Kim Stagliano on Failure of Healthcare to Include Autism on HuffPo.
Autism Perception: "A Bump in the Road?"

UPDATE House & Senate RSVP List for Maloney Smith Autism Research Briefing

Rsvp Below is the updated list of 70 attendees for the Maloney/Smith autism briefing. We've included which members are part of the Coalition for Autism Research & Education.

Friday, July 17 at 9:30 AM 210 Cannon House Office Building, Washington, DC. Thanks for your calls, they worked!

Rep. Carolyn Maloney (D-NY) and Rep. Christopher Smith (R-NJ) are hosting a special briefing for Members of Congress and their Staff to discuss issues related to autism research and treatment. We hope that you will attend the briefing to learn about the changing dynamics of the autism debate, as you will find many in government and science believe this debate is far from settled.
(Details below the jump.)

*Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus = 19
 
*^Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus - who also sent staff to Sept. briefing = 12
 
**Co-Chairs – Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus

Are your representatives on the list? If not, please call them. White House Switchboard: 202-456-1414, Senate Directory Here, Congress Directory by State Here.  

SENATE
Sen. Tom Coburn (R-OK) – Will attend in person (?)
Sen. Orrin Hatch (R-UT) – Will send staff member


*^Sen. Robert Menendez (D-NJ) – Will send staff member
Sen. Tom Harkin (D-IA) – Will send staff member
Sen. Barbara Boxer (D-CA) – Will send staff member
*^Sen. Richard Durbin (D-IL) – Will send staff member
*^Sen. John Isakson (R-GA) – Will send staff member
Sen. Saxby Chambliss (R-GA) – Will send staff member
Sen. Olympia Snowe (R-ME) – Will send staff member
Sen. Lamar Alexander (R-TN) – Will send staff member
Sen. Robert Corker (R-TN) – Will send staff member
Sen. Roland Burris (D-IL) – Will send staff member
*Sen. Sherrod Brown (D-OH) – Will send staff member
Sen. John McCain (R-AZ) – Will send two staff members
Sen. Charles Grassley (R-IA) – Will send a staff member
Sen. Jim DeMint (R-SC) – Will send staff member
Sen. Lindsay Graham (R-SC) – Will send staff member
Sen. Richard Shelby (R-AL) – Will send several interns
Sen. Jeff Sessions (R-AL) – Will send a staff member
Sen. John Cornyn  (R-TX) – Will send a staff member
Sen Ron Wyden (D-OR) Will very likely send a staffer
Sen. Frank Lautenberg (D-NJ) – Will probably send staff member
Sen. Robert Bennett (R-UT) – Will probably send staff member
23

