California Senator and SB277 vaccine exemption removal law author Richard Pan shows up to the March For Science in Washington D.C. on Earth Day for a photo op. Joshua Coleman shows up as well. Camera by Joshua Coleman with editing by Oliva Mikos. Joshua also taped Dr. Pan running from Del Bigtree. Josh's son Otto was severely disabled by his infant vaccinations.
Reiss attacks Kennedy over Fox News interview---AND I'M "NOT ALLOWED TO COMMENT"
April 23, 2017, Daily Kos: Robert F Kennedy Jr and vaccines – why real journalists don't interview him
By Dorit Reiss
On 20 April 2017, Kennedy had an interview with Tucker Carlson on Fox News that centered on Kennedy’s views on vaccines. The interview with Mr. Carlson lived up to Mr. Kennedy’s previous dismal standards of accuracy on vaccines. His claims ranged from simply untrue to subtly misleading, all clearly designed to create fear and doubt about vaccines. Mr. Carlson did not have the knowledge to counter them, and being misled by his interviewee is exactly what other journalists avoid by not letting Mr. Kennedy repeat his past and provide misinformation about vaccines. ...
By Anne Dachel
Imagine more and more scientists and doctors elected to state and national office. Imagine lots more vaccine industry shills like Dr. Richard Pan in California promoting bills like SB277 that removed parental choice when it comes to vaccinating children.
Now there’s a political action committee designed to do just that. It’s called 314 Action and it’s getting the word out that scientists plan to take over politics. 314 Action is especially eager to promote vaccines and denounce people like Robert Kennedy, Jr. for their questions about vaccine safety.
Never underestimate the power of corporate interests, under the guise of promoting science, to expand their power and control.
314 Action wants to get thousands more scientists into politics (4,000) to be exact).
"We are members of the STEM Community, grassroots supporters and political activists committed to bring innovation to Science, Technology, Engineering, and Mathematics (STEM) Education, aggressively advocate for real solutions to Climate Change and elect more STEM trained candidates to public office."
Open letter to Shaughnessy Naughton, Founder of 314 Action and Congressional Candidate Molly Sheehan:
I’ve been reading about 314 Action and your goal of putting more scientists into political office. The coverage 314 Action has reached from the mainstream media has been extremely supportive. Two issues repeatedly talked about in connection with the PAC (political action committee) are global warming and vaccines.
My interest is in your position on vaccines. According to everything I’ve read, 314 Action is telling us we shouldn’t look into “the repeatedly proven safety of vaccines.”
Shaughnessy, you called Robert Kennedy, Jr. an “anti-vaccine propagandist.”
I would like to ask you if you’ve read the book he edited on his position, Thimerosal: Let the Science Speak.
With your focus on promoting scientific truth, you should be interested in the research that is compiled in this book. Your dismissal of Kennedy’s views as “anti-vaccine” is completely false since at every opportunity, he describes himself as “pro-vaccine,” having had all of his children fully vaccinated.
By Dan Burns (read the full Saving Zero series as we are running it here.)
With two percent of our kids on the autism spectrum, a million down and more to come, we are challenged to answer two questions: How is the autism epidemic reshaping our lives? And what can autistic kids, teens, and adults give back to the communities that support them? That is the subtext, the challenge underlying the TV series I and my colleagues Sandra Williams and Robert Reynolds are writing, “Saving Zero.” – Dan Burns.
Logline: A retired gay dad, founder of a Texas ranch for autistic young adults, takes on a charismatic and possibly pathological teen.
CLIMB EVERY MOUNTAIN - ACT TWO – “MEETING MISTY” & “HORSING AROUND”
(With a nod to Aaron Sorkin)
INT. LIVING ROOM, HOPE RANCH – DAY – “MEETING MISTY”
ANGELA, SLOOPY, NATE, ARTIE, AND JOSH are seated around the kitchen table, organizing the evening tasks.
ANGELA: OK, staff. Whadda we have to get done before dinner?
SLOOPY: Neurotherapy. I’ll work on Annie’s performance anxiety.
NATE: Round up the chickens and the goats.
ARTIE: That’s Annie’s job.
SLOOPY: She’ll be in neurotherapy.
Can I ask you the following three questions?
- Who are the targeted participants for US clinical trials of vaccines?
- Why does our government test vaccines that are 10 to 500 times the potency of licensed vaccines on US citizens?
- Why does our government conduct clandestine trials on unsuspecting participants regarding vaccine trials?
This spring will mark the 27th anniversary of one of the cruelest and most deceptive acts the Centers for Disease Control (CDC) has ever conducted. In partnership with Kaiser Permanente Health System and Los Angeles County Public Health Service, an experimental measles vaccine was given to approximately 1,500 inner city minority children in Los Angeles County. Most of these children were six months of age. The planning for this inoculation program started in 1989 with the vaccination campaign commencing June 1990. This program came to a halt in October 1991.
The measles vaccine, Edmonston-Zagreb (E-Z) high-titers, was administered mainly to African-American children in an attempt to curb the measles outbreak in LA County. The parents were not told that the measles vaccine was experimental, and it was not approved for use in the US.
These children from LA County were the guinea pigs, the living test tubes of the research world. Yet the CDC and World Health Organization (WHO) were telling the parents the vaccine was being used in other countries. What was not explained was the fact of the vaccine used in Los Angeles was not the lower titers used in other countries but rather a super charged high-titers E-Z vaccine. And it was experimental.[i]
The E-Z measles vaccine was first used by UNICEF and other health organizations beginning in the late 1980’s, despite warnings of mortality increases in developing countries.[ii]
The consent forms given to the parents to sign did NOT disclose that the vaccine was experimental. The brochure that was included with the consent form stated “this vaccine has been shown to be effective in younger children”.[iii] The CDC director, Dr. David Satcher, stated in a LA Times interview, regarding not informing the parents of the experimental status, that “a mistake had been made. Things sometimes fall in the cracks.”[iv] And the parents will be unable to receive monetary compensation. More on this later.
By Kim Stagliano
Pediatricians have failed their patients with autism at every turn. Here are two pleas for help I saw recently on large, special needs groups. Expect when your youngster grows into a teen (male especially) that your ped will throw up her hands and ask you to leave because working with him is simply too difficult. My girls have never had a hearing or vision test at the peds office. "We can't do it, they won't cooperate."
American Academy of Pediatrics, you stink. 100% stink. Your members are prima-donna quitters who fire patients at will. Real doctors treat and heal. Pediatricians today weigh kids, take blood pressure, check a few orifices and then administer vaccines and referrals out to specialists in as short a period of time as possible, stacking patients like aircraft at LaGuardia. I have a new tagline for you, "AAP: We break them then forsake them." Catchy yes? More than measles....
You don't often wash your hands before a visit, you sure are soaping up now on our kids. But guess what? Shakespeare wrote it best and I hope you, Dr. MacBeth are tormented every day with, "Out out damn spot!" Kim
After a hard visit at the pedi today (just for a well physical visit ) we were told that if my asd son doesn't start to learn how to cooperate and let her examine him , he won't be able to be under her care anymore , so I'm interested to know about developmental pedis and if they are just for development issues or can do all (well, sick, developmental) and any names of some that aren't really associated with GIANT PRESTIGIOUS MEDICAL TRASHCAN (Kim's name for this institution) (as we have never had any good outcomes with them) please feel free to pm me.
And another comment:
Previous Aprils have had down-in-the-dumps. That’s happened when new autism rates were announced and when the media turned a blind eye to why the rates increased. From what I’ve read over the last four weeks, the media has been somewhat silent on autism and vaccines. They haven’t been as hard on parents like me either. As the parent of a vaccine injured child who won’t stop talking about a vaccine-autism link, I’ll gladly take the break!
Getting a break has been refreshing. So has been choosing new songs to share during this year’s autism action month. Like every April for the last few years, I rely on my music to get me through the month. I listen to it on good days, on bad days, and on in between days, too.
Here’s a short playlist of my latest go-to music. Each song is dedicated to a certain group of people. If I’ve left anyone out, my apologies. If you have a song that you want to share, especially if it’s one that will get me and my kids dancing in the kitchen, please post it in the comments below. I’d love to take a listen to what inspires you.
Bringin’ on the Heartbreak by Def Leppard
This song is for the Mom or Dad who is stuck - stuck thinking about how hard this is, how overwhelming this is, and how heartbreaking this is. It is hard, it is overwhelming, and some days, it absolutely can be heartbreaking. I know that because I sometimes live it. But I believe that things can eventually get better. On days that things don’t get better as quickly as I’d like, monster ballads like this one get cranked up really loudly.
Kid Heart by ToddZero
For the parent who’s in the midst of frustrations and struggles, push through. I know, easier said than done. It may not seem possible in this very moment, but I have a feeling you will find your way again. Draw on your strengths. And if you fall down, don’t forget to get back up.
