Managing Editor's Note: You'd think that during autism awareness month media mean girls would at least try to acknowledge that Jenny is an autism Mom - and give her credit for helping her son into recovery. Not so for these two shrews - who delight in joining in the nationally cooridinated campaign to BULLY Jenny McCarthy at every turn. It's unseemly - and I can think of NO other diagnosis except for autism - in that it is connected to vaccination - that would garner such vitrolic venom as if we and our children were Christians in The Coliseum of ancient Rome. Attacking us is now a bloodsport - more popular than boxing. KS
OPEN LETTER TO MEGYN KELLY (FOX NEWS) AND DANA LOESCH (CONSERVATIVE RADIO TALK SHOW HOST)
My husband watches Fox News regularly. I really can't watch anything myself because my free time is spent looking at autism stories on Google News. Anyway, on April 16, Richard told me that the Kelly Files had this scathing attack on Jenny McCarthy. I found the 5 minute video and listened in disbelief.
Megyn Kelly: "Jenny McCarthy is known by many as 'an autism activist.' The model and actress getting a lot of attention over the years for her warnings about vaccines, after her own child was diagnosed with autism. As cases of mumps, measles and whooping cough continue to pop up in America, she has come under fire for her vocal positions. AND NOW SHE SAYS SHE WAS NEVER ANTI-VACCINE."
(The emphasis is mine because of the way Kelly said those words.)
Next was a clip from Larry King Live where McCarthy called for safe vaccines. "Make a better product and then parents will vaccinate."
Several more clips were shown where McCarthy stated that she believes in the link between vaccines and autism.
Kelly then had Dana Loesch, conservative radio/TV show host, join her.
Kelly: "It's really shocking to hear her now talk about how she actually says she's PRO-VACCINE.
By Kim Stagliano
My God... In this week after Passover and Easter, "'Eloi, Eloi, lema sabachthani?"
Please take a look at this petition to SHUT DOWN the barbaric Rotenberg Center in Massachusetts. This "school" (and Abu Graib is a summer camp) uses electric shock as a behavioral treatment. Painful, aversive, out of date, last ditch, aw who cares it's just mentally disturbed kids and autistic kids who are probably in the last place on earth that will take them electric shock. Yes, Massachusetts (which happens to be my homestate) the ultra-liberal blue state where anything goes - except medical rights and freedom and respect and decency for children and their families. The state where Justina Pelletier languishes in DCF after having been taken from her family by Children's of Boston.
Here is the start of the petition by a former teacher's aide at Rotenberg. As an aside, my Dad, now 91 years of age, played golf with Judge Ernie Rotenberg back in the 60s and 70s. And rumor has it, the Judge was a lot like Judge Smails - he used a "footwedge" to boost his scores. His wife Gladys died just last year, her service held at the Synagogue in the town where I grew up. The dichotomy, or irony (which seems too glib a word to suffice here) of this school having been named after a Jewish man - a school that tortures and maims as viciously as any concentration camp as far as I can see, is as vivid as the burns on the boy's body.
That any student remains there speaks to the tragedy of mental health and autism care for teens and children. There are so few good choices. NO ONE KNOWS WHAT TO DO! For the Alex Spourdalakis's, the Sky Walker's, kids who need care and medical treatment - not torture, the Rotenberg Center should be closed down for cheating children out of their very lives - it is barbaric and inhumane. NOW.
The video is disturbing, please be aware. Kim
I deeply regret having worked as a teacher’s assistant at The Judge Rotenberg Center (JRC), a “special needs school” in Canton, Massachusetts, where children and teenagers with autism and other disabilities are administered electric shocks as a means of controlling their behaviors.
I joined the JRC because I thought I would be helping these special needs students. But it became clear that this practice was painful, traumatic, and more harmful than good. I never would have used these "GED" shock devices had JRC not told me and other staff in training that the GEDs had been “approved by the FDA”. When asking an administrator about the severe thick and bloodied scabby injuries all over students' bodies, I was told that these machines had been tested and were “proven to be safe” as necessary to get FDA approval. I did not know until 2012 that this was a lie!
April 22, 2014, NY Times: Autism and the Agitator
April 22, 2014, Jacksonville Florida Times Union: Guest column: Vaccines still are crucial to health
April 17, 2014 BCC News: Study: US is an oligarchy, not a democracy
I encourage the members of the scientific community to take note of two numbers. The first is that according to the Centers for Disease Control the rate of autism for children born in 2002 is 1 in 68. The second number is that according to Professor Eric Oliver, a professor of political science at the University of Chicago, 20% of the public believes that vaccines are linked to autism.
For those who believe there is absolutely nothing wrong with the way we currently try to protect the health of our children, this is very alarming information. However, for the rest of us, this is all very clear and predictable.
The number of children with autism and other autoimmune problems is going up dramatically. The members of the scientific community say they don’t know what’s causing it, maybe something new in the environment, maybe better counting (although nobody really seems to believe that any more), and even though it’s got to be something that the vast majority of kids are getting exposed to, you really need to make sure you cram as many shots in as possible at that well-baby visit.
How is it then, that 20% of the public now believes vaccines are linked to autism?
I like to think it’s because there are a significant number of people who actually look at all this and say, hmm, something’s wrong with this picture. On the one hand I’ve got my pediatrician telling me one thing, and on the other I’ve got that long-time friend who tells me something went wrong with her kid after a vaccination. Who makes more sense? Let me think about it, says the parent to herself. Vaccines work by causing an immune reaction, and a lot of these kids are the victims of an overactive immune system. Hey, doc, could anything possibly go wrong when you try to stimulate the immune system of an infant?
I say this somewhat tongue-in-cheek, but it is the future of the human race we’re talking about here.
And for me, that’s where the scientific community comes into this discussion. The mainstream media likes to play the “Science vs. Parents” card in this debate, but I see a different reality. There are really three actors in this drama. There is Science, there are Parents, and there’s Big Money. Science isn’t the enemy. Big Money is the enemy, and it can come from the government or the pharmaceutical companies.
Congrats to MARIE, the winner.
The Autism War has begun…
Those of us who understand the connection between vaccine injury and autism have not been fairly considered by the American media and press. We are often portrayed as “angry” or “irrational” people who have a “fringe belief” that has been “debunked”. And we are all “anti-science” and “anti-vaccine.”
On the rare occasions when we are covered in the media, the other side quickly and ruthlessly attacks with an avalanche of criticism. Those in the research community, who speak out or question vaccine safety, face professional destruction.
As a result, the belief that the increase in autism isn’t real, even in the face of overwhelming data, has been used by the government to avoid responsibility for planning for thousands of people afflicted with the disorder. Families are beleaguered and often face a gauntlet of societal obstacles when advocating for their loved ones. People with autism face discrimination and even victimization.
Justice seems as though it were a million miles away.
I started digging into the shadowy world on the National Vaccine Injury Compensation Program after word about the compensation of a case in which the federal government conceded that a child’s “autism-like behaviors” were “the result” of vaccine injury. I’ve worked in and around courts for entire professional life. I enjoy investigation and looking into the “Vaccine Court” seemed logical. Maybe I could find a sound, legal explanation to the convoluted language used in the case. Didn’t the government understand that having “autism-like behaviors” meant having autism?
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
On CNN the former CBS reporter stands by her coverage of the vaccine-autism controversy. Please visit her site often at SharylAttkisson.com.
"The loudest criticisms I've heard about your reporting have been about a series that you did years ago. It was about childhood vaccinations and whether those are linked to a rise in autism. You portrayed it at different times as a debate that was continuing to happen in the scientific community.
Sharyl Attkisson: "No, I think those were some of the most important stories I've done and I would like to continue along those lines, at some point. It continues to be a very important debate."
By Teresa Conrick
It’s a hot topic, the MICROBIOME, defined as: "the ecological community of commensal, symbiotic, and pathogenic microorganisms that literally share our body space." I keep reading more and more research connecting the microbiome and autism.
It goes something like this, according to the research below- Mercury exposure, both environmental and via flu vaccination in a pregnant woman, can cause negative ramifications in her baby’s microbiome. The same is true for postnatal infants exposed to Thimerosal. The landscape of that microbiome loses helpful bacteria and instead we see more pathogens. The downstream effects - chronic infections, altered development of the nervous system, molecular mimicry, neuropsychiatric symptoms (tics, obsessive compulsive behaviors, perseveration and repetitive behaviors), and neurologic inflammation. Mitochondrial dysfunction, a more prevalent condition in many diagnosed with autism, seems to be part of this picture as well. Vaccines and their effect on the microbiome are also examined. Each of these studies is a puzzle piece, connecting these facts. The picture is becoming clearer:
An Immune Dysfunction of the Body Affecting the Brain
• Although the study suggested that gut bacteria could affect neurologic inflammation, how that might happen remains unclear. For the most part, Mazmanian says, the microorganisms that colonize the human gut don’t leave the intestine, but the immune cells that contact them do. He explains that, although 70% of the immune cells in the body at any one time can be found in the intestine, they circulate throughout the body, and the microbiota of the gut environment help determine how immune cells will behave elsewhere ……..Other researchers have suggested a link between the gut–brain axis and neuropsychiatric disorders such as autism, depression, and eating disorders. The gut contains microorganisms that share a structural similarity with the neuropeptides involved in regulating behavior, mood, and emotion—a phenomenon known as molecular mimicry. The body can’t tell the difference between the structure of these mimics and its own cells, so antibodies could end up attacking both, potentially altering the physiology of the gut–brain axis.12
• The human gut harbors a complex community of microbes that profoundly influence many aspects of growth and development, including development of the nervous system. Advances in high-throughput DNA sequencing methods have led to rapidly expanding knowledge about this gut microbiome.
