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Managing Editor's Note: Ginger Taylor at Adventures in Autism shared this post with us. That's her son Chandler in the photo. Thank you, Ginger.
Tom Daschle is Asking For Your Health Care Stories
Tom Daschle is "asking anybody and everybody to share their health care experiences" HERE.
GO TELL HIM! (HERE)
I encourage you to begin your letter to him, as I have, "I am the _________ of a vaccine injured child". They need to be confronted with that sentence over and over again.
My letter:
I am the mother of a vaccine injured child.
My six year old son had early vaccine reactions, but instead of recognizing them for what they were, his doctors continued to vaccinate him according to the overly aggressive CDC vaccine schedule. After his 18 month shots he began to display the symptoms of Vaccine Induced Encephalopathy, but because his doctors had not been educated on how to look for vaccine induced encephalopathy (loss of eye contact, not responding to stimuli, seem disconnected from the world around them - according to HHS/VICP vaccine injury table [HERE]), his doctor called it "Autism", did no medical investigation of his case, and simply sent him for speech and behavioral evaluations.
I had to learn on my own what was medically wrong with my son and figure out how to treat him myself.
Along with the symptoms of "Autism" and Vaccine Encephalopathy, it turns out my son also had mercury poisoning, which he also displayed the symptoms of at that unfortunate appointment. He displayed an inability to speak, neurological damage and digestive system damage, which, according to CDC/ATSDR, are all symptoms of mercury poisoning. [HERE]
But again... my doctor was never taught to look for the symptoms of mercury poisoning, even though he had been injecting children with HUNDREDS of times the EPA safe level of mercury for years. So he just called it "Autism", because that is what CDC/AAP taught him to do.
Autism is a junk diagnosis that tells us NOTHING about what is going on inside a child's body. It allows the medical profession to shrug its shoulders, repeat the mantra, “no known cause or cure” and get away with not even having to take our kids temperature.
Because it has been four year since my son's regression, and the arbitrary and unfair statute of limitations for filing a claim with the Vaccine Injury Compensation Program is three years, unless it is changed, my son will not receive the money he needs, and is legally due, for his injuries.
We have treated him via the emerging medical interventions that mainstream medicine refuses to investigate because they do not want to believe that something that has been so good in the past, vaccination, is now being overly used, causing severe damage and death to children on a huge scale, and that the "autism" epidemic is largely a iatrogenic illness.
My once healthy, social and verbal son could only speak two words, could make no eye contact and would not even answer to his own name after his vaccine induced "autistic" regression. With in 48 hours of putting him on the GF/CF diet to treat his digestive symptoms, he began making eye contact and answering to his name. The FIRST day we began chelating him with DMSA, he looked me in the eye and called me "Mommy" (four times in a row) for the first time since his regression 10 months earlier!
The treatments we are using on him are expensive and all consuming. We sold our home in Los Angeles, my husband quit his job in the entertainment industry, and we moved to much less expensive life in Maine so that we could pay for Chandler's treatment.
Almost every penny comes out of our pocket, as the medical community's denial and obfuscation prevents these long established medical treatments from being properly studied on children with an "Autism" diagnosis.
But if we have to spend every penny we have, down to the shirts on our backs, we will do it.
Because biomedical treatment for "Autism" works! There are over 1100 documented cases of children loosing their diagnosis all together via these methods.
Chandler has not fully recovered, but we have gotten him half way back. He has gone from severe to high functioning autism, he is verbal, with some impairment, almost all "autistic" behaviors like flapping/spinning/self injury are long gone, he is mainstreamed in 1st grade with a helper, and he is a happy boy that plays with his brother and hugs and kisses his loved ones. AND CALLS ME MOMMY!
I have spent four years reading and writing about vaccine induced autism, and the things that have gone on at CDC/HHS/AAP that have caused this epidemic and allowed it to snowball are not only unconscionable, some of them are illegal.
Further, CDC statements that there is no link between autism and vaccination have become completely nonsensical. Julie Gerberding actually went on CNN to talk about the Hannah Poling case, explained that in children with mitochondrial disorders, vaccination can cause "fevers and other complications" that result in the symptoms of autism, and then in the next breath said that vaccines had no relationship to autism. You can watch this absurdest theater for yourself: [HERE]
HOW STUPID DOES SHE THINK WE ARE!?
THIS HAS TO CHANGE..... NOW!