By Teresa Conrick
Today, Saturday, April 22nd, is March for Science Day. In Washington DC and in 517 locations around the world, supporters will be marching to, ---
"unapologetically advocate for science and all members of the scientific community.....The March for Science champions and defends science and scientific integrity, but it is a small step in the process toward encouraging the application of science in policy. We understand that the most effective way to protect science is to encourage the public to value and invest in it."
I would probably be marching if I did not have a daughter with severe Autism because I instead need to go car to car to ask for donations for real research and SCIENCE funding for AUTISM on that same day. The MICROBIOME is becoming the most important area of research for Autism and so many other diseases. I would probably march with thousands of Chicagoans as I too, believe what they are marching for:
Science is meaningful to all of us whether we are scientists ourselves, enthusiasts of science, or simply Chicagoans that value a method to uncover truth. We were motivated to become a guardian of science despite our differences.
And this too, I truly believe:
"We affirm that the scientific process provides meaningful answers to our society’s most pressing questions"
"We spotlight the accomplishments of science and offer a platform to the voices, often hushed, discredited, ignored or forgotten, that have critiqued and called for systemic change toward inclusivity and representation within the field."
"The practice of science has been flawed with bias, prejudice, and self-interest despite its ideals of objectivity, neutrality, and collective benefit."
"When unchecked, these biases influence funding decisions, who or what is studied, and who benefits from the results of research."
NOTE: If you love reading AofA every day, you can thank Generation Rescue. I launched Rescue Post for JB Handley 11 years ago, and then Mark Blaxill and Dan Olmsted invited me (!) to merge and become Age of Autism. GR has a new look with the same determination to help families. Always. I saw Jenny on Tuesday when I co-hosted her show on Sirius. Her commitment to us is unwavering. It's very cool. XOX Kim
After my son's diagnosis, generationrescue.org was the first website I turned to for information to heal him, 11 years ago.
I am so proud to see what was once just a website has grown into a worldwide community of doctors, scientists, and devoted parents working toward the same goal... RECOVERY!
Thank you for being part of our journey. We're so excited to invite you into the next chapter and introduce you to the new and improved generationrescue.org!
‘Killing Five Kids for Every One You Save’
Dr. Toni Bark, Revolution for Truth, Washington, D.C., March 31, 2017
Dr. Bark began her talk by explaining to her audience what led her to be involved in the vaccine controversy.
“… In the eighties, we did not vaccinate women who were about to be pregnant. We would ask them. Today they’re recommending vaccines for pregnant women, without any safety studies.
“We didn’t vaccinate preemies; we adjusted their age. We didn’t give a day one of life vaccine. If a kid was sick, had a fever or was fussy, we wouldn’t vaccinate them. We only gave 14 shots up to the age of like 16. It was much different than today’s milieu, still kids were injured.
“We were using the old DPT, which as we know now—How many of you read about Peter Aaby’s recent publication?—that for every one child we save from D, P, or T we kill five with the DPT.
He’s been studying it in Guinea Bissau in parts of Africa. He worked for the WHO for decades. He’s been studying this for decades. He’s at a University in Europe, but basically in Guinea Bissau. He and several other researchers studies this for years, tracked it over thousands and thousands of kids, and said that for every one child from D, P, or T, five die from other infections because their immunity is so altered from that shot.
Note: The event was held in New York City on Tuesday night.
By James Grundvig
Last night I had the privilege of attending Robert F. Kennedy Jr.’s World Mercury Project fundraiser. If ever there was a champion to fight the “orthodoxy” that mercury is safe for tots, fetuses, newborns, and children, Bobby Kennedy Jr. is it.
His impassioned speech discussed how he got involved in the vaccine-autism divide more than a decade years ago, sitting in the backseat of a car with Lyn Redwood and the “Moms,” and he reminded all of those who attended the event last night the Moms had “bigger balls” than all the dark forces on the other side.
He covered some amazing territory and compared the censorship of the vaccine debate to the “sex crimes” of the Catholic priests; that the outing and breaking of that orthodoxy didn’t happen overnight; and that all of those in attendance and all of us on the right side of this societal fissure must plough on, continue to fight, arm our children that, just in case, we don’t win that the next generation does shatter the lie that has been planted and perpetuated by the “fascists” and propped up by the mainstream media that it, too, will one day collapse just as a sandcastle erodes and washes out over time. Read more here.
By Anne Dachel
Tucker Carlson interviewed Robert Kennedy Jr on Tucker Carlson Tonight. Fox News Video Clip Here. You can thank him at firstname.lastname@example.org.
He introduced the “taboo” topic saying that experts “insist that vaccines are generally safe; that there is no link between vaccines and autism.” He added that there are skeptics.
Robert Kennedy, Jr. began by stating, “I’ve read the science, and the science is very clear—what you have to understand is that the vaccine regime changed dramatically around 1989. The reason it changed is that Congress, drowning in pharmaceutical industry money, did something they’ve never done for any other industry, they gave blanket legal immunity to all the vaccine companies so that no matter how sloppy the line protocol, or how absent the quality control, no matter how toxic the ingredient, or egregious the injury to your child, you cannot sue them.
“So there no depositions, there’s no discovery, there’s no class action suit. All of a sudden vaccines became enormously profitable.
“In ’87 it was implemented and then there were a gold rush by the pharmaceutical industry to add new vaccines to the schedule.
“I got three vaccines; I was fully compliant. I’m 63 years old.
“My children got 69 doses of 16 vaccines to be compliant. And a lot of these vaccines aren’t even for casually communicable diseases, like hepatitis B which comes unprotected sex or sharing needles.
“Why do we give that to a child the first day of their life?
“And it was loaded with mercury.”
Carlson restated Kennedy’s statement. “And we do give that to children.”
FDA’s Vaccine Safety Lie: Why Buildings Have Stricter Quality Controls than Pediatric Vaccine Trials
NOTE: Thank you to Skyhorse author James Grundvig for the link to his important post about vaccine safety. If you don't know James, he's the guy who found the ex-CDC current US fugitive Poul Thorsen and wrote about it in his book Master Manipulator. Unless you are Mother Teresa (wink wink), you do NOT want one James Grundvig sniffing around your life.
By James Grundvig
Imagine President Donald Trump, in his past life as a real estate developer, learning that his new building had its structure compromised — the concrete didn’t meet design strength. Wanting to get to the bottom of the issue, he would direct his team to investigate the problem and report back to him. The findings, however, would shock him.
The contractor followed the “guidance” of the design team, but not the minimal code set by the city or the concrete industry. Trump would learn such guidance gave the contractor leeway to follow his whims on the design criteria of the specifications. That would cost Trump’s project time and money in remediation, and lawsuits would fly out the door.
But since no construction project in North America gives the contractor only “guidance” on what codes to follow — they must follow all that apply — then it’s truly stunning to learn this is what the FDA has been directing vaccine manufacturers to do for decades: Follow agency guidance, not a strict code, minimal requirements, specifications or regulations when it comes to the design and execution of vaccine safety studies.
Vaccine manufacturers are free as a bird. They can virtually do what they want. But how can that be?
It’s all in the FDA’s Biologics Division, in the words that gives “Guidance” for the different vaccine clinical trials, such as, “Guidance for Industry: For the Evaluation of Combination Vaccines for Preventable Diseases: Production, Testing and Clinical Studies.” Or how about, “Guidance for Industry: Clinical Considerations for Therapeutic Cancer Vaccines.”
NOTE: We're bringing you this series, re-crafted for 2017, by Richard P. Milner of Public Affairs Media during Autism Action Month. Dr. Paul Offit has led the charge against any and all in our community, doctors, scientists, parents, educators, film makers, who question vaccine safety.
By Richard P. Milner
TENPENNY: Dr. Offit really should read the medical literature of all who contract the illness after the injection. Cases of measles, chickenpox, smallpox and probably others have been documented after vaccination. In addition, the antibodies induced by vaccination are not the same as antibodies that appear as the result of a natural infection. For example, it has been documented that the measles antibodies in breast milk do not have the same protective effect as antibodies from moms who (actually) had the measles infection.
The exception to this is the HiB vaccine; that is a cell wall antigen vaccine and has a very different mechanism of action as the other vaccines. That vaccine DID decrease the incidence of H. flu meningitis, H flu otitis and overall H flu disease. However, the trade off was not benign. We had an escalation of strep disease after the introduction of that vaccine.
Hence? We developed Prevnar, the vaccine for strep. We are now creating vacuums in the Strep “family” and more resistant, more virulent strep bugs are coming forth. In addition, with wiping out H Flu (gram negative) and Strep species (gram positive), now BIG BAD DEADLY BUGS are coming around including N. meningitides and MRSA staph infections. The CDC admits,
“As a result of the widespread use of the HiB vaccine to control H.influenzae type b infections, Nisseria meningitidis has become the leading cause of bacterial meningitis in children and young adults.”
