By Katie Weisman, for the SafeMinds’ Research Committee
Thanks to Mark Blaxill and Cynthia Nevison, PhD for the graphs.
On March 28th, thousands of media outlets released the new US autism prevalence numbers of 1 in 68 in 8-year-olds born in 2002 and counted in 2010. These children are 12 years old now. What was glaringly lacking in the media coverage was any critical thought about that actual data, any sign that reporters had actually read the new report or any sign of urgency on behalf of our children.
The CDC’s take away messages were as follows:
1) We’re reporting a 30% increase in autism in 2 years, but you don’t need to worry because these kids have always been here. We are just better at counting than we were before.
Comment: There has been a 37-fold increase in reported autism spectrum disorders in the past 30 years – which would be about 1984, hardly the dark ages. Do you really believe that there were this many kids with autism around when you were young? The prevalence was 1 in 2500 in the early 80s or .4/1000; as of this month, it is 14.7/1000. The CDC has yet to conduct a population-based count of people with autism of all ages and severities which would lay this issue to rest. We should all be asking why they haven’t. They continue to say that they still can’t be sure if the increase is real – over and over again – for the past decade.
2) It looks like the kids are getting milder – they have less intellectual disability (ID) – and it’s due to broader diagnosis.
Comment: Up until the 2006 data, the ADDM reports only stated the percentage with IQ’s below 70, which were stable (on average) in the early reports (see chart 1) but the averages masked a wide spread in the actual percentages by state. Breakdowns into three categories of ID started in the 2008 data. The percentage of children diagnosed with autism in the newer reports (see chart 1) is consistent with the percentage with ID in the older reports, but the CDC did not supply data on diagnostic categories in the past. What is unclear is what is driving the change in the ID of the children. Are we seeing children who still have autism but are less language impaired?
3) There is no possibility that autism and vaccines are connected because the numbers are still going up.
Comment: Assuming that there is, in fact, a smaller percentage of ASD children with Intellectual Disability, those shifts do correspond to the beginning of the phase out of thimerosal in vaccines, which is a plausible explanation as well – but one CDC doesn’t mention. Thimerosal reduction in the recommended childhood vaccine schedule (HepB, Hib and DTaP) started in 1999 and it was phased out over several years. However, shortly thereafter, in the 2002-2003 season, the CDC started encouraging flu shots (most of which contained thimerosal) for infants 6-23 months and in the 2004-2005 flu season flu shots were formally recommended for all infants starting at 6 months of age. Meanwhile, the CDC and ACOG also added influenza vaccines (most of which still contained thimerosal) to the recommendations for pregnant women in all trimesters in 2004. This FDA letter makes clear that thimerosal-containing infant vaccines would still have been administered throughout 2002 – the birth year of the current ADDM report but at amounts, on average, probably less than in the 2000 birth cohort. The exposure to any particular child is an unknown without checking their history.
4) If you are a young parent, check out our website to learn the signs of autism and talk to your pediatrician if you have concerns. Early intervention is the answer.
Managing Editor's Note: Below is an excerpt we encourage you to share from Megan, of the LivingWhole site. From her bio, I have a degree in Political Science, a law degree, and am a Naturopath, Certified Natural Health Educator, Registered Power Yoga Instructor, writer, and stay-at-home mama. My better-half holds a biology degree, chemistry minor, is a Family Practice Physician, and is a Captain in the United States Air Force. Together we have four kids under three; and yes, we plan to have more. We encourage you to bookmark LivingWhole.org.
I am sick of it – this vaccination debate. My convictions not to vaccinate have been firm for six years now and I was comfortable living a low-profile life and letting other more notable activists carry the torch; and then I started seeing misleading t.v. interviews, news stories, and backlash against parents and unvaccinated children. I saw reputable medical professionals get crucified and reputations destroyed for questioning the mainstream norm. I saw laws passed in other states removing freedoms that rightfully belong to parents and individuals as a whole. I saw fear, blame, finger-pointing, lies, and flat out hate being propagated and encouraged by people, physicians, and popular media avenues towards parents who don’t vaccinate, and their children.
This isn’t a vaccination debate, it’s a hate debate, so let’s call it what it is. And when it got personal, I got involved. Most importantly, I felt the need to clear a few things up:
I am not an “anti-vaxxer” or a “disinformation activist.”
I am a parent. Some people believe that parents can’t make an educated decision on this issue, that you should check all of your questions and reservations about vaccinating at the door and trust your physician, that is unless your physician also questions vaccines (or supports a delayed schedule), then he’s a quack.
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
April 16, 2014, CBS Sacramento: UC Davis Finds Link Between Autism, Mental-Health Drugs During Pregnancy
April 16, 2014, CBS 6, Albany, NY: Doctors Say There is No Evidence Proving Vaccines Link to Autism
April 16, 2014, Sacramento Bee: Number of Sacramento County autistic students doubles over six years
In the small hours US time I posted a comment on ABC News’s Duffy Peterson story Home> Health Mom Whose Child Died After Catching Chicken Pox Advocates for Vaccines.. Tragically her daughter Abby, who was born without a spleen and was therefore immune compromised, died from chicken pox, and Duffy has become the latest weapon in the war of the vaccines (or perhaps against the reputation of Jenny McCarthy). I wrote:
It is always very troubling when one of set of parents is being manipulated against another set. But it is also intolerable if children are being loaded with a burden of unquantified risk on the basis that they are protecting other people, and very often they are not really - for instance, the nasal flu vaccine where the manufacturers insert warns that the recipient must not come into contact immune compromised persons for weeks after receiving the vaccine : in the UK this is set to be rolled out for all school children this autumn. The only consistency from people who actually don't care about anybody's child is that it is siphoning off huge amounts from the public purse to benefit big business (note Fluenz is identical with Flumist in the US).
Another blatant example is chicken pox vaccine where it has been known for a very long time that the harm in mass vaccination is much greater than the benefit (even before we get to the side effects)
What, of course, is required is a return to the ethic of ‘Primum non nocere’ (first do no harm) and the greatest care to be taken with all children.
It is worth noting that these fully justified comments were supported by (1) the manufacturer’s own insert for Fluenz/Flumist and (2) a report from the British government’s Health Protection Agency (in the UK the chicken pox vaccine is still not on the schedule). Despite this the comment was removed within minutes.
Note: We have covered the strange case of fugitive from justice Dr. Poul Thorsen (Principal Investigator on the Danish Autism Studies, indicted on 22 counts of wire fraud and money laundering by a U.S. Federal Grand Jury) at AofA:
Autism Researcher Poul Thorsen Indicted
Round 2: CDCs Poul Thorsen Lying in Plain Sight
First Fraud: Dr. Poul Thorsen and the original “Danish Study”
Poul Thorsen Called Industry “Scumbag” Scientist and Mercury Shill
WANTED BY THE FEDS: Poul Thorsen, Who Helped Pull Off CDC Vaccine Autism Heist
Three years after his indictment, here is follow up from Safeminds:
Dr. Poul Thorsen, Principal Investigator on the Danish Autism Studies, extends his unwarranted freedom from prosecution as another anniversary on his indictment for 22 counts of wire fraud and money laundering by a U.S. Federal Grand Jury passes on April 13.
SafeMinds calls upon the US Department of Justice and the US Department of State to bring Dr. Thorsen back to the United States and to justice. We also call upon Chairman Darrell Issa and the House Committee on Oversight and Government Reform to take up this issue as an oversight activity this year. We believe this warrants a Congressional hearing to understand this failure to fully address the allegations, to determine if others at the Centers for Disease Control and Prevention (CDC) were complicit, and to address the failure of the CDC and the scientific community to investigate all of the studies from this project while holding current findings in deferral until fully investigated.
Following Thorsen’s indictment in 2011, SafeMinds issued a statement calling for an independent review of vaccine/autism research for data manipulation and conflicts of interest. To review those comments, click HERE. A year later a full report delivered to Chairman Issa, the Committee and other members of Congress outlined the issues. For that detailed report on Poul Thorsen, click HERE. In 2013, the Office of Inspector General at the Department of Health and Human Services (HHS/OIG) elevated Thorsen to the top of their “Most Wanted” List. Information from the OIG may be viewed HERE.