The vaccine schedule is NOT properly safety tested, it is too aggressive, and doctors are not trained to look for vaccine damage or to know which children are at risk for serious vaccine damage.
BUT MOMS KNOW! We all have the same story. We all saw the same early warnings, told our docs, but they didn't listen. Because CDC/AAP, instead of listening to us, have labeled us “desperate parents” who are “scientifically illiterate” and “looking for someone to blame” for their children’s autism.
So we no longer listen to them. Trust between us and the medical profession is dead. My friends no longer go to their doctors for vaccination advice, they come to me.
There is NO study that shows that the four shots my son was given before his regression are safe when given together, and even the individual shots are not tested against true placebo, but just other versions of the same type of vaccine!
We have been begging for a simple vaccinated v. unvaccinated study to see what overall health out comes for kids are, but CDC/HHS/NIH won't do it. They will allow nothing to stop the run away vaccine program, and they are busy adding MORE VACCINES!
Our kids are not bottomless pits that can constantly have powerful pharmaceuticals poured into them!
I WILL DO WHATEVER, GO WHEREVER AND TELL MY STORY TO WHOMEVER, TO BRING ABOUT VACCINE REFORM!
CHANGE THIS!
Ginger Taylor, M.S.
Brunswick, Maine
Http://www.adventuresinautism.com
Spread the word.
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Lorraine wrote: "I live and work in Toronto, Ontario Canada. I know there is hope and that these kids can recover from autism. Here in Toronto I only know of two DAN doctors."
Hi Lorraine - the several trips we've made to Toronto over the last couple years probably involved one of them :-). What a nice doc - not sure how many times this person came "under attack" from "colleagues" for "alternative" approaches to healing. Big price to pay in that profession for thinking outside the box.
Being an EA in Ontario, you're no doubt aware of the way our kids have been left twisting in the wind with respect to even basic IBI therapy in schools, never mind the notion of biomedical options on top of that. Apparently we've got lots of $ for disgusting misleading crappy Gardasil ads but nothing extra for the long list of autism kids left hanging for another year. A sad state of affairs. Thanks for digging - and pestering - and adding your voice to the mix in the hopes that the medical and educational systems can finally get their sh$t together and step up to the plate.
-Randy
Posted by: Randy | December 08, 2008 at 06:02 PM
Hello
What a beautiful son you have! I am an educational assistant working with students on the autism spectrum. I have done lots of research into biomedical intervention. It is very frustrating that the students I work with, their moms and dads do not know about biomedical intervention. I live and work in Toronto, Ontario Canada. I know there is hope and that these kids can recover from autism. Here in Toronto I only know of two DAN doctors. The parents are not even educated in biomedical intervention. When I talk with staff members they look at me as if I am nuts! I hope one day very soon that the governments and medical personnel will realize that we need to act quickly with our sons and daughters to eradicate this disease. Thank you for your comments. Sincerely, Lorraine Harrietha, Certified Educational Assistant,
Toronto, Ontario Canada
Posted by: Lorraine Harrietha | December 07, 2008 at 04:14 PM
I know that the majority of us parents have little belief in our government and their ability or willingness to help the autism crisis. But, whatever your beliefs, and however one chooses to advocate, I feel that the important thing is to keep at it. The one thing that we ALL have in common, is hope. I will keep writing and keep looking for opportunities to spread awareness. They will not break my spirit, they will not keep me quiet and they will not steal my hope.
I sent my letter and it won't be the last.
Kris Wiseman
Posted by: Kris Wiseman | December 07, 2008 at 02:21 PM
Dear Ginger,
I hope someone listens to us mom's we have to keep yelling till they do. Kinda similar to what we have to do to get our husband's to listen to us. Your son Chandler is so cute he looks like the male version of my daughter Candace. Another red-head with autism!!! What is going on?? I think they are more sensitive than others? I would love to see a study on the % of red-heads with autism.
Faith, Love & Hope,
Sandy
Posted by: Sandy Waters | December 07, 2008 at 10:36 AM
Excellent letter. I especially like the link to the vaccine injury table. What is post-vaccine encephalopathy? What causes it? What are the individual risk factors? What are the early symptoms and what treatments (IVIG, plamsmapheresis,steroids) could be instituted to treat it? Oh but wait, we (CDC/AAP) cannot recognize that it even really exists, so don't look at these things or educate doctors to help anybody who might have post-vaccination encephalopathy.