MMWR. Control of Meningococcal Disease
May 27, 2005 / 54(RR07);1-21
OFFIT: It’s certainly true, actually, that I you look at diseases like Whooping Cough or even to a lesser extent Diphtheria, you started to see some decline as we got, you know, more san—better sanitation, better hygiene in our country. But you didn’t start to see a dramatic decline and virtual elimination of those diseases until we introduced vaccines.
HUMPHRIES: He is correct here with measles, chicken pox, mumps but he totally ignores the price paid and that the only reason we are not seeing big surges in adults yet is because the adults that had true immunity have not yet all died off. Once that happens and we only have vaccine immunity we will see problems which is why we are already seeing new recommendations for adults to get pertussis and MMR vaccines. And chicken pox will be the same.
HALEY: I would like to see the data he has to support this as I don’t think he is correct. There were major drops in these illnesses before introduction of the appropriate vaccine and the introduction of the appropriate vaccine did not appear to cause, as he says ‘a dramatic decline’.
Oops, we had her last name incorrect. We fixed it. Her name is Suh, (like duh) not SHUH, although the similarity to shshshshsh is amusing. KIM
NOTE: Big thanks to Trudy for this post. Hey Cosmo, stick to promoting multiple orgasms, not multiple vaccines. You're way out of your league - as Trudy shows below. Kim
By Trudy Snyder
In response to your article in Cosmo Vaccinations: Anti Vaxxers are Selfish on April 11, 2017, Jinny Suh, according to dictionary.com, the definition for selfish is devoted to or caring only for oneself; concerned primarily with one’s own interests, benefits, welfare, etc., regardless of others. So, Jinny, I'm going to ask you a favor. Can you please set your children on fire so mine can stay warm? I'm going to need you to do that because it's the right thing to do. It's what the other children in society need from your children. It's what everyone expects of you, and you better do it or you risk being SELFISH. I'm going to need you to put your singular parental instincts aside and do it for the betterment of the community. Your child's heat will save others from freezing to death, so I'm going to ask you sacrifice your child so that others may live.
What's that old saying? Kill one and save a thousand? But it matters not to you as long as that one is not yours? Is this how it works in your world? Because I can tell you that it was never my intention to sacrifice my child for your or anyone else's self-absorbed entitlement. That somehow, my child, who is clinically diagnosed as VACCINE INJURED was put on this earth so that he could "take the fall" for you and your children so that you could feel safe in your imaginary immunity bubble or to be your fail-safe. So, what am I supposed to do? Keep his VACCINE INJURY a secret and say it was something else that caused his 14 different medical diagnoses or his developmental delays after everyone around us saw that he was born happy, healthy and meeting milestones?
You see, when others hear about what happened to my son after "routine well-baby" visits, it makes them pause and think about the dreams and wants they have for their own children. I'm pretty damn sure that none of them are thinking, "Well, Jinny Suh thinks I'm being selfish because I'm not setting my child on fire for her and her family so I'm going to go ahead and buy some matches." What's selfish Jinny, is you.
If you feel vaccinating your children is the right thing to do, then do it. I won't tell you not to but know that your CHOICE could endanger the life of MY child. Vaccinate your own children until they are green in the gills for all I care, but you don't get to lay a guilt trip on others for making choices that are right for their family and not yours. You also don't get to play the moral police when you're not the one that cares for the child that is injured by the vaccine you EXPECTED someone else to do for you. You don't get to tell another parent they are being selfish because you feel slighted or that their decision isn't for your benefit but for THEIR OWN FLESH AND BLOOD.
Note: Many years ago, we ran a photo that has zero religious intent and featured many in the pro-vaccine injury community. We were instantly branded Anti-Semitic. Here, Paul Offit, himself Jewish, purports to tell those of us who are Christian what Jesus wants us to do. Tell the Pope to look out, Offit may be after his job. Holy Moses.... And thank you, Anne for this post.
By Anne Dachel
What Would Jesus Do? He’d vaccinate every child, according to Paul Offit
Recently Paul Offit was on the attack against Vice President Mike Pence over his actions on the HPV vaccine back when he was governor of Indiana. Every teenager in Indiana was expected to get the vaccine, according to Offit. “…the HPV vaccine… was recommended for all adolescents.”
(Seriously, how can someone tell EVERY adolescent to get a pharmaceutical product, without any consideration of risk factors?)
April 15, 2017, The Daily Beast: Why Didn't Pence Do the Christian Thing?
By Dr. Paul Offit.
The VP’s extreme-conservative policies on the HPV vaccine needlessly risked Indiana children’s lives. What he did unto them—among others—is something Christ himself rejected above all.
In July 2016, Mike Pence rallied cheering crowds at the Republican National Convention in Cleveland declaring, “I am a Christian, a conservative, and a Republican—in that order.” One year earlier, however, as governor of Indiana, Pence’s radical conservative values trumped his Christian values.
Read Nancy's Part 1 here.
By Nancy Hokkanen
When we fix one problem, we sometimes create another – that’s a frustrating paradox in today’s society. Product manufacturers’ risky use of potentially harmful chemicals in our food, clothing, care products and furnishings mirrors the ethical tradeoffs and fraud in the U.S. Centers for Disease Control’s one-size-fits-all vaccine program. By ignoring reports of vaccine adverse reactions due to mutagenic metals and toxic chemicals at extremely low doses, public health policymakers perversely allow autism and chronic disease rates to rise.
As consumers’ injuries and deaths increase due to unregulated chemical poisoning from myriad products, more parents are becoming vocal advocates working to improve people’s health and safety. My 2014 Age of Autism article described profiteering corporations, chemicals and fabricated advocates that harm the public’s health by lying about the toxicity of flame retardants. Victims and families are creating their own potent cumulative synergism when vocally pushing back against institutional denials of health harm from chronic low-dose exposure to poisonous chemicals.
Case in point – the 2015 documentary Stink. The film begins with one parent’s look at flame retardants in a child’s pajamas, then expands into an investigation of the huge fragrance industry – merchandise, companies, executives, trade groups, regulatory agencies and politicians.
Stink was produced and narrated by Jon Whelan, a father of two and former co-CEO of Afternic.com. In 2009 Whelan’s wife died of breast cancer, a heartbreaking experience and catalyst for his research on chemicals in everyday consumer products. As a single parent he was now solely responsible to protect his daughters… even, as it turned out, from their sleepwear.
After Whelan noticed a “noxious synthetic odor” emanating from pajamas he’d purchased from the tween store Justice, he contacted their staff – but got no definitive answers about the stink’s source. So he had the pajamas analyzed by a lab, which detected “potentially problematic” chemicals including a carcinogenic flame retardant similar to Tris [Tris(2,3-dibromopropyl) phosphate], and phthalates, endocrine disrupting chemicals (EDC’s) that cause systemic malfunction by mimicking natural hormones. Like ethylmercury in the vaccine preservative Thimerosal, EDC’s are hazardous at very low levels and are linked to birth defects.
Thus the choice of “Justice” as a brand name seems a misnomer, given that the company sells products containing endocrine-disrupting chemicals to pubescent children. And in 2010 the chain was forced to recall jewelry that contained cadmium, a toxic heavy metal OSHA says is “known to cause cancer and targets the body’s cardiovascular, renal, gastrointestinal, neurological, reproductive, and respiratory systems.”
Got this in the mail yesterday. "For college. For life."
Gianna has autism. She is 20 and watching Nick Jr. right now while she paces back and forth across the room humming. College? School of hard knocks, thanks to autism. I wonder what her credit limit is - cocktails anyone?
After watching Ronan being hooked up for an EEG last week, I couldn’t help but think of this song. I’ve written about Andra Day’s Rise Up before. Included on a playlist that I shared last April, I’ve added some new thoughts below.
You're broken down and tired
Of living life on a merry-go-round
And you can't find the fighter
But I see it in you so we gonna walk it out
And move mountains
We gonna walk it out
And move mountains
Ronan played this song one evening last year. Cruising the internet on his own, I’m not sure how he found it. Once I heard the song, it stopped me in my tracks. Kneeling down to where he was on the living room rug, I closed my eyes and listened. Tears streamed down my cheeks. Ronan is nonverbal, but my goodness, he can still find ways to express himself.
When the silence isn't quiet
And it feels like it's getting hard to breathe
And I know you feel like dying
But I promise we'll take the world to its feet
Hard to breathe. Some days, when I can’t walk it out, it does feel like it’s getting harder to breathe. But what I have to endure, and can eventually work through, is nothing compared to what Ronan goes through. Take Thursday for instance. It was Holy Thursday, a sacred day for Catholics like me. Instead of it being a quiet, reflective Church day, I spent the day in a hospital with Ronan.
Ronan made it through the lobby holding his Daddy’s hand. He made it into the exam room, too. But the moment he saw the hospital bed, the tangled leads, and the unfamiliar technician assigned to his care, Ronan fought us.
He fought the staff.
He fought being pinned down.
He cried out in fear.
He cried out in pain.
He looked to me for help.
He looked to his Dad for help.