A Brief Background on the Indictment: The Criminal Indictment No. 1:11-C R-194 United States of America v. Poul Thorsen states that beginning around February 2004 and continuing through February 2010, that Thorsen ‘aided and abetted by others known and unknown, did knowingly devise and intend to devise a scheme and artifice to defraud and to obtain money and property by means of materially false and fraudulent pretenses, representations, and promises and omissions of material facts, well knowing and having reason to know that said pretenses, representations and promises were and would be false and fraudulent…’ The indictment provides that Thorsen submitted false invoices and created private invoices (from a CDC laboratory using false signatures). He is alleged to have stolen more than $1 million from a CDC grant to Denmark he helped establish while working at CDC. If convicted on all counts, Thorsen could face up to 260 years in prison and $22.5 million in fines.
Managing Editor's Note: Thank you to Elizabeth Hart for allowing us to print and excerpt of and link to her Over-Vaccination: Challenging Big Pharma's lucrative over-vaccination of people and animals site. You can read the full post Questions about vaccination policy and ethics for the NHMRC.
On 15 April 2014, I forwarded a letter to Professor Warwick Anderson, CEO of the National Health and Medical Research Council (NHMRC).
One of the functions of the NHMRC is to provide ethical guidance on health and medical research issues.
In my letter to Professor Anderson, I suggest the ethical spotlight needs to be shone on the way vaccination policy and practice is being implemented in Australia, and I provide examples of the lack of transparency and accountability in the vaccination bureaucracy.
In particular, I raise the problem of potential conflicts of interest and lack of disclosure by people involved in vaccination policy, followed by an example of parents being coerced into having a vaccine product for their children (i.e. the live Measles/Mumps/Rubella (MMR) vaccine second dose) without being properly informed about this vaccine, and their options.
See below my letter to Professor Anderson:
15 April 2014
RE: Vaccination policy and practice in Australia
Professor Anderson, one of the functions of the NHMRC is to provide ethical guidance on health and medical research issues.
I suggest the ethical spotlight needs to be shone on the way vaccination policy and practice is being implemented in Australia, and I request that you urgently address this matter.
In this regard, I provide two examples of the lack of transparency and accountability in the vaccination bureaucracy.
1. Potential conflicts of interest and lack of disclosure
Various committees and groups provide advice to the Australian Federal Government on vaccine products which can result in the addition of new vaccine products to the national vaccination schedule.
These groups wield enormous power. The members of these groups are part of a process that results in effectively mandating medical interventions (i.e. vaccinations) for healthy people. The decisions these people make affect not only children and adults in Australia, but can also impact internationally as the ripple effect of their decisions spreads around the world.
Thank you to Anne Dachel for commenting on this story from US News: One Dad's Story: How Arthur Fleischmann Copes With His Daughter's Autism.
What's the hardest part about being Carly's dad?
What keeps me up at night is not knowing what the future holds. And maybe that's true for all our kids, but in most cases, you see a clearer trajectory for your child. In many ways, Carly is forging new paths for people with her condition. There are no real role models she can follow, or systems or processes or careers or financial plans laid out for somebody like her. If she was more disabled, it would be horrible, but there would be a course of life for her that would involve some sort of group home or something. If she were more able, she could live independently and make a living and support herself. But because she's this unique combination of bright, creative, driven, but severely challenged, I don't know what one month to the next will bring. . . .
What progress and change would you like to see?
What I find frustrating is that there are no comprehensive federal programs that support these individuals from childhood to adulthood. There's a spotty, patchwork series of support, but you need a lifetime plan and a lot of individualized planning.
With epidemics such as cancer and diabetes, there are fairly comprehensive programs and guidelines and support. This is battle by battle. At the same time you're trying to raise these kids - who are so exhausting and tiring - and you're so beaten down, you're also trying to battle with the government and local agencies to get the support you need. You're victim and advocate and front-line staff. You're caught in this quicksand, and it's brutal. If it were a one in a million instance, you could say, "OK, it's brutal, but fortunately it's just one in a million kids." But now the statistics suggest it's higher than some illnesses that get much more attention
Arthur Fleischmann is worried about the future for his daughter. I've never met an autism parent who isn't. The simple reason for this is that no one can show us a comparable rate of autism in the adult population currently.
It is with great excitement and enthusiasm that we announce the formation of Health Choice, a new health-focused, non-profit organization. Health Choice has two main objectives: promoting the right to individual health choice and standing up for victims of medical injury.
Drawing on the expertise of many professionals from the autism and health advocacy world, Health Choice will strive for better health policies and more reasonable laws surrounding health decisions. Health Choice will also investigate wrongdoings in these areas.
“There are many great advocates who have eagerly joined the Health Choice cause. We have advisors from several different areas including science, legal, and medical,” said Jennifer Larson who serves on the Executive Leadership Team.
Through Health Choice’s website, newsletters and media appearances, this organization will focus on educating citizens about the many different options in treating or sometimes even not treating certain health conditions. Health Choice will also recognize medical injuries certain groups have sustained. We will advocate for the injured and try to prevent these injuries from happening in the future.
To find out more about Health Choice, please visit our website. Make sure to join Health Choice and find out how you can help protect your right to a healthy life!
Follow us on Twitter at: @ForHealthChoice
Like us on Facebeook: Health Choice
Bookmark our site: HealthChoice.org
Director of Communications
Along with Health Choice’s Executive Leadership Team:
Mark Blaxill, Dan Burns, Patti Carroll, Allison Chapman, Teresa Conrick, Lou Conte, Anne Dachel, Laura Hayes, Rolf Hazelhurst, Kent Heckenlively, Nancy Hokkanen, Cat Jameson, Jennifer Larson, Maureen McDonnell, Julie Obradovic, Dan Olmsted, Sylvia Pimentel, Wayne Rohde, Kim Stagliano, John Stone, Kim Mack Rosenberg, Laura Rowley, Andrea Ruppert, Ginger Taylor, Katie Weisman, Dawn Winkler
Advisory Group Chair
U.S. Congressman Compares Corruption in CDC's Vaccine Safety Studies to SEC's Handling of Bernie Madoff Scandal. Congressman Posey Has Strong Words for Government Agency: "I think the CDC Should Be Investigated."
WATCHUNG, N.J., April 16, 2014 /PRNewswire-iReach/ -- In an April 8 interview on AutismOne's A Conversation of Hope radio show, Congressman Bill Posey's strong resolve and demands for transparency were evident as he discussed the Center for Disease Control (CDC)'s handling of vaccine safety studies which affect "our most precious resource in our nation – our children." The 30-minute interview, conducted by vaccine industry watchdog, PhD biochemist Brian Hooker, delves into what Posey called "the incestuous relationship between the public health community and the vaccine makers and public officials.
The Florida legislator, known as "Mr. Accountabililty," did not mince words when criticizing current and past CDC officials including indicted fraudster Dr. Poul Thorsen; CDC director turned Merck Vaccine President Dr. Julie Gerberding; and the agency's current spokesperson regarding autism and vaccines, Dr. Coleen Boyle.
On Thorsen, Posey said "If you read through the emails and learned about the meetings and the financial arrangement this crook had with the CDC, it will make you absolutely sick to your stomach. This was no casual researcher way down the line. This is the CDC's key man in Denmark. He was closely tied to the CDC's top vaccine safety researchers… as long as Thorsen was cooking the books to produce the results they wanted, they didn't care whether the studies were valid or how much money was being siphoned off the top…It's like the Security and Exchange Commission and Bernie Madoff. But it's worse because we're talking about someone who basically stole money that was supposed to be used to improve the health and safety of our most vulnerable in our society – our young babies."
By Teresa Conrick
The microbiome keeps coming up daily in the world of science and health. How is it involved in regressive autism? What is regressive autism?
Children with an ASD who lose skills (e.g., social interaction and communication) have become known as a subgroup called regressive autism or late onset. Regressive autism usually refers to a child where parents report an early history of normal development for 12-24 months which is followed by a loss of previously acquired skills. Individuals with ASD often suffer from gastrointestinal (GI) disorders (e.g., diarrhea, constipation, bloating and gastro-esophageal reflux) [2,3]. Fecal Microbiota and Metabolome of Children with Autism and Pervasive Developmental Disorder Not Otherwise Specified
”By 1985 the incidence of regressive autism had equalled that from birth. By 1997 both types had increased although the regressive form was now >75% of the total occurrence. This suggests that an acquired condition was overtaking birth defects or purely genetic conditions……In the vast majority of cases, the emergence of autistic indications appears to happen in children who had developed normally[10,13,14], and before three years[15,16.]” What is regressive autism and why does it occur? Is it the consequence of multi-systemic dysfunction affecting the elimination of heavy metals and the ability to regulate neural temperature?
