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ARI founder Dr. Bernard Rimland, who also founded the Autism Society of America, was the man who dispelled the refrigerator mother theory of autism. The current ARI newsletter speaks to the current state of care/services for adults with autism and Asperger Syndrome. Today's problem is going to be tomorrow's catastrophe as the tens of thousands of children with autism grow into adulthood, into a society that is ill-equipped to care for and respect them.
A new book called Families of Adults With Autism: Stories and Advice for the Next Generation is now available for sale on Amazon. (PURCHASE COPY HERE.)
Read the ARI newsletter HERE.
We're grateful here at Ageofautism.com for the generous sponsorship of ARI.
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Familes of adults with autism made me laugh and cry. Finally, a book that tells us about the long term struggles associated with raising a child with autism and severe behaviors. What's more, it gives the reader a candid look into how the system serving disabled isn't always as friendly as we would care to admit. A must have for anyone in congress who wants to know what life is like for these families. Highly recommeded.
Posted by: Yolanda | May 03, 2008 at 05:28 AM
Chapter thirty-three is also a pretty good picture of how a family who used shock therapy to stop their child from hurting himself had a rough time and how when that shock therapy was taken away, the child regressed, only to be safe again, when the shocker was re-instated. Fascinating look into this situation. God bless these families.
Posted by: Glenn Hall | April 15, 2008 at 03:17 AM
Read the stories carefully. You will find some instances where the etiology of autism can be traced to where vaccine damage began. Sadly, this led to years of mindless seige and oppression for all involved. A terrible thing. Thank God it's being exposed. These families should be offered compensation--no legal time limit needed! This is an outrage that has caused great harm. An evil injustice to families who have had to carry this load for all their lives. Please read book and see what I mean. Don't be quick to judge the stories. There are some that will may cause you to ask, well, if they had done this, or that, or maybe this, but don't judge too harshly...you don't know the hell these families have suffered. And how much they love their children. And how much they appear to have been "left behind" by an apathetic system we all call "serving disabled." I'm sure there are good people working in these places, but it seems for some families there is much, much, much more that needs to be done for them than the average high functioning autisic child and unfortunately, it looks like our social workers aren't able to deal with these kinds of autistic people. Why?
Posted by: Tina Morland | March 25, 2008 at 02:10 AM
Book talks about what few books writing about autism have covered: self-injurious behavior in the autism population. This is the darkest side of autism and one that isn't going to go away anytime soon. A true life horror story for any family dealing with this unbelievable behavior. These kids need help!
Posted by: Tom Yancy | March 21, 2008 at 08:03 AM
Families of Adults with Autism has many stories that illuminate parents who live in the "autism subculture". Chapter 18 gives us a good look into how ill-equipped our "experts" are at handling complex situations (self-injurious behaviors) pertaining to autistic children. A real wake up call. A reminder about how we must speak up for our most vulnerable citizens.
Posted by: Heidi | March 12, 2008 at 12:45 PM