He endured a great amount of agony.
And we were unable to do anything about it.
NOTE: Seems like since Mrs. Wright's death last year, Autism Speaks has changed its mission from "It's time to listen," to "It's time to give up." What a sin. Let's live with autism. Cancer. Alzheimers. Diabetes. MD. Raise money and live with it. Disgusting in the extreme.
By Ginger Taylor, MS
Just saw a new Autism Speaks commercial. The message...
"Learn to live with it."
I kid you not.
(Let's just skip past the horrid imagery of a child with autism on a boat in the water with no supervision for the sake of time and trauma.)
For the few people who don't see a problem with this or understand why so many of us are so angry, please contrast compare two possible positions here. The first has been espoused by our community for more than a decade, the second is espoused by Autism Speaks.
1. Autism is preventable and medically treatable.
2. Autism, learn to live with it.
The first is accurate and appropriate, as there are medical treatments for people diagnosed with autism that will alleviate the symptoms of autism (some of which are life threatening... re: children in a boat in the water with no supervision). This will make their lives better without them having to spend hours and weeks and years combating a terribly debilitating condition. If there is medical treatment available for a debilitating condition, is ethical to tell people that there is medical treatment available for their debilitating condition.
To read the previous entries in this potential TV show click here.
By Dan Burns
If you gaze long into an abyss, said Nietzsche, the abyss also gazes into you. My abyss was the regression into autism of my son, Benjamin, now approaching age 30. Early in the autism epidemic I wrote a book, "Saving Ben," showing how raising him challenged my values and changed my life. The lesson: Ben is not just a wretch to be healed, but a song to be sung.
Not that the singing comes easily, or often. Raising Ben put a U-turn in my career. I became an advocate for my son, and I started a ranch for teens and young adults with autism. I learned the wisdom of Jean Vanier: "If you enter into a relationship with a lonely or suffering person, the one you came to heal becomes your healer."
With two percent of our kids on the autism spectrum and more to come, we are challenged to answer a question: What do autistic kids, teens, and adults give back to the communities that support them? How is the autism epidemic reshaping our lives? That's the theme I'm exploring in “Saving Zero.”
Logline: A retired gay dad, founder of a Texas ranch for autistic young adults, takes on a charismatic and possibly pathological teen.
SAVING ZERO – ACT ONE SCENE 2 - ROCK THE CAMPERS
EXT. PICNIC AREA IN FRONT OF STAGE – DAY
The performers are on the makeshift stage. A BANNER reads “Grand Opening Hope Ranch.” On the stage, a big FUNDRAISING THERMOMETER topping out at $250 Grand. At its foot, a humble TIP JAR with an IOU and some LOOSE CHANGE. A SIDE SIGN WITH a BALLOON says “Happy Birthday Annie.”
We follow JOSH to the VIP picnic table. He takes a seat with ANNIE’S MOM AND DAD. ANNIE’S MOM, mid-forties, professional, an air of competence and authority; beige jacket, matching slacks, briefcase. ANNIE’S DAD, about fifty; at ease in Bermuda shorts, a polo shirt and work shoes. Calloused hands say he’s more at home on a tractor than in an executive suite. Parents at tables to the right and left eat gluten free snacks out of Tupperware and drink probiotic beverages.
On the stage, as Master of Ceremonies, HAMSTER: sixteen, a beardless youth, slight, theatrical, with the elocution gestures of a carnival showman or a Victorian stage actor. Speaks in Shakespearean cadences. A bright, funny, mischievous imp who likes to steal the show.
HAMSTER: What a spectacle! As lofty as the stars in heaven, so be our performers. Start the music!
It's not just about vaccines and autism.
Robert F. Kennedy Jr. Explains Potential Dangers of the Zostavax Shingles Vaccine
Robert Kennedy: "Zostavax is a vaccine that is sold to prevent shingles, but may actually cause shingles--the very disease that it's supposed to prevent.
"Worst of all, Zostavax may cause brain injury, paralysis, even death.
"When a drug company fails to warn the public against the dangers that its product might cause, it needs to be held accountable--not just for the person that's injured, but for all of us."
If you'd like to meet Robert and support his work at World Mercury Project, you're invited to a fund raising reception on 4/18 in New York City at the home of Skyhorse Publishing's Tony Lyons. Here's the reality of what happens when a person of stature, an actor, actress, nationally known advocate starts to talk about vaccines... life changes. Retribution starts. And so, we need to support Mr. Kennedy as best we can. With a kind comment for most of us who can't afford to attend a fund raiser. With a ticket for those who can. I'll see you there - I'll be in the kitchen scrubbing pots. (Kidding.) KIM Click here to learn more.
By Anne Dachel
I want everyone to listen to what Robert Kennedy, Jr. had to say in Washington D.C. on March 31st at the Revolution for Truth Rally.
I transcribed his talk so you could not only listen, but also read the points he made and have them for future reference because there so much incredible information included in his 35 minute speech.
We are all familiar with Bobby Kennedy’s position on the use of mercury in vaccines. We’re also used to him promoting vaccines, claiming that he has had all six of his children vaccinated.
Kennedy qualifies that position in this talk.
Yes, Kennedy’s pro-vaccine, but he makes it clear that he’s PRO SAFE AND EFFECTIVE VACCINES, and we don’t have that today.
Keep in mind that I’ve spent fifteen years, as just a mom in Wisconsin, monitoring how the press covers autism, and autism and vaccines. Kennedy goes after not only the criminal cover-up by health officials but also the complete and utter failure of news outlets to do their job. This nightmare could never have happened nor could it have gone on for so long without the blanket cooperation of every major newspaper and network in America.
"Children have an enormous capacity to respond safely to challenges to the immune system from vaccines," says Dr. Offit. "A baby's body is bombarded with immunologic challenges - from bacteria in food to the dust they breathe. Compared to what they typically encounter and manage during the day, vaccines are literally a drop in the ocean." In fact, Dr. Offit's studies show that in theory, healthy infants could safely get up to 100,000 vaccines at once.
From a feature in Babytalk Magazine reproduced in a Children’s Hospital of Philadelphia pamphlet (2005).
"Of course, most vaccines contain far fewer than 100 antigens (for example, the hepatitis B, diphtheria, and tetanus vaccines each contain 1 antigen), so the estimated number of vaccines to which a child could respond is conservative. But using this estimate, we would predict that if 11 vaccines were given to infants at one time, then about 0.1% of the immune system would be “used up.”
“I think conservatively, one could say that, based on their caveats, that one could probably respond to about 100,000 different vaccines at one time."... "I would say you probably could get 100,000 vaccines every day.”
Paul Offit, Lecture: Are vaccines safe? (2008).
Here is an interesting question. As regular readers will be aware I have been berated on the Every Child By Two (ECBT) and Shot of Prevention websites by resident expert Dr Joel Harrison for being naïve in my understanding of Paul Offit’s claim (Prof Offit is on the Executive Board and Scientific Board of ECBT , a charitable foundation started by Rosalynn Carter and Betty Bumper ). Well, I am not sure who is being naïve (though I note that Dr Harrison’s article was warmly received by vaccine industry advocate Dorit Reiss ), or that I was giving anything else but a straight reading of what was being said. Meanwhile, Offit continues to hide behind pawns and surrogates who deny the obvious truth: his ideas were pseudo-scientific fantasy, although enthusiastically taken up by health officials in the United Kingdom, particularly. It is apparently not something he, or anyone else directly connected with him, wants to own up to now. If he wants to stand up as things are and say he did not mean it like that, there is quite a lot evidence that he meant it pretty much like that.
From Science World Report. Striking statistic for some, not so surprising for Age of Autism readers. Only as few as... means fewer than 33% of teens with autism have a drivers license. A license means independence. It's a hug step toward leaving the nest. It's an assurance you can find a job in a wide radius from home (assuming you have access to a car.) A license in America is a GIVEN. Not for autism. So, Sesame Street...
In the United States, teens 16 years old and over could drive a car. However, teens with autism could not hit the open road as much. A new research revealed that only about one-third of autistic children can get their own driver's license.
Allison Curry, a senior scientist at the Children's Hospital of Philadelphia, said that despite the pros of driving for teens with autism spectrum disorder (ASD), little is known about the rates of actually obtaining the said license. In her study, however, she found that although a substantial number of children with ASD do get a license, only as few as 1 in 3 of teens with ASD but no intellectual disability do so.
WebMD noted that teens on the autism spectrum do not always pursue a driver's license. Nonetheless, this increased mobility and independence can also contribute to their long-term opportunities, including post-high school education, employment or even social involvement. Still, while not all of them get their licenses, most do by the age of 21. There is a 90 percent of those who apply do get their license to drive. Although it seems late, they are only delayed by about nine months, which is not too bad.
