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Oxford West & Abingdon: Are your Patient Records Safe with Evan Harris MP?

Medical records theft A question for the electors of Oxford West and Abingdon – are your patient records safe with Evan Harris MP?

By John Stone
 
As the British government motors ahead to put all NHS patient records on-line the issue of patient confidentiality has become highly sensitive.  Indeed, the question is only made more sensitive by the possibility that patient confidentiality could be broken for political ends.

These issues are now coming to a head in what has become known as the Wakefield affair, although they reach back more than six years to the original allegations against the three Royal Free doctors - who not only include Andrew Wakefield, but his colleagues Profs John Walker-Smith and Simon Murch – made by Liberal-Democrat MP Dr Evan Harris and Sunday Times journalist Brian Deer.

Even now Deer states on his website:

"For reference, with regard to Brian Deer's MMR investigation, almost all of the key facts and documents are not public domain, and, such is the culture of plagiarism, he will act against authors who represent his writing, interviews, documents, or other research, as the fruit of their own inquiries, whether referenced or not."  (HERE)

But the problem should have been all too apparent from the beginning when Deer and Harris made allegations about patients in Wakefield’s Lancet ‘early report’ also being enrolled in the group litigation against the MMR manufacturers.  While it is not possible for many of us to agree with the construction placed on events by Deer and Harris it remains a question how the claims about the overlap could have been made without reference to confidential patient records. Indeed, disturbingly Deer stated in a recent letter to on-line British Medical Journal:

“I know the names and family backgrounds of all 12 of the children enrolled in the study, including the child enrolled from the United States.” (HERE)



In his original Sunday Times report Deer wrote:

“Of the eight children whose parents were eventually reported in The Lancet as having associated the jab with the onset of their child’s autism, “four, perhaps five” were covered by the legal aid contract.” (HERE)

Harris had accompanied Deer to the Lancet offices four days earlier to ambush Wakefield and the other doctors with the allegations. Lancet editor, Richard Horton, later recalled in his book about the MMR affair:

“The tension had been heightened ...by the shadowy presence of Evan Harris, a Liberal-Democrat MP.” 

And goes on a little further down: 

  "A whirlwind of innuendo ensued which caught us all in its wake. Evan Harris, the MP who had mysteriously joined Brian Deer at the Lancet's offices, called for an independent inquiry into Wakefield's research. Put on the backfoot by the sudden escalation in media interest and by Harris's calls for a public inquiry, Britain's Health Secretary, John Reid, urged the General Medical Council...to investigate Wakefield as "a matter of urgency". (HERE)

Whether or not Reid was really “on the back foot”  (a cricketing expression) Deer and Harris’s allegation were rapidly supported by the then Prime Minister, Tony Blair, and the Chief Medical Officer, Sir Liam Donaldson (HERE) while the National Health Service website ‘MMR the Facts’ had a page linking to Deer’s personal site (HERE).

Within three days Deer had lodged the first of at least three complaints to the UK’s General Medical Council against the doctors, although the GMC’s lawyers chose not to publicly acknowledge his role (HERE). The relationship between Deer and the GMC hearing remains troubling as the prosecution has been constructed on documents described by the journalist as “not public domain”, and without any public explanation of how they were originally obtained. Harris accompanied Deer to the first day of the proceedings in July 2007 and was also present at “the findings on fact” in January (HERE). These “facts” closely resemble the early allegations of Deer and Harris (HERE and HERE).

There are many questions here. When last year a radio journalist, Jeni Barnett, dared to criticise the defensive culture surrounding MMR vaccine she was  censured by a large group of MP’s of which Harris was inevitably one of the leaders (HERE). This was an offensive episode in which a journalist who dared to open her mouth about the authoritarian nature of public health policy was bullied into silence, and it could not really have proved her point better. It really is time that Harris explained his role in the MMR business altogether. But it is also absolutely essential that all politicians understand that leaking our private documents for politically expedient ends is simply disgusting and unacceptable. 

John Stone is UK Contributing Editor for Age of Autism.
 
 
 
 
 

Comments

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Kylie

The Animal Protection Party are standing to lose Evan Harris his seat due to his stance on some inportant issues such as vaccination, fluoride, brain damaging monkeys and attacking natural medicine

http://www.fromdusktildawn.org.uk/evan_harris.html

John Stone

Just to note that UK Department of Health have now quietly abandoned their immediate plans for the on-line patient database.

http://www.telegraph.co.uk/health/healthnews/7598520/Controversial-medical-records-database-suspended.html

Sandy Gottstein

All I can say is whew! And another great article by John Stone.