When Sunday, June 8, 2014 arrives we hope you will be by our side. Great speakers have been confirmed and include attorney Bill Choslovsky, advocate and author Kim Stagliano, and Kathy Brown, President of the Developmental Disabilities Nurses Association.
VOR’s Washington Initiative, which includes Congressional visits, will occur the week of June 9, 2014. For more information, including registration opportunities, visit VOR’s website.
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If you prefer to respond by mail, here is a print form with conference details and registration form to mail.
From our sponsor: VOR
VOR 2014 Annual Conference and Initiative
"Keep up the good work! I found this Conference to be very educational and encouraging! Thanks for all you do!" ~ 2013 Conference Participant
The Focus is on the Transition to Adulthood – Teens Need to be Better Prepared
Register FREE Here!
Irvine, CA: Moms Fighting Autism and Autism College are partnering up to offer a free virtual conference on Saturday April 26th and Sunday April 27th from 8:00 AM to 5:30 PM PST. This year’s theme is: Autism from Adolescence to Adulthood, Preparing for Independence and Growth. Keynote speaker Chantal Sicile-Kira, author of five award-winning books on autism, will be speaking on Preparing for the Transition to Adulthood. Speakers include: Brian King, author of Strategies for Building Successful Relationships with People on the Autism Spectrum, who will speak on “Building a Support Community for Interdependence and Growth;” Wendy Partridge, Executive Director of Heroes of the Game, Inc., speaking on “Work Incentives Planning and Assistance – Taking the next step on your Employment Journey”, and Marguerite Cohn, Transitions Program Supervisor of the Rebecca School in New York.
"The transition to adult life can be a rude awakening for parents as well as the young adult," said autism expert and founder of AutismCollege.com, Chantal Sicile-Kira. "The unemployment rate for adults with autism is very high, and we can do a better job of preparing them during their school years. Listening to these speakers is a great way to get empowered with the information parents need to know."
9 Lives friends.... Sorry for the tech issues with our host - nasty business. Back to our regularly schedule programming. FI-YAAAAAAAAH!!!!!!
April 20, 2014, Asbury Park (NJ) Press: Autism on the rise: Why? What's being done about it?
April 18, 2014, Fresno Bee: EDITORIAL: Vaccinate your children
April 17, 2014, Jacksonville (IL) Journal Courier: Our View: Autism
April 17, 2014, Cape Cod (MA) Times: Autism advocates propose group home in Orleans
April 17, 2014, (U of WI) Badger Herald: Waisman Center helps adolescents with autism transition into adulthood
Here are two old hands at vaccine promotion, Dr. Arthur Caplan and Dr. Paul Offit, in a video interview called, "How to Deal With Vaccine-Refusing Parents." Caplan and Offit are shown discussing what to do about parents who don't vaccinate. It's time to get tough.
A lot of it is the same old, same old. We're told that there is "a mountain of evidence" that shows vaccines don't cause autism. Tens of millions of dollars have been spent on vaccine research, according to Offit. There are vague references to older parents and the environment, but no real concern over what the specific triggers might be. We're told whatever causes autism, happens BEFORE BIRTH. Offit says, "When you have autism, you are born with autism. There is no changing that, and to some people, that is helpful to know."
The idea that a baby is being exposed to dangerous toxins and viruses in vaccines is dismissed. Offit pretends that bacterial exposure through injection is the same as on the surface of our bodies.
"When you are in the womb, you are in a sterile environment. When you enter the birth canal and the world, you are not, and very quickly there are trillions of bacteria on the surface of your body. I'm not trying to sound like Carl Sagan, but you have about 100,000 trillion (1014) bacteria on the surface of your body. You actually have more bacteria on the surface of your body than the number of cells in your body.
We’re celebrating another traditional holiday in our house today. Long gone are the expectations that Ronan will patiently sit throughout the Easter festivities though. It’s okay. Ronan makes up for his impatience in one area by dazzling us in another. Take his spelling for instance. It.Is.Taking.Off! I couldn’t be more proud of Ronan—he’s learning quickly and using his voice output device to label, ask questions and to tell us what he wants, see, needs and likes. He’s even sounding out words letter-by-letter that he wants us to hear. It’s very exciting.
Other parts of Ronan’s life are going at his usual snail’s pace. He does things a little bit at a time as he’s able (and sometimes on his schedule). But the pace Ronan is working has just enough momentum to shows me that he’s creeping toward progress. Slow and steady is how a lot of people learn. Ronan is just taking a little bit longer to perfect his skills and to be ready to work on the next one.
I heard this song on the way home mid-week. It reminded me of a lot of things we’ve hoped and done for Ronan. I’ve always said it’s the little things Ronan that is able to share with us that keep us going. I’ll quickly forget that on the bad days when things are difficult for Ronan, but other people keep me in check reminding me to focus on his growth and to remember how much of a feat it was for Ronan to accomplish something.
Being able to see the transformation of what was to what is (while looking forward to what can be) has my entire family, from the super siblings to our extended family across the miles, celebrating Ronan’s efforts and advancements a little bit at time. We cling to the little bit of this, the little bit of that and whatever else we need to cling to for Ronan and sometimes, for each other.
Just a little bit of determination opens a door that had been previously shut.
Just a little bit of sacrifice here makes an opportunity available over there.
Just a little bit of darkness makes us turn around and find the light again.
Just a little bit of a dream turns the unimaginable into reality.
Just a little bit of hope helps keep a dream alive.
By Dan Olmsted
I hope the CDC is enjoying these warm spring days and basking in the sunshine of mainstream media love during Autism Awareness Month. But I strongly suspect that the shadow of darker times ahead is starting to haunt their dreams.
The CDC -- mailing address, 1600 Clifton Road, Atlanta -- is clearly managing, massaging and manipulating the data about the growth of the autism rate. It is really hard to see how long this can go on, with people like Florida Congressman Bill Posey going after the agency's Coleen Boyle in a powerful Autism One radio interview with Brian Hooker. Sample:
"I know we have an autism epidemic. You know it. She knows it. She knows we know it. But for some reason they refuse to acknowledge it publicly." Regarding Boyle's assertion that the increase is due to better diagnosing, Posey said, "I don't think anybody that's intellectually honest with this issue can begin to fathom that lame excuse that she uses."
Yesterday, we ran an extraordinary piece by Katie Wiesman of SafeMinds making clear just how lame that excuse is.
Because problems with our blog platform (not AOA specifically) meant we were down part of the day, I'd like to urge you to go back and read that piece carefully if you have the chance. As our own John Stone wrote:
"This is a colossal and important piece of work - a superb documentation of the CDC's smoke and mirrors operation. At every point the way the data is collected is inconsistent and obfuscating. Not an ounce of good faith behind any of it and the bottom line is the four trillion dollar bill, the cold monetary figure measuring destroyed human lives.
"No wonder Coleen Boyle quaked before the congressional committee."
Yes, no wonder. Bill Posey must look like Freddy Krueger to Coleen Boyle.
Katie, whose writing is always marked by respectful but relentless clarity and attention to detail, shows how messed up the CDC epidemiological data is, even by the standards it sets one year, then forgets the next. No follow-up, no action plan, no urgency. To borrow a wonderful headline from yesterday's Dachel Media Update: "Autism No Crisis, No Cause, No Chance It's Vaccines."
Anne has been attacking the mainstream media's credulous reporting on the CDC, and Katie makes the same point: "On March 28th, thousands of media outlets released the new US autism prevalence numbers of 1 in 68 in 8-year-olds born in 2002 and counted in 2010. These children are 12 years old now. What was glaringly lacking in the media coverage was any critical thought about that actual data, any sign that reporters had actually read the new report or any sign of urgency on behalf of our children."
Which is what the press is for -- not to give 24-hour coverage to a still-missing Malaysian jetliner, but to hold powerful interests, and specifically the United States government, to account on behalf of the people.
One of the most interesting among the many overlooked points in the CDC report: The percent of autistic children who also have intellectual disability seems to be declining, a trend that roughly coincides with the phasing out of the mercury additive thimerosal in vaccines when these now-12-year-olds were infants. But as Katie summarizes the CDC attitude:
"There is no possibility that autism and vaccines are connected because the numbers are still going up."