2017 Pediatric Vaccine Schedule Demands Copious Homework: The Truth About Vaccines Video Series Launches Just in Time
We hope you will sign up to watch this free video series about vaccination choice, safety, decisions that affect not just pregnant women and parents of infants and toddlers, but adults too, as new vaccines come down the pike at breakneck speed. Called, The Truth About Vaccines, it features doctors and experts talking about vaccine safety issues, from both sides of the debate. Parents spend more time thinking about nursery color than vaccine choices. We know that difficult questions about vaccines are on both sides of this HUGE debate. Find out the pros and the cons…and get the knowledge to make your own informed decision. Watch the Truth About Vaccines trailer now:
On the basis of current recommendations for use of Food and Drug Administration-licensed vaccines, childhood and adolescent immunization schedules are revised annually. The updated recommendations for 2017 have been approved by the American Academy of Pediatrics (AAP), the Advisory Committee on Immunization Practices (ACIP), the American Academy of Family Physicians, and the American College of Obstetricians and Gynecologists.
Adolescence is a dynamic period during which effective preventive interventions can foster safe behaviors and the development of healthy lifestyle choices. Timely vaccination is a cornerstone of preventive adolescent health care and should be reviewed at every visit and updated as needed, yet barriers to completing adolescent immunizations persist.
Synopsis and Perspective
This year's updated schedule for child and adolescent immunizations has several key recommended changes, among them a reduction in the number of doses for the human papillomavirus (HPV) vaccine for some children.
The 2017 schedule, approved by the ACIP of the Centers for Disease Control and Prevention (CDC), was published online on the CDC website and in Pediatrics. The updated schedule was also approved by the American Academy of Family Physicians and the American College of Obstetricians and Gynecologists.
NOTE: Here's a glimpse of what can happen when stakeholders - family - put their minds to the successful futures of their loved ones with autism. You'll stumble on one of the sentences for sure, I did. "We can employ about 50% of the autism spectrum..." That means the higher/highest functioning. It bursts many bubbles - certainly here in my household. My girls are not in that part of the spectrum. But I learned a saying long ago - "Don't punish progress," and I can't make life better for my girls by complaining about something that might be out of their reach yet a Godsend to YOUR family. Hey, we have bikini car washes, right? Why not an autism car wash?
Read the full story and watch a video at HuffPo.
When John and Tom D’Eri realized their autistic family member ― John’s son and Tom’s brother, Andrew ― would soon age out of the school system at 22 and have no job prospects, they decided to do something about it. Inspired by Andrew, the father-son duo founded Rising Tide Car Wash, a business that hires individuals across the autism spectrum and teaches them job skills to help put them on a path toward independent living ― and it’s making a world of difference in its Florida community.
Nearly 100 associates with autism are employed by Rising Tide. “People with autism are great at detail-oriented process-driven tasks. They excel at them,” Tom says. “In fact, they’re better than most.”
It’s a message that the D’Eri family is eager to spread.
“As a society, we look at autism as a disability that requires sympathy instead of a potentially really valuable diversity,” Tom says. “We decided we wanted to build something that could not only empower people with autism, but also could explain that message that people with autism are really capable [and] can be huge assets to a lot of different businesses.”
Rising Tide Car Wash, Tom continues, can employ about 50 percent of the autism spectrum. “There’s a wide range of people with autism that can be successful here,” he says.
Autism Research Institute Presents Research Updates: Immunological Issues in ASD - Gestational Influences, with Dr. Judy Van de Water
Autism Research Institute is presenting a Webinar tomorrow, 4/12 titled: Immunological Issues in ASD - Gestational Influences. Register here. From ARI:
Join Judy Van de Water, PhD to learn about gestational influences on neurodevelopment.
Dr. Van de Water joined the faculty in the Department of Internal Medicine at the University of California, Davis in 1999. In 2000, she also joined the faculty of the newly formed UC Davis M.I.N.D. Institute when she began her research on the immunobiology of autism. Dr. Van de Water’s laboratory pursues research programs pertaining to autoimmune and clinical immune-based disorders including the biological aspects of autism spectrum disorders. The application of Dr. Van de Water’s immunopathology background has been instrumental in the dissection of the immune anomalies noted in some individuals with autism, and in the differentiation of various autism behavioral phenotypes at a biological level. Most notable of these is the investigation of the maternal immune system as it relates to autism spectrum disorders, with particular emphasis on the presence of highly specific maternal autoantibodies to fetal brain proteins.
Our friends at Generation Rescue are changing the lives of individuals with autism every single day. And that means changing life for entire families, for the better. I especially love that the grants are not limited to youngsters. Many of us have older kids, my oldest is 22. And they can still benefit greatly from treatment. Thank you to Jenny McCarthy and the entire GR team. XOX
Rescue Family Grants provide autism treatment to families in financial need. The grant provides financial support, products and services for auditory listening therapy, dietary intervention training, dietary supplements, two doctor visits, and lab testing. To date, more than 700 individuals have participated in the program and report a better quality of life and improvement in speech, language, behavior, health and wellness, and social interaction. The grant is available to individuals of all ages who meet the eligibility criteria below.
To see if you qualify for a Rescue Grant, which provides medical treatment for autism, click here.
Note: Thank you to Anne Dachel for transcribing this talk, and to Joshua Coleman for the video.
Dr. Brian Hooker, the man who was contacted by CDC whistleblower William Thompson, spoke at the Revolution for Truth Rally in Washington D.C. on March 31, 2017, along with over a dozen leading autism activists.
Brian’s speech was only about ten minutes in length, but his words were dynamite. Just like Del Bigtree did in his talk, Brian told his audience that when he goes to Congress, they know about CDC scientist William Thompson’s charge that his agency ordered him to destroy evidence showing a vaccine-autism link in the MMR vaccine. This issue is only going to get more heated because the people who represent us know that the government is involved in vaccine safety fraud. It’s their job to look into this.
Brian also went into detail about Poul Thorsen and Diana Schendel’s roles in fleecing the taxpayers out of millions of dollars in order to manufacture bogus research on what’s causing autism.
(And for all the details on just how Thorsen and Schendel pulled this off, read the fascinating book, Vaccine Whistleblower, by Kevin Barry.)
Dr. Brian Hooker, Revolution for Truth Rally, Washington, D.C., March 31, 2017
Brian began by talking about his 19 year old son’s vaccine injury, his dedication to his recovery and the toll it takes on every affected family. He was very positive.
Brian: “…And yet, we’re winning. …You get the word out there. When I go up to Capitol Hill and I ask people, and I start to explain the story about Bill Thompson, they’re like, ‘Oh no, no, no. We already know about Bill Thompson.’
“You’re doing your job! You are absolutely, absolutely doing your job, and please, please, please keep up the good work. …”
By Kim Stagliano
I was doing a bit of Spring cleaning yesterday and came across the Bible my parents gave me many years ago. The family Bible was once the main place to document births, deaths, the family tree. I filled in the basics, including Mia's birth. I have two more children. What do you see?
I swear to tell the truth, the whole truth about autism. So help me God.
This preview goes deeper on the exact topics they’ll be diving into with the new series.
Ty Bollinger and his team have an amazing 7 days queued up, and we're so excited to share it… on so many levels.
For one, this topic is heating up in the halls of Congress right now, with vaccine safety concerns once again surging, particularly for young children and seniors.
And two, this thing is going to be chock full of helpful information on this topic that we know will make a difference for you and your family.
Regardless of your position on vaccines, we encourage you to register to watch this series. It’s not about being “pro” or “anti” -- it’s about getting the facts (and the full story that’s not being told), and understanding what all your options are.
April 6, 2017, Fox12 (Sherman, TX): Neblett Elementary student's journey with Autism, By Anthony Miller
SHERMAN, Texas (KXII) -- Nathan Adams is a seven-year-old child who attends Neblett Elementary school in Sherman, Texas.
He's a lovable child who plays and even explores like every child, but at a young age, his parents knew there was something different about him when he wasn't responding to his name at one year old.
Just before he turned three, he was diagnosed with autism.
"It gave us some closure to it," said Nathan's father, Jeff Adams. "It gave us kind of a path forward, but at the same time, it was difficult."
"Kind of a relief at that point to know which direction to go," said Nathan's mother, Desiree Adams.
This three and a half minute news report on April, Autism Awareness Month is a chilling example of just hw much we have, as a nation, surrendered to autism.
News anchor: “This month is Autism Awareness Month, as the disorder affects one in every 68 children.”
A few Fridays ago, I was able to get to daily Mass. Always grateful for any quiet time I can get at church, I eagerly listened to the readings. As usual, one of the scripture verses I heard smacked me over the head. I love that feeling. It’s one I’ve heard my whole life and hoped to being able to reference it in a future post. Today’s the day to reference that verse.
You shall love your neighbor as yourself. Mark 12:31
I’m active on a few message boards about the usual subjects: autism, vaccines, special needs parenting. No matter what message board it is, the rules are the same. They’re simple, too: be kind, be polite, be respectful. One group that I’m a part of is different. We follow the same simple rules, but the content typically discussed has absolutely nothing to do with autism, vaccines or special needs parenting. So when I saw a post being made about those particular topics in that group, I perked up.
