmacological interventions for those who need them that's fine in my book.

This initiative has zero relationship in my view to the effors of Ne'eman and his neurodiverse group who basically say "no research or interventions are desirable...accept us as we are" and "the only needs that ought to be considered are the ones we tell you" so I don't see that a line needs to be drawn.

While I get along very, very well with a number of autistic adult self advocates and support many of their initiatives, especially on adult issues(and have for years), Ne'eman doesn't fall in that camp. As much as folks criticize AS for not playing well with others, ASAN is incapable of compromise on virtually any issue. I opposed Ne'eman's appointment from day for that reason (and many others)and am sad to see my worst fears being realized. One needs only to look at his Board to see that they do not appear to appreciate or value the needs of the non-verbal or non academic or non-Asperger's in our community. for all their carping about inclusiveness, people in glass houses...

Lisa:

I live your life. My son is now nine, and I still live your life. And I love when you say, "this is not Noah"...so, so true! My Jimbo is quite simply the most amazing human ever...and even if I forget that when I'm scrapping crap off the walls, or from under my fingernails, I always quickly remember it...and I keep going. And...I drop the "f bomb" quite often myself...and it's ok...in fact, I believe it helps! Keep going, keep loving and buy some Dow Bathroom Cleaner wipes...you will survive!

Dear Dadvocate,

It is refreshing to see you get riled up about Ari. How do you feel about... "Robert H. Ring, previously a Pfizer senior director, will join Autism Speaks in Princeton, N.J., on June 1 in the newly created position of vice president of translational research. His focus will be on helping move drug experimentation from laboratories to clinical trials.".....

Just wondering where you draw that line?

PS- I live in IL and know all about no help here and am a big advocate for rural autism communities,,,,,

I thought I had it bad when my daughter didn't seem to be able to control or detect that she needed to perform #2 in time to reach the bathroom for a least a year after she successfully began doing #1 in the toilet. I kept her out of diapers, because she wouldn't use the toilet at all if she had one on. She generally wasn't an interior decorator, but her stools had the consistency you describe and tended to climb up her back and of course make way into all the rest of her clothes, and then leave trails on the way to the bathroom. Sometimes hands, face, towels, or hair got involved. I can somewhat picture what you describe, but not fathom the cleaning part. I remember how impossible it was to get out of just her clothes! Not coincidentally, I think, the worst of this began after her Kindergarten boosters--clueless Mom.

I'm daily humbled and amazed by the experiences and efforts I read of families here, and your words really resonate...

"I do not want this to happen to you...I want you to educate yourself and take action."

Thank you for sharing, Lisa. I am so sad for you and your son, and I hope he will be able to improve with your help and research and hard work.

This is autism, and it is all too common, but I guarantee it is not 1 in 38 (yet). Those numbers are an attempt to make autism seem like not such a big deal.

On a side note, (my tiny attempt help) have you heard about VSL #3?
http://www.vsl3.com/
It's the most powerful probiotic I've ever tried. Recently I had been having tummy troubles for about a week. Then I took 2 packets of this before bed, and I was all better. They say that up to 8 packets can be taken per day.

To Lisa and Jon Stone:
Yes, autism is "the new normal"....

EVERYONE--GET USED TO HAVING A CHILD WITH ASD!

Doctors don't question it, they merely screen for it at those great "well-baby checks."

Doctors don't know why it happens but they love taking credit for it because of all their "better diagnosing."

Doctors were't alarmed over the explosion in allergies, asthma, seizures, bowel disease, diabetes or any of the
other chronic conditions plaguing our kids. AUTISM is just another way of filling the waiting rooms. AND YOUR DOCTOR HAS A PRESCRIPTION FOR ALL OF THEM!!! "Ask your doctor if....is right for you!"