Katie's comment: "Assuming that there is, in fact, a smaller percentage of ASD children with Intellectual Disability, those shifts do correspond to the beginning of the phase out of thimerosal in vaccines, which is a plausible explanation as well – but one CDC doesn’t mention. Thimerosal reduction in the recommended childhood vaccine schedule (HepB, Hib and DTaP) started in 1999 and it was phased out over several years. However, shortly thereafter, in the 2002-2003 season, the CDC started encouraging flu shots (most of which contained thimerosal) for infants 6-23 months and in the 2004-2005 flu season flu shots were formally recommended for all infants starting at 6 months of age. Meanwhile, the CDC and ACOG also added influenza vaccines (most of which still contained thimerosal) to the recommendations for pregnant women in all trimesters in 2004. This FDA letter makes clear that thimerosal-containing infant vaccines would still have been administered throughout 2002 – the birth year of the current ADDM report but at amounts, on average, probably less than in the 2000 birth cohort. The exposure to any particular child is an unknown without checking their history."
I called attention to this possibility in a brief editor's note the day the CDC released its data, and I continue to find it fascinating. As Katie points out, the CDC data is so gummed up it's impossible to tell what might be going on, but this observation is, in fact, consistent with a pretty intriguing possibility -- the CDC, which both surveils autism and recommends the childhood vaccine schedule, might find it convenient to bumble and stumble long enough to obscure any connection between the removal of mercury in vaccines and any sort of improvement in the autism outlook.
I've been "gathering string" on this issue for quite some time (this is a phrase an editor of mine used for pulling together separate threads that might eventually build a story, like a robin finding bits and pieces that become a nest). I've heard many people in the autism community talking for several years about seeing more "autism lite" -- not Asperger's necessarily, but kids who are less impaired, less physically ill and easier to recover with biomed.
Managing Editor's Note: We in the autism community have been watching the Justina Pelletier case with horror (there is no softer word) as Children's Hospital of Boston took the teen from her family earlier this year. Dr. Keith Ablow, popular psychiatrist, had this to say about the case on Fox. You can link over to the FOX site to read the full post - we choose to excerpt - but the final paragraph is critical:
Yet, I also know that a teenager has been taken from her family. I know that she was once a figure skater and has, since her time at Children’s Hospital, been photographed in a wheelchair. I know that she reportedly passed a note to her parents recently that accused the hospital of abusing her. And I am absolutely sure that if the medical records or other evidence cannot prove beyond a doubt that Linda and Lou Pelletier placed Justina in mortal danger by virtue of their psychopathology or willful negligence as parents, Children’s Hospital should be brought to its knees by paralyzing civil suits and criminal complaints, and the Commonwealth of Massachusetts should be exposed for what it may have become: a state that, under the determined leadership of Gov. Deval Patrick (who, by the way, threatened to jail anyone driving during a snowstorm this winter), teeters on the brink of abandoning all pretense of individual freedom.
Dr. Keith Ablow is a psychiatrist and member of the Fox News Medical A-Team. Dr. Ablow can be reached at [email protected].
My Dinner With The Familyof Justina Pelletier
In case you’ve ever wondered, when you take a psychiatrist to dinner (especially a forensic psychiatrist, like me), he doesn’t leave the office 100 percent. No well-trained psychiatrist can. The “third ear” we develop during training – the one that catches meaningful turns of phrase or attempts to be evasive – can’t be left at the office door entirely.
When I had dinner with Lou and Linda Pelletier and three of their four daughters, Jennifer, Jessica and Julia, a few nights ago in Massachusetts, I wasn’t trying to evaluate them. They aren’t my patients. But I was listening for discordant psychological notes, nonetheless – ones that might tell me I was sitting with people destructive enough to merit permanently losing custody of their teenage daughter Justina.
For anyone who hasn’t heard the story, the Pelletiers brought Justina to Boston Children’s Hospital early last year for a consultation related to complications from what they had been told was mitochondrial disease, a complex and controversial physical disorder diagnosed in Justina by doctors at New England Medical Center in Boston (and with which another of their daughters has also been diagnosed). Instead, the Pelletiers were told by a doctor who intervened in her consultation that Justina had no physical ailment, but was, instead, suffering from somatoform disorder – physical symptoms caused not by underlying bodily abnormalities but by underlying psychological issues.
The Pelletiers did not want to leave Justina at Children’s Hospital, but they were not allowed to take her home. She was seized by the hospital, which asserted the Pelletiers would not accept their daughter’s obvious psychiatric disorder and, therefore, clearly would impede needed treatment. Courts in Massachusetts have agreed, recently awarding permanent custody of Justina to the Massachusetts Department of Children and Families (DCF).
By Katie Weisman, for the SafeMinds’ Research Committee
Thanks to Mark Blaxill and Cynthia Nevison, PhD for the graphs.
On March 28th, thousands of media outlets released the new US autism prevalence numbers of 1 in 68 in 8-year-olds born in 2002 and counted in 2010. These children are 12 years old now. What was glaringly lacking in the media coverage was any critical thought about that actual data, any sign that reporters had actually read the new report or any sign of urgency on behalf of our children.
The CDC’s take away messages were as follows:
1) We’re reporting a 30% increase in autism in 2 years, but you don’t need to worry because these kids have always been here. We are just better at counting than we were before.
Comment: There has been a 37-fold increase in reported autism spectrum disorders in the past 30 years – which would be about 1984, hardly the dark ages. Do you really believe that there were this many kids with autism around when you were young? The prevalence was 1 in 2500 in the early 80s or .4/1000; as of this month, it is 14.7/1000. The CDC has yet to conduct a population-based count of people with autism of all ages and severities which would lay this issue to rest. We should all be asking why they haven’t. They continue to say that they still can’t be sure if the increase is real – over and over again – for the past decade.
2) It looks like the kids are getting milder – they have less intellectual disability (ID) – and it’s due to broader diagnosis.
Comment: Up until the 2006 data, the ADDM reports only stated the percentage with IQ’s below 70, which were stable (on average) in the early reports (see chart 1) but the averages masked a wide spread in the actual percentages by state. Breakdowns into three categories of ID started in the 2008 data. The percentage of children diagnosed with autism in the newer reports (see chart 1) is consistent with the percentage with ID in the older reports, but the CDC did not supply data on diagnostic categories in the past. What is unclear is what is driving the change in the ID of the children. Are we seeing children who still have autism but are less language impaired?
3) There is no possibility that autism and vaccines are connected because the numbers are still going up.
Comment: Assuming that there is, in fact, a smaller percentage of ASD children with Intellectual Disability, those shifts do correspond to the beginning of the phase out of thimerosal in vaccines, which is a plausible explanation as well – but one CDC doesn’t mention. Thimerosal reduction in the recommended childhood vaccine schedule (HepB, Hib and DTaP) started in 1999 and it was phased out over several years. However, shortly thereafter, in the 2002-2003 season, the CDC started encouraging flu shots (most of which contained thimerosal) for infants 6-23 months and in the 2004-2005 flu season flu shots were formally recommended for all infants starting at 6 months of age. Meanwhile, the CDC and ACOG also added influenza vaccines (most of which still contained thimerosal) to the recommendations for pregnant women in all trimesters in 2004. This FDA letter makes clear that thimerosal-containing infant vaccines would still have been administered throughout 2002 – the birth year of the current ADDM report but at amounts, on average, probably less than in the 2000 birth cohort. The exposure to any particular child is an unknown without checking their history.
4) If you are a young parent, check out our website to learn the signs of autism and talk to your pediatrician if you have concerns. Early intervention is the answer.
Managing Editor's Note: Below is an excerpt we encourage you to share from Megan, of the LivingWhole site. From her bio, I have a degree in Political Science, a law degree, and am a Naturopath, Certified Natural Health Educator, Registered Power Yoga Instructor, writer, and stay-at-home mama. My better-half holds a biology degree, chemistry minor, is a Family Practice Physician, and is a Captain in the United States Air Force. Together we have four kids under three; and yes, we plan to have more. We encourage you to bookmark LivingWhole.org.
I am sick of it – this vaccination debate. My convictions not to vaccinate have been firm for six years now and I was comfortable living a low-profile life and letting other more notable activists carry the torch; and then I started seeing misleading t.v. interviews, news stories, and backlash against parents and unvaccinated children. I saw reputable medical professionals get crucified and reputations destroyed for questioning the mainstream norm. I saw laws passed in other states removing freedoms that rightfully belong to parents and individuals as a whole. I saw fear, blame, finger-pointing, lies, and flat out hate being propagated and encouraged by people, physicians, and popular media avenues towards parents who don’t vaccinate, and their children.
This isn’t a vaccination debate, it’s a hate debate, so let’s call it what it is. And when it got personal, I got involved. Most importantly, I felt the need to clear a few things up:
I am not an “anti-vaxxer” or a “disinformation activist.”
I am a parent. Some people believe that parents can’t make an educated decision on this issue, that you should check all of your questions and reservations about vaccinating at the door and trust your physician, that is unless your physician also questions vaccines (or supports a delayed schedule), then he’s a quack.