Most of the members are young moms, many in their late 20s and early 30s, and live on the other side of the country. Several of them are just starting their parenting journey. Two Fridays ago, around 10pm my time, one of the young moms’ posts caught my eye. She was asking about vaccines. It wasn’t really a question, but more of a statement with a simple request, “I am seeing more articles like this one…it piqued my interest…it concerns me and made me wonder what more a mom like me needs to know…”
I stopped reading.
Which group is this again?
I thought this was the group that had nothing to do with autism, vaccines or special needs parenting.
Confused, I scrolled back up to the top of the page. Huh. It was the group that has nothing to do with autism, vaccines or special needs parenting. I sat up straighter, scrolled back down to the post, and reread the young mom’s plea. She ended it with, “…I’m curious what you all think. Thoughts?”
As long as I’ve been in that group, none of the women have discussed vaccines. To say that this young woman went out on a limb bringing them up is an understatement. She exposed herself, and what followed wasn’t pretty.
It was an innocent post, but surprisingly, she got attacked within minutes of sharing the link to a new docu-series that’s about to air.
While I do have some things in common with these women, I don’t know them very well personally. Most of the time when I log into the group, I lurk – that means I read more than I make comments. Since I felt like I had more than enough experience on the topic that was just broached, I decided to reply and quickly crafted a response in my head. It couldn’t come off too strong – this young mama needed gentle guidance. It couldn’t come off too weak either – she’s putting two and two together on her own and needed to be encouraged to read more!
Since I was typing on my phone and not a computer, it was taking me a little bit longer to write a response. I’m glad I got my reply in when I did. Seconds before, another woman chimed in. Her comment was not as open-minded as mine would be, “This is not the right place to post that. This is not the forum for a debate.”
The young mom replied that she didn’t see how her request for information was inappropriate. Nor did she intend for it to be cause for debate. She did however offer to remove the post if such a post was not allowed.
No. No. No.
We’ve had plenty of OT (off topic) posts in that group in the year or so that I’ve belonged, but none like the one I saw that Friday evening. I read her words as a request calling for honest thoughts, but with how quickly it was judged, it reminded me of another scripture verse – the one where Jesus states that prophets are not accepted in their native town.
They rose up, drove him out of the town, and led him to the brow of the hill on which their town had been built, to hurl him down headlong. But he passed through the midst of them and went away. Luke 4:29-30
By Kim Stagliano
April brings showers, Mayflowers, May flowers and a chance for me to get OUT of the house and into the Sirius XM satellite radio studio in Manhattan to co-host the Jenny McCarthy show. I'll be on this Tuesday, April 11. Channel 109, Sirius Starz, from 10 - noon.
Each year, Jenny kindly invites me to put on my highest heels (yes, I know it's radio) and talk about the latest in autism news and to kibitz with her fabulous guests. I love going into the studio in Midtown. I've met Lynda Carter, Lorraine Bracco, Salt N Pepa and had a chance to speak with some of my Howard Stern show favs. (Gaaaaary?) Just sitting in the lobby is an experience as celebs of all sorts pass by.
You can get a trial subscription FREE here! Here's last year's post after I appeared.
Last Tuesday I had a blast co-hosting Dirty, Sexy, Funny, Jenny McCarthy's radio show on Sirius STARS channel 109.
Here are the intro (16:58) and closing (2:00) segment which includes a conversation we had about VaXxed, autism, vaccines and the reality of having a child(ren) on the spectrum.
Thanks so much to Jenny for the invitation and opportunity to put on high heels! Please share with friends and family. The information is easy to digest and helps the "layperson" understand why VaXxed is so important. My goal was to tell an audience waiting to hear about a Kardashian tell all book about the vaccine MMR Dr. William Thompson VaXxed Dr. Wakefield censorship topic in as few words as possible. Capisci? The segment is 15 minutes and includes Jenny's fabulously funny show intro, banter and more.
Remember the name of the show is Dirty, Sexy, Funny, so don't go getting your panties in a bunch in the comments - OK???
Here you go:
And the quick closing:
NOTE: We're bringing you this series, re-crafted for 2017, by Richard P. Milner of Public Affairs Media during Autism Action Month. Dr. Paul Offit has led the charge against any and all in our community, doctors, scientists, parents, educators, film makers, who question vaccine safety.
Paul Offit has for many years been the go-to-guy whenever the mainstream media looks for a sound bite on vaccination. By presenting him with no counter, they give the impression that he has no critics beyond a few “hysterical parents.” However, in our research and investigation we found that he has many.
We interviewed Paul at his Children’s Hospital of Philadelphia office. Then transcribed the interview, and sent it out to a few of his critics, whose credentials and comments on his statements follow below.
We also made a video, “Haley vs Offit: A Virtual Debate About Vaccines, The Greatest Medical Controversy Of Our Time,” viewable at publicaffairsmediainc.blogspot.com.
At the site, we have studies supporting Haley, and a list of over 180 more studies showing the extreme dangers of Mercury, especially when combined with Aluminum, as in shots, and other heavy metals, such as Lead or Cadmium from the general environment.
We could find no credible studies in support of Offit.
Public Affairs Media Inc. is a non-profit 501(c)(3) news organization. Please support our work by making a donation at publicaffairsmediainc.blogspot.com.
Dr. Paul Offit, MD, is the Maurice R. Hilleman Professor of Vaccinology and Professor of Pediatrics at the University of Pennsylvania, a chair funded by Merck & Co. He is also the Chief of the Division of Infectious Disease and Director of the Vaccine Information Center at the Children’s Hospital of Philadelphia. Offit is a successful vaccine technician and an accomplished vaccine promoter. His vaccine for diarrhea, RotaTeq is manufactured and distributed by Merck & Co., and its affiliates worldwide.
NOTE: We accept submissions year round at Age of Autism. In April, we especially welcome new voices to share their autism stories. Send me your submission to KimStagliano@gmail.com with SUBMISSION in the subject for review. Write from your heart and gut and readers will respond. Thanks.
By Candice Edwards
I remember vividly a conversation I had with my friend exactly this time last year. This isn't verbatim, but its pretty darn close.
Me: I don’t know what to do. I just feel like things are falling apart, I feel like I am failing at everything *crying*
Friend: Aww hun, whats wrong?
Me: I just feel like I don’t exist, he won’t look at me, literally its like I’m invisible. He doesn’t want to be touched, anything I try to do with him he shuts me out, literally turns away from me. Sometimes he gets very violent with me and I don’t know how to handle it. I am feeling so lost because that connection we are meant to have isn't there, it was there, but its gone.
Friend: Wow…I’m lost of words, how long has this been going on?
Me: When I think about it, its been gradual since Ollie was born but 4 months was when things really changed, but its getting worse. I just feel like something else is going on, I can feel it in my gut.
Friend: He doesn’t show you any affection? He doesn’t look at you at all? and this has been going on for months?
Friend: Why didn’t you tell me sooner?
Me: Because I thought I was crazy, that this was just normal and things would get better
Friend: You need to listen to me. We all need to feel loved, acknowledged and important.You can’t stay in a relationship like that hun, you might want to think about leaving him especially before Oliver gets older. No one deserves to be treated like that, whats the point if he acts like you don’t exist? After a while it becomes abuse, you don’t serve that! Do you think its another woman?
Me: I’m not talking about Jay, I’m talking about my son!
My friends face dropped.
This conversation made me think long and hard. This relationship is completely different than all others. This life I grew inside of me was not something I could or would ever walk away from, and for that reason it was that much more intense. When marriages get tough, they can end. You don’t like your job? You can change it…but you have a child that won’t connect with you and your fighting to connect with them….what do you do? You look for help.
You get the email and your eyes light up! "SPECIAL NEEDS SUMMER CAMP!"
Sigh... Few camps accept kids with the intense needs and behaviors many of our children present. I know of a camp in my state for girls on the spectrum. I have 3 girls on the spectrum!! When you read the requirements you realize, they want girls who are nothing like my three girls.
What do you have in mind for the summer break?
By Anne Dachel
Thanks to Josh Coleman, I am getting the individual talks by the speakers at the National Press Club presentation in Washington, D.C. on March 31, 2017, and I'm going to transcribe them all.
These will all be published on Age of Autism. Please note that the paltry mention that this event received from the media didn't include actual quotations by the speakers, but Age of Autism will have them all. This event was ignored by news outlets that refuse to honestly cover this controversy, but the truth will get out, and the mainstream press will become even more irrelevant.
Del is impassioned. He is emphatic: WE ARE WINNING! It was inspiring to listen to him and feel his dedication to protecting children from dangerous vaccines. Del speaks about the lack of vaccine science to support our claims, and he's right, BUT ALSO THEY HAVE NO REAL PROOF. Population studies are not scientifici proof.