“About one in three children with autism abruptly lose language, social or other developmental skills in their second year of life…..The results come from the synthesis of 85 studies published between 1980 and 2010 that examined regression, and include nearly 30,000 participants diagnosed with an autism spectrum disorder.” SFARI: Regression may mark one-third of autism cases
Please join us in welcoming Sargent Goodchild and his neurological reorganization program called Active Healing to the AofA family. Sargent was the very first provider I met who told me about biomedical treatments, diet, and a wide range of therapies that could help my girls improve their functioning. He has presented at Autism One and across the country at conferences. Kim
Neurological re-organization (NR) honors and integrates the natural order of human development. NR uses a prescribed set of repetitive movements to remap your child’s neural pathways. Just as traffic is rerouted around damaged sections of road, NR strengthens existing neural pathways around damaged or underdeveloped parts of the brain.
April 15, 2014, CBS News: Some companies see opportunity in autism
April 15, 2014, ABC News: Mom Whose Child Died of Chicken Pox Advocates for Vaccines
April 14, 2014, USA Today: Leave parents free to choose vaccines
April 14, 2014, Florida Today: Leave parents free to choose vaccines
April 14, 2014, Boston Herald: Proposal calls for new strategies on autism
April 14, 2014, NPR Boston: Autism: Awareness Helps, But What We Really Need Is Knowledge
April 14, 2014, CBS News: Antidepressant use in pregnancy linked to autism risk in boys: Study
April 14, 2014, Indianapolis Star: No medical research proves vaccine, autism link
Panelists Rolf Hazelhurst, autism parent and attorney, Jim Moody, attorney, Aidan Quinn, autism parent and actor, Rob Schneider, autism parent and comedian, Mike Guido, autism parent and comedian, Jeanna Reed, autism parent, co-founder Autism Is Medical, and moderators Dr. Andrew Wakefield and Jill Rubolino, autism parent, co-founder Autism Is Medical sharing their experience with autism and regression post vaccination in a powerful and poignant way at the Give Autism a Chance conference in Austin, TX on April 12, 2014. Dr. Andrew Wakefield moderates the panel with his British aplomb and even handed determination. "Welcome to the calm, quiet world of autism and vaccines. Hello to the trolls online." Classic Brit wit.
View more videos at The U-Stream channel.
The video of the autism vaccine panel starts at 2:39 minutes. There's plenty to watch before that start, however. Enjoy.
Video streaming by Ustream
The panel continues here:
Video streaming by UstreamAlso, from Give Autism a Chance: Our amazing #GAAC live stream was produced by Light Strike Productions in association with Blind Monk Productions. Huge thanks to Jeremy and Roderick for a top notch production. Videos are still available for viewing at www.ustream.tv/theautismtrustusa
To reach our video team directly, visit their websites at:
Note: Here is an easy to use action alert to ask Dr. Paul Offit's bosses to request that he stop making "stuff" (another word would fit well) up about autism - as a distraction for the epidemic and to protect his industry land connections. Click HERE.
Offit: "When you have autism, you are born with autism"
Ask Offit's bosses to stop him making stuff up
In a recent interview with Medscape (www.medscape.com/viewarticle/822981) millionaire vaccine industrialist and spokesman, Paul Offit, MD, pretends that he knows that autism begins before birth, which denies that autistic regression occurs, “When you have autism, you are born with autism. There is no changing that, and to some people, that is helpful to know.” We thought this might come as a surprise to many people who watched their healthy child regress into autism, and anybody who follows autism research.
Offit promotes himself as one of America’s leading authorities on autism, even though, like most parents, he has no professional training in autism. Which may account for him saying things that have no foundation in either the medical literature, or the experience of hundreds of thousands of people. And he has several jobs at very prestigious institutions, which one would hope would value a close adherence to truth and known facts. Offit is the Maurice R. Hilleman Professor of Vaccinology, and Professor of Pediatrics at the University of Pennsylvania, and Chief of the Division of Infectious Diseases, and the Director of the Vaccine Education Center at the Children’s Hospital of Philadelphia.
April 12, 2014, Chicago Sun Time: Jenny McCarthy: The gray area on vaccines
April 12, 2014, TooFab.com: Jenny McCarthy Speaks Out About Getting Slammed for Anti-Vaccine Crusade
April 12, 2014, TIME: That Moment When You Must Have a Word With Jenny McCarthy
April 11, 2014, Disability Scoop: Groups Want Federal Autism Dollars Reallocated
April 11, 2014, Costa Mesa (CA) Pilot: Parents, vaccinate your kids
April 11, 2014, Salem (OR) News: A Voice of Sanity About Childhood Vaccines from a Respected Nephrologist
April 11, 2014, The Atlantic: 1 in 68 Children Now Has a Diagnosis of Autism Spectrum Disorder. Why?
April 10, 2014, Washington Post: We need a better explanation for the surge in autism
Managing Editor's Note: We have no idea how Dr. Offit is getting away with his statement that regressive autism does not exist. In fact, The DSM-V revision pays close attention to regressive autism - and includes the following: During the ensuing discussion, it was pointed out that regression may be a more common feature of autism than was previously thought with some prospective studies indicating that a loss of skills is the rule rather than the exception. In regressive autism, the skills are lost in the second year of life, while in “early onset” autism, skills are lost in the first year of life. To deny the very children who now make up Dr. Offit's livelihood as an "autism expert" (sorry about the beverage you just snorted across your keyboard or Smart phone...) is one of Dr. Offit's more callous and disconnected statements to date. He has no concept of our children. They are merely arms and legs with which to alter an immune system for profit.
By Cathy Jameson
When you have autism, you are born with autism. There is no changing that…”-Dr. Paul Offit
After hearing that statement, it was important to repost this piece. May it be a reminder to those who haven’t gotten the memo, and for those who refuse to read it, that yes, regressive autism does exist.
This post is dedicated to my friends’ children who have regressed into autism.
I used to love the month of April. Spring. Flowers. Sunshine. Warmth. My birthday. Yes, April was always a fun time for me. Now, I really can’t wait for it to be over. The autism “awareness” that takes over, the “new” autism numbers, the blue lights, the ridiculous autism studies that raise no alarms but blame autism yet again just Mom (or Dad’s) fault. With the 2014 numbers now 1 in 68, I’m done with April, and I’m done with “awareness”.
We have half the month to still get through though. What’s a dedicated mom to do? Scream? Give up? Give in? Walk away? A few weeks still linger in the month that now seems to take the longest to end. I have few days left to avoid the blue light special some big organization, I mean business wants to shine in my eyes blinding me with awareness while attempting to deflect the truth. Yep, I am ready to usher April right out the front door because May is around the corner. And, you know what May means? Well, actually it means nothing.
Autism will still be here, numbers will still be high and people will still need services that are unattainable. When we flip our calendar page to May I’m sure it’ll be back to the regularly scheduled autism hum drum diagnosis that just happens to happen with no mention of vaccines being remotely part of the national crisis that autism has become. But, who am I to have any sort of opinion when I counter the autism awareness campaign asking for autism action instead? I’m just seen as one of those anti-vax nutcases that the media and pro-vaccine internet bots love to hate.
I don’t like to be so negative, but no day is a good day for just awareness. In order to shake the negativity that creeps in this time of year, I decided to create my own agenda to step up the autism “awareness” effort within my circle of friends and family. I posted my own “NOT born with it” campaign after viewing a video of children who were also NOT born with it. It’s was a beautiful tribute to hundreds of children who were developing typically but later received an autism diagnosis. Parents of these children concluded that many of their “NOT born with it” making a point to state that their children were adversely affected by their vaccines.
I wanted to showcase my child’s picture too to those who follow my son’s story personally. My campaign included photos as well with the idea was to share pictures of Ronan from birth to present day. In the baby pictures is a cheery, happy, chubby, absolutely adorable typical baby. With each additional picture one can clearly see that my son’s facial expression changed. His regression is documented in each picture as is the progression of parts of Ronan’s life that have him looking like a lifeless, distant, sensory defensive, neurologically challenged, dependent child. Because on some days, he is exactly that.
Why do this? To torture myself with the reminders with what I had, with what could have been or with what should have been? No. I did it for one reason: because Ronan was NOT born with it. Autism regression is real. It exists. It is something parents need to understand can happen.
As hard as it was to add picture after picture noting the physical changes while remembering the cognitive delays and stagnation, I created the picture timeline and commentary to say that I should have known more but didn’t. I did it to point out that much of what happened to Ronan could have been prevented. I also did it because I wanted people to know that when they discount vaccine injury, they discount my child. I posted it to friends and family praying that this never happens to another child again.
