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IACC Full Committee Meeting Webcast Tuesday 11/10

Listen IACC Full Committee Meeting
 
Date: Tuesday, November 10, 2009
Time: 9:00 a.m. to 5:00 p.m. ET
Agenda: To discuss recommendations for the annual update of the IACC Strategic Plan for Autism Spectrum Disorder Research.
Place: The National Institutes of Mental Health
6001 Executive Boulevard
Neuroscience Center
Conference Room A1/A2
Rockville, MD 20852
 
Webcast Live: http://videocast.nih.gov/
Conference Call: USA/Canada Phone Number: 888-577-8995
Access code: 1991506 

Registration: http://www.acclaroresearch.com/oarc/11-10-09_IACC
Access: Metro accessible - White Flint Metro Station
Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Room 8185a
Rockville, MD 20892-9669
Phone: 301-443-6040
E-mail: IACCPublicInquiries@mail.nih.gov 

Please Note: Any member of the public interested in presenting oral comments to the Committee must notify the Contact Person listed on this notice at least 5 days in advance of the meeting (Deadline: 5:00p.m. ET, November 5, 2009). Interested individuals and representatives of organizations must submit a letter of intent, a brief description of the organization represented, and a written/electronic copy of the oral presentation/statement by 5:00 p.m. ET, November 6, 2009. A printed/ electronic copy of the comment/statement provided by the deadline is required prior to the oral presentation; the document will become a part of the public record. Only one representative of an organization will be allowed to present oral comments and presentations will be limited to three to five minutes per speaker, depending on number of speakers to be accommodated within the allotted time. Speakers will be assigned a time to speak in order of the date and time when their request to speak is received, along with the required written statement submitted in advance of the meeting by November 6 at 5:00 p.m. ET.

In addition, any interested person may submit written comments to the IACC prior to the meeting by sending the statement to the Contact Person listed on this notice at least by 5:00 p.m. ET, November 6, 2009. The statement should include the name, address, telephone number and when applicable, the business or professional affiliation of the interested person. All written statements received by the deadline for both oral and written public comment will be provided to the IACC for their consideration.

The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request at least 7 days prior to the meeting.

As a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered.

Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard.

To access the webcast live on the Internet the following computer capabilities are required: A) Internet Explorer 5.0 or later, Netscape Navigator 6.0 or later or Mozilla Firefox 1.0 or later; B) Windows® 2000, XP Home, XP Pro, 2003 Server or Vista; C) Stable 56k, cable modem, ISDN, DSL or better Internet connection; D) Minimum of Pentium 400 with 256 MB of RAM (Recommended); E) Java Virtual Machine enabled (Recommended).

Meeting schedule subject to change.

Information about the IACC and a registration link for this meeting are available on the IACC website.
 
Agenda - Meeting of the IACC Full Committee - November 10, 2009
This meeting will also be available to the public by live videocast.

The Neuroscience Center
6001 Executive Boulevard
Conference Rooms A1/A2
Rockville, MD 20852

Time Event
8:30 Registration
9:00 Call to Order and Opening Remarks

Thomas Insel, M.D.
Director, National Institute of Mental Health and Chair, IACC
9:10 Public Comments
9:30 Approval of October 23, 2009 IACC Full Committee Minutes
9:40 Consideration of Strategies for Updating the Strategic Plan

Thomas Insel, M.D.
Director, National Institute of Mental Health and Chair, IACC

How much change to make to the current Strategic Plan?

Examples of Questions for Discussion:
Will adding or significantly re-writing chapters be helpful or confusing to the research community? Does this vary by chapter?
Will adding/deleting objectives each year be helpful or confusing to the research community? Does this vary by chapter?
Should the update include progress from the portfolio analysis for each objective as an indicator of accountability? What will this mean if objectives are re-written or deleted?
 
9:50 IACC Discussion of Strategies for Updating the Strategic Plan
10:30 Break
10:45 Recommendations for Updating the Strategic Plan: Discussion and Votes
Questions 1, 2, 3, 4, 5, 6 and Infrastructure Items
 
12:00 Lunch
1:00 Recommendations for Updating the Strategic Plan: Discussion and Votes - Continued
 
3:00 Break
3:15 Recommendations for Updating the Strategic Plan: Discussion and Votes - Continued
5:00 Closing Comments and Adjournment

Schedule subject to change. Meeting may end prior to or later than 5:00p.m. depending on the needs of the committee.

Comments

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Benedetta

Thanks Allison for the blow for blow.

Zinc, hmmmmm they are always saying to take it for colds, but the very smell of it makes me sick!

Garbo

Maybe I've seen too many horror/thriller movies, but every time I listen in on one of these I can't help but think "They Know." They have to know. Because if they genuinely didn't know, at least some of them would be open to investigating. They would be curious to know what that terrible stench was coming from that old house at the end of the block. But they're not the least bit curious, because they already know the bodies are buried there. So they form a committee and plant more rose bushes and hope nobody else notices the smell, lest their property values decline. And anyone who goes off the reservation has their funding yanked and gets the Wakefield treatment. It's Stepfordian.

Allison

My notes:
comments from the public. Jim Moody is where I started and he was excellent. Talking about illegally removing the vaccine investigative portion of the strategic plan, etc.

Then there was a woman from the Self Advocacy Network, she again talked about not wanting research to focus on biological samples and "ending autism" but rather focusing on education (she doesn't have even close to what CJ has, there is a clear difference to this high functioning ability to express themselves, they are most worried about abortion and taking biological samples without child's consent).

Then K Walker from SafeMinds got up and gave a great speech on her son recovering from PDD-NOS, the rising rates, the vaccine and other environmental objectives needed, as well as toxicity, etc. of the kids and treatments, etc.

Then came a Doctor from Florida on oxidative stress and glutathione/tylenol, etc during vaccination times. He had an attached document of over 50 studies supporting the biochemical issues in autism which lead to cause and treatment. Interesting discussion on zinc being released in the brain and causing havoc.....

Then came a rep from autism speaks saying they need research on vaccines, environment and genes, etc. Or else any science gathered would not be complete etc. And that public confidence needs to be fixed in order to feel safe with live saving vaccinations, etc. Quite a dichotomy……

Now they are talking about adding "too many new objectives" in the strategic plan and watering down the objectives.. Lynn just blasted the other members who want to obviously "move on" from too many "new" objectives. Lots of hemming and hawing away from having to mention vaccines in the strategic plan itself.

It sounds like they are only willing to discuss adding the "issue of adults" with autism that are coming into the system, and some talk on services. Completely avoiding the conversation of vaccines even though this was an OVERWHELMING part of stakeholder testimony over the last year. Irritating.

Quite a tap dance around anything but vaccines/environment/toxins....

RAJ

This is interesting:

How much change to make to the current Strategic Plan?

"Examples of Questions for Discussion:
Will adding or significantly re-writing chapters be helpful or confusing to the research community? Does this vary by chapter?
Will adding/deleting objectives each year be helpful or confusing to the research community? Does this vary by chapter"?

Yes, lets not confuse the research community any more than they are already confused. Only in a government bureaucracy could this even be a topic of discussion

nhokkanen

When I see the letters IACC, my mind subsitutes ICCK.

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