Anne Dachel, Media

Thank you Lisa for helping the ignorant by choice world see what needs to be seen. My brother, now 65, was one of the first casualties. Our mother reports not being able to wear her rings (metal sensitivity), extreme stress during pregnancy with him. He is now short of stature (consequent to poor assimilation, weak intestines), and aware that gluten, other foods throw his gut into chaos, but eats what he wants anyway. His living habits exhausted my parents as he and his obsessively collected trash metastasized filth throughout the house. His inability to eliminate toxins was evident throughout childhood as he literally stank all the time, not due to lack of bathing. "Shaken Baby Syndrome", a term that instantly connects presumed cause with severe bodily bruising, has readily been accepted by the medical community, and used to further persecute families of children damaged by vaccines and other medicinal mismanagement. Meanwhile the CDC & pharma persist in denying autism as a convergence of intentionally injected toxins, metabolic insufficiency, additional toxic load with concomitant inability to eliminate them, gut dysbiosis. So many other diagnoses are based on x out of y signs and symptoms. Why does the CDC insist on complete convergence in this one issue? Because it might shine the light of responsibility on the CDC and its revolving door pharma buddies. The other situations lay the blame elsewhere. The Age of Autism by Dan Olmstead & Mark Blaxill is worth reading. The only way we'll overcome this manmade epidemic is by speaking up, claiming control over our bodies (not via conventional medicine) and insisting on clean nourishing food and healthy (start w/ pollutant free)environment. Blessings on you for your work. Karen L

Anne,

You were never so right when you said "We never see a news story featuring kids like Noah. They're too scary to watch."

When we allowed our family to be filmed for the Dateline story "A Dose of Controversy" we hoped that they would show exactly what we all deal with. While waiting in the lobby for the procedure Thomas threw chairs, took a table phone and threw it over the receptionist desk at the computor, ripped magazines and hit, kicked, scratched and bit us until we were bleeding. Ami Schmitz, the producer, asked if they should film this and we said "YES!! THIS WHAT AMERICA NEEDS TO SEE!!"

But no, they opted for the few moments he was too exausted to fight the pain anymore. What they did show was him struggling against the anesthesiology, implying what horrible stupid parents we must be to put our poor defenseless child through such an "unnecessary and terrible ordeal". Any young child would likely do the same for sedated dentisty, but never mind that.

When the aired the rerun the next year when they went on the attack on Andy again, the producer called to check on Thomas, I asked Ami about their reasoning for skipping the worst. She said basically that she did not want to make Thomas look bad, or something like that - that most of america would "not relate" to it.

The media will never show our daily lives with bowel disease because it is both too shocking and too scary for most people to "digest".

Lisa

Interesting how almost simultaneously we both came up with pieces which had the phrase "new normal" in the title but with quite different ironic slants. I believe it reflects how some professionals are deliberately creating utter confusion. So we find our problems both swamped with probably spurious data, and trivialised. We need real solid perspectives not public relations "paradigm shifts": thanks for giving us yours.

John

Lisa,
You can count another parent whose heart is heavy for Noah's suffering and for what your family has had to endure and continues to endure. We've had our share of crapisodes in the past, but none as overwhelming as you faced in this episode. I agree with Tim Kasemodel that a special anger is reserved especially for those who have attacked Dr. Wakefield and held back research for effective treatment for our suffering children.

Lisa - You'd better not put a drain in the bathroom floor lest you incur the wrath of Ari Ne'eman and gang and disqualify your child from HCBS Medicaid Waivers (not that they are all that available in IL). Homes with specific designs to accomodate disability are not "community based" according to the new proposed Medicaid regs. His ASAN crew (and their ivory tower academic enablers) have lobbied long and hard to promote a very narrow and radical interpretation of Olmsted and define what housing ought to be for adults with autism. Their "community based" view seems to mean living alone.
Read the report if you have the stomach for it:
http://www.autisticadvocacy.org/modules/smartsection/item.php?itemid=142

A lonely existence in a trailer park? OK! Group home or campus of over 4? Forbidden! Agricultural or rural community? No way. All disabled folks need to live alone in cities whether they can become equal opportunity crime victims or run over by traffic they're unable to navigate. Non-verbal? Severe behavior issues? Risk? Here's their take:

"Risk: We are supported to take risks, even if others don’t approve. It is not a big deal when one of us makes a mistake."

http://www.autisticadvocacy.org/documents/KeepingthePromise-SelfAdvocatesDefiningtheMeaningofCommunity.pdf

Right.

By the way, rural folks are segregated whatever their circumstances! ASAN knows best! No one with autism should be allowed to live outside a big city.

If you, like me, are outraged with these proposed regs, you have the chance to comment to HHS by 5pm June 14, just like ASAN and others have done:
http://www.federalregister.gov/articles/2011/04/15/2011-9116/medicaid-program-home-and-community-based-services-hcbs-waivers

This kind of stuff is exactly why Ne'eman is unsuitable as a broad representative of our community. I expect if confronted he'd prevaricate and say, "It's not mine, it's ASAN's view" but, please...