HOUSE

*^Rep. Carolyn Maloney (D-NY) –
**^Rep. Christopher Smith (R-NJ) –
**^Rep. Mike Doyle – (D-PA) – Will send staff member
*^Rep. Charlie Wilson – (D-OH) - Will send staff member
Rep. Mike Quigley – (D-IL) – Will attend in person
Rep. Jo Bonner's (R-AL) - Will send staff member
Rep. Frank Lucus (R-OK) - Will send staff member
Rep. Ginny Brown-Waite (R-FL) - Will send staff member 
Rep Gregg Harper (R-MS) – Will send staff member 
Rep. Michelle Bachman (R-MN) – Will send staff member 
*^Rep. John Kline (R-MN) – Will send staff member 
Rep. James Moran (D-VA) – Will send staff member
*^Rep. Robert Wexler (D-FL) – Will send staff member  
Rep. Blaine Luetkemeyer 's (R-MO) – Will send staff member 
Rep Tom Price (R-GA) - Will send staff member
*Rep. Steve Israel (D-NY) – Will send staff member
Rep. John Tanner (D-TN) – Will send staff member
Rep. Tom Rooney (R-FL) – Will send staff member 
Rep. Marsha Blackburn (R-TN) – Will send staff member
Rep. Samuel Graves (R-MO) – Will send two staff members
Rep. Gresham Barrett (R-SC) – Will send staff member
Rep. Tim Murphy (R-PA) – Will sent staff member
*^Rep. Michael Castle (R-DE) – Will send staff member
*Rep. Tammy Baldwin (D-WI) – Will send staff member
*Rep. Roscoe Bartlett (R-MD) – Will send staff member
*Rep. Robert Aderholt (R-AL) – Will send staff member
*Rep. Lynn Woolsey (D-CA) – Will send staff member
*Rep. Jason Altmire (D-PA) – Will send staff member
*^Rep. Lloyd Doggett (D-TX) – Will send staff member
*^Rep. Steve Rothman (D-NJ) – Will send intern
*^Rep. David Wu (D-OR) – Will send staff member
*^Rep. Zach Wamp (R-TN) – Will send staff member
*Rep. Shelly Berkley (D-NV) – Will send staff member
*^Rep John Tierney (D-MA) – Will send staff member 
*Rep Jim Gerlach (R-PA) – Will send staff member 
*Rep. Patrick Kennedy (D-RI) – Will send staff member 
*Rep Peter King (R-NY) – Will send staff member (LD)
*Rep. Alcee Hastings (D-FL) – Will send staff member 
*Rep. Gregory Meeks (D-NY) – Will send staff member
*Rep Bob Goodlatte (R-VA) – Will send staff member
*Rep. John Larson (D-CT) – Will send staff member 
Rep. Jason Chaffetz (R-UT) – Will try to send someone 
Rep. Jim Cooper (D-TN) – Will try to send someone 
*Rep. Mike Michaud (D-ME) – Will try to send someone 
Rep. Jerry McNerney (D-CA) - Is “considering” sending someone 
*Rep. Judy Biggert (R-IL) – Will “do their best” to send someone 
Rep. Kay Granger (R-TX) – Will likely send someone
 
47
 
*Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus = 32
 
*^Member of the Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus - who also sent staff to Sept. briefing = 15
 
**Co-Chairs – Coalition for Autism Research and Education (CARE) – The Congressional Autism Caucus
 
David Kirby, investigative journalist and author of The New York Times bestseller Evidence of Harm, Mercury in Vaccines and the Autism Epidemic – A Medical Controversy, will inform Members and their staff about developments regarding environmental factors in autism and the “Seven Studies to Watch” – Plus, changing ASD demographics post-thimerosal reduction.  Mr. Kirby will also be joined by Mark Blaxill, Editor-at-Large of Age of Autism, Director of the Coalition for SAFE MINDS and co-author of a forthcoming book on the roots of the autism epidemic, who will address the policy and public health implications of the autism crisis.

Among the issues to be discussed are:

1) The unanimous endorsement by the National Vaccine Advisory Committee to look at the feasibility of a large vaccinated-unvaccinated study, with autism as an outcome.

2) The NVAC endorsement of three other vaccine-autism investigations, including children with mitochondrial dysfunction, children with regressive autism, and vaccine injury as a risk factor for ASD.

3) Recent Vaccine Court decisions finding the MMR and  Hep B vaccines caused injuries that led to autism and MS.

4) The NIH Early Autism Risk Longitudinal Investigations EARLI study and the HHS/EPA National Children’s Study, both of which are looking at vaccination and mercury exposures, with autism as a possible outcome.

5) The CDC’s Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network, whose five-year goal includes studying "specific mercury exposures, including any vaccine use by the mother during pregnancy and the child's vaccine exposures after birth.”

6) Cleveland Clinic – A recent article in PLoS Online by authors from the Cleveland Clinic, Harvard and Johns Hopkins University reported that, "Large, population-based studies will be needed to identify a possible relationship of vaccination with autistic regression in persons with mitochondrial dysfunction.”

7) Recent statements by Federal health officials such as Dr. Duane Alexander, Director of the Eunice Kennedy Shriver Institute of Child Health and Human Development (NICHD), who said it is important to ask if some children are, “more susceptible to some vaccine characteristic or component than most of the population, and may develop an ASD in response,” and Dr. Anthony Fauci, Director of NIAID, who said in a US News and World report article, “If we can show that individuals of a certain genetic profile have a greater propensity for developing adverse events, we may want to screen everyone prior to vaccination."