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
April 16, 2014, CBS Sacramento: UC Davis Finds Link Between Autism, Mental-Health Drugs During Pregnancy
April 16, 2014, CBS 6, Albany, NY: Doctors Say There is No Evidence Proving Vaccines Link to Autism
April 16, 2014, Sacramento Bee: Number of Sacramento County autistic students doubles over six years
In the small hours US time I posted a comment on ABC News’s Duffy Peterson story Home> Health Mom Whose Child Died After Catching Chicken Pox Advocates for Vaccines.. Tragically her daughter Abby, who was born without a spleen and was therefore immune compromised, died from chicken pox, and Duffy has become the latest weapon in the war of the vaccines (or perhaps against the reputation of Jenny McCarthy). I wrote:
It is always very troubling when one of set of parents is being manipulated against another set. But it is also intolerable if children are being loaded with a burden of unquantified risk on the basis that they are protecting other people, and very often they are not really - for instance, the nasal flu vaccine where the manufacturers insert warns that the recipient must not come into contact immune compromised persons for weeks after receiving the vaccine : in the UK this is set to be rolled out for all school children this autumn. The only consistency from people who actually don't care about anybody's child is that it is siphoning off huge amounts from the public purse to benefit big business (note Fluenz is identical with Flumist in the US).
Another blatant example is chicken pox vaccine where it has been known for a very long time that the harm in mass vaccination is much greater than the benefit (even before we get to the side effects)
What, of course, is required is a return to the ethic of ‘Primum non nocere’ (first do no harm) and the greatest care to be taken with all children.
It is worth noting that these fully justified comments were supported by (1) the manufacturer’s own insert for Fluenz/Flumist and (2) a report from the British government’s Health Protection Agency (in the UK the chicken pox vaccine is still not on the schedule). Despite this the comment was removed within minutes.
Note: We have covered the strange case of fugitive from justice Dr. Poul Thorsen (Principal Investigator on the Danish Autism Studies, indicted on 22 counts of wire fraud and money laundering by a U.S. Federal Grand Jury) at AofA:
Autism Researcher Poul Thorsen Indicted
Round 2: CDCs Poul Thorsen Lying in Plain Sight
First Fraud: Dr. Poul Thorsen and the original “Danish Study”
Poul Thorsen Called Industry “Scumbag” Scientist and Mercury Shill
WANTED BY THE FEDS: Poul Thorsen, Who Helped Pull Off CDC Vaccine Autism Heist
Three years after his indictment, here is follow up from Safeminds:
Dr. Poul Thorsen, Principal Investigator on the Danish Autism Studies, extends his unwarranted freedom from prosecution as another anniversary on his indictment for 22 counts of wire fraud and money laundering by a U.S. Federal Grand Jury passes on April 13.
SafeMinds calls upon the US Department of Justice and the US Department of State to bring Dr. Thorsen back to the United States and to justice. We also call upon Chairman Darrell Issa and the House Committee on Oversight and Government Reform to take up this issue as an oversight activity this year. We believe this warrants a Congressional hearing to understand this failure to fully address the allegations, to determine if others at the Centers for Disease Control and Prevention (CDC) were complicit, and to address the failure of the CDC and the scientific community to investigate all of the studies from this project while holding current findings in deferral until fully investigated.
Following Thorsen’s indictment in 2011, SafeMinds issued a statement calling for an independent review of vaccine/autism research for data manipulation and conflicts of interest. To review those comments, click HERE. A year later a full report delivered to Chairman Issa, the Committee and other members of Congress outlined the issues. For that detailed report on Poul Thorsen, click HERE. In 2013, the Office of Inspector General at the Department of Health and Human Services (HHS/OIG) elevated Thorsen to the top of their “Most Wanted” List. Information from the OIG may be viewed HERE.
A Brief Background on the Indictment: The Criminal Indictment No. 1:11-C R-194 United States of America v. Poul Thorsen states that beginning around February 2004 and continuing through February 2010, that Thorsen ‘aided and abetted by others known and unknown, did knowingly devise and intend to devise a scheme and artifice to defraud and to obtain money and property by means of materially false and fraudulent pretenses, representations, and promises and omissions of material facts, well knowing and having reason to know that said pretenses, representations and promises were and would be false and fraudulent…’ The indictment provides that Thorsen submitted false invoices and created private invoices (from a CDC laboratory using false signatures). He is alleged to have stolen more than $1 million from a CDC grant to Denmark he helped establish while working at CDC. If convicted on all counts, Thorsen could face up to 260 years in prison and $22.5 million in fines.
Managing Editor's Note: Thank you to Elizabeth Hart for allowing us to print and excerpt of and link to her Over-Vaccination: Challenging Big Pharma's lucrative over-vaccination of people and animals site. You can read the full post Questions about vaccination policy and ethics for the NHMRC.
On 15 April 2014, I forwarded a letter to Professor Warwick Anderson, CEO of the National Health and Medical Research Council (NHMRC).
One of the functions of the NHMRC is to provide ethical guidance on health and medical research issues.
In my letter to Professor Anderson, I suggest the ethical spotlight needs to be shone on the way vaccination policy and practice is being implemented in Australia, and I provide examples of the lack of transparency and accountability in the vaccination bureaucracy.
In particular, I raise the problem of potential conflicts of interest and lack of disclosure by people involved in vaccination policy, followed by an example of parents being coerced into having a vaccine product for their children (i.e. the live Measles/Mumps/Rubella (MMR) vaccine second dose) without being properly informed about this vaccine, and their options.
See below my letter to Professor Anderson:
15 April 2014
RE: Vaccination policy and practice in Australia
Professor Anderson, one of the functions of the NHMRC is to provide ethical guidance on health and medical research issues.
I suggest the ethical spotlight needs to be shone on the way vaccination policy and practice is being implemented in Australia, and I request that you urgently address this matter.
In this regard, I provide two examples of the lack of transparency and accountability in the vaccination bureaucracy.
1. Potential conflicts of interest and lack of disclosure
Various committees and groups provide advice to the Australian Federal Government on vaccine products which can result in the addition of new vaccine products to the national vaccination schedule.
These groups wield enormous power. The members of these groups are part of a process that results in effectively mandating medical interventions (i.e. vaccinations) for healthy people. The decisions these people make affect not only children and adults in Australia, but can also impact internationally as the ripple effect of their decisions spreads around the world.
Thank you to Anne Dachel for commenting on this story from US News: One Dad's Story: How Arthur Fleischmann Copes With His Daughter's Autism.
What's the hardest part about being Carly's dad?
What keeps me up at night is not knowing what the future holds. And maybe that's true for all our kids, but in most cases, you see a clearer trajectory for your child. In many ways, Carly is forging new paths for people with her condition. There are no real role models she can follow, or systems or processes or careers or financial plans laid out for somebody like her. If she was more disabled, it would be horrible, but there would be a course of life for her that would involve some sort of group home or something. If she were more able, she could live independently and make a living and support herself. But because she's this unique combination of bright, creative, driven, but severely challenged, I don't know what one month to the next will bring. . . .
What progress and change would you like to see?
What I find frustrating is that there are no comprehensive federal programs that support these individuals from childhood to adulthood. There's a spotty, patchwork series of support, but you need a lifetime plan and a lot of individualized planning.
With epidemics such as cancer and diabetes, there are fairly comprehensive programs and guidelines and support. This is battle by battle. At the same time you're trying to raise these kids - who are so exhausting and tiring - and you're so beaten down, you're also trying to battle with the government and local agencies to get the support you need. You're victim and advocate and front-line staff. You're caught in this quicksand, and it's brutal. If it were a one in a million instance, you could say, "OK, it's brutal, but fortunately it's just one in a million kids." But now the statistics suggest it's higher than some illnesses that get much more attention
Arthur Fleischmann is worried about the future for his daughter. I've never met an autism parent who isn't. The simple reason for this is that no one can show us a comparable rate of autism in the adult population currently.
It is with great excitement and enthusiasm that we announce the formation of Health Choice, a new health-focused, non-profit organization. Health Choice has two main objectives: promoting the right to individual health choice and standing up for victims of medical injury.
Drawing on the expertise of many professionals from the autism and health advocacy world, Health Choice will strive for better health policies and more reasonable laws surrounding health decisions. Health Choice will also investigate wrongdoings in these areas.
“There are many great advocates who have eagerly joined the Health Choice cause. We have advisors from several different areas including science, legal, and medical,” said Jennifer Larson who serves on the Executive Leadership Team.
Through Health Choice’s website, newsletters and media appearances, this organization will focus on educating citizens about the many different options in treating or sometimes even not treating certain health conditions. Health Choice will also recognize medical injuries certain groups have sustained. We will advocate for the injured and try to prevent these injuries from happening in the future.
To find out more about Health Choice, please visit our website. Make sure to join Health Choice and find out how you can help protect your right to a healthy life!