Posted by: AutismDad | December 07, 2008 at 10:32 AM
Here is the video from Tom Daschle talking about the invitation to speak up about our needs.
Thank you Ginger!
http://www.causecast.org/videos/4651
Posted by: Tanners Dad | December 07, 2008 at 08:48 AM
I just submitted my four page letter.
By the way Ginger, do they make kids any cuter than your son?
Posted by: Gatogorra | December 07, 2008 at 12:22 AM
P.S. to Ginger - your son is beautiful!
Posted by: Twyla | December 06, 2008 at 06:01 PM
Ginger, what a great letter, and thanks so much for letting us know about this link.
Kathy Blanco, I believe that there has been some change already -- greater awareness of these issues -- and I believe we are on the verge of explosive change. The grassroots letter writing and blogging is very important. And, as more and more people are adversely affected by the vaccine schedule, more people with various kinds of power are getting involved.
Yes, we are up against a gov't-pharma-industrial complex, but we still live in a democracy where every person has one vote and where we can't be thrown in jail for speaking out. Change is gonna come.
Posted by: Twyla | December 06, 2008 at 05:25 PM
This is why I nominated Ginger for "Blogger of the Year". Incredible! I'm off to write my letter!
:)
Posted by: Jeanne | December 06, 2008 at 04:28 PM
"I only know, that all the picketting, and letters and emails have done NOTHING. The only thing, the only thing that works, is bottom line, money."
So, Kathy how do you think the money train slows down without the message getting out there FIRST???
Sorry, but it *is* the "picketing, e-mails, letters" that *deliver* the message and to say they have done NOTHING underestimates the power of the press.
Here's how it works: Once the folks start getting the message, they research the issue; then they make decisions; if they make a decision *not* to vaccinate the money train slows down.
Jenny M, Jim C, AoA, Adventures in Autiism, are just a few examples of ways to get the message out to the masses.
Bottom Line: Great job Ginger!!
Posted by: Kelli Ann Davis | December 06, 2008 at 04:00 PM
Ginger-
I hope your advocacy for your child will get through to these people, but as in all things, unless it happens to their family, someone will think we are on the long list of problems in our country that can never be solved and or are on the lost list of priorities. This is not to say we should stop with the advocacy and voice our concerns, but I am afraid the industrial military pharmaceutical health complex has no desire for the American people to have honest and true health. Honestly, they do everything they can to make us sick, from BT Toxins, GMO, Fluoride, Vaccines, Mammograms, you name it...
We can solve this on our own, it will take our money, our time, and all our stress, with much research funded by independent avenues. The government has signed us out as the do not listen to people, the annoying parents who still insist vaccines did something to our kids.
The only way to prevent autism is to not vaccinate your children (AT ALL, not green vaccine, not slow schedule, not no mercury), don't use birth drugs or do immediate cord clamping, don't have infections unknown to you (like lyme, mycoplasma, and or other viruses) that criculate in your body at time of conception and are not treated or are undertreated, and eat a healthy non western diet (raw, non GMO or paleo). Keep away from toxins, amalgams, fluoride, Gluten and Casein, Check your thyroid function (properly) and the like, and I guarantee, you will not have an autistic child...and I do mean that, being, that we had two, and my two NT daughters who followed this by the letter, have healthy babies, no autism. If autism is so genetic, you tell me? It's time we walked from the pediatric office to the naturopath for our health care, if not our own google searches on how to treat a cold naturally, and maintain good health in our babies. My grandchildren have not been sick ONCE, I mean the dog gone dragged out type...and no ear infections, none. Mothers also breastfed for a longer time, and don't rush back to work if they can help it. And, no nursery....home school is preferred.
The point being, we must teach our next generation to not trust the AMA, the AAP, the IOM and the CDC/NIH's/ and their paid and bought politicians of our world. They must go on the wisdom of their mothers and their mothers mothers, as if your handing down Indian folklore. We have forgotten the true traditions of health, and put our trust and reliance on white coats to solve them for us. We don't look at ingredients anymore (have you ever seen a skinny diet coke user?), and we seem to have stopped questioning if we still have our constitution, our government, and our true virtuous freedoms etc.