I know some people don’t want to admit that they know regression can happen because of vaccines. But it does. Here is one child’s autism regression seen in a series of pictures:
Check out that smile, the eye contact and the total cuteness.
NOT born with it.
One of my favorites.
NOT born with it.
Making smiley smiles and babbly babbles.
NOT born with it.
I love this picture. Look at the happy. Look at it!
NOT born with it.
Mommy’s got her Revolution on for you!
NOT born with it.
Managing Editor's Note: I laughed like heck when I read these Onionesque parody excerpts by Katie about the New York Times and its atrocious coverage of autism. Feel free to create your own and submit it to our comments. Keep 'em clean! We'll choose a winner and you will get... hmm, an onion? (That's my Gianna laughing in the photo.)
By Katie Wright
SARS Epidemic Waiting to Hit the USA!
Do you sleep with waterfowl in your home? You will soon DIE of SARS! Join vaccine trials now! By, Anahad O’Donnor
“New York Times” Editorial by Gardiner Darris
ALL Americans must be forced to buy Paul Offit’s products or have their citizenship revoked! To parents of vaccine injured children -shut up! Don’t you know Vaccines Save LIVES! If you dare to question the sanctity of vaccines or speak about an adverse reactions other children WILL die and epidemics will return! Just to be clear no adverse vaccine reactions will NEVER be discussed in this newspaper, “The New York Times,” because Vaccines Save Lives! If over-vaccination ruins a life, that is too bad, those people don’t matter, because Vaccine Save Lives!
H1N1 PANDEMIC – We are all going to DIE, every person on earth, unless vaccinated- right NOW! By. Benedict Larey
1 in 68 American children now autistic. Parents groups are “scared” for NO reason! It the parents vs. the Research” By, Ananad D’Connor
The NYT Sunday Review, by Dr. Sam Wang
“Don’t Worry Be Happy= No Autism!” It’s not a disease, just stress! Listen, get over it 1 in 68 kids having autism is no big deal!
I was in the kitchen one afternoon searching through my emails when my oldest daughter walked in. She had just been outside on a gloriously sunny day with instructions to play until I come and get you. ‘Get back out there,’ I said while keeping my eyes locked on the internet. I needed the outside playtime to last hoping it would buy me some time to veg out, get some computer “work” done and to have a moment of silence from our constantly-busy schedule. ‘I have to use the bathroom,’ Fiona said while hurrying away.
Shaking my head at myself and the ever-growing list of things I needed to get done, I craned my neck and went back to searching for whatever it was I was looking for. I wanted to reply to an email before I was pulled in another direction. It’s nearly impossible for me to complete a full task in one sitting but I was determined to get this one done. Scratch that chance.
Fiona walked back by the kitchen as I had my hands hovering ready to type. “Mom,” she started. Ugh. Can’t I have any peace and quiet around here?! “Yes,” I answered as sweetly as I could. “Mom, when are you going to be done with all this autism stuff?”
Stabbed. Stabbed with guilt. My heart broken and my head hanging even lower, I raised it to look Fiona square in the eye and asked, “Why?” Fiona had her hand on the doorknob already and was about to jet back into the backyard. I didn’t want to be gruff or give her a long-winded, over her head answer so I asked her a question back. “Do you want me to stop reading about it?” Fiona looked at me with wide eyes, “NO!” she said emphatically. I went on, “Do you want me to stop writing about it?” “No, Mom. I just wanted to know when it’s going to be all done.” Fiona is eight. She’s only known her brother Ronan to be who he is with all his behaviors. She lives through the hours of therapy, the miles of driving, the pages of books, magazine and websites I read. She is very aware of the many things we do to make Ronan’s life easier so all of our lives are manageable. Fiona needed a quick, pat you on the back answer that promised only good things.
I took a breath and replied, “Oh, I guess I’ll be done when things get better for us, for Ronan and for other kids like him. It stinks that I have to do all this and I’m sorry it takes so much time. “Okay,” Fiona said. “Can you come outside? You said you would.” More stabbing pain in my heart. “I’ll be right there.”
By Dan Olmsted
Some say that claiming vaccines are the cause of the autism epidemic is like yelling fire in a crowded theater. I agree -- except this theater really is on fire.
By now it's an open secret that the current vaccination schedule is behind the soaring autism rate -- and a wide range of other chronic and developmental disorders. So many parents, front-line professionals and others have seen this with their own eyes, so many streams of evidence are converging to make this point, and so much desperation is on display from vaccine injury deniers, especially now during Autism Awareness Month, that it's just no contest any more. The task now is to hasten the day of reckoning, keep more kids from being injured, and bring justice, compensation and treatment to the injured.
Those who deny this reality end up sounding like Nazis -- ve vill vaccinate you! -- or just intellectually incoherent. They spout a lot of platitudes about autism awareness and better diagnosis and multiple mysterious genes and gene-environment interactions that, if they (and their spouters) ever had any relevance, don't anymore.
The goofiest part is when submissive scientists try to talk about environmental links to autism without talking about THE environmental link to autism -- the bloated CDC-recommended, state-mandated, pediatrician-provided vaccine schedule. Hence this from the Harvard Gazette this year:
"Toxic chemicals may be triggering recent increases in neurodevelopmental disabilities among children — such as autism, attention-deficit hyperactivity disorder, and dyslexia — according to a new study from Harvard School of Public Health (HSPH) and Icahn School of Medicine at Mount Sinai. The researchers say a new global prevention strategy to control the use of these substances is urgently needed."
This study lists two pesticides as among the likely triggers, and follows up on a 2006 study that also listed a handful of suspect toxicants, including methylmercury. Not ethylmercury, of course, since that brings us right back to the dreaded V word, ethylmercury being the prime ingredient in thimerosal. And thimerosal exposure almost tripled via vaccines at the same time the autism epidemic began around 1988. (It's still used in flu shots in the U.S., where it is recommended for all infants and pregnant women, and in multiple shots in developing countries thanks to the endorsement of U.S. Public health officials, WHO, and the Gates Foundation.)
But pesticides and mercury and vaccines and autism? Never the twain shall meet in the mainstream medical or media universe.
As it happens, Mark Blaxill and I triangulated those dots in a way that indirectly but (IMHO) elegantly links vaccines, pesticides, and autism from the very beginning. In our book, The Age of Autism -- Mercury, Medicine, and a Man-made Epidemic -- we showed how mercury was present at the creation of autism, causing the very first cases reported in the medical literature, in 1943.
The crux of our argument is that the three commercial vectors for the first exposures to ethylmercury in the 1930s -- via vaccines and pesticides, specifically the diphtheria shot, a lumber treatment and a plant fungicide -- are evident in those 11 families. The parents included a pediatrician mother who focused on public health and mass vaccination, one father who was a forestry professor and another who was a plant pathologist, in all three cases with documented exposure to the new ethylmercury compounds. This cannot be chance -- especially given the work of Safeminds linking mercury and autism symptoms, the absence of autism in the medical literature prior to 1930, and the coinciding explosion of ethymercury exposure and autism in the 1990s. (See our 10-minute video version on AOA's home page.)
TOPIC: Mark reacts to the breaking news that autism rates in America continue to rise.
ORIGINAL BROADCAST DATE: Thursday, March 27, 2014.|
Click HERE to listen to the interview.
By Christina Waldman
April 9, 2014
Re: Who Controls the Conversation? Ethical Concerns in Dorit Rubenstein Reiss, "Compensating the Victims of Failure to Vaccinate: What are the Options?" 23 Cornell Journal of Law and Public Policy (forthcoming 2014)
Dear Mr. Monroe,
In the past year, Prof. Reiss has burst upon the blogosphere as a vigorous promoter of vaccines and public health policies favorable to vaccine interests. As advocating for vaccines in social media is not something most law professors normally do in their spare time, and to the extent that she does, some have questioned the independence of her motivation. Might she have conflicts of interest to disclose? See:
"Not Paid To Post?" Dorit Rubinstein Reiss, UC Hastings College of Law and Kaiser Permanente
Who Is Dorit Reiss?
After all, despite their arguable benefits, vaccines have become a profitable health industry, with the global vaccine market currently worth $30 billion. (“Global Vaccine Market (Human and Animal) Pipeline Analysis now Available at ReportsnReports.com, 1/26/14. ) The new version of Gardasil, if approved, is expected to net $1.9 billion.
