Dr. Story Landis: Autism not a multi-symptom disease but a money making scheme?

Managing Editor's Note: Click on the photo to enlarge it. The PDF of the full note is clearer (HERE) and includes a bizarre comparison to the cochlear implant community and homosexuality.  There's an IACC meeting today, and you can CALL IN: See HERE.)

By Katie Wright

The way the Reagan administration responded to AIDS in 1981 is looking pretty good compared with how some NIH bureaucrats are now reacting to the autism epidemic.

Never before has a community of advocates and suffering kids been treated with such contemptuous disrespect as the NIH and IACC treats families affected by autism.

When we last left off with the IACC story, we learned that according to Dr. Yvette Janvier, GI diseases and immune disorders do NOT exist amongst the ASD population. In fact, Janvier was “offended” by the mere suggestion. (Click HERE to read about Dr. Janvier.)

When the subject of adverse vaccine reactions and vaccine court arose, Dr. Landis and Dr. Matt State rolled their eyes and furiously passed notes with each other each. No, this isn’t 5th grade; it is the Interagency Autism Committee, sponsored by the federal government. 

After the meeting adjourned a parent in the audience noticed a bunch of notes on the floor near where Lyn, Story and Matt had been seated. You will not believe what Story’s note said. Well, you will believe it but you will be appalled. CLICK HERE TO READ THE NOTE.

“I wonder if Lyn Redwood is pushing autism as a multi-symptom disorder in order to feed into vaccine injury awards.”

I must be doing something really, really wrong because autism has nearly bankrupted my family. Where is Christian’s big award? Where did I go wrong? Maybe Story can explain how autism is really a get rich quick scheme? Like fools, my husband and I have paid out hundreds of thousands in therapy, medical tests, doctor consults, etc. If only I had known that my son’s regressive autism = big injury award and Easy Street!

Seriously, probably the second most powerful member of IACC has attributed the medical symptoms of autism to greedy parents looking for an easy payday. All that GI, autoimmune and regression research we have been pushing is merely a means to cash in? Those years of bloody diarrhea, febrile seizures, chronic autoimmune dysfunction, and loss of fine and gross motor skills were all part of our plan to win some money in vaccine court?

Dr. Story Landis needs to resign from IACC. How could Landis imply that families are “trying to make” autism into a total body disease in order “to feed into vaccine injury awards.” Dr. Landis, I think I speak for most parents with regressive kids, when I say; we didn’t try to make autism into a total body disease, it just is. In fact, we spend almost every waking moment trying to make our kids healthy again. How dare you suggest that any amount of money could ever begin to make up for the torment and pain our children have endured.

 

Comments

[Twyla]

Tony, maybe you don't see a problem because you are stereotyping everyone in what you call the "anti-vax movement" -- and your stereotype is a distorted one. Lyn Redwood is a person of great integrity, compassion, and intelligence who has been working incredibly hard for years to move our government and mainstream medicine forward on the issues of understanding the causes of autism for the sake of prevention and treatment. Autism IS a multisystem disorder; that is not something that is being pushed as part of some kind of calculated agenda.

[Kirsten]

Wow...I cant believe the idiocy of those people who wrote the notes, then they just drop them and leave? Wow.

But am I surprised? No, not really. Because having worked in government at one time, I realize that like many organizations, the problems are at the "top". In essence, in these kinds of goverment sectors, leadership can seldom be described as "the cream rising to the top"...its more like "sh*t floats"! Pardon my french. LOL

Its time that parents of autistic kids start demanding answers. I am glad you brought all this to light.

[Tony]

I don't really see a problem with her speculation regarding the motives of some people in the anti-vax movement. It is a reasonable query that should be asked. After all, the same accusation regarding "big pharma" is made by people on the other side.

[sondra]

amber it isof quite poerful and severe anxiety producing fr me too because the energy around me can be of too much and it is of like my being picks up all the emotional states of the people in the room, it is of like being hyper aware of all things around you and not know what to do with it. I to be of can be of so consumed with the sad of sufferings that cant cope of life because feel as if in constant overload from all of this. I to be of so very very hyper reactive and responsive to almost all things to this life and it can create a emotional break down with in me because cant have the words to tell others of what I to be of feeling when it happens, there is of no words for it.

[Amber]

Another Thank You to Sondra for your thoughts and words. They are invaluable to us as parents and caregivers. It's staggering to realize what you go through everyday just trying to navigate this world.

You wrote:
"while cant read of people can sense much things aobut things that cant explain how but just know things due to that energy or because hyper sensitive to the emotional states of people around me even if not knwo what do with it or interpret it by emotional name."

My youngest son has this ability, too. Unfortunately, it is a source of anxiety for him. My husband and I hope he will learn to manage it as he grows.

[Teresa Conrick]

Benedetta,

Thanks for your kind words. I always have hope for Megan's recovery but she is so affected in a multi-system way. I have hope that we will have more answers and treatments for those who are so very impaired.

Sondra,

Again, thanks for talking about your physical,emotional and sensory issues. It is helpful for me as I can get a sense of how my daughter feels and why she may respond the way she does.