Follow us on Twitter at: @ForHealthChoice
Like us on Facebeook: Health Choice
Bookmark our site: HealthChoice.org
Director of Communications
Along with Health Choice’s Executive Leadership Team:
Mark Blaxill, Dan Burns, Patti Carroll, Allison Chapman, Teresa Conrick, Lou Conte, Anne Dachel, Laura Hayes, Rolf Hazelhurst, Kent Heckenlively, Nancy Hokkanen, Cat Jameson, Jennifer Larson, Maureen McDonnell, Julie Obradovic, Dan Olmsted, Sylvia Pimentel, Wayne Rohde, Kim Stagliano, John Stone, Kim Mack Rosenberg, Laura Rowley, Andrea Ruppert, Ginger Taylor, Katie Weisman, Dawn Winkler
Advisory Group Chair
U.S. Congressman Compares Corruption in CDC's Vaccine Safety Studies to SEC's Handling of Bernie Madoff Scandal. Congressman Posey Has Strong Words for Government Agency: "I think the CDC Should Be Investigated."
WATCHUNG, N.J., April 16, 2014 /PRNewswire-iReach/ -- In an April 8 interview on AutismOne's A Conversation of Hope radio show, Congressman Bill Posey's strong resolve and demands for transparency were evident as he discussed the Center for Disease Control (CDC)'s handling of vaccine safety studies which affect "our most precious resource in our nation – our children." The 30-minute interview, conducted by vaccine industry watchdog, PhD biochemist Brian Hooker, delves into what Posey called "the incestuous relationship between the public health community and the vaccine makers and public officials.
The Florida legislator, known as "Mr. Accountabililty," did not mince words when criticizing current and past CDC officials including indicted fraudster Dr. Poul Thorsen; CDC director turned Merck Vaccine President Dr. Julie Gerberding; and the agency's current spokesperson regarding autism and vaccines, Dr. Coleen Boyle.
On Thorsen, Posey said "If you read through the emails and learned about the meetings and the financial arrangement this crook had with the CDC, it will make you absolutely sick to your stomach. This was no casual researcher way down the line. This is the CDC's key man in Denmark. He was closely tied to the CDC's top vaccine safety researchers… as long as Thorsen was cooking the books to produce the results they wanted, they didn't care whether the studies were valid or how much money was being siphoned off the top…It's like the Security and Exchange Commission and Bernie Madoff. But it's worse because we're talking about someone who basically stole money that was supposed to be used to improve the health and safety of our most vulnerable in our society – our young babies."
By Teresa Conrick
The microbiome keeps coming up daily in the world of science and health. How is it involved in regressive autism? What is regressive autism?
Children with an ASD who lose skills (e.g., social interaction and communication) have become known as a subgroup called regressive autism or late onset. Regressive autism usually refers to a child where parents report an early history of normal development for 12-24 months which is followed by a loss of previously acquired skills. Individuals with ASD often suffer from gastrointestinal (GI) disorders (e.g., diarrhea, constipation, bloating and gastro-esophageal reflux) [2,3]. Fecal Microbiota and Metabolome of Children with Autism and Pervasive Developmental Disorder Not Otherwise Specified
”By 1985 the incidence of regressive autism had equalled that from birth. By 1997 both types had increased although the regressive form was now >75% of the total occurrence. This suggests that an acquired condition was overtaking birth defects or purely genetic conditions……In the vast majority of cases, the emergence of autistic indications appears to happen in children who had developed normally[10,13,14], and before three years[15,16.]” What is regressive autism and why does it occur? Is it the consequence of multi-systemic dysfunction affecting the elimination of heavy metals and the ability to regulate neural temperature?
“About one in three children with autism abruptly lose language, social or other developmental skills in their second year of life…..The results come from the synthesis of 85 studies published between 1980 and 2010 that examined regression, and include nearly 30,000 participants diagnosed with an autism spectrum disorder.” SFARI: Regression may mark one-third of autism cases
Please join us in welcoming Sargent Goodchild and his neurological reorganization program called Active Healing to the AofA family. Sargent was the very first provider I met who told me about biomedical treatments, diet, and a wide range of therapies that could help my girls improve their functioning. He has presented at Autism One and across the country at conferences. Kim
Neurological re-organization (NR) honors and integrates the natural order of human development. NR uses a prescribed set of repetitive movements to remap your child’s neural pathways. Just as traffic is rerouted around damaged sections of road, NR strengthens existing neural pathways around damaged or underdeveloped parts of the brain.
April 15, 2014, CBS News: Some companies see opportunity in autism
April 15, 2014, ABC News: Mom Whose Child Died of Chicken Pox Advocates for Vaccines
April 14, 2014, USA Today: Leave parents free to choose vaccines
April 14, 2014, Florida Today: Leave parents free to choose vaccines
April 14, 2014, Boston Herald: Proposal calls for new strategies on autism
April 14, 2014, NPR Boston: Autism: Awareness Helps, But What We Really Need Is Knowledge
April 14, 2014, CBS News: Antidepressant use in pregnancy linked to autism risk in boys: Study
April 14, 2014, Indianapolis Star: No medical research proves vaccine, autism link
Panelists Rolf Hazelhurst, autism parent and attorney, Jim Moody, attorney, Aidan Quinn, autism parent and actor, Rob Schneider, autism parent and comedian, Mike Guido, autism parent and comedian, Jeanna Reed, autism parent, co-founder Autism Is Medical, and moderators Dr. Andrew Wakefield and Jill Rubolino, autism parent, co-founder Autism Is Medical sharing their experience with autism and regression post vaccination in a powerful and poignant way at the Give Autism a Chance conference in Austin, TX on April 12, 2014. Dr. Andrew Wakefield moderates the panel with his British aplomb and even handed determination. "Welcome to the calm, quiet world of autism and vaccines. Hello to the trolls online." Classic Brit wit.
View more videos at The U-Stream channel.
The video of the autism vaccine panel starts at 2:39 minutes. There's plenty to watch before that start, however. Enjoy.
Video streaming by Ustream
The panel continues here:
Video streaming by UstreamAlso, from Give Autism a Chance: Our amazing #GAAC live stream was produced by Light Strike Productions in association with Blind Monk Productions. Huge thanks to Jeremy and Roderick for a top notch production. Videos are still available for viewing at www.ustream.tv/theautismtrustusa
To reach our video team directly, visit their websites at:
Note: Here is an easy to use action alert to ask Dr. Paul Offit's bosses to request that he stop making "stuff" (another word would fit well) up about autism - as a distraction for the epidemic and to protect his industry land connections. Click HERE.
Offit: "When you have autism, you are born with autism"
Ask Offit's bosses to stop him making stuff up
In a recent interview with Medscape (www.medscape.com/viewarticle/822981) millionaire vaccine industrialist and spokesman, Paul Offit, MD, pretends that he knows that autism begins before birth, which denies that autistic regression occurs, “When you have autism, you are born with autism. There is no changing that, and to some people, that is helpful to know.” We thought this might come as a surprise to many people who watched their healthy child regress into autism, and anybody who follows autism research.
Offit promotes himself as one of America’s leading authorities on autism, even though, like most parents, he has no professional training in autism. Which may account for him saying things that have no foundation in either the medical literature, or the experience of hundreds of thousands of people. And he has several jobs at very prestigious institutions, which one would hope would value a close adherence to truth and known facts. Offit is the Maurice R. Hilleman Professor of Vaccinology, and Professor of Pediatrics at the University of Pennsylvania, and Chief of the Division of Infectious Diseases, and the Director of the Vaccine Education Center at the Children’s Hospital of Philadelphia.
April 12, 2014, Chicago Sun Time: Jenny McCarthy: The gray area on vaccines
April 12, 2014, TooFab.com: Jenny McCarthy Speaks Out About Getting Slammed for Anti-Vaccine Crusade
April 12, 2014, TIME: That Moment When You Must Have a Word With Jenny McCarthy
April 11, 2014, Disability Scoop: Groups Want Federal Autism Dollars Reallocated
April 11, 2014, Costa Mesa (CA) Pilot: Parents, vaccinate your kids
April 11, 2014, Salem (OR) News: A Voice of Sanity About Childhood Vaccines from a Respected Nephrologist
April 11, 2014, The Atlantic: 1 in 68 Children Now Has a Diagnosis of Autism Spectrum Disorder. Why?
April 10, 2014, Washington Post: We need a better explanation for the surge in autism
Managing Editor's Note: We have no idea how Dr. Offit is getting away with his statement that regressive autism does not exist. In fact, The DSM-V revision pays close attention to regressive autism - and includes the following: During the ensuing discussion, it was pointed out that regression may be a more common feature of autism than was previously thought with some prospective studies indicating that a loss of skills is the rule rather than the exception. In regressive autism, the skills are lost in the second year of life, while in “early onset” autism, skills are lost in the first year of life. To deny the very children who now make up Dr. Offit's livelihood as an "autism expert" (sorry about the beverage you just snorted across your keyboard or Smart phone...) is one of Dr. Offit's more callous and disconnected statements to date. He has no concept of our children. They are merely arms and legs with which to alter an immune system for profit.