THE MISSING PIECE OF SCIENCE IS AN OFFICIAL COMPARISON STUDY OF FULLY VACCINATED/NEVER VACCINATED KIDS. Unless and until such research is done, the question is open. There is no proof that vaccines are safe, unless we look at children who were never vaccinated. AND NO OFFICIAL WANTS TO SEE THIS STUDY DONE. We all need to ask why.
Notice what Del said about the obligation of a doctor to know what ingredients are in the vaccines they're injecting into our children.
He's absolutely right. And doctors don't know. They simpy trust. They parrot the claims of the pharmaceutical reps in their waiting rooms.
This brought to mind the story from a friend of mine. This is a man who became very well-educated on vaccine safety concerns on his own, and when he went to his physician and asked him if he knew what was vaccines, he received this stunning response from the doctor:
"I DON'T KNOW, AND I DON'T WANT TO KNOW." That pretty much says it all. (My friend no longer has this person as his doctor.)
March 31, 2017, Revolution for Truth—Del Bigtree
‘Vaxxed’ producer, Del Bigtree was introduced as the “Emmy Award winning producer from the daytime talk show, The Doctors.”
Del: “Tomorrow is April 1st, which means we opened ‘Vaxxed’ exactly one year ago tomorrow. And what a year I’m having! There’s really nothing left to say after some of the greatest minds in this movement were speaking to you all day. I could really say ditto and walk off the stage.
“I want to talk about what this year has been, what has got us here, and what has happened right now in all of our lives.
“First of all, I have got to give a shout-out to my partners in this film Andy Wakefield, Polly Tommey, and Brian Borrows. The simple fact of the matter, we are not here, in this moment, without these powerful, dedicated people that I had the opportunity to spend a year with while making ‘Vaxxed.’
“Andy, wherever you are—I think you’re in Germany right now—we all owe you such a debt of gratitude.”
Del described an encounter with a reporter described by Robert Kennedy, Jr. as “doing a hit piece on Andy.”
NOTE: There is a softer side to this story by Anne Dachel. Our wonderful contributor Katie Wright lost her Mom Suzanne to cancer last year. Bob Wright asked President Trump to honor World Autism Day in her memory. And we are certainly behind that. According to Katie, her Mom tried IN VAIN many times to get Mrs. Obama to acknowledge the autism epidemic and to act. She never did. So, thank you to President Trump for his work so far. But know that this press announcement seems in part to have been left over from the last administration.... It straddles the worlds of neurodiversity and tougher talk. We won't punish progress, but I need to see real progress. Kim
WORLD AUTISM AWARENESS DAY, 2017
- - - - - - -
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
On World Autism Awareness Day, we highlight the importance of addressing the causes and improving the treatments for autism spectrum disorders (ASDs). We also recognize the importance of identifying ASDs early in a child's life and of understanding the obstacles faced by people living on the autism spectrum. Together, we celebrate the many ways individuals with ASDs enhance our daily lives and make priceless contributions to our schools, workplaces, and communities.
Autism spectrum disorders affect an estimated one out of every 68 children in America. Individuals and families living with autism come from diverse backgrounds. These families face enormous challenges in assisting their loved ones over the course of their lifetimes. As those with ASDs reach early adulthood, families are often faced with even greater obstacles than during childhood, including planning for the successful transition into adulthood and independent life.
We are hopeful that our Nation's efforts will result in significant advancements related to autism diagnosis and treatments in the months and years ahead. Ongoing efforts to scan the human genome carry significant potential to better manage the disorder and, ultimately, find a cure. My Administration will continue to work with the Congress to implement the 21st Century Cures Act and help to clear the way for breakthroughs in medical science. Together, we will turn scientific discoveries into real solutions for people with complex health issues like autism.
Cutting edge therapies and lifelong treatments can impose enormous burdens and expenses on the families of people with autism spectrum disorders. I applaud the efforts by Members of Congress to enact tax-free savings vehicles for families of people with disabilities and ASDs. I also encourage the ongoing public-private efforts to develop new technologies to prevent wandering and keep individuals with ASDs safe.
For generations, men and women living on the autism spectrum have made extraordinary contributions in the fields of science, technology, art, literature, business, politics, and many other professions.
Yet the world still has a great deal to learn about ASDs. We must continue our research to improve early identification and intervention, strengthen our comprehension of the disorder, and open opportunities for every member of our society to live independently and live the American Dream. My Administration is committed to promoting greater knowledge of ASDs and encouraging innovation that will lead to new treatments and cures for autism.
NOW, THEREFORE, I, Donald J. Trump, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim Sunday, April 2, 2017, as World Autism Awareness Day. I invite all Americans to Light it Up Blue, which Melania and I will do at the White House. I call upon all Americans to learn more about the signs of autism to improve early diagnosis, understand the challenges faced by those with autism spectrum disorders, and to do what they can to support individuals with autism spectrum disorders and their families.
IN WITNESS WHEREOF, I have hereunto set my hand this
thirty-first day of March, in the year of our Lord two thousand seventeen, and of the Independence of the United States of America the two hundred and forty-first.
DONALD J. TRUMP
By Dan Burns
Here’s a teaser the TV sitcom series I’m writing, “Saving Zero.” My writing partners are Sandra Williams, theater director and Artist in Residence with the Oklahoma Arts Council, and Robert Reynolds from the Actors Studio, NYC. We’ve outlined a full-season series of 22-minute episodes and are scripting three episodes on spec. We’re looking for a producer.
I’m writing this based on my experience as a co-founder and fundraiser for a group home in Austin, Texas. In my sitcom, Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. But Zero, a new arrival at Hope Ranch, has no intention of working. He intends to sabotage the ranch and pursue his destiny.
Maybe you’ve seen “Speechless,” comedy series about a mom on a mission who will do anything for JJ, her eldest son with cerebral palsy. Like Speechless, my series focuses on the struggles facing staff and ASD residents at the Ranch.
Josh -- father of Benjy, a 25-year-old son with autism -- intends to establish an archipelago of group homes, ranches, and villages where teens and young adults with autism can find or create jobs. In this scene Josh takes on a charismatic and possibly pathological teen.
SAVING ZERO: DEAD PRESIDENTS’ CASH BOX
EXT. GRAVEL PARKING AREA BEHIND STAGE – DAY
A Pontiac GTO hardtop gas-guzzling muscle car ROARS into the gravel parking lot and pulls up beside JOSH. HOLD ON the driver, DR. BUCK SANDERS -- bolo, goatee, straw cowboy hat. Beside him is LULU, a bored teen, LIPSTICK in one hand, CELL PHONE in the other. The DEAD PRESIDENT’S CASH BOX is between her knees. Sander’s hand is on her leg.
BUCK (to Josh): Are you in charge here?
JOSH: About as in charge as I’m gonna get. (extending his hand) I’m Josh Jackson. Chief Fundraiser.
BUCK: A good man.
JOSH: You are . . .?
BUCK: Dr. Buck Sanders, Professor of Agronomy, Small Grains.
ZERO (from the back seat, unseen): He makes wice have sex.
BUCK: Will you shut up? I’m trying to have an adult conversation.
JOSH: What’s the problem?
I walked through the long spacious corridor feeling like each one of my senses was being violated. The music was pumping around me so loud like I was in a nightclub. I started to feel that tense welling up feeling like I was about to cry just after I discovered how little has changed in 10 years. I remember going to this mall when Dylan was a baby when he had the entire world ahead of him. He used to look at me, smile, practically beg for my attention. Then I remembered the last time I took Dylan here about 10 years ago was when he was just starting to unravel into the abyss of autism. That day he ran through the mall laughing, not responding to his name and he kept running away for me. I remember being perplexed by the marked change in his behavior. I had no idea what was happening. Now I am in this same mall killing time while I wait to go pick him up my twelve year old at his special needs school that is 45 minutes from my home in New York City. We had to abruptly transfer to this school mid-year.
As I walked out the double doors and the smell of perfume and makeup started to dissipate into a faint memory the tears came flooding down my face just as the rain was also pouring down on me with such force.
Finally I made my way across the expansive parking lot to my car and got out of the of the rain. I let out a huge exhale as my body abruptly hit the leather seat, which seem to release enough of the tension with my emotions that I wouldn't keep crying. I sat there and waited a few minutes in my car and just watched the rain pound down on the windshield. I kept waiting till I had the will to get back to the reality of my life. It's a very different reality than the one I thought I would have.
It was April of 1943 when Dr. Leo Kanner, arguably the leading childhood psychiatrist of the day, wrote the words in the journal The Nervous Child that changed the rest of us, and the month of April, forever.
“Since 1938, there have come to my attention a number of children whose condition differs so markedly and uniquely from anything reported so far, that each case merits – and I hope, eventually receives – a detailed examination of its fascinating peculiarities.”
At that time, Dr. Kanner was an immigrant who had lived on two continents in multiple countries; was fluent in two languages; and had just written the authoritative and exhaustive guide on all things related to childhood psychiatry in 1935. Because of his research, he was the premier expert in the country that the first 11 families of children later diagnosed with autism ever came to for help and why.