As you know, Mr. Monroe, academicians are held to high standards of fair and objective communication. You have informed me that you are unaware of any standards for conflicts of interest specific to the Cornell Journal of Law and Public Policy. The Cornell Journal of Open Access to Law gives this standard: “All authors should disclose in their manuscripts any financial or other substantive conflict of interest that might be construed to influence the results or interpretation of their manuscript. All sources of financial support for the project should be disclosed. . . ” (under “Publication Ethics and Publication Malpractice”).
Late last year, while Merck was making application to the FDA for licensing of “V503,” the new nine-strain version of its HPV vaccine, Gardasil, a battle was going on in the comment section of the KatieCouric.com blog, “HPV Vaccine Conversation Continued,” over the safety and effectiveness of Gardasil (after Katie’s show addressed Gardasil safety concerns on Dec. 4, 2013). Prof. Reiss aggressively promoted the benefits of Gardasil in comments at this blog and elsewhere, assuring readers that Gardasil is “very, very safe” and that “There is no credible evidence” of any significant risk of serious side effects--despite the many reports of serious injuries to young girls. Katie Couric HPV Conversation; Japan HPV Adverse Event Symposium; TruthAboutGardasil.org; FierceVaccines.com - Merck Warns Of Drop in Japanese Gardasil.
In response to being asked whether she wrote all the comments with her name on them, Prof. Reiss said yes, and she claimed full responsibility for them (Dorit Reiss, 12/22/13 comment to Vince Brown). Some of them sound more like they were written by a law student than a law professor. In fact, there have been so many “Dorit Reiss” comments, at so many blogs and websites, at all hours of the day and night, sometimes posted only a minute apart, that it seems unlikely for just one person to have made them all. See, e.g., Disqus.com/DoritReiss andDisqus.com/dorit_reiss Some have wondered if there is a “bot.”
When, at the KatieCouric “HPV blog,” Prof. Reiss was asked whether she were being compensated for her voluminous commenting as a vaccine advocate, she responded: “Not really. My law school would pay me the same salary whether or not I post here.” (Dec. 8, 2013. Of note, comments at that site, including this one, had a tendency to “disappear” or get rearranged completely out of chronological order; a whole week’s worth of comments seemed to simply disappear at one point, from 12/11 to 12/27/13. By 4/4/14, only 3,849 comments remain up. According to a recent article at KevinMD.com, Global Prairie, a public relations/marketing firm, digitally captured 12,049 posts within a 22-day window. Dr. Natasha Burgert, “Analyzing the Katie Couric effect on the vaccine conversation,” 2/18/14 ).
On February 4, 2013, Prof. Reiss again responded, “….As is easy see I'm an academic in a law school. My income would not be affected by posting online in any way. And in case you missed it, I use my real name.” (Retrieved 2/27/14 8:36 p.m.) When questioned about conflicts, Prof. Reiss to my knowledge has made no conflicts disclosure other than to deny financial payment from pharmaceutical companies.
and the Center for Disease Control and Prevention (CDC) have produced limited studies affirming the [relative] safety of the HPV vaccine. The two Kaiser studies (2012) were funded by Merck, while the CDC’s study (2011) was performed by Kaiser, with the same lead researcher involved in all three studies, Kaiser Vaccine Study Center’s Dr. Nichola Klein. Kaiser Permanente’s CEO, Robert Pearl, advocates universal vaccination. (4/1/14, republished from Forbes.com).
April 9, 2014, KPLC 7, Lake Charles LA: Homes for adults with autism giving families peace of mind -
April 8, 2014, USA Today: Social media bring politics to the corner office
April 8, 2014, Washington Times: EDITORIAL: An outbreak of common sense on vaccines
By Geoff Dubrowsky
April is autism awareness month, a month that I finally had decided to ignore. Since I am responsible for three adults with developmental disabilities I find that celebrating is no longer an option. Sadly for me, my nature to not bury my head in the sand has lead me to have to write this article and not ignore the actions of April!
The month begins with April Fools' Day how appropriate! Sadly this April Fools' Day delivered us interpretations of the CDC's new autism rate. The new numbers, no matter how you want to interpret them, prove absolutely nothing. We already knew we had a problem, that was not being given the attention it demands and we still have the wrong people pretending to help.
So rather than spend time here telling you why the Combating Autism Act has failed for over a decade, or telling you how politicians refuse to listen to parents who are looking for answers, and instead listen to those looking to enhance their 401K plans, or pointing out the fact that we may have one too many autism non-profits (these lead to more platforms where way too many high functioning self-advocates, who claim they have or had autism are telling us what our kids need) with them aside - I'm going to tell you about my month.
My month started with a battle to help the 75 year old parents of a 50 yr-old women who has been a resident of the Woodbridge Developmental Center for over four decades. They had been given a ten-day notice that their daughter would be moved to another NJ Developmental Center some 90 miles away.
The state law requires a 60-day Habitation Plan, that includes the families input but that law is being ignored. Because the parents lived in Old Bridge, NJ, we thought we had lucked out since I happen to be a friend of their Assemblyman Ronnie Dancer. Dancer was great reaching out as he could and also called his Districts State Senator Thompson. The story falls apart here because Thompson is in favor of closing the Developmental Centers and he decide to call me to explain his ignorance. I jumped ahead on purpose because the man was so uneducated on the issue he is championing I was left cursing him out of the phone after his responses left me shaking!
Turns out he has never visited any of the States 7 Developmental Centers that he wants to close. He claimed to be unaware that NJ has over 300 people living in Developmental Center Settings out of state and that NJ Centers do not accept placements without a court order, which is why enrollment is not up.
Please take 7 minutes to listen to Dr. Albert Enayati passionately petition IACC to include regressive autism and vaccination in their work. Their blithe response? "You've used up two minutes of your time." Thank you to Canary Party for posting this video link.
From the Safeminds site: Albert Enayati is one of the original founding board members of SafeMinds and an author of the original Auitsm and Mercury paper. He is a Principal Research Engineer with 33 years experience in R&D/mechanical testing of over 100 orthopedic devices maxillofacial, trauma and spine systems.
Well, friends, it's been quite a month already and we haven't made it to the halfway point. CDC numbers were rolled out and mostly ignored or glossed over in the mainstream media. The Chili's campaign was picked up across the country as a major "autism" story at the expense of safety for actual people with autism. Global landmarks have been bathed in a a blue glow while it's business as usual in the offices inside.
You read about these stories and more each day at Age of Autism
And while the color of month might be blue for some? For us? We're thinking green. We are sponsor and donor funded and every dollar counts to keep us up and running.
Use the PayPal button on our right sidebar. If you prefer to send a check - email Kim for the mailing address. KimStagliano@gmail.com.
Together we will continue to work to make life safer, help others become better educated, find medically improved treatments and create a mindful care and appreciation for our loved ones with autism.
We value and thank you for your support.
Dan, Mark, Kim and the entire AofA team.
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
April 7, 2014, My Fox DC: Chili's cancels fundraiser for anti-vaccine charity
April 7, 2014, Fox News: Father's obesity tied to child's risk for autism
April 7, 2014, Fox News: Chili's cancels fundraiser for anti-vaccine charity
April 7, 2014, USA Today: Chili's cancels autism fundraiser over vaccine issue
April 7, 2014, ABC News: Chili's Nixes Autism Event After Backlash
Managing Editor's Note: You can support the production of BOUGHT at IndieGogo.
By Kent Heckenlively
It was through chiropractors that documentary film producer, Jeff Hays, first became acquainted with those he jokingly calls “the most dangerous people on the face of the Earth.”
Hays was working on a film called, Doctored, which recounted the attack made by traditional medicine on the chiropractic profession and the fight the chiropractic profession waged in response and won. “It was a small film that told the chiropractic story. The AMA (American Medical Association) tried to contain and eliminate the profession of chiropractic. Some chiropractors sued them in 1974, and it took 13 years, but the AMA was eventually found guilty. That story had never really made its way into the mainstream. And I felt it was a microcosm of what happens to alternative therapies that come under attack from mainstream or political medicine.”
Many of the chiropractors Hays interviewed had parents who were chiropractors and several of them said that in their life they’d never, “taken a drug, an aspirin, or a vaccine.” Hays was startled to hear that many of them had never had a vaccine and what followed from that was a slow awakening to the fact that there was even a discussion about the safety of vaccines.
The SaneVax Team would like to share a series of events in Japan which culminated in a decision which was nothing short of miraculous. This decision and the events leading up to it offer hope to millions of families whose lives have been adversely impacted by the use of Gardasil and Cervarix.