Deborah Heather

How can we trust anybody with our medical records when Mr Deer was able to access childrens medical records concerning the GMC case against 3 wonderfully honest dr,s it is about time we had honest people running our government , this country is falling to it,s knees

mark

Gatogorra
also interesting that the MP who claimed to to a friend to be above influence was regurgitating much of this Industry Funded press release to anyone who would listen.
who WAS he representing ?

http://www.sciencemediacentre.org/pages/press_releases/10-01-28_wakefield_gmc.htm

On the eve of the start of the GMC Hearing on Wakefield et al the Science Media Centre co-ordinated a joint statement on MMR from the UK's major medical and scientific institutions. In recent days we have contacted these bodies who have agreed to re-issue the statement and re-affirm their commitment to it. The statement reads:

"The undersigned believe that the MMR triple vaccine protects the health of children. A large body of scientific evidence shows no link between the vaccine and autism."

Medical Research Council
Wellcome Trust
Royal College of Physicians of London
Royal College of Physicians of Edinburgh
Royal College of Pathologists
Royal College of Paediatrics and Child Health
British Medical Association
Great Ormond Street Hospital for Children NHS Trust
Royal Society of Medicine - Section of Paediatrics and Child Health
UCL Institute of Child Health
Royal College of Nursing
Faculty of Public Health

John Stone

Gatogorra

I doubt whether Harris was responsible for leaking the documents to Deer - he wasn't a practicing doctor, or connected with the case. However, he was happy to exploit the leaking of the documents. There is quite a lot about his role in the affair we do not fully understand, but however he came to be part of it, it looks like he was there to add authority to Deer's investigation as a Member of Parliament, member of the House of Commons Science and Technology Committee, medical doctor and member of the British Medical Association Ethical Committee. Presumably, without Harris hovering Horton would have dismissed Deer out of hand - told him to put the documents back.

It is interesting to look at another feature of Harris's reporting of the matter in February 2004 (an article I couldn't find for many years on the web) he states:

"Its (The Lancet's) statement also fails to mention a letter from Wakefield published on May 2, 1998, in response to criticism in its letters page alleging conflict of interest. “There was no conflict of interest,” it said."

http://www.timesonline.co.uk/tol/news/uk/health/article1027825.ece

This would have been completely misleading to Sunday Times readers. What Andy was denying was that there was any "litigation bias" in the paper, but he did acknowledge in the letter that he had been engaged by the Legal Aid Board - but this wasn't ever mentioned at the time by Deer, Harris or Richard Horton. For people acting in this way to claim that Andy was being deliberately misleading is surely a sick joke.

John

Gatogorra

Deer and Harris-- Cruella DeVil's Jasper and Horace from 101 Dalmatians...

So it was Evan Harris who leaked the personal medical documents to Brian Deer? If this is so, how did Harris get his hands on them? And can either or both of them be sued for it?

I keep thinking of Evan Harris's psychotic sneering and gabbling behavior during Jim Moody's press statement outside the GMC after the verdicts.
http://www.ageofautism.com/2010/01/attorney-jim-moody-describes-false-testimony-at-gmc-hearing-video-here.html

You'd think he'd be more confident that the industry machinery behind the censure was stronger, so that he wouldn't feel compelled to show up on his own to try to bully down Moody's disclosures. But it was as if Harris was the little Dutch boy with his finger in the dike, personally trying to stop the truth from coming out.

Very strange. What else did he feel compelled to do personally, with his own hands?

John Stone

Dave

To do him justice Clegg was one of the Lib-Dems not to sign the Jeni Barnett EDM - nor did our own local Lib-Dem MP, Lynne Featherstone (whom I hold in high regard) or that great fighter against corruption, Norman Baker. Politics is a messy business and you have in my opinion to vote on the basis of individuals.

John

dave roberts

Your point is well made John, very good article. Today like every other day during this election campaign, the Fib/Dem leader Nick Clegg will undoubtedly bang on and on about corrupt politics, perhaps he should consider his remarks very carefully. People living in Glass Houses comes readily to mind regarding his phoney 'Clean Up' agenda.

Jake Crosby

Liberal Democrat MP Evan Harris reminds me a lot of Democratic Congressman Henry Waxman, who built this phony identity of himself as a "progressive" who values accountability, but is really nothing more than a pig in a suit shilling for his own personal interests.

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