Managing Editor's Note: Katie continues to write on the travesty that is the Interagency Autism Coordinating Committee. Click HERE to read the Katie Wright category. If the name sounds familiar, it's that her Mom and Dad founded a large autism organization several years back. When the numbers were still 1 in 166.
By Katie Wright
Nancy Wiseman and Lyn Redwood are parents of ASD children. They have both lived through the nightmare of dealing with an acutely ill autistic child. Nancy spoke eloquently about her daughter’s rages and how uncontrollable the child was because she seriously ill. Wiseman discovered her daughter had PANDAS and bowel problems. Once this immune disorder was addressed and treated, Nancy’s daughter made incredible progress. Lyn spoke about all the ASD kids who are nonverbal and suffering horribly from both obstructed bowels or incessant diarrhea. Lyn and Nancy urged the committee to make addressing the issue of GI pain and treatment a top priority. Lyn emphasized that such research would be low tech and inexpensive compared to most ASD research, yet could tremendously improve a child’s quality of life.
In response Tom Insel said that his treatment committee did not talk about GI treatment and dietary intervention, nor is this a priority.
Insel has clearly decided, based on his years on non experience as a parent of a sick ASD child that dietary intervention research is not important, end of story, back to robot technology!
I expected that from Insel but what came next shocked me. IACC’s AAP fellow Dr. Yvette Janvier became angry about this GI discussion and said “the idea that autistic kids are sick offends me! I have been a developmental pediatrician for 20 years and have never seen an autistic child with immune problems or GI issue!” Janvier went on to state that the committee “cannot focus on a very rare case” of immune or GI problems! Janvier was visibly angry.
How frightening is this woman? Did I mention that Janvier is an AAP fellow? Did I mention that Janvier serves as a “public” member, of IACC? That’s right Janvier holds a seat that is meant for family members. Now, I find that incredibly offensive.
I have rarely heard such astounding arrogance. This exceptionally obnoxious and uninformed pediatrician has decided, for all of us, that our children do not have GI or autoimmune problems. Case closed.
I think those of us with sick children need to let IACC know how we feel about Dr. Janvier’s characterization of our kids.