The only way to solve this is not heartfelt letters/faxes/emails, but a general boycott of vaccines, and the autism community???? They say, safe vaccines??? Is this going to get us anywhere? Especially when their pocketbooks will still be loaded by trust from us AGAIN? The only thing THEY understand is bottom lines, and stock holdings. Again, not just us, but the general population, INSISTING on long term studies, vaccinated and unvaccinated studies (ethical or not), and just find out, if autism (and other neuro disorders) is the consequence of a series of oxidative stressing, vaccines being the last and final last straw. We truly don't know the result of this madness, and for me, and my observation, it not only causes autism, but ADHD, Personality problems, seizures, ataxia, Guilian Barr, neuropathies, ALZ, Parkinsons, MS, Obesity, you name it, the modern ills, manmade all the lott of them.
I believe also, that many mothers and fathers are harboring infections, and metabolic problems in themselves, and toxins, and this has sheer and utter conseuences to the health of their baby to be, and has consequences, on whom will vacccine react, and who will seemingly go unscathed (and by the way, nobody does). These giant questions must be resolved as well, and research into immune and metabolic genetics, and mitochondrial issues is or should be at the forefront of our research agendas. We must study what endrocine disruptors are doing to our kids, or the low dose combination toxins they are swimming in.
I blieve that vaccines did my kids in, but I also believe, that the world, it's pollution, it recommendations as "Safe" have also done them in. I also think I have TRUSTED far too long, in the whole system, and this time, I am going to trust the advice of my grandmother....have your babies at home, give them CLO everyday, feed them foods from the garden, put them in the sunlight, etc. These are the recipes for strong healthy children...and until we listen to that voice within, autism will continue, it is a trust disease.
Don't take this as criticism for your advocacy, because I have been in this business for 27 years now. I only know, that all the picketting, and letters and emails have done NOTHING. The only thing, the only thing that works, is bottom line, money. That won't stop me from still writing the letters, but I am am sure on this one thing...that until the WORLD understands this connection, then we will continue damaging our prescious babies.
Posted by: Kathy Blanco | December 06, 2008 at 02:45 PM
I am the Father of a vaccine injured child. I have no Insurance. I have no Job. My son takes 24 hour a day care. The programs of support just maintain his condition they do very little to make progress.
Did you know that the government has set us up for failure? The ecomomic impact of the Autism epidemic and crisis will be over $300 billion a year in about ten years. That is a conservative estimate. Why and how did we get to this point. Well Washington has had a culture of corporate bailouts for the last few years. One industry said that it was a matter of Homeland security that we were not allowed to raise our hands in the normal court system and make our case for our children.
The pharmaceutical companies lobbied congress and got through a system of protection, denials, and delays that take away our freedoms. Come on people we all believe the toys are poisoning our kids. What do you honestly think the rise in Autism could be related too? Where are all the adults with Autism. Right now Tanner is 15,001 on a waiting list to get into group housing. People have to die before space opens up. We are looking at a massive need now to develop a plan to house and care for all the 7 to 12 year olds with autism becoming adults in the next few years.
The Pharmaceutical industry carefully constructed the shortest statue of limitations to report adverse events from vaccinations. They also set up a program where they can not be sued directly. Right now there are over 4800 cases pending that have been going on for years. It is time to wake up world.
I am not going to post the many thousands of links that document my position because I saw it with my own eyes. (Tanners decent and slow recovery )
I am a witness.
I am not going to post the many thousands of links that document my position because I heard it with my own ears. ( Stanly Plotkin Sanofi Pasteur Wants Liability Protection for Vaccinating Pregnant Women http://www.ageofautism.com/2008/12/sanofi-pasteur.html )
I am a witness
I am not going to post the many thousands of links that document my position because I smell it when I have to clean up Tanners diapers at 11 years old and any time Pharmaceutical schills call me a parasite.
I am a witness
I am not going to post the many thousands of links that document my position because I taste it everytime I have to feed Tanner a food on his GFCF diet.
I am a witness
I am not going to post the many thousands of links that document my position because this is truly the way I and many other parents dealing with autism feel.
I am a witness
If it smells, tastes, sounds, looks, and feels like a duck... It must be a ....
It is not a bailout because I and the other parents will always be injured by this debacle.
You want a few facts just because...How about a white paper that has been ignored for years...
From Safety Last to Children First: A White Paper
http://www.ageofautism.com/mark-blaxills-atlanta-man.html
I run a website for my son exploring the issues and raising awareness
please please please please please please please please please please
I beg you please help the families dealing with autism...
http://www.causecast.org/member/tanners-dad
Posted by: Tanners Dad | December 06, 2008 at 02:02 PM