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By Allison Edwards
WARNING THE FOLLOWING CONTAINS A SWEAR WORD OR TWO AND I MAKE NO APOLOGY!
It was the last day of school today for Jon and I went to a 2 o'clock assembly. I was late, had been rushing around doing all the things I won't be able to do from Monday. Summer holidays are my captivity as his carer. I crept to my seat on the back row whilst they were singing the cheery Cliff Richard song "Summer Holiday" led by Class Teacher, Anne.
About thirty children from two groups of eleven year olds, stacks of class support workers, and only a small handful of parents. Award Certificates were being handed out to each child leaving to go from primary to secondary.I looked around the hall and my eyes soaked up the scene and it almost ripped out my heart. Four wheelchairs contained severely physically disabled children, two boys with Downs, the rest were autistic.
* Cameron had his hands over his ears wailing
* Josh (so handsome, tall with blond hair blue eyes) rocked and hand flapped
* Kyle had his fist in his mouth
* Luke got up to study the glass in the door behind Anne for ages
* Jatinder sat behind everyone at the back on the floor, by his chair, a carer constantly grappling with him
* Alex had his mouth open staring into space
* Jonathon sucked his thumb and chewed his fingers, oblivious
* John hit his own face again and again, then a carer held his hands
* Jack went "eeeeeeeeeee" throughout
* Chloe sat very well indeed
Another boy was jumping into the corner facing the wall
In front of me, one was lolling his upper body on his own lap
So many of them in one place, several I'd not seen before. It was overwhelming.
In the commotion of that room I sat between Cameron's Dad and Jatinder's Gran and gazed around as Cam's Dad described how he mixes up who's who because the boys (all good lookers) are so alike in their behaviour. I said I blamed the vaccines, he agreed. I'd never talked to him before. It was hard to watch Jon stand to get his certificate, then not move forward, have to be taken, have his thumb removed from his mouth and his arm lifted out to accept his certificate, then escorted back to his seat, clueless!
The worst part came at the end. Jon had been at respite all week, I hadn't clapped eyes on him since last Sunday and I was all excited to see him. As he was brought to me, he just took my hand as if I was a carer to take him back to class. I said "Jon, it's mummy, look" and gave him a big hug. Nothing, not a flicker of recognition, he just stood, vacant. School is not the place to break down - so I didn't - but I wanted to let out a primeval scream. What have they done to our children, to my son? (Aside from my taking him for his MMR jab, the responsibilty for which I admit, and I am paying for daily).
That was an awful thing to see today, such a throng of autism, in one hall in one school in Shropshire. Young boys who should be able to do the simplest tasks but can't, should be playing football with their mates, going off camping, bursting out of school ready to climb trees and soak up the summer fun but instead are being led out by the hand or hands to their buses by carers. An utter waste of beautiful children.
I want the fucking bastard who damaged them, held to account. Please help me to do this.
Alli Edwards (one very angry mum) is with www.cryshame.org in the UK.
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I can not take my son into assembley in his mainstream school as the noise is to much he crys and trys to wander round. The head seems to blame me for his lack of control. He's only 5 for gods sake. He has autism, attachment disorder and delayed development. What does the head expect me to do. He was only diagnosed in nov 10 so we're still learning how to deal with all of this. It's when total strangers make comments like 'he needs a good hiding' I find it hard not to tell them to sod off .
Posted by: julie raddbourne | April 06, 2011 at 05:51 AM
My heart breaks for you and all of us out there who have to see these children and all their disabilities. My daughter is 7 and is doing well, but she still gets so much input she bangs her hand and covers her ears and screams in school when the bells ring and fire alarm. The stimming and having other parents stare and point "what is she doing" she fn stimming because you have 3000 watt light bulbs in here and they are driving her crazy!!!!!!!!!!
I love your article and look forward to reading more from everyone.....Pennsylvania
Posted by: Elizabeth Lasecki | April 05, 2011 at 08:06 PM
Thanks for the kind sentiments expressed here.
Every school visit produces raw emotion but brings with it the strength to fight hard to stop this train wreck of youth. Extraordinary times we live in, the age of autism.
Posted by: Alli Edwards | April 05, 2011 at 02:40 AM
Alli, I know it's been nearly 3 years since you wrote this, but it still brings tears to the eyes of all who read this.
I am sending you hugs from "across the pond," along with a phrase from part of our recent history: We Shall Overcome. http://en.wikipedia.org/wiki/We_Shall_Overcome
Posted by: Taximom | April 04, 2011 at 08:14 PM
Its why my son won't be going to secondary school (high School).
The Primary School people are OK here in the UK, its the Secondary School - they are building an 'Academy' (2000+ kids) far from our home.
We would rather Homeschool .
Posted by: Harry | August 15, 2008 at 08:23 PM
Your sentiments (if I was writing it would contain more cuss words) are felt all the way here in California. Its enough to bring you to your knees on a regular basis.
I don't know why we are here and why kids are suffering but we will help them. They will get better and our stories will be heard. They are counting on us. We will do this together.
Posted by: Lisa - proud mom to Jeff | July 23, 2008 at 07:24 PM
You write beautifully, I am on your side and in your shoes. I am blogging because it is safer and cheaper than Crack, but my rage is simmering right below the surface...I'm with you, we are warriors and we will get the bastards...Alison Myvaccineinjuredchild.blogspot.net
Posted by: alison MacNeil | July 23, 2008 at 06:01 PM
So beautiful and yet so heart wrenching to read.
There are times when words will never suffice and this is one of those times.
Just *KNOW* that WE know the pain. It's why we fight.
God Bless you and your boy,
Kelli
Posted by: Kelli Ann Davis | July 23, 2008 at 01:18 PM
Allison, it's a wonderful piece. So many of us are in the same situation and we know who's to blame. It's not the parents, it's the vaccine junkies doing this to our kids and more to come.
Posted by: Hary Hofherr | July 22, 2008 at 03:09 PM
Thank you for your eloquent post Alli. I took a half day off to go to my son's last school day assembly - 2 kids from every class got an award - he was 1 of the kids from his class to get an achievement award. When his name was called he sat beside his helper (another student) with his hands over his ears staring at the floor - he couldn't make it up to the front - the teacher brought the certificate to him. He got the loudest cheer in the room - but he didn't know how to handle it. Every missed opportunity / activity / event / smile / question - it just kills me.
Posted by: Randy | July 22, 2008 at 02:34 PM