My generous side says to leave it be because for many with Asperger's syndrome, the inability to see issues from other perspectives is part of their disorder, but when it affects my kid's future prospects and well being, I have to draw a line in the sand.

Lisa,

I can imagine that a photo of Noah would show an incredibly cute, loveable little guy. I'm always struck by news reports on autism. They show bright little kids interacting with speech therapists or playing on outdoor gym equipment. They look so typical. Hey, autism's not so bad! I've known lots of kids who act just like him!

Lisa, you said it perfectly:
"I am guessing you are also going to see oodles and oodles of feel good stories about high functioning kids with autism-kids who can fly planes, drive fire trucks, give speeches and win marathons. These stories are wonderful and I applaud these children for their accomplishments. However, all of this is meant to keep you from thinking we have a real problem, a real epidemic on our hands."


We're always being told that having autism is "an inability at social interaction and a lack of communication skills." So where do chronic diarrhea and gut pain fit into that definition? Where do the non-verbal kids banging their heads endlessly fit? The medical community and health officials would love for autism to just go away. They can't explain what happened to these kids and they don't want to know. They're working tirelessly to focus on high functioning/Asperger's kids and to pretend that THEY ARE THE FACE OF AUTISM. They willingly spend millions and millions of dollars on the eternal quest for the autism gene.

(I can't wait for the studies showing us the chronic diarrhea gene and the head banging gene.)

We never see a news story featuring kids like Noah. They're too scary to watch. We would be asking what's wrong with this child. What happened to him?

Health officials want to pretend nothing "happened" to kids with autism. They were born this way. They've always been around. When adults read about a child like Noah, they're stunned. They didn't know kids like him when they were growing up. Now they're everywhere. I shudder to think of the future when Noah and the rest of the generation with autism are adults dependent on the taxpayers. We will have an adult population like this to care for. They don't exist now in overwhelming numbers, but they're coming. That's when we'll expose all the lies all the liars have told us for years.

Thank you for giving us the truth about autism.

Anne Dachel, Media

Lisa,
Thank you so much for sharing your intensely horrible experience with others. I am one of the lucky ones who only had to deal with one "crapisode." It occurred when I was taking the time to walk my crippled father (who had Parkinson's) to the bathroom. In the time it took for me to walk my Dad to the bathroom, wait for him to pee, and walk him from the bathroom back into his chair in the kitchen, my then 2 1/2-year-old son had removed his crap-filled diaper and smeared feces on the carpet in exactly 17 places. I was beside myself. I didn't possess a steam vac at the time. I sure did purchase one afterward. I will never look back at that day and laugh. There is absolutely nothing funny about cleaning up after an event like that. But as I only had one such event (which was relatively self-contained) to clean up after, unlike so many other parents of affected children, I feel I have absolutely no right to complain about it, either.

A crapisode (thanks for the vocabulary to describe it, KS) is something no parent or child should have to experience. There is no reason for it. Medical doctors need to get their you- know-what together to help our children. Our children have very real gut problems that need correction.

I want to thank you, again, Lisa, for making those wonderful cartoon videos. I have forwarded the two I know of to family and friends. They are factually correct, and present the information in a fresh, compelling and interesting way that no one else has attempted. You are so very creative and talented. I wish you and your family every possible success, especially Noah.


Your husband really should have stayed home. What a dog.

Raw and truthful. I am so tempted to forward this piece to the AAP, CDC, Sebelius et al. so they can feel what our lives are like and the damage that has been wrought in part by their arrogance, denial, detachment and craziness. I want to rub these tour de shit stories in the faces of the denialists who have let this happen to our kids.

I recently had a crapisode awaiting me after I took a mere hour and half off to buy a birthday present for my nephew while my sister watched my son. Somehow in the short span of time all hell broke loose. My son started hitting her so she locked him in his room. By the time I got home, I was greeted with feces smeared all over the bedroom floor, walls, comforter. It stunk. My sister was freaking. It took me 2 hours to wash everything and cleanup the mess.

I am so tired and numb at this point that I don't even react anymore b/c I feel I need the conserve my energy. Nothing phases me anymore. I have lived this nightmare for so long that I feel like a battleworn soldier looking over this feces strewn landscape with a thousand mile stare. Instead of a gun I carry a mop, take a deep breath and soldier on.