Due to massive efforts by HPV vaccine victims and their families, independent medical and scientific professionals willing to speak about their concerns, traditional media outlets with the integrity to investigate and report accurately, input and assistance from the SaneVax team, and political representatives who actually did the job they were elected to perform – THERE WILL BE NO GOVERNMENT RECOMMENDED HPV VACCINATION PROGRAM IN JAPAN FOR AT LEAST A YEAR.
Because all of the groups just mentioned worked together to preserve the health of Japanese girls, multiple members of the House of Councilors, the ruling Liberal Democratic Party intervened making it impossible for Japan’s Ministry of Health, Labor and Welfare to call for the re-instatement of Japan’s official recommendation for HPV vaccines (both Gardasil and Cervarix) for 2014.
Basically, the HPV vaccine debate in Japan came down to one side claiming psychosomatics versus the other side presenting science. Science won!
Timeline of Events Recorded by SaneVax:
It’s really hard to understand the uproar over Chili’s plan to donate 10 percent of its proceeds on April 7 to the National Autism Association’s efforts to prevent wandering. Too often we see the tragic stories of autistic children wandering away and dying, especially by drowning. This is an especially critical work since the leading cause of death among those with autism is drowning.
In fact, in all the heated mainstream coverage of this, no one talked about NAA’s role in protecting the lives of these children. All that mattered was putting the “anti-vaccine” label on an autism organization.
Emily Willingham at Forbes wrote, “Chili’s had made a particularly poor choice” in deciding to give money to NAA.
Willingham quoted from the NAA website:
‘While mainstream science discounts vaccinations as a cause, members of the National Autism Association feel vaccinations have triggered autism in a subset of children, and that an overly aggressive vaccination schedule coupled with toxic adjuvants in vaccines could affect individuals who have a family history of autoimmune disorders specifically. As with any medication, adverse events do happen, and vaccinations are no exception. Research to investigate, and reduce, adverse events in immunized individuals is currently nonexistent.’
Acknowledging that there are parents who believe that vaccines triggered autism in their children hardly makes the NAA an anti-vaccine group, but according to Willingham, it doesn’t matter.
By: Inas Younis
Its takes strength to hold on, but it takes even more strength to let go. But I am a mother and I could only do what came naturally, and so I held on. I held on as tight as I could without hurting him. I held him when he tried to jump out of moving cars. I held him when he tried to attack the neighbors. I held him when he tried run out into streets. I even held him as a form of therapy known as holding therapy. And although he is now gone, I am still holding on, and I just don’t have the strength to let go. Whoever said mothers are strong, did not really understand the meaning of strength.
But now the time has come. Blinded by tears, and deafened by an inner voice which keeps reminding me that mothers never give up on their children, I am going to let go. But before I do, I must throw myself before a jury of my peers and ask for their forgiveness. I know what you are thinking, only God can forgive me. But I don’t need forgiveness from God, for he has been on and by my side since day one. He was there while I screamed and cursed at the heavens for making my son autistic and epileptic. He was there when I begged for a miracle every day for ten years straight. He was there for the countless sleepless nights when my son screamed in pain. He was there when my son had his first seizure. He was there when I had my first panic attack. He was there then, and he is here now. I don’t need his forgiveness, for there is no sin in coping. And I do not need forgiveness from my fellow man, who was completely oblivious during the beatings, the fecal smearing, the screaming, the property destruction, the insanity and horrors of my life which I hid from their innocent eyes and ignorant hearts. No, what I need in order to let go, is forgiveness from a jury of my peers. A jury of mothers who have suffered some measure of the horrors I have for the last sixteen years. For only they can understand, and not because they have been through it, but because many of them are still going through it. They are my heroes, and after you hear my story, they will be your heroes too.
So please allow me to plead my case , starting with the most obvious defense. I tried everything!
Was I aggressive enough with his therapy, his special diets, his medications, you ask? Well let me see if I can remember, because as most of us mothers with special needs children know, we all suffer from a bit of amnesia. It’s our brain’s way of dealing with trauma. I think there is an acronym for it called PTSD. The world of autism is full of acronyms. There is GFCF, SCD, ABA, ASD, IDEA, ESY, and my all time favorite, WTF. But luckily, I kept very detailed journals, so no worries. Of course at the time, I kept them because I was trying to decode the mystery of autism and in my case severe autism. I micromanaged his every bite of food, supplements, medications, and therapy in an effort to isolate cause and effect and determine patterns of behavior. But no patterns emerged except for one; I was going crazy. I submit to the jury the following Journal entries.
October 2003: I am in autism hell, which right now means hiding out in my bathroom while the devil has his way with my son. According to my notes the only thing I introduced in the last couple of days to his supplement protocol is an orange flavored fish oil. Therefore, no more orange flavored fish oil. Note to self: use alternate fish oil. To do list: email the following fish oil companies until I find the purest fish oil known to man.
In the making for over 10 years, the highly anticipated documentary film "Trace Amounts" explores the science and controversy behind the autism epidemic.
Lighthouse Pictures announces the world premiere of the documentary film "Trace Amounts" on Saturday, April 26th, at 5:30 p.m. at the Newport Beach Film Festival in Newport Beach, California.
After recovering from a devastating illness that brought him to the edge of despair, Director, Eric Gladen, started researching the science behind autism. His research led him straight into one of the biggest medical controversies of all time: whether or not childhood vaccines cause autism. But Eric wasn’t focused on the vaccines, he was focused on an ingredient that is only used in vaccines to save money: mercury. He would end up quitting his career, moving into an RV, and traveling the country for years interviewing experts and piecing together thousands of studies and leaked documents. This film will do more than turn this debate upside down; it just may solve this devastating epidemic once and for all.
“The public needs to understand what’s really happened here because the public will drive the change,” Director, Eric Gladen says.
“This is a must see film,” says Congressman Dan Burton (R-Ind. 1983-2013), who was the Chairman of the Government Reform and Oversight Committee that led a four year investigation into vaccines and autism. “There is no doubt in my mind that mercury is a major contributing factor in the autism epidemic.”
Trace Amounts will play at the Newport Beach Film Festival, Saturday, April 26, 2014, 5:30 p.m. at the Starlight Triangle 8 Cinemas. For tickets, you can go to http://www.newportbeachfilmfest.com.
Keep tabs on IACC here.
Tuesday, April 8, 2014
Time: 9:00 a.m. to 5:00 p.m. Eastern
Place: National Institutes of Health
31 Center Drive
Building 31, C Wing, 6th Floor, Conference Room 10
Bethesda, Maryland 20892
Map and Directions
Cost: The meeting is free and open to the public.
Agenda: To discuss committee business, updates and issues related to ASD research and services activities.
Access: Medical Center Metro Station (Red Line)
In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus. All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit.
Registration: On-site registration is from 8:30 a.m. to 9:00 a.m. Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis.
Online pre-registration This link exits the Interagency Autism Coordinating Committee Web site will close at 5:00 p.m. Eastern the day before the meeting. After that time, you will need to register onsite the day of the meeting.
Webcast Live: http://videocast.nih.gov
Conference Call Access: Dial: 888-950-8042
Access code: 8689681
The TIME headline went from ....Chili's Burns Anti-Vaxxers: That's What Happens When You Kill and Maim Kids
to...Chili’s Burns Anti-Vaxxers—and Probably Saves Some Kids’ Lives.
As disgusted as I was with this coverage, I did post good comments challenging everything TIME's science editor Jeffrey Kluger said.
April 6, 2014, Neptune, NJ, Asbury Park Press: Featured letter: Vaccines are to blame for my son's autism
April 6, 2014, WTHI TV Terre Haute, IN: Is autism on the rise?
April 6, 2014, WMAZ Atlanta, GA: Anti-vaccine push gives diseases new life
April 5, 2014, WI Rapids Tribune: Experts: Increase in autism rate driven by public awareness
April 4, 2014, AMERICAblog: New evidence that autism is inherited, rather than induced by vaccines
Update 4/7/14 The vaccine injury denial community is working overtime this week in an effort to hijack AutismAction Month and protect indudstry at the expense of people with autism. Polio is most often used as the tool of fear. Here is the Polio series from Dan and Mark to offer clarity to those who seek it.
Doctors May Have Missed Pesticide Clue in California’s “Polio-like” Cluster
Child in “Polio-like Cluster” Linked to California’s Winemaking Industry
“Polio-like” Cluster in California Has Eerie Echoes
Below is Dan and Mark's 7 part series on polio which ran in 2011.