8) The U.C. Davis M.I.N.D. Institute study which found, that the seven- to eight-fold increase in the number children born in California with autism since 1990 cannot be explained by either changes in how the condition is diagnosed or counted — and the trend shows no sign of abating. This as young adults begin to flood the social services system

9) Reports of reduced Autism Spectrum Disorder (ASD) severity among the youngest children, following reduction of thimerosal in childhood vaccines.

Comments

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NFL Jerseys

I also remember tweeting Joe Rainsberger that he wants to "recognize his peers". Not sure what exactly that was about, but it certainly added to the impression that the goal of the award is not well thought through, kept alive and communicated.

Bob Moffitt

Curious...did Rep. Eliot Englel or staff attend? Did NYS Senators Charles Schumer and Gillibrand or staffs attend?

If not, it was NOT because THEY were NOT notified.

Wayne Barton

coburn did not attend. did not send staffer. talked to chief of staff said he would get info from rep smith. Was very sorry about the wrong info given. and will be contacting me later with more info.

Wayne Barton

Tom Coburn office did say he was attending. I will confirm that he did attend

Teresa Conrick

Updated RSVP- My Representative of the Fifth Congressional District, Cong. Mike Quigley (D-IL) will be attending.

Maurine Meleck

please add to list

Senator Lindsey graham(R-SC) will send staffer

Senator Jim DeMint(R-SC) will send staffer

Maurine Meleck

Benedetta Stilwell

Todd W you need to hush. I don't know if you have a child with autism or not. If you do I am sorry. I am sorry you did not stay with it long enough to see it react to a vaccine shot as I did. To see your child stroke out is a bad deal, so hush.

FedUp

Thank you for sending the invitation to the Briefing on Federal Autism Research and Treatment Initiatives to Congressman Graves. Mr. Graves is unable to attend, but will be sending two staff members to gather information to bring back to him.

Thank you,

Buffy

---------------------------------------------------

Buffy Smith

Congressman Sam Graves (MO-06)

Scheduler

Office: (816) 792-3976

Cell: (202) 731-3116

Fax: (816) 792-0694

buffy.smith@mail.house.gov

Andrea

Anyone in Ohio please call Senator Sherrod Brown's office.

202-224-2315

Jessica McNiece is his health legislative aide.

E-mail: Jessica_McNiece@brown.senate.gov

I couldn't even leave a message on her voicemail because it was too full. I e-mailed her.

Maybe someone else will catch her in the office or be able to leave a message.

Carol

More Senate Republicans than Democrats so far. Interesting.

Teresa Conrick

Todd W.-

You would lose any debate based on your rebuttal here:

"Bunch of bunk studies by the Geiers and Blaxill, as well as Wakefield's fraudulent study."

Your personal bias seems to be putting the words "bunk" and "fraudulent" here. What studies could you possibly be referring to for each of these people? Stick with methods, facts, data, and conclusions. As much as you do NOT want vaccines or aspects of the environment to be a big player in autism diagnoses, it does not give you the right to insinuate fraud in an attempt to deny and hoodwink real facts and good science.

That would be a serious error and would put a permanent question mark on your ability to be objective, rational and honest.

Maurine Meleck

Just got word-pleasse add to the list:

Gresham Barrett(R-3rd district SC) will send a staffer

Jeanne

A staffer from the office of Congressman Marsha Blackburn (R-TN) will attend the briefing Friday.

Teresa Conrick

Adding in my recent RSVP:

James Freeman will attend:
staff member for Senator Roland Burris (D-IL).

Thanks, James!

Jeanne

I've sent fax and email invites to President Obama and First Lady Michelle Obama. I urge you all to do the same, the more of us asking, the better chance we have of a staffer (or two) attending.

Contact Info for the scheduling offices of:

President Obama:
Email: scheduling@who.eop.gov
Fax: 202.456.2461

First Lady Michelle Obama:
Email: firstladyscheduling@who.eop.gov
Fax: 202.456.2461 (same as prez)

Maurine Meleck

These people seem to becoming more and more elusive every year. I am still waiting from calls from all three offices I've contacted. If nothing today, will contact again tomorrow We had such a good response last time at the Kirby briefing and it took a long time to get those people there(at least from my state).
maurine

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