THIS is autism. Not some social quirkiness and exceptional math ability that goes unnoticed and undiagnosed for ten or twelve years in some child halfway around the world. It's right here, right now, in your neighbor's house - the shit-smearing, head-banging, blood-curdling, doubled-over-in-pain screaming and suffering that's being ignored and denied by the very people who have caused it to begin with.

Thank you, LJ, for putting two minutes of your hellish life 'out there' for the world to witness. This cannot go on. My God, what have they done - and what are they still doing - to our children?

My son Noah, was diagnosed at the age of 2 and 1/2. He did have all his vaccinations. We are lucky that we don't have explosive bowel movements or the one's that are so backed up it comes out the size of a softball. We don't do GF/CF, we try to do all organic, but are yet to be 100%. His Early childhood teacher claims he is more neurotypical than he is autistic. I am wondering if just him being able to potty "normally", has helped him come so far? I do feel very lucky, he is 5 and has been completely potty trained for a year. The only time he wet the bed was when he was constipated. The doctor gave us a "laxative" and he hasn't peed the bed since. I am pregnant with my 2nd child, and worry constantly about Autism with another child, but you can bet this child is not getting the Hep B just after birth... I already signed the paper. I pray that your little Noah will get that cure that so many are looking for. And thanks for sharing your story, I learn a lot reading stories from other parents who deal with this horrible monster called AUTISM.

"Tour-de-shit"....genius! I love this piece Lisa, love your writing. Big thanks, Alison MacNeil

Thank you for sharing this story; on a personal level it made me cry because this is something I deal with, mostly alone. Hell, a crapisode is exactly why I had to leave the ARI conference early after waiting 2 years to go because my husband just can't deal with them, and I have no choice. Maybe if Autism Speaks made a PSA depicting stories like this one I would support their awareness campaign. I really don't think people who are not dealing with this side of autism in their lives, through direct or shared experiences, understand the desperation of families like ours. It is so easy to debate these topics rather than take the time to figure out why "anti vaccine" (or pro safe vaccines) parents are so angry and feel so betrayed, and why they are so passionate about this topic. The only thing worse than having to live with this is knowing about it and standing by without doing something to warn others so it doesn't happen to them. It's a shame that the same concern isn't often shown in return.

Lisa, You had me at "shit." And know that there is a huge autism comunity out there that understands and empathizes with you.Love to you and your family, Maurine

Lisa,

My heart goes out to you. I have cleaned poop from my son's teeth and hair, from the VCR and bedding, even washed the "shit alphabet" off walls. Our son is 14 now and because we left Minnesota for his G.I treatment, he finally is 90% potty trained and his gut issues are slowly getting better.

As with Noah, our son is the sweetest, tenderest young man when he is comfortable. When he is not, it is because his small bowel motility is glacial, and he backs up the most unbelievable quantities of stool. Crapisodes I can handle. The complete destruction of my home and property, thats all good. Watching your beautiful child clutching his stomach and cry out in pain so terrible he cant even get up to hit you or bite you, knowing there is nothing you can do, nothing you can say to help him, is the worst. His eyes, pleading for relief and me sitting there totally useless to help. And this used to happen nearly every day, for years.

I have anguished and cried when I deal with people who do not understand why my son behaves "badly". But my real anger is not with God, or my misunderstanding friends and family. It is with those who ignored and attacked Dr. Wakefield since 1998. If they had listened to him, There might have been a more effective treatment, a tool, at least a Goddamn plan, on how I could help my son and his debilitating gut pain.

Thank you Lisa for sharing your (our) story.

Having adopted four children, all ended up having special needs--the most severe Autism, Retaration, and now Bipolar--this is the closest thing I have ever read to these moments in my life I cannot share with anyone--no one knows, can imagine. He's 16 now, still in diapers, crap is part and parcel of every part of our lives...just one of the many facets of this spectrum, and yes, it was the vaccines.

Verify your Comment

Previewing your Comment

This is only a preview. Your comment has not yet been posted.

Working...
Your comment could not be posted. Error type:
Your comment has been saved. Comments are moderated and will not appear until approved by the author. Post another comment

The letters and numbers you entered did not match the image. Please try again.

As a final step before posting your comment, enter the letters and numbers you see in the image below. This prevents automated programs from posting comments.

Having trouble reading this image? View an alternate.

Working...

Post a comment

Comments are moderated, and will not appear until the author has approved them.