By Dan Olmsted and Mark Blaxill
1. The Wrong Narrative.
Polio is the iconic epidemic, its conquest one of medicine’s heroic dramas. The narrative is by now familiar: Random, inexplicable outbreaks paralyzed and killed thousands of infants and children and struck raw terror into 20th century parents, triggering a worldwide race to identify the virus and develop a vaccine. Success ushered in the triumphant era of mass vaccination. Now polio’s last hideouts amid the poorest of the poor in Asia and Africa are under relentless siege by, among others, the Bill & Melinda Gates Foundation. Eradication is just a matter of time, and many more illnesses will soon meet the same fate.
Managing Editor's Note: Please support our sponsor VOR and consider attending their conference in June in Washington DC., to ensure appropriate care and housing choices for YOUR child in the future. "Making it Happen: Reforming Policy and Law in Support of Person-Centered Quality and Choice." VOR is the ONLY national, nonprofit advocacy organization supporting residential choice from small to large housing options.
By Desiree Kameka, Director of Community Education & Advocacy, Madison House Autism Foundation and Tamie Hopp, Director of Government Relations & Advocacy, VOR
Did you know…
ü In the next decade, over 800,000 on the autism spectrum will transition to adulthood.
ü Almost all states have waitlists for accessing adult support services, yet the average growth of funding nationally is only 3.2%.
ü Almost one million individuals with intellectual and/or developmental disabilities (I/DD) are still living with caregivers over the age of 60.
In response to these staggering statistics, there is a movement of families and local organizations working together to create sustainable solutions to this national housing and support service crisis. They are gathering information at conferences, many have joined together for advocacy as the Coalition for Community Choice, and are sharing solutions at the new Autism Housing Network.
This collective energy and collaboration is in direct response to efforts by some government officials and even advocacy organizations to limit and eliminate certain options based solely on residence or workplace size and location, without assessing the smiles, laughter, sustainability, job security and true empowering sense of community and belonging that is alive and well in these residential and vocational opportunities.
What does policy have to do with housing, employment and service choices?
Federal and state policy and laws are largely responsible for how long term support services (LTSS) are regulated and funded.
In one recent, significant example, the Affordable Care Act of 2010 required that the Centers for Medicare & Medicaid Services (CMS) modify their regulations. On January 10, 2014, CMS released the long-awaited final version of the regulations, CMS 2249-F and CMS 2296-F. The new rule defines what CMS considers to be characteristics of “home and community” settings and the new person-centered planning requirements.
This is something I wrote about in December – original article appended – occasioned by Emily Willingham’s attempt to respond in Forbes to the Brian Hooker/Shot of Truth’s press release a few days ago . The question I pose is what would actually happen if government officials ever had to answer questions. I guess it might look something like Coleen Boyle of the Centers for Disease Control trying to fend off questions for five minutes from Congressman Posey in November 2012 . What, of course, we actually get in this instance is Emily Willingham, a person with no responsibility for the policy and no grasp of the scientific issues, trying to sow confusion. For Willingham the right answer is just the usual bureaucratic stitch-up masquerading as hard science. The last thing she wants is people rummaging around in the CDC’s cupboards. Re-challenged by Hooker you get the same answer all over again. But, of course, the point is that it does not ultimately matter what Willingham says because she is not accountable and nor are the rag, tag and bobtail crew of characters that hang around on her website and elsewhere.
The system is about non-accountability. The pharmaceutical companies are unsuable, the bureaucrats unanswerable and make claims for the products that the companies themselves would never risk. People like Willingam and Dorit Reiss – the public vaccine compliance lady who cannot make up her mind whether she is simply a concerned mother or a nationally ambitious tort lawyer – are surrogates for the people who might have to answer. As I remarked in my original piece Reiss made her debut in the field when she was conveniently slipped in protecting bioethicist Art Caplan from having to answer awkward questions from Mary Holland in Harvard Law Journal. What this system deserves above all is our blistering contempt.
This post first ran on 12/20/13:
By John Stone
One of the problems that the phenomenon of Dorit Reiss points to is the fundamental lack of solidity of vaccine science: we are not talking about something like the laws of thermodynamics, the periodic table, the theory of relativity – instead it is something that has to be defended by a sequence of dodgy manoeuvres and obfuscations. The claims for the vaccine program which are being made are politically absolutist but there is no unchallengeable super-theory behind any of it, only a multitude of industrially manufactured products which may be neither as effective or as safe as their advocates claim, have usually not been as well tested as they should have been, and can only be defended by a bulwark unbalanced legislation backed up by endless institutional malfeasance. Pubmed, the index of peer review medical studies, is testament to this: even if there are many studies which are favourable to products it does not make anything about their findings immutable evidence, or proof of anything. They can only be provisional.
Readers we have a contest for SimplyFun games. SimplyFun builds smarter kids and stronger families through the amazing power of play with over 100 award-winning games (that have been independently evaluated for 11 characteristics of Autism).
Leave a comment to enter to win one game.
SimplyFun Games have been Independently Evaluated to 11 characteristics of autism:
SimplyFun believes that play is for everyone, regardless of their skill level or challenges. So we have embarked on a new project that evaluates the contents, methods and skill level of our games for various types of learning challenges.
A number of years ago a mother of two children, one severely autistic and one without those challenges told us that our game Walk the Dogs allowed her to experience something she thought would never be possible in her life….to see her two children play together, laughing and enjoying a game together. Though she had modified the rules to make the game accessible to both kids, that didn’t lessen the joy of their play or detract from the emotion we all felt in how our game made a difference in her family. Her story remains a legend in our company and gave us the idea that we could and should provide help to other parents just like her.
Hi, AofA'ers, Kim here! I hope you will consider logging into this fantastic telesummit featuring 15 experts including Soma Mukhopadhyay of HALO - the Rapid Prompt method (featured in a beautiful parent report story on AofA) Temple Grandin, Julie Matthews, of Nourishing Hope, yours truly and just look at the list above! Tackle diet, behavior, communication, medical treatment, alternative treatments and so much more! It's FREE and available for 48 hours if you can't listen LIVE - plus you can purchase the teleseminar after the fact if you would like.
Register for the FREE Telesummit with Kim Stagliano
This Telesummit is for you if you know that more is possible for your child but need some encouragement and solid info to figure out HOW to help your child make the next leap in his or her development.
Imagine your child…
Plus, imagine knowing how to best take care of YOU so you can be most effective in helping your child and experience more energy and joy in your life.
UPDATE: Wow - Chili's CAVED to media pressure and cancelled their support of NAA. What a tragedy - from now on when a child wanders and dies you can Tweet and FB Chili's and remind them.
Chili's Grill & Bar 54 minutes ago Chili's is committed to giving back to the communities in which our guests live and work through local and national Give Back Events. While we remain committed to supporting the children and families affected by autism, we are canceling Monday's Give Back Event based on the feedback we heard from our guests. We believe autism awareness continues to be an important cause to our guests and team members, and we will find another way to support this worthy effort in the future with again our sole intention being to help families affected by autism. At Chili's, we want to make every guest feel special and we thank all of our loyal guests for your thoughtful questions and comments.
PLEASE dine at Chili's on April 7 to support NAA. There is a bot-based campaign to ATTACK NAA - a great org - started at the kitchen table of real autism Moms a decade ago and protecting, loving and supporting real families EVERY DAY - these attackers have branded NAA falsely - and viciously in social media - to protect an industry. NAA SAVES LIVES with their wandering program. Eat. At. Chili's.
We'd like to thank Chili's restaurants for their support of the National Autism Association and their many programs that help keep children, teens and adults with autism spectrum disorders safe and in many instances, can save their very lives.
The CDC announced that 1 in 68 children have autism at the end of March. Granted they have yet to count and include children under the age of 12, but still, 1 in 68 children? That’s a lot of kids!
1 in 68. That’s up from 1 in 88 from just two years ago. Many are expressing concern over that 30% increase. A lot of us are questioning the lack of urgency from our current Administration as no one from Obama’s office has reacted nor responded to the rising national autism numbers. You’d think that a disorder that robs a child of his communication skills, socialization skills and a host of other self-help skills would be a huge concern. But, we’ve heard nothing. No alarm bells. No improved plan of action. No removing committee head members responsible for billions of dollars wasted. No scrapping of what has obviously not worked to reduce a disorder that affects 1.2 million Americans. Nothing.
Why aren’t government officials, who should be actively responding to valid questions and concerns placed before them, continue to turn a blind eye on our nation’s future? Why are they dodging the obvious? Why don’t they see the reality that so many of us do? Does anyone care enough to really do something about the increased rate? Hello? Hello???