The fact that he had just written and published a book on the subject only 8 years prior to making this extraordinary statement; that he was almost 50 years old and had lived on two continents when he did; and that he was announcing to the world in fancy academic language,
“Hey everyone, there’s something NEW here…and PECULIAR… and FASCINATING…. and I’VE NEVER SEEN IT BEFORE…. and I’m an authority on this stuff… and I’m going to give it its own name because of it…”
Because, as our beloved Dan Olmsted and so many others have said for over a decade now, if he was right and autism was new, it cannot be genetic. Something in the 1930’s in two very specific parts of the world actually, the United States and Austria, changed. And that’s really only a handful of things.
And likewise, if he was wrong, he simply gave a name to a human condition that’s always been with us. In other words, he was expert enough to get to name it something new that we still call it, but too ignorant to realize it wasn’t. (Think about how ridiculous that logic is. Never mind. Don’t. It hurts.)
A condition that nobody, including himself, bothered to name, discuss, or identify prior.
That isn’t expressly written about anywhere in medical or folk literature beforehand.
That no one over the age of 40 today ever heard of until the late 1980’s.
Because it was new, but not new, don’t you know?
We just didn’t call it that for 70 years even though it had a name.
Because doctors were incompetent.
Like every school and every teacher.
And every parent.
So we didn’t diagnose it.
And then we misdiagnosed it.
And now we over-diagnose it.
And hordes of misdiagnosed folks were institutionalized.
While they also worked for NASA.
And got married.
And then they died.
(Oh, God, it did make my head hurt. Damn it.)
There’s a word for this kind of rationalizing. It’s called “DENIAL”. And each and every one of us has experienced it at least once in our lives. I can think of at least 3 times in my own life, the regression of my daughter being the first instance that comes to mind.
Denial has a certain sound and a certain language all of its own. It makes things complicated that aren’t complicated. It insists there is an exception to the rule. It speaks in circles and contradictions. It cloaks itself in mystery and layered explanations.
NOTE: We're often approached by sites to link to their content. And usually we say, "No thanks," as the content isn't in keeping with our mission and we're not here to make other people money. However, this request looked like it might be valuable to our readers, so we're sharing, despite its commercial provenance. Ageing and finances are a topic of angst for most everyone - but with a kiddo on the spectrum? Oy. We're often far poorer than we would have been had we not had to pay the autism penalty, and many of us are just plain broke. But there are families with money (God bless you) and managing it for our kids is important.
As people grow older, especially parents, they begin to think about the future, and how their children will be provided for after they’re gone. For parents of children without developmental disabilities, this is easier, as those children can typically provide for themselves.
Alycia Halladay, PhD, recently posted an essay on the “STAT” website entitled “Let’s Focus on the Real Environmental Factors Linked to Autism.”
Dr. Hallyday made myriad factual errors in her post. Thimerosal was never “exonerated.” Ethylmercury is not harmless. Thimerosal can and DOES accumulate in some people’s brains. Many people, especially boys with a family history of immune disorders cannot efficiently excrete ethyl mercury / Thimerosal. This subset of boys have highly sensitive central nervous systems (Herbert, Deth) poor methylation abilities and suboptimal immune systems. Tragically this subset of children are unusually intelligent (Deth) and are robbed of this gift via Thimerosal induced brain damage. This cohort falls under the umbrella of regressive autism. These are infants and toddlers who reached all milestones on time, but usually ahead of schedule, yet experienced a catastrophic loss of skills and speech after a severe adverse vaccine reaction.
Essentially no one, except a fool, would knowingly and willingly allow their child, especially their infant (pre 2004 all newborns injected w Thimerosal via the pointless and dangerous Hep B vaccine), to be injected Thimerosal. Like many parents, I assumed all the Hg was taken out of vaccines in 2000, big mistake, it wasn’t. As far as Hallyday’s grossly erroneous claim: “there is no evidence Thimerosal is dangerous” please take a peek at the following THIRTY studies. There are about thirty more I could have included, but you get the point.
A final caveat before you read the list. It is about 100x harder to get a study criticizing a vaccine published, than a study claiming Thimerosal is safe, published. The double standard is beyond belief. One might have an “I love Hg!” study rife with financial conflicts of interest, substitution errors, type I and type II errors and even basic arithmetic mistakes but almost any journal will publish it. One might have a study critical of thimersol that is perfection, checked, double checked, case controlled, blinded, extensively footnoted and still maybe one in 20 journals might have the courage to publish it. All of the published peer reviewed research listed below had to meet the the highest possible scientific bar in order to make it to print.
“Autistic child and unaffected sibling exhibit hypersensitivity to Thimerosal, “ Baskin D et al, 2013.
“Prenatal exposure to Thimerosal persistently impairs the serotonergic and dopaminergic systems in the rat brain,” Narita, M, et al, 2012.
“Suppression by Thimerosal of ex vivo CD4 T cell response to flu vaccine and induction of apoptosis in primary T cells,” Gourgeon, M, et al, 2014.
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Sadly, Jessica Wapner and Newsweek fail to tell us ANYTHING about what actually went on at the National Press Club meeting. If there were fifteen speakers, including Robert Kennedy, Jr., shouldn’t we hear something that they had to say?
(The video did nothing to add to the story.)
Shouldn’t Newsweek have covered the event, not just the rally outside?
The one statement that said volumes was this: “The stated purpose of the event is to protest the biased media coverage, exploitation by the pharmaceutical industry…”
That charge of “biased media coverage” would of course include Newsweek and all the other mainstream news outlets who’ve never honestly and thoroughly covered this controversy.
By Jessica Wapner
Vaccine fears are on display today in Washington, D.C. A group called Revolution for Truth is leading an anti-vaccine event that includes a rally outside the National Press Club and talks by at least 15 speakers. The day will culminate with a speech by Robert F. Kennedy Jr., an outspoken opponent to vaccines and founder of the World Mercury Project. The stated purpose of the event is to protest the biased media coverage, exploitation by the pharmaceutical industry and government protection that, the group says, perpetuate the use of what it says are dangerous inoculations.
By Cathy Jameson
Today is April 2nd. For our family, it’s not a day we celebrate. For us, it’s just another typical day in April. Typical days in our house include taking turns keeping a watchful eye on Ronan. He’s 14-years old, non-verbal, and severely delayed. Each day, we make sure Ronan doesn’t wander, we make sure when his diaper is full that it is immediately changed, and we make sure he doesn’t have any seizures. If he does have seizures, like he did several times last week, we make sure we’re ready to administer emergency medicine to make them stop. It’s challenging, but we do everything we can to keep Ronan safe. We also do what we can to educate others on how debilitating regressive autism can be. Some people close to us appreciate how very difficult life is for Ronan and for us. For that, we are so incredibly grateful! For those who have zero understanding and who chose to insult families like mine instead, which has happened, no amount of awareness will help them understand just how debilitating autism can be.
As soon as Ronan’s little brother got in the car, he said, “Mom, I need to tell you something that happened at school today.”
“Sure, buddy. What is it?” I asked.
He said, “I don’t want to say it in front of the girls.”
A sinking feeling came over me. My usual upbeat kid was visibly shaken. “Okay. Let’s get home and then we can talk.”
While Ronan’s little girls chatted in the backseat, Willem and I sat in silence. Half-way home, he spoke up, “Mom?”
“Yeah, honey?” I said.
“I guess I can tell you now,” Willem replied.
“Are you sure? We can wait until we’re home if you want,” I offered.
“No, I think they should hear it too,” he answered.
“I was in class and we were playing a game where we had to go up to the board and write the answer to a question the teacher asked. It wasn’t my turn, so I was sitting in my chair when another kid walked past me on his way up to the board. He came up to me and pushed me hard. He didn’t say anything, just pushed me. After he wrote the answer on the board, he started to walk back to his seat. He walked near me again on his way back, so I asked him, ‘Why did you do that?’ He didn’t say why he shoved me but he said, ‘Well at least I don’t have a brother with autism.’ Mom, why would he say something like that?”
Dumbfounded, I couldn’t answer.
Taking a minute to process what I’d just heard, I asked, “So you didn’t provoke him?”
He said, “No.”
Easily I could’ve been filled with rage. But what came over me was sheer sadness. Then tears. Then more sadness.
I needed more information, so I wiped my eyes and quietly said, “Go on. What happened next?”
Willem said, “I got really sad.”
“I bet you did,” I replied.
I then asked, “Where was the teacher during all of this?”
Willem gave me more details.
“The teacher had his back turned when I got pushed, and he didn’t hear what the other student said to me. My friends in the class saw that I was upset and asked me what happened. Since they’ve known Ronan a long time, they were just as shocked as I was to hear this other classmate say something like that. That class was almost over, so as soon as it ended, I talked to the teacher. I cried a little bit when I told him what happened.”
Oh, my heart. It ached.