By Cathy Jameson
When you have autism, you are born with autism. There is no changing that…”-Dr. Paul Offit
After hearing that statement, it was important to repost this piece. May it be a reminder to those who haven’t gotten the memo, and for those who refuse to read it, that yes, regressive autism does exist.
This post is dedicated to my friends’ children who have regressed into autism.
I used to love the month of April. Spring. Flowers. Sunshine. Warmth. My birthday. Yes, April was always a fun time for me. Now, I really can’t wait for it to be over. The autism “awareness” that takes over, the “new” autism numbers, the blue lights, the ridiculous autism studies that raise no alarms but blame autism yet again just Mom (or Dad’s) fault. With the 2014 numbers now 1 in 68, I’m done with April, and I’m done with “awareness”.
We have half the month to still get through though. What’s a dedicated mom to do? Scream? Give up? Give in? Walk away? A few weeks still linger in the month that now seems to take the longest to end. I have few days left to avoid the blue light special some big organization, I mean business wants to shine in my eyes blinding me with awareness while attempting to deflect the truth. Yep, I am ready to usher April right out the front door because May is around the corner. And, you know what May means? Well, actually it means nothing.
Autism will still be here, numbers will still be high and people will still need services that are unattainable. When we flip our calendar page to May I’m sure it’ll be back to the regularly scheduled autism hum drum diagnosis that just happens to happen with no mention of vaccines being remotely part of the national crisis that autism has become. But, who am I to have any sort of opinion when I counter the autism awareness campaign asking for autism action instead? I’m just seen as one of those anti-vax nutcases that the media and pro-vaccine internet bots love to hate.
I don’t like to be so negative, but no day is a good day for just awareness. In order to shake the negativity that creeps in this time of year, I decided to create my own agenda to step up the autism “awareness” effort within my circle of friends and family. I posted my own “NOT born with it” campaign after viewing a video of children who were also NOT born with it. It’s was a beautiful tribute to hundreds of children who were developing typically but later received an autism diagnosis. Parents of these children concluded that many of their “NOT born with it” making a point to state that their children were adversely affected by their vaccines.
I wanted to showcase my child’s picture too to those who follow my son’s story personally. My campaign included photos as well with the idea was to share pictures of Ronan from birth to present day. In the baby pictures is a cheery, happy, chubby, absolutely adorable typical baby. With each additional picture one can clearly see that my son’s facial expression changed. His regression is documented in each picture as is the progression of parts of Ronan’s life that have him looking like a lifeless, distant, sensory defensive, neurologically challenged, dependent child. Because on some days, he is exactly that.
Why do this? To torture myself with the reminders with what I had, with what could have been or with what should have been? No. I did it for one reason: because Ronan was NOT born with it. Autism regression is real. It exists. It is something parents need to understand can happen.
As hard as it was to add picture after picture noting the physical changes while remembering the cognitive delays and stagnation, I created the picture timeline and commentary to say that I should have known more but didn’t. I did it to point out that much of what happened to Ronan could have been prevented. I also did it because I wanted people to know that when they discount vaccine injury, they discount my child. I posted it to friends and family praying that this never happens to another child again.
I know some people don’t want to admit that they know regression can happen because of vaccines. But it does. Here is one child’s autism regression seen in a series of pictures:
Check out that smile, the eye contact and the total cuteness.
NOT born with it.
One of my favorites.
NOT born with it.
Making smiley smiles and babbly babbles.
NOT born with it.
I love this picture. Look at the happy. Look at it!
NOT born with it.
Mommy’s got her Revolution on for you!
NOT born with it.
Managing Editor's Note: I laughed like heck when I read these Onionesque parody excerpts by Katie about the New York Times and its atrocious coverage of autism. Feel free to create your own and submit it to our comments. Keep 'em clean! We'll choose a winner and you will get... hmm, an onion? (That's my Gianna laughing in the photo.)
By Katie Wright
SARS Epidemic Waiting to Hit the USA!
Do you sleep with waterfowl in your home? You will soon DIE of SARS! Join vaccine trials now! By, Anahad O’Donnor
“New York Times” Editorial by Gardiner Darris
ALL Americans must be forced to buy Paul Offit’s products or have their citizenship revoked! To parents of vaccine injured children -shut up! Don’t you know Vaccines Save LIVES! If you dare to question the sanctity of vaccines or speak about an adverse reactions other children WILL die and epidemics will return! Just to be clear no adverse vaccine reactions will NEVER be discussed in this newspaper, “The New York Times,” because Vaccines Save Lives! If over-vaccination ruins a life, that is too bad, those people don’t matter, because Vaccine Save Lives!
H1N1 PANDEMIC – We are all going to DIE, every person on earth, unless vaccinated- right NOW! By. Benedict Larey
1 in 68 American children now autistic. Parents groups are “scared” for NO reason! It the parents vs. the Research” By, Ananad D’Connor
The NYT Sunday Review, by Dr. Sam Wang
“Don’t Worry Be Happy= No Autism!” It’s not a disease, just stress! Listen, get over it 1 in 68 kids having autism is no big deal!
I was in the kitchen one afternoon searching through my emails when my oldest daughter walked in. She had just been outside on a gloriously sunny day with instructions to play until I come and get you. ‘Get back out there,’ I said while keeping my eyes locked on the internet. I needed the outside playtime to last hoping it would buy me some time to veg out, get some computer “work” done and to have a moment of silence from our constantly-busy schedule. ‘I have to use the bathroom,’ Fiona said while hurrying away.
Shaking my head at myself and the ever-growing list of things I needed to get done, I craned my neck and went back to searching for whatever it was I was looking for. I wanted to reply to an email before I was pulled in another direction. It’s nearly impossible for me to complete a full task in one sitting but I was determined to get this one done. Scratch that chance.
Fiona walked back by the kitchen as I had my hands hovering ready to type. “Mom,” she started. Ugh. Can’t I have any peace and quiet around here?! “Yes,” I answered as sweetly as I could. “Mom, when are you going to be done with all this autism stuff?”
Stabbed. Stabbed with guilt. My heart broken and my head hanging even lower, I raised it to look Fiona square in the eye and asked, “Why?” Fiona had her hand on the doorknob already and was about to jet back into the backyard. I didn’t want to be gruff or give her a long-winded, over her head answer so I asked her a question back. “Do you want me to stop reading about it?” Fiona looked at me with wide eyes, “NO!” she said emphatically. I went on, “Do you want me to stop writing about it?” “No, Mom. I just wanted to know when it’s going to be all done.” Fiona is eight. She’s only known her brother Ronan to be who he is with all his behaviors. She lives through the hours of therapy, the miles of driving, the pages of books, magazine and websites I read. She is very aware of the many things we do to make Ronan’s life easier so all of our lives are manageable. Fiona needed a quick, pat you on the back answer that promised only good things.
I took a breath and replied, “Oh, I guess I’ll be done when things get better for us, for Ronan and for other kids like him. It stinks that I have to do all this and I’m sorry it takes so much time. “Okay,” Fiona said. “Can you come outside? You said you would.” More stabbing pain in my heart. “I’ll be right there.”
By Dan Olmsted
Some say that claiming vaccines are the cause of the autism epidemic is like yelling fire in a crowded theater. I agree -- except this theater really is on fire.
By now it's an open secret that the current vaccination schedule is behind the soaring autism rate -- and a wide range of other chronic and developmental disorders. So many parents, front-line professionals and others have seen this with their own eyes, so many streams of evidence are converging to make this point, and so much desperation is on display from vaccine injury deniers, especially now during Autism Awareness Month, that it's just no contest any more. The task now is to hasten the day of reckoning, keep more kids from being injured, and bring justice, compensation and treatment to the injured.
Those who deny this reality end up sounding like Nazis -- ve vill vaccinate you! -- or just intellectually incoherent. They spout a lot of platitudes about autism awareness and better diagnosis and multiple mysterious genes and gene-environment interactions that, if they (and their spouters) ever had any relevance, don't anymore.
The goofiest part is when submissive scientists try to talk about environmental links to autism without talking about THE environmental link to autism -- the bloated CDC-recommended, state-mandated, pediatrician-provided vaccine schedule. Hence this from the Harvard Gazette this year:
"Toxic chemicals may be triggering recent increases in neurodevelopmental disabilities among children — such as autism, attention-deficit hyperactivity disorder, and dyslexia — according to a new study from Harvard School of Public Health (HSPH) and Icahn School of Medicine at Mount Sinai. The researchers say a new global prevention strategy to control the use of these substances is urgently needed."
This study lists two pesticides as among the likely triggers, and follows up on a 2006 study that also listed a handful of suspect toxicants, including methylmercury. Not ethylmercury, of course, since that brings us right back to the dreaded V word, ethylmercury being the prime ingredient in thimerosal. And thimerosal exposure almost tripled via vaccines at the same time the autism epidemic began around 1988. (It's still used in flu shots in the U.S., where it is recommended for all infants and pregnant women, and in multiple shots in developing countries thanks to the endorsement of U.S. Public health officials, WHO, and the Gates Foundation.)