I am so sorry that you have such intense illness that has been denied for so long. I am relieved that you have found Dr. Natowicz and I hope you find answers and relief from your pains. Your description here:

"adreneline surges one gets if they are of to feel as if htey will fall or get of a sudden fear much strong to them , for self it feels like electrical surging in my arms that radiate to my hands and center mostly to my wrist area and finers."

sounds absolutely horrible and it makes me think that my daughter has something similar based on her behaviors. She bites her wrist when agitated (or is she so agitated that biting her wrist relieves the pain?)and I have always wondered why in that area. Other children also bite the wrist so it is not just Megan. She also is bothered by her knuckles, and some will appear swollen, and then she rubs them, bites them until they have callouses. Her newest thing is to take rubber bands and string them around her finger to almost relieve the pain buy cutting off circulation. It is of course, not a safe thing but is showing me that this is a progressive situation. Some thoughts I had were fibrin - connective tissue, possible Strep in the joints (or something similar- arthritis),or some type of unknown inflammatory condition.

I will continue to have hope that both you and Megan, and all of the people suffering with autism will get answers and a cure to the pains and debilitating conditions that you have to deal with every day. We are fighting for all of you. This has gone on too long and your sense of "humanity and right" is exactly what has been lacking by too many who have let you and so many suffer with the "It's all in your head" mentality.

Bless you.

[sondra]

Kathy Blanco you list has much of the same sorts of health issues I to had over my life time. I to much so like of the data references of research or articles on the various health issues.

much of the health people of me often tried of to make of me think it was of all to my head too. but now seeing of a spcialist named of Marvin Natowicz a world renown specialist who is of investigating of my health and is of validating of it. he is of testing many things but looking at mitochondrial disease as one of the things he feels is of a possible dx for me. it is of somethings that I to be of more aware of as being of connected to autism in some fashions. the one test shows of my pyruvate acid being of high so it was of noted as well as slightly high blood sugar and phosphorous. He to feels muc of the pains I to experience is of not a true fibromyalga but a neurapathy but he is of more concerned as to what is of creating the neurapathy? the body of me is of almost always in constant pains or ill in some fashions and often gets expressed in behavioral outburst of negative actions of agitation, self aggression and shut downs and or so much depressed that want to end of the life of self at times. I to have to fight much hard to not act on that when it isof consuming of me.

even this night fear the flu is of coming to me as the tummy of me is of saying sick.... and the nerves to my arms are of tingling and with that tingling is of a surge of hot flashes which makes the tingling worse and it is of making me just want to sleep. this tingling is of not part of a flu but is of part of my health issues lately and is of making me so agitated and annoyed of it. it is oflike teh adreneline surges one gets if they are of to feel as if htey will fall or get of a sudden fear much strong to them , for self it feels like electrical surging in my arms that radiate to my hands and center mostly to my wrist area and finers. I to hate of htis sick and want to be of healthy ans well but lack how to do that so have to trust of the grwn ups around me to do that.

in all true my psycholosit has shared in all honest to me of my social/emotional estimated age is of average maybe the range of a child 10 years and younger and not ashamed of that , as lack that true emotion for self but do get fustrated because this i sof why I to lack how to best care for self. yet other parts of me can be of smart, such as how I to see of hte world, and how I to try hard to express self and communicate my thinking and words. I to ahve a strong sense of humanity and right. And like Tony Attwood shared to that webradio I to be of like one born to a sixth sense. while cant read of people can sense much things aobut things that cant explain how but just know things due to that energy or because hyper sensitive to the emotional states of people around me even if not knwo what do with it or interpret it by emotional name.
sondra

[Pamela]

Bless you Sondra! You left such a powerful comment but my favorite part is this :

"so the real issues of to correct the health issues, cure that part of us and if in the doing a recovery from autism happens then one can rejoice if not one needs to learn to rejoice in the human loved one that exists and learn to knwo then as they are.... that does not mean do nothing it means keep loving them by doing all one can do to improve quality of life..."

PERFECTLY said Sondra.

I've told many people, with regard to my 7 year old daughter's recovery, we treated her medical issues and her autism disappeared. Whether her autism disappeared or not, her underlying medical issues demanded treatment. Every person deserves treatment for medical issues...and in our case, praise God, that as her health improved so did her function.

[Benedetta]

Sorry Teresa about no recovery. I am glad though that someone as kind and intelligent as you are working for all of children to make it better.

[Liza Radley]

I am a mom with a 5 year old child with autism. Thanks to DAN! and their biomed approaches, he is much better, though far from cured. About a decade ago I worked for an NIH in an administrative office directly under Story Landis. From my experience, I've found NIH to be a sinkhole of tax dollars -- their "goals" are to do "research" but curing diseases is secondary (unless there's a new drug to sell -- you know NIH funds a lot of research done by the big pharmaceutical companies). Anyway, my coworker pointed out to me one day "have you noticed, when Dr. Landis uses the bathroom, she doesn't wash her hands? I've seen it over and over, she just walks out of the stall and exits the bathroom." Well, unfortunately, I had to see it for myself -- ughh! But why would someone of such a high rank not do the basics of what we're all told about disease prevention? It couldn't be ignorance! Arrogance? Bad judgment? With people like Story Landis leading the way, I have no hope for any real progress from the IACC.