We get no response.
We hear no urgency from those who should. I still have questions though. So do a slew of people. So, I resorted to ask a Magic Eight Ball some of the questions I wished someone up there in the District would answer.
Magic Eight Ball, the autism rate has steadily increased over the last 30 years. Will the autism numbers ever go down?
Yeah. That’s what I thought. Bummer.
Magic Eight Ball, since not enough people in D.C. seem to really care to combat autism, is it going to continue to be up to the parents to get stuff done?
It was 35 years ago that Vietnamese tanks rolled into Cambodia's capital and put an end to the four-year reign of genocidal terror that wiped out a quarter of the population through starvation, torture and execution. A tidal wave of desperate refugees rolled across the border to encampments in Thailand; eventually, thousands joined a thriving community of Cambodians who had settled in Long Beach, California.
There, in the 1980s, doctors began noticing an unusual phenomenon -- some of the resettled Cambodians, mostly older women, were having problems with their vision that could not be linked to any physical cause. "Unknown etiology" would be the formal way to describe it.
But medicine abhors a mystery, and speculation as to the cause soon arose -- these survivors of war and terror could not see because they would not see, doctors concluded. They were so traumatized by what they had witnessed and suffered that their vision was impaired. They were experiencing hysterical blindness.
"Blinding Horrors : Cambodian Women's Vision Loss Linked to Sights of Slaughter," was the LA Times headline in 1989.
"Eang Long cried for many days after the Khmer Rouge soldier beat her brother and his three children to death," the story begins. "'My eyesight started to get terrible after I saw the tragedy'," Long said. "Because I was crying so hard and long, my eyes were red and started to swell up. Then I started to have problems with my eyesight."
In the face of such horror, any human reaction seems possible. Researchers identified 30 Cambodian refugee women 40 to 69 years old with a similar pattern and gave them a battery of tests, including brain waves. (Some men were also affected, but focusing on women makes "hysteria" a simpler argument.)
"In each case, the test revealed normal visual acuity, often at the 20/20 or 20/40 level. These same women, however, when looking at an eye chart could barely see the top line of 20/200--the point of legal blindness. Other women had no light perception and could not detect light or dark shadows. ...
"Most of the women's functional blindness surfaced during the Pol Pot years. Personal interviews brought out repeated stories of forced labor, the murder of family and friends--often in their presence--beating and torture, starvation, a treacherous escape to Thailand and separation from family.... The findings indicated that the longer a woman was bound to Khmer Rouge servitude or life in a refugee camp, the more her vision was impaired."
I coached Special Olympics for over 20 years, and I have been a vaccine safety advocate
for about 20 years, so I may have a different take on Autism Awareness Day than most.
Through Special Olympics I was exposed to many children with autism and other neurodevelopmental disorders, although those involved with an organized activity like SO would necessarily be relatively high functioning. My point is that there are many many
autistic individuals, who are very low functioning, that you will never see, some cannot take care of themselves in any way, some wander constantly and many cases of wandering end up in their death. Autism impacts families in profound and sometimes very damaging and dangerous
So please, media and pundits, stop referring to autism as a "gift".
I fully support the intent of Autism Awareness Day to foster both awareness of and tolerance for those with autism. We need to work on both social programs as well as treatment regimens to deal with the exponentially growing number of autistic people in our midst.
But what we ALSO need to do is stop creating new autistic children.
Aprli 3, 2014, Seattle PI: Chili's Is Fundraising For A Notoriously Anti-Vaccine Charity
April 3, 2014, Denver Post: The right to make informed decisions on vaccination
April 3, 2014, PRWEB: Lighthouse Pictures Announces Autism Documentary "Trace Amounts" to Premiere at Newport Beach Film
April 3, 2014, Hartford (CT) Courant: Autism Day At The Capitol
April 3, 2014, Nacogdoches (TX) Daily Sentinel: Nonprofit to help families affected by autism
April 2, 2014, NBC Today Show: Expert: 'We have to do more' on autism
During this "Autism Awareness Month" we are bringing back a few old posts - that show the stark reality of autism. The side rarely seen under the glow of the blue lights that overtake this month. We show this NOT to denigrate or belittle. We show this because in America, a single plane with 239 people on board gets weeks of media scrutiny and attention. Family members are praised for all but rioting for answers that we we are told they richly deserve. (And they deserve answers.) At the same time, tens of thousands of families have had their lives changed and children altered by autism - and we are told to sit down and SHUT UP. Not likely. This post ran in January, 2014.
By Kim Stagliano
I was scrolling down my Facebook wall earlier this week when this photo caught my attention.
This is Keith, a young adult with autism, and son of my friend Crystal S. I asked her if I could share this glimpse into the version of autism often (purposefully) overlooked by self-advocates and the general media alike. While Keith himself is a handsome guy, his autism is considered kind of ugly by those who only want you to see shiny, happy fairy tales.
So... What is happening to Keith.
Is he having heart surgery?
Is he having his appendix removed?
A 29% increase in two years. Not Just Genetics. Not Just Increased Awareness and Better Diagnosis!
On March 27, 2014 the CDC published "Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2010" (MMWR Surveillance Summaries / Vol. 63 / No. 2). The study finds the rates of autism spectrum disorders (ASD) of children born in 2002 have increased to 1 in 68, up from 1 in 88 of children born in 2000. With males five times more likely to develop autism, the prevalence rate increased from 1 in 54 in boys born in 2000 to 1 in 42 in boys born in 2002. SafeMinds is in the process of reviewing the most recent report but has these comments based on preliminary data presented to the autism community. A more detailed analysis will be available soon at www.safeminds.org.
Problems with the ADDM Data
1. No Unified Process: After a decade, the CDC has still not unified the review process among ADDM sites as it pertains to access to school-based health records, meaning there are site to site differences in the study. CDC notes that the lowest prevalence rates were found in states in which little or no access to education records was available (Alabama, Colorado, Missouri, and Wisconsin). When these four states are removed, total prevalence is 1 in 58, not 1 in 68. Read more and download the full statement at the Safeminds site.
By Anne Dachel
Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.
April 3, 2014, St Louis Today: Healthy Kids: Experts keep learning more about autism
April 2, 2014, Parade Magazine: 'I Am Different, Not Less': 13 Inspiring Quotes For World Autism Awareness Day
April 2, 2014, Toronto Global News: How should health officials reverse an anti-vaxxer movement?
April 1, 2014, USA Today: As autism awareness spreads, focus on cause: Your Say
Mar 31, 2014 Suzanne and Bob Wright were interviewed about April, Autism Awareness Month, as spokespeople for the internationally known advocacy group, Autism Speaks.
Suzanne Wright: "We had a grandson . . . and he was doing fine, and then suddenly, at about 18 months, he started losing his speech and by two and a half, he was diagnosed with autism. It was shocking to me because at the time, Bob was chairman of NBC Universal and we thought we were pretty informed people, we had no idea what autism was. And then, at that time, they said well, it's one in 166. They said it much too casually for me because I didn't know anything that was one in 166, so we decided to do something, to take action. . . .
"And then they told us, good bye and good luck. They had no place to send us. And I thought, . . . what do the people do who don't have any resources? How do they take care of these children who are being diagnosed with autism? Now, every 11 minutes, a child is being diagnosed."
Bob Wright then described being at Johns Hopkins in Baltimore with some people from the CDC who had a chart depicting numerous diseases.
Bob Wright: "I said, wait a second, autism is the most prevalent of all of these diseases by a huge amount, when it was one in 166. The others were like one in 5,000, one in 10,000 . . . How could that be? There's no services. You don't have any medical care. There's no insurance. And he looked at me and said, 'This is really confounding. It's a very difficult condition. We really have to get a handle on it.' . . .
"I said, 'You have to get a handle on this? It's at the top of your list!.'"
The Wrights were asked, "What do you think about the way autism is portrayed in the media? Are we doing enough to educate people about what it is and where we're at, in terms of the numbers?"
Bob Wright: "Well no. If this was cancer, if pediatric cancer went from one in several thousand to one in 166, and now it's one in 68, for boys, it's one in 42--that's over two percent, . . . people would be screaming. . . . Because this is a neurological issue, and because medical associations don't really have a handle on it, they sort of get away from it. These families are left to struggle with a tremendous burden without medical help, without hospital help, without government help. It's all coming out of their own pockets for their children, then they're teenagers, then they're adults. It goes on and on and on."