But pesticides and mercury and vaccines and autism? Never the twain shall meet in the mainstream medical or media universe.
As it happens, Mark Blaxill and I triangulated those dots in a way that indirectly but (IMHO) elegantly links vaccines, pesticides, and autism from the very beginning. In our book, The Age of Autism -- Mercury, Medicine, and a Man-made Epidemic -- we showed how mercury was present at the creation of autism, causing the very first cases reported in the medical literature, in 1943.
The crux of our argument is that the three commercial vectors for the first exposures to ethylmercury in the 1930s -- via vaccines and pesticides, specifically the diphtheria shot, a lumber treatment and a plant fungicide -- are evident in those 11 families. The parents included a pediatrician mother who focused on public health and mass vaccination, one father who was a forestry professor and another who was a plant pathologist, in all three cases with documented exposure to the new ethylmercury compounds. This cannot be chance -- especially given the work of Safeminds linking mercury and autism symptoms, the absence of autism in the medical literature prior to 1930, and the coinciding explosion of ethymercury exposure and autism in the 1990s. (See our 10-minute video version on AOA's home page.)
TOPIC: Mark reacts to the breaking news that autism rates in America continue to rise.
ORIGINAL BROADCAST DATE: Thursday, March 27, 2014.|
Click HERE to listen to the interview.
By Christina Waldman
April 9, 2014
Re: Who Controls the Conversation? Ethical Concerns in Dorit Rubenstein Reiss, "Compensating the Victims of Failure to Vaccinate: What are the Options?" 23 Cornell Journal of Law and Public Policy (forthcoming 2014)
Dear Mr. Monroe,
In the past year, Prof. Reiss has burst upon the blogosphere as a vigorous promoter of vaccines and public health policies favorable to vaccine interests. As advocating for vaccines in social media is not something most law professors normally do in their spare time, and to the extent that she does, some have questioned the independence of her motivation. Might she have conflicts of interest to disclose? See:
"Not Paid To Post?" Dorit Rubinstein Reiss, UC Hastings College of Law and Kaiser Permanente
Who Is Dorit Reiss?
After all, despite their arguable benefits, vaccines have become a profitable health industry, with the global vaccine market currently worth $30 billion. (“Global Vaccine Market (Human and Animal) Pipeline Analysis now Available at ReportsnReports.com, 1/26/14. ) The new version of Gardasil, if approved, is expected to net $1.9 billion.
As you know, Mr. Monroe, academicians are held to high standards of fair and objective communication. You have informed me that you are unaware of any standards for conflicts of interest specific to the Cornell Journal of Law and Public Policy. The Cornell Journal of Open Access to Law gives this standard: “All authors should disclose in their manuscripts any financial or other substantive conflict of interest that might be construed to influence the results or interpretation of their manuscript. All sources of financial support for the project should be disclosed. . . ” (under “Publication Ethics and Publication Malpractice”).
Late last year, while Merck was making application to the FDA for licensing of “V503,” the new nine-strain version of its HPV vaccine, Gardasil, a battle was going on in the comment section of the KatieCouric.com blog, “HPV Vaccine Conversation Continued,” over the safety and effectiveness of Gardasil (after Katie’s show addressed Gardasil safety concerns on Dec. 4, 2013). Prof. Reiss aggressively promoted the benefits of Gardasil in comments at this blog and elsewhere, assuring readers that Gardasil is “very, very safe” and that “There is no credible evidence” of any significant risk of serious side effects--despite the many reports of serious injuries to young girls. Katie Couric HPV Conversation; Japan HPV Adverse Event Symposium; TruthAboutGardasil.org; FierceVaccines.com - Merck Warns Of Drop in Japanese Gardasil.
In response to being asked whether she wrote all the comments with her name on them, Prof. Reiss said yes, and she claimed full responsibility for them (Dorit Reiss, 12/22/13 comment to Vince Brown). Some of them sound more like they were written by a law student than a law professor. In fact, there have been so many “Dorit Reiss” comments, at so many blogs and websites, at all hours of the day and night, sometimes posted only a minute apart, that it seems unlikely for just one person to have made them all. See, e.g., Disqus.com/DoritReiss andDisqus.com/dorit_reiss Some have wondered if there is a “bot.”
When, at the KatieCouric “HPV blog,” Prof. Reiss was asked whether she were being compensated for her voluminous commenting as a vaccine advocate, she responded: “Not really. My law school would pay me the same salary whether or not I post here.” (Dec. 8, 2013. Of note, comments at that site, including this one, had a tendency to “disappear” or get rearranged completely out of chronological order; a whole week’s worth of comments seemed to simply disappear at one point, from 12/11 to 12/27/13. By 4/4/14, only 3,849 comments remain up. According to a recent article at KevinMD.com, Global Prairie, a public relations/marketing firm, digitally captured 12,049 posts within a 22-day window. Dr. Natasha Burgert, “Analyzing the Katie Couric effect on the vaccine conversation,” 2/18/14 ).
On February 4, 2013, Prof. Reiss again responded, “….As is easy see I'm an academic in a law school. My income would not be affected by posting online in any way. And in case you missed it, I use my real name.” (Retrieved 2/27/14 8:36 p.m.) When questioned about conflicts, Prof. Reiss to my knowledge has made no conflicts disclosure other than to deny financial payment from pharmaceutical companies.
and the Center for Disease Control and Prevention (CDC) have produced limited studies affirming the [relative] safety of the HPV vaccine. The two Kaiser studies (2012) were funded by Merck, while the CDC’s study (2011) was performed by Kaiser, with the same lead researcher involved in all three studies, Kaiser Vaccine Study Center’s Dr. Nichola Klein. Kaiser Permanente’s CEO, Robert Pearl, advocates universal vaccination. (4/1/14, republished from Forbes.com).
April 9, 2014, KPLC 7, Lake Charles LA: Homes for adults with autism giving families peace of mind -
April 8, 2014, USA Today: Social media bring politics to the corner office
April 8, 2014, Washington Times: EDITORIAL: An outbreak of common sense on vaccines
By Geoff Dubrowsky
April is autism awareness month, a month that I finally had decided to ignore. Since I am responsible for three adults with developmental disabilities I find that celebrating is no longer an option. Sadly for me, my nature to not bury my head in the sand has lead me to have to write this article and not ignore the actions of April!
The month begins with April Fools' Day how appropriate! Sadly this April Fools' Day delivered us interpretations of the CDC's new autism rate. The new numbers, no matter how you want to interpret them, prove absolutely nothing. We already knew we had a problem, that was not being given the attention it demands and we still have the wrong people pretending to help.
So rather than spend time here telling you why the Combating Autism Act has failed for over a decade, or telling you how politicians refuse to listen to parents who are looking for answers, and instead listen to those looking to enhance their 401K plans, or pointing out the fact that we may have one too many autism non-profits (these lead to more platforms where way too many high functioning self-advocates, who claim they have or had autism are telling us what our kids need) with them aside - I'm going to tell you about my month.
My month started with a battle to help the 75 year old parents of a 50 yr-old women who has been a resident of the Woodbridge Developmental Center for over four decades. They had been given a ten-day notice that their daughter would be moved to another NJ Developmental Center some 90 miles away.
The state law requires a 60-day Habitation Plan, that includes the families input but that law is being ignored. Because the parents lived in Old Bridge, NJ, we thought we had lucked out since I happen to be a friend of their Assemblyman Ronnie Dancer. Dancer was great reaching out as he could and also called his Districts State Senator Thompson. The story falls apart here because Thompson is in favor of closing the Developmental Centers and he decide to call me to explain his ignorance. I jumped ahead on purpose because the man was so uneducated on the issue he is championing I was left cursing him out of the phone after his responses left me shaking!
Turns out he has never visited any of the States 7 Developmental Centers that he wants to close. He claimed to be unaware that NJ has over 300 people living in Developmental Center Settings out of state and that NJ Centers do not accept placements without a court order, which is why enrollment is not up.
Please take 7 minutes to listen to Dr. Albert Enayati passionately petition IACC to include regressive autism and vaccination in their work. Their blithe response? "You've used up two minutes of your time." Thank you to Canary Party for posting this video link.
From the Safeminds site: Albert Enayati is one of the original founding board members of SafeMinds and an author of the original Auitsm and Mercury paper. He is a Principal Research Engineer with 33 years experience in R&D/mechanical testing of over 100 orthopedic devices maxillofacial, trauma and spine systems.
Well, friends, it's been quite a month already and we haven't made it to the halfway point. CDC numbers were rolled out and mostly ignored or glossed over in the mainstream media. The Chili's campaign was picked up across the country as a major "autism" story at the expense of safety for actual people with autism. Global landmarks have been bathed in a a blue glow while it's business as usual in the offices inside.
You read about these stories and more each day at Age of Autism
And while the color of month might be blue for some? For us? We're thinking green. We are sponsor and donor funded and every dollar counts to keep us up and running.
Use the PayPal button on our right sidebar. If you prefer to send a check - email Kim for the mailing address. [email protected].
Together we will continue to work to make life safer, help others become better educated, find medically improved treatments and create a mindful care and appreciation for our loved ones with autism.
We value and thank you for your support.
Dan, Mark, Kim and the entire AofA team.
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
April 7, 2014, My Fox DC: Chili's cancels fundraiser for anti-vaccine charity
April 7, 2014, Fox News: Father's obesity tied to child's risk for autism
April 7, 2014, Fox News: Chili's cancels fundraiser for anti-vaccine charity
April 7, 2014, USA Today: Chili's cancels autism fundraiser over vaccine issue
April 7, 2014, ABC News: Chili's Nixes Autism Event After Backlash
Managing Editor's Note: You can support the production of BOUGHT at IndieGogo.
By Kent Heckenlively
It was through chiropractors that documentary film producer, Jeff Hays, first became acquainted with those he jokingly calls “the most dangerous people on the face of the Earth.”
Hays was working on a film called, Doctored, which recounted the attack made by traditional medicine on the chiropractic profession and the fight the chiropractic profession waged in response and won. “It was a small film that told the chiropractic story. The AMA (American Medical Association) tried to contain and eliminate the profession of chiropractic. Some chiropractors sued them in 1974, and it took 13 years, but the AMA was eventually found guilty. That story had never really made its way into the mainstream. And I felt it was a microcosm of what happens to alternative therapies that come under attack from mainstream or political medicine.”
Many of the chiropractors Hays interviewed had parents who were chiropractors and several of them said that in their life they’d never, “taken a drug, an aspirin, or a vaccine.” Hays was startled to hear that many of them had never had a vaccine and what followed from that was a slow awakening to the fact that there was even a discussion about the safety of vaccines.
The SaneVax Team would like to share a series of events in Japan which culminated in a decision which was nothing short of miraculous. This decision and the events leading up to it offer hope to millions of families whose lives have been adversely impacted by the use of Gardasil and Cervarix.
Due to massive efforts by HPV vaccine victims and their families, independent medical and scientific professionals willing to speak about their concerns, traditional media outlets with the integrity to investigate and report accurately, input and assistance from the SaneVax team, and political representatives who actually did the job they were elected to perform – THERE WILL BE NO GOVERNMENT RECOMMENDED HPV VACCINATION PROGRAM IN JAPAN FOR AT LEAST A YEAR.
Because all of the groups just mentioned worked together to preserve the health of Japanese girls, multiple members of the House of Councilors, the ruling Liberal Democratic Party intervened making it impossible for Japan’s Ministry of Health, Labor and Welfare to call for the re-instatement of Japan’s official recommendation for HPV vaccines (both Gardasil and Cervarix) for 2014.
Basically, the HPV vaccine debate in Japan came down to one side claiming psychosomatics versus the other side presenting science. Science won!
Timeline of Events Recorded by SaneVax:
It’s really hard to understand the uproar over Chili’s plan to donate 10 percent of its proceeds on April 7 to the National Autism Association’s efforts to prevent wandering. Too often we see the tragic stories of autistic children wandering away and dying, especially by drowning. This is an especially critical work since the leading cause of death among those with autism is drowning.
In fact, in all the heated mainstream coverage of this, no one talked about NAA’s role in protecting the lives of these children. All that mattered was putting the “anti-vaccine” label on an autism organization.
Emily Willingham at Forbes wrote, “Chili’s had made a particularly poor choice” in deciding to give money to NAA.
Willingham quoted from the NAA website:
‘While mainstream science discounts vaccinations as a cause, members of the National Autism Association feel vaccinations have triggered autism in a subset of children, and that an overly aggressive vaccination schedule coupled with toxic adjuvants in vaccines could affect individuals who have a family history of autoimmune disorders specifically. As with any medication, adverse events do happen, and vaccinations are no exception. Research to investigate, and reduce, adverse events in immunized individuals is currently nonexistent.’
Acknowledging that there are parents who believe that vaccines triggered autism in their children hardly makes the NAA an anti-vaccine group, but according to Willingham, it doesn’t matter.
By: Inas Younis
Its takes strength to hold on, but it takes even more strength to let go. But I am a mother and I could only do what came naturally, and so I held on. I held on as tight as I could without hurting him. I held him when he tried to jump out of moving cars. I held him when he tried to attack the neighbors. I held him when he tried run out into streets. I even held him as a form of therapy known as holding therapy. And although he is now gone, I am still holding on, and I just don’t have the strength to let go. Whoever said mothers are strong, did not really understand the meaning of strength.
But now the time has come. Blinded by tears, and deafened by an inner voice which keeps reminding me that mothers never give up on their children, I am going to let go. But before I do, I must throw myself before a jury of my peers and ask for their forgiveness. I know what you are thinking, only God can forgive me. But I don’t need forgiveness from God, for he has been on and by my side since day one. He was there while I screamed and cursed at the heavens for making my son autistic and epileptic. He was there when I begged for a miracle every day for ten years straight. He was there for the countless sleepless nights when my son screamed in pain. He was there when my son had his first seizure. He was there when I had my first panic attack. He was there then, and he is here now. I don’t need his forgiveness, for there is no sin in coping. And I do not need forgiveness from my fellow man, who was completely oblivious during the beatings, the fecal smearing, the screaming, the property destruction, the insanity and horrors of my life which I hid from their innocent eyes and ignorant hearts. No, what I need in order to let go, is forgiveness from a jury of my peers. A jury of mothers who have suffered some measure of the horrors I have for the last sixteen years. For only they can understand, and not because they have been through it, but because many of them are still going through it. They are my heroes, and after you hear my story, they will be your heroes too.
So please allow me to plead my case , starting with the most obvious defense. I tried everything!
Was I aggressive enough with his therapy, his special diets, his medications, you ask? Well let me see if I can remember, because as most of us mothers with special needs children know, we all suffer from a bit of amnesia. It’s our brain’s way of dealing with trauma. I think there is an acronym for it called PTSD. The world of autism is full of acronyms. There is GFCF, SCD, ABA, ASD, IDEA, ESY, and my all time favorite, WTF. But luckily, I kept very detailed journals, so no worries. Of course at the time, I kept them because I was trying to decode the mystery of autism and in my case severe autism. I micromanaged his every bite of food, supplements, medications, and therapy in an effort to isolate cause and effect and determine patterns of behavior. But no patterns emerged except for one; I was going crazy. I submit to the jury the following Journal entries.
October 2003: I am in autism hell, which right now means hiding out in my bathroom while the devil has his way with my son. According to my notes the only thing I introduced in the last couple of days to his supplement protocol is an orange flavored fish oil. Therefore, no more orange flavored fish oil. Note to self: use alternate fish oil. To do list: email the following fish oil companies until I find the purest fish oil known to man.
In the making for over 10 years, the highly anticipated documentary film "Trace Amounts" explores the science and controversy behind the autism epidemic.
Lighthouse Pictures announces the world premiere of the documentary film "Trace Amounts" on Saturday, April 26th, at 5:30 p.m. at the Newport Beach Film Festival in Newport Beach, California.
After recovering from a devastating illness that brought him to the edge of despair, Director, Eric Gladen, started researching the science behind autism. His research led him straight into one of the biggest medical controversies of all time: whether or not childhood vaccines cause autism. But Eric wasn’t focused on the vaccines, he was focused on an ingredient that is only used in vaccines to save money: mercury. He would end up quitting his career, moving into an RV, and traveling the country for years interviewing experts and piecing together thousands of studies and leaked documents. This film will do more than turn this debate upside down; it just may solve this devastating epidemic once and for all.
“The public needs to understand what’s really happened here because the public will drive the change,” Director, Eric Gladen says.
“This is a must see film,” says Congressman Dan Burton (R-Ind. 1983-2013), who was the Chairman of the Government Reform and Oversight Committee that led a four year investigation into vaccines and autism. “There is no doubt in my mind that mercury is a major contributing factor in the autism epidemic.”
Trace Amounts will play at the Newport Beach Film Festival, Saturday, April 26, 2014, 5:30 p.m. at the Starlight Triangle 8 Cinemas. For tickets, you can go to http://www.newportbeachfilmfest.com.
Keep tabs on IACC here.
Tuesday, April 8, 2014
Time: 9:00 a.m. to 5:00 p.m. Eastern
Place: National Institutes of Health
31 Center Drive
Building 31, C Wing, 6th Floor, Conference Room 10
Bethesda, Maryland 20892
Map and Directions
Cost: The meeting is free and open to the public.
Agenda: To discuss committee business, updates and issues related to ASD research and services activities.
Access: Medical Center Metro Station (Red Line)
In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus. All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit.
Registration: On-site registration is from 8:30 a.m. to 9:00 a.m. Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis.
Online pre-registration This link exits the Interagency Autism Coordinating Committee Web site will close at 5:00 p.m. Eastern the day before the meeting. After that time, you will need to register onsite the day of the meeting.
Webcast Live: http://videocast.nih.gov
Conference Call Access: Dial: 888-950-8042
Access code: 8689681